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June 2019 chemo starters

Member

Re: June 2019 chemo starters

Hello All,

 

I know minimad has already shared her experience of Paclitaxel, I thought I would add mine to the mix as well! As most of you know I had a severe allergic reaction to Paclitaxel on my second session, this is a rare thing although minor reactions (flushing, feeling tingly) seem quite common and easily sorted. 

 

After three weeks i was I was changed to Nab Paclitaxel, which is still the same drug but delivered not in solvent base but a human albumin base. I have been fine with this.

 

side effects? Most of my side effects seem to be after I have had the Carboplatin (the other half of my combo delivered 3 weekly, the paclitaxel is weekly) for the first time this week I have had some bone pain, I haven’t needed anything stronger than paracetamol to manage it so far.  My feet are tingly and sore for a few days, this could be either drug tbh. I do have some numbness in hands and feet, grade one so far and manageable.

 

 I am giving one dose of steroids with the paclitaxel and then no others (so only one night of eating the fridge contents instead of three) and one anti sickness on the day then no more prescribed or needed. I have no nausea of paclitaxel alone nor acid indigestion and although I would say I have less of an appetite can eat and drink normally. I do however seem to have developed a taste for really spicy foods and now have an unhealthy relationship with a large bottle of sriracha sauce!

 

overall I have so far found paclitaxel to be the easier of the two chemos I am on, I have had nine so far ( a few at reduced dose) and eight more to go, I do expect the side effects to worsen as it builds up in my body. It’s what I experienced before and seems to be common.

 

oh, one more thing I still have most of my hair. I have had some thinning and that could get worse or come out completely but I am managing quite well with an expert combover and a large bottle of (see upside down photo!) hairspray! 

67D29113-4DE7-42AE-9417-A42D73FDEAC5.jpegI am still going out a couple of times a week for lunch or dinner or to ogle some posh garden somewhere  an managed very well with a night away this week, off to the races this week and then to see Years and Years if I am well enough following today’s chemo :-) 

 

Hope that helps, obviously we are all different but not everyone has a horror story to tell!

 

Ruby xx

Member

Re: June 2019 chemo starters

Paclitaxel isnt too bad.

i've had most of the side effects but not all together.  Worst for me where the headaches...  theni just kinda waited to see what each day would bring....  

i did have a reaction on my second dose of Paclitaxel...  horrendous lower back spasms but again not everybody gets this.

with regards to how long a session takes, Paclitaxel is an hour session but   for me it can be anything between 4-5 1/2 hrs.  Sounds a long time but i have 5 pre meds before it all starts plus they are always short staffed n bcoz i had a reaction,  the first half an hour is at a slower rate,  then its back to usual speed.

hope this doesnt sound to daunting...  we're all different with our reactions to these god awful drugs 👿     Thinking of you all ..  mini mad xx 💖💖

Member

Re: June 2019 chemo starters

I contacted that “someone like me” and they have matched me with a lady who’s had more or less the same treatment as me but three years on, she’s calling me Friday for a chat, will let you know how it goes xx

Member

Re: June 2019 chemo starters

I start that in three weeks, how’s it going and how long does it take xxx


@mini mad wrote:

I am currently on Paclitaxel..   any help/advise just ask.

good luck,  its not too bad .   Mini mad xx 💖💖


 

Member

Re: June 2019 chemo starters

I am currently on Paclitaxel..   any help/advise just ask.

good luck,  its not too bad .   Mini mad xx 💖💖

Member

Re: June 2019 chemo starters

Hi

 

I switch to paclitaxel for the next 12 weeks and am really nervous about having to deal with a whole new set offside effects.

 

EC has been reasonably good to me. Been on Emend and Ondanestron for nausea as well as Dexamethasone steroids. As a result the nausea has been manageable, day five seemed to be my worst with what I can best describe as gland pain in the throat, my oncologist shout it might be a reaction to the GCSF (the white cell injection thingy). 

 

The thing is I got used to this over the past 8-9 weeks and now find the fear of the unknown rearing it's ugly head again!

 


@Zed51 wrote:

Hi ladies. Guess I’m halfway through chemo as at end of round 3 of 6. Had a lovely few days away in Yorkshire with our newly acquired little campervan which was fab. Now back to the prospect of Herceptin on Thursday which means waiting 6 hours on ward afterwards to see if I have a reaction, then back on Friday for docetaxel (T). Feel ridiculously worried about it being new stuff after coping with FEC. Like starting all over again. Trying to concentrate on nice stuff tomorrow & Wednesday beforehand 😨


 

 

 

Member

Re: June 2019 chemo starters

Hi

 

I did my Look Good Feel Better at my local Macmillan centre - I would check out lookgoodfeelbetter.co.uk to look for whether they do sessions near you.

Member

Re: June 2019 chemo starters

Hi chicken, Zed, Alviego and all,  Your treatment won’t be too bad ( I hope)

Ive just had my 3rd cycle trastuzamab, pertuzamab and docetaxol which I have been on since the start of my treatment. I didn’t have EC . My chemo is Carboplatin. The targeted  drugs don’t seem to given me any horrendous side effect. Docetaxal seem to make me feel very nauseous and sick.

I-have been on Ondasetron but on my 2nd cycle I felt nauseous for 10 days. I told my Oncologist who prescribed Emend ( tells your brain not to feel sick lol) for my 3rd cycle yesterday. It’s expensive so they don’t automatically prescribe it. I still take Ondasetron as well as that works on your tummy I think. So far I don’t feel too bad.

 I also take steroids that cause constipation. Other drugs give me the trots. I do try to manage the effects with with diet, not always successfully so then the pills. If you get bad diarrhoea my chemo nurse advised drinking lucozade sports drink to replace the electrodes immediately after an episode. It seemed to work with me. Stopped the I’ll feeling very quickly.

When I started the treatment I was told that they drip the drugs slowly so they can pick up on any adverse  reactions and sort it. You have a long break before the docetaxol so they can determine which drugs you react too. I dad my treatment over 2 days to start but Iwas still therefor nearly 7 hours. But if you seem okay they will let you leave earlier as long as you have someone with you just in case.

Also I feel very lazy at times but if possible I try to go for a walk. It definitely makes me feel better for a while and then I have a better rest ( don’t feel soooo rotten just pleasantly weary. 

Anyway Good luck with your new regime. I hope it goes as well as mine but just remember all these Nasty poisons are necessary to get rid of the nasty invaders

Best wishes all, Bod xx

Member

Re: June 2019 chemo starters

How do they work if you have no lashes as looking at the video they stick to your own lashes xx


@Alvilajo wrote:

Wow they look fab xx


@Chicken81 wrote:

I am booked into Look good feel good via Maggies charity next month. Feel as though now I'm fully in need of how to look like me. 

 

Here are the links. 

 

Lashes

https://lolaslashes.co.uk/

Lash link

I went for diamond, but sapphire would be more subtle. 

 

Brows 

https://thewomenlobby.com/products/eyebrow-ink-pen?variant=21296096870513

Brow pen link

I bought dark brown, so I think it's quite dark, so I'm careful in the use of it. Wish I'd ordered light brown now. 

 

Before and After for you

IMG_20190808_185452_564.jpg

 

 


 


 

Member

Re: June 2019 chemo starters

Hi zed, I'm the same. 

Finished EC and next four will be doxetacel, trazumpabab (I think it's herceptin) and perzumbab.

Totally incorrect spellings, but three new drugs. 

Three days of steriods too, starting the day before, plus double the dose I was on for EC. 

I was told the first chemo of this type I'll be in all day too, as they give each one separate to see for side effects. 

 

Then if all goes well next time the perz and trannz will be together and dox after as that's the most likely to give you side effects. 

 

Like you it's a worry as I've got used to the EC routine. It's like starting chemo all over. 

 

At least my viens won't be getting hammered I'm told EC impacts on the viens, whereas these drugs don't. 

 

Hope the horrible mouth taste goes too. 

 

Ruby I'm glad to hear weight gain is less on these drugs. 

But my face is filling up, like the steriods pump it up each time! 

I need a deflate! 

Member

Re: June 2019 chemo starters

Thanks for your kind & helpful words Ruby. Xxx

loving the campervan. Ours is a newer T4 (still 20 years old ) but still got character & my husband, spaniel & I loved it. Kids too old / too cool to come with us! Looking forward to planning another spontaneous few days when we can next. Zx

Member

Re: June 2019 chemo starters


I know it’s hard but try not to worry, some people find the taxols much easier than fec or ec. I found doceta xol  different to FEC, no nausea for a start, and I stopped piling on weight! I did get very tired towards the end but I think that would happen whatever.  Try and keep an open mind?

 

we have a campervan too, she’s a 1978 vw campervan called Ruby..she stole my nickname!

 

Ruby (the human one!) xx

 

 

@Zed51 wrote:

Hi ladies. Guess I’m halfway through chemo as at end of round 3 of 6. Had a lovely few days away in Yorkshire with our newly acquired little campervan which was fab. Now back to the prospect of Herceptin on Thursday which means waiting 6 hours on ward afterwards to see if I have a reaction, then back on Friday for docetaxel (T). Feel ridiculously worried about it being new stuff after coping with FEC. Like starting all over again. Trying to concentrate on nice stuff tomorrow & Wednesday beforehand 😨


 

Member

Re: June 2019 chemo starters

Hi ladies. Guess I’m halfway through chemo as at end of round 3 of 6. Had a lovely few days away in Yorkshire with our newly acquired little campervan which was fab. Now back to the prospect of Herceptin on Thursday which means waiting 6 hours on ward afterwards to see if I have a reaction, then back on Friday for docetaxel (T). Feel ridiculously worried about it being new stuff after coping with FEC. Like starting all over again. Trying to concentrate on nice stuff tomorrow & Wednesday beforehand 😨

Member

Re: June 2019 chemo starters

Yes she gave me them this time as they run out of others, although I’ve not felt sick really 


@mini mad wrote:

Hi Alvilajo and Ruby ,

have either of you or any other followers on this thread taken Ondansetron for nausea/vomiting ?

Domperidone pretty useless for me..

awfully sick at 3.30 am this morning and felt nauseaous  since then 🤢🤢

mini mad xx 💖💖


 

Member

Re: June 2019 chemo starters

Thanks Ruby..  had my chemo last friday... think ive only got 2 more...gonna check when i go for my next one this friday..

dont know what happens after my final one 🤷‍♀️🤷‍♀️

Took ondansetron at 4.15,  feel bit easier already 👍👍

mini mad xx

Member

Re: June 2019 chemo starters

Hi Minimad, yes I have! ondenasetron is my anti nausea drug of choice! My husband found domperidone useless as well. When did you have your last chemo? Being sick is horrible, hope it gets resolved soon xx


@mini mad wrote:

Hi Alvilajo and Ruby ,

have either of you or any other followers on this thread taken Ondansetron for nausea/vomiting ?

Domperidone pretty useless for me..

awfully sick at 3.30 am this morning and felt nauseaous  since then 🤢🤢

mini mad xx 💖💖


 

Member

Re: June 2019 chemo starters

Hi Alvilajo and Ruby ,

have either of you or any other followers on this thread taken Ondansetron for nausea/vomiting ?

Domperidone pretty useless for me..

awfully sick at 3.30 am this morning and felt nauseaous  since then 🤢🤢

mini mad xx 💖💖

Member

Re: June 2019 chemo starters

Thank you doesn't look like there is one near me, nearest London.


@Chicken81 wrote:

https://www.maggiescentres.org/how-maggies-can-help/help-available/practical-support/look-good-feel-...

 

Link
Here is the link to the website. 

You find your local centre and call up and book. 

 

That's it. 

 

Hope you have a centre close by. 

 

@Alvilajo wrote:

How do you book onto the maggies day?

hope u feel better soon ruby, I start placlitaxel in 4 weeks, bit nervous about it and the new side effects it may bring. Do you still have the injections on it?

enjoy your night away xx


 


 

Member

Re: June 2019 chemo starters


https://www.maggiescentres.org/how-maggies-can-help/help-available/practical-support/look-good-feel-...

 

Link
Here is the link to the website. 

You find your local centre and call up and book. 

 

That's it. 

 

Hope you have a centre close by. 

 

@Alvilajo wrote:

How do you book onto the maggies day?

hope u feel better soon ruby, I start placlitaxel in 4 weeks, bit nervous about it and the new side effects it may bring. Do you still have the injections on it?

enjoy your night away xx


 

Member

Re: June 2019 chemo starters

Absolutely Ruby.. BIG HUGS   Xx

Member

Re: June 2019 chemo starters


Hi Minimad, yes I have numb and tingling toes and fingers, feet sometimes feel like I have been walking on nettles! Unpleasant but not agony! I am using udder cream with urea. It’s helpful.

 

I had a severe allergic reaction to paclitaxel, Nab paclitaxel is nano paclitaxel but in a human albumin base rather than solvent. Bone pain in back is quite

grim today but painkillers helping. I have just ordered a stool to perch on in the kitchen as have noticed feet much worse when I am standing for a while! Where there is a will there’s a way right? 😊

 

Ruby xx

@mini mad wrote:

Hi Ruby,

sorry to read its been a bit grim for you recently.

i posted to you a few days back, perhaps its disappeared also.

yes i also have bad bone/muscle pain especially in my knees 😖😖

you mentioned your feet...  did you get tingling in your toes ??

 

see you are now on 75% nab paclitaxel...  is this different to just paclitaxel ??

hoping you are coping and everybody else out there this weekend..  mini mad xx 💖💖


 

Member

Re: June 2019 chemo starters

Hi Daisydi

I am so pleased to have read your post - I have my appointment with oncology on Monday and expect that I will be FEC-T as triple negative.  I so want to try and keep my hair (thick and coarse as it is) so have had it cut quite short.  Well done for doing so well with yours.  xx

 

Member

Re: June 2019 chemo starters

Hi Ruby,

sorry to read its been a bit grim for you recently.

i posted to you a few days back, perhaps its disappeared also.

yes i also have bad bone/muscle pain especially in my knees 😖😖

you mentioned your feet...  did you get tingling in your toes ??

 

see you are now on 75% nab paclitaxel...  is this different to just paclitaxel ??

hoping you are coping and everybody else out there this weekend..  mini mad xx 💖💖

Member

Re: June 2019 chemo starters

How do you book onto the maggies day?

hope u feel better soon ruby, I start placlitaxel in 4 weeks, bit nervous about it and the new side effects it may bring. Do you still have the injections on it?

enjoy your night away xx

Member

Re: June 2019 chemo starters

Hello everyone!

 

loving the brow and lashes, looking fabulous!

 

i posted a couple of days ago but it’s vanished! I had a grim few days at the start of the week, weak as a kitten and lots of bone pain. My liver is creaking (not wine related, I did check!) I am now on 75% nab paclitaxel and very tired and I have hand foot syndrome, hot, burning feet, hoping it will ease soon! I am keeping a close eye on it.

 

have booked a night away Sunday and a nice restaurant, got to make the most of any break you get.

 

hope you are all as well as you can be xx

Member

Re: June 2019 chemo starters

Wow they look fab xx


@Chicken81 wrote:

I am booked into Look good feel good via Maggies charity next month. Feel as though now I'm fully in need of how to look like me. 

 

Here are the links. 

 

Lashes

https://lolaslashes.co.uk/

Lash link

I went for diamond, but sapphire would be more subtle. 

 

Brows 

https://thewomenlobby.com/products/eyebrow-ink-pen?variant=21296096870513

Brow pen link

I bought dark brown, so I think it's quite dark, so I'm careful in the use of it. Wish I'd ordered light brown now. 

 

Before and After for you

IMG_20190808_185452_564.jpg

 

 


 

Member

Re: June 2019 chemo starters

glad to be of help - the lashes are a uk based company - I ordered Tues and they came Thurs. I paid about £29 for them -but they are worth it for the amount of uses I will get and next time I wont need the whole start pack and just buy the actual lashes for £15 - which is not much more than the glue versions I previously have bought from Asda and Boots.

The eye brow pen is a UK company but they ship their items from China - so the pen took about 8 days to come.

 

Im red faced now from the steroids and feel tired and not sickly as yet - so last EC seems so far so good. Ive took Senokot for two days and had bowel movement like normal - never going to have that trouble again as that was not good - Senokot for a few days before and after really helps, Im told it is the anti sickness that makes you constipated.

 

Member

Re: June 2019 chemo starters

You look fantastic Chicken! You must be really pleased 🤗. Thank you for the links. Atm I still have eyebrows and eyelashes but will save that link as my time will come...

 

So pleased things are progressing ok with your chemo. I had a mastectomy prior to my chemo so happy to offer advice to anyone if they have yet to have their op when the time comes. Hope chemo goes ok today. 

 

Have enjoyed a lovely break and head back today to get my bloods done for my last EC on Monday. Not looking forward to it really 😬 but will then be half way there too 🎉🎉🎉

 

I’ll check with my oncologist regarding genetic testing as my mum had Fallopian tube cancer. I’m pretty sure my surgeon told me my cancer wasn’t a genetic cancer. However it doesn’t mean I’m not a carrier I suppose. 

 

I hope everyone one of you lovely ladies is doing okay and sending you all positive vibes 🙏✨💖

Member

Re: June 2019 chemo starters

I was just thinking the same Kip! I enquired about false eyelashes when I was having chemo and was told I wouldn't be able to wear them because they wouldn't stay on, the beautician was wrong!  You look lovely Chicken x

Kip Community Champion
Community Champion

Re: June 2019 chemo starters

Wow Chicken81 your lashes and brows are brilliant.. Wished I'd known about those lashes when I was going through chemo... Might still get some..

Thanks for sharing 

Kip

Member

Re: June 2019 chemo starters

I am booked into Look good feel good via Maggies charity next month. Feel as though now I'm fully in need of how to look like me. 

 

Here are the links. 

 

Lashes

https://lolaslashes.co.uk/

Lash link

I went for diamond, but sapphire would be more subtle. 

 

Brows 

https://thewomenlobby.com/products/eyebrow-ink-pen?variant=21296096870513

Brow pen link

I bought dark brown, so I think it's quite dark, so I'm careful in the use of it. Wish I'd ordered light brown now. 

 

Before and After for you

IMG_20190808_185452_564.jpg

 

 

Highlighted
Member

Re: June 2019 chemo starters

Hi everyone, 

Rosy and EnglishRose, hope you enjoyed your time away and festival you mentioned. 

EnglishRose I'm on some top meds for feeling sick, I get extra too. Had an oncologist meeting and she said EC is renowned for weight gain, but not to worry as my next drugs are not. 

Only to find now I'm double dose on Steroids and it's increased to more days, surely Steroids are weight gain tablets and not just the EC drug. But on bright side my lump has started to reduce and its progressing down. Mri booked after cycle 7 for full size confirmation.

 

Genetics testing was a blood test. Two months for results. Coukd massively impact on next steps in treatment and family so quite a scary test! 

 

Had last EC yesterday. In right arm as left one still not back to 100%, but EC is horrible to your viens so hoping they'll recover now it's done.

 

Camping in the lakes was great. Got up hallim fell, was hard but worth it. Fitness has took a hit after race for life. Took a while to recover energy's. 

 

Good news, for next camping trip I can swim in the waterfall. So as long as its not too cold I'm in! The lakes was soooooo hot 🔥, hope the weather is on my side again for next trip. 

 

So I'm officially half way through chemo. 

I've now lost eye brows and lashes. 

Been using lolas lashes, which are magnetic lashes that stick to the magnetised eye liner, they're great. 

Been using eye brow pencil, but bought off a link from Instagram a brow pencil that has a special brush to fake the hairs, so they look more realistic. So I'll look up links n post if anyone fancies a look into it. 

 

I'm going to be tired and off grid for a few days as it's my post chemo days where I'm groggy. 

Wishing you all a nice weekend 

 

Member

Re: June 2019 chemo starters

Hi Ruby,

so how are things going with you right now ??

did you have tingly toes ?  Mentioned it to chemo dr yesterday,  didnt seem unduly concerned.

did you get any advice about it ?

i also have slight numb feeling in upper left eyelid and into cheek.  Have read this is possible se with paclitaxel and carboplatin.

typically i didnt have this when i saw dr yesterday 😳😳

mini mad xx 💖💖

Member

Re: June 2019 chemo starters

Hi everyone, good week has arrived and cherished muchly. How are you all, hoping it’s your good week too. RubyThursday anti sickness meds didn’t really work in car but it’s gone now thankfully. Vic xxxx

Member

Re: June 2019 chemo starters


Not had that one yet, do your anti sickness meds help? Glad you are on the bounce now and will hopefully have some good day :-) x
@Alvilajo wrote:

Morning all, hope your all ok. Anyone noticed feeling sick whilst being passenger in a car, never before but this time it’s like I got car sickness, strange? I feel better today so hopefully I’ve got the next 11 days feeling normal xxxx


 

Member

Re: June 2019 chemo starters

Morning all, hope your all ok. Anyone noticed feeling sick whilst being passenger in a car, never before but this time it’s like I got car sickness, strange? I feel better today so hopefully I’ve got the next 11 days feeling normal xxxx

Member

Re: June 2019 chemo starters


Hi Englishrose, sounds like we are in a similar situation, I saw oncologist, he was great actually, putting me up to 75% next Wednesday then 100% the following week. Struggling a bit with this round actually, heartburn and shortness of breath quite bad and a bit of bone pain. Got sent to a and e yesterday morning for bloods and checks as was hurting when I was breathing in, all ok thankfully but three hours sat in a cubicle to be told as suspected just side effects from chemo!

 

it is very frustrating when you don’t know what’s going on, being a bit pushy is not a bad thing, this is our lives!

 

Ruby xx

@EnglishRose2019 wrote:

Omg Ruby. I felt the same way when I was told after pressing my oncologist that I had only been given 75% of EC last round when was expecting it to be increased to 100%!! I emailed my oncologist who is also away and he confirmed I’d be given 100% next time but I have requested a meeting too. I’m like you. If I’m going to do this blast me with it!! I know why they started off on the lower dosage and that was fine but he was supposed to meet me before round 3 and didn’t 😠. My approach is I’m in the dark here. Please just explain the implications of lower dosages on my long term prognosis. I know we all want the same outcome but I need to understand what the lowered dosages actually mean for me. He told me via email I’d definitely be on 100% Paclitaxel when I start that in September ...

Good luck and please let me know how you get on. If you want to send a pm do (although don’t ask me how you do that 😬).

 

And enjoy the festival. We had fun 2 weeks ago at PennFest which is our local one. Nice to be outside all day but remember to cover up from the sun!!!

🤠🤗💕


 

Shi Community Champion
Community Champion

Re: June 2019 chemo starters

Hi remember to book your look good feel better sessions with your local Macmillan 💕💕✨✨Shi xx

Member

Re: June 2019 chemo starters

Omg Ruby. I felt the same way when I was told after pressing my oncologist that I had only been given 75% of EC last round when was expecting it to be increased to 100%!! I emailed my oncologist who is also away and he confirmed I’d be given 100% next time but I have requested a meeting too. I’m like you. If I’m going to do this blast me with it!! I know why they started off on the lower dosage and that was fine but he was supposed to meet me before round 3 and didn’t 😠. My approach is I’m in the dark here. Please just explain the implications of lower dosages on my long term prognosis. I know we all want the same outcome but I need to understand what the lowered dosages actually mean for me. He told me via email I’d definitely be on 100% Paclitaxel when I start that in September ...

Good luck and please let me know how you get on. If you want to send a pm do (although don’t ask me how you do that 😬).

 

And enjoy the festival. We had fun 2 weeks ago at PennFest which is our local one. Nice to be outside all day but remember to cover up from the sun!!!

🤠🤗💕

Member

Re: June 2019 chemo starters


Ditto - good to hear from you Chicken! I too am suffering a bit with nausea and acid, Ondansetron and omeprezole sort it within the hour. Struggling terribly with steroids and blood sugar, practice nurse has given me some extra meds for steroid days. No other grim side effects except sore and numb hands and feet. Off for emergency appointment with oncologist today as I made a complaint via pals as they failed to sort out putting me on full dose of nab paclitaxel despite repeated requests my oncologist completely ignored it and went on holiday 😡 if I am going to do chemo I want full dose of both chemos not just one, it can always be scaled down if needed if side effects too much but half the dose reads less benefit to me! I can feel a Paddington hard stare coming on!

 

hope you are all ok and enjoying life as much as possible, we are off to a local charity music festival tomorrow. Should be fun.

Ruby xx

@EnglishRose2019 wrote:

Hi chicken

It’s good to hear from you. That end of Y6 is such a hectic time and so pleased you were able to work your chemo around it to enjoy most of it. Your son would be so happy to have you there at the various events. 

 

We must be on a pretty similar timeframe as my last EC is on 12 Aug. I was given a drug Domperidone to help with the nausea. And after the first round when I took them cautiously, I now just chug 3 a day of those for 5/6 days so might be worth asking. Certainly meant that I have avoided eating and weight. 

 

Enjoy your time camping. It’s coming up to my good week so we are heading off on Monday for a few days.  Dog walks and visiting so historical sites near the south coast. Really looking forward to it. 

 

I hope everyone else on the forum is coping with whatever chemo (and life!) has been thrown at them this week. Stay strong, stay positive, keep fighting 👊🏻

💕🙏


 

Member

Re: June 2019 chemo starters

Hi chicken

It’s good to hear from you. That end of Y6 is such a hectic time and so pleased you were able to work your chemo around it to enjoy most of it. Your son would be so happy to have you there at the various events. 

 

We must be on a pretty similar timeframe as my last EC is on 12 Aug. I was given a drug Domperidone to help with the nausea. And after the first round when I took them cautiously, I now just chug 3 a day of those for 5/6 days so might be worth asking. Certainly meant that I have avoided eating and weight. 

 

Enjoy your time camping. It’s coming up to my good week so we are heading off on Monday for a few days.  Dog walks and visiting so historical sites near the south coast. Really looking forward to it. 

 

I hope everyone else on the forum is coping with whatever chemo (and life!) has been thrown at them this week. Stay strong, stay positive, keep fighting 👊🏻

💕🙏

Member

Re: June 2019 chemo starters

Hello ladies, been two wks since I lasted posted. 

Had a busy week before chemo round three, as it was dons birthday and last wk in primary school, so loads of celebrations to attend. 

Had chemo cycle three, suffered constipation this time, so back to senokot day before n two days after next round. (forgot this time n suffered)

Chemo without cold cap was much better, took til that evening to feel ill. 

A week recovery still and now I'm prepping to go camping. 

 

Re swimming n hot tubs, I was told no.

But in a few wks were camping on a site with a water fall and I'm thinking it'll be nice to go in, so I'm gonna ask next wk when I'm in for my final EC. 

Then I'm half way through chemo. My oncologist said next chemo will be different as it'll not be feeling sick anymore, but whole body aches n pains instead. 

 

Re weight, I've gained too about 10lb so my aim to to get that off in last x4 cycles as like I think it was Ruby, I eat to stop feeling sick on EC. But next lot maybe it'll not be like that.

 

Tomorrow I'm off for genetics testing. 

 

Hope noone lives in Yorkshire and have suffered from flash flooding 

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Re: June 2019 chemo starters

We didn’t know until we saw the trees blown down coming home. No phones then and newspapers were a few days behind lol


@EnglishRose2019 wrote:

Our back wall blew down in that hurricane!!!

and I want to go there. Have heard it is beautiful. I have a long wish list of places I’d like to go...wistful sigh ....😘


 

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Re: June 2019 chemo starters

Feeling bit sickly today, it’s like I can still feel the chemo meds going round my body and taste them, new symptoms each time it seems. I keep thinking get to Friday and it will feel better. Praying placlitaxel is nicer than ec ( it’s not gonna be is it lol)😘

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Re: June 2019 chemo starters

Our back wall blew down in that hurricane!!!

and I want to go there. Have heard it is beautiful. I have a long wish list of places I’d like to go...wistful sigh ....😘

Member

Re: June 2019 chemo starters

We went 1987 the first time, we were out there when England had the hurricane. Then went back 30 years later and it rained all week lol. 


@Zed51 wrote:

Alvilajo - Nerja is beautiful- went a few years ago and is on my list to revisit!! 


 

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Re: June 2019 chemo starters

I hope all goes well tomorrow Ruby. You’re nearly at countdown 🎉 

I haven’t read those articles but I will do and thanks for bringing it up. Xx

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Re: June 2019 chemo starters

Hi ladies

Yes I was told to be really careful regarding swimming and to avoid public pools, hot tubs, jacuzzis etc. 

So I joined a private club for the summer  where they have an indoor and outdoor pool. I swim outdoors in the 3rd week of my cycle and this indoor class in my 2nd week won’t really involve ‘swimming’ as it’s really a resistance class. When I move to my weekly chemo in September I don’t think I would risk even doing that. 

I am hyper vigilant about infection! Sanitiser is my new middle name. And don’t even think about giving me a hug this week 😳. I even stopped work as I work at a school, so please do not swim etc unless you feel it is absolutely safe for you to do so! But at the same time well-being and fun is important so paddle away Louise 🏖🤗😘😘😘

 

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Re: June 2019 chemo starters

Hi Zoe

 

I had asked about going swimming and was also told - No,  too big a risk of germs from the pool.

 

I also asked about hiring a hot tub - thinking it would be cleaned between hires and it would be our own clean water and just us in it.  But was again told - No, too risky.

 

Yesterday I went on a family day trip to the beach.  I threw caution to the wind and paddled in the murky looking sea with my grandchildren, right up to my knees - well you have to have some fun 😆

Member

Re: June 2019 chemo starters

Alvilajo - Nerja is beautiful- went a few years ago and is on my list to revisit!!