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June 2018 Chemo Starters

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Thanks CDC, I think i am going to try for nightime first off, if thats a problem I'll switch to morning, its got to be taken whatever so sleeping through it might be the best.  Seems crazy to be worrying so much about a pill when we've had chemo, operations etc doesn't it.

Sally - What a mare!  How on earth does this sort of thing happen... keep on at them!!

Kip

x

Member

Re: June 2018 Chemo Starters

Glad that the rad planning went well and you won’t need rads to the middle of the chest. Frustrating that they hadn’t received all the informati9n needed beforehand. Certainly understandable to feel emotional. I’m glad the nurse was sympathetic and helpful. Good to get info on therapies and counselling too. It’s so important we look after our mental health in all this. I certainly don’t know how I’d cope without seeing my therapist once a week. I also hope you are SE free on the tamoxifen, Not sure when you’re supposed to take them but Sally’s reasoning taking them at night seems sensible.

Sleep well everyone xx
Member

Re: June 2018 Chemo Starters

Aaaagh!  Makes my blood boil Sally.  It’s so unfair that you’re having to go to the effort of detailing all the inaccuracies and misinformation,  Surely the whole point of the investigation was to work out what exactly had gone wrong, issue a fulsome apology and explain how they’d prevent anyone else going through what you’ve had to.   I hope you can get some proper answers soon.  Xx

Member

Re: June 2018 Chemo Starters

Sally you must be infuriated, being lied to is appalling. I admire your tenacity. 💪
Member

Re: June 2018 Chemo Starters

Hi,

Dunno about anyone else but always take medication with possible side effects at night so that hopefully I sleep through the worst of it.

Received the emailed 13 page report for my complaint which was signed off and sent to the CCG nearly a month ago. I hadn't been sent a copy until I asked for it despite my emailed complaint in May triggering the investigation in the first place. It's full of inaccuracies and misinformation so at the weekend I'll go through it and send my reply which I don't think they'll be expecting especially when I send it to the CCG as well. I was told an investigation was being done when I was diagnosed in January but it seems not. I was also told my cancer was a new one and not a recurrence of my previous one at diagnosis. In the report it talk about it being a recurrence. Someone has lied to me. I'm like a dog with a bone. I'm not prepared to let it go.
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hello,  just back from Rads planning session.  All painless, tattoos in place and only took about 10 minutes.  I saw a lovely nurse and when I burst into tears (been very emotional recently) she was very kind and talked me through my diagnosis and treatment adn explained its all normal to feel this way at Rads as its another treatment but also the light at the end of the tunnel.  They got me to fill out a form to say how I was feeling and will offer me some therapies and counselling should I want it.  Annoyingly before I could start the planning scan she said they hadn't got my results from the ANC (panic moment as thought I had been given someone elses last week) so she had to see the ONC as they had written I needed Rads to middle of chest.  ONC told her the nodes were clear so I don't need the rads to the middle of the chest after all!   Good job she checked.  Wish they would talk to each other.  Now going to start Rads on 29th November for 3 weeks.   Still haven't got the Tamoxifen as the GP hasn't sorted it yet.  I hope I do as well as your Mum does CDC, can't decide whether to take them last think at night or first thing in morning?

Kip

xx

Member

Re: June 2018 Chemo Starters

Had a reply to my email query of the other day saying the report for my complaint t was finalised and signed off by the CCG last month.

Nobody bothered to send it to me though. Just waiting for my copy to come through now. How they can sign it off without my input is a it baffling.
Member

Re: June 2018 Chemo Starters

Clare I feel fine now apart from the horrid taste ta. I am fine physically thanks after the surgery. I felt well enough to go to work today until I was ill yesterday.
I am glad that you have arranged to move your surgery to the Marsden. Will you have radiotherapy at the Marsden too if you need it? I have an oncolgy appointment on the 26th at my local hospital which I managed to get abit sooner as I said that I didn't mind seeing a different oncologist as the one I saw when having chemo is not seeing anyone in November.
Hopefully I won't be sick tomorrow fingers crossed. x
Member

Re: June 2018 Chemo Starters

Kip glad to hear the exercises are making some difference. Hope the CT scan goes ok and it doesn’t cause you pain. I was talking to someone who has been on tamoxifen for a while. She went to her GP having been on it for a couple of weeks. He asked how she was and when she said she felt fine he remarked it was good because normally any problems manifest themselves within a few days. My Mum has no issues at all whilst on it so I hope I’m as lucky although I fear not- I’m having horrible hot sweats on chemo!

Sally sorry you’re still waiting to hear back with regards to your complaint- I’m compartmentalising mine and not getting my hopes up that I’ll ever receive an explanation of what’s gone wrong or indeed an apology. I’ll keep you posted. X

My chemo went ahead on Friday. I’ve to keep off my feet as much as possible. Oncologist wants me to get another two cycles under my belt which would be equivalent to 3 Docetaxel (I was due to have 4). The surgeon I saw initially has said she would expect me to have rads too but it will be interesting to see what the Marsden say

Hugs to all xxx
Member

Re: June 2018 Chemo Starters

Oh Linda Thst sounds horrible. How are you doing now? Very wise to stay off work. Could the sickness still be a SE of chemo even though you finished some time ago? I’ve defintely got some issues with taste. Bizarrely everything tastes great when I start eating but as the meal progresses I get a horrible taste in my mouth or I can’t taste anything at all. My OH likened it to when you go into a place that smells strongly of something eg cats Yoi get used to the smell then can’t smell it at all. I think my tastebuds get used to the taste of things then switch off - it’s very disconcerting. I was told to be careful of prawns whilst on chemo so they might be the problem. Or indeed a bug. Just look after yourself and take care. Clare Ps meant to say how are you doing physically following the surgery? I got a call to say the Marsden have accepted my transfer of care. I’m relieved!! See them in a couple of weeks to start planning what steps to take next.
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Re: June 2018 Chemo Starters

Hi,
I have been sick yesterday and today but not sure if it is due to the prawns I had on Saturday a bug or the chemo as I have felt sick on and off from before surgery. I rang the helpline and they said stay off work so you are 48 hours clear of being sick as there are alot of bugs around now. The bad taste I have they say is due to chemo. My Mum has felt sick and been off her food unlike me. Has anyone else been suffered like me? (finished chemo nearly 10 weeks ago and surgery was 3 weeks ago but this is the 1st time I have actually been sick). Thanks. x
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi Ladies, sorry for not replying over the weekend, had Mum to stay as OH and step dad took a boys holiday for the weekend.   Been very busy.  

Georgia Gee - hmm your seroma problems sound like mine,  I am getting movement back in arm and the seroma is definately going down but its still there and tight around the joining bit from armpit to breast (or what was my breast).  Its not painful but tight and still feels like a lump when I put my arm down.  I guess I'll keep on with the exercises and see what happens.  I keep my heart cushion pressed under there most of the time and that helps too.  Just hope my arm movement is enough for the CT scan tomorrow.

JacB - good to hear that your seroma went eventually, although not great about the scar reopening. Nothing is ever straight forward is it.

Meesh73 - your post made me smile... I imagined sticking to the fridges in the supermarket with my knicker magnet.. I haven't read any very convincing posts about it helping but worth a try sometimes I guess.   I haven't got the Tamoxifen yet as need to get to GPs to pick it up. Do you take yours in the morning or evening?  Any ideas for whats best?

CDC - how did the chemo go, hope you are fairing ok this time round. 

KTK - how are the rads going?

I've got CT scan tomorrow and rads planning, looking foward to getting this bit started, but actually after the euphoria of gettting good news on Thursday I've felt a bit down really, it seems its up and downs all the way doesn't it?   Just now feels like another huge hill to climb and then the unknown after that? 

RedRose - how are the nails?   I'm going to remove my nail varnish and see whats what with mine, they keep breaking very short so not exactly attractive at the moment!

Kip

xx

Member

Re: June 2018 Chemo Starters

Have faith Georgie, at one point I thought the seroma would never go but it has now. Keep squishing! X
Member

Re: June 2018 Chemo Starters

Hi Kip, Shi asked me to pop on here and let you know about the magnets. I've been wearing mine for months and I don't think it makes any difference but I'm still wearing it in case it's making even a tiny bit of difference 😂 I do find I sometimes get stuck to metal things if I'm not careful (like my work pass or handbag) 🙄 I tried acupuncture first but that didn't do anything either and I'm now taking sage tablets to no avail. That's not to say that none of those things would work for you. The best things I have to deal with the flushes are foldable fans (I have a few in different bags) and the cool pillow and they were also the cheapest 😂

 

Good luck with the rads, they're nowhere near as bad as the chemo 😊

Member

Re: June 2018 Chemo Starters

Ouch Jacqb!  

 

That explains a few things.....  my left breast and connecting bit to my arm is what is so enlarged - was so much bigger that I didn't fit into my clothes, but I think it has reduced a bit now as I said before.  

 

I mentioned this to my oncologist last week, and she advised the same as you, about the gentle pressure, but didn't want to have a look at it.  I was concerned that it might be breast lymphoedema, but I have radiotherapy planning next week, where I hope that might be ruled out.  Its good to be able to chat through things on here isn't it, and to swap experiences as and when we need to.  I'm sat here doing a bit of 'gentle pressure' liquid pushing out as I type with the other hand!.... I will also try to dig out the exercise sheet with the details as well. 

 

Georgie xx

Member

Re: June 2018 Chemo Starters

Hi Georgie

I had a WLE with full node clearance on the 3 Sept. I developed a seroma and was told that it would resolve itself and they didn’t want to drain it because of the infection risk. The seroma grew to 9cm long, 7cm deep and 7cm wide. At this point they tried to drain it using ultrasound guidance. It was honestly the most painful thing I’ve ever experienced and they only managed to draw 75mls of fluid. Since then the seroma has completely resolved but the pressure forced open my scar which has still not closed. I think they always prefer to leave things alone to resolve naturally but surely you shouldn’t still have swelling five months along? I was told that gentle pressure would push the liquid out of the tissues, a rolled up sock or cushion under the arm was suggested but TBH after the attempt at drainage it was so painful I couldn’t stand anything touching it. As I said it’s all fine now just waiting for the scar to close so I can have more chemo.
I hope you get some relief soon.
Jacq x
Member

Re: June 2018 Chemo Starters

Kip, 

 

I found it interesting that your team had been similar to mine about the seroma business.....

I was told that I would likely have a seroma, but that I shouldn't worry, because the nurses or the surgeon would drain it after the surgery.  My particular surgeon does not even use a drain on anyone, but I was reassured when they told me they would drain anything that popped up.  

 

So I called and made an appointment for this with BC nurse when a swelling began, and she said she could not drain much, and to wait to see the surgeon, which I did, and then he said that it would disappear on its own over time, and that he did not want to introduce another opportunity for infection by draining it.  So I never had anything drained, and this was in June!   I think it may have reduced slightly, but I'm not sure it's going to go away completely.  The affected breast is now at least 2 cup sizes bigger than the other side!  My op was a full node clearance plus lumpectomy.  I know we are all different, but has anyone else had this? 

 

Georgie x 

 

 

 

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Oh thanks for the heads up on the exercises, makes sense I guess... mental note to self... do the exercises!

Hope you get some answers regarding the complaint.

Member

Re: June 2018 Chemo Starters

Hi,

if you've had a node clearance you have to do the exercises forever as the scarring tightens as it gets older.

Chased up my complaint again this morning. Waiting to hear back, not that they are going to get able to give me a satisfactory answer as there really are no excuses for the mistakes made.
Member

Re: June 2018 Chemo Starters

Kip glad you got good results. I am awaiting a HER2 test result although it was negative after the biopsy. I have my oncology appointment on the 26th so I guess it will drag on until January.
Anyway I just wanted to ask everyone how long to do the exercises for as I stopped after 2 weeks after my SLNB?
I have booked a hair appointment for later today to see if I need a trim to encourage my hair to grow back in a style. It's 9 weeks after chemo ended now but it grew back during the last 4 cycles. I saw a nice style on the local news yesterday as I quite like my hair short and peeps have said it looks nice short.
Every cloud and all that!
Take care,
Linda
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi Everyone, firstly let me just say I did feel a bit wary about posting my news yesterday as I am aware that some of you are still in the throws of chemo and all the other problems going on... please forgive me if it seemed crass but I'm rooting for you all, and will be waiting for you all in the rads department to compare tattoos!

CDC - good for you making a complaint.. without people like you making a stand these things will continue and it never ever should happen!   I am sure it won't affect how they treat you at the hospital, if you had been listened to and treated correctly in the first place you wouldn't have had to make a complaint.  I'm glad the chap on the phone was sympathetic and shocked to hear your story, just goes to prove that what has happened to you was horrendous!   Be strong, you are doing this not only for yourself but for all those women out there who are facing the same challenges!  I hadn't heard of Tamoxifen reducing the breast density but I will efinately mention my concerns it when I come to have a mammogram and will make a nuisance of myself until they do an U/S if I feel I need one!  

CDC - hope chemo goes ok and the tingles don't get worse. 

Knicker Magnets - hmmm, I'm not sure I believe they can do anything, but if I get to a point when I think I need one I might try it!  I wonder if you would set of the alarms in an airport?  Could be embarrassing.  I had a massive hot flush last night and haven't even got the Tamoxifen yet!

Seroma - my nurse checked me over and it is going down so she didn't want to risk an infection by draining it,  Just said to start exercising more to get the movement back before scar tissue sets in.   I've got to get my arms up and behind my head for rads so must work on that.

 

On a different note -  whilst with my Surgeon and nurse yesterday we were chatting about donating blood and my Surgeon confessed that she can't stand the sight of blood!!!!  Crikey talk about the wrong profession...she said she donated blood and when she saw it she fainted!!  The nurse then said she is needle phobic and can't ever donate blood as can't stand the thought of a needle!  What a pair!   Like to see them getting through chemo then!

 

take care all

Kip

Member

Re: June 2018 Chemo Starters

If you do go the complaints route Cdc, don't expect quick answers. Mine, which is classed as a very serious incident, has been ongoing since January without me having received any sort of meaningful answers.
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Re: June 2018 Chemo Starters

Morning ladies,

So after 2 days of letrozole I was in bed knackered at 7.30 last night. I have stomach and back pain and I vomited all over myself without warning this morning when I was having a wee (all down my work clothes).

And to Cap it all, 3 weeks after my last chemo I work up to a pillow covered in hair. I'm losing far more hair now than I did all through chemo.

On the upside, it's Friday Smiley Happy
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Re: June 2018 Chemo Starters

Me again- Kip well done for bringing up the issue of your breast density. the tamoxifen will certainly reduce the density of your breast tissue, I was offered chemo-prevention last year due to high family risk (taking tamoxifen prophylactically in the hope it reduces the risk of Bc) I only found out recently via the Dense Breasts Matters website that tamoxifen also reduces the density of the tissue and therefore makes screening easier and also reduces your risk as there is less tissue to develop a tumour. If I’d been told this (and also the risks of having very dense breasts in the first place) I would almost certainly have taken up the offer.
Member

Re: June 2018 Chemo Starters

Sorry I’ve been quiet for a few days. Just catching up. Great news about the clear nodes Kip. Hope all goes well with radio and you’re finished by Christmas.
RedRose those nails really do look sore. I got a brief glimpse of my nails when the polish came off and my thumb nails look bizarre- as tho I’ve got another nail growing below. I swiftly re arnished them in the hope that this will prevent them breaking off.. Hope you don’t have any SEs on the Letrozole Sally, Amazing you worked through chemo!

I’ve been on a huge emotional roller coaster today. I finally decided to contact PALS regarding issues over care at my hospital, particularly with regards to failures over 8 my years of screening. I then received a phone call from someone at the hospitals governance department and was asked to give a detailed account of what has been going on. He was shocked by my experiences and said it was harrowing listening to what I’d been through. He apologised profusely. He was particularly concerned to hear that I’d been told I had nothing to worry about and had no increased risk of BC after my mammogram last June. It brought everything back and I ended up in bits reliving it all. He asked me to make a formal complaint. I’ve beem so reluctant as I don’t want to be seen as a trouble maker but he convinced me it was of utmost importance and reassured me that I didn’t need to feel that way. It’s important for the hospital to address the issues raise. He thinks it could be considered as a ‘serious incident’ which may affect the hospitals policies in the future. Waiting to hear what will happen next. My team should have been ‘transparent’ all along and I should have received an apology, I will hear tomorrow how the issues raised will be followed up with a timescale of when each part of the investigation should be completed. I feel emotionally drained but it was cathartic having someone listen to me, I have chemo tomorrow and feel nervous to go in but the chemo nurses have been invariably kind and they work in a different building so hopefully I’ll feel ok once I get ther. Still got to wait to see if this cycle can go ahead. My neuropathy is beginning to affect the soles of my feet as well as the toes. I can only describe it as feeling ‘fizzy’! . Just don’t want any more delays but need to be careful.

Sorry for not responding to everyone’s news. it’s been a tough few days but I do think of you all xxx
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Re: June 2018 Chemo Starters

@Shi Thanks! But ages til I actually start rads -- don't finish chemo til early Dec, then surgery, then recovery, then rads in Feb/Mar(?). But I like to plan ahead.

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi kip meesh on oct17 thread that I was on has the knicker magnets, i’ll Ask her to pop onto this thread 😘😘reddi, glad you are feeling 💪💪💪about rads, keep hydrated and pace yourself and extra points for those who can get their club members up dancing while you wait (you’ll get a little club because you’ll have them more or less same time every day) 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻💃🏻 Club Tropicana awaits 😁😁😁💕💕💕✨✨✨Shi xx
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Re: June 2018 Chemo Starters

Hi Ladies,

I’m from the September thread but was just looking at your comments below re menopause.  I had a partial hysterectomy 9 years ago & started with menopausal symptoms a few years ago.  I thought I was past that but having started chemo, the night sweats have come back with a vengeance.  Until tonight, I had never heard of the magnet thing, but I have bought a cool pillow.  It’s effectiveness is limited. It’s ok at the beginning of the night if you can stand the faint smell of rubber, but it does warm up during the night & gets a bit sticky. I’m always willing to try anything, but maybe you don’t need to spend too much on one - mine was from Boots by JML.  

I did however try the tip of using 1/2 an effervescent vitamin c tablet before going to bed - just let it melt on your tongue.  I didn’t have my first hot sweat till 4am which is a result for me.  Also they’re great for helping with normal thrush, so results all round.  

Best of luck with everything x

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ktk
Member

Re: June 2018 Chemo Starters

Great news Kip😁
Member

Re: June 2018 Chemo Starters

@RedRose Ouch. I hope that if any of your nails do come off, it's at least less painful, and that they grow back swiftly. 

 

@Georgie Gee I'm taking note of Sally's retort, as I can't think of anything cleverer or more satisfying to say in response to such an unthinking question. I also enjoyed the Titty Gritty blog post that @Linda mentioned. (I guess one upside of having most of my friends and all of my family in the US: most of the time, my support network is weighing in by email, so they have the luxury of rereading before hitting send.)

 

How did your Herceptin injection go today? Are you feeling better about radiotherapy? I know I feel better about what lies ahead for me on the RT front after hearing from Shi and others.

 

@Sally You are amazing. I've been trying to work throughout, but docetaxel is kicking my arse, to use the native parlance. (Is "arse" okay to say on the forum? Or should I be asterisking it out? I truly don't know.) I am in awe that you only missed your chemo days! (And jealous!)

 

@Kip A p.s.: How's your (suspected) seroma? Is it going down?

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Re: June 2018 Chemo Starters

@Kip Congratulations on your results! You must be thrilled. A bit startling to hear that chemotherapy can frazzle the lymph nodes, however... No one mentioned that this might happen before I started. Good luck with the radiotherapy planning -- it sounds like you will be done with RT just in time for Christmas, which is lovely. FYI, I've heard that your period might restart up to 12 months after finishing chemotherapy; after that point, it's very unlikely that it will restart again.

 

A magnet in your knickers???? The first thing I thought: another barricade to bedroom antics! A quick little bit of googling has me quite skeptical: https://www.healthline.com/health/menopause/magnets-for-menopause#does-it-actually-work

 

I have heard acupuncture can help with hot flushes, and meant to mention that side effect before my session on Tuesday at The Haven in London. I'll have to remember to mention it next time. (They offer a few sessions for free, so I'm trying it. Seems to help with my tingling hands and feet for a few days -- placebo effect, sensory distraction, acupuncture actually working? Who knows. Hot flushes would be a real test.)

Member

Re: June 2018 Chemo Starters

I've heard of them but can you imagine if that fell out on the 8.01!!

Great that your nodes were clear. Onwards and upwards to rads.
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi all, just thought I'd drop in to let you know I got the results of my ANC today and all the nodes were clear!   Aparently I only had 4 nodes.. seems weird... but apparently the chemo frazzles them sometimes so thats all that was left.   I now have a CT scan on Tuesday for planning the radiotherapy and then 3 weeks of radio to follow, starting about 2 weeks after.   Also have to start Tamoxifen for 10 years!!  Not looking forward to that but I'll do whatever it takes to beat this thing.   Doctor said that I will in the menopause now and if I get any periods I have to let them know so that they can stop my ovaries from working.   I also asked about future monitoring and she said I will be called for a mammogram on the 1 year anniversary of my first surgery (so May 2019) .  I mentioned the fact that I was told my breast tissue was dense and shes said that Tamoxifen and chemo will have altered that but to mention it at mammogram and they may do an ultrasound!  

The nurse mentioned hot sweats (as I am having some already) and has offered accupunture if they get too bad, also given leaflets for a magnet you wear in your knickers to help with menopause and a cool pillow thingy too!  More bedtime reading for tonight.. anyone heard of these?

 

Kip

xx

Member

Re: June 2018 Chemo Starters

Hi all,

There is a blog on the Lorraine website called Titty Gritty which is about someone who had a mastectomy and what not to say to someone who has cancer etc. It's quite funny too so may be of interest.

Much love,

Linda
Member

Re: June 2018 Chemo Starters

Hi,

Georgie, anyone asks about your prognosis just tell them you'll live longer than them especially if they don't stop being so bloody nosey! Re the rads, as someone who has, at various times done a few sugeries, rads and chemo I'd say the rads was the easiest of the lot.

All you ladies with nail problems have my sympathy, they look really sore. Luckily for me my regime didn't affect my nails at all. I'm bad enough when I break or rip one low down on my finger Smiley Sad

Saw my ONC today and have my letrozole to start tonight and he's doing the referral to Guys for the MonarchE trial and they will also do my Zometa infusions. He's also given me an open ended appointment to see him any time I feel the need so I just have to phone. Last couple of appointments I'd not seen him and the first thing he said was "you managed to keep most of your hair then" which hopefully means it looks better than I think it does. He asked if I managed to work all thru chemo as we'd discussed it my 1st appointment with him when I told him I'd only had chemo days off he said one word "amazing " which was a bit of a boost. Got him to check my scarring cos I seem to be getting stiffer and still can't lie comfortably or sleep on the side I had the mastectomy and node clearance. He said its fine but unfortunately I have a lot more numbness than they'd normally expect and at this stage it won't improve so I'm stuck with it.
LJ
Member

Re: June 2018 Chemo Starters

Ooh they look painful. Is there a new nail growing under your thumb can you see?

 

LJ

Member

Re: June 2018 Chemo Starters

Redrose mine were the same. 6 have come off so far and I think 2 more will. I used dark varnish and sun cream so very annoying. I stopped 3 weeks after last chemo. I cut off the bits hanging off as much as possible and am using nail strengthener now.
Linda
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Ouch they look painful!  I wonder if mine will do that as they have that ridge bit too.  Not very useful tips from chemo unit though. 

Kip

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Re: June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

Suggestions from chemo line. Just keep doing what your doing, keeping infection risk to minimium, but how they do not say. Will continue not to wash pots etc and change plasters daily after bath. Just bloody annoying banging them all the time 🙄🤬😖. Will upload some picture to show you what I mean xx
LJ
Member

Re: June 2018 Chemo Starters

RedRose, I'm starting rads on 26th November too, busy sorting out various chauffeurs to take me each day so DH doesn't have to do it all, especially with it being such a rubbish journey. 

 

Feel for you with your nails not being stable, must be so awkward. Hope your unit has some helpful suggestions for you. 

 

LJ

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Oh Red 🌹 your poor nails, must make things difficult.  I havent got a date for rads yet am hoping tomorrow i may have some idea though.  Enjoy the circus havent been to one in years and dress shopping .. very exciting!  Enjoy it all and dont think of this crap for a while if you can!

Member

Re: June 2018 Chemo Starters

Did someone else say they were starting rads on 26th November too? Shades and cocktails 🍸 at the ready xx
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Re: June 2018 Chemo Starters

Hi Kip. Yeah they are actually coming off. My left hand thumb nail is holding on by a thread. Holding them all down with plasters atm. Didn’t know if to ring the line or just ask tomorrow when get zoledex injection. So awkward though, picking things up and banging them. How’s your seroma doing? I do hope it’s calming down and less uncomfortable for you. Hope all you ladies are coping the best you can, Georgie gee I can’t believe someone was that insensitive. Bless you. What treatment you have or don’t have is up to you and the same as your prognosis, it’s your business. I have had a few that want to know the ins and outs of megs ass but not through caring about me, you can tell with tone of voice and body language, they are noisy and tbh told them bare minimum. Driving myself stir crazy and having a few down days, but have things planned to actually enjoy rather than exist. Step daughters birthday 🎂 today, so circus 🎪 at the weekend if feel up to it and girly day with a friend tomorrow before hospital to look at a few dresses 👰🏼 Xx
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi RedRose, sorry you've been feeling crappy again.  Hopefully you are coming through it now?  As for the nails, have they actually started lifting?   Mine never lifted but they did feel sore, like that had been hit with a hammer or slammed in a door.  I haven't lost any yet but have noticed since the end of chemo they are more brittle, so I have cut them very short and am still keeping nail polish on them to help.   I have large ridges , especially on the thumb nails, but these seem to be growing out.  I think i read somewhere on another thread that some ladies do lose nails but actually when they go they don't hurt and quickly grow back, just look a bit rubbish for a while.  Have you tried rubbin almond oil into them?  Someone suggested that to me.  I do have a friend who is 2 and a bit years down the line in this nightmare and she said her nails were fine until about a year after chemo and then went a bit rubbish so I'm still wondering if mine will go at some point?  Toenails seem ok tho.  Perhaps ring the chemo line and ask for suggestions, they must come accross it.  Otherwise, how are you doing?  

Kip

xx

Member

Re: June 2018 Chemo Starters

Hi ladies, sorry been feeling 💩 again. Just going to catch up on what I have missed now. I hope you are all doing well? Any advice for nails separating from nail beds? Fingers are so sore and think I’m going to loose at least 3 of my finger nails if not s couple more. Took them all down as short as I can but they are still so tender and keep catching them xx
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Thanks Shi.... actually looking forward to a sunbed and a James Bond zapping... perhaps they should offer cocktails at the same time!!  Perhaps they can play "Feeling Hot Hot Hot" whist they do mine!

Kip

xx