63455members
333941posts
cancel
Showing results for 
Search instead for 
Did you mean: 

June 2019 chemo starters

Member

Re: June 2019 chemo starters

Also Nicola don’t forget to drink lots of water xxxx


@Alvilajo wrote:

Hi Nicola, I don’t think I felt sick until day 4 when i stopped the 3 anti sickness tablets they give u. Then I went on the other ones. But we’re all different. I hope you feel a bit better soon. You might have a tough day followed by a better one, rest up and don’t over do things like I do. Headache could be just stress from the day. Take care hun vic xxx


 

Member

Re: June 2019 chemo starters

Hi Nicola, I don’t think I felt sick until day 4 when i stopped the 3 anti sickness tablets they give u. Then I went on the other ones. But we’re all different. I hope you feel a bit better soon. You might have a tough day followed by a better one, rest up and don’t over do things like I do. Headache could be just stress from the day. Take care hun vic xxx

Member

Re: June 2019 chemo starters

Glad to read the picc line went ok, another thing out of the way!

When I got home earlier felt ok now I feel terrible, stomach pains, headache and really sick i am assuming this is just the shock to the system? Did anyone else feel like this after their first treatment?

they have given me some anti sickness to start taking tomorrow but also some as a back up as and when I need them, feel like I’ve had lots of tablets today already but think I’m going to have try one and hope it makes the sickness pass. Xx

Member

Re: June 2019 chemo starters

Just had pic line fitted and it didn’t hurt but didn’t know it went into chest, glad I didn’t know to be honest. Hope you all ok today xxxx

Member

Re: June 2019 chemo starters


Everyone is different but I found fec ok, nausea but no sickness (take the anti sickness and if you still feel sick insist on something different) and fatigue were my main issues. Taste went a bit weird, but then it seems to on all chemos that I have had so far! You will be fine 😊 sorry your son is banished, it won’t be for long and you really don’t want an infection 

 

xx

@MrsIngle83 wrote:

Hi Ruby 

 

Thank you, I’m just on way to hospital now. How did you find it? Any major side effects you experienced? 

 

Just been to GP with my son who’s got tonsillitis and he’s said it’s best he isn’t around me so I’m currently feeling very sorry for myself as he’s gone to my mums for 5 days. 


 

Member

Re: June 2019 chemo starters

Thanks everyone for your comments and good luck Mrs Velo for tomorrow!

First one done and dusted I’m glad to say, the cold cap was the worst in the first 20 mins then think your head is that numb you can’t feel it but I will be taking a hot water bottle and blanket next time!

have a good day ladies xxx

Member

Re: June 2019 chemo starters

Thanks for the reminder to keep hydrated Shi.  I start twelve cycles of Paxil tomorrow.  

Shi Community Champion
Community Champion

Re: June 2019 chemo starters

Just keep the water flowing those starting today, it’s important to keep hydrated and if you are fec, the red one will turn your wee pink for a bit, don’t panic 😘😘 it’ll sound mad but that’s the first one off for you 👭👭you’ll settle into bit of a routine after first one out the way. Keep eye on temps and if you wee burns but no temp ring your units, it’ll be a uti and will need antibiotics, you can’t just relay on self medication during chemo ❤️❤️Keep safe 💕💕✨✨Shi xx

Member

Re: June 2019 chemo starters

Hi Ruby 

 

Thank you, I’m just on way to hospital now. How did you find it? Any major side effects you experienced? 

 

Just been to GP with my son who’s got tonsillitis and he’s said it’s best he isn’t around me so I’m currently feeling very sorry for myself as he’s gone to my mums for 5 days. 

Member

Re: June 2019 chemo starters

Hi Marie - hope all goes well today, I did FEC T in 2011 so if I can help within anything at all please do shout 😊 Ruby xx

Highlighted
Member

Re: June 2019 chemo starters

Hi, I start FEC-T chemo today. Opting to try the cold cap. I’ll have 6 cycles in total and then have surgery. 

Good luck for today Nicola x 

 

Marie x 

Member

Re: June 2019 chemo starters

All the best Nicola xxx 😘

Member

Re: June 2019 chemo starters


Best of luck for today Nic, it’s rarely as bad as you expect it to be and we are all here for each other xx
@nicolaJ wrote:

Good morning ladies,

hope you are all as well as you can be.

today I start the next stage of the journey, had two ops and now starting chemo today, feeling very anxious and not quite sure what to expect, going to try the cold cap and see how it goes. The way I see it is the sooner we start the sooner we finish!!

hope you all have a good day 

Nic xxxx


 

Member

Re: June 2019 chemo starters

Good morning ladies,

hope you are all as well as you can be.

today I start the next stage of the journey, had two ops and now starting chemo today, feeling very anxious and not quite sure what to expect, going to try the cold cap and see how it goes. The way I see it is the sooner we start the sooner we finish!!

hope you all have a good day 

Nic xxxx

Member

Re: June 2019 chemo starters

Morning ladies,

 

how are you all today?

 

my head feels like it is sunburnt/sore and I have had some thinning, but it’s not coming out in clumps yet like it did the first time. I have a hairdressers appointment tomorrow and I literally have no idea whether to go as I may not lose much hair or cancel as it might have all fallen out by next week! 

 

My Anadin extra seems to be working in my one woman war against Filgrastim. Might be worth remembering if any of you have any nasty side effects from your jabs, just make sure you check with your chemo teams as red blood cells need to be good if you take anything with aspirin in it apparently. 

 

May your hair loss be minimal and your side effects even less.

Ruby xxx

Kip Community Champion
Community Champion

Re: June 2019 chemo starters

Definitely get the fluconazole and make sure you get it every cycle and take it every time.. It stopped mine getting as bad as the first time. 

I've been reading some of you are getting to the tingly head and hair loss stage,  be brave girls...its a tough one but remember it's one step further down the line to a new head of hair.. Take care

Kip 

Member

Re: June 2019 chemo starters

Will do xx


@Shi wrote:

Alvilago, you’ve not got trust mouth starting have you? Please give your unit a quick call in the morning to see what they think. If it is please get fluconzole from them and not fobbed off with drops. Better to check with unit to keep safe ❤️Hope this helps 💕💕✨✨Shi xx


 

Shi Community Champion
Community Champion

Re: June 2019 chemo starters

Thrush mouth 🙄text gremlins out and about tonight 💕💕✨✨Shi xx

Shi Community Champion
Community Champion

Re: June 2019 chemo starters

Alvilago, you’ve not got trust mouth starting have you? Please give your unit a quick call in the morning to see what they think. If it is please get fluconzole from them and not fobbed off with drops. Better to check with unit to keep safe ❤️Hope this helps 💕💕✨✨Shi xx

Member

Re: June 2019 chemo starters

Evening all, hope you’ve had a good day. 

My scalps just started hurting like I’ve had my hair ripped out. Taken some paracetamol as so sore. It’s defiantly starting. I’ve never seen myself bald lol don’t know if to laugh or cry 🤣😥xxx

Member

Re: June 2019 chemo starters

Sorry you are in pain minimad, it’s the worst thing pain, although losing your hair isn’t great either!

 

i am fourth dose double whammy Friday too, such fun! 

 

It is is hard to know what to do sometimes, I despair of medical teams who can’t agree at times, so very frustrating!

 

Ruby xx

Member

Re: June 2019 chemo starters

Sorry, cannot help re sore mouth advice. 

 

Mini mad... Glad you mentioned it.. Yiu know how I said I had hair coming out more than usual and had some tears... Well yesterday in shower I had pubes coming out, now been to loo and knickers had pubes in. 

:0

Deffo in hair loss stage, cycle two on Thursday so two days off from that. 

Still gonna do cold cap, hopefully it means hair will just thin rather than fall out in clumps. 

Member

Re: June 2019 chemo starters

Two weeks since first chemo and hair coming out, not lots but more than normal, exhausted today but it is 28 degrees down here in Kent xx


@mini mad wrote:

Its real hard to know what to do when given conflicting advise...fingers crossed you can manage the injection with the new meds xx

ive had real bad bone pain in right shoulder and upper arm yesterday.  Taking paracetamol and seems bit easier today.  Ive got my picc line going in on thursday,  just hoping i can put my right arm in the correct position by then..

also seeing chemo dr tomorrow for review then 4th double dose whammy on friday..

how is everyone else doing today.???

oh and my hair is shedding more now n think i lost a few pubes in the shower last night 😳😳😳🤪

 


 

Member

Re: June 2019 chemo starters

Hi I’m beginning to think the sore mouth throat swollen lips is gonna be part of this now. Any suggestions other than mouthwash and lollies xxx

Member

Re: June 2019 chemo starters

I have a bit of temperature but less than 37 and feel my upper throat a bit swollen but not painful.I had some paracetamol  this morning andt help with the inflammation feeling.I eat and drink well but I thought was best not to commute to work today.

Called the chemo line to check about some uncomfy feeling around my PICC line but since it is not swollen or irritated they told me just to keep an eye since I have the dressing chsnged tomorrow.

How's everyone else's day going?

Big hugs

 

 

Member

Re: June 2019 chemo starters

Its real hard to know what to do when given conflicting advise...fingers crossed you can manage the injection with the new meds xx

ive had real bad bone pain in right shoulder and upper arm yesterday.  Taking paracetamol and seems bit easier today.  Ive got my picc line going in on thursday,  just hoping i can put my right arm in the correct position by then..

also seeing chemo dr tomorrow for review then 4th double dose whammy on friday..

how is everyone else doing today.???

oh and my hair is shedding more now n think i lost a few pubes in the shower last night 😳😳😳🤪

 

Member

Re: June 2019 chemo starters

Morning ladies,

 

i am am really struggling again with these blinking Filgrastim injections, chemo suite rang back and told me to go to the chemist and get migraleve to try -  migraleve was apparently withdrawn a couple of years ago! Pharmacist recommended an aspirin based product, rang oncology to check if I could take it, haematologist said no, oncologist said yes! I took it and it helps a little (I am able to semi function) but they want me to carry on with the injections. I have done the third one but I am dreading the next ones. I am hoping my somewhat robotic oncologist is actually human when I see him on Thursday!

 

how is everyone else doing? 

 

Ruby xx

Member

Re: June 2019 chemo starters

Hi Ruby,

 

was thinking of you last night.   Any more news on those dam filigrastim injections that you are reacting so badly too ??  xx

Member

Re: June 2019 chemo starters

Hi Ruby,

 

Glad you checked with them and hope it gets sorted soon. I feel a bit more run down today and had my first injection for the white cells boost so let's see how it goes.

 

Temperature is ok and appetite is ok so in a while I will wash myself since I am hoping I can pop to work tomorrow for few hours.

 

Big hugs to you all and hope your evenings are going well.

 

Felicidad

Member

Re: June 2019 chemo starters

Hello Ladies,

 

after much putting off on my part I have spoken to my chemo team, they are going to check with doctor and ring me back. The headaches are definitely worsening so if I can get them to agree a plan involving not having another injection tonight and maybe some bloods in the morning I will be a happy bunny!

 

I am also booked in with oncologist Thursday for an urgent review re the reactions I have had, the hearing issues and the Filgrastim. 

 

Ironically, when I did FEC T in 2011 apart from feeling nauseous and weak I sailed through the first few cycles, this time with Carboplatin/Paclitaxel my body seems determined to sample the whole smorgasbord off side effects!

 

on the positive side I have learnt today how to pasteurise whole eggs in my sous vide which means I can safely eat a runny (ish) yolk again without fear of salmonella and can also make hollandaise etc. Sometimes it’s the little things! 

 

hugs to you all,

 

Ruby xx

Member

Re: June 2019 chemo starters

I’m seeing oncologist Thursday so will have a chat xx


@rubythursday wrote:

Sounds sensible to stop taking them, hopefully there will be an alternative you can take?


 

Member

Re: June 2019 chemo starters

Hoping you spoke to your chemo team about your migraines Ruby ???   Xx

Member

Re: June 2019 chemo starters

Sounds sensible to stop taking them, hopefully there will be an alternative you can take?

Member

Re: June 2019 chemo starters

I’m stopping taking them as it’s the first warning on side effects c


@mini mad wrote:

Rotten  luck with the swollen lips Alvilajo,  hoping its just the start of you taking Omeprazole and will settle down.  Im not taking my acid meds everyday oly when i get that feeling.

 

Ruby,  those tummy jabs are really affecting you , im so sorry but see what your chemo team say.

lets us know...  take today as it comes ladies n keep fighting.

know what you mean about feeling down and seems a long road ahead for us all, so lets keep talking and where possible giving advice and tips.

BI HUGS TO ALL OF YOU FIGHTING THIS ....💖💖💖


 

Member

Re: June 2019 chemo starters

Rotten  luck with the swollen lips Alvilajo,  hoping its just the start of you taking Omeprazole and will settle down.  Im not taking my acid meds everyday oly when i get that feeling.

 

Ruby,  those tummy jabs are really affecting you , im so sorry but see what your chemo team say.

lets us know...  take today as it comes ladies n keep fighting.

know what you mean about feeling down and seems a long road ahead for us all, so lets keep talking and where possible giving advice and tips.

BI HUGS TO ALL OF YOU FIGHTING THIS ....💖💖💖

Member

Re: June 2019 chemo starters

It’s so daunting when you look ahead, I know I have surgery and injections after chemo finishes. I can’t even go there, I’m just taking each round as it comes. Today is 2/8. So a quarter down. 😊

I have ordered two wigs from amazon. 

Wig 1

Wig 2

and I’m collecting my nhs one on Wednesday. 🤞🏻 It’s ok, as they didn’t have it on try on day. 

Member

Re: June 2019 chemo starters

Hi Ruby & everyone 

hope the chemo team can sort your migraine. There seem to be so many variations of our drugs, combinations, how often we take them etc & every side effect under the sun. Yes I’m feeling daunted all the time & completely paranoid about ridiculous things making me poorly whilst lowered immune system etc. Seems a long road ahead. And a bad day physically can knock me mentally. You seem to have had more than your fair share of rubbish side effects. ☹️ Hope you feel better today. We can do it! Have a good day all of you 💕 Zoe x

Member

Re: June 2019 chemo starters

It’s a delicate balance Alvilajo with side effects! Maybe put a positive spin on the swollen lips? All the rage now plumped lips...:-) 

 

i am day day two of second set of Filgrastim injections and already have mild migraine, that I strongly suspect will go same way as last time if I keep taking them..going to be calling the chemo team when they open. Currently sat in bed with dark shades on looking like I dont know what!

 

Anyone else feeling a tad down about this whole chemo lark? It just seems so endless sometimes, I still have 15 more chemos to do, 20 more weeks in total...so blooming daunting. 

 

Have as good old a day as you can ladies.

 

Ruby xx

Member

Re: June 2019 chemo starters

Hi ya, woke up with swollen lips this morning. Looks like could be omeprazole looking at the side effects 🙄

Member

Re: June 2019 chemo starters

Hi Clarabella, 

that wig is actually really nice!! Go for it.

I got a wig from a wig shop using the voucher from the chemo ward - have you been provided with a voucher and details of wig shops that specialise in patients like us?

 

I used the cold cap  - washing hair x1 per week - but it is brushing out a fair bit - had some tears this morning as I really hoped the cold cap would work - it has - I go for round two this week - so still got hair - but its scary when it falls out more than I have been used to in recent washes - dont know if I am being paranoid but think i am feeling that sore scalp people say you get before you really lose it all.

 

So in prep - I dont want to wear my nice wig to the gym - so ordered a baseball cap and cheap wig to wear there - I really cannot see myself going out bald - link to Wig

No idea what this will look like - will take pics when I get it for you all.

 

Good night ladies 

Member

Re: June 2019 chemo starters

If you can ' rock it!! '..... then you should get it 😘😘😘😘

Member

Re: June 2019 chemo starters

Thank you for welcoming me ladies!

I called chemo nurse and ok to take the paracetamol so feeling better! Only 3 days to go until I go through it all again.

 

ref pink wig - this is my daughters latest suggestion! What do you think 😳

A82A1CC1-E081-4EB6-8F77-AE5B236AD81D.jpeg

 

Member

Re: June 2019 chemo starters

Definitely get the pink wig Clairabella, I got a pale pink one from amazon. It’s just for fun really! 

Member

Re: June 2019 chemo starters

Hi yeh I have some bands and like you wasn’t sick xxx

Member

Re: June 2019 chemo starters

Thank you for the invite Vicky, that's very kind and it would have been lovely, but YD and I are hoping to go and stay with ED in Oxford for a few days. I hope your tea party goes well, I'm sure it will Smiley Happy

Re picc line covers, you can buy waterproof ones from Boots for about £5.

Also, when you're having chemo I used to wear travel sickness bands whilst I was having it and for a few days afterwards and wasn't sick at all. I don't know if it was due to wearing the bands or just a coincidence, but it's worth a try  xx

Member

Re: June 2019 chemo starters

Hey Clairabella,

 

a big welcme to the group...  bet none of us ever expcted to find ourselves here but its a lovely group of ladies all with something to offer each other beit support,  advice ,  just to moan at and curse occasionally 😆😆

i also have started a headache today,  probably se from fridays treatments.

took temp , normal so have just taken 1 paracetamol and 1 ibuprofen.  This is the best combination for me when i get headaches.

see how yours go.. dnt forget to do temp before you take anything....sorry expect u already know that.    Lets all try to chill and relax...  big HUGS everyone xx💖💖

 

Member

Re: June 2019 chemo starters

I hope your headaches get better very soon Clairabella.  ❤️ 

Member

Re: June 2019 chemo starters

Welcome claireabella! I had the headaches from hell, if it’s been 2 days you probably need to speak to your chemo team.

 

pink wig? Why not! Go for it! :-) 

 

Glad you found us :-)

 

Ruby xx

Member

Re: June 2019 chemo starters

Hi ladies,

 

I'm so glad I came across this thread! I started chemo on 4th June and am now 18 days in 💪 but it’s been very hard. How are you all doing? I’ve braved the shave as my hair was 50% gone by Thursday this week and couldn’t stand seeing it fall out anymore. My kids now want me to get a bright pink wig. 

 

I was very very sick for first few days with dreadful insomnia agitation and indigestion. All settled down but now I’m left with the most awful constant headache which started 2 days ago - anyone else had the same? Am paranoid it’s something serious but hoping I can take pain relief??

 

Have a lovely Sunday ladies!

 

 

 

 

 

 

Member

Re: June 2019 chemo starters

Morning! 

Alijavo glad you are taking the tablets and feel nearly normal, that’s how chemo should be! 😊 

 

my profile picture is sideways and I have no idea how to turn it round! 😂 people never believe me when I tell them I work in an IT dept! Am leaving it sideways as that’s kind of how my life feels now 😬

 

Have a lovely day everyone 😊

Ruby xx