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June 2019 chemo starters

Member

Re: June 2019 chemo starters

That sounds awful 🥺. I’m not due to start for a couple a weeks on the Paclitaxel so I’m no use. One of the ladies definitely mentioned bone pain. It’s definitely worth a call to your oncologist. I’m understanding that they vary doses because some bodies cannot process certain levels. And of course take all the painkillers you can...

Sending hugs 

Member

Re: June 2019 chemo starters

Hi ladies, I had chemo in Oct'17. I had the hot flushes during the night and I was post-menopausal! The good news is that they went as quickly as they came once I'd finished chemo! x

Member

Re: June 2019 chemo starters

Hi All, 

I'm from the July group. I've been told some of you are on paclitaxel and I wanted to pick your brains for some advice. I'm on 12 weekly sessions of paclitaxel and only just had my second paclitaxel last Wednesday (long story) and my hips have been in agony ever since!!! I'm walking like an old woman, I can't stand for long periods without feeling like my legs are going to give way and it's really getting me down. Yesterday, I felt like I was in early labour all day. Anyone had anything similar? Any tips in overcoming this? Xx

Member

Re: June 2019 chemo starters

Yes your right nothing can be as bad as that 💕💕


@rubythursday wrote:

You will be fine, after coping with chemo menopause is a breeze! 
@Alvilajo wrote:

Hi ruby I suppose it had to happen sooner that later, once on hormone treatment it would of kicked in. It’s like waiting for the worst and not knowing how bad it will get 🙄


@rubythursday wrote:

Hi,

i have been in surgical menopause since I was 38 and first put on tamoxifen, goselerin, Letrozole and then had ovaries removed. They sound like hot flushes to me...get yourself a good quiet fan that you can direct on your face at night. It helps me a lot! They might just be chemo induced, in which case it may be the start of menopause or it could get better when your chemo finishes. Only time will tell!

 

steroids mimic hot flushes for me, I do a more than passable impression of a beetroot with sweat!

Ruby x

@Alvilajo wrote:

Looking it up looks like menapauasal symptoms 🤔


@EnglishRose2019 wrote:

I did have terrible sweats in the night and a red face with this 4th round of EC but not sure if mirrored what you’re experiencing. Even the boys commented on my face which looked like this 🥵. So could be se or not... When that stopped I then got the usual painful/tender touching skin thing for 2/3 days which feels like sunburn. I took paracetamol. Lots!!! Try that and see how next few days go...

❤️

 


 


 


 


 


 

Member

Re: June 2019 chemo starters


You will be fine, after coping with chemo menopause is a breeze! 
@Alvilajo wrote:

Hi ruby I suppose it had to happen sooner that later, once on hormone treatment it would of kicked in. It’s like waiting for the worst and not knowing how bad it will get 🙄


@rubythursday wrote:

Hi,

i have been in surgical menopause since I was 38 and first put on tamoxifen, goselerin, Letrozole and then had ovaries removed. They sound like hot flushes to me...get yourself a good quiet fan that you can direct on your face at night. It helps me a lot! They might just be chemo induced, in which case it may be the start of menopause or it could get better when your chemo finishes. Only time will tell!

 

steroids mimic hot flushes for me, I do a more than passable impression of a beetroot with sweat!

Ruby x

@Alvilajo wrote:

Looking it up looks like menapauasal symptoms 🤔


@EnglishRose2019 wrote:

I did have terrible sweats in the night and a red face with this 4th round of EC but not sure if mirrored what you’re experiencing. Even the boys commented on my face which looked like this 🥵. So could be se or not... When that stopped I then got the usual painful/tender touching skin thing for 2/3 days which feels like sunburn. I took paracetamol. Lots!!! Try that and see how next few days go...

❤️

 


 


 


 


 

Member

Re: June 2019 chemo starters


Hi Michelle,

 

what you are feeling is really common and completely normal when I was first diagnosed I used to put a big brave face on and go and cry in the bath on my own. I had a lot of baths! We are all here for you to moan, laugh, cry and all the other things that sometimes it’s so hard to do with your loved ones.  What I can tell you however is things will get better, this too shall pass. Just hang in there and remember that at least some of what you are experiencing is related to your drug cocktail!  Great decision to go to a counsellor btw, mine was a lifesaver. 

 

Ruby.x

@Michelle78 wrote:

Thank you all for your kind welcomes, 

Day 4 after last ec  & my head is going crazy crazy 

 

I have also had the hot flushes at night (and a couple during the day) but def more when laying in bed against pillows  - hot head, fan constantly on 

 

I can't stop overthinking & its ruining my day to day,  Is anyone else experiencing this ? 

I don't know how to say it without sounding crazy  like dark deepened thoughts, never ever have I been like this before, I could cry at every moment, I'm scared, scared of future, scared about my children... 

 

I just hope it will go when this chemo is finished - in the meantime I've booked into a counselling lady in a couple of weeks ..lets hope I can get some relief 

 

I think its the chemo, steriods, menopausal symptoms,  also my appearance is the constant reminder - I look forward to my hair coming back 

 

Minimad - My next sessions are x4 paclitaxel 2 weekly then x15 rads and then onto tamoxifen for 5-10 yrs

 

Sorry ladies, We are all going through this rubbish & you've now become my ears,  its so hard with family,  I am so close to mine & they are all amazing, but I don't want to keep going on about me all the time 

 

Michelle  xx 

 

 

 

 


 

Member

Re: June 2019 chemo starters

Hi ruby I suppose it had to happen sooner that later, once on hormone treatment it would of kicked in. It’s like waiting for the worst and not knowing how bad it will get 🙄


@rubythursday wrote:

Hi,

i have been in surgical menopause since I was 38 and first put on tamoxifen, goselerin, Letrozole and then had ovaries removed. They sound like hot flushes to me...get yourself a good quiet fan that you can direct on your face at night. It helps me a lot! They might just be chemo induced, in which case it may be the start of menopause or it could get better when your chemo finishes. Only time will tell!

 

steroids mimic hot flushes for me, I do a more than passable impression of a beetroot with sweat!

Ruby x

@Alvilajo wrote:

Looking it up looks like menapauasal symptoms 🤔


@EnglishRose2019 wrote:

I did have terrible sweats in the night and a red face with this 4th round of EC but not sure if mirrored what you’re experiencing. Even the boys commented on my face which looked like this 🥵. So could be se or not... When that stopped I then got the usual painful/tender touching skin thing for 2/3 days which feels like sunburn. I took paracetamol. Lots!!! Try that and see how next few days go...

❤️

 


 


 


 

Member

Re: June 2019 chemo starters

Hi Michelle although your feelings are normal I know there not nice. I don’t feel like me anymore and I don’t feel like doing things all the time, we just need to get through this. We are also at the same stage with placlitaxel next so 8/9 weeks the horrid chemo will be done. Xxxxx


@Michelle78 wrote:

Thank you all for your kind welcomes, 

Day 4 after last ec  & my head is going crazy crazy 

 

I have also had the hot flushes at night (and a couple during the day) but def more when laying in bed against pillows  - hot head, fan constantly on 

 

I can't stop overthinking & its ruining my day to day,  Is anyone else experiencing this ? 

I don't know how to say it without sounding crazy  like dark deepened thoughts, never ever have I been like this before, I could cry at every moment, I'm scared, scared of future, scared about my children... 

 

I just hope it will go when this chemo is finished - in the meantime I've booked into a counselling lady in a couple of weeks ..lets hope I can get some relief 

 

I think its the chemo, steriods, menopausal symptoms,  also my appearance is the constant reminder - I look forward to my hair coming back 

 

Minimad - My next sessions are x4 paclitaxel 2 weekly then x15 rads and then onto tamoxifen for 5-10 yrs

 

Sorry ladies, We are all going through this rubbish & you've now become my ears,  its so hard with family,  I am so close to mine & they are all amazing, but I don't want to keep going on about me all the time 

 

Michelle  xx 

 

 

 

 


 

Member

Re: June 2019 chemo starters

Thank you all for your kind welcomes, 

Day 4 after last ec  & my head is going crazy crazy 

 

I have also had the hot flushes at night (and a couple during the day) but def more when laying in bed against pillows  - hot head, fan constantly on 

 

I can't stop overthinking & its ruining my day to day,  Is anyone else experiencing this ? 

I don't know how to say it without sounding crazy  like dark deepened thoughts, never ever have I been like this before, I could cry at every moment, I'm scared, scared of future, scared about my children... 

 

I just hope it will go when this chemo is finished - in the meantime I've booked into a counselling lady in a couple of weeks ..lets hope I can get some relief 

 

I think its the chemo, steriods, menopausal symptoms,  also my appearance is the constant reminder - I look forward to my hair coming back 

 

Minimad - My next sessions are x4 paclitaxel 2 weekly then x15 rads and then onto tamoxifen for 5-10 yrs

 

Sorry ladies, We are all going through this rubbish & you've now become my ears,  its so hard with family,  I am so close to mine & they are all amazing, but I don't want to keep going on about me all the time 

 

Michelle  xx 

 

 

 

 

Member

Re: June 2019 chemo starters


Hi,

i have been in surgical menopause since I was 38 and first put on tamoxifen, goselerin, Letrozole and then had ovaries removed. They sound like hot flushes to me...get yourself a good quiet fan that you can direct on your face at night. It helps me a lot! They might just be chemo induced, in which case it may be the start of menopause or it could get better when your chemo finishes. Only time will tell!

 

steroids mimic hot flushes for me, I do a more than passable impression of a beetroot with sweat!

Ruby x

@Alvilajo wrote:

Looking it up looks like menapauasal symptoms 🤔


@EnglishRose2019 wrote:

I did have terrible sweats in the night and a red face with this 4th round of EC but not sure if mirrored what you’re experiencing. Even the boys commented on my face which looked like this 🥵. So could be se or not... When that stopped I then got the usual painful/tender touching skin thing for 2/3 days which feels like sunburn. I took paracetamol. Lots!!! Try that and see how next few days go...

❤️

 


 


 

Member

Re: June 2019 chemo starters

Looking it up looks like menapauasal symptoms 🤔


@EnglishRose2019 wrote:

I did have terrible sweats in the night and a red face with this 4th round of EC but not sure if mirrored what you’re experiencing. Even the boys commented on my face which looked like this 🥵. So could be se or not... When that stopped I then got the usual painful/tender touching skin thing for 2/3 days which feels like sunburn. I took paracetamol. Lots!!! Try that and see how next few days go...

❤️

 


 

Member

Re: June 2019 chemo starters

I did have terrible sweats in the night and a red face with this 4th round of EC but not sure if mirrored what you’re experiencing. Even the boys commented on my face which looked like this 🥵. So could be se or not... When that stopped I then got the usual painful/tender touching skin thing for 2/3 days which feels like sunburn. I took paracetamol. Lots!!! Try that and see how next few days go...

❤️

 

Member

Re: June 2019 chemo starters

Think I’m getting hot flushes!!! 

Last 3 days and nights starts in my head and spreads lasts about 10 minutes. Anyone else getting them ? Xxx

Member

Re: June 2019 chemo starters

Hi Englishrose,

 

thank you for your kind wishes and yeah i'm soo relieved to be nearing the end.

around 6 or 7 i thought i was gonna call it a day.... but had one session missed out as wasnt well for 3 days which felt wonderful so i carried on 👍

 

seeing chemo doctor week after next to see what happens then.  Ive had my mastectomy back in April so hoping it might be a scan n then just checkups from now on.   Got my second Zolandronic infusion january next year ( every 6 months ) so a way off.

good luck with your Paclitaxels nxt month.... any questions just ask.   

Mini mad xx 💖💖  enjiy yiur weekend everybody in what ever way you can  xx

Member

Re: June 2019 chemo starters

Hey Michelle 

Lovely to hear from you and welcome to our little group as the other lovelies have already said 🤗

 

We all need help at times so here when you need to offload or whine or whatever. I’ve just had my last EC this week. Summer holidays are tricky with the treatment so well done getting through it so far. My boys (13&15) took the train into London today to have a weekend with their aunties to give us all a break. The steroids do make you kinda crazeeeee😬. I do think I’m lucky my boys are older and able to be a bit more self-sufficient. Try to be kind on yourself with the se, which is easier said than done ... when I get cross with the boys about something silly I feel so upset afterwards but know it’s not ‘me’.

 

I’m like Mini and have 12 x weekly Pax starting September, then radio x 20 in the New Year so reconstruction wasn’t an immediate option with my mastectomy. Will be asking for advice on that in a year or so ladies!!!! But Jens pillows are great. I was given 2 and had one upstairs and downstairs. 

 

Mini, you must be sooooo happy to be 11/12. You are so nearly there. Sending massive hug 🤗

 

Sweet dreams (unless you’re on steroids!) everyone ☺️😴😘

 

 

 

Member

Re: June 2019 chemo starters

Hi there Michelle,

 

quick reply before i hit the sack !!!? 😴😴

 

welcome to the forum and our little ' group ' of lovely ladies 💖

i've had my number 11 of 12 paclitaxel sessions today....  my FINAL one is nxt friday so i'm nearly finished...... 🥳🥳🥳

some patients miss the routine of having their bloods done and then their chemo sessions ???

am i gonna miss all this ??? ...... HELL NO !!!  🥴🥴🥴

and so far i still have my eyebrows and lashes 🤞🤞but have been told there's still time...

so good luck with your paclitaxel sessions,  are they every week like mine i wonder ??

lots of us here if you need advice/support or just a rant/moan...

mini mad xx 💖💖

Member

Re: June 2019 chemo starters

My grand children have dealt with it well too 2 & 6 yrs, kids are tough, I was given a heart cushion, people make them for our hospital which was nice, yes radio therapy for me too then hormone therapy eeek xx


@Michelle78 wrote:

Thank you, 

Oh that was lovely to get a note from your daughter. I have a 10 & 6 yr old the 'c' word hasn't been spoken of - just that Mummy had a bad lump etc... then, now Mummy needs to have medicine & my hair will go ... 

They've been pretty unphased I think - my youngest wanted my head covered all the time at first  - it pretty much is I hate the bald look ! 

Been hard this summer holidays,  where I haven't been in a good head space - but will make it up to them come autumn !

 

Its the unknown again isn't it - although, reading from what some ladies have said the paclitaxel is hopefully more bearable ?

I know it will make us ache, but fingers crossed for less ouckyness & fuzzy head ?

I hope so certainly ! Then also its the downhill hurdle before radio (for me)

 

And hurry up completion of this treatment for all & we'll be moving on together 

 

For anyone needing sugery advise, I can help - to be honest  piece of cake after this chemo schmeemo 

 

If you haven't heard of jens friends (via facebook) they send out heart shaped cushions (for a small postage donation)

to use after surgery & they were fab at protecting your breast/arm areas 

 

Michelle  xx

 



 

Member

Re: June 2019 chemo starters

Thank you, 

Oh that was lovely to get a note from your daughter. I have a 10 & 6 yr old the 'c' word hasn't been spoken of - just that Mummy had a bad lump etc... then, now Mummy needs to have medicine & my hair will go ... 

They've been pretty unphased I think - my youngest wanted my head covered all the time at first  - it pretty much is I hate the bald look ! 

Been hard this summer holidays,  where I haven't been in a good head space - but will make it up to them come autumn !

 

Its the unknown again isn't it - although, reading from what some ladies have said the paclitaxel is hopefully more bearable ?

I know it will make us ache, but fingers crossed for less ouckyness & fuzzy head ?

I hope so certainly ! Then also its the downhill hurdle before radio (for me)

 

And hurry up completion of this treatment for all & we'll be moving on together 

 

For anyone needing sugery advise, I can help - to be honest  piece of cake after this chemo schmeemo 

 

If you haven't heard of jens friends (via facebook) they send out heart shaped cushions (for a small postage donation)

to use after surgery & they were fab at protecting your breast/arm areas 

 

Michelle  xx

 

Member

Re: June 2019 chemo starters

Hi Michelle, glad your now feeling ok to join in our chats and moans, I’m like you starting placlitaxel in three weeks and I’m nervous too. I was Teary last night my daughter left a note in my bed telling me how proud she was of me and sorry I was so tired and that she loved me (she’s 29 lol) bless her.  It’s a tough journey to get through to make us better. Vic xxx


@Michelle78 wrote:

Hi Ladies, 

I am Michelle - I have been reading all your entries for a while - like a stalker as I haven't been joining in with the conversations 

I too started chemo in June 

Diagnosed in March, had a mastectomy, recon & then further node removal after sentinal showed positive .. further nodes came back clear 

So number 4 'EC' completed Wednesday just gone - thank goodness, I havent enjoyed it,  then onto Paclitaxel for x4 cycles .. I've been following how you've all been throughout & matching up with my side effects - my worst time is the few days after I assume when the steriod is coming out of system & I have the major lows, so teary, depressive pretty much - its just not me & I can't seem to 'snap' out of it  Smiley Sad 

I'm assuming its also hormone menopausal symptom related too 

 

My hair started going on day 17 ish after my first ec,  so went for the shave, I have a couple of wigs & numerous turban scarves - I hate them all !  Brows & lashes yet to go .. but thank you for the magnetic lashes link,  I went ahead & ordered a set & they arrived today - awaiting the chemo stole my lashes day 😭😭 

Thank you for confirming the 'norms' of this rubbish blip we are going through  

Michelle xx 


 

Member

Re: June 2019 chemo starters

Hi Ladies, 

I am Michelle - I have been reading all your entries for a while - like a stalker as I haven't been joining in with the conversations 

I too started chemo in June 

Diagnosed in March, had a mastectomy, recon & then further node removal after sentinal showed positive .. further nodes came back clear 

So number 4 'EC' completed Wednesday just gone - thank goodness, I havent enjoyed it,  then onto Paclitaxel for x4 cycles .. I've been following how you've all been throughout & matching up with my side effects - my worst time is the few days after I assume when the steriod is coming out of system & I have the major lows, so teary, depressive pretty much - its just not me & I can't seem to 'snap' out of it  Smiley Sad 

I'm assuming its also hormone menopausal symptom related too 

 

My hair started going on day 17 ish after my first ec,  so went for the shave, I have a couple of wigs & numerous turban scarves - I hate them all !  Brows & lashes yet to go .. but thank you for the magnetic lashes link,  I went ahead & ordered a set & they arrived today - awaiting the chemo stole my lashes day 😭😭 

Thank you for confirming the 'norms' of this rubbish blip we are going through  

Michelle xx 

Member

Re: June 2019 chemo starters

I’ll take another look thanks x


@Chicken81 wrote:

Alvilajo. 

You apply the magnetic eye liner, leave to dry and the lashes then stick to the magnetic eye liner. 

The video on the site shows the eye liner and then placing lashes on top. 

 

Not sure your watching the correct video if you see them attaching to your lashes. They are older style lashes that came out a few yrs ago, but not sure they took off as people found them fiddily. 

 

I've a few mates moving to these lashes now as they're sick of glue. 

 

Hopefully that helps? 

 

@Alvilajo wrote:

How do they work if you have no lashes as looking at the video they stick to your own lashes xx


@Alvilajo wrote:

Wow they look fab xx


@Chicken81 wrote:

I am booked into Look good feel good via Maggies charity next month. Feel as though now I'm fully in need of how to look like me. 

 

Here are the links. 

 

Lashes

https://lolaslashes.co.uk/

Lash link

I went for diamond, but sapphire would be more subtle. 

 

Brows 

https://thewomenlobby.com/products/eyebrow-ink-pen?variant=21296096870513

Brow pen link

I bought dark brown, so I think it's quite dark, so I'm careful in the use of it. Wish I'd ordered light brown now. 

 

Before and After for you

IMG_20190808_185452_564.jpg

 

 


 


 


 


 

Member

Re: June 2019 chemo starters

English rose.... 

I'm chemo first to shrink the lump. 

Then surgery. 

I'm told it has reduced. 

I think it's due to me being HER+ and oestrogen + and ER (I think these are all my add ons)

 

Best outcome will be, lump reduced and I'm clear from genetic testing for BRCA gene so lumptecomy. 

 

Worst case will be testing positive and getting double mastectomy and possible further preventive surgery as I'm being tested for ovarian cancer gene too.

 

Will know near to Oct the outcomes. 

Member

Re: June 2019 chemo starters


Alvilajo. 

You apply the magnetic eye liner, leave to dry and the lashes then stick to the magnetic eye liner. 

The video on the site shows the eye liner and then placing lashes on top. 

 

Not sure your watching the correct video if you see them attaching to your lashes. They are older style lashes that came out a few yrs ago, but not sure they took off as people found them fiddily. 

 

I've a few mates moving to these lashes now as they're sick of glue. 

 

Hopefully that helps? 

 

@Alvilajo wrote:

How do they work if you have no lashes as looking at the video they stick to your own lashes xx


@Alvilajo wrote:

Wow they look fab xx


@Chicken81 wrote:

I am booked into Look good feel good via Maggies charity next month. Feel as though now I'm fully in need of how to look like me. 

 

Here are the links. 

 

Lashes

https://lolaslashes.co.uk/

Lash link

I went for diamond, but sapphire would be more subtle. 

 

Brows 

https://thewomenlobby.com/products/eyebrow-ink-pen?variant=21296096870513

Brow pen link

I bought dark brown, so I think it's quite dark, so I'm careful in the use of it. Wish I'd ordered light brown now. 

 

Before and After for you

IMG_20190808_185452_564.jpg

 

 


 


 


 

Member

Re: June 2019 chemo starters


That’s rubbish, might be worth asking them if you can have a different chemo day, I did and it was no trouble... if you don’t ask...

 

Also frustrating as it is to have a week off try to think of it as time to recharge your batteries, enjoy a bit more of life and be fighting fit for the next step :-) 

 

failing that the cake idea idea is a good one!

 

Ruby xx

@Zed51 wrote:

Had two blood tests this week, neither were satisfactory so have been delayed on starting herceptin & docetaxel for a week. Don’t know whether to be pleased or angry! Think angry as if it’s exactly a week late I will be in hospital for my initial 6 hour Herceptin appointment on my 52nd birthday! What a treat 


 

Member

Re: June 2019 chemo starters

Poor you ❤️ I spent my 40th having brain scan. My 30 th wed anniversary having armpit clearance and valentines day I was diagnosed lol. 


@Zed51 wrote:

Had two blood tests this week, neither were satisfactory so have been delayed on starting herceptin & docetaxel for a week. Don’t know whether to be pleased or angry! Think angry as if it’s exactly a week late I will be in hospital for my initial 6 hour Herceptin appointment on my 52nd birthday! What a treat 


 

Member

Re: June 2019 chemo starters

Nooooooo😠!! Poor you. It must be so frustrating to hear that. If it is on your bday take in some cake. 6 hours 😳😳😳

let us know how it goes...❤️

Nicky x

Member

Re: June 2019 chemo starters

Had two blood tests this week, neither were satisfactory so have been delayed on starting herceptin & docetaxel for a week. Don’t know whether to be pleased or angry! Think angry as if it’s exactly a week late I will be in hospital for my initial 6 hour Herceptin appointment on my 52nd birthday! What a treat 

Member

Re: June 2019 chemo starters

🔥🍝😋. With you all the way Ruby on sriracha hot sauce 😬35CB910C-E3C1-4DC6-9950-7304C6FD6403.jpeg

 

Member

Re: June 2019 chemo starters

Hey everyone,

so interesting and helpful reading all of your posts.

i have my second to last Paclitaxel this friday and FINAL one next friday....   yay.......

seem a long time for just one chemo session but what with the pre meds ( if you're having any )  and all the flushing inbetween time does drag on....  Paclitaxel is usually an hour session.

we are given our lunch in the chemo room if appt is around 12 ish,  i just take some biccy nibbles and water with me. 

Keep strong you lovely ladies and if i can help anyone just post on here.

mini mad xx 💖💖   Oh and my hubby finally buzzed my hair today  👩‍🦲👩‍🦲

 

Member

Re: June 2019 chemo starters

Hey! That should be me too. I know it’s a long session and I was taken aback too😮. Will confirm with you my start date next week. Going to need friends to take and pick me up so will need to start a spreadsheet!!! Everyone has offered help so now will be their chance 😂 Hope your EC today ok and you manage se. Awful day outside and inside today. On sofa 🤢🤯😴😓

Member

Re: June 2019 chemo starters

Placlitaxel starts 2/9/19 takes four hours eeek. I’ll take a picnic lol

Member

Re: June 2019 chemo starters

Waiting for my appointment to see oncologist, so not sure when placlitaxel starts but I know I’ve got 4 every other week. Off to the hospital now. Take care all of you xxxx 😘

Member

Re: June 2019 chemo starters

It is tough tough tough. Our minds play tricks and the drugs don’t help in that front!! I do hope the EC is okay and we will start the Paclitaxel together and be better. That is what everyone I’ve spoken to keeps telling me. Will wait for this rain to stop before walking the dog so great excuse to put my feet up and have a herbal tea ☕️

Member

Re: June 2019 chemo starters

Jeez Ruby!!!!!!! What an arduous journey you’ve been on. I hope you don’t mind me saying I hope I don’t have to go through all of that. Just a reconstruction at some point. You are one helluva strong lady 💪🏻😘

Member

Re: June 2019 chemo starters

P.s you look amazing in all the pics I’ve seen xx😘

Member

Re: June 2019 chemo starters

Hi English rose, your right when we don’t feel great we worry more and yes I love the 10 days before the next treatment. I had lumpectomy for 25mm cancer and as one of the sentinel nodes was involved i had 2nd opp to clear rest where one more node was found. So 2/15. I’ve suffered with anxiety over the years but dealt well in the beginning of diagnosis but feeling a bit of a strain at the moment, xxx

Member

Re: June 2019 chemo starters


You look great with short hair! 

I have already (previously) had two lumpectomies, lymph clearance, oopherectomy, mastectomy and free tram flap reconstruction. This time I have had another lumpectomy so my surgery is all done. Once I finish chemo that’s it, I will be released back into the wild 😜 


@EnglishRose2019 wrote:

Thank you ladies for all the recent posts. I had my last EC on Monday and will begin 12 weekly Paclitaxel in September (tbc once I’ve seen my oncologist on Tuesday...) so very interested to hear your stories. 

 

Also Alvilajo, I am a really positive person and have not let BC stop me from doing much, but I get very anxious a few days before chemo anticipating what is ahead, and somewhat depressed during the week after chemo thinking I’m not getting any better and the cancer has spread from my lymph nodes... so completely understand where you’re coming from. I then wake up a week to the day of EC and am bouncing and happy and positive!

 

I think I may have mentioned before that I have already had my mastectomy. Are all you other ladies reducing your tumours before surgery?

 

Ruby, you’ve obviously been through the wars before! Your hair looks great 🤗 I still have quite a bit but found the GI Jane look works best for me. Though it’s thinned a bit more since this pic!E47DD30D-ECD0-4272-9E29-6A5FBDD34FDB.jpeg

 

Sorry if waffling. I’m suffering from steroid induced insomnia as usual first few days so only a few hours sleep last 2 nights 😳

 

I’m really finding the support from you all important and interesting how differently we react to the same drugs. Take care 💕✨👊🏻


 

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Re: June 2019 chemo starters

Aw ruby I’m sorry, you’ve really been through it. How many chemos have you been through? You probably are an expert now 😘 x

Member

Re: June 2019 chemo starters

Thank you ladies for all the recent posts. I had my last EC on Monday and will begin 12 weekly Paclitaxel in September (tbc once I’ve seen my oncologist on Tuesday...) so very interested to hear your stories. 

 

Also Alvilajo, I am a really positive person and have not let BC stop me from doing much, but I get very anxious a few days before chemo anticipating what is ahead, and somewhat depressed during the week after chemo thinking I’m not getting any better and the cancer has spread from my lymph nodes... so completely understand where you’re coming from. I then wake up a week to the day of EC and am bouncing and happy and positive!

 

I think I may have mentioned before that I have already had my mastectomy. Are all you other ladies reducing your tumours before surgery?

 

Ruby, you’ve obviously been through the wars before! Your hair looks great 🤗 I still have quite a bit but found the GI Jane look works best for me. Though it’s thinned a bit more since this pic!E47DD30D-ECD0-4272-9E29-6A5FBDD34FDB.jpeg

 

Sorry if waffling. I’m suffering from steroid induced insomnia as usual first few days so only a few hours sleep last 2 nights 😳

 

I’m really finding the support from you all important and interesting how differently we react to the same drugs. Take care 💕✨👊🏻

Member

Re: June 2019 chemo starters


Hi Alvilajo,

 

its most likely nothing to worry about but get it checked if it’s making you anxious. I find the steroids make me anxious, do you? I have had a total of six tumours over eleven years now and not one of them was sore in any way, well they weren’t until I poked them night and day anyway! Hope that helps?

 

You are doing brilliantly, it does get tougher for some as our bodies get more battered by all the drugs but it’s still doable and you will get through this and one day it will just be a distant memory. :-) 

 

and after today o day it will be only eight weeks!

 

Ruby xx

@Alvilajo wrote:

Thanks ruby, I seem to be getting more nervous as time goes on, I’m dreading today’s last ec. My armpit feels tender where scar is, maybe I’ve pulled it gardening but that makes me nervous. I’m not coping as well as I was. But only 9 weeks  to go xxx


 

Member

Re: June 2019 chemo starters

Thanks ruby, I seem to be getting more nervous as time goes on, I’m dreading today’s last ec. My armpit feels tender where scar is, maybe I’ve pulled it gardening but that makes me nervous. I’m not coping as well as I was. But only 9 weeks  to go xxx

Member

Re: June 2019 chemo starters

Hello All,

 

I know minimad has already shared her experience of Paclitaxel, I thought I would add mine to the mix as well! As most of you know I had a severe allergic reaction to Paclitaxel on my second session, this is a rare thing although minor reactions (flushing, feeling tingly) seem quite common and easily sorted. 

 

After three weeks i was I was changed to Nab Paclitaxel, which is still the same drug but delivered not in solvent base but a human albumin base. I have been fine with this.

 

side effects? Most of my side effects seem to be after I have had the Carboplatin (the other half of my combo delivered 3 weekly, the paclitaxel is weekly) for the first time this week I have had some bone pain, I haven’t needed anything stronger than paracetamol to manage it so far.  My feet are tingly and sore for a few days, this could be either drug tbh. I do have some numbness in hands and feet, grade one so far and manageable.

 

 I am giving one dose of steroids with the paclitaxel and then no others (so only one night of eating the fridge contents instead of three) and one anti sickness on the day then no more prescribed or needed. I have no nausea of paclitaxel alone nor acid indigestion and although I would say I have less of an appetite can eat and drink normally. I do however seem to have developed a taste for really spicy foods and now have an unhealthy relationship with a large bottle of sriracha sauce!

 

overall I have so far found paclitaxel to be the easier of the two chemos I am on, I have had nine so far ( a few at reduced dose) and eight more to go, I do expect the side effects to worsen as it builds up in my body. It’s what I experienced before and seems to be common.

 

oh, one more thing I still have most of my hair. I have had some thinning and that could get worse or come out completely but I am managing quite well with an expert combover and a large bottle of (see upside down photo!) hairspray! 

67D29113-4DE7-42AE-9417-A42D73FDEAC5.jpegI am still going out a couple of times a week for lunch or dinner or to ogle some posh garden somewhere  an managed very well with a night away this week, off to the races this week and then to see Years and Years if I am well enough following today’s chemo :-) 

 

Hope that helps, obviously we are all different but not everyone has a horror story to tell!

 

Ruby xx

Member

Re: June 2019 chemo starters

Paclitaxel isnt too bad.

i've had most of the side effects but not all together.  Worst for me where the headaches...  theni just kinda waited to see what each day would bring....  

i did have a reaction on my second dose of Paclitaxel...  horrendous lower back spasms but again not everybody gets this.

with regards to how long a session takes, Paclitaxel is an hour session but   for me it can be anything between 4-5 1/2 hrs.  Sounds a long time but i have 5 pre meds before it all starts plus they are always short staffed n bcoz i had a reaction,  the first half an hour is at a slower rate,  then its back to usual speed.

hope this doesnt sound to daunting...  we're all different with our reactions to these god awful drugs 👿     Thinking of you all ..  mini mad xx 💖💖

Member

Re: June 2019 chemo starters

I contacted that “someone like me” and they have matched me with a lady who’s had more or less the same treatment as me but three years on, she’s calling me Friday for a chat, will let you know how it goes xx

Member

Re: June 2019 chemo starters

I start that in three weeks, how’s it going and how long does it take xxx


@mini mad wrote:

I am currently on Paclitaxel..   any help/advise just ask.

good luck,  its not too bad .   Mini mad xx 💖💖


 

Member

Re: June 2019 chemo starters

I am currently on Paclitaxel..   any help/advise just ask.

good luck,  its not too bad .   Mini mad xx 💖💖

Member

Re: June 2019 chemo starters

Hi

 

I switch to paclitaxel for the next 12 weeks and am really nervous about having to deal with a whole new set offside effects.

 

EC has been reasonably good to me. Been on Emend and Ondanestron for nausea as well as Dexamethasone steroids. As a result the nausea has been manageable, day five seemed to be my worst with what I can best describe as gland pain in the throat, my oncologist shout it might be a reaction to the GCSF (the white cell injection thingy). 

 

The thing is I got used to this over the past 8-9 weeks and now find the fear of the unknown rearing it's ugly head again!

 


@Zed51 wrote:

Hi ladies. Guess I’m halfway through chemo as at end of round 3 of 6. Had a lovely few days away in Yorkshire with our newly acquired little campervan which was fab. Now back to the prospect of Herceptin on Thursday which means waiting 6 hours on ward afterwards to see if I have a reaction, then back on Friday for docetaxel (T). Feel ridiculously worried about it being new stuff after coping with FEC. Like starting all over again. Trying to concentrate on nice stuff tomorrow & Wednesday beforehand 😨


 

 

 

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Member

Re: June 2019 chemo starters

Hi

 

I did my Look Good Feel Better at my local Macmillan centre - I would check out lookgoodfeelbetter.co.uk to look for whether they do sessions near you.

Member

Re: June 2019 chemo starters

Hi chicken, Zed, Alviego and all,  Your treatment won’t be too bad ( I hope)

Ive just had my 3rd cycle trastuzamab, pertuzamab and docetaxol which I have been on since the start of my treatment. I didn’t have EC . My chemo is Carboplatin. The targeted  drugs don’t seem to given me any horrendous side effect. Docetaxal seem to make me feel very nauseous and sick.

I-have been on Ondasetron but on my 2nd cycle I felt nauseous for 10 days. I told my Oncologist who prescribed Emend ( tells your brain not to feel sick lol) for my 3rd cycle yesterday. It’s expensive so they don’t automatically prescribe it. I still take Ondasetron as well as that works on your tummy I think. So far I don’t feel too bad.

 I also take steroids that cause constipation. Other drugs give me the trots. I do try to manage the effects with with diet, not always successfully so then the pills. If you get bad diarrhoea my chemo nurse advised drinking lucozade sports drink to replace the electrodes immediately after an episode. It seemed to work with me. Stopped the I’ll feeling very quickly.

When I started the treatment I was told that they drip the drugs slowly so they can pick up on any adverse  reactions and sort it. You have a long break before the docetaxol so they can determine which drugs you react too. I dad my treatment over 2 days to start but Iwas still therefor nearly 7 hours. But if you seem okay they will let you leave earlier as long as you have someone with you just in case.

Also I feel very lazy at times but if possible I try to go for a walk. It definitely makes me feel better for a while and then I have a better rest ( don’t feel soooo rotten just pleasantly weary. 

Anyway Good luck with your new regime. I hope it goes as well as mine but just remember all these Nasty poisons are necessary to get rid of the nasty invaders

Best wishes all, Bod xx

Member

Re: June 2019 chemo starters

How do they work if you have no lashes as looking at the video they stick to your own lashes xx


@Alvilajo wrote:

Wow they look fab xx


@Chicken81 wrote:

I am booked into Look good feel good via Maggies charity next month. Feel as though now I'm fully in need of how to look like me. 

 

Here are the links. 

 

Lashes

https://lolaslashes.co.uk/

Lash link

I went for diamond, but sapphire would be more subtle. 

 

Brows 

https://thewomenlobby.com/products/eyebrow-ink-pen?variant=21296096870513

Brow pen link

I bought dark brown, so I think it's quite dark, so I'm careful in the use of it. Wish I'd ordered light brown now. 

 

Before and After for you

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