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June 2019 chemo starters

Member

Re: June 2019 chemo starters

I was just thinking the same Kip! I enquired about false eyelashes when I was having chemo and was told I wouldn't be able to wear them because they wouldn't stay on, the beautician was wrong!  You look lovely Chicken x

Kip Community Champion
Community Champion

Re: June 2019 chemo starters

Wow Chicken81 your lashes and brows are brilliant.. Wished I'd known about those lashes when I was going through chemo... Might still get some..

Thanks for sharing 

Kip

Member

Re: June 2019 chemo starters

I am booked into Look good feel good via Maggies charity next month. Feel as though now I'm fully in need of how to look like me. 

 

Here are the links. 

 

Lashes

https://lolaslashes.co.uk/

Lash link

I went for diamond, but sapphire would be more subtle. 

 

Brows 

https://thewomenlobby.com/products/eyebrow-ink-pen?variant=21296096870513

Brow pen link

I bought dark brown, so I think it's quite dark, so I'm careful in the use of it. Wish I'd ordered light brown now. 

 

Before and After for you

IMG_20190808_185452_564.jpg

 

 

Member

Re: June 2019 chemo starters

Hi everyone, 

Rosy and EnglishRose, hope you enjoyed your time away and festival you mentioned. 

EnglishRose I'm on some top meds for feeling sick, I get extra too. Had an oncologist meeting and she said EC is renowned for weight gain, but not to worry as my next drugs are not. 

Only to find now I'm double dose on Steroids and it's increased to more days, surely Steroids are weight gain tablets and not just the EC drug. But on bright side my lump has started to reduce and its progressing down. Mri booked after cycle 7 for full size confirmation.

 

Genetics testing was a blood test. Two months for results. Coukd massively impact on next steps in treatment and family so quite a scary test! 

 

Had last EC yesterday. In right arm as left one still not back to 100%, but EC is horrible to your viens so hoping they'll recover now it's done.

 

Camping in the lakes was great. Got up hallim fell, was hard but worth it. Fitness has took a hit after race for life. Took a while to recover energy's. 

 

Good news, for next camping trip I can swim in the waterfall. So as long as its not too cold I'm in! The lakes was soooooo hot πŸ”₯, hope the weather is on my side again for next trip. 

 

So I'm officially half way through chemo. 

I've now lost eye brows and lashes. 

Been using lolas lashes, which are magnetic lashes that stick to the magnetised eye liner, they're great. 

Been using eye brow pencil, but bought off a link from Instagram a brow pencil that has a special brush to fake the hairs, so they look more realistic. So I'll look up links n post if anyone fancies a look into it. 

 

I'm going to be tired and off grid for a few days as it's my post chemo days where I'm groggy. 

Wishing you all a nice weekend 

 

Member

Re: June 2019 chemo starters

Hi Ruby,

so how are things going with you right now ??

did you have tingly toes ?  Mentioned it to chemo dr yesterday,  didnt seem unduly concerned.

did you get any advice about it ?

i also have slight numb feeling in upper left eyelid and into cheek.  Have read this is possible se with paclitaxel and carboplatin.

typically i didnt have this when i saw dr yesterday 😳😳

mini mad xx πŸ’–πŸ’–

Member

Re: June 2019 chemo starters

Hi everyone, good week has arrived and cherished muchly. How are you all, hoping it’s your good week too. RubyThursday anti sickness meds didn’t really work in car but it’s gone now thankfully. Vic xxxx

Member

Re: June 2019 chemo starters


Not had that one yet, do your anti sickness meds help? Glad you are on the bounce now and will hopefully have some good day :-) x
@Alvilajo wrote:

Morning all, hope your all ok. Anyone noticed feeling sick whilst being passenger in a car, never before but this time it’s like I got car sickness, strange? I feel better today so hopefully I’ve got the next 11 days feeling normal xxxx


 

Member

Re: June 2019 chemo starters

Morning all, hope your all ok. Anyone noticed feeling sick whilst being passenger in a car, never before but this time it’s like I got car sickness, strange? I feel better today so hopefully I’ve got the next 11 days feeling normal xxxx

Member

Re: June 2019 chemo starters


Hi Englishrose, sounds like we are in a similar situation, I saw oncologist, he was great actually, putting me up to 75% next Wednesday then 100% the following week. Struggling a bit with this round actually, heartburn and shortness of breath quite bad and a bit of bone pain. Got sent to a and e yesterday morning for bloods and checks as was hurting when I was breathing in, all ok thankfully but three hours sat in a cubicle to be told as suspected just side effects from chemo!

 

it is very frustrating when you don’t know what’s going on, being a bit pushy is not a bad thing, this is our lives!

 

Ruby xx

@EnglishRose2019 wrote:

Omg Ruby. I felt the same way when I was told after pressing my oncologist that I had only been given 75% of EC last round when was expecting it to be increased to 100%!! I emailed my oncologist who is also away and he confirmed I’d be given 100% next time but I have requested a meeting too. I’m like you. If I’m going to do this blast me with it!! I know why they started off on the lower dosage and that was fine but he was supposed to meet me before round 3 and didn’t 😠. My approach is I’m in the dark here. Please just explain the implications of lower dosages on my long term prognosis. I know we all want the same outcome but I need to understand what the lowered dosages actually mean for me. He told me via email I’d definitely be on 100% Paclitaxel when I start that in September ...

Good luck and please let me know how you get on. If you want to send a pm do (although don’t ask me how you do that 😬).

 

And enjoy the festival. We had fun 2 weeks ago at PennFest which is our local one. Nice to be outside all day but remember to cover up from the sun!!!

πŸ€ πŸ€—πŸ’•


 

Shi Community Champion
Community Champion

Re: June 2019 chemo starters

Hi remember to book your look good feel better sessions with your local Macmillan πŸ’•πŸ’•βœ¨βœ¨Shi xx

Member

Re: June 2019 chemo starters

Omg Ruby. I felt the same way when I was told after pressing my oncologist that I had only been given 75% of EC last round when was expecting it to be increased to 100%!! I emailed my oncologist who is also away and he confirmed I’d be given 100% next time but I have requested a meeting too. I’m like you. If I’m going to do this blast me with it!! I know why they started off on the lower dosage and that was fine but he was supposed to meet me before round 3 and didn’t 😠. My approach is I’m in the dark here. Please just explain the implications of lower dosages on my long term prognosis. I know we all want the same outcome but I need to understand what the lowered dosages actually mean for me. He told me via email I’d definitely be on 100% Paclitaxel when I start that in September ...

Good luck and please let me know how you get on. If you want to send a pm do (although don’t ask me how you do that 😬).

 

And enjoy the festival. We had fun 2 weeks ago at PennFest which is our local one. Nice to be outside all day but remember to cover up from the sun!!!

πŸ€ πŸ€—πŸ’•

Member

Re: June 2019 chemo starters


Ditto - good to hear from you Chicken! I too am suffering a bit with nausea and acid, Ondansetron and omeprezole sort it within the hour. Struggling terribly with steroids and blood sugar, practice nurse has given me some extra meds for steroid days. No other grim side effects except sore and numb hands and feet. Off for emergency appointment with oncologist today as I made a complaint via pals as they failed to sort out putting me on full dose of nab paclitaxel despite repeated requests my oncologist completely ignored it and went on holiday 😑 if I am going to do chemo I want full dose of both chemos not just one, it can always be scaled down if needed if side effects too much but half the dose reads less benefit to me! I can feel a Paddington hard stare coming on!

 

hope you are all ok and enjoying life as much as possible, we are off to a local charity music festival tomorrow. Should be fun.

Ruby xx

@EnglishRose2019 wrote:

Hi chicken

It’s good to hear from you. That end of Y6 is such a hectic time and so pleased you were able to work your chemo around it to enjoy most of it. Your son would be so happy to have you there at the various events. 

 

We must be on a pretty similar timeframe as my last EC is on 12 Aug. I was given a drug Domperidone to help with the nausea. And after the first round when I took them cautiously, I now just chug 3 a day of those for 5/6 days so might be worth asking. Certainly meant that I have avoided eating and weight. 

 

Enjoy your time camping. It’s coming up to my good week so we are heading off on Monday for a few days.  Dog walks and visiting so historical sites near the south coast. Really looking forward to it. 

 

I hope everyone else on the forum is coping with whatever chemo (and life!) has been thrown at them this week. Stay strong, stay positive, keep fighting πŸ‘ŠπŸ»

πŸ’•πŸ™


 

Member

Re: June 2019 chemo starters

Hi chicken

It’s good to hear from you. That end of Y6 is such a hectic time and so pleased you were able to work your chemo around it to enjoy most of it. Your son would be so happy to have you there at the various events. 

 

We must be on a pretty similar timeframe as my last EC is on 12 Aug. I was given a drug Domperidone to help with the nausea. And after the first round when I took them cautiously, I now just chug 3 a day of those for 5/6 days so might be worth asking. Certainly meant that I have avoided eating and weight. 

 

Enjoy your time camping. It’s coming up to my good week so we are heading off on Monday for a few days.  Dog walks and visiting so historical sites near the south coast. Really looking forward to it. 

 

I hope everyone else on the forum is coping with whatever chemo (and life!) has been thrown at them this week. Stay strong, stay positive, keep fighting πŸ‘ŠπŸ»

πŸ’•πŸ™

Member

Re: June 2019 chemo starters

Hello ladies, been two wks since I lasted posted. 

Had a busy week before chemo round three, as it was dons birthday and last wk in primary school, so loads of celebrations to attend. 

Had chemo cycle three, suffered constipation this time, so back to senokot day before n two days after next round. (forgot this time n suffered)

Chemo without cold cap was much better, took til that evening to feel ill. 

A week recovery still and now I'm prepping to go camping. 

 

Re swimming n hot tubs, I was told no.

But in a few wks were camping on a site with a water fall and I'm thinking it'll be nice to go in, so I'm gonna ask next wk when I'm in for my final EC. 

Then I'm half way through chemo. My oncologist said next chemo will be different as it'll not be feeling sick anymore, but whole body aches n pains instead. 

 

Re weight, I've gained too about 10lb so my aim to to get that off in last x4 cycles as like I think it was Ruby, I eat to stop feeling sick on EC. But next lot maybe it'll not be like that.

 

Tomorrow I'm off for genetics testing. 

 

Hope noone lives in Yorkshire and have suffered from flash flooding 

Member

Re: June 2019 chemo starters

We didn’t know until we saw the trees blown down coming home. No phones then and newspapers were a few days behind lol


@EnglishRose2019 wrote:

Our back wall blew down in that hurricane!!!

and I want to go there. Have heard it is beautiful. I have a long wish list of places I’d like to go...wistful sigh ....😘


 

Member

Re: June 2019 chemo starters

Feeling bit sickly today, it’s like I can still feel the chemo meds going round my body and taste them, new symptoms each time it seems. I keep thinking get to Friday and it will feel better. Praying placlitaxel is nicer than ec ( it’s not gonna be is it lol)😘

Member

Re: June 2019 chemo starters

Our back wall blew down in that hurricane!!!

and I want to go there. Have heard it is beautiful. I have a long wish list of places I’d like to go...wistful sigh ....😘

Member

Re: June 2019 chemo starters

We went 1987 the first time, we were out there when England had the hurricane. Then went back 30 years later and it rained all week lol. 


@Zed51 wrote:

Alvilajo - Nerja is beautiful- went a few years ago and is on my list to revisit!! 


 

Member

Re: June 2019 chemo starters

I hope all goes well tomorrow Ruby. You’re nearly at countdown πŸŽ‰ 

I haven’t read those articles but I will do and thanks for bringing it up. Xx

Member

Re: June 2019 chemo starters

Hi ladies

Yes I was told to be really careful regarding swimming and to avoid public pools, hot tubs, jacuzzis etc. 

So I joined a private club for the summer  where they have an indoor and outdoor pool. I swim outdoors in the 3rd week of my cycle and this indoor class in my 2nd week won’t really involve β€˜swimming’ as it’s really a resistance class. When I move to my weekly chemo in September I don’t think I would risk even doing that. 

I am hyper vigilant about infection! Sanitiser is my new middle name. And don’t even think about giving me a hug this week 😳. I even stopped work as I work at a school, so please do not swim etc unless you feel it is absolutely safe for you to do so! But at the same time well-being and fun is important so paddle away Louise πŸ–πŸ€—πŸ˜˜πŸ˜˜πŸ˜˜

 

Member

Re: June 2019 chemo starters

Hi Zoe

 

I had asked about going swimming and was also told - No,  too big a risk of germs from the pool.

 

I also asked about hiring a hot tub - thinking it would be cleaned between hires and it would be our own clean water and just us in it.  But was again told - No, too risky.

 

Yesterday I went on a family day trip to the beach.  I threw caution to the wind and paddled in the murky looking sea with my grandchildren, right up to my knees - well you have to have some fun πŸ˜†

Member

Re: June 2019 chemo starters

Alvilajo - Nerja is beautiful- went a few years ago and is on my list to revisit!! 

Member

Re: June 2019 chemo starters

Hello,

 

Sorry to hear so many of you are having a rough time, these drugs are so powerful. Interesting to hear that the down days seem to be somewhat predictable, I try to make sure I am around people on mine, or to do something nice if I feel up to it.

 

on a slightly different note did anyone see the article about using common drugs to fight cancer in the daily mail today? I have known about this for a while as my husband is on on aspirin trial for see how well it prevents bowel cancer recurrence over five years, and I am already on metformin for diabetes which is one of the drugs they see benefits from - something about blocking the glucose pathways. Everyone is different but I am all for chucking everything at cancer, especially with older drugs with known effects.

 

off for poisoning tomorrow, am hoping for the full dose of Abraxane. Tomorrow I will be half way through!

 

Ruby xx

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Re: June 2019 chemo starters

Hi ladies. Think I’m a few days behind a couple of you so concentrating on remembering it is my down dip at the mo on day 6. Seem to have developed new SE of extreme clumsiness! Was already bad but now all over the place. Broke a dish already this morning 😱. Bad chemo brain. Feel very sluggish. 

Interesting you are going swim class EnglishRose? I’d love to swim but been told pool too germy?? What have u been told I’d be really interested to hear. Feel like my face puffing up like a tennis ball 🎾 (not helped by hair loss) so anything active that I could manage would be nice to know. Thanks everyone Zoe xxxxx. 

 

Member

Re: June 2019 chemo starters

How exciting!!! That is going to be something to look forward too. 

And I hope your headache has subsided a little. 

Take care Vic

Nicky πŸ’•

Member

Re: June 2019 chemo starters

Croatia Sounds lovely place for a wedding, my sons just proposed in nerja Spain to his girlfriend and I think they will get married out there. 


@EnglishRose2019 wrote:

Yeah. Headache is pretty awful. Tbh I take paracetamol and ibruprofen like mini suggested for 7 days of chemo week. So today is the first day of no meds 😊

I get where you are in your cycle so just be easy on yourself...We are just 2 days apart and that’s when I wrote my Debbie downer message...

 

And well done on sticking to your eating plan πŸ‘ŠπŸ»πŸ‘ŠπŸ»πŸ‘ŠπŸ»

 

I’m out the other side and have just come back from the gym. Just 30 mins on the bike today so not to over do it. Pilates tomorrow and I’m trying a new swim class on Thursday πŸ€”. 

Also been rearranging furniture and looking at holidays for August 2020 as my niece is getting married in Croatia!!! 

So you might notice I go from zero to overdoing it as soon as I feel normal again, and my husband then reminds me to take it easy 😬

I do blether at times. If you’ve reached the end of my blurb well done and sorry it was full of general rubbish about me πŸ˜πŸ’•


 

Member

Re: June 2019 chemo starters

Yes I moved onto the ibrufen today, the antihistamines which were suggested didn't work so won't bother with those again. Picked up around 3 o'clock and I'm still awake. Let's hope tomorrow brings a brighter day for us all xxx

Member

Re: June 2019 chemo starters

Yeah. Headache is pretty awful. Tbh I take paracetamol and ibruprofen like mini suggested for 7 days of chemo week. So today is the first day of no meds 😊

I get where you are in your cycle so just be easy on yourself...We are just 2 days apart and that’s when I wrote my Debbie downer message...

 

And well done on sticking to your eating plan πŸ‘ŠπŸ»πŸ‘ŠπŸ»πŸ‘ŠπŸ»

 

I’m out the other side and have just come back from the gym. Just 30 mins on the bike today so not to over do it. Pilates tomorrow and I’m trying a new swim class on Thursday πŸ€”. 

Also been rearranging furniture and looking at holidays for August 2020 as my niece is getting married in Croatia!!! 

So you might notice I go from zero to overdoing it as soon as I feel normal again, and my husband then reminds me to take it easy 😬

I do blether at times. If you’ve reached the end of my blurb well done and sorry it was full of general rubbish about me πŸ˜πŸ’•

Member

Re: June 2019 chemo starters

Hi Alvilajo,

sorry to read you're tired tday and headache is bad...  i know where you are coming from there,  previously had constant headache for 3 days.

spoke to dr about it n he recommended 2 paracetamol x 4 times a day and 1 ibuprofen x 3 times a day.  I tried this and after 24 hours my head was beginning to improve πŸ‘

took this for 3 days n headache disappeared.

keep your pecker up...

been feeling good for past 3 days.  Its amazing how different i feel after NOT having my chemo last friday. 8 days clear πŸ‘πŸ‘  back to the usual though this coming friday.

hope everyone is coping in their own way.  Mini mad xx πŸ’–πŸ’–

 

 

 

 

 

 

 

Highlighted
Member

Re: June 2019 chemo starters

Another lazy one today, so tired and can’t shift head ache. Diets on plan tho x How are u all feeling 😘 xx

Member

Re: June 2019 chemo starters

I don’t crave, or eat sweet stuff as a rule, I am type 2 diabetic so normally follow a moderate low carb diet. When I am well I do Keto and can get my hba1c below prediabetic levels, that seems much harder on chemo and the steroids are playing havoc with my blood sugars, making them super high to the point it can affect my vision!  Pizza is definitely not on my normal food list and I might have a dessert once a week at most.  I went cold turkey on sweet things a few years ago and now most things taste wayyyyyy too sweet for me.  I feel at my best on meat, fish, full fat dairy, above ground veggies and small amounts of fruit and some wine! Chemo definitely sees me eating more bread, pasta, rice and white things! I think I need to get a grip on myself!

Ruby xx


@mini mad wrote:

Hi lovely ladies,

 

sorry some of you are struggling somewhat with your weight...  its not easy when you fancy a biscuit to make you feel a little better  πŸͺπŸͺ🍩🍩

 

in February my body sugar level was bordering on becoming diabetic so over 2 months i changed what i ate n drank ( everything was less sugar/diabetic  biscuits n cake,  gluten free nibbles and only unsweetened soya milk.  I was 10 stone at the start but then lost a stone,  so down to 9 stone.

 

now ive lost another half a stone on chemo ( paclitaxel n Carboplatin ) dr said he will keep an eye on me 😳   This journey is proving harder than i thought... what with se n fatigue n the ' down days ' of which there have been a few  πŸ˜”πŸ˜”  but having 8 days without treatment has perked me up...back to normal weekly nxt friday.

wonder if i could have treatment every 2 weeks,  gives me a chance to ' pick myself up '  inbetween ??

enjoy this cooler weather everybody,  at least it makes sleeping easier.

BIG HUGS to you all.... mini mad xx πŸ’–πŸ’–

 

 

 

 


 

Member

Re: June 2019 chemo starters

Hi lovely ladies,

 

sorry some of you are struggling somewhat with your weight...  its not easy when you fancy a biscuit to make you feel a little better  πŸͺπŸͺ🍩🍩

 

in February my body sugar level was bordering on becoming diabetic so over 2 months i changed what i ate n drank ( everything was less sugar/diabetic  biscuits n cake,  gluten free nibbles and only unsweetened soya milk.  I was 10 stone at the start but then lost a stone,  so down to 9 stone.

 

now ive lost another half a stone on chemo ( paclitaxel n Carboplatin ) dr said he will keep an eye on me 😳   This journey is proving harder than i thought... what with se n fatigue n the ' down days ' of which there have been a few  πŸ˜”πŸ˜”  but having 8 days without treatment has perked me up...back to normal weekly nxt friday.

wonder if i could have treatment every 2 weeks,  gives me a chance to ' pick myself up '  inbetween ??

enjoy this cooler weather everybody,  at least it makes sleeping easier.

BIG HUGS to you all.... mini mad xx πŸ’–πŸ’–

 

 

 

 

Member

Re: June 2019 chemo starters

I had over night oats. Lunch will be omlette with feta cheese and ham with a few new pots, dinner shep pie. Feeling bit weak today so resting up after a little walk up road xxx

Member

Re: June 2019 chemo starters

Hi Ruby. Glad to see you back and at least you’ve been out enjoying yourself πŸ€—. I am feeling like a new person this morning. Full of the joys of life and not feeling rubbish so just making my to-do list 😬

I practised some yoga this morning with asanas aimed specifically at relieving constipation. If anyone is interested I can send the link but don’t want to bore you if yoga not your thing. 

And regarding eating, I’m pretty disciplined but if I want something sweet kallo chocolate rice cakes fill you up and give you your sweet tooth fix. Honestly they are yummy. I made everyone at work eat them and they turned to my way of thinking 😏

Now back to completing some tasks on my list ... πŸ˜œπŸ˜„πŸ’•

Member

Re: June 2019 chemo starters

Hello ladies, 

just checking in to say hi, feeling your pain re the constipation day five after chemo and no results for me so far...it is my own fault to be fair, normally load up on veggies for a few days and have had pizza and bbq food instead! Going for broke on veggies and prunes today :-)

 

weight gain js really common on chemo for breast cancer, I gained on fec as the nausea could only be relieved by eating, and I was bored and comfort ate! I have lost on carboplatin/paclitaxel but not significant amounts and I started very overweight to,begin with.  The steroids don’t help, they make me hungry, anxious and arsey! I get a weekly 8mg then three days worth every three weeks. It’s really hard to lose weight with everything else that is going on. Don’t be too hard on yourself. 

 

Hugs to you all, Ruby xx

Member

Re: June 2019 chemo starters

Gotta love a bit of honesty πŸ˜‚πŸ‘ŠπŸ»

Member

Re: June 2019 chemo starters

I only take them for four days, it’s my will power that lets me down lol xx


@mini mad wrote:

Re weight gain 😳😳😳

i'm not gaining weight , but losing it even though my appetite is normal πŸ€·β€β™€οΈπŸ€·β€β™€οΈ

Thinks maybe you lovely ladies must be on more steroid than me.

cut back on sugary food n drink,its the only way.

good luck .. mini mad xx πŸ’–πŸ’–


 

Member

Re: June 2019 chemo starters

Re weight gain 😳😳😳

i'm not gaining weight , but losing it even though my appetite is normal πŸ€·β€β™€οΈπŸ€·β€β™€οΈ

Thinks maybe you lovely ladies must be on more steroid than me.

cut back on sugary food n drink,its the only way.

good luck .. mini mad xx πŸ’–πŸ’–

Shi Community Champion
Community Champion

Re: June 2019 chemo starters

πŸ‘πŸ’ͺπŸ‘πŸ’ͺwell done zed and English Rose πŸ‘πŸ‘πŸ‘πŸ‘on the πŸ’© πŸ˜πŸ˜πŸ‘πŸ‘πŸ˜πŸ˜πŸ˜think I stuck on I’m so excited by the pointer sisters and had a πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ’ƒπŸ»πŸ’ƒπŸ»After managing a πŸ’© from botty back up during chemo, πŸ‘πŸ‘πŸ‘ everything. Minimad must be a Norfolk thing the bum tips 😁our meesh on oct17 thread had us bending over and backing up into a mirror to stick our pile creams on πŸ˜‚πŸ€£πŸ˜‚πŸ€£πŸ˜‚πŸ€£ keep πŸ˜πŸ˜πŸ‘­πŸ‘­πŸ˜πŸ˜πŸ˜πŸ’•πŸ’•βœ¨βœ¨Shi xx

Member

Re: June 2019 chemo starters

I’m just gutted I’ve let it go again as had lost 3 1/2 stone, but done it before can but try again xxx


@EnglishRose2019 wrote:

🀣🀣🀣if it helps I have no idea how to start a new thread so I always just reply whether or not it’s to the correct person or not!😬

 

Thanks for your support. We do go through a lot!!! I’m feeling a little better tonight 😌 and just poured myself a tonic water to celebrate. 

 

8F2CC650-17BB-42DC-95C0-9CC8D60FE567.jpegCheers!

 

You are doing the right thing and planning your meals to try and cut down on the sugary stuff Vic. It doesn’t matter how many times anyone else tells you, it’s only when you are able to take control that it’ll work. So well doneπŸ‘ŠπŸ»πŸ‘ŠπŸ»πŸ‘ŠπŸ» Very happy to support you in any way possible. Losing weight is hard and harder still when you’re not feeling great and pumped full of steroids... 

Happy Saturday evening lovely ladies

Nicky😘😘😘


 

Member

Re: June 2019 chemo starters

🀣🀣🀣if it helps I have no idea how to start a new thread so I always just reply whether or not it’s to the correct person or not!😬

 

Thanks for your support. We do go through a lot!!! I’m feeling a little better tonight 😌 and just poured myself a tonic water to celebrate. 

 

8F2CC650-17BB-42DC-95C0-9CC8D60FE567.jpegCheers!

 

You are doing the right thing and planning your meals to try and cut down on the sugary stuff Vic. It doesn’t matter how many times anyone else tells you, it’s only when you are able to take control that it’ll work. So well doneπŸ‘ŠπŸ»πŸ‘ŠπŸ»πŸ‘ŠπŸ» Very happy to support you in any way possible. Losing weight is hard and harder still when you’re not feeling great and pumped full of steroids... 

Happy Saturday evening lovely ladies

Nicky😘😘😘

Member

Re: June 2019 chemo starters

Now both reply’s come up at once, oh well something extra to read If your bored πŸ™„πŸ™„

Member

Re: June 2019 chemo starters

Not sure where my reply went so will start again πŸ™„

We know how you feel, being down is the worst. Us girls certainly do go through it and it is pants at times. I’m starting my slimming world tomoz from home as need to get a bit of control back in my life and not much fits me lol. I could blame it on chemo but think the ice cream, chocolate, crisps etc not helped. I’ve had a lazy day done nothing except for a food plan for next three days. I want next weekend to come round quick as I’ll feel nearly normal again then.

vic xxxx


@EnglishRose2019 wrote:

That’s so good to hear you managed the loop. Well done πŸ‘πŸ‘πŸ‘. We should applaud our achievements even if sometimes it’s just managing to get out of bed and onto the sofa! Not sure how you managed in the heat. My husband and his family are from/in Nottingham so he will be proud of you Zed51. 

 

Suffering terrible fatigue today but expecting it. And have struggled with positivity this round. Think there’s been a lot going on privately for me perhaps. And I know everyone means well, but sometimes folk just need to realise that being diagnosed and the treatment to recover from BC is TOUGH mentally and physically, despite the large numbers diagnosed every day. And sometimes I’m not going to be jolly about it ...

 

Sorry if I’m being a Debbie Downer todayπŸ˜”... My glass is usually always half-fullπŸ€ͺ...I just know you ladies can understand how I’m feeling so I can be honest!

 

Talking of honesty I had to rush to the loo whilst watching ❀️🏝 last night. So was either that or the 45ml of lactulose and sprinkle of flax at dinner that pushed me over the edge... Relief all round...πŸ’«πŸ˜˜


 

Member

Re: June 2019 chemo starters

I know how u feel English rose, had few tears this morning. Ended up lazying around and didn’t go out as planned. Need to get the first 9 days out the way to feel a bit normal again. It is a big ordeal coping with bc and harder when mood low, I’m starting slimming world tomoz at home as my weights getting me down as well and sadly it’s only me who can do something about it. It really is not fair sometimes what us girls have to go through. Sending you a big hug 😘xxx


@EnglishRose2019 wrote:

That’s so good to hear you managed the loop. Well done πŸ‘πŸ‘πŸ‘. We should applaud our achievements even if sometimes it’s just managing to get out of bed and onto the sofa! Not sure how you managed in the heat. My husband and his family are from/in Nottingham so he will be proud of you Zed51. 

 

Suffering terrible fatigue today but expecting it. And have struggled with positivity this round. Think there’s been a lot going on privately for me perhaps. And I know everyone means well, but sometimes folk just need to realise that being diagnosed and the treatment to recover from BC is TOUGH mentally and physically, despite the large numbers diagnosed every day. And sometimes I’m not going to be jolly about it ...

 

Sorry if I’m being a Debbie Downer todayπŸ˜”... My glass is usually always half-fullπŸ€ͺ...I just know you ladies can understand how I’m feeling so I can be honest!

 

Talking of honesty I had to rush to the loo whilst watching ❀️🏝 last night. So was either that or the 45ml of lactulose and sprinkle of flax at dinner that pushed me over the edge... Relief all round...πŸ’«πŸ˜˜


 

Member

Re: June 2019 chemo starters

That’s so good to hear you managed the loop. Well done πŸ‘πŸ‘πŸ‘. We should applaud our achievements even if sometimes it’s just managing to get out of bed and onto the sofa! Not sure how you managed in the heat. My husband and his family are from/in Nottingham so he will be proud of you Zed51. 

 

Suffering terrible fatigue today but expecting it. And have struggled with positivity this round. Think there’s been a lot going on privately for me perhaps. And I know everyone means well, but sometimes folk just need to realise that being diagnosed and the treatment to recover from BC is TOUGH mentally and physically, despite the large numbers diagnosed every day. And sometimes I’m not going to be jolly about it ...

 

Sorry if I’m being a Debbie Downer todayπŸ˜”... My glass is usually always half-fullπŸ€ͺ...I just know you ladies can understand how I’m feeling so I can be honest!

 

Talking of honesty I had to rush to the loo whilst watching ❀️🏝 last night. So was either that or the 45ml of lactulose and sprinkle of flax at dinner that pushed me over the edge... Relief all round...πŸ’«πŸ˜˜

Member

Re: June 2019 chemo starters

Good for you, enjoy. I’m having a lazy day today. Xxxx


@Zed51 wrote:

Hi. Re hair: think am increasing my fetching bald patch after 3rd FEC. Still have lashes & brows 🀞 

re constipation: dreading this again, have meds lined up, hopefully can avert it being as bad as last 2 times 

re: proud of myself- went to @cancer5kYourWay in Nottingham today. Walked it only one loop so 2.5k but it was only 2 days after chemo! Met some lovely people. 

Now on sofa planning a few days at seaside in my next good week. Happy weekend everyone x


 

Member

Re: June 2019 chemo starters

Hi. Re hair: think am increasing my fetching bald patch after 3rd FEC. Still have lashes & brows 🀞 

re constipation: dreading this again, have meds lined up, hopefully can avert it being as bad as last 2 times 

re: proud of myself- went to @cancer5kYourWay in Nottingham today. Walked it only one loop so 2.5k but it was only 2 days after chemo! Met some lovely people. 

Now on sofa planning a few days at seaside in my next good week. Happy weekend everyone x

Member

Re: June 2019 chemo starters

Thanks BOD. Think I must just have a cast iron constitution 😳😩πŸ€ͺ

Member

Re: June 2019 chemo starters

Prunes seem to work for me x

Member

Re: June 2019 chemo starters

P/m you xx


@mini mad wrote:

Dont know ???   Maybe its the type of bc and the stage/grade?? I was Triple Negative grade 3.

i also have Carboplatin every 3 week...    yes we had storms last night.  Where in Kent are you ?

i have family in Kent.  xx