Hello Reddi, lovely to hear from you. Glad things are a bit more settled for you. Sounds like you are very busy so make sure you get that holiday. I'm suffering with the Tamoxifen SEs still. Aches and pains, stiff joints hot flushes etc... Oh what fun but otherwise doing OK. I've managed to lose a bit of weight but still 7lbs to go and it's so hard.. Everything is saggy and wobbbly...and thats not my clothes... I, like Feenix, need to stop the treats... But oh they are lovely
Pleased you’re doing ok. Spending time with OH is a given but do hope family settled a bit more back home. Enjoy your walking holiday. Good luck with work and losing weight. It is hard...I’ve got at least 5kgs to get off. Maybe I should stop having treats 😂
Hi all! Our thread has become mighty quiet -- and so, too, the May 2018 surgery thread where many of you started last year. I think Feenix said in the surgery thread that it seems we're all focusing elsewhere, which is good!
Still, I thought I'd share a little update on me. I've been home in London now since early June; no more transatlantic travel to care for my parents, at least for now, as none of us can afford the expense; plus, I want to be here, with my OH. I'm behind in finalizing their (very complicated) paperwork for benefits, but should get that wrapped next week. Mostly, I've been busy getting back to a full portfolio of freelance work, hoping to get enough clients underway to be able to build up another just-in-case cushion of cash and, fingers crossed, get a nice walking holiday this autumn before it turns too cold.
I'm definitely still experiencing joint pain from the endocrine therapy. I'm focusing on diet and exercise right now, looking to cut inflammatory foods and increase weight-bearing exercise, and, per the oncologist's advice, taking paracetamol as needed.I'd like to lose about 10 to 15 pounds, so that my clothing fits like it did before chemo, too. It's slow-going.
I hope everyone is well and settling into the new. Thank you all for being such great support through everything. xoxo
I really must wear my glasses more often, Kip I just read your previous message as’ the bosom appeal!’
Well done Shi and Kip for your fundraising. X
Thanks Shi, the footie went really well, raised £900 which is brilliant. Was very tiring day but so much fun
Hi kip 😘hope your football tournament went well yesterday 👍👍👍very well done to you both organising that, I bet everyone had a 😁😁time 👍chatsworth was brilliant so far we’ve raised over £3k for breast cancer care and breast cancer now 👍anything to help these amazing organisations that give us all such hope and support ❤️💕💕✨✨Shi xx
Thanks Shi, good luck with the walk. My husband and I have organised a 5 a-side football tournament tomorrow to raise money for The Blossom Appeal which is raising money to help fund a purpose built Breast Care Unit at Ipswich Hospital. It desperately needs one as its so fragmented at present, so dated and just not fit for purpose. So today I have been baking cakes and biscuits, hubby is currently cutting the grass on two football pitches and then we have to organise a bbq! Phew quite a weekend.
Red rose 😁😁🍾🍾🥂🥂congratulations you look stunning 😘😘 sending you both ❤️❤️On your new adventure of married life 😁Georgie gee you look stunning too and so pleased the wedding went well ❤️ Big ❤️❤️To all you amazing June ladies, look how far you’ve come now 😁😁👍👍👍so proud of you all 😁😁and if any of you are doing chatsworth bcc walk Saturday might see you there 👍💕💕✨✨Shi xx
Georgiegee - what beautiful photos, you look lovely and get you completely on celebrating hair of any shape and form!
Reddi - Hope things are doing ok with you and Mum is getting the help/care she needs.
I realised today that it was a year ago yesterday that I had my first chemo. The vivid memories of walking into the unit in tears, the sounds, the smells, the fear.. all still with me..the lovely nurse sitting me down and explaining it all and my husband looking on as they inserted the first vile substance into my arm...omg hadn't realised just how much it is all still with me a year later. Before chemo I bought a new drinks bottle to ensure I drank lots of water.. its still sitting in the cupboard, not been touched since last chemo but somehow can't bring myself to throw it away.. funny how things get you isn't it.
Quite emotional thinking of it.. so must focus on how far I've come (and we've all come) since then. Must be 11 days time since I braved the shave.. another emotional day too. 1 year on and the hair is wild!
Sending big hugs to all my chemo buddies who got me through that.. thank you all..
Here is a pic of my daughter and son in law on their big day..... love them so much! They deserved to celebrate after the year we had with BC.
Georgiegee you look beautiful too! I love the colour of your outfit and your hair looks great! I hope you had a lovely day!
Love your wedding photo Red Rose!!
As many if you know, my daughter was married June 1st, one week before.
Here is a pic of me in my outfit..... not the best, but I will post another later. Daughter and son in law flying back to the UK as I type from the honeymoon!
I deliberately accessories my headwear to match my dress and jacket. Wanted to just celebrate 'hair'...... I know you will all understand, and I love the way you did this too Red Rose!!
Now that I'm off my phone and on my computer, I can say that my so, so beautiful doesn't do you justice. I especially love the flowers in your hair and your rose-bud cheeks. Stunning. And the Mister is quite a dish, too.
How are you going Reddi? It sounds like things are tough with travelling too and from the states fitting in yours and your mums appointments. I hope you have her care sorted now and you are able to focus on yourself a bit more xx
Oh wow Redrose what a beautiful couple! Your hair looks great and your dress and flowers (love the red roses!) are stunning. I hope you both enjoyed your day, it’s been a long time coming.
Congratulations to you both x
Its a long time since I’ve checked the chemo threads but just wondering how everyone is getting on. So sorry to hear the new of your mother in law. What a shock! As you say she wanted you to be married so it’s good you are going ahead with the Wedding but obviously it will be so sad she’s not there. Are you thinking of incorporating her memory in any way?
I can hardly believe that you won’t get IVF because your partner already has children. However well you get on and love your step-children I can understand you wanting your own child with your OH. What insensitive timing too when you are having to deal with the cancer anniversary and making decisions about further surgery, I’m sending a massive hug and thinking of you. Clare
Red rose 😘😘what a shock for you all, my 🙏🙏are with you all. Sorry to hear you are not qualified for funding, I know what a 🥊you are, aren’t you tempted to go to the national press with your story? Have you thought about incorporating her favourite flower in your bouquet? Just a thought. Sending big ❤️❤️Shi xx
Oh my dear Red Rose I don't know what to say, just so sorry to hear about your loss, that's so sad. I can imagine that planning the wedding feels bitter sweet but she woukd want you to do it so focus on that. As for all the other rubbish coming your way at the moment... That is so tough but I'm sending big hugs to you... Thinking of you
Hi ladies, just thought I would check in. Unfortunately this year being my year isn’t going to plan. My mother in law sadly passed away suddenly the day before mother’s day. Obviously the family is devastated. It’s 37 days today till the wedding and we put the planning etc on hold while we had the post mortum and funeral. I can’t believe she isn’t honing to be there. The wedding is going ahead because that’s what she would of wanted and we obviously want to be married to each other. It’s going to be a hard day though. With that, the various different appointments that keep coming through the door to speak about double mastectomy’s and having ovaries removed the anniversary of the cancer diagnosis and the fact I have been told that no ivf will be funded for myself as even though I don’t have children my other half does from a previous relationship so I don’t qualify because of him. It sucks. Sorry to post such a sad post but wanted you all to know not been ignoring you all. I hope your year is going well and will keep you inform of wedding. My hair not growing as fast as yours not had the first hair cut yet. Xx
@RedRose I think you must be about 8 weeks from the big day... !!! Hope things are coming together easily and beautifully.
Hi ladies 😁😁😁 don’t you just love the chemo curls 🙄if you want rid of the 80’s through back look (remember all the Demi wave perms etc of the 80’s when we were teenagers) then that L’Oréal hair serum, Aussie 3 minute miracle moisture and some straighter spray before straightening has tamed the frizz well 👍👍👍🤪🤪🤪🤪your hair is looking fab though anyway whatever you do with it 👍👍💕💕✨✨Shi xx
Kip your hair looks fab! Mine is so curly. I hadn’t realised it until the hairdresser showed me the back! She took a photo.
The roses SEs are just from Lidl or Aldi. Only about £3!! Just chuck em in a vase!
Kip your hair looks fantastic ❤️It’s funny what oh’s come out with isn’t it on the hair journey 😁😂🤣😂🤣off anyone else they’d be getting a 🥊💕💕✨✨Shi xx
Hi Shi, I am rubbish at displaying flowers... so I'll be copying too!!
KTK - love the first hair cut.. its a good feeling isn't it to have a hair cut.. I think I may need No. 2 shortly.. mine is growing very wildly, tried blow drying last night to get it to sit down...hubby says I look like Judith Chalmers..not sure if thats a compliment or not.. cheeky monkey... I guess its an improvement on Philips Schofield and Tom Jones which were my look a few months ago!
Ktk , your haircut looks amazing 😁and you are looking great 😁😁 those roses are very pretty, never thought of doing them like that before, think i’ll Nick that look for my home too 😘hope that’s ok, I’m not usually a copy cat. Hi kip 😁and hi to everyone else 💕💕✨✨Shi xx
Hi K, thats good to hear they thought all was ok... good news. Hopefully I'll find out my forward plan when I go on 23rd April to see the Onc Nurse.
Hi Kip. The Hope course sounds good. Might see if there is one locally.
It’s been a year since I found my lump, and I had my follow up appointment with the surgical department. All is ok. Not sure how they would know if it wasn’t!!! Anyway, the doctor confirmed that I would now have yearly mammograms, oncology consult and surgical consult. However, as of the first of April, they surgical team would only see you for one follow up appointment, so no more after the first year!
love to all Kxx
Lovely to hear from you and WOW.. good on you for the half stone and the exercise classes they sound excellent. Im trying to exercise more but so stiff and achey it does prove problematic. Its ok whilst I'm doing it but boy I stiffen up later. This week on my Hope course we are discussing diet, exercise and self image.. so will be interesting to see what they suggest...its run by Macmillan so hopefully they have some classes or something.
Hi everyone! Long time no post, sorry! I am also struggling to lose the two stone that I put on during treatment. My local cancer charity (Force in Exeter) has put me on a Pulse course at the local sports centre. After an initial assessment I go to the gym twice a week for a group session specifically for people recovering from various illnesses. I also attend a Pulse Pilates session. The best thing is that it includes three months free membership of the local sports centres, so I have been going to Zumba too. I am very slowly beginning to manage to do some exercise and feel so much better!
In addition I have started a low carb diet. Both OH and I have lost over half a stone so far 😁.
Love to all. Karen XX
Hello LJ, lovely to hear from you again. Glad to hear you are moving forwards and back at work... it is tough isn't it. Sorry to hear you are suffering from all the usual SEs too, although must say quite heartening to hear I'm not alone. I'm trying to swim every week to see if that helps with the stiffness, only managed 2 weeks so far and only 20 lengths a time but as you said "Rome wasn't built in a day". I;m struggling to lose any weight, put on 1.5 stone over treatment... and keep falling off the wagon when I try to be good. Doesn't help when I ache so much and don't feel like moving much either.
Hello ladies, it really is ages since I last posted. I survived RT well and another six weeks off work following Christmas and am now on a phased return to work. I could have done with staying off longer, but I doubt I'd have gone back if I'd done that. It is hard though.
Im suffering all the SE's everyone's mentioned - tiredness, aching, stiffness, runny nose, yadda, yadda, yadda. Hot flushes at night, my word I hate them. Still on Herceptin obvs, taking Anastrozole, vile drug and have just finished dental treatment before having Zoledronic acid infusions. Nails are still pretty rubbish too. My hair is growing strongly though and with the same texture and curl as before, it's still shortish, but I think in terms of thickness it's pretty much back where it was.
Trying to walk as much as poss as that does help with aches and pains. Despite weight dropping off during RT I put on six pounds at Christmas which I'm struggling to shift. Rubbish. I just keep remembering how much I've been through in the last 12 months (my biopsy was 26 March 2018) and remember Rome wasn't built in a day.
Lots of love ladies - it's lovely to read how you're all doing.
Sorry to crash in on your conversation ladies, but just to let you know that Yes products are available on the NHS. They have been a life saver for me😉! Good luck.
Reddi, yes stuff is good. Bit of a overstated here but during chemo I had a bit of a dry spell 😉 so emailed them and asked for some free samples before I brought anything as didn’t want to buy it and it not suit me. Can only vouch for the lubricant. Email them and ask for free samples of both, they were really helpful with me.
Reddit I hear Yes is good. They do a moisturiser and lubricants. I ordered some but haven't tried it yet but probably should. It has no hormones in it. I did try Replens moisturiser but it didn't really help with dryness. I should persevere. I won't need a smear for 5 years all being well. I used to have the opposite problem as I sweat a lot. I seem to have a problem with what I think is a sensitive bladder. I did read this is due to the lack of oestrogen. I have started using panty liners which seem to work. The joys of getting older and bc. Has anyone else had similar problems? The nurse said the entrance to my cervix was very small and that I could go to the difficult smear clinic at the hospital so no need to worry for 5 years and they use leg rests. She made me clench my fists and sit on my fists which helped get the right angle.x
@RedRose I've got no good ideas on first song -- mostly thought of it because my OH and I married at the borough hall and regret answering the question, "Do you have any particular song you want played?", with an indifferent no, and then discovering that the default song played at the end of the mini ceremony was "My Heart Will Go On" from Titanic -- a song we both hate. At the time, we said we should have chosen Bryan Adams' "Heaven", but I think Jim Croce's "Time in a Bottle" is a beautiful choice. (I don't know "A Million Dreams" -- the link you shared is now dead, and my little online searching hasn't worked -- so can't weight in on that one, but I suspect it is just as lovely.)
@Linda I've always found smear tests to be very uncomfortable to painful. I bet that having endocrine therapy / going through menopause would make the cervix friable. Thankfully, I had one right before starting chemo last year, so I'm not due for another 2 years. I'm also going to try some vaginal moisturizers to see if that might help with dryness.
I'm trying to decide if I'm going to re-colour my hair once I hit the 6-month post-chemo mark, or try to live with my new greyness. I think the grey is fine now, while my hair is super short, but I miss having longer hair. Guess it will be months before I get to something like a decision point in terms of length -- my hair growth seems to have really slowed down.
@GeorgieGee Another wedding! Can't wait to see your dress and, eventually, your daughter's. Have you had results of your tests yet? I hope the clot is breaking down -- are you on anticoagulants for it?
Don’t forget there are bcc walks up and down the country in June too, which will raise money for this amazing forum too ❤️❤️If any of you want a 10 or 20 mile walk 😁💕💕✨✨Shi xx
MandS@breastcancernow.org is the email address and telephone number 0207 2804275 to sign up to be collector 💕💕✨✨✨Shi xx
Hi Linda, glad the old nether regions are better. I think we are all just about coming up to the 1 year anniversary. I have put the actual date of finding the lump out of my head but its definatley around now as I was waiting over Easter for hospital appt. Looking back can't believe so much has happened in 1 year...