Hi Michelle, welcome, the more the merrier, it sounds like we are on similar programmes, I've had 3 x ec and now on HP & T for 4 infusions.
Tara, how are you doing?
I’ve been ok. The second round I didn’t have any nausea at all and I’ve been managing to walk at least 3 miles every day which I think has really helped me. I had a lot of heartburn after my first round but I now have tablets for that which have stopped it altogether.
I did the injections myself as my husband is a wuss too. Not a nice job but bearable although I was glad when they were over! I think that’s one of the worst bits.
Thank you for your welcome.
Ive not been too bad all in all, those injections of filgrastim have been the worse bit for me. Ive had to get a friend to do it for me, im a bit of a wuss when it comes to needles 🙂
How have you been?
Welcome to our group. I have my 3rd EC on 4th August, I’m having 6 EC.
How have you been coping with it?
Hi i started my treatment 15th June. Ive already had 2 EC and have my 3rd on the 29th July. I then start on THP for a further 3 treatments.
Hi thank you so much for your comments. It doesn't mention in all the info that you receive that it can be painful. I feel much better now and won't be too surprised when it does fall out xx
I agree with what everyone else is saying that’s how my hair felt before it started falling out, like I’d had my hair up too tight and it needed washing.
Hi Claudia I am a July starter too on FEC day 4 but I have had awful headaches which are common for me anyway. Mine seem to relate to the antiemetics Emend and onsedantron as they peaked with each dose. I am off them now and just took the last steroid so hopeful that is it.
I am just drinking as much water as I can as that usually helps.
See you over in July!
I was the same just before my hair started to fall out itchy painful very annoying
Like the other lady said keep an eye on it if the headaches continue getting touch with your unit nurse
Hope everyone is as well as can be
Hi, thank you so much for your reply, I was convinced it was brain cancer! I didn't realise pre hair loss could feel like this, it feels so strange (like I need to wash it because it feels dirty) hopefully it doesn't last long xx
Hi claudia That sounds like the start of your hair maybe falling out. As that's what happened to me. It was quite painfull to start but once it started to fall out it soon stopped. Sending you hugsx
Hi I finished my injections on day 5 but have had a dull headache off and on since then, it like I've just had my hair pulled and now it's starting to be itchy and tingly in the same area. I'm on now day 10 so can't understand why this is hubby thought it maybe my scalp and maybe my hair starting to come our (I did the cold cap so not sure if it's that or not)
Hi Claudia, please keep eye on your temperature and if you don’t feel right even with no temperature do ring your unit again, if you are starting with infection they don’t always cause a temperature. If your wee starts to burn phone your unit it will probably be a uti caused by chemo and will need antibiotics ❤️Keep safe 💕💕✨✨Shi xx
Hi, I'm one of the July chemo starters, I had my 1st ec on the 13th but I've been getting headaches for the last few days now. My hospital said they sound like stress headaches but I was wondering if anybody here had had them after EC, I'm surprised to have them starting 6 days after the chemo xxx
Hi Tara, good news re you and sorry but I know nothing about children so cannot help. Wanted to pass on a tip to Immodium users, if you ask for it as "Loperamide" it is much, much cheaper. Hope to hear everyone's news soon, love aNN
been to the hospital this morning for my surgeon to have a look at my scar that runs from my nipple and underneath.
to the right side of this I have quite e thick blue mark. It turns out it is nothing to worry about just the blue due I had injected to find the tumor and nearest lymph nodes for surgery. Apparently the skin now underneath my nipple has been stretched from the top where the tumor was. My surgeon showed my hubby and I a diagram. Very interesting. I also asked him to have a feel of my left breast whilst I was there to check that too which he did.
I don’t know if I have said but I had a nine and ct scan just before chemo as I had started to get pain in my lower bottom and thighs. They came back clear but there was some activity in the tissues above my right 3 rd rib. I asked today if I should be worried and if it is cancer. I was told it was not and when the bone scan and ct scan were looked at together in the mdt meeting everyone agreed that it was activity due to recent surgery. Wow I feel so much better!
My question to you is I have two boys. When I asked today if they can return to school September I was told they will have to wait to go back until 3 weeks after my final chemo. I am really worried about this as my youngest has Aspergers and is struggling with what is happening in the world. He has become quite reserved and gone inside himself. Also if my boys do t go back until mid October as long as my treatment goes to play my eldest will not be there for the first month to make new friends etc. Also, although I am home schooling them I don’t want them to fall behind. Is anyone else in this position? How are you going to deal with it?
Hope everyone is okay and not feeling too bad.
Lots of love 💕 Tara xx
I too have the fuzzy feeling above my nose whilst having chemo and a really bad headache on that night. Like a dehydration headache. Even though I drink loads before the infusion and afterwards. I was advised by my nurse to take a paracetamol before chemo and this did help a little for my second round.
I have a runny nose and itchy eyes like I have grit in. I have been given drops for my eyes but was also told to take a piriton as pollen is high at the moment. Could be chemo mixed with hay fever that is making you ladies feel worse.
It’s a beautiful sunny day here today. I have got my whip out and my husband is going to finish painting the outside of the house. I’m having it grey with black sills. I told my neighbour I was painting it pink and told him I wanted him to paint his blue to match a pastel theme, he believed me and said he would paint his house if it made me happy 😆 I told him I was only joking. I think it worries him that I have cancer and he wants to make me happy lol 😝
Hope everyone has a lovely day!
I had my 3rd session of chemo on the 9th and I also hv felt worse this time but not sick just queasy and light headed. I also hv had the funny nose feeling I only normally get that on day of chemo, but this time every think seems to be taking longer to dissapear. On the 30th July I start a new chemo cycle of Carboplatin and paxitacil just hopeing they dont make me sick. X happy Sunday every one
so sorry it’s been ages since I’ve been on, I’ve just tried to have a good catch up on everything. Happy belated birthday Tara.
everyone sounds so positive. Glad everyone is ok.
i had my second round on 9th and I’ve felt dreadful since then. Thankfully they altered my anti sickness meds so I wasn’t sick again but felt nausea since then, not a lot of appetite so picking as and when, hopefully it will help the diet that I started before all of this happened but doubt I will be that lucky.
I’ve had a very weird sensation since the chemo the bridge of my nose and above feels errm fizzy, not sure how to explain it. I know I should call the number and ask them but I don’t like to bother them it’s probably just me being a wuss 😂
some one asked about work, I had all intentions of carrying on working through the chemo but since I started chemo on 18th June I’ve only managed about 5 days going in. Work have been amazing and aren’t expecting me back until next year and they are still paying me as normal. I work for a small mental health company as the manager so I am planning on going back in January. Like I said they have been amazing I’ve had cards flowers, chocolates and a cancer care package. I couldn’t ask for a better place to work.
anyway enough of me going on
love to you all
That’s sound advice, thanks Shi.
Ann, I will let you know just before I go for T so that you can share your advice and experiences with me.
Thanks so much for your support ladies.
Night, night xxx
Hi Tara, I also used a heat pad at home and ibuprofen gel on arm at home too, but do check everything with your unit 👍 everyones different Tara, I’ve know people work through chemo and rads, others can take longer, you go at your own pace when it comes to work and listen to your body ❤️ And do what makes you happy ❤️💕💕✨✨Shi xx
Thank you so much for your advice it has put my mind at ease.
Shi, I had a heat pack in my arm last cycle as it felt sore and bruised. I will definitely ask for it again. I find after chemo my stem is tender to touch like when you go to the gym and pull a muscle.
I one hundred percent want all treatment on offer and will see it through to the end. I am such a positive person and like to support others but can sometimes be a wink when it comes to myself.
Wanted to ask you ladies. Did anyone go back to work after treatment or is anyone going to go back? I work in a school and are worried I won’t have the strength/ energy to do what I used to. Was thinking about going to uni actually. I appreciate all the support I have been having whilst going through bc and want to give something back. I also want to keep my mind focused in future and like to spend time writing assignments. I know it sounds silly but it is something I can do for me. Another achievement. As if getting through this won’t be an achievement enough 😝
tell me if I’m being nosy, just wandered what others have done and what everyone’s thoughts that are going through this now are for the future.
Lots of love 💓 Tara xx
Hi Tara, I had my T yesterday after a day of p & H, I had not reaction to any of them, I had been like you, concerned, the T they started at a very low rate and increased it after 40 mins and kept increasing it to make sure I didn;t react, I was also given some steroids the day before on a 3 day course, if I had reacted they would stop the infusion and treat me with piriton into the canula. 24 hours later I am feeling as normal as one can on chemo. The infusion took 3.5 hours and I watched tele the whole time to keep my mind off it. My next infusion is in 3 weeks and they will give me all the drugs on the same day. It turned out to be no worse than the first infusion, it's just because it's new, please remind me nearer the time when you are going and I will be with you in spirit cheering you on. Love aNN
Hi Tara 👭❤️ It’s ok to be 😳 most of us have been when changing from fec to t, it’s the unknown again. It is gentler on the veins but do get them to put heat pad on your arm during infusion, found that helped when veins collapsed, but do speak to your unit to see what they recommend. Lots of people have reaction to t, your team has seen it all before and know what to do, I was about 20 mins into 2nd t infusion When my face suddenly felt red hot and I felt my chest go tight, I just shouted my chest is going tight, they were there in seconds stopping infusion and putting antihistamine bag through me, then the infusion was restarted but more slowly, I won’t lie I wanted to say no ta and leg it, but my determination to throw kitchen sink at it kept me sat in the chair. I did go back to fec for my 6th chemo but others who reacted to t went onto abraxane and were fine with that. Treatments have progressed a lot and there might be more alternatives for you if you have reaction, your team will know what to do if it happens. Remember lots have 💃🏻💃🏻🕺🕺💃🏻💃🏻 Through the and found it easier than fec 👍 we are all different. Hang onto the rollercoaster that’s chemo, you are doing amazing 👍👍 don’t forget to use the number on here to speak to a nurse who can talk in more detail about t with you so you can ask questions you might want to ask ❤️ 💕💕✨✨Shi xx
Look at the blinking spelling mistakes again. I am having problems again. Hope you can understand what I am trying to say!
Hi Shi, thanks for the information.
I am a little worried about the t to be honest.
i am also worried about my veins collapsing too. I get anxious like this each time before chemo. If by any chance I do get the right chest if hot flushes she having the t what do they do will it be stopped or. Do they lower the dose? I’m so sacred 😝.
Not been to bad so far apart from the swelling/weight gain and itchy eyes which I have drops for. Can’t wait for this to be over!
Good morning ladies
hope you're all doing okay thank you Anna for your concern
My stomach cramp across by constipation so have been given some medicine to help me go
Since the last time I spoke to you I have opted to take the picc line which was incepted on Wednesday
Only four more section of chemo to go and seven more Herceptin
take care everyone
Hi Tara, the t can made you have a very runny bum, Imodium at the ready, it can also cause you nails to lift, again this does not happen to everyone. Epsom salt baths were handy for the bone pain, it can make you feel like body is in a vice again not everyone has same se’s and some sail through t like a stroll in the park 👍 be aware you might have a reaction during the t infusion if you get hot and your chest starts to get tight shout your nurses immediately, they know what to do because they have seen it all before ❤️ Just wanted to let you know so you can be vigilant when starting and going forward during the t 👍 you are all doing fantastic 💃🏻💃🏻🕺🕺💃🏻💃🏻 Keep dancing in the kitchen you are dancing through great 💃🏻💃🏻🕺🕺💃🏻💃🏻💕💕✨✨Shi xx
not been in for a few days, been so busy! My mum had my boys sleep over at hers last night and me and the hubby watched a film. Was so hungry at 10pm I sent him for a Big Mac. It was lovely!
Horseylass, well done and fair play to you for walking straight after chemo!
Ann, I spoke to my oncologist on Wednesday who told me that I will have T from round 4. He told me that I might feel like I have been hit by a bus for 3 to 4 days after. He also said sickness should not be bad. How was it having the Docetaxel, was it manageable? Any taste changes, headaches whilst having it?
You are right about my bloody spelling mistakes it’s because my fingers are too fat for the phone and it predicts my words incorrectly. It makes me original though, you will always remember me for this and also for the random stuff I talk about!
I’m off to be now, but I hope everyone is okay and have a nice nights sleep.
Lots of love to you all
Hi Girls, just completed my 4th infusion, so just past half way, 3 more to go, this one was a day and a half for P & H and Docetaxel, apparently main side effect is aches and pains. I will soon find out. How are you all especially Cecelia who I think was having stomach cramps, what did your team say, did they help you? Would love to hear everyones news as and when you are feeling up to it, especially from Tara and her presumptive text!!!!!!!!!
Hope you have a good week-end, Love to all aNN
Thank you for your thoughts. You were all with me today.
My bloods were good and my treatment went well, thank you. I’ve got the injections this time so I asked about them. They are to help boost your white blood cells and neutrophils, my Oncologist is prescribing them as a matter of course to try and keep peoples immunity up because of Covid.
I even managed a small walk this evening and just sat on one of our field walls looking at the view, it felt really nice.
Tara, I think you do sometimes just need to let things go and have a cry. You do feel better for it, no point in bottling it up. I agree it does also make you consider what is important in life too.
Hope everyone else’s treatment went well today. xx
Hope treatment went as well as it could for you today Horseylass. Been thinking about you xxx
I totally agree with what you have to say. I also think we will be stronger people after all this. Not so sure I will let people put on me so much anymore, especially at work.
Before my diagnosis I worked in a school but had far too much put on my shoulders. I am a ta but was doing more than the teacher, but without the pay. I have decided I am not going to be going back to that stress again I just can’t and won’t. It is really making me rethink my career!
Hope everyone is having a good night
The little cry is sometimes just what’s needed. I can understand your feeling when you were diagnosed - I also had the feeling of ‘it’s okay, I can do this’ and while I’m glad that’s been the prevailing thought, we need to let out the big feelings (the negative ones) too once in a while. Take care,
Thanks for the birthday wishes I had a lovely day. Even had a little cry lol. Not because I am sad but just felt so exhausted. My husband brought me some lovely clothes, but because I am such a funny shape due to the steroids and my breasts are two different sizes, which is not bothering me because I am alive emotionally I am exhausted. I just sat on the bed looking into my wardrobe thinking what on earth am I going to wear? I feel so much better now. Don’t know about anyone else but when I was diagnosed I did not cry, I had this amazing serge of energy come over me and I knew I could not let this beat me. Felt good to let it all out yesterday.
I hope everyone having chemo today is okay and it goes as well as it can.
Hope everyone else is feeling okay. At least it’s dry today, might get done washing done 😝 have a nice day!
Lots of love 💕 Tara xxx
Good luck for tomorrow Horseylass and to all the other ladies having chemo tomorrow!
lots of love 💓
So pleased you’ve had a good day Tara.
Good Luck to everyone else having treatment tomorrow. We’re going to beat this horrid disease, one treatment at a time. Tomorrow after round 2 I’ll be a third of the way through. Yay.
lots of love and sleep well. xxx
Thank you so much for wishing me a happy birthday you are so kind. I have met some lovely ladies on this site that I hope will be friends for years to come. I’m having such a lovely day and are glad you my virtual friends are part of it xxxx
💓love to you all xxxx
Hi Cecelia, we are all getting different drugs at different rates and in different orders so could it be a side efffect particular to your sort of chemo? No doubt your team will give you an answer, here;s hoping for you. Love aNN
Thank you all for the birthday wishes, it’s kind of you x
Cecilia, don’t sit there in pain, make sure you ring your unit, like the other ladies have said they will be able to help you.
Now my mum orders are over, hope everyone has a nice day, weather not too brill here but never is on my birthday so will make the most of the day anyway. Have a lovely day!
It’s been like this since my second round of chemo
I'm due to fifth of nine on Tuesday xx
I’ll get in touch with them later thank
I am so sorry for the late reply, my phone did not alert me to your message for some reason.
I too get tummy cramps and also pulsating in my bottom and lower back the day after my injections stop for a couple of days. I don’t know if you have children, but it reminds me of the early part of labour.
I take paracetamol and sit with a hot water bottle l, not too hot just tap water and this eases it. If it’s too bad might be worth ringing the unit to ask if you can use a gel like ibroprofen gel.
Hope this helps
Oh check your temp before having pain relief in case of infection!
Love 💕 Tara xxx
I’m sorry to hear that you’re not so good. My advice would be to get in touch with your chemo nurse team. I presume yours is like mine where they are available 24 hours a day, no problem too small. I have phoned a number of times and they are always friendly and welcoming. Where are you in your chemo cycle? If chemo wasn’t recent you may have a tummy bug. But I’m not a doctor so definitely get advice.