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June 2018 Chemo Starters

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Re: June 2018 Chemo Starters

@Shi Txx for the tip! And I've already picked out a contrasting green gift bow for my drain bag! Tis the season!  🎅🎄🎁

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Reddi 😘😘glad you found the ✨✨✨✨for eyebrows go with a powder and stuff little brush, a lady on google does good tutorial and to start with a couple of the eyebrow stencils to use with the powder help, get it all off Amazon dirt cheap but really good 👍👍and grab a few tinsel wigs too, it’s Christmas and you’ll rock them 😁😁😁I did last year and bit of tinsel round the drain darling, if it’s going to hang out with you it’s got to join the party 💃🏻💃🏻🕺🕺💃🏻💃🏻💃🏻No bar humbugs allowed its Christmas 🎄 😘😘😘💕💕💕✨✨✨Shi xx
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Re: June 2018 Chemo Starters

@ktk Eyebrow hope! I've retained a few resilient individual hairs and lashes, but I do miss them. Keep seeing a naked mole rat when I glance in the mirror. Even found myself musing around the glitter make-up section at Boots today, trying to imagine some way to make myself look festive next week, murmuring, Which glitter would go best with my drain bag? I ended up with some sort of blue glitter lipstick topper, because it was cheap. So relieved and happy  to hear your report of the return of yours!

 

(I do have my eyebrow pencil etc. from the LGFB goodie bag, but no matter how hard I try, I always look like a doppelganger of my grandmother, who claimed that at some point she'd shaved off her unruly eyebrows and they just grew back more unruly, so from then on she drew them -- a doppelganger, that is, but for the buzz cut.)

 

Saw my BCNs today for my Pico vacuum dressing removal on the mastectomy / reconstruction side. Wounds are healing very, very well. My surgeon has left me with tight little scars that are positioned in such a way that I doubt I'll notice them in a year's time. Still a bit of swelling and some bruising, and ever so slightly raw (so I'll be covered a few more days), but all looks good. Because of the sort of surgery I had, the drain stays in for another week -- won't come out til the 27th. Can't wait. In other good news, the runs seem to have finally stopped today. Could be stopping the antibiotics, starting probiotics, or the combination of the two. Still waiting for word from the lab on whether I've had a recurrence of C. difficile infection, which might require some treatment. For some reason they tested for everything but that, even though the lab order was quite specific. At least  I know I didn't have salmonella, E. coli, or some odd tropical bug. 

ktk
Member

Re: June 2018 Chemo Starters

I was very excited to find enough eyelashes to put mascara on this week!! My head has a nice soft covering now and my brows are reappearing! On the down side, I have had to defuzz my legs for the first time!!!

Hope you are all doing well. Much love Kxx
Member

Re: June 2018 Chemo Starters

@RedRose Just recalled that if @Kip is done with RT, you must be done now, too. I hope it went okay for you, and that your wedding planning has been a good, dreamy distraction. Thinking of you.

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Yes Reddi, if I had wings I would have floated out of there at that moment! 

Kip

xx

Member

Re: June 2018 Chemo Starters

@Kip Cheesy is good! Especially right now. And I don't mean Christmas-time. Your children look so happy in the photo -- though not nearly as happy as you, the definition of bliss. You're glowing.

 

@SallyG63 I'm assuming that if you're taking your antihistamine at night, you're taking Piriton or another version that *causes* drowsiness (and so should help with rather than hinder sleep). Just thought I'd throw it out there in case you're taking an anti-drowsy form...

Member

Re: June 2018 Chemo Starters

Just on train to work now. Anyone else on letrozole? Ive been on it 6 weeks and have now lost more than half my hair (that I kept thru chemo) and have real problems sleeping. Went to bed last night and was still awake 6 hours later, hence only just being on the way to work. I've no aches or pains, that I didn't have before but itch like crazy at night. I've been taking antihistamines before bed bit it's not seeming to make a difference.
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Thanks everyone, I know the bell etc is a bit cheesey, but it definately marks a point in time and meant a lot to my kids to ring it with me.   Feeling emotional today still, hoping i can fend off the worry gremlins until after Christmas at least!

Kip

xx

Member

Re: June 2018 Chemo Starters

Lovely photo Kip and congratulations on finishing treatment xx

Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

💃🏻💃🏻🕺🕺🕺💃🏻💃🏻💃🏻💃🏻😁😁😁😁😁🎉🎉🎉🎉🎉🎊🎊🎊🎊🎊Kip fantastic lovely lady ❤️❤️❤️❤️Hope you rang the clanger off it 😘😘😘sent you pm the other day don’t know if you got it? Don’t forget to choose tune for club Tropicana thread, hop on over, dance floor, Sunbed and 🍹🍸🍹🍸🍹await 😁😁😁💃🏻💃🏻💃🏻🕺🕺🕺🕺💕💕💕✨✨✨Shi xx
Member

Re: June 2018 Chemo Starters

p.s. @Kip: I just saw that they mounted the bell right under the "Way Out" sign. Nice touch.

 

Ack! Edited to add: 🎊CONGRATULATIONS! 🎊

Member

Re: June 2018 Chemo Starters

What a great photo Kip. Shame the one with your OH didn’t work out but this is a super photo and so special. Congratulations on getting through active treatment! Xx
Member

Re: June 2018 Chemo Starters

@SallyG63 Gah, I snort-laughed at your comment. And that's even though I teared up when I read the quote on the bell when @Kip shared it. I'm a sentimental cynic or a cynical sentimentalist -- just can't determine which.

 

An American friend of mine -- diagnosed and treated for ER-, HER2+ DCIS a couple years at age 37, who just got word of something amiss in her follow-up scans and so is having an MRI-guided biopsy -- US shared a link to a poem, "The Fourth Sign of the Zodiac" by Mary Oliver, that she turns to at times. It wasn't my thing -- well, cynically and sentimentally, there were lines I liked and loved, and others at which I rolled my eyes -- but it might be exactly right for some of us...

Member

Re: June 2018 Chemo Starters

Oh is that why it is?

Is it like the cancer equivalent of the naff Rainbow Bridge poem for dead pets?
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Sally, Yes he probably was!   The bell ringing marks the end of active treatment.. there is a poem engraved on it which says  "Ring the bell 3 times well, its toll for all to say, my treatments done, the journeys won and now I'm on my way". 

Kip

xx

Member

Re: June 2018 Chemo Starters

Bloody Doctors!

Useless with photos. Is your son checking his reflection in the bell Smiley Happy

I don't get the bell ringing thing and why it's done.i
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

I've done it and rung the bell (that's my lovely children supporting me)  did get the doctor to take one with my husband in it and when I got out, it hadn't worked!   Grrr.. never  mind nothing can dampen my smile today... hope the happiness lasts and I don't hit a low tomorrow... but for now... smiling!

Kip

x

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Ringing the Bell2.JPG

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Oh Sally nothing is ever straight forward is it, hope they sort the appointments... 12 hour days is not doable especially as they harp on about the fatigue kicking in!   And as for the mammogram... just grrrrrrr

KIp

xxx

Member

Re: June 2018 Chemo Starters

Planning was ok. Kept asking if I was comfortable and the answer was no but we could the position that was least uncomfortable. I have a problem laying on my back because I get cramp up my back.

Gave me my list of appointments and all bar about three would leave me having to get on a train at London Bridge in the middle of rush hour and not getting home till between 7.30-8pm. So that'll be 12 hous out of the house daily because I'll be working too. I have basically told them it can't happen and they need to move the appointments so I can be on a train before 5. They're going to see what they can do and send out more appointments so we'll see. Start on 7th January. Also got home to an appointment for next mammogram in my remaining breast for the beginning of February after I chased it up a few weeks ago. My last one was October 2017 so if I'm back to annual from every other year then I should have had one in October.
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Thanks for tips Sally unfortunately im so small i cant reach the door frame!!  Hope planning went well.  Im now booked in foe the Hope Movjng on Course jn February and also gots lots of information about other therapies available, may have reki and reflexology after xmas.  Was quite surprised to be told as a cancer sufferer uou are now classed as disabled!  And as such have all the benefit rightsnof a disabled person.  A sobering thought.  I aas also given an exercise dvd especislly designed for breast cancer patients to help with gettjng movement back and preventing lymphoedema.  So a productive afternoon. 

Member

Re: June 2018 Chemo Starters

Great new Jen, just what you need before Xmas.

Kip, door hanging is great for cording. I had loads of it after ANC and hanging off the door frame and walking backwards and forwards cleared it over a couple of weeks, especially if you can hang with the bad arm whilst rubbing cream in and massaging with the good one.

At Guys now waiting for my planning scans.
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Yayyyyy that is such good news Jencat!   So pleased for you.  Smiley Very Happy

Reddi - oh dear sorry to hear you have another bout of tummyness!   Hope it sorts itself quickly for you.

Kip

xxx

 

Member

Re: June 2018 Chemo Starters

@Kip I'd missed that they played the Titanic theme at your first RT. I would have busted up laughing, making it impossible to treat me. My OH and I got hitched at the borough hall and they'd asked us if we wanted any particular music played at the end of the ceremony. We said no, thinking that they'd play some Handel or something. We got Titanic. And this was 2008.
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Re: June 2018 Chemo Starters

Such nice news -- especially the sign-off on your CT scan, @Jencat. Woohoo! I can imagine it is almost overwhelming, getting all that good news at once. And @Kip, so glad that you have finally got a name and action plan for your arm pain. Now you can mend it! Hoping the same comes for the other aches -- or that they quiet as your body gets used to the tamoxifen.

@cdc Belated grrrrrings over the response to you complaint. I'll echo @Shi, however: fight the most important battles first. You've got a big surgery coming in less than a month, and you'll want to be rested up beforehand. I'd suggest doing the minimum now to keep your complaint alive -- and then, on the other side of surgery, go after them. But that's just me. You have to do what feels right for you.

My post-op update: it does seem I have a recurrence of the lovely C diff. -- that or some low-grade stomach bug. Going in to see the BCNs this morning. Think I'll have to take a car service to avoid jostling on the bus as well as reduce chances of having diarrhea in transit. At least my fever has broken and I have some appetite again this morning.
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Re: June 2018 Chemo Starters

Kip, your last post made me laugh re music played whilst havingscan/rads! Smiley Happy

Michelle and Kip, I had good news yesterday, CT scan was clear of cancer! (A bit of 'fluffiness' on my left lung, but onc said it was in the exact spot where I had rads, so it is inflamation from that and she's not worried) Onc said I'm now in remission and has discharged me! I wasn't expecting that as I thought before I started chemo she'd said she'd see me alongside consultant for a few years as I'm TN. Tbh, I'd rather I was still seen, but perhaps I should think of it as good news that she doesn't feel she needs to! xx

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Morning ladies! 

Michelle thanks for the response, funnily enough I saw the radiotherapy nurse yesterday for a catch up and she said I will see them again 4-6 weeks after finishing the rads and then it will be a mammogram and an ultrasound (sounds promising but I'll wait and see) 1 year after diagnosis (so May) and then regularly check ups after then. I think I am being seen by ONCs to check on progress with Tamoxifen too, so sounds the same as you.   It was good to see the nurse because I finally know that I do have Cording!!!   All the way from wrist to armpit.. .fabulous!   She showed me how to massage it gently and I am on the list for an appointment with the Lymphodema clinic so that they can have a go too.  So glad to know thats what it is.  She was lovely and I told her about the fear after finishing treatment and she said that its so so common but that they have lots of therapies and counselling and exercise classes to help and that I will always have an open door to Radio, Oncology and Breast clinic so I can call at any time for evermore if I need to chat or am just worried about something.  She said some ladies just come in when they are feeling fearful just to have their minds eased.   I asked about my aches and pains too and she thinks its chemo hangover  plus a bit of Tamox thrown in.. She said it should ease over time (not sure how much time mind!).   She also advised to keep a note of how I feel on the different brands of Tamox as some can make you feel different and you can request the chemist only supply you with the brand you like.

Reddi - I hope you are feeling ok today, sounds nasty and something else you can do without.  Take care.

Sally - That is a nightmare time for an appointment for Radio isn't it.. hopefully they can get it changed for you?

Well its the penultimate radiotherapy session today... still doing ok, not sure if I am feeling more tired.  I think over this last year I have just got used to feeling tired so its become the norm!   Had christmas music playing as they did the rads yesterday.. that was a very bizarre thing.. not sure entirely appropriate... as the song was "Simply having a wonderful Christmas time"  as a machine buzzed over head and routinely fired beams at me!   Oh well I had the theme from Titanic playing as I had my initial MRI so can't expect too much.

Kip

xxx

Member

Re: June 2018 Chemo Starters

Jencat I hope you got good results today. Sorry to hear you have been struggling emotionally. It is so difficult at times, although pleased you have found some therapies and counselling that has helped. I hope it continues to do so and hopefully good results today will help too.
Kip I’ve got a check up appt 6weeks post starting Tamoxifen with my onc to see how I’m getting on then I think it is a mammogram once a year from date of surgery. Mine is due in August. X
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Re: June 2018 Chemo Starters

Hi all,

Hope you had an ok loo trip Reddi and all's well now.

Cdc, I'm not surprised you're not satisfied with your complaint response though you should be glad you got one at all so quickly. Mine took 9 months and even then getting an answer, which was no sort of answer, was like pulling teeth. My response was similar to your, in among the blatant lies. It was deemed that the harm caused was 'moderate'.

Moderate my eye! Having to having 2 surgeries, the second of which may not have been necessary if they'd have got their finger out, and still being on active treatment a year aftr diagnoses and in constant pain and discomfort doesn't seem moderate to me.

In other news I have rads planning on Tuesday and they have sent me my first appointment for rads. It's at 4.30 on 7 January. That's not going to happen. They need to move it because I will not shoehorn myself on to a packed train (and at that time that's the only ly way to get on at London Bridge ). I'm on reduced hours at work just so I don't have to put up with that because between my painful feet and surgery damage on one arm and chemo damage on the other, I can't stand on the rain and have to sit down.
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Re: June 2018 Chemo Starters

Alas, I am not feeling well today. Had some shivers last night but just thought it was the cold weather. Woke up with a distinct facial flush and discovered I have a fever. Thighs ache. Lower back aches. I spoke to my BCN this morning and she advised regular paracetamol and visit to the clinic tomorrow morning to see if they should extend my antibiotics. However, my bowels have become overactive and my most recent visit to the loo was decidedly loose. So I am wondering if my C. difficile infection may be recurring. Now I have to decide if I call again... I think I will wait to see what next visit to the loo brings.

Member

Re: June 2018 Chemo Starters

Thank you Kip x

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Morning all,

Good luck Jencat with those results today.  Hope this gives you the all clear and you can move forward.  Its good to hear you are finding counselling and therapies useful.  I think we all need something to help us move forward once we are done with active treatment.

Reddi - how are you now, glad you got home!

CDC - well my dear what can I say!   How dare they!!!   What a nerve!   That is so out of order, after everything you have been through, all the information you have gathered and provided them with.   Don't let them wear you down Clare... when you feel good and ready you give them hell.   To blatantly get all those details wrong just beggars belief.   I really do believe that if, for one minute, they had to walk in our shoes, they would be taking these things much more seriously and understand how we need assurance and good honest guidance in every step we take.   To even insinuate that they did all they could and "tough get on with it" is...well... can't even begin to put that into words that wouldn't be taken down by this forum!!   Big big hugs to you... they better watch coz CDC is coming for them!

But on a better note CDC good to hear you have a date for surgery and are feeling confident with the new team.   How are you feeling now chemo is done, are you suffering any aches and pains?   I am stiff and achey in every possible joint know to man!   From toes to fingers!   Can't work out if its chemo, radio, Tamoxifen, menopause or all of them.  Just hope it eventually goes away.  Am just trying to focus on getting radiotherapy finished this week and then have a break over christmas to rest up a bit and then see what happens.  Don't even know what happens once I finish rads?   Whether I get a scan or something?  Anyone have any  ideas?  I know they said I would get a mammogram on the remaining breast around about the 1yr anniversary of my masectomy so that would be May time.

Kip

xx

Member

Re: June 2018 Chemo Starters

Hi Michelle, thank you for thinking of me. I'm ok, but still struggling a bit emotionally at times. I was offered counselling when I was having chemo and rads, but I didn't need it then and always felt I'd find it harder once I finished treatment and I was right. I've been having some counselling through Macmillan and that has been helping and also I'm entitled to 6 free therapies through a local charity and I've found that beneficial too. So far I've had a hand and foot massage, which was lovely! The therapist is an ex-nurse and comes to my house. I've found it nice to be able to talk about my cancer to her if I want to as I can't really talk about it too much to anyone else because I don't want to upset them or they don't understand as I 'look well'! 

I'm feeling quite anxious today as I'm seeing my chemo onc tomorrow pm to get the results of the CT scan I had 2wks ago. It was to check that the last few mm's of cancer has gone from my internal mammory chain. My chemo onc said she'd be surprised if there was anything still there when I saw her in the Summer, but I can't relax until I know for definite, although I keep thinking surely they wouldn't leave me for 6mths after the finish of rads if they were that concerned?! It's been difficult though to move forward when I don't know if I'm cancer free or not.

Sorry to read that you're struggling too and hope you find your counselling helps xx  

ktk
Member

Re: June 2018 Chemo Starters

I’m sorry to hear that CDC. You are strong. Much love Kx
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Cdc 😘😘😘firstly my lovely for the 🤬🤬🤬🤬you are feeling with a response like that. Time to get the gloves off, get all your ducks in a row and then leave them no wiggle room when you do fight this, but as a wise man once said to me fight each fight at a time and don’t take on too many fronts 😘😘you will succeed as you strike me as a 🥊🥊🥊🥊fighter. So pleased to hear you got kind nurses sometimes angels are just there on this journey and you had a couple just when you needed some kindness 💕💕✨✨✨Shi xx
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Re: June 2018 Chemo Starters

Oh CDC I am so sorry you have had such a useless reply to your complaint. Well done for fighting it, like you say you have enough going on so I really admire your determination to be heard by them and not to be brushed off. You are right you are worth more.
How are you feeling Kip? Hopefully a little better, I have only had one counselling session but have been reflecting on it a lot this week and I do feel better so if your hospital offer counselling I would highly recommend it.
Hi Jencat how are you doing? I hope you are well and moving on from the last year. I hope you have a happy christmas and healthy 2019 xx
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Re: June 2018 Chemo Starters

How are you doing today Kip? Hope you’re feeling brighter. I’ve felt lower than I have even at my diagnosis since getting the response to my complaint (which I was asked to make!).. so upsetting as it basically says ‘Tough s***t. Nothing shows up on your mammograms and there’s nothing we could have done about it as you aren’t BRCA so not eligible for additional screening so what are you complaining about? We’ve done all we could.’ Absolutely gutted- also I am portrayed in a very negative light- much of what is written is simply untrue including saying I cancelled the meeting arranged to view the images with the radiographer and surgeon by e-mail to the BCN on the day. Bizarre!! I don’t have her e-mail address and also I said I was unable to attend when the date was suggested in a very out of the blue phone call as I had a previous engagement. . It’s suvh nonsense! They even say I first presented at the unit with issues in my left breast. Errr no- I went with a thickening in my right breast. I didn’t feel antyng amiss in the left for another fortnight. I feel absolutely betrayed. However, once I’ve picked myself up and dusted myself off I will fight this. It is not good enough! My dense tissue was noted in 2009, my family history is extensive. Thankfully, I have always kept good records and I know of the NICE guidelines for MRI scans which say they should be considered iin Jose with significant history even if they are not known to have a gene mutation. Also my surgeon says my cancer was not an ‘interval’ cancer as this only applies when a cancer is found within the three years on the regular screening programme and not The High Risk annual screening. I have since sent the people investigating links to the government guidelines which detail how those on both the regular screening and high risk screening should be given a leaflet on first being diagnosed with a cancer between screening. I’m sorry to go on and on but I think it’s outrageous that I am having to inform them of National guidelines!!! I am hoping to organise a meeting with the investigating team next week. Aagh. As if I haven’t enough to think about and do. Sally did you ever get anywhere with your complaint???

On a totally different topic- my surgery is booked for Jan 14th!!! I will have a double mastectomy and will find out whether this will be TUG or DIEP next Wednesday. I had my CT scan today and was overwhelmed with how lovely the nursery were. I explained I hate cannulas and was told unfortunately the procedure meant the cannula was rather large. Another nurse was brought in purely to reassure me and so I could hold her hand! I felt myself tearing up at their kindness.
Member

Re: June 2018 Chemo Starters

Hi Kip, I'm from Oct '17 thread and I've being having counselling through Macmillan since I finished rads in the Summer and I've found it's helped, so hope it does the same for you x

Member

Re: June 2018 Chemo Starters

Brilliant news Reddi! Wishing you a speedy recovery. Xxx
Member

Re: June 2018 Chemo Starters

Discharged! So lovely to be at home. 🏠 💞
Shi Community Champion
Community Champion

Re: June 2018 Chemo Starters

Kip 😘😘 this is a belt and braces for you isn’t it with chemo and rads? As my beautiful bc nurse said to me, you haven’t got it any more. It’s hard to get into the ‘had’ when speaking but it will come once rads done 💪💪💪💪but rads does have bit of a habit of bringing a 😢from out of nowhere. Hope that biscuit is a chocolate one with the tea 😁😁reddi hope you managed to catch up on some sleep or better still are home ❤️❤️💕💕✨✨Shi xx
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Ah thanks Reddi.  Yes "are you there Mother..."  definately odd!  

Just had Rads No. 11 and feeling unexpectedly teary on the way home.   Sometimes I just suddently find myself hit full on with the thought "oh my god I have cancer"... tried to explain that to OH just now and how scared for the future I feel sometimes and in true style he said "Life is terminal"!  Gotta love him hey....He says hes sick of talking about cancer... bloody hell try living it I thought!  I know he doesn't know what to say.. guess he never will really... definately gonna need some counselling after xmas I think...even if just to sit and cry and not be judged..  In true British style... I'm going to make a cup of tea and have a biscuit...

Take care

Kip

xx

 

Member

Re: June 2018 Chemo Starters

@Kip p.s. I hope someone on the lymphedema team sees you soon and you get some help and guidance on your arm. And nice to finish rads before Christmas -- and to get your daughter's birthday off (unexpectedly). No silver linings emoji on my phone, so... 🌈
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Re: June 2018 Chemo Starters

@Kip Ah, the joys of hospital. Can't decide if "Mother, are you there?" sounds poignant... or Norman Batesy.

Trolley crashes sounds awful. I was saved that. My door is opposite the nurses' station, so lots of quiet chatter and gossip overnight. A bit like my own soap, though less captivating than Coronation Street, and far more interruptions.
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Oh no Reddi!  You sound like you had the same patient next door as I had when I was hospitalised for low neuts!   He was shouting "kill me" "help me" and "Mother are you there" all night long too.... I thought I was home and dry when put in a single room but hell no...I think every trolley that went by clattered into my door and the lights.... grrrrrrrr....  hope you escape tonight... and watch out for anymore scabby monkey!  I'm sure CDC can sympathise with the alarms on the dressings, I seem to remember she had fun with them too!

Kip

x

Member

Re: June 2018 Chemo Starters

@SallyG63 Ha! For all I know, I did eat a scabby monkey. My OH did refuse a sample...

OMG Sleepless night! I was excited when my surgeon scored me a transfer to a private room.. Until one of my neighbors turned out to be an angry, shouty problem patient. The nice bits growling through the corridors were, "Help me!" and "Kill me now!" Other bits would get my post deleted from the forum. All. Night. Long. Between that and the alarm going off on my Pico vacuum dressing for the drain, no Nod for me. But looking good for discharge this evening, thank goodness.
Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

 Well I finally met somebody at Radiotherpay who was in my age bracket.. we have both had BC, masectomy and 6 x FECT.   Unfortunately she had BC 10 years ago and had a masectomy then and this was a new diagnosis in the other breast but she has now had the other breast removed and has chosen to remain flat!  She was so pleased to be matching finally and said she felt quite pressured to have recon but it wasn't for her.  Nice to talk to someone else in the same boat.  We compared nails, hers looked pretty much like mine and she had lost a couple and some toenails too eek.  We discussed hair.. shes still wearing her wig as hers isn't growing much yet and we had a good old moan about Docetaxol!  Oh and she suffered from the neuropathy in her fee & .fingers and had trouble walking, and they are still sore but improving!  She even finishes her radiotherapy on 19th too.  Made a change from chatting about prostrates!

Kip

xx

Kip Community Champion
Community Champion

Re: June 2018 Chemo Starters

Well done Reddi!   Glad you are feeling ok, hope you get home today, nothing like your own bed is there.

Oh Dear Sally - another CT scan, whats that for, radio?

Kip

x

Member

Re: June 2018 Chemo Starters

Hi ladies

Fingers crossed you get home tomorrow Reddi, nice you have decent hospital food but if you're anything like me, I could have eaten a scabby monkey after surgery I was that hungry.

Nearly a year after diagnosis I thought I was done with treatment. Seems like it's never ending for me. I have another CT scan Tuesday, that'll be my 3rd.