Dear Horseylass, Tara and everyone
I’m also having my bloods done tomorrow, I really hope they are fine. I’ll also have a Covid test because all the cancer treatment around here is being done at a private hospital, as our local hospital is a Covid hotspot. They won’t do any treatments or operations with a clear test. So this will be test number five!
I know what you mean about dreading the chemo, Tara. I woke up with a really bad headache this morning and then started to feel sick. I even had to have one of my anti sickness tablets which I haven’t needed for well over a week. But as my sister says once I’ve had this second treatment I’ll be a third of the way through.
Yesterday I tried the wigs on and hated them! They just looked too hairy 😂😂, I’m going to send for a couple more. If they are no good I’ll just wear hats.
Tara I thought you looked young in the photos you’ve posted. I now realise I’m old enough to be your mum! You are very young to get breast cancer. Sorry to hear about your friend. Have a happy birthday tomorrow.
happy birthday for tomorrow tara. I had my 3rd chemo on Thursday and felt quite sick this time round but wasn't actually sick as took the tablets but they seemed to take longer to kick in this time. Iv also been sat in garden as feeling really tired so nodded of a few times lol. Got to go for scan to tomorrow. I presume that to see if it shrinking ok so fingers crossed I can tell it not as big now but that might be just wish full thinking. X
Hi Horseylass and other ladies,
hope everyone is feeling okay today!
Well done you on the 3 mile walk, wish I could do that. I get breathless just walking around my garden. Not sure what to suggest about your itchy head. Now that mine is almost all out I find coconut oil soothes it. Maybe you could use this now, but check first with your team.
Your tight it has been quiet in here for a few days hasn’t it? I have not been in because I had a really good day on Thursday, even managed to go out in the car and choose some new bathroom tiles. With a mask on of course and then Friday I was so tired, it was like it had knocked the stuffing out of me.
It’s my birthday tomorrow and had a few members of my family over yesterday for a little cream tea in the garden. Also for a couple of days I had forgot about the cancer. Being distracted was lovely. Sounds weird but ever time I think about having chemo again I get nauseous. It’s not that I am finding it bad just the thought of how I feel for the first couple of days after. Sometimes I think feeling sick is actually worse than being sick.
I found out last night that a friend of mine found a limo around the time I was diagnosed that was not cancerous but they were concerned from her ultrasound that there is tissue in her breast that could change to an aggressive cancer. I’m she had a mammogram Friday and is waiting for results. She is 39 a few years older than me but how common is this bloody disease?
On a brighter side the weather is beautiful here today so I have been in the garden, which makes me feel happy. Hope everyone else is enjoying the beautiful weather!
Lots of 💕
How is everyone? It’s been quiet on here this week. I hope you are all doing well?
I’m getting ready for bloods on Monday and all being well round 2 on Tuesday. My hair is getting noticeably thinner. My scalp feels really itchy but I’m trying desperately not to scratch it.
I’ve been feeling good this week and have managed 3-4 miles walking everyday.
Oh Ann that must be so frustrating for you. I have been warned the same but you just hope it won’t happen, don’t you? Hugs.
i was thinking about the smell thing and sniffing some of my clothes. I can’t smell anything on my clothes but since my surgery I have thought that I have a kind of clinical smell! When I got home after my first chemo my dogs were very interested in smelling me so they could obviously smell something different.
I’ve a week to go til my next chemo and I’m feeling pretty well. I’ve walked over 3 miles today with the dogs.
Hope everyone else is ok?
Hugs all round. xx
Sorry to heat about your treatment. I know how you feel just want to get through it as quickly as possible. Suppose it has to be sage to do so though. I myself feel really tired today. It’s hard gong but we will get there!
Think a couple of other ladies had a delay which was gutting for them too.
Hope everyone else is okay?
Lots of love
💕 Tara xxx
Feeling a bit gutted, my chemo has been delayed for a week as my bloods are a bit low, I had been warned that this could happen so not really a big surprise but any delay is not welcome.
sorry have not been on much over last couple of days. Step son is driving me 😠
About the smell. I can smell it too. I put bio oil on my scar after a shower or bath and coconut oil in my head, but it’s not like sweat but a funny smell. My family say they can’t smell it either. Perhaps we are just sensitive to smells.
Hope everyone is okay today. Weather is nice.
Lots of love
Lol hi cactus queen. I'm glad you said this. As I been saying to my husband do i smell as csn smell a funny smell he was saying no. Even after i showered and put clean clothes on i say it again. So maybe it just a chemo smell we getting 🙈🙈 xx
Dear Anna, Horseylass, anyone else who had their first treatment on 23rd June, and everyone
I haven’t had any hair loss yet but it’s just a waiting game really. Maybe the cold cap just delays the inevitable. I’ve got a couple of wigs to try but so far haven’t been able to put them on. I’m terrible with the new things, I cried so much I first time I put a softie in my post surgery bra and tried that on! Later on this week my sister is going to come round while I try the wigs on.
Has anyone else noticed that their clean clothes smell funny?! 🤣 This morning I got a clean top out of my wardrobe, it was one I have worn since chemo. It had a really strong smell, a bit like olbas oil. I sniffed a couple of other tops, one them smelt. Other clothes I haven’t worn since chemo don’t smell. Now I’m wondering if I smell!! My husband and son say I don’t but good job I’m not going anywhere.
Finally a sunny day here. Take care everyone
Glad to hear you managed to cope with the hair loss and didn’t loose it all ! Maybe il keep some of mine too fingers crossed 🤞 although it’s very fine normally and even thinner now but trying not to shave it off until I know there’s no more hope . I hope you’re making tv good progress x
Hey Ladies I also used the cold cap, my chemo ended in January, I had 4 EC.
I just wanted you to know that although I lost about 70% of my hair, it was mainly from the top of my head , I still had enough to disguise the baldness and only wore my wig when I went somewhere nice. The worst hair shedding was around the time of my second EC and it just continued to fall out but by bit from there.
The good news is that it’s now 6 months on and my hair is really thick and curly!! In fact I can’t do anything with it , it’s growing so fast , so don’t give up on the cold cap, I think it protected my hair follicles and allowed my hair to recover quickly !!
Good luck with the rest of your treatments and hang in there xx
Hi Tabs , I’ve had 2 cycles of Fec using the cold cap . Mine stated coming out last week a few days before cycle 2 , not clumps but lots of it ! Hoping it might stop before it becomes too noticeable. Have got a wig ready but not looking forward to the fact that I might be needing it . Pretty gutting when we’ve pushed through that awful cold cap x
Dear Anna and Horseylass,
I had been foolish enough to suddenly get my hopes up that I may not lose my hair when it was all there on day 18 and 19 (of EC with cold cap). I thought maybe that's the difference the cold cap makes or maybe I'm just lucky. Previously, I'd been expecting it to go by day 15, but getting my hopes gave me an extra sad couple of days when it started coming out a pace on day 20. Am over it now but just warning you so that you can be more sensible xx
Yes Anna, Day 13. It was a bit of a shock but it gave my husband his first and probably only opportunity to cut my hair. 🤣 He made a good job of it I think.
Gosh, horseylass, even if you’re expecting it, that’s got to be quite traumatic. I’m dreading it. Are you on day 13 same as I am? (23 June 1st treatment?) I’m expecting it any day now too.
I know I'm having one every week for nine weeks and then I have nine herceptin every three week I have not been sick or unwell since my first section Just a bit tired sometimes
So far so good I did had to stop for two weeks because of low blood count Took about three weeks for my hair to completely fall outJust a bit tired sometimes
So I put my hand on my head this morning and came away with a handful of hair!
The clippers have come out and I’ve gone loads shorter. I wonder how long until it all comes out.
I also seem to have really sore toenails today.
Gosh Cecilia your chemo sessions are really close together. Mine are 3 weeks apart. I can understand your concerns about having a line. I’m not sure I could cope with one.
I'm booked in for nine section of chemotherapy and booked in for nine section of chemo
New and I've already had three so by the 15th of July I would've already had five altogether leaving me with For
This is the reason why I'm thinking to decline the offer of a picc line
I live in Hertfordshire And the service you seem to be quite slow I should've been offered a picc line right at the beginning of my treatment
i've been told that my my veins are very difficult to find and probably by the end of treatment it was a possible chance of veins collapse
are we got along to the appointment on the 15th and see what they say
You are all well thank you for the compliment on the haircut
My picc is in my right arm as my cancer is in my left breast. Thou it took a bit longer to get mine in due to my veins I didnt feel a thing as they give you a numbing injection. Takes a few days to get use to it. But now it no problem what's so ever. X
Ceilia and lam I have to agree with the other ladies comments, you go look beautiful. Isn’t it funny how perfectly round our heads are? I never expected that! Also how much we think we look like other members of our family?
Lam, I don’t know how you are working at the moment. Fair play and well done you!
Jo, I am sorry that your veins collapsed that must not have been a nice experience. I think the PICC line is a good option. Hope you start to feel well soon.
Ann, you could be right about my step son as every time we have a dilemma in our house he can’t seem to cope and it’s like all attention has to be on him. It’s hard to try and ignore it but that is what I have to do. I have taken him to a councillor in the past who has told me that although he is really close to me he will do anything he can to try and get me to push him away like his mum did. He will get there in the end, but at this rate probably when he is 30!
Cactus queen, glad you are feeling better now. The first week can be a bit iffy with sickness.
Sun is shining here today Which is lovely to see. Hope everyone has a lovely day.
Sorry if I have people names or replies to your posts incorrect I am trying to remember who has said what they have and reply to all but chemo brain does make it difficult 😝
Love to you all 💕 Tara xx
Is your picc line in your left or right arm? Did it hurt? I’d rather be knocked right out to have it done but it’s only local anaesthetic as Mine has go from my right arm vein across chest 🤢 to near heart, due to having Axillary node clearance and mastectomy on the left .
The hospital said a district nurse may be able to come in and flush it weekly for me as, like you , would have a 20 mole treck to hospital otherwise. Maybe you could find out if a nurse could come to you ? X
Hi jo 77
I had a picc line put in day before my treatment started. It was fine bruised a bit but been ok. And you then dont hv to worry about needles or thinks as they just attache any think to the picc line. I hv to go to picc clinic every week to get it flushed out which is a bit of a pain as it takes 25 min to get there and then I'm in and out . I was given a waterproof covering for showers and baths but then I brought of Amazon some pretty picc covers to cover the bandage they give you.
Hi Iam477, I am astonished you are still working, well done you and I can only see a pretty lady in your pic so unlikely to scare anyone. I am not as brave as you, I have just let it all fall out leaving me with about 10%, I sent my wig back and bought a bucket hat which covers all for hospital visits. Love aNN
Good morning 🌅cactus queen and everyone else ! Hope your all feeling ok today ?
I had my second cycle of Fec on Friday , my veins collapsed after the first tube of poison this week and now have to have a PICC line put in in a few weeks 😣 I’m absolutely dreading it , I can’t watch any of my treatment .., I hate needles. Wondering how anyone else is finding it ?
I’m am using the cold cap 🥶 but have had rather alot of hair coming out over the past 5 days and gone rather thin , but not too noticeable.... just praying it stops. Anyone else the same or is it working better ?
Ive had bad feeling of nausea after both treatments which have lasted 24/48 hours and generally off my favourite foods but not too bad . Have a pleasant day ladies x
Hi Tara, I know nothing about children but I did wonder whether your stepson after being rejected by his Mum was worried about loosing you to cancer.
It shows off your face beautifully, I thought you said you were going grey? Lovely strong features, you don't need a wig.
Good morning everyone
I’ve been awake since four o’clock listening to the crazy stormy weather. I’ve just read all the posts from yesterday, all so very thought provoking. I also have found myself thinking in a positive way about relatives who are now longer around. I thought I was going a bit crazy, now I know it’s normal. I’m definitely going to think about my grandma when I have my next chemo on the 15th.
Cecilia, I wonder why they want you to have a PICC line now so far into your treatment. I had mine at the beginning with very little information as to what it was. I was just told I was having it. When I went to have it fitted the doctor took time to explain it to me, and then asked if I wanted it. It felt good to be in control. It is useful to have for blood tests and to administer chemo. I bought a Limbo protector to wear in the shower as it can’t get wet.
I’ve lost track who is using a cold cap for their treatment. If you are how was your hair loss after the chemo session?
Have a good day everyone.
Thank you horseylass but I think I look like an alien. I’m slightly confused as well..... I’m naturally a ginger so no idea why the little bit of stubble is black 🤔🤔
im sure you will rock the bald look when it happens, others see something completely different to what we see ourselves xx
I have to say ladies that I think you are both rocking the bald look. I think you both look beautiful. 👍🏻👍🏻👍🏻
I’m still convinced I’m going to look like an alien. 🤣🤣
Sleep well everyone. xx
Oh I don’t know how to turn the picture 🤔 it’s scary I now look like my brother lol 😂.
well my brother and his lot came over tonight and I didn’t scare them away 🤣. Let’s see what the office staff think on Monday 😬
Evening ladies good evening ladies
Hope that you're all well I've been booked in for a picc line on the 15th of July
I'm thinking of declining it only because I'm a bit worried about it
And as from the 15th I only have three chemo section to go so I'm not sure if it's actually worth it
it's so true about how cold your head gets without hair on it
I'm having to wear a hat to bed and my head is so prickly
i'm slowly getting used to my alien hea
It is such a shame that we don't all live near each other and I'm sorry I don't get to write as often as most people it's only because I don't know what to say
I have been very lucky to be sick but from the very first chemo session I had-
but stay positive everyone
No I didn’t go for the cold cap.i really didn’t want each session lasting longer than necessary and I just didn’t really fancy it. I think it’s just hanging on in there for now.
For those with cold heads in bed, I have got some of the sleep caps as I was warned my head would get cold. Hats4heads had them.
It is really nice to have this space to talk to people who understand what we each are going through, I agree. I like the point about us all being on different treatments as they know so much about our respective cancers. That does make you feel like we are getting the best that is available to us.
Keep smiling ladies, we’re beating this awful thing one horrid chemo at a time!
I am also sorry to hear that you were sick. I have emend to take for the two days after chemo and steroids 3 times a day. I also have domperidone not sure that is spelt correctly. I take these 3 times a day if I feel sick.
It can be hard with the children. My hubby is here but he too works so you are doing a fab job! My two are oblivious to how I feel and still have their arguments etc. Just shows we are doing a good job at keeping things as normal as possible. My 18 year old step son is the worse. Very mouthy and he has just got himself a 24 year old girlfriend which has been a challenge. He disappears off and is not back when he says he will be so I worry he might have had an accident on his moped. My husband has told me to lock him out now, but I won’t do that. He also speaks to his girlfriend til 2 in the morning and it keeps me awake. Although we had to have a heart to heart on Thursday because he was sacked from work due to being tired in the job. He had a lot of issues from his mum abandoning him at 9. She did not want him only his sister. He does not have much respect for women. Feel like I do all I can for him and he could be a bit more courteous. But hey ho. Like I said things can’t seem too much different to them or they would behave more should we say?
I am so glad we have each other and can share our problems and experiences whenever we like. I have made some lovely friends on here.
thank you all
Hi Lam, I did speak to the chemo helpline about the nausea although it was about 5am one morning when I couldn’t stop being sick - so it was a team covering overnights. They changed the anti nausea meds and it got better, but I think next time they will probably give me more up front.
It will be fine 😛
Well done for keeping going Anna, that sounds like a really hard week with the picc line and the kids but it sounds like you're on the other side. I'm on day 6 of cycle 2, a bit tired, woozy and sore but just trying to keep my head down and hope that this will be the worst of it for this cycle. I'm looking forward to being half way through my EC. It's a big comfort to know we've got each other for support on this journey.
Anna45anna sorry that you have been feeling so unwell. Did you speak to your oncology team about the sickness? Glad to hear that you are feeling better though. I know what you mean about the exhaustion of parenting and I’ve got my hubby to help. He’s at work during the day so it’s all down to me, they have been good but my daughter who’s 14 had the attitude and it’s exhausting.
haha Tara it’s just like brain freeze isn’t it 😂. Maybe we will get used to the cold or I hope so anyway.
ive got my brother and sister in law and their kids coming over tonight for an hour and it will be the first time they have seen me bold, let’s hope I don’t scare the kids 😂 xx
Hello Lam, Tara and others,
I’m checking back in on day 12 here. Feeling heaps better after a rotten first week. After 5 days of nausea and vomiting, I got a clot in my Picc line so was in and out to hospital last Monday and Tuesday and now taking Clexane injections each night for 6 months. But since then I’m feeling well and it’s amazing how some days of feeling well helps even mentally to get you strong for round 2. There were days early in round 1 when I just felt so lost and miserable - and it’s nice that it lifts and life can feel normal again.
I’m a single Mum to 3 children (10-14 years) so they went to my in-laws for the first week till we saw how I got on with first round. They’ve been home with me since Wednesday and although they care about me I have to say the parenting can be hard going - I lost my temper over screen time on Thursday and almost collapsed with the instant physical effect of stress on the body. So I’m taking help from anyone who offers and sometimes just get into bed and forget about it all. Today I have just one child at home and that’s quite manageable 😀
I've marked the calendar with the 5 further chemo dates and will be a bit gutted if any dates have to slip - but apparently it can be common enough to have to wait a week or two for example because bloods don’t come back to normal in time?
At day 12 my hair is hanging on strong. I kept giving it a tug at the back but so far all there. I had long hair so got 12” cut and donated it, so now I have a short style for another few days. I’ve been practicing with beanies from AnnaBandana, in my favourite colours and that feels good. Not comfortable with my wig yet - felt really ill on the day I chose it and hope I didn’t make a mistake!
Long message 😖 Take Care, all.
You are not being morbid at all it’s just nice to feel close to people when we are feeling poorly ourselves. I totally get it!
I too gave my hat on at the moment as my head goes cold. It’s like you have brain freeze when you get out of the shower 😝 I sometimes wear it to bed but have to be careful my head dies not get too hot. Sometimes when I lie my head on the pillow it is like stinging nettles. Mind you I think silk pillow cases are supposed to help.
I had a chemo pack off a local charity called ‘balls to cancer’. In that there is a gel pillow in there as well as other goodies such as a disabled toilet key, not that we can use it at the moment and am travel sick hands. I might try the pillow later!
I’m the same my hair started coming out about day 10/11 but day 15 I had a couple of patches so took the plunge in shaving it off.
i totally understand what you said Tara about getting support from people who are no longer with us. We lost my father in law at Christmas through pancreatic cancer, when we had him cremated I had some of the ashes made into a pandora charm (sorry if that’s morbid) but I wore my bracelet when I went for the chemo and took comfort in knowing he was there with me and looking after me. We were really close when he was alive.
I can’t wait to feel back like myself after all the chemo then radiotherapy but as hard as it is at the moment we are all having this treatment for the right reasons so we can actually still be here.
im feeling the cold with this shaved head and sat in my living room with a woolly hat on lol 😂 kids find it amusing 😂
Horseylass, did you cold cap? Because if you did you may not have any hair loss. Mine started to come out bad at day 14. Like other said I suppose at least we know the chemo is working.
Lam, it would be nice if we could all live around the corner from each other wouldn’t it? It would be lovely to meet up for a cuppa and even something stronger when we are over this 😝
I totally understand what you mean about people not really knowing how you feel. People care so they have nice things to say to encourage us, but until your body feels it you realise that all you have ever been to people that have had cancer is a person of kind, positive words. I said to my mum the other day I don’t think I have had it too bad, especially not as bad as my Nan 26 years ago but I wonder how long it will take after the treatment for me to feel like me again.
I tend to work myself up before treatment which doesn’t help. On Thursday when I had my 2nd round it was 12 months to the day that my mums partner had a brain bleed and died at the age of 57. I was really dreading going to chemo Thursday but asked my mums partner to hold my hand in my mind and this really helped. It was not too bad. I know everyone has their own beliefs and I do not go to church and do not think that I am highly religious but I feel comfort in knowing I have the support of people dead and alive.
Sorry to be morbid but what I am trying to say is that if we grab strength from wherever we can get it we will get through this. You ladies are give me so much positivity and I truly thank you for this!
Ann you are so right about the support this group gives. I don’t know about anyone else but I try not always very well but I try to put on a brave face for everyone and stay strong but in here you can be completely honest as like you say we are all in the same boat.
Don’t get me wrong my husband, kids and brother and sister in law have all been amazing and I couldn’t of got though it without them but like they have said they can only try and understand.
thank you to all of you lovely ladies for your support and encouragement through all of this. Shame we don’t all live down the road from one another we could of all had a socially distanced cup of tea 😊
The family situation makes you realise the support that this group offers. Here we can be completely honest and we all understand, anyone who has not been through this cannot understand. What is also facinating is that we all have breast cancer but we are all getting different regimes for treatment, shows how much they know about our cancers.
Keep strong girls and no matter how trivial, keep posting when you can please.
Sorry, I’ve been quiet too.
Tara, so sorry that you’ve had nausea again.
I haven’t yet got to the hair loss stage but I’m only on day 12 of my first cycle. I am thinking about getting my husband to shave it off before it starts falling out just to make it easier. As someone said earlier on this thread, I think, at least you know your chemo is working.
I don’t really know how I feel about it, I’ll let you know!
Gosh Ann, 2 days in a row. I suppose at least it gets you through it quicker. I am finding that the time is dragging until my next cycle.
Much cooler weather here too which does make life easier on the whole but a little warmer would be nice. It is July after all!
Enjoy your weekend ladies. xxx
Hi Ann and Lam,
Sorry I have not posted until today my head goes a little fuzzy after chemo and I find it hard to look at screen on phone. Hope you are okay Ann? It has been quiet in here hasn’t it?
Lam, it is hard when you have to shave off your hair. For me it was a relief because it just kept falling out and it was so hot on the day I did it I couldn’t stand it anymore. My husband was reluctant to do it as he thought I might cry. We have a funny relationship though and always tease each other so he laughed at me like he does and that mad me feel better. He said I look like my grandad Barry and calls me big, bad Baz now 😝, however I can appreciate how it may have upset you. But remember it will grow back. It’s just hair! In the grand scheme of things it’s small with how strong you are being with your fight! You go girl x
My dad just came over to drop off my birthday cards and he said he would not be able to go through the treatment that I am. I told him I want to live so this is what I do. I sent my auntie a picture of my shaved head and it upset her my dad said. She has not spoken to me since the text but that is her problem not mine. I just wanted to let people see I’m good and feeling quite alright. I can do this! It is nice that you have your sister for support and I’m glad you feel you can chat to her.
Hope everyone else is feeling okay.
Hello everyone. Tara hope the sickness passes for you. I’m due my second round on Thursday and I’m dreading it with how sick I felt before.
i had to take them plunge and shave my hair last night, more and more was coming out everyday and I kept letting upset, then I found two bold patches and typically they were right at the front so couldn’t hide them. I sobbed like a baby when hubby was doing it. (Think he had a little tear as well behind my back). Still a bit emotional today especially when my sister told me she’d been crying for me as she felt hopeless and there was nothing that she could do (she doesn’t realise how much she is helping just having a cuppa and chat)
hope everyone is ok xx
Gosh I thought I had left the group by mistake, nice to hear from you Tara. I finished my 3 x EC last week and start a new chemo next Thursday, 2 days in a row that should be fun!!!!!
Hope everyone is feeling okay today.
I had my second round of fec Thursday. Side effects not too bad just feel a little nauseous, but sick meds seem to be keeping it at bay.
Think my eyebrows are coming out now as my mum said they looked like they are thinner this morning. Not too worried though as I h Ac be big bushy ones normally 😝
I have got a slight rah on both arms, little round brownish dots that look dry. I have a similar rash in my belly and have had this before when I have been away on holiday. It looks like a sweat rash. I have no temp but will ring the unit to find out what it might be to see if I need some cream.
The weather here is much cooler but it seems to help when it is cooler especially with sleep.
Have a good day all