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June 2020 chemo starters

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Re: June 2020 chemo starters

Hi Butler10 thanks for your message, yes feeling fine but wiped out, doing my exercises but they knacker me, waiting to hear about radiology the Macmillan nurses say I am down for it and my jabs start next week.  Had really good result from my op, complete pathological response, silly really but it's a bit hard to take in as all I concentrate on is the treatment, I know it is hard girls but keep biting the bullet, it is going to be worth it.  Really sorry you are having such a bad time Tara but pleased it will not delay your treatment, I have not heard much about radiology re side effects etc so do fill us in if you can, hope it does not affect hair as I am getting some back.   I was sent a brochure on lymphoedema which I am going to have to be really careful of because like horseylass I am a smallholder/farmer so I spend most of my time getting dirty on the veggie patch or mucking out, I get very rough hands so I am now washing my hands with Acqueous cream as it is also a soap and am buying gloves that I can work in which should help protect me.  

Anyway enough of me, hoping you all have a good week.  love aNN

 

 

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Re: June 2020 chemo starters

Oh Tara, you poor thing. Thank goodness you rang the hot line. I’m pleased that it won’t affect your treatment though. Good luck with your radiotherapy this week, fingers crossed that it all goes smoothly for you. 

Enjoy your day with your boys. Cold and windy here too.

Take care. xx

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Re: June 2020 chemo starters

Hi ladies,

Glad  your op’s went okay, hope you are all feeling well. I found my op a walk in the park compared to chemo.

 

 Horseylass, I am due to start radiotherapy next week. Just waiting for the call. Have been given a machine number and had my lympadema chat yesterday.

 

 I have had a nightmare of a week this week though and was unsure if I would be able to have radiotherapy. After a trip to A and E Monday with swelling to my hands, fingers, ankles and feet and what I thought was severe heart burn and breathlessness I was given 3 scans and a covid test over 2 days. Turns out I have a high, irregular heart rate for which I have been put on beta blockers and a blood clot on my lung. Just when I thought I would be getting better lol. I will have treatment for 6 months to prevent further clots and wait for this one to dissolve. The good news is it won’t halt my cancer treatment!

I am happy to hear everyone else seem to be coming along fine. Just if you feel different or unwell, please get checked out, don’t assume it’s just the side effects of treatment like I did. I had no temperature and it was only because the heartburn burn pain was getting worse and chemo had finished that I called the hot line. Apparently pulmonary embolisms and blood clots are common in cancer patients.

 Hope you are all having a good day, weather not too good here, but making the most of relaxing with my boys with the heating blasting.

 Lots of love 💕 Tara xxx

 

 

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Re: June 2020 chemo starters

  • Hi ann 
  • Hope you are going good after your OP the other week.  
  • Xxxx
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Re: June 2020 chemo starters

Glad your surgery went well. I too thought I had a fab sleep when I had my surgery. I was astonished how quickly I was knocked out and then what seemed like the next minute I was in recovery. 

I have my radiotherapy planning scans on Monday and my tattoos! It’s a 2 hour drive each way which is the worst part. It makes for a long day. But hopefully I’ll get my dates soon for treatment. I’m having 5 days in a row and then I’ll get to ring my second bell! After that it’s surgery on my right breast to even things up. Whether I’ll get that this year or not, who knows. As it’s only cosmetic, I wonder if it will be postponed because of Covid.

I hope you are all doing well and have a good weekend

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Re: June 2020 chemo starters

 Hi Anne    Yes home by 4pm.  Morning was busy thou had to go and hv 2 wire markers put in,  then  walk the length  of hospital physic dept to have a injection of radio active which was for the blue dye to go in before they started op  went out like a light when I got to theatre  had best sleep ever.lol. my Consultant phoned my hubby while I was in recovery and told him all gone well  And that she phone me next Monday 27th.  So hopefully radiotherapy next then 🤞 all done.   Are you doing well.xx

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Re: June 2020 chemo starters

Hi Butler10, hope you are home safe and sound and that the day went well.  love aNN

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Re: June 2020 chemo starters

Hi Anne  

Glad it went well.  Iv been up for my covid test this morning  so hope it comes bk ok as my OP is on Monday. Got to be in by 7.30  then at 9.30 I got to have another marker put in plus the blue dye.  Then I persume I go down to theatre or back up to ward to wait my turn. Hopefully it will still be just a day job.   Then hv few weeks then start the radiotherapy   fingers crossed every think finished before xmas.xxx

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Re: June 2020 chemo starters

Hello Ann, Tara and everyone,

Well done on getting through the final treatment on Wednesday. Do you expect to have some tough days now? Were  you still on FEC or on Docetaxel? I’ve found Docetaxel easier to handle, round 4 was a bit grim back and forth to hospital with side effects, but round 5 was the most manageable yet, no triage trips needed. 

Did you get to ring a bell? We don’t at our hospital but we do after radiotherapy in November. I’m having 2 weeks. I asked the Consultant were they still doing the condensed one week treatment at a higher dose and he says that is how radiotherapy is evolving - they used to do 5 weeks, then three, but trials in the last few years have showed that fewer sessions at a stronger dose are effective. I believe mine will be a week on the right breast and a further week more closely targeting the tumour area. It’s really only a precautionary clear up of any last cells lingering (could there be any after 6 x chemo?) and the consultant said it only offers about an extra 1% chance of cancer not recurring but I’m glad to have all the layers of treatment (tamoxifen is something like 7%). 

Tara, I had my tattoos done on Monday. Felt very cool telling my 15, 13, 10 year olds their boring old Mum has tattoos but they weren’t terribly impressed 😄 It’s horrible that you had bleeding, I didn’t have more than a pin prick. 

Throughout chemo I found I limited my reading on the forums and generally online, has done quite a bit to learn things early on but hadn’t the mental strength to cope with it after the treatment started. Recently I came across a sort of virtual conference bus Penny Brohn, about integrating other types of help around traditional treatments and I attended some of these sessions. They were very well run. I feel this will help me for the onward Journey to plan some of the things I know I need to improve (stress and exercise and sugar intake). Maybe some of you might like a look, I believe you can still get tickets for the recordings: https://yestolife.org.uk/event/your-life-and-cancer-2020-1/

 

All the best,

Anna

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Re: June 2020 chemo starters

Hi Butler 10, thank you so much and well done for remembering, I find it hard knowing which day of the week it is let alone remembering when someone else has surgery, all went well thanks but still have a bag attached, I met a woman Lisa, just starting her journey, she had only known about her cancer for 2-3 weeks and had her masectomy that day, I recommended her to this site as I am so grateful for all of you, your stories, comments and support help so much, I hope we all keep posting here.  I have radiotherapy next and then the jabs,  hopefully more of you have now finished your chemo by now and are starting to feel better.  Please post when you can.  Love to you all  aNN

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Re: June 2020 chemo starters

Sorry for the spelling mistakes. My fingers are still swollen from the steroids and too big fir the buttons on my phone! X

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Re: June 2020 chemo starters

Hi everyone,

 sorry I have not been on fir a while, I have been well in myself, have just been trying to sort out an EHCP fir my youngest. He also has a lot of hospital appointments at the moment.

Thank you for discussing your treatment with me. It seems like most of us have more treatment to move onto after chemo, whether it be radiation or surgery. I was told if the virus was not around I would have had chemo first rather than surgery. It’s interesting to see that those ladies diagnosed slightly later have had chemo first. I wander if things will change again with the virus getting stronger again?

 My radiotherapy planning went well. I had a CT scan without the cannula, which was a bonus and the tattoos were not too bad, however I did bleed quite a bit in my good side. Never felt a thing on my right side where the tumour was. Funny really because I have sensation in my nipple but could not feel the ratio being done at the side of my breast. The one in the middle of my chest was not too bad either. I should start radiotherapy on the 28th of this month. All moving quite quickly.

 

 I have found that since finishing chemo, I am really tired. Think this may be because I tried to carry on as normal, home schooling the boys, washing, housework etc and now it is all catching up on me.

 

 Anna, I hope your last chemo goes well tomorrow and anyone else that is due chemo too.

 

 It will be nice to stay in touch on here even as we move on to different treatments or finish completely.

 Thinking of you all ladies!

 Lots of 💕  Tara xx

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Re: June 2020 chemo starters

Hi Anne

Will be thinking of you tomorrow. Hope all goes well for you. Xx

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Re: June 2020 chemo starters

Hi all

 

I had my last chemo 30th Sep !  Im still not back to normal, but getting there slowly :-).

Im booked in to see the surgeon on the 15th Oct, but still not received an appointment for MRI yet or surgery. Covid has slowed things down again at my hospital. Ive to have target therapy again on the 21 Oct to cover me until my Mastectomy and axillary node clearance.

 

Hope everyone is doing the best they can, and keeping safe 

 

Michelle x

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Re: June 2020 chemo starters

Hi everyone 

Its so good to hear that we have finally finished or nearly finished our chemo treatments. Way back in June it felt like we’d never get here. I had my last dose yesterday. I’m waiting for the side effects to start tomorrow when I start the injections. Thanks Tabs for mentioning the moles. I seem to have a few mainly round my middle and also more skin tags than I’ve ever had.

I think I also need a dentist appointment as my jaw aches and front teeth at the bottom.

Tara, how was the radiotherapy planning? What happened exactly? Was it scary, I’m such a wimp, is it like a CAT scan which I’ve only seen on TV. They look a bit claustrophobic. I’m having radiotherapy but haven’t had the appointments sent out yet. Hopefully I’ll be able to have the five sessions of treatment.

This awful Covid virus shows no sign of going away. I live in a area where there has been lockdown rules, so no visits from family and friends which is very lonely. I haven’t even been in a shop since before Easter! Only hospital visits and dog walks for me!

Take care everyone 

Love CactusQueen 💐💕

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Re: June 2020 chemo starters

Hi Everyone,

It's really nice to hear that you're all coming to the end of chemo. Am very jealous, mine isn't due to finish until the end of November. It was meant to be mid November but I tested positive for covid in a routine test before a chemo treatment. It was a week when test results were delayed so I didn't find out for 6 days. On the plus side, I didn't have any of the usual symptoms, the achey neck I thought was chemo, and the prickly heat on the tops of my hands and feet the doctors thought was chemo too. I think that one of my teenage boys must have given it to me but it's not their fault. I've also been referred to have a mole removed as it's changed colour during chemo, which apparently is a thing so check your moles for changes and check with your GP if you find any. I'm waiting to find out if it can happen during chemo, or if I'll have to have it removed between chemo and radio. I'm meant to have the 5 days of radio and then Letrozole for 5-10 years. I was hoping to have the radio this side of Christmas as there were reports that the isotopes or whatever they use in radiotherapy may be affected by Brexit. I guess everything will take as long as it takes. I'm looking forward to having my other breast removed in Spring so that I can be symmetrical as I'd already lost my right nipple in the original mastectomy. I'm also awaiting the results of the genetic tests, but was told it can take 3 months, hopefully it will be negative so that my boys won't have to worry if they're carrying it. Anyway, I hope you're all well. It's great that we're nearly through it. Good luck everyone, Tabs

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Re: June 2020 chemo starters

Hi Tara and everyone,

I have my final chemo next Wed, all being well. I had a couple of postponements along the way because I took a dose of the cold twice. Fingers crossed all will go ahead. The Covid rates around here are really rising, and with my 3 children at school I’ve been expecting it will come close to home at some stage. 

Tara, I’m also going on to radiotherapy after chemo. Initially it was to be an intensive dose for 5 days but I believe they may have moved back to the standard 3 week programme now. I have my planning appointment on Monday. Expect to be done radio by end of November and then tamoxifen for 5+ years. I’m also waiting on results of the BRCA1/2 gene test, has anyone else had this? I have 2 first cousins and 2 aunties who have had breast cancer so this pushed me across the threshold for testing. There’s only a smallish chance of it being positive, but a positive result would mean removal of ovaries for definite and a discussion about bilateral mastectomy. We’ll cross that bridge if we come to it 😊

 

Take Care, everyone. 

Anna

 

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Re: June 2020 chemo starters

Hi Horseylass,

well done on your final chemo, you did it, I hope you rang that bell hard! I have not done it yet as I want my boys to be with me as they have had to get through this with me too. I will take them after radiotherapy to do it.

 Had my planning appointment and tattoos done yesterday ready to start on the 28th of this month. Everything is moving quickly. This year seems to have gone do fast.

 

 Is anyone else doing radiotherapy after chemo?, if not are you having any other type of treatment?, I would love to hear about it.

 To those of you still doing chemo, not long now! Stay strong ladies, we will beat this!

 Lots of love 💕 Tara xxx

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Re: June 2020 chemo starters

Hi All,

I had my 6th and final chemo this morning. Yay. I got to ring the bell! 🔔  

That’s done with. Now I just have to wait until November to start my radiotherapy. 

I hope you are all ok? Everyone seems to have been a bit quiet for while. 

Stay strong. We can beat this. xxx

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Re: June 2020 chemo starters

Oh Tara & Jo. I’m so sorry to hear of your problems. I hope you both manage to get your last chemo sessions done as soon as possible. It does seem the more of the treatment we have the more our bodies take a hit. I suppose it’s inevitable but not nice. 
I had full dental X-rays taken yesterday as I need work done before they can hive me the bone strengthening drugs. It’s one thing after another isnt it. 

Stay strong girls. Fingers crossed that you get your last chemo soon. 
xxxxx

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Re: June 2020 chemo starters

Tara , sorry to hear of your trouble and having your lady chemo postponed 😖

ive got my last chemo tomorrow, but got to also have a scan on my arm with picc line as It’s very swollen and they think I’ve got thrombosis in it 😩

hope everyone’s doing ok x

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Re: June 2020 chemo starters

Hi ladies,

hope everyone is doing okay. Well done to those of you that have finished chemo and good luck with your surgery/ radiotherapy.

 I have my radiotherapy appointment for 30th September so will let you all know how this goes. I also should have my last chemo tomorrow all being well, however have had some little abscesses appear on my nipple scar. I called last Thursday and was told I was fine because I did not have a temperature and they are only small, however when number 2 appeared on Monday I decided to take myself up to the unit. Had swabs and had to have heart rate monitored for 2 hours as it was high. Told I can’t have treatment tomorrow if an infection. Will have to let you all know!

 Hope everyone has enjoyed the sunshine over the past week. Horrible here today. I’m enjoying relaxing inside.

 Love to all Tara xxx

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Re: June 2020 chemo starters

Hi Julie, our first finisher. well done, hope the pains don't last, New Forest sounds good, only time will tell what Covid is going to throw at us, I am just looking forward to some freedom and being abe to eat anything I like.  Take care all

Love aNN

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Re: June 2020 chemo starters

hi Ann I had my final chemo on wed. Today got my aches and pains in legs☹

Had phone call yesterday to say my OP has been put back to 19th October. Due to my last chemo being a week later. 

Also got told tok make a dentist check up, as after op and radiopharpy I got take some tablets for my bones and it can effect your jaw!!.   I hv now booked me and hubby  a few days away @ beginning of Oct to new forest.  Fingers crossed covid dont mess it all up again.  Hope all hv a good weekend

Juliex

 

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Re: June 2020 chemo starters

Hi Girls thanks for your message, Yes Tara op in 4 weeks then a week of radiology and jabs for a year.

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Re: June 2020 chemo starters

That’s great news Ann and hopefully great news for you next week Tara. I had my 5th session on Tuesday and hopefully my last one will be 6th October.

We are beating this, ladies. One step at a time but we are beating it!! 

Xxx

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Re: June 2020 chemo starters

Hi Ann,

Thats fantastic news, well done You. I bet it is such a relief to be over!

 Do you have any further treatment such as radiotherapy? I know you said you are having an op soon. I think you will breeze through this after chemo.

 I will hopefully have my final chemo next Thursday. Never thought I would say this, but I can’t wait.

 Stay strong ladies, nearly there now!

 Have a lovely day.

 Tara xx

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Re: June 2020 chemo starters

Well girls I had my final chemo yesterday.  I start 29th May, 7 infusions later and it's on the home run.  Thinking of you all.

 

Love aNN

 

 

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Re: June 2020 chemo starters

Hi ladies,

hood everyone is doing okay today. I have had a lovely day. I watched my eldest play football in the sunshine 🌞 and then after the game we had his presentation outside on the grass.

 

Ann, I will be sure to keep talking about my friend, your right she will live on that way. I had never met her husband but have managed to tell him a couple of stories through social media that I hope will make him smile at such a devastating time for him and her children. I also talked to my husband about it a bit lady night. He said you have to be selfish and think about yourself where cancer is concerned to ensure you best it. I told him I fully intend to never let the disease get the better of me. I hope  it has given him some peace.

 

 Hope you too goes well along with Butler. Time seems to be going so quickly!

 

 Anna, I was told that chemo should put you through the menopause, but my not sure if I have or not as I was in the contraceptive injection and have not had a period for 7 years. I would say by the night sweats I get after chemo that it is a possibility but I just don’t know. Funny things for me are, I expected to loose weight from sickness, but thankfully from not being sick I have gained 2 stone. I also used to have dark facial hair. This happened due to medication taken for an ectopic pregnancy 13 years ago. All that fell out and it has come back as white wispy hair. I can deal with that. Also I thought my children would be horrified by how I look and I would scare them, but they have taken the attitude that if they laugh at me it’s the best way to deal with it. They will quite happily point out that I have a double chin and wonky breasts. This works for us all. Thought I would feel mortified but I really don’t. I quite agree with them.

 I do hope everyone has had a nice day. Has anyone finished chemo yet. I you may have said but if not I would love to hear.

 Take care

 love 💕 Tara

 

 

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Re: June 2020 chemo starters

Thank you all for your lovely messages and for posting your updates both good and bad, it is so nice to hear your news, it makes the op day less scary especially as I am sharing it with you Butler10, quite comforting to have the same date, I will also be thinking of you, glad you were able to enjoy your 60th although having any delay is a mixed blessing.

Tara, I am so sorry to hear about your friend but keep talking about her because in that way she lives on.  Sounds like your hubby might be having a rough ride, in some ways it must be harder for our partners, especially if his parents are scaring him, we have womens grit and determination to keep us going and we can talk to each other, blokes aren't always good at that.

Jo77, hopefully you have some good friends and family around to help you through, that must have been really hard to bear, life can be a b..ch sometimes.  When one door shuts another one always opens, I just hope you don't have to wait long for that door.  

Hugs and love all round aNN

 

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Re: June 2020 chemo starters

Hello Tara, Jo, Ann and all others,

good to hear how everyone is getting on, there are tough things happening in everyone’s life and home but the weeks are passing and we are getting there. I had round 4 on Wed 2nd, first Docetaxel same as many of you. It was a joy not to have nausea and vomiting for a change and I sailed through a day or two, but then got bone pain and fatigue and inflamed mouth and stomach and am just coming out the other end after two visits to oncology triage. Really good to be feeling normal again (and arguing with my boys about WiFi as usual 😤

I was thinking about the little things on the cancer journey that have amused me in spite of it all - thought I’d share and maybe you could share yours too:

 

Because of being 45, they warned me that when chemo causes the ovaries to shrivel and give up for now, it may be temporary or it may be permanent. Amused to report my ovaries seem determined to stick it out til the bitter end, just got another period after round 4 😀

 

 

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Re: June 2020 chemo starters

Hi ladies,

thank you for all your condolences. It is very sad, but I have come to learn that cancer dies not discriminate and can be very cruel. It makes me more determined to fight and never let it come back!

 Jo I want to say that I am sorry that your partner has left, but I don’t know your relationship so it may be a relief that they left. No one knows what goes on behind closed doors do they? I want you to know I am here for you if you need to chat as I am sure the other ladies are too.

 I have found since having my diagnosis I have become a stronger person and don’t take any messing anymore. My husband has struggled, we don’t talk about things really and he keeps saying to me that I look really well and he thought it would hit me more. I look well because I get up each day no matter how I feel inside to take Care of my children. In my mind if I get up and do it won’t beat me. My husband has even said it is making me crazy. I agree I say my point a lot more now, but that is because this is a hard fight and it is all I know how to do at the moment. Before I would pussy foot around things and say things like, dont be silly all nicy nice even when I didn’t agree. Now I just give me opinion. I am not making excuses just think I have become quite threatening to some people. We are strong women now and I don’t think they will ever go away.

 My mother and father in law just keep harping on to him how their cancer was much worse than mine and I generally feel that he is panicking. To me I have been told I can be cured. This is what I fight for, but to him he seems scared that the worst could still happen. He won’t open up and dies not believe in counselling so I just leave it for now.

 If you need me you know where I am. That goes to all you lovely ladies.

 Have a good day. Stay positive and strong ladies. We are almost there and we have done this ourselves. It’s a great achievement.

 Much love 💕 Tara xxx

 

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Re: June 2020 chemo starters

Anne and Butler , wishing you all the best for your operations ,Tara ... sorry to hear of your loss .

Hope everyone else is doing ok !

Ive got 1 more treatment to go ... had paclitaxel last time safer my reaction to docetaxel, which has been fine. Although my partner left me a few weeks ago which was unexpected so am in rather a mess.

I guess we are nearing our journeys now which is a positive!

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Re: June 2020 chemo starters

Hi Anne 

I should of had my last chemo on Thursday but it got cancelled to Wednesday now  as blood was low. But hay on bright side I could enjoy my birthday .  I also was given my surgery  date for my OP it to is 13th October,at the rbh.  So will be thinking of you to that morning.  Mine is a lumpactomey and just in for the day hopefully. Have to go up to clinic the day before just to hv some blue dye put in for guidance so they no where to go and at my next ultra sound they are putting in a tiny magnetic thing lol as guidence too. At least they shouldn't get lost in my boob.xxx

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Re: June 2020 chemo starters

Oh Tara, I’m so sorry to hear about your chemo buddy. I’m glad you are using her passing to make you more determined. I’m sure that’s what she would want but huge hugs nevertheless as it’s never easy to lose anyone.

Ann, so pleased you are nearly at the end. I too has my surgery before chemo, although I Will have to have my non cancer breast reduced to match after my radiotherapy. I too found the surgery no problem at all. One minute they were putting me to sleep and the next they were waking me up. I had very few problems afterwards apart from the drain which was just annoying really. 

I have round 5 of chemo on Tuesday and then just one more after that to go before I move on to the radio. It seems like ages since we started but at the same time I can’t believe this is number 5! 

Keep strong ladies, we’ve got this. xxx

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Re: June 2020 chemo starters

Hi Ann,

wow nearly there now! Well done you.

 I unlike you had my operation before the chemo. I know you are nervous because I was too. I had never had an operation before, not even had a filling on my teeth.  I personally found the operation easier. I had a lovely sleep and although I had a head ache for a couple of days after, I think from dehydration, but was well after a couple of days.

 You can do this Ann, I feel you are through the worst now.

 I have not been posting for a while as I lost my chemo buddy on Sunday. I knew she was terminal when I met her, but her passing knocked me a bit because she seemed so well.

 I am more determined than ever to beat this now and live live live.

 Hope everyone is feeling okay. Nearly there now we can all do it!

 Lots of love 💕 Tara xx

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Re: June 2020 chemo starters

Hi girls, hope everyone is ok? missing seeing your posts.  I've got my last chemo next Thursday and just been given my op date of 13th October, luckily not a Friday, really nervous about that.  Hope to hear soon

love from  aNN

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Re: June 2020 chemo starters

Hi all 

 

I too have been unwell with Docetaxil! I had my first one on the 19th followed the next day with P & T. 
The side effects have been very difficult to manage. (Extreme pain in muscles and bones, diarrhoea, fungal infection) I’m only just starting to feel a little bit better in myself. 

Hugs to everyone 

 

Michelle

 

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Re: June 2020 chemo starters

I’m so sorry that you’ve all been having a bad time. I’m just bumbling along with my EC every 3 weeks and touch wood it’s all still going really smoothly for me.

Lots of love and hugs ladies I hope they manage to get you sorted out as it sounds like you’ve all had a rough time. 

xxx

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Re: June 2020 chemo starters

Hi Butler10, really sorry to hear your news.  What date is your 60th, we can all have a drink to you at home, I am sure your team will come up with an answer, we are all so close to the finish line, my team have reduced my Docetaxil from 120ml to 100ml as my upset tum was much worse last time, and I hadn't realised that I will need a p & t injection every 3 weeks for the next year!!!!!!! but it is for my benefit, life must go on.

 

Take care, love aNN

 

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Re: June 2020 chemo starters

Good morning all , 

feeling much better now the antibiotics and steroids have taken hold Thankyou !
my oncologist is going to meet up with the chemo team and discus what they can give me for my final 2 treatments as the Docetaxel doesn’t agree with me .

i hope you all are coping and having a good week xx

 

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Re: June 2020 chemo starters

Hi jo 77

These taxil drugs seem to be giving some of us nasty side effects. I had chemo last Thursday  then on Saturday I started getting these pains in legs and that was before the injections.  Then Sunday pain got worse was up all night then hv been in bed all day since Monday which I hv never done before dragged my self out yesterday as had picc clinic. Cancer nurse has been phoning me to see how  iv been but as got no temp they didnt want me going up to hospital. They hv now got me a face to face appointment next week with oncology doc. As I'm not going through this again. Paxitacil gave me reaction straight away and this Abraxane one is obviously fighting my body to..  so hopefully they  can find me somethink else as only got 2 more to go. And one of those is on my 60th birthday.  Lol wont forget this one.   Sorry for going on.  Hope you hv a good day. And feel better soon to.xx

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Re: June 2020 chemo starters

Morning ladies,

hope everyone is feeling okay today. 


Jo77 I too hope you are over the nasty se and feel better now.

 Weather not too nice here, but hopefully will pick up for the weekend.

 Enjoy your day all!

 Tara xxx

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Re: June 2020 chemo starters

Hi Jo77 how are you? hopefully by now you are feeling better? love aNN

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Re: June 2020 chemo starters

Hi you are still in Nadar so temp could be sign of infection not just reaction, please just keep checking with your unit, it’s not being a fuss pot, it’s being vigilant and you doing what you can to get safely through 👍💕💕Shi xx

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Re: June 2020 chemo starters

Shi,

 yes I have it every 3 weeks . Docetaxel was on 14th , started reacting worse on 18th with slight itch then day by day rash and bumps appeared and got worse ,then temperature started on 20th. They said any reaction can start within a week after treatment .i am keeping a log of it and hopefully they will change my last 2 treatments to something else .... I’m not going through this again !

I hope you’re ok and have a good week x

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Re: June 2020 chemo starters

Hi Butler,

 I don’t have aches and pains as such just feel really uncomfortable. Took me from 4:30am Tuesday morning until 9 Wednesday night to get to sleep because I just felt really uncomfortable like I was over tired. 

 I have had some weird spots on Doxetaxel though. Like gnat bites in between my legs. They felt like sore when I was walking and when I asked my hubby to look because I can no longer see past my chemo belly he said it looked like little blister that have burst. I put vasaline on them and slept with no pjs on and this seemed to work and dried them out.

 Got to watch my eldest play football in a friendly this morning was great to be in the fresh air. Have to say I loved it. Although I don’t know about anyone else but I am sick of hearing people moaning. The amount of people that moan about having to get up on a Sunday morning because they are tired I thought I find it hard to get up each day as I’m tired but I do because I don’t want to miss out on anything. My Son is a goal keeper and gets a lot of criticism from other parents if he lets shots in. He was told to wake up today. I lost it and and said well actually he is only 9 has lot played for 6 months and sleeps by the side of my bed each night as he is so worried that something might happen to me! I also realise today for the first time how lucky I am to have found the lump and still be here to watch him play football.

 Sorry ladies rant over. 

 Hope you are all having a nice day 

 

 Tara xxx

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Re: June 2020 chemo starters

I got put on Abraxane last Thursday  with Carboplatin as reacted on 2nd round on paxitacil.  Not had no sickness but got terribly hurt burn Friday night and last night got all the pains in all my joints and pain in places I didnt think. Alternating between heat pads and ice blocks at moment plus paracetamol.  Any body else had this. This is my 5th chemo round  just 2 more to go. Then op and radiotherapy.  So nearly there. Have a nice Sunday ladies. X

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Re: June 2020 chemo starters

Jo, do keep ringing your team and updating them keep record of your temperature too, what day are you on in your cycle? Are you having every 3 weeks? 💕💕Shi xx

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Re: June 2020 chemo starters

Thankyou ladies . 
Seemed to feel more itchy / sore and temperature not decreasing so rang the hospital again .... was told to get myself to a&e    
ASAP. Their first thought was neutropenic sepsis( which it isn’t ) so was put on an anti biotic drip , blood test, urine test , X-ray .

It is an allergic reaction also an infection but they are unsure what ! Discharged at 11pm with more steroids / antibiotics/ etc  

the itching / stinging is driving me insane ...never felt. Nothing like it .. nothing is helping  yet .

hope you all have better luck and enjoy your weekends !! Xx