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June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

Reddi, what lovely news, I'm so pleased for you! x

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Re: June 2018 Chemo Starters

The results are in, and they are good. 😊

Left WLE has 3mm margins; right mastectomy had more than 2mm on all sides except anterior (skin side), which was a bit tight to some DCIS; there was a margin -- no cancer cells on ink -- but it was less than 2mm. However, my surgeon feels the tight margin is fine, especially since that side was very responsive to Herceptin, and I have 12 more doses of Herceptin to go as well as endocrine therapy. (The DCIS in that breast shrunk from 63mm to 34mm, and DCIS often doesn't respond to chemo, even when apparently related IDC is HER2+.) I'll need to watch for any changes, of course, but I am happy to be vigilant.

Plus, the nipple sample was all clear, so the nipple can stay, too. Which is really nice, since my surgeon did amazing work. The scars are going to be barely visible when all is healed.

So my appointment with the oncologist next week will be RT consent and planning for the left breast! It will be a 4-week course, as path found left was (*look at that past tense!*) actually mixed mucinous IDC, not pure mucinous, so they will want to hit the tumor bed.

It's such a delight to finally be getting to the rads stage of this journey. Hurrah!
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Re: June 2018 Chemo Starters

Keeping everything crossed that you get good results this afternoon Reddi.! Thinking of you xxx

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Re: June 2018 Chemo Starters

I've only just started to see minimal eyebrow growth (one side only) nearly 12 weeks (or is it 13) after I finished chemo.
Kip Community Champion
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Re: June 2018 Chemo Starters

Hi there Reddi and Jencat, on the eyebrow front mine came back about 5 or 6vweeks after chemo, funnily enough I did use to rub the lush soap carefully on eyebrow area!!
Reddi weird about the aches isn't it but I was wondering whether I have been over compensating on one side since surgeries etc.
Cdc hope u got on well at hospital.
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Re: June 2018 Chemo Starters

Hi Reddi, I'm from the Oct '17 thread and finished chemo in March. Like you my hair has come back well (really thick on top, I've had to have it thinned out twice!) but my eyebrows seem to have given up half-way! I can feel that hairs are there, but they're not showing much yet! x

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Re: June 2018 Chemo Starters

@SallyG63 Exciting! The voucher would be a complete waste on me (the one time I went skiing, I took out a mother and two small children), but the nice watch sounds fab. Good luck with RT -- 2 down by the time your read this!

 

@Kip I'm getting the creaky old muscle aches now, too. I don't know if it is lingering chemo side effects or Herceptin side effects or some combo. Some might be walking off-kilter to avoid putting pressure on the spots where my soles are still tender and developing blisters; some might be wakling off-kilter post-surgery. Too many confounding variables.

 

@ktk You're an empty nester again, now, yes, with all of the brood off at uni? I hope the house doesn't feel too, too quiet. 

 

@cdc How did your planning meeting with the surgical team go? Less than a week to go! I expect you must be excited and nervous. 

 

@Shi & @Mishy18 Another fan of the red dot shampoo here -- thank you! 🙌 

 

I get my pathology results tomorrow afternoon, followed immediately by ophthalmology check to see if my eye has recovered from the inflammation in the uvea and the elevated pressure/glaucoma scare. I'm so hoping they sign me off to wear contacts again. I think my eyebrow-creating is seriously hampered by not being able to see anything further than 2 inches away without my glasses. It's always a surprise to see what I've done when I put them back on. No wonder I look like my grandma. Which reminds me:

 

How long about til eyebrows start to reappear? Mine seem to be stubbornly resistant to regrowth (unlike my hair). But using the red dot shampoo so close to the eyes doesn't seem like a good idea -- cinnamon stings!

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Yayy well done Sally.... thats great news... I love skiing but haven't been for years.. don't think these wrattling old bones could stand it at the moment!  Still have achy hips and knees, but think they are improving (or I am just getting used to them)... and going to try to join my son and husband at yoga classes soon... not sure if I will get up off of the floor at the end.. .but I'm gonna try!

KTK - no scan then... oh well just have to wait and see what/if I get through the post, perhaps nothing until yearly mammo on anniversary of diagnosis (thats what radiotherapy told me would happen).   Feels odd not having lists of appointments to attend doesn't it.   Good odd though!

 

Kip

x

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Re: June 2018 Chemo Starters

Well done Sally for getting through 1st radio but also your competition win!  Great to hear some fun news!  Xxx

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Re: June 2018 Chemo Starters

Sally ... thought I’d pop on and say congrats on your win plus great you’ve started rads ... hope sessions go well xx

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Re: June 2018 Chemo Starters

Morning ladies,

I'm so excited. Not for my 1st radiotherapy today but because I won a competion on instagram. A nice watch and a voucher for 2 free sessions either skiing or snowboarding at some place called Chelski.

How do I want to break my leg?
ktk
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Re: June 2018 Chemo Starters

Hi Kip, no, no scans or anything. Just a chat with the oncologist. He looked to see if my boob had recovered from rads, but that was it! Xx
Kip Community Champion
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Re: June 2018 Chemo Starters

I love my red dot shampoo! I can't wait for the Billy Ray cyrus
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Hiya Mishy 😁😁I’ve already passed in your red dot lush shampoo tip to the terrific June girls 👍👍ladies mishy18 is a fantastic lady who 👭👭👭helped us oct17 through chemo and rads and gave us 🤣🤣😂🤣🤣😂😂😂daily 😘😘😘love you mishy 💕💕💕✨✨✨Shi xx
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Re: June 2018 Chemo Starters

👍sorry for gate crashing thread but loving the hair stories I'm a way bit in front of you ladies finished Chemo Dec 17 😨 I have been a skinhead then Jamie Lee Curtis pixie wolverine with the curls arriving I'm not kidding you 😨 then 80's football mullet Doris from the bingo complete with a shampoo and set look, the a mess more mess and even more mess 😂😂😂 currently have a curly wavy short layered type graduated Bob perseverance pays off my advice is if you want it to grow leave the sides and top and just get trimmed at back once the mullet arrives I kid you not I was sporting a one that Billy Ray Cyrus would have been proud of!!! Oh and get the lush shampoo Red in colour called new its magic for your hair 👍👍👍
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Re: June 2018 Chemo Starters

@ktk Congratulations! It must be a bit weird, but I am sooooo jealous. Luxuriate in it.

My milestone today: shaved my legs! with a razor! Very exciting.
Kip Community Champion
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Re: June 2018 Chemo Starters

Hi ktk glad to hear things are settling down for u. Did u have a scan or anything after treatment finished? It's all a little weird isn't it after all the treatments
ktk
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Re: June 2018 Chemo Starters

Happy New Year everyone. Good to hear your news. My hair is still only a couple of centimetres long and shades of grey, but looks ok. I think I’ll definitely keep it short for a while. I had my oncologist meeting on Wednesday. Now it is just yearly checkups and mammograms. It all seems a bit odd not having any treatment but I am beginning to feel more back to normal. I just need to lose some weight and get fit again!!

Just waved son goodbye as he’s gone back to uni. I’ll take daughter back on Monday. Feel a bit sad, but it has been a lovely Christmas. Kxx
Kip Community Champion
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Re: June 2018 Chemo Starters

Shower scrunchie sounds perfect thanks Shi... And I'm on the look out for my 80s perm
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

A shower scrunchie thing makes a good knocker for swimming 👍👍💕💕✨✨Shi xx
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Kip 😲😲😲mine started off as the waves and then went curly whirly whirly whooooo 🤪🤪🤪it’s just long enough now for me to get it straightened at the hairdressers 👍👍👍it goes back to curly after a couple of days, shame it’s not the 80’s again we’d be leading the curl revolution and going naahhh not a Demi wave it’s a chemo wave 🤪🤪🤪🤪💕💕💕✨✨✨Shi xx
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Re: June 2018 Chemo Starters

Until I had kids mine was very curly, it just went a bit straighter with each child I had so if my previous curls return to what they used to be ill be happy
Kip Community Champion
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Re: June 2018 Chemo Starters

Oh wow Reddi we are all Ken Dodd lookalikies!  

Shi mine is definately not as straight as before but not really curly either..but more like an old lady's waves really... not the best look.. I just need the blue rinse and I'm sorted.. I have the aches and pains to go with it.

CDC - sounds like you had a lovely break.   I am looking forward to trying swimming, even got my swimsuit out today, just need a swimming knocker to put it in,, must get mother onto that.   I think I may struggle with breaststroke too as my knees hurt.  Its strange you are getting the aches too and have only really just begun with the Tamoxifen.   I do wonder if its partly the chemo hangover as I've read similar reports on these forums with ladies sufferings the same.   I've had another bash at the fitness DVD for breast surgery and it does seem to help, definatel finding my neck and shoulder is stiff on the surgery side so hopefully these exercises may help relieve it.  It may also be connected to the pain in my back as I am compensating for the poor side? 

CDC my son doesn't go back to college until Monday, and he's been off since about 13th December!!   I think my daughter was glad to see her friends too (and her boyfriend!!), I think they need someone their age to chat to after a while, I haven't a clue what my daughter is talking about half the time... I feel so old!!  you are so lucky your hair is the same colour as before, I am totally different.. the new me I guess.   Sounds like you still have some questions to ask before the big op but its definately all coming together and will be good to get it overwith won't it.  I have a friend who is having a DIEP next week (I think thats tummy).  She had BC about 3 years ago, had inplant which rejected and then remained flat until now... she's very excited about getting it all sorted out, says it feels like the last piece of the puzzle!!   She is in London too.

Kip

xx

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Re: June 2018 Chemo Starters

@SallieG63, @Kip, & @cdc1811: Being an expat, I had to google Ken Doddy. Ha! I'm not far behind in joining the Doddy doppelgangers gang.

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Re: June 2018 Chemo Starters

Encouraging to hear about people needing hair cuts. My hair is certainly growing back quickly and in tufts! It’s a bit Ken Doddy too Sally especially when I’ve just woken up. It also looks to be growing back a similar colour to before. My daughter is happy as it’s certainly not red- she wants to be the only red head in the family!

I’m also very achey Kip even though I haven’t been on the tamoxifen for the last few days. I think it
must partly be just my age catching up on me!
I had a lovely couple of nights away with my OH whilst my Mum looked after our daughter. The hotel had a pool and I enjoyed my first swim in 7 months. It was lovely and relaxing to be on the water it I struggled with breaststroke as my knees hurt so badly doing the kicking.
Your kids went back early Kip. My daughter starts back next Tuesday. It’s been good to have a long break together before my op but she’s looking forward to seeing her friends and my ears could do with a rest- she’s certainly a talker.
I’m seeing the surgeon doing the mastectomy part of my op on Monday. The team are planning to leave my previous scars alone (from the mastectomy and re-excision) on the right and make a bigger incision around the nipple which will be removed. On the left they may need to go through my previous wound sites as they need to reduce the size for symmetry. I’m wondering if what I’m having is a type of skin saving mastectomy? I certainly have lots of questions to ask the consultant.

Hope everyone was able to enjoy the Christmas and New Year Festivities. 2019 will hopefully be a much better year for us all.

Lots of love xxx
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

As long as it’s coming back straight ladies enjoy it, I got hit with the chemo curl wand when mine grew back and it’s starting to get a right Jon Bon jovi mullet circa 1986 🤣😂🤣😂🤣😂but hey it’s hair and isn’t it tremendous to actually have it 👍👍👍💕💕💕✨✨✨✨Shi xx
Kip Community Champion
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Re: June 2018 Chemo Starters

SallyG - ha ha Ken Dodd.. I like it... I look like his crazy twin too!   Who would have thought short hair could be so troublesome!

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Re: June 2018 Chemo Starters

Hi,

I'm thinking of getting my hair cut soon. I'm nearly 11 weeks PFC and the sticky up bits are driving me mad. I get up looking like Ken Dodd on a bad day.

I took my decorations down on Saturday. Once Christmas is done I want them gone.
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Morning All, just wanted to touch base with you all and see how things are going.  I'm still achey, hips, bottom, thighs and feet (oh and shoulders and neck too sometimes).. not sure whats the main cause, chemo or tamox but hoping to see some improvement soon.. feel so old!

RedRose - how are you doing?  Now you can say you are getting married this year!!!  woo hoo..

Anybody had a first haircut yet?  I am thinking of having a small trim to get rid of the whispy end bits but am reluctant to let any go as yet.. not sure what to do?

My daughter went back to school today, really miss her already and my son is back on Monday so its all back to the grindstone for us... Christmas tree down.. found that hard.. the what if I don't see it again thoughts came whoosing back... had to fight them down!

 

Kip

xx

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Juat wanted to wish you all a Happy New Year and thank you all for just being there for me!  Heres hoping for a better 2019 for sll of us!

kip

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Re: June 2018 Chemo Starters

What a lovely remembrance, cdc. xoxo
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Re: June 2018 Chemo Starters

Thanks for thinking of me and my Mum Shi.  I also feel like we are ‘sharing the day’ with my Dad on his anniversary,  This year we took some flowers from from the garden he loved to add to the wooden heart on his apple tree.  I’m glad I shared the day with my Mum.  Xxx

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Cdc ❤️❤️❤️Thinking of you and your mum today, hope the anniversary has been filled with loving memories of your dad. We always do something dad would have loved and still ‘share’ the day with him when it’s anniversary 😘😘😘 sending love Shi xx
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Re: June 2018 Chemo Starters

Good to hear your updates Willie and Reddi.
Glad you are healing well Reddi and hope you fare well on the radiotherapy Willie.

I’m also feeling very tired Kip. Ive had a lovely Christmas and it’s been relaxing in some ways but still rather busy seeing people every day. I’m now down at my Mum’s as it’s the second anniversary of my Dad’s passing tomorrow and I didn’t want her to be on her own, My OH is visiting his ‘big kids’ with our daughter. I’m looking forward to a lie I’m tomorrow!

ktk I’ve also lost another finger nail. Oh well. Doesn’t hurt and there’s one underneath I seem have one ridge at the base of each nail now and it’s obviously a weak point and the nails I’ve lost so far have just snapped off from there. I’m very achy and the neuropathy has been bad but I’m just hoping that it’s temporary and my body will recover eventually,

I’ve been out shopping for firm control, high waisted pants today in preparation for my surgery. I though I’d better go extra large but I’m amazed to say the cheap pair I got from Primark (as recommended by the hospital) are too big even though I’ve been eating like a horse! Their sizing is definitely wrong.

Red Rose and Shi hope you’ve been enjoying the Holiday.

Hugs to everyone xxx
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Re: June 2018 Chemo Starters

 
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Sorry reddi detubing got changed to retuning on predictive text, but still we’ve all been in for a retuning haven’t we, it’s called chemo 😁💕💕✨✨Shi xx
Shi Community Champion
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Re: June 2018 Chemo Starters

Reddi 👍👍on retuning ❤️❤️That’s great news you are healing well 😘😘 👭👭💕💕✨✨Shi xx
Kip Community Champion
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Re: June 2018 Chemo Starters

Hi Willie! So good to hear from you.  Your post, though quite serious in subject matter, had me laughing!  Loving the humpty face reference.... That was me entirely...  I  Stil have his body it seems!!  Glad to hear all things progressing for you.  I am day 8 post rads and now starting to see some redness although not sore just looks sunburnt.  Feeling tired today but coukd be post xmas tiredness as its been busy round here.  

Reddi.. congrats on tube out day... Its a great feeling!!  

Kip

Xx

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Re: June 2018 Chemo Starters

Hi @Willie! Are you on one of the novel anticoagulants (NOAC) or old-fashioned warfarin? I had a pulmonary embolism back in the summer of 2017, and the docs put me on apixiban (brand name Eliquis) for six months -- the NOACs are great in that you don't have to get regular blood tests or cut dark leafy greens out of your diet, but you do have to adhere very strictly to the schedule of pill-taking, since they have a relatively short half-life. In addition, I'd suggest getting a medical alert bracelet (or making one, which is what I did) to wear while you're on the anticoagulants -- especially if you're on a NOAC, since they don't (yet) have a quick reversal agent should you have an emergency (unlike warfarin). 

 

Post-surgery update from me: The day after Boxing Day will forever more be celebrated in our household as Detubing Day. Finally got the drain out on the mastectomy side this morning -- 14 days. (I'd been told that because of the type of surgery I had, I'd have my lil buddy *at least* 14 days, and I went in to the hospital slightly worried that I'd be stuck with it longer.) Apparently, I've been healing quite fast as it took quite the series of tugs to get the tubing out. Ouch. I'm glad I took some paracetamol this morning before I headed in.

 

Path results around 9 Jan, so RT planning won't be until after I know if I need a re-excision on the left, etc. 

 

Hope y'all are having a restful, lovely, peaceful week. xoxo, r.

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Re: June 2018 Chemo Starters

Greetings ladies!!   It's been a while I know, I last appeared here on 24 July and while I kept meaning to dip back in, life got in the way.    I've caught up with all your posts for the last few months today and it's good to see the posts about chemo side effects slowly being replaced with posts about hair growth and approaching radiotherapy.  Here's my catch up. 

 

I finished my 4 FEC / 4 T on November 22nd, so five weeks 'out' today.   I have to admit to keeping quiet here during my FEC cycles as many of you were having such a bad time and I thought it ungracious and fate-tempting to report that I didn't have any adverse side effects at all - other than the hair loss and weighing a ton (self inflicted!).   

 

I hit a icy patch a few days before my first Docetaxol, I woke up with vertigo/or a derivative of, it wasn't looked at too closely as it's not life threatening.  A couple of days on travel sickness pills sorted it out, although I walked like I was drunk for a week or so after.   In the general scheme of things, it was just a bump in the road but I wouldn't wish it on anyone.  

 

I had a PICC line put in before the poisoning started.  I had expected it to last through the 8 cycles but it seems it's not usual for that to happen.   It stopped working, they couldn't get any blood back out of it during the weekly maintenance and for the nadir bloods.   I had an ultrasound to see where it was, if it had moved but it was being blocked by a clot just below my collarbone. They replaced it with a mid-line, a shorter version, and the hospital told me that I had to give myself daily anticoagulant injects for three months.   That freaked me out, being needle-phobic, but I had to suck it up and get on with it.   I did that for a week and then the oncologist asked me if I was taking my tablets.  "TABLETS? THERE ARE TABLETS?" I shrieked ... when he came back up from under his desk he wrote me a prescription for tablets.  

 

The Docetaxol wasn't as kind to me as the FEC, I did get very tired on the first lot, I had to take two days off work and lie down but that was on the back of the vertigo.  The second cycle was easier, I took two days off just in case.  The third and fourth cycles were even easier although I did take the days off as a precaution.   I booked a dog walker for those days as I found getting round our (steep) park, pretty challenging. My fitness is not back 100% but it's getting there.

 

The mid-line kept me going for the next 3 cycles.  That one failed just before the last cycle and I had to go 'traditional' and have the poison administered into my hand.  I am just so grateful that I had that line for 7 cycles, even if it did give me a clot.   They told me the clot would dissipate over the three months and then I'd be able to stop the anticoagulants.  However, a follow up ultrasound last week has shown that it's still there and the radiologist has suggested that it'll be there permanently and that I just need to take the tablets forever.  

 

Last week also saw my annual mammogram, brought forward slightly because of my forthcoming radiation, on the remaining boob last week.   I was a bit fraught in the run up (understatement!) but it was clear.  Hoo-effin-ray!!

 

I've got radiation starting on 3 January for 16 sessions.   I'm a little concerned about the burning and will do as much moisturising as I can but I'm really rubbish at all that stuff.   I'm also worried as I have lymphodoema in the arm on that side and it's stretching across my scar site.   It's very fluidy and I've got an dread of the radiation heating up the fluid and me boiling from the inside out.   I'm no doctor!

 

On a more positive note, my hair started to grow during cycle 7 of the poison.   It's getting wiry round the sides but is still very sparce on top.  The different lengths make me look like a cross between a baby bird, a 90 year old man and a testicle.  That's a good look eh?   In another cruel twist, I kept my eyebrows and lashes until my hair started to come back, then they jumped ship making me look like Humpty Dumpty with my big bloated steroidy-crisps and chocolate-bread face.   I'm off to get one of those Lush shampoo bars as soon as I can.

 

Anyway, enough about me.    It's been really good to read your posts and to see that we're all moving through this adventure we've been thrust in to.  I'm keen to see your radiation advice too in the next few weeks.

 

Wx 

 

Kip Community Champion
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Re: June 2018 Chemo Starters

Well said CDC! 

RedRose how did the last one go?  Ive got a little red sunburn patch on my collar bone but doesnt hurt yet.

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Re: June 2018 Chemo Starters

Brilliabt news Red Rose!! 🔔 🔔 🔔

Hope everyone is able to have a joyful Christmas. We’ve all come so far and though we haven’t had a choice, we all deserve to be proud of gettng through each treatment. Huge hugs to everyone and here’s to a great New Year! Xxx
Kip Community Champion
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Re: June 2018 Chemo Starters

RedRose...  Ring that bell loud and proud!

 merry Christmas everyone...  May it be SE free and full of love and peace!

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Re: June 2018 Chemo Starters

@RedRose  🔔🎉 CONGRATULATIONS!! 🎉🎶

 

And to everybody who celebrates the holiday, Merry Christmas! 🎄🎁☃️🎅🎄 May 2019 bring us all much health and happiness.

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Re: June 2018 Chemo Starters

Good morning ladies! Merry Christmas Eve🎄🎁 😁. Sorry not posted in a while been a busy few weeks 🐝. Christmas shopping all done so having a chilled morning before the children’s mum drops them off as we are all heading off to the hospital for my last radiation treatment and I get to ring the bell 🔔 just in time for Christmas! Radiation staff said the kids can do it too to mark their journey with me and give them a bit of closure too now I will have finished active treatments for a while. Xx
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Re: June 2018 Chemo Starters

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ktk
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Re: June 2018 Chemo Starters

It is around the sides and top. Just wondering if I can stick the nail back on. It is very sparkly 🤣
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Oh ouch ktk that sounds painful, seems we are all suffering with problem nails.  Ive painted mine just to hide their hideousness! Just another gift frim the wonderful chemo!

  Is it sore wihouy the nail?

ktk
Member

Re: June 2018 Chemo Starters

Lovely to hear from you!! So I went to a friends’s Birthday party last night. The biggest problem was finding something to wear, as I have put on so much weight! I don’t really want to spend on new clothes as hopefully I will lose the weight soon!

The bad news is that I lost my thumbnail at the party. I banged. It washing my hands and it came off! There is a fair bit of growth, about half a nail, underneath. I guess the rest will follow😢 Kx
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Ktk glad youve found the eyelashes are coming back.. nice isnt it... Not so the leg fuzz tho!

Reddi you did make me smile withnthe doppelganger post... And loving the bow for the bag!  Ive thought about spraying my white buzz cut with glitter to lookn ike a bauble!!  Eyebrows are a tricky art aren't they?  I remember the lady at the LGFB course saying they shoild be "siblings not twins"...  Mine sometjmes just looked like dead slugs.  Good news is when they come back they seem to do so quickly...  Now have hairy slugs again!