Hi Julie, our first finisher. well done, hope the pains don't last, New Forest sounds good, only time will tell what Covid is going to throw at us, I am just looking forward to some freedom and being abe to eat anything I like. Take care all
hi Ann I had my final chemo on wed. Today got my aches and pains in legs☹
Had phone call yesterday to say my OP has been put back to 19th October. Due to my last chemo being a week later.
Also got told tok make a dentist check up, as after op and radiopharpy I got take some tablets for my bones and it can effect your jaw!!. I hv now booked me and hubby a few days away @ beginning of Oct to new forest. Fingers crossed covid dont mess it all up again. Hope all hv a good weekend
That’s great news Ann and hopefully great news for you next week Tara. I had my 5th session on Tuesday and hopefully my last one will be 6th October.
We are beating this, ladies. One step at a time but we are beating it!!
Thats fantastic news, well done You. I bet it is such a relief to be over!
Do you have any further treatment such as radiotherapy? I know you said you are having an op soon. I think you will breeze through this after chemo.
I will hopefully have my final chemo next Thursday. Never thought I would say this, but I can’t wait.
Stay strong ladies, nearly there now!
Have a lovely day.
Well girls I had my final chemo yesterday. I start 29th May, 7 infusions later and it's on the home run. Thinking of you all.
hood everyone is doing okay today. I have had a lovely day. I watched my eldest play football in the sunshine 🌞 and then after the game we had his presentation outside on the grass.
Ann, I will be sure to keep talking about my friend, your right she will live on that way. I had never met her husband but have managed to tell him a couple of stories through social media that I hope will make him smile at such a devastating time for him and her children. I also talked to my husband about it a bit lady night. He said you have to be selfish and think about yourself where cancer is concerned to ensure you best it. I told him I fully intend to never let the disease get the better of me. I hope it has given him some peace.
Hope you too goes well along with Butler. Time seems to be going so quickly!
Anna, I was told that chemo should put you through the menopause, but my not sure if I have or not as I was in the contraceptive injection and have not had a period for 7 years. I would say by the night sweats I get after chemo that it is a possibility but I just don’t know. Funny things for me are, I expected to loose weight from sickness, but thankfully from not being sick I have gained 2 stone. I also used to have dark facial hair. This happened due to medication taken for an ectopic pregnancy 13 years ago. All that fell out and it has come back as white wispy hair. I can deal with that. Also I thought my children would be horrified by how I look and I would scare them, but they have taken the attitude that if they laugh at me it’s the best way to deal with it. They will quite happily point out that I have a double chin and wonky breasts. This works for us all. Thought I would feel mortified but I really don’t. I quite agree with them.
I do hope everyone has had a nice day. Has anyone finished chemo yet. I you may have said but if not I would love to hear.
love 💕 Tara
Thank you all for your lovely messages and for posting your updates both good and bad, it is so nice to hear your news, it makes the op day less scary especially as I am sharing it with you Butler10, quite comforting to have the same date, I will also be thinking of you, glad you were able to enjoy your 60th although having any delay is a mixed blessing.
Tara, I am so sorry to hear about your friend but keep talking about her because in that way she lives on. Sounds like your hubby might be having a rough ride, in some ways it must be harder for our partners, especially if his parents are scaring him, we have womens grit and determination to keep us going and we can talk to each other, blokes aren't always good at that.
Jo77, hopefully you have some good friends and family around to help you through, that must have been really hard to bear, life can be a b..ch sometimes. When one door shuts another one always opens, I just hope you don't have to wait long for that door.
Hugs and love all round aNN
Hello Tara, Jo, Ann and all others,
good to hear how everyone is getting on, there are tough things happening in everyone’s life and home but the weeks are passing and we are getting there. I had round 4 on Wed 2nd, first Docetaxel same as many of you. It was a joy not to have nausea and vomiting for a change and I sailed through a day or two, but then got bone pain and fatigue and inflamed mouth and stomach and am just coming out the other end after two visits to oncology triage. Really good to be feeling normal again (and arguing with my boys about WiFi as usual 😤)
I was thinking about the little things on the cancer journey that have amused me in spite of it all - thought I’d share and maybe you could share yours too:
Because of being 45, they warned me that when chemo causes the ovaries to shrivel and give up for now, it may be temporary or it may be permanent. Amused to report my ovaries seem determined to stick it out til the bitter end, just got another period after round 4 😀
thank you for all your condolences. It is very sad, but I have come to learn that cancer dies not discriminate and can be very cruel. It makes me more determined to fight and never let it come back!
Jo I want to say that I am sorry that your partner has left, but I don’t know your relationship so it may be a relief that they left. No one knows what goes on behind closed doors do they? I want you to know I am here for you if you need to chat as I am sure the other ladies are too.
I have found since having my diagnosis I have become a stronger person and don’t take any messing anymore. My husband has struggled, we don’t talk about things really and he keeps saying to me that I look really well and he thought it would hit me more. I look well because I get up each day no matter how I feel inside to take Care of my children. In my mind if I get up and do it won’t beat me. My husband has even said it is making me crazy. I agree I say my point a lot more now, but that is because this is a hard fight and it is all I know how to do at the moment. Before I would pussy foot around things and say things like, dont be silly all nicy nice even when I didn’t agree. Now I just give me opinion. I am not making excuses just think I have become quite threatening to some people. We are strong women now and I don’t think they will ever go away.
My mother and father in law just keep harping on to him how their cancer was much worse than mine and I generally feel that he is panicking. To me I have been told I can be cured. This is what I fight for, but to him he seems scared that the worst could still happen. He won’t open up and dies not believe in counselling so I just leave it for now.
If you need me you know where I am. That goes to all you lovely ladies.
Have a good day. Stay positive and strong ladies. We are almost there and we have done this ourselves. It’s a great achievement.
Much love 💕 Tara xxx
Anne and Butler , wishing you all the best for your operations ,Tara ... sorry to hear of your loss .
Hope everyone else is doing ok !
Ive got 1 more treatment to go ... had paclitaxel last time safer my reaction to docetaxel, which has been fine. Although my partner left me a few weeks ago which was unexpected so am in rather a mess.
I guess we are nearing our journeys now which is a positive!
I should of had my last chemo on Thursday but it got cancelled to Wednesday now as blood was low. But hay on bright side I could enjoy my birthday . I also was given my surgery date for my OP it to is 13th October,at the rbh. So will be thinking of you to that morning. Mine is a lumpactomey and just in for the day hopefully. Have to go up to clinic the day before just to hv some blue dye put in for guidance so they no where to go and at my next ultra sound they are putting in a tiny magnetic thing lol as guidence too. At least they shouldn't get lost in my boob.xxx
Oh Tara, I’m so sorry to hear about your chemo buddy. I’m glad you are using her passing to make you more determined. I’m sure that’s what she would want but huge hugs nevertheless as it’s never easy to lose anyone.
Ann, so pleased you are nearly at the end. I too has my surgery before chemo, although I Will have to have my non cancer breast reduced to match after my radiotherapy. I too found the surgery no problem at all. One minute they were putting me to sleep and the next they were waking me up. I had very few problems afterwards apart from the drain which was just annoying really.
I have round 5 of chemo on Tuesday and then just one more after that to go before I move on to the radio. It seems like ages since we started but at the same time I can’t believe this is number 5!
Keep strong ladies, we’ve got this. xxx
wow nearly there now! Well done you.
I unlike you had my operation before the chemo. I know you are nervous because I was too. I had never had an operation before, not even had a filling on my teeth. I personally found the operation easier. I had a lovely sleep and although I had a head ache for a couple of days after, I think from dehydration, but was well after a couple of days.
You can do this Ann, I feel you are through the worst now.
I have not been posting for a while as I lost my chemo buddy on Sunday. I knew she was terminal when I met her, but her passing knocked me a bit because she seemed so well.
I am more determined than ever to beat this now and live live live.
Hope everyone is feeling okay. Nearly there now we can all do it!
Lots of love 💕 Tara xx
Hi girls, hope everyone is ok? missing seeing your posts. I've got my last chemo next Thursday and just been given my op date of 13th October, luckily not a Friday, really nervous about that. Hope to hear soon
love from aNN
I too have been unwell with Docetaxil! I had my first one on the 19th followed the next day with P & T.
The side effects have been very difficult to manage. (Extreme pain in muscles and bones, diarrhoea, fungal infection) I’m only just starting to feel a little bit better in myself.
Hugs to everyone
I’m so sorry that you’ve all been having a bad time. I’m just bumbling along with my EC every 3 weeks and touch wood it’s all still going really smoothly for me.
Lots of love and hugs ladies I hope they manage to get you sorted out as it sounds like you’ve all had a rough time.
Hi Butler10, really sorry to hear your news. What date is your 60th, we can all have a drink to you at home, I am sure your team will come up with an answer, we are all so close to the finish line, my team have reduced my Docetaxil from 120ml to 100ml as my upset tum was much worse last time, and I hadn't realised that I will need a p & t injection every 3 weeks for the next year!!!!!!! but it is for my benefit, life must go on.
Take care, love aNN
Good morning all ,
feeling much better now the antibiotics and steroids have taken hold Thankyou !
my oncologist is going to meet up with the chemo team and discus what they can give me for my final 2 treatments as the Docetaxel doesn’t agree with me .
i hope you all are coping and having a good week xx
Hi jo 77
These taxil drugs seem to be giving some of us nasty side effects. I had chemo last Thursday then on Saturday I started getting these pains in legs and that was before the injections. Then Sunday pain got worse was up all night then hv been in bed all day since Monday which I hv never done before dragged my self out yesterday as had picc clinic. Cancer nurse has been phoning me to see how iv been but as got no temp they didnt want me going up to hospital. They hv now got me a face to face appointment next week with oncology doc. As I'm not going through this again. Paxitacil gave me reaction straight away and this Abraxane one is obviously fighting my body to.. so hopefully they can find me somethink else as only got 2 more to go. And one of those is on my 60th birthday. Lol wont forget this one. Sorry for going on. Hope you hv a good day. And feel better soon to.xx
hope everyone is feeling okay today.
Jo77 I too hope you are over the nasty se and feel better now.
Weather not too nice here, but hopefully will pick up for the weekend.
Enjoy your day all!
Hi you are still in Nadar so temp could be sign of infection not just reaction, please just keep checking with your unit, it’s not being a fuss pot, it’s being vigilant and you doing what you can to get safely through 👍💕💕✨✨Shi xx
yes I have it every 3 weeks . Docetaxel was on 14th , started reacting worse on 18th with slight itch then day by day rash and bumps appeared and got worse ,then temperature started on 20th. They said any reaction can start within a week after treatment .i am keeping a log of it and hopefully they will change my last 2 treatments to something else .... I’m not going through this again !
I hope you’re ok and have a good week x
I don’t have aches and pains as such just feel really uncomfortable. Took me from 4:30am Tuesday morning until 9 Wednesday night to get to sleep because I just felt really uncomfortable like I was over tired.
I have had some weird spots on Doxetaxel though. Like gnat bites in between my legs. They felt like sore when I was walking and when I asked my hubby to look because I can no longer see past my chemo belly he said it looked like little blister that have burst. I put vasaline on them and slept with no pjs on and this seemed to work and dried them out.
Got to watch my eldest play football in a friendly this morning was great to be in the fresh air. Have to say I loved it. Although I don’t know about anyone else but I am sick of hearing people moaning. The amount of people that moan about having to get up on a Sunday morning because they are tired I thought I find it hard to get up each day as I’m tired but I do because I don’t want to miss out on anything. My Son is a goal keeper and gets a lot of criticism from other parents if he lets shots in. He was told to wake up today. I lost it and and said well actually he is only 9 has lot played for 6 months and sleeps by the side of my bed each night as he is so worried that something might happen to me! I also realise today for the first time how lucky I am to have found the lump and still be here to watch him play football.
Sorry ladies rant over.
Hope you are all having a nice day
I got put on Abraxane last Thursday with Carboplatin as reacted on 2nd round on paxitacil. Not had no sickness but got terribly hurt burn Friday night and last night got all the pains in all my joints and pain in places I didnt think. Alternating between heat pads and ice blocks at moment plus paracetamol. Any body else had this. This is my 5th chemo round just 2 more to go. Then op and radiotherapy. So nearly there. Have a nice Sunday ladies. X
Jo, do keep ringing your team and updating them keep record of your temperature too, what day are you on in your cycle? Are you having every 3 weeks? 💕💕✨✨Shi xx
Thankyou ladies .
Seemed to feel more itchy / sore and temperature not decreasing so rang the hospital again .... was told to get myself to a&e
ASAP. Their first thought was neutropenic sepsis( which it isn’t ) so was put on an anti biotic drip , blood test, urine test , X-ray .
It is an allergic reaction also an infection but they are unsure what ! Discharged at 11pm with more steroids / antibiotics/ etc
the itching / stinging is driving me insane ...never felt. Nothing like it .. nothing is helping yet .
hope you all have better luck and enjoy your weekends !! Xx
Hi sorry you’ve had reaction to t, it can happen, it was my 2nd t when it happened to me. I went back on fec for my 6th and final chemo and I know others have switched to abraxane when the t didn’t suit them. Keep 💪 this is just for now and once chemo is done you will ping back, just pace yourself and you will 💕💕✨✨Shi xx
Oh Jo, that sounds miserable. I’m sorry you’re having such a rotten week. I hope it comes under control and that the oncology team can do some things to improve the reactions (assume they will want to continue another 2 rounds?)
Take good care,
Really sorry Jo77, you seem to have all the side effects for the rest of us, hope it is all under control soon and that your team plan very, very carefully for your next treatment. love aNN
Oh Jo77 that sound awful, you poor thing. I hope they are able to change things to make it better for you.
Gentle hugs. x
I hope everyone else is managing ok. I’m due my 4th EC treatment on Tuesday.
We are getting through it ladies and we’ll be out the other side of chemo soon.
Have a good weekend.
Hi Anna , and all you lovely ladies .
Unfortunately since my update, the Docetaxel has now shown its effects on me . I had 8 steroids the day before Chemo , on the day and decreasing amounts over the next 4 days . First day without the steroids And I started itching my neck ... then chest ... then shoulders . Over 24 hours it was as if I had severe prickly heat and sunburn.... also oral thrush ! Seems I have an allergic reaction to the Docetaxel which can start anytime over 7 days of infusion ! Now on antibiotic mouth drops , antihistamines, steroid cream . Had a temperature last night but kept drinking iced water and stripped off . Oh and a mouth full of ulcers this morning 😖
The hospital is ringing me today to see how I am.
I thought I had got away with things on Docetaxel but nope !
The Fec made me feel very nauseated which lasted a week , and was pleased after the first Docetaxel didn’t make me feel like that , however .... I’m not sure which treatment is worse now !
I get a phone call from olncologist a week before each chemo treatment, so maybe they will change something for next time ?
I hope you all are having a better week than I am xx
Sorry forgot to say, although my eyebrows and lashes have thinned they are still there. Eyebrows are the best I have ever had them and my husbands says he seems to think my hair is growing back on Docetaxel at the back in my crown xxx
Hi ladies, hope all is as well as can be. Wanted to give a quick update. As I said I had first round of Docetaxel on last Thursday , went smoothly with minimal side effects until Tuesday morning. My eldest felt poorly so woke me up at 4:30am to ask me to lie with him. I went and lay with him and do you think I could get back to sleep? I started to get the most terrible heart burn so took a lansoprazole at 5:30 and continue to read surviving triple negative breast cancer until 6:30. The heart burn would not ease and I found it better to sit up so went and sat in the recliner downstairs. I then noticed that my mouth felt really dry and I had a **bleep**e film on my tongue, quick call to the hotline and antibiotics were prescribed! I found it hard to rest all day. I was not in pain or achy but could not get comfy. It was like I was looking in from outside my body. No temp though so all good.
I did not sleep again at all Tuesday night, had a little doze for 10 minutes yesterday afternoon and finally managed to get to sleep at 10 last night. Slept right through til 7:15 this morning.
I have to say that I think Docetaxel is easier in terms of you don’t have the sickness or nausea feeling, however it completely takes your taste buds. It also makes me feel so exhausted like someone is dragging me down, however it is not painful. Strange really like when you have gone past being tired and are frustrated because you can’t seem to do anything to settle and rest.
I had the steriods to take 4 times a day for 3 days starting the day before chemo. They are great and have stopped me from feeling sick. I know I have had heart burn but think that is more to do with eating spicer food as I just can’t taste anything.
Hope this helps as it really is not too bad!
Have a lovely day all in the sunshine 🌞 lots of love 💕 Tara xxx
Hi Anna & Jo, I hope this helps, I have had two Docetaxel infusions with two more to come, I take steroids the day before for 3 days and so far they have worked, I do feel tired, still have some eyebrows and eye lashes, have not had any problem with sickness, my food tastes funny, my stomach is non too keen, I get a very upset stomach and take "Loperamide" otherwise known as "Imodium" which works a treat and is much cheaper to buy. I don't find it as toxic as EC, I seem to have avoided the muscle aches thank goodness and I am lucky, I see a oncologist between every infusion. It could be worse and from the sounds of it possibly better than FEC? My next infusion is in a weeks time.
Keep your chin up girls, will be thinking of you both.
Thanks for that Polybalm recommendation, Cubot! Will look it up in readiness.
Does Docetaxel have any further impact on eyelashes /eyebrows? My lower lashes are pretty much gone but holding on to upper lashes and eyebrows are thinner but still there. Suppose the three cycles of Docetaxel may affect what’s left.
I’m so interested to hear your feedback from the Docetaxel as I am slightly dreading the change of drugs next cycle, after 3xFEC. I’m glad you’ve no heavy side effects yet and it’s good going that you’ve got from Fri to Tuesday without being completely miserable. Because the doctors have given me extra steroids to start 24 hours before the Docetaxel (round 4 for me is Sept 2nd) I reckon they expect your body takes a beating and that makes me a little nervous!
Like you mentioned, I’ve found the nausea/vomiting during FEC really wearing. How long did you find the symptoms lasted? It feels like all my symptoms are concentrated in the stomach. In the first week I feel wretched and just drag myself through the week, spending lots of time in bed. I bet I sound a complete wimp, it does go against the grain. Even a variety of anti nausea meds don't seem to hit the spot although they do help control the vomiting. Usually for me it turns a point after a week and it’s more bearable but still nausea present and I can’t eat my normal diet - chemo in my body just hates fruit and veg, it seems - which is a shame since I was going great guns with lots of plant based meals after surgery!
Did you see a doctor before you switched to Docetaxel, Jo? My hospital has been doing phone reviews on the morning of treatment day, but they want to see me face to face before the next one. Consent forms I reckon 😉
Hi ladies , I hope things are going well for you all . I hope things get easier Tara for you , how awful !
I had my first T...Docetaxel on Friday , no awful effects as yet apart from Very hot flushes the first 24 hours and a furry /dry tongue, which I use Biotene mouth wash and Tongue gel, and a slight loss of taste . No nausea which is great as I felt dreadful after FEC !
i was told that 70-80% get Quite lethargic And bones aches from Docetaxel , fingers crossed it’s not happened to me yet ! X
Btw, so none of you worry, abscesses are just something that I've been lucky enough to have been prone to over the years when stressed. It's not a chemo thing, definitely A level related. Good luck if any of you have got kids with GCSE results this week.
Your symptoms from your latest chemo sound not nice, to say the least. I'm glad it's clearing up. Are you on 2 week cycles? I start 12 weekly cycles of paclitaxel on 7th September. The weekly cycle are meant to be more tolerable than 2 weekly but I'm worried it's going to be fairly relentless. At least with the 3 week EC cycles have felt like I've had 2 weeks off each time. Am just coming out of days 4-8 of my last EC. EC combined with my eldest's A level results produced the most enormous abscess on my bottom so I've also been on antibiotics and Glow Up. I finished series 2 on Sunday so will be in desperate need of TV recommendations for 7th September. Hopefully the Autumn TV schedule will have started then and hopefully enough new stuff was shot for it pre lockdown. I hope everyone else is doing well. Tabs
Oral thrush quite common during chemo 🙄 glad you got antibiotics, fluconzole is also one they prescribe. Ask for it in your goody bag so at first signs of it you are armed and prepared if it happens again 💕💕✨✨Shi xx
Hi Tara hope you're doing OK and Michelle, cross fingers for tomorrow!
So I'm 10 days into docetaxel (with pertuzumab and trastuzumab) now. I've found it quite different to FEC in that I am so, so tired and unlike with FEC that doesn't seem to be getting better as the days pass. Been quite difficult to adjust but i've worked out that any activity bursts needs to be followed by a rest (in my case lying on my bed watching the second season of Glow Up on Netflix!) and that's helped.
Also had my first bout of oral thrush (mmm lovely). It wasn't what I expected - I thought I'd burnt my tongue as I had several inflamed tastebuds which at first looked like normal inflamed tastebuds which I've occasionally had in the past. Then they grew and looked pus filled (so delightful) and the rest of my tongue hurt A LOT. Good news is I called the hospital and they gave me some Nystatin which has been very effective so two days after the worst symptoms my tongue is almost back to normal. Thought I'd share as my oral thrush looked nothing like the horrific cases you see when you google so you might not realise what you've got, though hopefully you won't get it!
Thank you for your kind words!
Bloods tomorrow and oncologist, I’m just hoping everything is ok for the go ahead!!
I must remember to take the steroids tomorrow 😀
Hi Michelle, will be thinking of you, it makes for a very long day and a half, I spent my time watching Judge Judy and eating, hope it goes well for you. love aNN
Hi ladies, I got back from my treatment about 3. No reactions which was great. Worrying fir nothing again! I appreciate all of your advice, it really helped.
I felt sick when walking out of the hospital, ran to t try he loo and did a big burp and it went off as quick as it came on thankfully no sick. I felt really tired when I got home do had a couple of hours sleep. Mum had to cone around and cook for Adam and the boys and showers the kids , because Adan fell down the ladders cleaning windows yesterday and damaged the ligaments in his foot. He has a boot and is on crutches. It’s a nightmare lol. Mum is sleeping over tomorrow to help out, bless her 💓
I felt really hungry when I woke up do had some dinner and are now bracing myself for the side effects to come.
Hope everyone is doing okay.
Thanks for the support.
Take care all
lots of love 💕 Tara xxx
I hope every one is as well as could be.
Tara i hope your treatment has gone well, ive been sending positive thoughts your way today!!!
I have Docetaxel next Wednesday and Ttastuzumab, Pertuzumab the following day. Im also dreading the change in treatment from EC.
Thinking of you today Tara. I’m sure you’ll be fine.
Its a bit cooler here today which is nice. I’ve not been managing to walk as much because the heat was just too much but hopefully I should manage 3miles today with the dogs.
I had my third EC last week so 3 more to go now. Great to be halfway through but October still seems a long way off!
Love to all xx
Hi girls, Tara and Cubot, thanks for the tip about the nail cream, I will look at that but I am half way through my Docetaxel so not sure if I have left it too late already. Tara, no sickness at all so one less thing to worry about, will be thinking of you. We are all getting close now, keep you heads up girls and if you feel your crown slipping, remember the thousands that have gone before us.