62199members
327458posts
cancel
Showing results for 
Search instead for 
Did you mean: 

June 2018 Chemo Starters

Member

Re: June 2018 Chemo Starters

I do love auto correct - a Larry tongue?? I meant ‘lardy’.
Member

Re: June 2018 Chemo Starters

The pain sounds so horrible Kip! So sorry you’re going through the mill. I haven’t had to have injections and only had a little bone pain in my hip immediately after my first Docetaxel. I hope the pain has lessened throughout the day and you’ve been able to rest up. Glad your tongue isn’t so Larry and you no longer have to take the steroids. Yahoo! Sally am I right I’m thinking we don’t have nearly so many on the Packlitaxel regime. I’ve acfually had more than a couple of hours sleep for the last few nights which has been wonderful, I thought I might have a sleepless night yesterday as I dosed throughout the day but I managed to get 61/2 hours! I think I’m just emotionally and physically drained at the moment and my body has finally said ‘enough’s enough’. You need to sleep!
Hoping my BCN has actually managed to e-mail the chemo schedulers to advise them if the change in my chemo drug regime as she was meant to. They’ve still got me down to go in tomorrow/Tuesday for the dreaded T!!!

I know you’ve finished Kip but have many if you still got more cycles of Docetaxel to go. I’m getting a little lost as to where people are in their treatment.especially since there have been delays.

Hope everyone is havignas good a weekend as possible.

Hugs and love to all xxx
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi all, well may i i just say i already admired you all for your strength and fighting spirit but after last night i am in awe of all you ladies who have regularly dealt with the bone pain from those injections.  I havent had them every cycle but have had 3 lots, and have not really sufferered too much but oh dear..  had my last one at 6pm last night and boy was docetaxol gonna make me pay for being on my last cycle!  By bed time i was in agony with hip, leg, feet etc like bejng in labour!!!  Its gone off somewhat today now feels like flu aches but i feel wiped out! Seems The Dreaded T is going out with a bang!!!  However no more steroids and 👅 not too bad but the aches ooooooh!  

CDC..  i hope the hair does stay as mine is growing quickly too although nothing like it was before very fluffy and white.  

Heres to a restful day to you amazing warrior ladies!!  And docetaxol "you can leave the building now please"😁

Kip

Xxx 

Member

Re: June 2018 Chemo Starters

I have now shared my reason too Mai.

Hi LJ glad the haircut allows more coverage and hope you like your pixie cut as time goes on.

My blonde hair is also growing back white and very fluffy!!

Does anyone know if our hair will stay this way?? Not sure if I’ll lose more on the pcklitaxel but at the moment it’s growing back quite fast.

Community Champion

Re: June 2018 Chemo Starters

Hi Ladies, I hope you are all doing well. x

Right now the government has extra funding to allocate and we need to make sure breast cancer gets the priority it deserves. I've shared my story, please share yours:
https://breastcancernow.org/get-involved/campaign-with-us/take-action-now/55000reasons

LJ
Member

Re: June 2018 Chemo Starters

Gosh, so much going on over the past few days. We ladies really are going through it, but we're still smiling!

 

Well, my hair is now in a pixie cut with a bit more length in the top to help cover the very thin bits. I don't like it, but it looks more like a style than a nest and gives the illusion of better coverage. Of course it's all white/grey, even the new growth, not a sign of my normal auburn colour. 

 

Hope you all have good weekends. 

 

LJ

Member

Re: June 2018 Chemo Starters

So far the arm seems completely fine.

How long will you have the clexane injections Gorgie? After my clot in my arm in July, I'm on them for 6 months. Beware they produce some spectacular bruises!
Member

Re: June 2018 Chemo Starters

Wow Sally, 

What a naff chemo session!

I do hope and pray that your arm which they used after node clearance will be ok.  

 

Thank you everyone for your support whilst I was 'inside' !! 

When we share our experiences with one another, we don't have to explain all the ins and outs of chemo and possible complications.  

 

Whenever I log in to read or report, I call it "catching up with my girls"!! 👱🏻‍♀️👩🏻👧

 

love to you all xxx 

Member

Re: June 2018 Chemo Starters

What a grim day Sally.  Do so hope you’re able to get some rest today and that you’re not in too much pain after all those blood tests and cannula attempts. .Owwwwwww!  XXX

Member

Re: June 2018 Chemo Starters

Morning.

I finally got out of the chemo unit at 4.30 yesterday. I'd gone to hospital at 8 for full blood count blood test an hour before appointment time . Bloke doing it had trouble but got some, went and sat in the chemo unit, got called in an hour later to be told there wasn't enough blood in my sample so they had to take more which she managed to do so that was my initial delay.

Once the results were back and fine to go ahead couldn't canulate me because none of my veins on my chemo arm would play ball. They get in then not bleed back so like not in so would be taken out then spurt blood. Very annoying. Decent veins thin on the ground on that arm and once they'd exhausted all the possibilities there was no choice but to use the arm where I had the lymph node surgery which they prefer not to but which has big fat veins sitting up nicely all over. In first time and away we went. All the pre med went in fine no problem at all. Started the paclitaxel and after a couple of minutes quite a bit of pain in the arm. Nurse check it and even though I'd not moved it wasn't going into the vein and that couldnt be rectified. Had to remove the cannula and put elsewhere. 4 different places they tried with nice veins which blew once they were in. Finally got in again and started the paclitaxel off well after 2pm. Have to keep the cold cap on for an hour after (which meant that yesterday I had it on for about 6 hours and which didn't help with the veins. That's why they always cannulate before it goes on.

Such a long day and I was knackered by the time I was done. Luckily my son had finished work and picked me up do I didn't have to get the bus home. Too tired to sleep and awake till getting g on for 5am this morning, a little sleep and now wide awake again since 6.30. Deep joy.
Member

Re: June 2018 Chemo Starters

So glad to hear you’re home Georgie 

Thank goodness the antibiotics worked and I hope the injections sort out the blood clot.

Sounds like a few of us are having a our next cycle of chemo delayed for a bit.

Hope you get a good night’s sleep.

Take Care xx

 

Member

Re: June 2018 Chemo Starters

Gosh, we have all been in pickles over the last few days haven't we?! 

 

I am finally out out of hospital.  The infections responded to the antibiotics well, so I'm home with injections to treat the blood clot they found on my lung now.  

 

I have had had my first Herceptin and T put back a week, to give me a rest between this illness and making me fitter for the next lot. 

 

I have no energy still, but sleeping in my own cosy bed has been lovely.  

 

All best wishes to everyone.  

 

Georgie 

Member

Re: June 2018 Chemo Starters

@cdc Thanks for the probiotics advice. My cancer researcher friend in the US suggested probiotics to me after I mentioned the antibiotics I was on during my cycle 1 febrile neutropenia, but my oncology team and breast cancer nurse insisted that I wait until after I finish chemo before starting them. (I have a stash of BioGaia L. reuteri ProTectis in hand, which was his suggestion, but need to read a bit more about it, as there are links between the microbiome and estrogen regulation -- not necessarily bad links, but links.) 

 

Hope you get your chemo scheduled for the Friday --

 

ktk
Member

Re: June 2018 Chemo Starters

Hi Reddi. I am TN so it is 100% every time for me. I found the second cycle harder than the first. Although I didn’t get diarrhoea as bad I still have one session a day!! I have basically had two hideous weeks, mainly in bed, with no energy and extreme indigestion. Last few days I’ve felt much better. More energy and back to enjoying life. I have to say that I have been lucky as I am unable to work because of the risk of infection, but I couldn’t have worked until this week. One more session next week then 18 sessions of rads starting at the end of October. Hopefully recovered enough to enjoy Christmas!!! But Reddi, everyone is different so my experience will be different from yours, and I suspect mor like Kip’s.

Much love, Karen xxx
Member

Re: June 2018 Chemo Starters

So glad you’ve finally had a good day ktk. Great you managed to make some cakes for the MacMillan coffee morning, I’ve just got back from one at my daughter’s school but it was very impromptu and I wasn’t organised enough to do any baking. Enjoyed everyone else’s efforts though! Glad you enjoyed your walk. How did the rads planning go?

Sally Hope you’re finally home- what a day! Hope you have a restful evening. Thanks for the heads up about the diarrhoea on Packlitaxel- I’ve only had the other so far!

Jay I really enjoyed reading how you feel now chemo is behind you. I also look forward to the time when I can look back and think - Wow! It’s over and I got through it.

I had the bruise around the veins too Lisa. They remained very tender for weeks. Glad you’ve only got one more cycle to go. I think the PiCC line was the right decision for me especially now I’ll be having more sessions of chemo.

Kip I’m doing so much better after seeing my lovely ONC. Feeling positive and hoping for far fewer SEs. How can anyone hate puddings?? Glad you made a pie just for you! Have to say I couldn’t stop eating whilst on the steroids so need to start being careful again although I keep thinking I need to have some tummy left otherwise there will be nothing to make my new boobs out of!! Do hope you manage to get some sleep once you are off the steroids.

Oh no Reddi! C diff!! I suppose it explains the particularly bad bouts of diahrroea. Hope your anti-biotics clear the infection up soon. My OH just got in from work and says there is some evidence that pro-biotics can be helpful in treating the diarrhoea associated with C Diff and prevent its recurrence. He recommends Optibac Live cultures but I should think you’d need to check with your team as I’m not sure you’re meant to have anything containing live cultures whilst on chemo..

If the chemo scheduling department at my hospital is able to rearrange things I’m hoping to start the Packlitaxel next Friday instead of the following Monday, Hoping for a little outing with my OH beforehand whilst I’m feeling SE free, that’s been the good thing about having a little delay.

Hugs to all Xxx
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Oh gosh Reddi, CDiff that makes sense then... at least you can get that sorted and hopefully get chemo back on track for the future.  

As for getting more tired. I found my first T was harder than the second but I am very tired at present, the steroids really mess up my sleeping and until they get out of my system I just fidgit all night long.   Last day of them today, so hoping sleep will come soon.   I was told my Docetaxol was 100% for the first cycle, then dropped for the second one and then, possibly? dropped again for third due to numb fingers but not sure by what percentage. Im not HER2 tho so don't have the other bits to add to it but i think overall the fatigue just builds up over time, I can't wait to wake up and feel refreshed again.  I was thinking to today that the last time I probably had a full restful nights sleep was probably back in February before I found the bloomin' lump.

Take care

Kipxxx

Member

Re: June 2018 Chemo Starters

Hope you're home very soon, @Sally! Such a long day.
Member

Re: June 2018 Chemo Starters

Well, I have C diff, possibly picked up while I was on antibiotics in cycle 1 or 3 of FEC, possibly lurking in my gut longer than that, and probably exacerbated by the chemo. Next cycle may be delayed by a week, but may not know til my scheduled pre-chemo appointment on Wednesday. I've come to accept that my chemo isn't meant to run to schedule, but having to rearrange other appointments sure is tiresome.
Member

Re: June 2018 Chemo Starters

Well still in the chemo unit. Been here since 8 am.

Should be able to finally leave in about 20/30 minutes. What a marathon day.
Member

Re: June 2018 Chemo Starters

@Kip. I love apple pie. My husband also isn't one for desserts beyond ice cream, which has been a great disappointment to the happy baker in me. But he likes apple pie... Now I'm hankering to bake one.
Member

Re: June 2018 Chemo Starters

@Sally Egads, that is frustrating. Are there exercises or massages or anything else you might do to help ensure it doesn't cause problems?

@ktk, Kip, & others who are now a cycle or two ahead of me: Have you found yourself more fatigued with each cycle? I know cycle 2 will likely be harder for me, as I found out yesterday that when you get docetaxel with the duo of HER2 drugs, the first dose is max Herceptin and Perjeta with a lowered dose of docetaxel, with the second dose lowering the HER2 drugs and ramping up the docetaxel to 100%. But I am wondering how to plan for work in cycles 3 and 4.

And: just got a call from the hospital to let me know my "stool" specimen came back positive for bacterial infection, so off I go to pick up some antibiotics. No more bowel-slowing for me either. Maybe this means I won't have a repeat of this experience during my next 3 cycles. We shall see.

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Unlucky 13 it seems, hope all goes well xx
Member

Re: June 2018 Chemo Starters

Chemo number 13 now, having it into my wrong arm, the one where I had my ANC cos the veins on my other arm are not playing ball today.
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi there, 

KTK glad you enjoyed your walk.. makes your feel good doesn't it.  I managed about 4 miles yesterday.. but was so exhausted last night but then couldn't sleep.. thankfully last steroids today!  

Lisa Marie - I always get a bruise round the vein where chemo has been given and it goes after a while but somedays I it aches and feels sore, but as you say only 1 more to go so hopefully you will get through that one and then it can all resolve itself.  My thumb is still numb but not quite so tingly I think, I could manage with it if it gets no worse though.  How are you getting on with all you decisions, hopefully you are putting them to one side and dealing with them later?   How's the hair too?   Mines looking fluffy and white still but definately growing, even think I have a few eyebrows today, no eyelashes though and still look like a boiled egg!

CDC - How are you doing today?

After reading the posts about "stews"  I really fancy one now.. unfortuanately my family hate a stew,,I absolutely love one though, they also hate puddings.. crazy lot!  So yesterday I made a whole apple pie to myself... no wonder I am getting fatter..I hate seeing my lovely cooking apples going to waste!  

Hope the diarrohea clears up for your all...and also thanks for the lovely positive posts, can't wait to be tasting everything again... bring on that cheese board!

Take care

Kip

xx

Community Champion

Re: June 2018 Chemo Starters

ktk - what a lovely happy and positive post - well done.

Good luck with the rads planning - rads is far easier than chemo!!

Christmas is your goal - go for it! xx
ktk
Member

Re: June 2018 Chemo Starters

Well, with six days to go until my last T, I have finally had a good day!!!! Apart from the fantastic weather, I actually had enough energy to enjoy the day! I popped into school to take the cakes I made for their Macmillan coffee morning, then met a few friends for a long lunch. When everyone else had gone I went out with the host and take took her dog for a walk. I warned her that I would be slow and couldn’t walk far, but we did a really decent up and down walk through the lanes for over an hour! I felt fantastic 😁

So today I have my rads planning meeting. Moving on to the final stage. Hopefully it will be over by Christmas.

Love to all. Kx
Community Champion

Re: June 2018 Chemo Starters

Oh yes I've still got the scarred veins! Only one arm can be used to give blood and each time the nurse has trouble due to scar tissue - when I say "Oh yes that will be down to last years chemo" - I always receive a sympathetic look and a word of praise. Makes me feel rather special x
Community Champion

Re: June 2018 Chemo Starters

Honestly ladies it doesn't feel like it at the moment - but this time will quickly pass - you'll go back to eating just what you like (and it'll taste good) before you know it!  It's something I will never take for granted ever again though - I quite often think back to those horrid chemo days and can't believe I've been there and come out the other side - this will be you too.

 

Keep going, keep positive and more importantly keep smiling xx

 

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Lisa Marie ❤️❤️The shark bite looking arm as veins collapse is something a few of us had, get a microwaveable heat pad and rub a bit of ibruprofen on too, my veins are recovering and my last chemo was January, I also still have the red line from the chemo, this is fading. Everyone is different and arms etc recover at different rates. Anyway, I hope you are going to go for some louboutins as your shoes, you blooming deserve them 😘😘💕💕💕✨✨✨Shi xx
Member

Re: June 2018 Chemo Starters

Yay for lentils and pearl barley. Boo, however, to my constitution, as I actually had oatmeal several times in the lead-up to my D-Day.
Member

Re: June 2018 Chemo Starters

Thanks for the 2 fibers tip, Lisa Marie!That will make my research so much easier.

For my most recent chemo, we used a different hand vein as I'd had problems in the previous cycle. I hope they have a vein whisperer in your chemo unit.
Member

Re: June 2018 Chemo Starters

P.s got spontaneous bowel moments too on the T. Thought it was just me and ibs related as not eating properly because of not tasting things. Soluble fiber is best for diarrhea where as insoluble fiber is for constipation. There is a list on which fruits and veg contain which xx
Member

Re: June 2018 Chemo Starters

Hi reddi. Not avoiding a PICC line they said it just not worth it as I only have 1 more cycle of chemo scheduled for 10th October then I start radiation treatment. Wish they had done one from the start though tbh as had nothing but issues since the first chemo with that arm. It’s not worth fitting a line now but as you say I think the veins are collapsing and other issue in my right arm. Hopefully they can be resolved afterwards and are not permanent. As dints and limited moments and bruises not a great thing xx
Member

Re: June 2018 Chemo Starters

Thanks again, @Jay68. The stuff I've read about the HER2 drugs is very encouraging -- and your story amplifies that. I will go through all sorts of diarrhea to get my 4 rounds of PH. Too bad it has to come with the T. Though of course, it may be the trio that makes it so effective.

The oncologist I saw last night was pretty sure it was chemo-induced, but I had had so many "episodes" in such a short window of time that he wanted me to be admitted overnight if only to get 2 big bags of saline in me. Bloods are good -- for once, I wasn't neutropenic when presenting with worrying symptoms -- so I am getting an Rx for codeine and prn loperamide. I hate codeine, but it seems to be working thus far. Plus, because it has been prescribed, I learned that my ALT liver enzyme levels have fully resolved.

Dietician advised that I cut back on fruit, veg, and fiber. Root veg, especially boiled or parboiled and roasted, should be okay. Apples with skin removed (to reduce fiber) are okay, too. It's going to be a big adjustment in our diet, but at least the autumn is upon us: there will be stew. (Though I'll need to research fiber levels in my 2 fave stew bases -- pearl barley and lentils.)

Just waiting for the pharmacy to delivery my drugs and then I am discharged home. Hurrah!

@Lisa Marie So hard to know what needs tending to between appointments. I think you said you were trying to avoid a PICC line -- is that right? It might be that the vein has collapsed and they'll need to use another spot or do a PICC for you. If the bruising clears before your next appointment, I'd say show the photo to your doctor, just in case.
Member

Re: June 2018 Chemo Starters

Hi ladies

Looks like nearly every one has been in the wars. My hair has started to really thin on top the last week but I'm sticking with the cold cap cos it promotes regrowth and after 12 rounds seems silly to give it up for the last 4. I do have a bit of regrowth where it's thinner on top and I can still do a comb over Smiley Happy

A word of caution on the paclitaxel. Although it's less harsh there may still be diarrhoea / feet issues. I have diarrhoea pretty much daily although diabetes meds and clexane injections contribute to that. It's not all day every day though. Tends to be 1st thing then it passes. I have developed very sore feet in the last week as well which I'm having to moistu rise 2 or 3 times a day. The skin is also peeling off them and they are pretty red in areas. I'll mention it to my oncologist when I see him next week. I sleep with them sticking out the bed because they are most comfortable when they are cool. I need to buy an extra pair of slippers to wear at work as well. I've been wearing my sketchers which are the most comfortable shoes I hae but they still ache.
Community Champion

Re: June 2018 Chemo Starters

reddi - it would appear you're having pretty much the same order of treatment as I had last year.  I started with the chemo as although the lump I had in my right breast was only 5mm I had a large area of DCIS (high grade) which mean't there was no alternative but to have a mastectomy.  I also had one lymph node showing signs of cancer so I had a complete removal of all nodes.  When I got my pathology report following surgery I was delighted to discover all tissue from the breast and 17 nodes removed showed no signs of cancer left - ie it had completely gone!  the chemo with the PH had well and truly obliterated it!  I still went on to have 15 bouts of radiotherapy - concentrating on my chest wall and upper clavicle area.

 

Unfortunately the diarrhea will be a side effect of the chemo together with the PH - A&E do tend to "over react" which is better than ignoring whereas the onc will be much more knowledgeable and will be able to prescribe you something to take if the situation begins to happen next time.  I would say you do tend to learn the schedule of events....!  Just keep well away from the person throwing up - you really don't want any nasty infections to delay your treatments. 

 

Hopefully you'll be back home very soon - take care x

 

Member

Re: June 2018 Chemo Starters

They have checked the arm and hand out just before I had the chemo. When just swollen and red marks on fingers. Said my be phlebitis but more than likely down to chemo treatment effects on my veins. Had Doppler scans and got steroid and pain creams. Not shown them bruised bit on hand as that I presuming is from the cannula in the vein but spred a little further down hand xx
Member

Re: June 2018 Chemo Starters

@cdc Relish the switch to paclitaxel! I was half hoping my diarrhea was bad enough that they'd switch me, too. But no.

Instead, I'll be getting a prescription for codeine and something else to back me up (now and in future cycles). Juggling the fight against constipation and then the switch to encouraging (pseudo) constipation is gonna be fun! Man, I do not like docetaxel.
Member

Re: June 2018 Chemo Starters

@Lisa Marie Have you had your oncologist or chemo hotline team take a look at your hand? I think you should. Even if it turns out to be a minor side effect, it will ease your mind. But that could be something requiring medical attention.
Member

Re: June 2018 Chemo Starters

Good afternoon ladies. Doing ok today after managing a good nights sleep. Insomnia and muscle aches have not been conducive for a restful night. Feels like I’m doing a Irish jig in my sleep with restless legs. Arm still swollen and hand swollen and bruised still be manageable. Right arm feels so weak. Goodness ladies what have you all been doing, just catching up now and seems your all in hospital or suffering badly with side effects xx
Member

Re: June 2018 Chemo Starters

0BA28ED3-1DA9-42EE-83C4-55938B71F484.jpeg

Member

Re: June 2018 Chemo Starters

Hi all

Sorry to hear you were still suffering through the night Reddi. Hope you are still diarrhoea free this morning and that you’ll be out soon.

Georgie G I sincerely hope your platelets are ok and you finally get home 🤞

Hope the fluconazole works for you Kip and you can avoid the lardy mouth. Sitting by a Wood burning stove sounds so cosy. I know what you mean about the hot flushes though!

Thanks for the advice Jay68 and for sharing your experiences.

How are you doing today Lisa Marie?

LJ it’s frustrating about the cold cap not fitting exactly right but I do hope you like your Pixie cut.

I’ve had a positive day. I managed to see my ‘helpful’ oncologist. I had so many questions about my new chemo regime and also wanted to see if I could change the day I’ll be having it. He was brilliant -he explained that the Packlitaxel should be much easier on my body and he’s happy I’m going onto it as it’s his preferred regime. He said my reaction to the docetaxel was severe as it happened so soon after my first dose of T, I was warned my skin might start peeling off but thought nothing of it but I now have an area between my thumb and forefinger where it’s doing exactly that- thankfully only a centimetre round at the moment and hoping it won’t get worse. I should be starting the Packlitaxel next Friday (bloods on Thursday) now but all the computers were down at the appointments desk and the chemo scheduling department need an email from my BCN confirming the new days before they can fit me in. I will be very relieved when I get confirmation that it’s all going ahead. Also I don’t need to see the oncologist every week, just every 3 weeks as basically having the P weekly means they just divide the dose by 3 and they only need to see me once I’ve had the full 100%.

As an aside, I know some of you are TN and we learned today that my onc is a leading expert in the field and is presenting some new research into treatments at a European convention next month. I’ll see if I can find anything out next time I see him.

Feeling so much brighter and hopeful today thank goodness. The thought of 9 more cycles of chemo was really getting me down but I now know it’s for the best. I will see my GP on Tuesday to get a referral to the Royal Marsden as I’ve had two different people recommending the surgeons there. Hope they’ll be able to see me and we can plan for surgery in the New Year.

Hugs to everyone xxx

Ps will have to take a look at the moon tonight!
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Reddi, Yes hasn't the moon been amazing, would love to have got a great photo of it, but my old camera just doesn't do it justice.
Member

Re: June 2018 Chemo Starters

@Kip 8 weeks! Hilarious. A woodburning stove sounds so cozy. I would love to have one if we ever flee our flat in London. But for today, enjoy the lovely, sunny day. Gorgeous here.

If you didn't catch the moon last night, I suggest trying to do so this evening. Gloriously beautiful. My east-facing room had an amazing view in early evening, and then quite a brilliant sunrise.
Member

Re: June 2018 Chemo Starters

@Jay68 I have not had surgery yet -- other than bilateral SLNB, that is. Really hoping the PH portion of TPH shrinks up the HER2+ side, though I may still be looking at mastectomy for it. Other side is HER2- and mucinous, so should be lumpectomy.

Not sure that I will be released today. Had diarrhea overnight (and the 4am bout required calling the nurse for gown change and hazmat clean-up. UGH. On the brighter side, it's been 3 hours since my last episode, so maybe things are settling down.

Feel bad for my neighbors, who would have heard it all if they were aeake overnight. I say this as there is someone nearby who was up all night vomiting. I feel lucky in comparison.
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hi

Georgie Gee - sorry to hear you haven't managed to escape you but hopefully you will soon and good news the infection has gone. 

Reddi - now you are joining the Casa NHS sleepover too.. oh dear, hope you got those 8 hours sleep in the end and are now rehydrated.  Thankfully I have not had the diarrohea throughout chemo, just get constipation for first week on the T (steroids I think) so lots of lactulose for me.  

I'm now on day 4 of last cycle of T and the mouth is starting to get lardy, so onto Fluconazole today to combat that hopefully, although my GP managed to prescribe me 8 weeks worth yesterday instead of 10 days.. its either all or nothing with them!  I've had 2 injections so far, and thats going ok, although still dislike doing it and still having the useless nights sleep, last steroids tomorrow though so probably have the downer days at the weekend too.   I've managed to track down my ONC nurse too and she can't arrange the planning for rads until after surgery, results and checkup (even though the surgeon asked me to get it sorted now) so will probably find my rads fall over Xmas too!  Grrrrr..

Another beautiful sunny day here in Suffolk, although I think it may be the last.  Although I am looking forward to some cooler evenings as suffering hot flushes too, and also treated ourselves to a lovely woodburner stove and can't wait to get it burning, though with the hot flushes I might regret it and have to have the window open too! 

Take care all

Kip\

xxx

Community Champion

Re: June 2018 Chemo Starters

Reddi - hope you slept well.

 

Just for reassurance, the diarrhea was always a bigger problem for me during the 2nd/3rd week after treatment, it would always be OK again in time for the next treatment!  Strangely enough you get used to the timescale of symptoms!  

 

Good luck for the remainder of your treatments, have you had any operation yet?

Member

Re: June 2018 Chemo Starters

First TPH was 13 Sep (PH) and 14 Sep (T). Day 13 for me of T. I was so excited to be nearly out of my WBC trough, too, without febrile neutropenia (FEC 1) or mystery swelling, pain, and redness in my cannula arm (cellulitis? they don't know; FEC 3) while, of course, neutropenic. C'est la vie.

Now really going to sleep!
Community Champion

Re: June 2018 Chemo Starters

Hi reddi - no worries - good to pass on experiences! When did you have your first TPH? I had 3 EC before the TPH too. Keep up with the water - I still aim to drink 2 litres (plus normal drinks) a day - I feel so much better for it too!

Glad to hear your obs are good and can get 8 hours sleep - good luck and night night x