Oh I think I read that Linda, I must read it again, it was very good.
Reddi - have you had your planning for RT or is it this week?
How is everyone else doing? I'm still aching, tried to call Onc Nurse for some reassurance. am thinking all sorts and need calming down I think but she's on holiday so will have to try to calm myself until next week. Having read loads of chats on this site many women suffer all sorts of things post chemo and during tamoxifen and other hormone stuff. the SEs never seem to stop they just change to something else... ho hum...be positive be postive be positve.
RedRose - found that dress yet?
KTK - how are you doing?
Just remembered an article called After the treatment finishes what then? By Dr Peter Harvey that I read and thought good so will read again when my treatment ends on Wednesday!x
Hi RedRose.. lovely to hear from you. Yes a Mrs this year.. how exciting.. and in a strange way even more special because of all you two have been through this last year. I know how you feel about not feeling like you, I feel like that. I actually dreamt last night that my hair was shoulder length again and everybody was saying "oh you look like your old self again" and when I woke up and realised it was a dream it was quite upsetting for a while. I'm sure you'll find a dress that is just what you want, it may be that it isn't what the old you may have wanted but it will be gorgeous and you'll know when you find it. I am finding I need to change what I wear now, just to take into account the Judi Dench hair cut and being so grey. I need to wear brighter colours and bigger earrings.. think Pat Butcher and you'll get the picture!
Sorry to hear you've lost your nails, mine have all broken very low now so hoping once the re-grow they will look a bit more human. You should find your eyelashes grow quite quickly now, mine were short and stubby for a bit and then suddently I could use mascara again... fab! Shame to hear you are aching too, I hope they go eventually, I still ache everywhere and feel 100 sometimes.
Thats brilliant Reddi! And top marks to your surgeon for using her initiative and taking that little bit more to save you another op.. i don't think anybody would complain about having that done. As so on to Rads, the last leg of the journey.
Oh, I should mention: the main reason I don't need re-excision is that my surgeon decided in theatre to take more tissue than she'd taken originally on the left WLE. What good instincts. If she hadn't done so, I'd be going back in for another op. I'm so grateful she made that call. It does mean that my left areola now has a little crease/wink where the scar tissue is tugging at it, and we'll see how that scar tissue, in particular, recovers from rads. But my surgeon has been great about talking through the options for "top-up" procedures on the far side of active treatment, should I be interested in them. (Right now, I'm not, and indeed I think I'll be slightly sad when the blue dye from the SLNBs finally fades away. Weird what you get attached to.)
Hi Reddi, I'm from the Oct '17 thread and finished chemo in March. Like you my hair has come back well (really thick on top, I've had to have it thinned out twice!) but my eyebrows seem to have given up half-way! I can feel that hairs are there, but they're not showing much yet! x
@SallyG63 Exciting! The voucher would be a complete waste on me (the one time I went skiing, I took out a mother and two small children), but the nice watch sounds fab. Good luck with RT -- 2 down by the time your read this!
@Kip I'm getting the creaky old muscle aches now, too. I don't know if it is lingering chemo side effects or Herceptin side effects or some combo. Some might be walking off-kilter to avoid putting pressure on the spots where my soles are still tender and developing blisters; some might be wakling off-kilter post-surgery. Too many confounding variables.
@ktk You're an empty nester again, now, yes, with all of the brood off at uni? I hope the house doesn't feel too, too quiet.
@cdc How did your planning meeting with the surgical team go? Less than a week to go! I expect you must be excited and nervous.
@Shi & @Mishy18 Another fan of the red dot shampoo here -- thank you! 🙌
I get my pathology results tomorrow afternoon, followed immediately by ophthalmology check to see if my eye has recovered from the inflammation in the uvea and the elevated pressure/glaucoma scare. I'm so hoping they sign me off to wear contacts again. I think my eyebrow-creating is seriously hampered by not being able to see anything further than 2 inches away without my glasses. It's always a surprise to see what I've done when I put them back on. No wonder I look like my grandma. Which reminds me:
How long about til eyebrows start to reappear? Mine seem to be stubbornly resistant to regrowth (unlike my hair). But using the red dot shampoo so close to the eyes doesn't seem like a good idea -- cinnamon stings!
Yayy well done Sally.... thats great news... I love skiing but haven't been for years.. don't think these wrattling old bones could stand it at the moment! Still have achy hips and knees, but think they are improving (or I am just getting used to them)... and going to try to join my son and husband at yoga classes soon... not sure if I will get up off of the floor at the end.. .but I'm gonna try!
KTK - no scan then... oh well just have to wait and see what/if I get through the post, perhaps nothing until yearly mammo on anniversary of diagnosis (thats what radiotherapy told me would happen). Feels odd not having lists of appointments to attend doesn't it. Good odd though!
Well done Sally for getting through 1st radio but also your competition win! Great to hear some fun news! Xxx
Sally ... thought I’d pop on and say congrats on your win plus great you’ve started rads ... hope sessions go well xx
Oh wow Reddi we are all Ken Dodd lookalikies!
Shi mine is definately not as straight as before but not really curly either..but more like an old lady's waves really... not the best look.. I just need the blue rinse and I'm sorted.. I have the aches and pains to go with it.
CDC - sounds like you had a lovely break. I am looking forward to trying swimming, even got my swimsuit out today, just need a swimming knocker to put it in,, must get mother onto that. I think I may struggle with breaststroke too as my knees hurt. Its strange you are getting the aches too and have only really just begun with the Tamoxifen. I do wonder if its partly the chemo hangover as I've read similar reports on these forums with ladies sufferings the same. I've had another bash at the fitness DVD for breast surgery and it does seem to help, definatel finding my neck and shoulder is stiff on the surgery side so hopefully these exercises may help relieve it. It may also be connected to the pain in my back as I am compensating for the poor side?
CDC my son doesn't go back to college until Monday, and he's been off since about 13th December!! I think my daughter was glad to see her friends too (and her boyfriend!!), I think they need someone their age to chat to after a while, I haven't a clue what my daughter is talking about half the time... I feel so old!! you are so lucky your hair is the same colour as before, I am totally different.. the new me I guess. Sounds like you still have some questions to ask before the big op but its definately all coming together and will be good to get it overwith won't it. I have a friend who is having a DIEP next week (I think thats tummy). She had BC about 3 years ago, had inplant which rejected and then remained flat until now... she's very excited about getting it all sorted out, says it feels like the last piece of the puzzle!! She is in London too.
@SallieG63, @Kip, & @cdc1811: Being an expat, I had to google Ken Doddy. Ha! I'm not far behind in joining the Doddy doppelgangers gang.
SallyG - ha ha Ken Dodd.. I like it... I look like his crazy twin too! Who would have thought short hair could be so troublesome!
Morning All, just wanted to touch base with you all and see how things are going. I'm still achey, hips, bottom, thighs and feet (oh and shoulders and neck too sometimes).. not sure whats the main cause, chemo or tamox but hoping to see some improvement soon.. feel so old!
RedRose - how are you doing? Now you can say you are getting married this year!!! woo hoo..
Anybody had a first haircut yet? I am thinking of having a small trim to get rid of the whispy end bits but am reluctant to let any go as yet.. not sure what to do?
My daughter went back to school today, really miss her already and my son is back on Monday so its all back to the grindstone for us... Christmas tree down.. found that hard.. the what if I don't see it again thoughts came whoosing back... had to fight them down!
Juat wanted to wish you all a Happy New Year and thank you all for just being there for me! Heres hoping for a better 2019 for sll of us!
Thanks for thinking of me and my Mum Shi. I also feel like we are ‘sharing the day’ with my Dad on his anniversary, This year we took some flowers from from the garden he loved to add to the wooden heart on his apple tree. I’m glad I shared the day with my Mum. Xxx
Hi Willie! So good to hear from you. Your post, though quite serious in subject matter, had me laughing! Loving the humpty face reference.... That was me entirely... I Stil have his body it seems!! Glad to hear all things progressing for you. I am day 8 post rads and now starting to see some redness although not sore just looks sunburnt. Feeling tired today but coukd be post xmas tiredness as its been busy round here.
Reddi.. congrats on tube out day... Its a great feeling!!
Hi @Willie! Are you on one of the novel anticoagulants (NOAC) or old-fashioned warfarin? I had a pulmonary embolism back in the summer of 2017, and the docs put me on apixiban (brand name Eliquis) for six months -- the NOACs are great in that you don't have to get regular blood tests or cut dark leafy greens out of your diet, but you do have to adhere very strictly to the schedule of pill-taking, since they have a relatively short half-life. In addition, I'd suggest getting a medical alert bracelet (or making one, which is what I did) to wear while you're on the anticoagulants -- especially if you're on a NOAC, since they don't (yet) have a quick reversal agent should you have an emergency (unlike warfarin).
Post-surgery update from me: The day after Boxing Day will forever more be celebrated in our household as Detubing Day. Finally got the drain out on the mastectomy side this morning -- 14 days. (I'd been told that because of the type of surgery I had, I'd have my lil buddy *at least* 14 days, and I went in to the hospital slightly worried that I'd be stuck with it longer.) Apparently, I've been healing quite fast as it took quite the series of tugs to get the tubing out. Ouch. I'm glad I took some paracetamol this morning before I headed in.
Path results around 9 Jan, so RT planning won't be until after I know if I need a re-excision on the left, etc.
Hope y'all are having a restful, lovely, peaceful week. xoxo, r.
Greetings ladies!! It's been a while I know, I last appeared here on 24 July and while I kept meaning to dip back in, life got in the way. I've caught up with all your posts for the last few months today and it's good to see the posts about chemo side effects slowly being replaced with posts about hair growth and approaching radiotherapy. Here's my catch up.
I finished my 4 FEC / 4 T on November 22nd, so five weeks 'out' today. I have to admit to keeping quiet here during my FEC cycles as many of you were having such a bad time and I thought it ungracious and fate-tempting to report that I didn't have any adverse side effects at all - other than the hair loss and weighing a ton (self inflicted!).
I hit a icy patch a few days before my first Docetaxol, I woke up with vertigo/or a derivative of, it wasn't looked at too closely as it's not life threatening. A couple of days on travel sickness pills sorted it out, although I walked like I was drunk for a week or so after. In the general scheme of things, it was just a bump in the road but I wouldn't wish it on anyone.
I had a PICC line put in before the poisoning started. I had expected it to last through the 8 cycles but it seems it's not usual for that to happen. It stopped working, they couldn't get any blood back out of it during the weekly maintenance and for the nadir bloods. I had an ultrasound to see where it was, if it had moved but it was being blocked by a clot just below my collarbone. They replaced it with a mid-line, a shorter version, and the hospital told me that I had to give myself daily anticoagulant injects for three months. That freaked me out, being needle-phobic, but I had to suck it up and get on with it. I did that for a week and then the oncologist asked me if I was taking my tablets. "TABLETS? THERE ARE TABLETS?" I shrieked ... when he came back up from under his desk he wrote me a prescription for tablets.
The Docetaxol wasn't as kind to me as the FEC, I did get very tired on the first lot, I had to take two days off work and lie down but that was on the back of the vertigo. The second cycle was easier, I took two days off just in case. The third and fourth cycles were even easier although I did take the days off as a precaution. I booked a dog walker for those days as I found getting round our (steep) park, pretty challenging. My fitness is not back 100% but it's getting there.
The mid-line kept me going for the next 3 cycles. That one failed just before the last cycle and I had to go 'traditional' and have the poison administered into my hand. I am just so grateful that I had that line for 7 cycles, even if it did give me a clot. They told me the clot would dissipate over the three months and then I'd be able to stop the anticoagulants. However, a follow up ultrasound last week has shown that it's still there and the radiologist has suggested that it'll be there permanently and that I just need to take the tablets forever.
Last week also saw my annual mammogram, brought forward slightly because of my forthcoming radiation, on the remaining boob last week. I was a bit fraught in the run up (understatement!) but it was clear. Hoo-effin-ray!!
I've got radiation starting on 3 January for 16 sessions. I'm a little concerned about the burning and will do as much moisturising as I can but I'm really rubbish at all that stuff. I'm also worried as I have lymphodoema in the arm on that side and it's stretching across my scar site. It's very fluidy and I've got an dread of the radiation heating up the fluid and me boiling from the inside out. I'm no doctor!
On a more positive note, my hair started to grow during cycle 7 of the poison. It's getting wiry round the sides but is still very sparce on top. The different lengths make me look like a cross between a baby bird, a 90 year old man and a testicle. That's a good look eh? In another cruel twist, I kept my eyebrows and lashes until my hair started to come back, then they jumped ship making me look like Humpty Dumpty with my big bloated steroidy-crisps and chocolate-bread face. I'm off to get one of those Lush shampoo bars as soon as I can.
Anyway, enough about me. It's been really good to read your posts and to see that we're all moving through this adventure we've been thrust in to. I'm keen to see your radiation advice too in the next few weeks.