Thanks. The hardest thing for me is that I feel fine but I know the treatment is going to make me ill. It's proper sh*tty! x
Hi Dawn T, welcome to the club that nobody wants to be in.. but we are all here to get through this together. xxx
2nd day of chemo done, so one down five to go. Very very long day. My brother picked me up at 8.00am and dropped off at home at 5.30pm. Had all four drugs no reactions so next time can can have all in one go. As for hints and tips, wrap in layers that you can add or take off if having an ice cap. Also was given a knitted headband that went over my ears to stop them from falling off from the cold. lots of mags books anything to keep you occupied. Lots to drink. I had already prepared tonights meal, and I have prepared tomorrows breakfast, so even if not feeling too good there is something ready for me. I have a bag ready to take containing all my notes and tick charts should I need to go into hospital as an emergency. Feel so happy to have now started one step closer to finishing this stage of the journey. Hugs to all Cazzy
Well done Cazzy, glad things went ok for you, hope you feeling ok for part 2 today. I've just received appointments for bone scan and MUGA (heart) scan, the bone scan they had schedule for the same day as first chemo (wonder why these departments don't talk to each other) and the MUGA was for 4 days later, neither of which I can do, so no have Bone this Thursday (so scared of the results) and MUGA on 22nd June. Just feelign overwhelmed with appointments, things to sort etc and also trying to remain calm for family as son in his 3rd week of GCSEs too. Wish I could sleep through the next 6 months...
Please keep us posted Cazzy, any good tips will be useful.
Love to all starting chemo this week Kip xx
2nd day of chemo today, so a long day ahead. I have opted for the cold cap, so that adds time. Collected all my pills and injections yesterday too, spent a long time getting it all written down correctly and tick charts done. Slept yesterday afternoon, not sure it was the drugs or just catching up on sleep from an enjoyable weekend, very tiring though. Dog didn't help when he wanted to play with foxy outside at 3.30am! Ate OK yesterday drank lots of fluids, mainly water. Will be having a PICC line put in on the 21st, so that will make things easier.Yesterday and today using small veins on my wrist. Bag packed with big cuddly to wear and wearing thick socks to help during` cold cap. Lift arriving soon. Enjoy today. hugs Cazzy x
Just popping on to wish you all the best ladies. I finished 8 rounds of FEC-T last October. My hair was straight and is now growing back a bit curly! Just take it a step at a time and don't look too far ahead. Here's my blog with some tips in the chemo section which you may find useful: http://lifeafterlola.blogspot.com/
Good luck Cazzie, let me know how it goes.. I think this will be a long week for me, the waiting is awful. xx
Today is MY day, YAY. Jane, my sister in law, my supporter is picking me up at 9.00 to get to the hospital to start treatment today. Been a long time getting here, but made it.X
Hello, thanks for the good advice. I start my chemo on 11th June and have already written myself off with every side effect possible... must try to calm down a bit as everyone seems to get some but not all of the SEs. I'm having my hair cut short on Wednesday in readiness. I haven't been offered ice cap so not sure if they do it at my hospital, will ring on Monday to find out. The thing I hate the most is knowing I feel so well at the moment and that in a couple of weeks I won't. Just want to fast forward a few months.. wishful thinking hey. Big hugs to all... Kip x.
Morning Floss, start chemo on Mon I was to have 2 ....mab mix on the Mon and the other 2 mixes on tues. However they dont have one of the ...mabs until the tues. So on Mon I will be at the hospital 9.30 to 12.30 ish with pertuzumab no cold cap needed. On Tues trastuzumab, docetaxel and carboplatin with cold cap so will be there 8.30 to 4.30 ish, long day. Had an echocardiogram yesterday results have been sent to my oncologist, but dont expect any problems there. Have taken the first week off , and see how I go. The Nurse said my biggest problem would be fatigue which would generally worsen as treatment progressess. The nurse also took some bloods and as the large vein in my right arm collapsed at my least treatment 12 years ago, after this first round of chemo they will put a PICC line in. Today I am going up to Mums to give it a final clean as we have a first viewing this afternoon. So much has happened in these 3 weeks feeling as though I'm coming to the end of one race to immediately start another. Breathe in, Breathe out, keep going. Have a good weekend. Cazzy50
Hi all, yes good idea to think about one treatment at a time, just trying to get my head around the hair issue. Do I get a wig before I lose any hair or when I have lost it? Any advise on what to expect re side effects and tips on how to get through it would be gratefully received. Thanks in advance.
welcome to the thread.
There is a lot to take in at the start and it can all feel overwhelming. Try to break it down and think about one treatment at a time. Focus on the chemo, and break that down into each cycle. It is more of a marathon and not a sprint. Look after yourself and take it easy.
I finished FEC-T last week, if I can be of any help at all.
Good luck to all those starting or on their journey xxxx
I have just come from my hospital appointment where i was given my resuls post surgery (masectomy and 4 nodes removed). The nodes were positive so am having 6 x FEC-T chemo (not sure what that means as still in complete shock) and then rads and tamoxofen after that (plus possible surgery to remove remaining nodes?). Am so scared so will glad to see how you all fair and pick up any chemo tips along the way. Big hugs Kip
Hi ladies, hope you are all ok 🙂 I'm also starting chemo 4th June.
3 cycles of FEC followed by 3 of T.
Starting on Monday with the E so looking forward to having red pee on Tuesday 🙈😳😬😂😂😂
Wishing you all lots of love 😘💖
Thanks so much for letting me know how your first chemo session went. It's really useful to have someone with experience of the whole process as it's the not knowing thats the worst.
I hope your second session went ok.
Will let you know how it is for me
No, I had TC chemo, so slightly different. Fec t seems to be the most common though. Try popping a question on earlier threads, like May or April, and I'm sure there will be ladies on there who can help.
I didn't have any delays, so my chemo was every 3 weeks. But what they will do is take a blood sample each time and make sure that everything is ok. So it will depend on that.
Hi Floss, sounds like we are having similar chemo. Seeing the chemo nurse on thurs, lots to get clear answers to. At school part of my job is welfare so need advice as to when to be in school, already sorted that I will not be doing any of the 3 S's ( snot, sick or s h i t ) but I will need a care plan in place for me. Maybe I am looking through my rose coloured glasses from 12 years ago ,I expect to feel well enough to go into school. Have a happy Sunday, X
i too start on the 4th June, FEC and then Docetaxel, Herceptin and Perjeta.
I’ve had type 1 Diabetes for 43 years and rather worried about all the possible side effects.
good luck everyone x
Welcome Lynda and Sally to the thread.
It really won't be as bad as you think. Just try and organize things so you don't have to do much for the first few days. Take it really easy.
I certainly didn't feel ill at all.....Just fatigued.
I'm from the May starters and am just coming to the end of my first FecT cycle - I have the second on Monday.
It's normal to be apprehensive about side effects, and everyone is different, but I have found this first cycle very doable.
Aside from the first four days...vomitting on day one, then nausea, fatigue and general wooziness - the remaining two weeks plus of the cycle I've felt completely normal.
I went right off tea and coffee almost immediately, and my taste buds changed, but after week one my appetite was back to normal and I'm enjoying tea and coffee again.
I did have mouth ulcers during the second week, but these cleared up after seven days with Difflam mouthwash.
And...early days...it hasn't been nearly as bad as I was anticipating.
I am also starting FEC-T chemo on the 4th of June so it will be good to chat to all of you going through it at the same time and to those who have been there. Glad to be finally getting going but must confess to being anxious about the side effects. Any tips gratefully received
I am going to but kept use the cold cap, 12 years ago, other breast, I used the cold cap lost all hair below my neck kept all above, though it did thin a bit. As to fasting I read back over several threads and there is some very good info have a browse. Cazzy