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June 2020 chemo starters

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Re: June 2020 chemo starters

Hi Tabs,

Thank you for your reply and the information given. Sorry I did not reply last night I was trying to get a good nights sleep before today, but that all went out the window due to nerves and my 7 year olds brain working overtime. He has Aspergers and he becomes very vocal at night. His thoughts come streaming out. 

 I am sat here trying to get as much water down me as I can as advised to do so by the nurse. I am very nervous about how I will feel as they administer the chemo and also when I get home later. Praying the anti sickness work.

 You seem really upbeat about the process and although I know it is horrible from reading what the ladies in here have to say I know it’s doable.

 I am not using the cold cap as I want to spend as little time as possible at the hospital. I also hate having headache and being cold. Moaning again you see lol!

 Hope everyone is feeling as well as they can be today.

 Lots of hugs and kisses

 Tara x

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Re: June 2020 chemo starters

Meant to say that I had a callback from haircare specialist this evening. I wore a cold cap for my first treatment (apparently you're meant to bring conditioner to put on your hair but I didn't know so had to use just water). Also the lady this evening said it's really important to brush hair well every day after chemo (hopefully that's to stimulate the follicles not just to collect the clumps). 

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Re: June 2020 chemo starters

Hi Tara, 

I'm late to this group, I wasn't due to be starting til 15th but actually had my first EC treatment 2 days ago. I had to have it through a cannula as there was no time to fit a picc line or port. If all goes well, I'll have a port fitted in my chest (non-mastectomy side) before my next round of chemo. At my hospital, due to covid, the ports aren't being fitted with any sedative, just a local anaesthetic. I think I'll wear an eye mask and headphones so that I'm not aware of what's going on in my chest at the time. I think it's a 3 hour appointment but I'm hoping that's very generous. 

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Re: June 2020 chemo starters

Meant to say brilliant news about the tumor shrinkage Ann. Well done xxx

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Re: June 2020 chemo starters

Hi everyone,

just got back from my cancer chat on the chemo unit. The nurses checked my veins in my hand/wrist and said they are going to try and use these the first couple of times then may need a port as my veins are thin. I have been told to try and drink 2 litres of water before I go in on Thursday and keep warm. They will use a heat pad if needed.

 They went through the side effects and I was given a rapid response card. They said if any thing does not feel right afterwards call straight away. I will get anti sickness intravenously whilst there and tablets to take home, emend or something.

 Was told to look out for diarrhoea and given a sheet of pictures explaining how it might look when I need to call. They said eyes might become runny or dry and if I get a red mark up my arm called tracking keep and eye and if it gets worse call in. I don’t need injections for the fec part just for the detoxal. 

 I was advised to take some food in with me as they have sandwiches but I may not like them, something to read or to entertain me and a water bottle. Apparently tap water is best. They have ice and water and tea and coffee to drink. 

 I was shown the room where the chemo happens and although everyone was a little older than me they were all calm and relaxed and have me a wave.

 I will have a nurse with me at all tones for my first treatment and then I think a machine dies it after that.

 She did not tell me the side effects of detoxal as she said lets get the fec out of the way first.

 Hope this helps and hope everyone is feeling okay today.

 Tara xx

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Re: June 2020 chemo starters

I had my first EC chemo 10 days ago and have just seen the oncologist, my lump has shrunk by 20%, this is apparently normal and very encouraging so keep positive.

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Re: June 2020 chemo starters

Mine was all about side effects, a lot to take in so I didn't ask any questions but it all starts to fall into place as time goes by.  You will probably be getting calls from the nurses who are a mine of information and what they don't know they will find out for you so don't worry if you can't remember it all.  As it is a phone call you could perhaps ask someone else to listen into the call so you have a second pair of ears, just a thought.  Hope all goes well Love aNN

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Re: June 2020 chemo starters

You should be given a rapid response card if you have not been given it yet. It is extra precaution for you to have this. You could also ask how long it will take if you don’t already know so you can take things of download music or tv show or take portable DVD player or book to keep you occupied. Ask about any vitamins or supplements you are taking too and if you should stop prior to chemo in case they interact with your chemo, it can differ from oncologist to oncologist what they want you to do if you are. Hope this gives you a few ideas of questions you might want to ask your team 😘💕💕Shi xx

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Re: June 2020 chemo starters

evening lovely ladies

well I’ve had my first chemo date through for 18th June, I’ve got a telephone consultation on the 11th to go though everything (apparently this is normally done in clinic but due to Covid-19 they are limiting gave to face appointments).  My head is all over the place at the moment can anyone suggest important questions I need to ask on the telephone consultation as I’m sure I will forget something important. 

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Re: June 2020 chemo starters

Welcome Ann and lam477 😊 I am also not usually a forum user but having lurked on the other chemo threads took the plunge and am finding it really helpful to be able to learn from and share with others going through this at the same time.

Here's the Cancer Hair Care link again: https://www.cancerhaircare.co.uk/ you can email them and then someone calls you and you can chat through any questions you have, they are lovely and very knowledgeable (and yes, they send you a free pack of goodies tailored to your circumstances!).

I am giving the cold cap a go despite its mixed reviews. For anyone who is offered that my experience is that the coldness is nowhere near as bad as I expected, but because it fit so tightly at the front I got a headache from that. The nurses have suggested I try an older model next time to see if it fits better. I will find out how successfully it's worked (or not!) imminently as I'm now day 10 after chemo... 

A few people have mentioned the injections. I was able to do it myself as I'm OK with needles and I can promise you that you barely feel it! No need for a plaster afterwards either. 

In terms of telling people it's such a hard decision. I decided that I'd tell pretty much everyone and those who I couldn't see in person I mostly did via email so they had a chance to absorb and I didn't have to deal with their immediate reactions. Also so that I could set the tone which was "this sucks, but I will get through it, please continue to treat me like a normal person as that will help me the most". But it's different for everyone so whatever you do will be the right thing for you. It is also incredibly tiring telling people; I did it in batches. 

When I was trying to decide whether to have a particular type of treatment, my oncologist said to me "only you can decide, but once you've made the decision be at peace with it and don't agonise further over it". That doesn't necessarily come naturally to me (like Tara, I like to be in control!) but it's been good advice for all aspects of this so far. 

Hope everyone's having a lovely weekend 😊 xxx

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Re: June 2020 chemo starters

Hello lam477,

I was like you and used to read the threads and have only got involved with this one. I think it is because I just want to get this roller coaster of a ride to be over as quickly as possible and never ever get on again.

 The look good feel better website has tutorials on how to apply eyebrows and eyelashes so I am told. Also I’m sure Cubot recommended Cancer hair care in an earlier post. She said they send out goodies when you register such as eyelashes.

 Sometimes I think it is easier not telling anyone about your diagnosis as all you ever find yourself talking about is cancer. Plus you can scare people. My mum told my brother the statistics of me having chemo and he misunderstood. Thought I had a 80 percent chance of recurrence rather than a 20 percent. We have never been that close but he drove to my house to talk to me on my doorstep.

 I have to be strong because I want my boys to know that should they have a medical condition in future or their partners and children they can get through it just as I intend to now. Don’t want them to be scared to go to hospital for treatment. Although at the back of my mind the fear of the worst is always there. I’m sure it is for all of us.

We are all here to support each other and I am thankful for that.

Hope everyone is feeling okay and has a good day.

 Tara xx

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Re: June 2020 chemo starters

Morning Ann, wow it must be so difficult dealing with everything on your own and not telling everyone.  Saying great though I’ve told work and close friends and family and now feel as though I’m wrapped in cotton wool, work have made me finish this week until after all treatment is finished.  I’ve just got myself a little dog to keep me company on the journey as my husband will be working and kids are typical kids stay in their rooms lol.  I’ve been looking at wigs but not got one yet.  Oh I didn’t think about eyebrows!! I don’t wear makeup so not got a clue where to start and I don’t want to look like they have been put on with a sharpie pen or have a surprised look all the time 😳.  I’m sure my husband will help with the injections as I’m scared of needles.  I don’t really know a lot about the PICC lines so will discuss this when I go in, someone said it would be easier as they always struggle to find my veins. 
I hope your journey is an easy one and little side effects x

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Re: June 2020 chemo starters

Morning, I don't have a picc line and don't want to as I feel it increases the risk of infection.  Yes I did have jabs to take home which my husband gave me for 7 days but nothing to be frightened about, very small needle, easy to use.  I have ordered a wig, cost about £300, it has not come yet so it's a bit of a race, since I don't go anywhere but the hospital, I am hoping that no one will notice, I am looking for advice on how to draw eyebrows as that is a dead giveaway.  I have not told a sole, none of my family know, everyone is under so much pressure at the mo and I can't see them anyway.

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Re: June 2020 chemo starters

Hello everyone, I don’t know if I’m doing this correctly but giving it a try, I’m not normally one for forums but thought I’d give it a go and reading through your posts you all sound so lovely.

Im due to start chemo in June I’m just waiting for my start date now.  Like all of you I’ve got the same worries, what’s going to happen, how will it affect me and the big one for me will I lose my hair?  On the phone the consultant said having FEC almost guarantees that you will lose your hair 😢. I’ve saw that some of you mentioned a pic line does everyone have this? And also injections at home? You’ve all given so much advice already but anything you can give would be amazing.  
We will all get through this (somehow) 

love to you all xx 

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Re: June 2020 chemo starters

Hi Ann,

My oncologist did mention diarrhoea actually. He said I would most likely get that than constipation. I just love how he knows exactly how I will react before I have it!

 The other ladies have advised not to eat a large meal as you often see the effects later. I have started to real Surviving Triple Negative Breast Cancer by Patricia Prijatel and she says the same lol.

 I need to try and eat a little more healthy as I have to admit since finding out I have cancer I have almost put a stone on. Don’t normally comfort eat but have this time. My husband has told me not to worry about it as I may find I struggle to eat when in chemo.

 I really appreciate all the advice all the ladies on the forum have given me. I am a bit of a control freak you see and hate that I do not have control of the situation, however I feel comfort in knowing what may happen. 

 Lots of love

Tara

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Re: June 2020 chemo starters

Hi Tara, yes some of the drugs are red, bit of sickness at first, feeling fine now but getting some diarrhoea, I am now trying to eat little bits often and have found some foods really help so now I eat chicken and rice, white bread, salmon and rice, bananas, just trying green beans, avoiding dairy and all other fruit and vedge, bit boring but much more comfy tummy.  I also take the odd probiotic.

They give you anti sickness pills to take home and steroids, the steroids also help with the sickness, and jabs for your blood so you should be well armed.

Hope that helps, my next treatment is Friday, I am having 3-4EC and then they are changing to 4-5 of another drug whose name I cannot remember.

I think it all gets a bit less scary after the first treatment as you know what to expect next time, it was also nice that the nurse giving me the drugs had to stay with me the whole time so I had company.  

I did make the mistake of coming home and having a good lunch, will not do that again!!!!!

Stay safe.  Love Ann

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Re: June 2020 chemo starters

Hi Ann,

Thank you got the advice on the pink wee! Is that because the chemo is red? Must be the Red Devil.

 Hope you are feeling okay after your chemo

 Tara x

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Re: June 2020 chemo starters

I started EC last Friday, your pee goes pink afterwards, hope all goes well for you, I'm in for 3/4 sessions and then cannot remember the other chemo name.  Keep smiling.  Ann

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Re: June 2020 chemo starters

Hi Cubot,

Thanks for the advice. I was going to put some eyebrows on my boxer dog but she won’t stay still 😝.

 I will listen to my body and try to eat little and often. These days up to my fist cycle are making me really anxious, I suppose it is because you don’t know what to expect.

 I might ask about the PICC line if that is what it is called. I am sure my husband won’t mind looking after it for me. He is going to have to inject me as I am too scared to do it myself.

 Thank you for your support 

Tara xx

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Re: June 2020 chemo starters

Sorry, got so carried away trying to find ridiculous dog photo I forgot to answer Tara's nausea question!

I got given anti-nausea pills before the chemo, but no anti-nausea drugs intravenously. They worked really well, in fact so well I ate a hearty lunch on return home. This was mistake #1! My top anti-nausea tips are:

1) Listen/read very carefully to the instructions you get on taking your meds. I got confused and didn't take a pill soon enough once I'd got home. This was mistake #2...

2) Eat little and often, do NOT let your tummy feel hungry as for me that's when I started to feel/was sick, and equally do not over-fill yourself.

3) Eat what you want, don't worry about being super-healthy if you feel sick. I tried to drink a fresh fruit'n'veg smoothie on day 2 after chemo because I was worried about fibre intake and diarrhoea (which I didn't get) and that didn't stay down. Next round I am sticking to marmite toast and fried potatoes until I'm ready to eat more adventurously!

4) I got super sensitive to some smells for a couple of days so if anyone's bought you lovely flowers you may want to move them out of smelling range!

In a nutshell - listen to your body and don't worry about a couple of days of 'unhealthy' eating. 

You can do this 😊 xxx

 

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Re: June 2020 chemo starters

If this isn't the place for a good moan where is?! 

Re PICC line - definitely ask about whether this is an option for you. You will need it fitted before you go in for chemo (mine was two days before). I found the fitting absolutely fine and didn't get any bruising or pain after. You will need to then go in weekly for what they call 'line care' unless someone at home is willing to be taught how to do it or you're comfortable going to your GP practice nurse (again, ask about these options as it sounds like every hospital is different).

Eyebrow wise yeah, going to have a play with make up but as I only leave the house to go to the hospital not sure I will be bothered to make a habit of it. My friends 'helpfully' sent me suggestions (see below for my favourite) of different eyebrow looks I could model but not entirely sure I'll be using their inspiration...

xxx

hmm...hmm...

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Re: June 2020 chemo starters

Wigs not dogs

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Re: June 2020 chemo starters

Hi,

I normally have a bob, bout this has grown due to lock down to just past my shoulders. I am going to get the clippers on mine when it starts to drop out. Thought the boys could help. Not sure if I am brave enough to do it before. My mum thinks I should embrace how the chemo will make me look. I am more worried about scaring the boys, but I don’t think they will take any notice when it comes down to it.

 

 I think having no hair makes you look ill and people start to feel sorry for you. I don’t want people to feel sorry I have to be strong to best this so want them to be also. One funny thing is my mums friend Julie lost all of her hair she 21 for no apparent reason, whenever we go out people congratulate her on how brave she is, she had stopped trying to have to explain she does not have cancer now 😝

 I have brought a real hair wig from trendco and have a synthetic one coming from wills wigs the hospital supplier. I have also ordered a cap with soft adjustable back. I guess I will try and tolerate the dogs but if they itch too much they will have to go.

There are some lovely hats and scarves on the internet. What will you ladies wear?

Tara xx 

 

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Re: June 2020 chemo starters

I shall look at getting one of those thermometers thank you. My sister in law who has been undergoing treatment for years suggested taking it to the hospital to make sure it read the same as their one so I shall do that. I do have a similar one but it’s for the horses and we all know where that’s been! It’s probably not a bad idea to have a human one at home anyway. 

Tara, don’t worry about having a moan as I’m sure we’re all going to be doing that at some point over the next few months. 

Next question, is anyone going to shave their hair off? I normally have mine short but it’s grown ever so much due to not being able to have it cut. I can’t decide whether to just get some clippers and whizz it all off. Although possibly not today as it’s flipping cold! 
The whole eyebrow and makeup thing scares me to be honest. I don’t wear makeup and never really have so I’m not sure what I’ll do when that time comes. Perhaps just cover up the mirrors in the house So I don’t have to see. Ha,ha. 

 

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Re: June 2020 chemo starters

 Hiya I bought a cheap thermometer from my local chemist and it works very well because the battery quid and yes they do give you the anti-sickness through IV are you allowed to moan  you manage to get a CT scan I wish I could've got one of those  seriously don't worry everything will be okay we are all in this together and good luck 

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Re: June 2020 chemo starters

Hi ladies,

blinking eck, I wish they had of told me my mouth and under arm thermometer would be okay. I have one of those I use for the kids. I feel like a right snob now and I’m not at all. Cancer is working out expensive for me too and it didn’t have to be.

 I am going to test both of them later and if I get the same reading will have a few choice words for my oncologist next week. 

 I was just wandering do they give you anti sickness through your IV as well as tablets to take home. I am really anxious about being sick. Also do they give you the option to have a PICC fitted because I am nervous of needles and they can never find my vein. Have a terrible bruise from them trying to get cannula in for ct scan. Sorry to moan on I have not even been a super star and had my fist chemo like you too ladies and I a already mithering! you will soon tell me to shut up.

 

 Have a nice day each. Hope every one is feeling okay

 

much love

Tara ❤️

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Re: June 2020 chemo starters

Hi Horseylass - calm and relaxed is great. I felt the same way although a few days before I did have a freak out day (which manifested as me getting increasingly stressed about what to wear and driving my family insane, oops!). We're all allowed to though!

I bought a thermometer but just a mouth one (well, it says it's 'most accurate' when inserted into the rectum but that's a step too far for me 🤣) for about £10 off Amazon - there wasn't much choice as most were sold out due to COVID. My hospital did have some they could sell patients for about £3 as well, not sure what type as they suggested getting my own in case they ran out. But likely not an ear one at that price so worth asking your hospital if they have those on offer? In terms of accuracy I had the same reading on my home thermometer and the fancy hospital ear one when I went to get PICC line care on Thursday so I'm now confident my home one is accurate enough. 

xxx

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Re: June 2020 chemo starters

Hi Horseylass.

I was Told to get a thermometer that goes into your ear as these are most accurate. I ordered mine off Amazon as it is hard to get a thermometer from the chemist at the moment due to covid 19. I will take a picture for you. I paid £60.00 so not cheap but needs must!

image.jpg

Tara x 

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Re: June 2020 chemo starters

Spoiler
Hi Tara
I don’t know what to feel at the moment really. I am fairly relaxed and calm at the moment but in my mind it’s happening weeks away. Having only put a date on it today I’m not sure it’s really hit home to be honest. 

It will be good to have others who are going through the same sort of thing. 

Thank you Shi for all your information too. Really helpful.

Does anyone have a suggestion as to which type of thermometer to buy as I know you have to monitor your temperature closely? 
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Re: June 2020 chemo starters

Mai7 another community champion on here does a blog, life after Lola that you all Should have a look at when you get chance 👍 she was one of the amazing people that helped me and the oct17 chemo gang through 👍hope this helps 💕💕Shi xx

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Re: June 2020 chemo starters

Hi Horseylass,

Welcome. You start your chemo a week after me then.

The other two ladies have already started and have given great advice and information regarding their experiences, which I have found extremely useful.

 Shi also has a wealth of information to help support us on our journey.

 Hope you are feeling okay. I don’t know about you but I am trying to relax and stay calm before I start on Thursday?

take care

Tara x

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Re: June 2020 chemo starters

Hi Folks,

Just had my letter from the hospital today. I start my chemo on 23rd June.
I’m having 6 rounds of EC. 

 

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Re: June 2020 chemo starters

👍great news Tara 👍💕💕Shi xx

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Re: June 2020 chemo starters

Hi ladies,

thank you for your replies. I have had my bone and ct scan results and they are both clear, yay! The oncologist said there was a mark in my right breast on the bone scan so he had to wait for the ct scan to take to the MDT meeting today to get checked out. All professionals have agreed it is scar tissue from my surgery and nothing to worry about. They will monitor me after chemo.

 

 Well done on you first chemo Cecilia, fab that you had no side effects.

Cubot that is a brilliant idea of how to get my boys involved I will definitely use that.

 Lots of love

Tara xx

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Re: June 2020 chemo starters

Hey Cecilia that's fantastic news you're feeling great and got no side effects! 🎉 My nausea and fatigue have now gone completely (week after) and quite enjoying being able to be a lady of leisure (every cloud eh?).

Tara - your chemo hamper sounds awesome! It's so lovely when people demonstrate how much they care about you 😊 I've started keeping a photo diary on my phone of my 'journey' which is a mix of photos of all the medical stuff (scans, post-surgery, having chemo etc) as well as all the lovely things my family and friends have sent me. If I'm having a crap day I find it helpful to look at and see how far I've come already and all the support I have around me. Maybe you could do one and get your boys to be the photographers and curators!

I did ask my specialist nurse about clinical trials and I was told that most have been temporarily suspended due to COVID. 

xxx

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Re: June 2020 chemo starters

Hi Tara your chemo comrades on this thread and others will 👭get you all through together 👭 take it a step at a time 👍💕💕Shi xx

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Re: June 2020 chemo starters

Hi 

so I went for my treatment on Tuesday herciptin it was all going until the very last hour 

when the cold and the shakes set in and my temperature went up 

the team of nurse where quick to give me the medication to bring the temperature down 

and they only allowed me to go home when they were hundred percent sure that I was fine 

whet back the next day for my first dose of chemo and zometa 

i was given three other medicines prition anti sickness before my chemo infusion 

i felt great with no side effects 

im back next week for my second dose 

hope you are doing ok 

big hug 

 

 

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Re: June 2020 chemo starters

Thanks For the advice Shi. I know I am in good hands and will be sure to discuss any trials I feel may be relevant.

sorry I am not really clued up on Breast Cancer. You never really think it is going to happen to you and then it hits you and your life completely changes.

  My Nan had breast cancer at the age of 42 and died 14 years later when it recurred and went to her Brain. That was 26 years ago and things are so much more advanced now. When I was first diagnosed I just had visions of my Nan not being here and did not want to have the same fate. I have been positive and know I have to beat this. I have so much life still to live. I find taking my husband to appointments has helped as he really listens and can explain what has been said more clearly when we get home. I panic a lot and don’t listen properly. Ironic really because I am always asking the children in my class if they are listening to me and when I am nervous I go to pot and behave just like them.

 I am really grateful that I can have chemo and although It is not going to be nice it will hopefully assist in curing me. Be sure to know that anything that does not feel right I will call  the unit and get it checked out. I have two boys and need to be as well as I can for them. My youngest has Aspergers and struggles with change. The boys are having to shield with me and cannot go back to school so will be living part of my journey too. 

Thank you Shi for your advice and knowledge i will be calling on you for support if that is okay as I go through the chemo process?

 

Tara xx

 

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Re: June 2020 chemo starters

Blase not blade sorry text gremlins 🙄💕💕Shi xx

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Re: June 2020 chemo starters

Tara, it’s worth you researching trials and asking about them always worth asking about, they won’t mind ❤️ Great news clear margins and no node involvement 👍 and always good to hear your team are being thorough and checking you out so you have peace of mind 👍 trust your team, they have seen it all before and will get you through safely. Treat chemo with respect don’t be blade, anything that doesn’t feel right ring your unit even if you don’t have a temp 👍 step by step 👭 everyone gets each other through safely ❤️💕💕Shi xx

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Re: June 2020 chemo starters

Hi Shi

no one has mentioned trials to me at the moment. Just had my surgery on the 9th April, 19mm lump removed with clear margins and nodes.

i am due to start chemo on the 11th June which will be FEC-T every 3 weeks for 6 cycles.

The surviving Triple Negative Breast Cancer by Patricia Prijatel is what I have down loaded.

My surgeon did not think I needed the bone and ct scans but as I have been having aches the oncologist has requested them to put my mind at rest he says. I am still scared though.

 I have been keeping away from google only using this site and Macmillan. I am a very anxious person and want to get through this journey as stress free as possible.

Tara xx

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Re: June 2020 chemo starters

Hi Tina ❤️ A book that helped me was surviving triple negative breast cancer by Patricia prijatel. Also robin Roberts a tv anchor woman and Joan lunden a tv anchor woman who are tnbc survivors were great inspirations too. Please keep away from dr google if you can there are new trials and treatments happening all the time, look for those and speak to your onc if you can get on any. Also md Anderson in USA are worth keeping eye on too for their updates in research 👍 do what’s right for your journey 👍 💕💕Shi xx

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Re: June 2020 chemo starters

Hi Ladies,

Hope you are both well. I am getting really anxious now as I hear towards my start date.

 Had a CT scan yesterday due to the little aches I have been having in my bottom and upper thighs. Well I say aches it’s more of a bruised/ burning sensation. I called the hospital to see if they had my bone scan results from last week, which they do and had a melt down as they said they won’t give me the results until they have been spoken about them in Fridays MTD. I had a panic attach as can not understand why they can’t tell me if there is a problem or not. I am so scared. After talking to the oncology nurse, the breast nurse and oncology secretary I have now been assured that results have to be discussed in an MDT meeting regardless of the outcome. I am still worried though.

 Hope you are both coping well and thank you to Shi for the brilliant advice.

My brother and his wife dropped a chemo hamper off on my door step tonight with chocolates, something to read, lotions, fluffy socks, and a water bottle it is really nice. My husband downloaded surviving triple negative breast cancer on my kindle and my boys 7 and 9 are ready to be my hair dresser when it starts to fall out.

 Funny what life throws at us and how it changes so quickly. We are strong 💪 and we have got this!

Take care

Tara x

 

 

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Re: June 2020 chemo starters

Keep close eye on mouths any sign of oral thrush you will need antibiotics ASAP, ring your teams, fluconzole tablets worked well, lots of people get oral thrush on chemo so don’t think anything of it, just get it sorted with antibiotics 👍💕💕Shi xx

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Re: June 2020 chemo starters

Thinking of you today + tomorrow Cecilia 😘 

Shi - I 100% endorse the drinking loads of water - I got a really dry mouth too which at least reminds you to keep drinking!

Look Good Feel Better are doing online workshops during lockdown - BYO makeup but they said they'll work with whatever you have. Cancer Hair Care sent me a free support pack (including fancy self-gluing eyelashes!) and I really recommend contacting them, they were so lovely and helpful.

Tara - a little bit of retail therapy sounds like an excellent idea 🤗

It's all very weird at the moment with not being able to meet anyone - very grateful this forum and everyone on it are here. xxx

 

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Community Champion
Community Champion

Re: June 2020 chemo starters

If you type eyelineHerBlog and search then watch her tutorials, she is very good and with bit of practice you will have them down to a t soon, also you can get eyebrow stencils and good tip if you use them just a brown or taupe eyeshadow with a stiff little angle brush works well 👍 the fluid intake helps keep things flushing through 👍 always ring your units if you don’t feel right even with no temp, always best to check with them so they get you through chemo safely ❤️ 💕💕Shi xx

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Re: June 2020 chemo starters

Hi Cecilia

Good luck tomorrow and Wednesday. Hope it goes as well as it can for you.

 

I am looking at my treatment in stages like you I think it makes it easier to deal with.

 

 Thanks for the advice about the water Shi, I will remember that. I had a look at the look good feel better website so will be sure to learn how to do my eyebrows when they disappear. I would normally ask my 14 year old step daughter to draw them in but she has not been around since the weekend before lockdown. She has younger siblings in her household and in ours so her mum was worried about me getting the virus should one of the children get it. It’s the kindest she has ever been to me. My hubby thinks loosing my eyebrows will upset me more than loosing my hair. I am prepared and have got my wig ready. Think I might order a nice baseball cap too for if I don’t feel like wearing the wig. 

it’s been lovely hearing from you ladies and your advice/experiences. Thanks for the support.

Tara x

 

 

 

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Re: June 2020 chemo starters

Hi cubot 

thank you for your advice 

im just ticking off all of the treatments off one at a time

and taking each one as a unit 

first the surgery

then it was the radiation

 tomorrow I'm getting Hecptin

and then the chemo the next day 

Take care and I'll let you know how get on 

Community Champion
Community Champion

Re: June 2020 chemo starters

❤️Don’t forget to drink 2-3 l of fluids a day too helps flush things through and if your antisickness meds don’t work ring your unit they will tweak till they get you on right combination 👍if they need to ❤️ if any of you have it via cannula in hand then they can get you to put your arm in bucket of warm water prior to chemo this helps the veins and you can ask for a heat pad for your arm too to put over arm while having chemo ❤️ when lockdown lifts speak to your Macmillan teams about booking onto look good feel better session ❤️ there are some good tutorials on u tube how to do makeup that a lady who had alopecia has done, How to create look of brows and lashes 👍 💕💕Shi xx

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Re: June 2020 chemo starters

Hi

 well done on your first chemo!

Thank you for the explanation of the process and advice. I have to go to the unit 2 days before chemo starts so will take a note book with me to write down about meds. I too need to inject so will need to know how to do this.

 I am sorry that you were sick. I really don’t want to be sick but we just have to see how our bodies take it. I guess now you have your meds sorted it will be better next time around.

 You seem really positive which is reassuring. I am so anxious at the moment it makes me feel sick. I am also waiting for bone scan results which does not help. Although I got clear nodes and margins from surgery I have been having aches in my bum cheeks and thighs. I am worried sick the cancer might have spread. I hate feeling like this. Can’t wait to start chemo and getting on with my life.

 

 It’s lovely to speak to someone that is going through the same as me. I appreciate uout advice.

 

 Tara x