Hi all, well may i i just say i already admired you all for your strength and fighting spirit but after last night i am in awe of all you ladies who have regularly dealt with the bone pain from those injections. I havent had them every cycle but have had 3 lots, and have not really sufferered too much but oh dear.. had my last one at 6pm last night and boy was docetaxol gonna make me pay for being on my last cycle! By bed time i was in agony with hip, leg, feet etc like bejng in labour!!! Its gone off somewhat today now feels like flu aches but i feel wiped out! Seems The Dreaded T is going out with a bang!!! However no more steroids and 👅 not too bad but the aches ooooooh!
CDC.. i hope the hair does stay as mine is growing quickly too although nothing like it was before very fluffy and white.
Heres to a restful day to you amazing warrior ladies!! And docetaxol "you can leave the building now please"😁
Hi Ladies, I hope you are all doing well. x
Right now the government has extra funding to allocate and we need to make sure breast cancer gets the priority it deserves. I've shared my story, please share yours:
Gosh, so much going on over the past few days. We ladies really are going through it, but we're still smiling!
Well, my hair is now in a pixie cut with a bit more length in the top to help cover the very thin bits. I don't like it, but it looks more like a style than a nest and gives the illusion of better coverage. Of course it's all white/grey, even the new growth, not a sign of my normal auburn colour.
Hope you all have good weekends.
What a naff chemo session!
I do hope and pray that your arm which they used after node clearance will be ok.
Thank you everyone for your support whilst I was 'inside' !!
When we share our experiences with one another, we don't have to explain all the ins and outs of chemo and possible complications.
Whenever I log in to read or report, I call it "catching up with my girls"!! 👱🏻♀️👩🏻👧
love to you all xxx
What a grim day Sally. Do so hope you’re able to get some rest today and that you’re not in too much pain after all those blood tests and cannula attempts. .Owwwwwww! XXX
So glad to hear you’re home Georgie
Thank goodness the antibiotics worked and I hope the injections sort out the blood clot.
Sounds like a few of us are having a our next cycle of chemo delayed for a bit.
Hope you get a good night’s sleep.
Take Care xx
Gosh, we have all been in pickles over the last few days haven't we?!
I am finally out out of hospital. The infections responded to the antibiotics well, so I'm home with injections to treat the blood clot they found on my lung now.
I have had had my first Herceptin and T put back a week, to give me a rest between this illness and making me fitter for the next lot.
I have no energy still, but sleeping in my own cosy bed has been lovely.
All best wishes to everyone.
@cdc Thanks for the probiotics advice. My cancer researcher friend in the US suggested probiotics to me after I mentioned the antibiotics I was on during my cycle 1 febrile neutropenia, but my oncology team and breast cancer nurse insisted that I wait until after I finish chemo before starting them. (I have a stash of BioGaia L. reuteri ProTectis in hand, which was his suggestion, but need to read a bit more about it, as there are links between the microbiome and estrogen regulation -- not necessarily bad links, but links.)
Hope you get your chemo scheduled for the Friday --
Oh gosh Reddi, CDiff that makes sense then... at least you can get that sorted and hopefully get chemo back on track for the future.
As for getting more tired. I found my first T was harder than the second but I am very tired at present, the steroids really mess up my sleeping and until they get out of my system I just fidgit all night long. Last day of them today, so hoping sleep will come soon. I was told my Docetaxol was 100% for the first cycle, then dropped for the second one and then, possibly? dropped again for third due to numb fingers but not sure by what percentage. Im not HER2 tho so don't have the other bits to add to it but i think overall the fatigue just builds up over time, I can't wait to wake up and feel refreshed again. I was thinking to today that the last time I probably had a full restful nights sleep was probably back in February before I found the bloomin' lump.
@Sally Egads, that is frustrating. Are there exercises or massages or anything else you might do to help ensure it doesn't cause problems?
@ktk, Kip, & others who are now a cycle or two ahead of me: Have you found yourself more fatigued with each cycle? I know cycle 2 will likely be harder for me, as I found out yesterday that when you get docetaxel with the duo of HER2 drugs, the first dose is max Herceptin and Perjeta with a lowered dose of docetaxel, with the second dose lowering the HER2 drugs and ramping up the docetaxel to 100%. But I am wondering how to plan for work in cycles 3 and 4.
And: just got a call from the hospital to let me know my "stool" specimen came back positive for bacterial infection, so off I go to pick up some antibiotics. No more bowel-slowing for me either. Maybe this means I won't have a repeat of this experience during my next 3 cycles. We shall see.
KTK glad you enjoyed your walk.. makes your feel good doesn't it. I managed about 4 miles yesterday.. but was so exhausted last night but then couldn't sleep.. thankfully last steroids today!
Lisa Marie - I always get a bruise round the vein where chemo has been given and it goes after a while but somedays I it aches and feels sore, but as you say only 1 more to go so hopefully you will get through that one and then it can all resolve itself. My thumb is still numb but not quite so tingly I think, I could manage with it if it gets no worse though. How are you getting on with all you decisions, hopefully you are putting them to one side and dealing with them later? How's the hair too? Mines looking fluffy and white still but definately growing, even think I have a few eyebrows today, no eyelashes though and still look like a boiled egg!
CDC - How are you doing today?
After reading the posts about "stews" I really fancy one now.. unfortuanately my family hate a stew,,I absolutely love one though, they also hate puddings.. crazy lot! So yesterday I made a whole apple pie to myself... no wonder I am getting fatter..I hate seeing my lovely cooking apples going to waste!
Hope the diarrohea clears up for your all...and also thanks for the lovely positive posts, can't wait to be tasting everything again... bring on that cheese board!
Honestly ladies it doesn't feel like it at the moment - but this time will quickly pass - you'll go back to eating just what you like (and it'll taste good) before you know it! It's something I will never take for granted ever again though - I quite often think back to those horrid chemo days and can't believe I've been there and come out the other side - this will be you too.
Keep going, keep positive and more importantly keep smiling xx
reddi - it would appear you're having pretty much the same order of treatment as I had last year. I started with the chemo as although the lump I had in my right breast was only 5mm I had a large area of DCIS (high grade) which mean't there was no alternative but to have a mastectomy. I also had one lymph node showing signs of cancer so I had a complete removal of all nodes. When I got my pathology report following surgery I was delighted to discover all tissue from the breast and 17 nodes removed showed no signs of cancer left - ie it had completely gone! the chemo with the PH had well and truly obliterated it! I still went on to have 15 bouts of radiotherapy - concentrating on my chest wall and upper clavicle area.
Unfortunately the diarrhea will be a side effect of the chemo together with the PH - A&E do tend to "over react" which is better than ignoring whereas the onc will be much more knowledgeable and will be able to prescribe you something to take if the situation begins to happen next time. I would say you do tend to learn the schedule of events....! Just keep well away from the person throwing up - you really don't want any nasty infections to delay your treatments.
Hopefully you'll be back home very soon - take care x
Georgie Gee - sorry to hear you haven't managed to escape you but hopefully you will soon and good news the infection has gone.
Reddi - now you are joining the Casa NHS sleepover too.. oh dear, hope you got those 8 hours sleep in the end and are now rehydrated. Thankfully I have not had the diarrohea throughout chemo, just get constipation for first week on the T (steroids I think) so lots of lactulose for me.
I'm now on day 4 of last cycle of T and the mouth is starting to get lardy, so onto Fluconazole today to combat that hopefully, although my GP managed to prescribe me 8 weeks worth yesterday instead of 10 days.. its either all or nothing with them! I've had 2 injections so far, and thats going ok, although still dislike doing it and still having the useless nights sleep, last steroids tomorrow though so probably have the downer days at the weekend too. I've managed to track down my ONC nurse too and she can't arrange the planning for rads until after surgery, results and checkup (even though the surgeon asked me to get it sorted now) so will probably find my rads fall over Xmas too! Grrrrr..
Another beautiful sunny day here in Suffolk, although I think it may be the last. Although I am looking forward to some cooler evenings as suffering hot flushes too, and also treated ourselves to a lovely woodburner stove and can't wait to get it burning, though with the hot flushes I might regret it and have to have the window open too!
Take care all
Reddi - hope you slept well.
Just for reassurance, the diarrhea was always a bigger problem for me during the 2nd/3rd week after treatment, it would always be OK again in time for the next treatment! Strangely enough you get used to the timescale of symptoms!
Good luck for the remainder of your treatments, have you had any operation yet?