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June 2020 chemo starters

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Member

Re: June 2020 chemo starters

Hi Julie, hopefully everything ok with your radiotherapy, love aNN

Member

Re: June 2020 chemo starters

Hi Julie, thanks for asking, I was thinking of you today which was day 2 of 5 for me.  I hope your exercises are going ok because you lie on a board with various supports but your arms have to be above your head, it only takes about 15 minutes the treatment and is totally painless, in fact you cannot feel anything as the machine moves around you but you have to stay completely still.  I finish on Friday and have been moisturing twice a day, I was told to use E45 or Aveeno cream, I do get tired, going from chemo in Sept, op in October and radiotherapy in November is a lot.  My hair started re-growing in September but is still really short, especially on top, my eye lashes and eyebrows are just stubs, better than nothing but a long way to go. 

Hopefully by the end of next week Julie you will be finished, and everyone else if not already finished will be through by christmas or soon after, even though it looks like being a strange christmas. 

Love to you all, my cancer family aNN

 

Member

Re: June 2020 chemo starters

Hi Ann how did your radiotherapy  go today.  Xxx

Community Champion

Re: June 2020 chemo starters

Hi Horseylass,

 congratulations on finishing your treatment I bet it feels like you can finally take a deep sigh of relief? This is how I felt anyway. Well done 👏 you!

 

 Ann, hope you are okay, please let us know how you get on with the radiotherapy. In fact it would be nice to stay in touch so ladies of June please keep posting.

 

 Cactusqueen, I applaud you ringing that bell 🔔 well done you! I am similar to you and have had the side effects of peeling hands and flaking finger nails after treatment. I think you have that much adrenaline to get you through the chemo you relax more afterwards and your body has to get rid of the nastiness to begin to heal again.

 

 I have not posted for a few days even though I have been reading what you have all been doing. My boys are isolating from school as there has been an increase in covid cases in their school. Adam and I made the decision to take them out of school at the weekend until the 2nd December  to protect me as I have a blood clot on my lung and high heart rate. However, I had an email from the school Monday to say my eldest sons class needed to isolate as the dinner lady in their bubble had tested positive along with a child too. I felt guilty about taking them out, but not so bad now as his whole class are isolating. It’s back to home schooling for me 🙄. Hard work teaching 2 different year groups learning, but will be good practise for when I go back to work. On that  subject are any of you ladies planning on going back to work and if so when? Would be good to hear.

 

 Hope you all have a lovely day!

 Stay safe, love ❤️ Tara xxx

Member

Re: June 2020 chemo starters

Hi CactusQueen,

Congratulations on finishing your treatment. 👏👏👏

I’ve been taking Letrozole (anti oestrogen) since April although I had to stop during chemo. I will be starting on bone strengthening bisphosphonates too but need to have some dental work first. 

I had 6 rounds of EC and I haven’t had very much in the way of side effects apart from the hair loss and dry skin. My hair is starting to grow back but I only have a slight fuzz at the moment. The worst part is my eye lashes growing as it really makes my eyes itch like mad. 

I’ve felt very similar to you in that I’ve only been able to deal with one aspect of the treatment at a time. I had a breast reduction when they removed my lump so that has left me very lop sided and needing the other reduced. I don’t know whether my Heath trust is still doing those sort of operations at the moment or not. I guess I’ll find out when I meet with the surgeon on Thursday. I would like to get it over and done with but I do understand that there may be people with a greater need than mine.

xx

Member

Re: June 2020 chemo starters

Hi ladies

Although it’s been months since I last posted anything I’ve been reading everything and following your advice. Thanks everyone so much for getting me through the treatment. xxx

Ive finally finished treatment but I’ve never seen a bell at the two hospitals I go to so I’ll ring a bell with you 🔔🔔🔔🔔🔔. I can’t quite believe we’ve got this far. Good luck to any June starters who haven’t finished chemo yet. Hopefully the end is in sight for you. 
As people have been saying it’s been a strange time. I’ve felt quite lonely during my treatments. I had three sessions of EC which was okay. Then I had 3 sessions of docataxel, which was a challenge! My last treatment was six weeks ago but I know it’s still lurking in my system. Sometimes I think I smell of chemo drugs but my husband and son say they can’t smell anything.
I’ve had swollen feet and ankles which the nurses have said is water retention. I’m trying to move about more, drink much more and when I sit I put up feet up higher than my bottom. When it was really bad I slept with my feet on a pillow to keep them raised.

My feet tingle and the skin is peeling even though I moisturise them every day. My fingers feel numb although not as bad as they did. I managed to do some sewing last week which I couldn’t have done during chemo. My finger nails look like I’ve trapped them in a door, particularly my thumbs, index and middle fingers. I’m wondering if the nails will come off.

Still no hair re-growth😐, how is everyone else’s? 
I had five sessions of radiotherapy last week which was okay. I’ve followed the advice about moisturising and so far all is well.
I start my tablets later this week, an anti-oestrogen one and a bone strengthening one. 
I’ll need to decide in the future about reconstruction, they are not doing that operation at the moment so I don’t need to think about it. I have found that I can only think about one part of the treatment at a time. 
I hope everyone is feeling well today, keep safe.

Love CactusQueen xx

Member

Re: June 2020 chemo starters

Well done you.  A.

Member

Re: June 2020 chemo starters

Hi aNN, 
I’ve had 5 sessions of radiotherapy and my last one was today so I have officially finished my treatment. Yay. 

Im so sorry that you will have to stay shielding for so long. I’ve done 8 months so far and I don’t think I’ll be going anywhere any time soon given the ever increasing virus numbers. Apart from my husband the only people I’ve seen are medical staff. 

We will get there though and remember 2020 as the year we beat cancer rather than the Covid year. Stay safe. x

Member

Re: June 2020 chemo starters

Hi Horseylass, how many radio treatments did you have? I am down for 5 and will certainly remember the moisturiser thank you, I am lucky both hospitals are only about 45mins drive away.  All my treatment has been in a temporary location so nothing like a bell to ring, I still go every 3 weeks for my targeted therapy which will last until August 2021 so I will have to shield for another 9 months unless there is a vaccine.  Hope you all have a good week.  Love aNN

Member

Re: June 2020 chemo starters

Congratulations Tara on finishing your treatment and giving that bell a good ring! I rang the bell after my chemo finished but I don’t think there is one on the radio department. Not that I mind, just finishing my treatment is good enough. I have my last radio treatment on Monday and then back to see the surgeon on Thursday to talk about getting my healthy breast so it matches! 
Touch wood, so far I’ve had very little in terms of side effects to the radio. I’ve been a bit more tired but it is taking over 5 hours of the day, when you include travelling. My biggest tip for those of you yet to start radiotherapy is moisturise, moisturise, moisturise! I’ve used E45 and Aveeno and both have been really good. Do your exercises too as they will help with the position you need to rest your arm for the treatment. 

We are so close to getting through our treatment ladies. Stay strong and stay safe. xx

Community Champion

Re: June 2020 chemo starters

Hi Tabs, what are the symptoms you have had from peripheral neuropathy? The only reason I ask is because I was quite lucky when having chemo, hardly any side effects, however since finishing I am more breathless and have swollen legs feet and fingers with pain. As mentioned in my previous post I have got a blood clot on my lung which is being dealt with and are having a scan on my heart in the 29th I presume to check my heart as it was found to be fast and irregular. I have been told the swelling is not water retention and most probably to do with the steroids I took when on chemo. I told my surgeon the other day about the pain I’m experiencing in my fingers and my legs and feet when I stand up from sitting. It’s like I’m all stiff and they are not strong enough to hold my body. He said it would be the neuropathy. 

 Sorry to sound like I don’t have a clue, but I did not experience this when having treatment, just the swelling  not the pain.

 

 Hope you are well today and all the other ladies.

 Fab news that you will be finished chemo in a month. You ring that bell hard girl!

 Butler, good luck with your radiation ☢️ 

 Have a good day all!

 

 Love Tara xxx 😘 

Member

Re: June 2020 chemo starters

That's such a nice photo, it's made me excited about finishing my chemo in a month. I think because I had to delay a couple of treatments, it's felt like it would never finish.

Have any of you had any peripheral neuropathy during chemo? If you have, I was just wondering if it's become less noticeable since you finished or not. Mine is only mild at the moment and my medical team are monitoring it and will change my dose if they need to.

I've been reading everyone's experiences about radio. I'm definitely looking for any radio top tips for when I have mine at the beginning of January and also for hormone treatment if anyone has it.

Have a good weekend everyone, it's so nice to nearly be on the other side, Tabs xx

Member

Re: June 2020 chemo starters

ah that lovley ttyler

Congratulations. Xx   iv just come bk from my radiotherapy planning appointment.  Was only there for 20mins. Just had to have ct scan. And got to start on 2nd dec for my treatment to start.  X

Community Champion

Re: June 2020 chemo starters

C11A013B-B7F6-4CB2-9C2C-01FF6BBE5A58.jpeg

 me and my boys ringing the bell 🔔 x

Community Champion

Re: June 2020 chemo starters

Hi ladies, everyone’s treatment seems to be running smoothly towards the end now. I finished my radiotherapy on Monday and rang that bell like mad! Luckily as the bell is outside the unit and my treatment was at 4:30 my boys were able to do it with me. I was a proud mum. The journey has been tough for  us all, but we have come  out the other side!

 

 I have to go and see an endocrinologist on the 23rd, not sure what that is about, something to do with hormones, but as I was triple negative are at a loss. I also have a heart scan on the 29th. Think they are checking my irregular heart rate. I had my fitting for my stockings yesterday to help with the blood clot. I have to say I am relieved cancer treatment is over but are noticing the effects of the chemo more now. Think it is because I am more relaxed.

 Glad to see everyone is doing well. Sorry if I scared you Ann when I told you I bled a lot when I had my tattoos. It now makes sense that this was because of the blood thinners for the clot. I do I tend to bruise a lot  easier now.

 Good luck for your radiation ladies. Keep in touch, I’ve enjoyed meeting and talking to each and everyone of you!

Have a good day!

 Love 💕 Tara xxx

Member

Re: June 2020 chemo starters

Ann, I’m glad I managed to put your mind at ease regarding the tattoos. I’ve been telling everyone that I have 3 tattoos. Ha ha, I think they’re imagining pictures not3 small dots!
I started my radiotherapy this week and have had 2 sessions so far. I’m not finding it too tiring but my poor husband is exhausted from the driving as it’s a 5 hour round trip to the hospital everyday. 
Mine is on my left breast too, so I have been doing the breath holding which isn’t too much of a problem. There’s a TV screen on the ceiling with photos to distract you too.
I’m having tablets for the bone strengthening. It’s interesting how different hospitals have slightly different treatments.
I have been shielding since my treatment started in June as I was told to from the beginning. Once the treatment is over It will be strange to go anywhere other than the hospital, doctors or dentists! 

Member

Re: June 2020 chemo starters

Hi Ann glad your planning  went ok. I got mine tomorrow  saw oncology yesterday to talk about radiotherapy,  then today I had a call to say can I go tomorrow  for my planning meeting. I asked them about the tattoos  but my hospital dont do them any more.   I'm just having all the scans and telling me how to breathe hold my breath as my cancer on left breast and it can effect your heart/lungs. So hopefully   they will also give me my start date.  I am only having 9 treatments  that 5 one week then 3 booster the following week. Then that's me done.  I have got to hv an infusion/ injection  every 6 months for 3 years for my bones.x

Member

Re: June 2020 chemo starters

Hi Girls, hope you are all ok, Horseylass thanks for your comments stopped me worry about my tattoo's which I had today and all fine on a bruised boob Julie, just a scratch.  My radiotherapy starts 23rd and then it's just the two infusions every three weeks until August next year.  I have been advised to stay shielded through all cancer treatment so I am hoping this new vaccine is good as some retail therepy would be nice.  Keep smiling girls, we are on the home straight.  Love Ann

Community Champion

Re: June 2020 chemo starters

Thank you Ann xxx

Member

Re: June 2020 chemo starters

Well done Tara

Community Champion

Re: June 2020 chemo starters

Hi Butler,

fantastic news about your scan results, you go girl!

 My oncologist organised my radiotherapy too. I am 6 sessions in, have 3 left. My main radiotherapy was for 5 days and I started my 4 booster sessions yesterday. Providing there is no delay on the machine I am usually in and out within 15 minutes, however I do realise that some people may be longer depending on the amount of radiation beams you need. I have no pain or discomfort, however my breast does get a little itchy when I am warm at night, but E45 lotion is sorting this.

 Glad to hear you will be starting radiation soon Horseylass and if your body tells you to sleep then you sleep girl! I do 😝 

 Hope everyone is doing okay with their treatment and feeling okay within themselves especially with the new lockdown coming into force.

 Take care ladies and stay safe!

 Love ❤️ Tara xx

Community Champion

Re: June 2020 chemo starters

Hi aNN,

hope all went well for you on Tuesday!

 Yes I am a Community Champion. Really enjoying the role, love being able to share my experiences of the journey we are all on and hope I can bring some peace of mind.

 

 If we all come together we are strong 💪 this is something that will bring cancer down. Together we can get through this!

 

xx

Member

Re: June 2020 chemo starters

Hi Ladies,

I had my operation in May and have been doing my exercises since then. I was told by the physio ( in my phone appointment) that I should carry on doing them for 6 months after my radiotherapy. I remember that it was difficult at first but does improve gradually. I do now have pretty much full mobility but my shoulder still gets stiff every now and then if I do too much. 
I had my radiotherapy tattoos last week and they are no more than a scratch. They are tiny. I have one on my sternum, one below that and one under my arm. None are actually on my boob. 
I start my treatment next Tuesday. If I’m like Tara I shall be falling asleep on the way home as it’s a 2 hour drive. Fortunately my husband is taking me. 

Julie, so pleased that your nodes etc were all clear.

Stay safe and strong ladies, we can do this. xx

Member

Re: June 2020 chemo starters

Hi Julie, exc news, well done.  I am waiting for my radiology CT scan, the tattoo is aparently permanent and am a bit concerned that tattooing a bruised boob might be rather sore but will let you know.  My armpit scar is still sore and has been since the op, I am still doing my exercises, I am hoping to get full mobility back, perhaps the girls that had their ops early could let us know how long they had to do the exercises for and if they got full mobility?  Jab and infusion starts today for 14 treatments every 3 weeks till I think next August, lets hope covid is on the run by then.  Anyway hope you all have a good week.  Love aNN

Member

Re: June 2020 chemo starters

Hi Ann

Yes doing ok thank you. Results came back that markers were clear and so was the 6 nodes  clear, so that was excellent news. I had a letter to say I now been referred back to oncology  so not sure if its them that organise my radiotherapy appointments. I feel like iv been left to my self since OP.   Was going to ring nurses today as my armpit has started to hurt more since sat. I even had to take paracetamol. Not sure if this is normal or due to excercise I'm doing, did you get this  That  said it no where as bad as chemo.  Hope every one is getting on ok and have a good day x  julie

Member

Re: June 2020 chemo starters

Thanks Tara, I am waiting for my dates, jab and protein infusion starts tomorrow.  Just noticed you are a community champion? Love aNN

Community Champion

Re: June 2020 chemo starters

Hi aNN,

No it wasn’t anything you said. It was half term here last week so busy, busy, busy. My life never runs slowly, always at 110 mph 😝 

 

 I hope you are feeling okay after your operation and finding the exercises a little easier to do.

 

 Radiotherapy went well. I started last Wednesday. So far the side effects I have experienced have been a slight itchy feeling to the breast that is being treated. Nothing too bad and treated with E45 as recommended. I have definitely  felt like I have more energy since being on the beta blockers and blood thinners for the blood clot on my lung and fast heart rate, however about an hour after radiation I feel really tired like I am ready for bed. Luckily you can ask for a time that suits you for radiotherapy and if it is available they will let you have it. I always ask for late afternoon. I am at a different local hospital for radiotherapy as the hospital closer to home do not do it.

 Radiotherapy is like a walk in the park compared to chemo, it really is okay. well I have found anyway. I seem to be more tired now that I am getting near the end of treatment and have had swollen gums that I am receiving antibiotics for, but I think this is because my body had that much adrenaline to get me through chemo it has taken a breath of relief now and my system is a little low!

 I am still very swollen fTom the steroids and are trying to move around to lose it, it’s just hard when you have been told to rest more.

 

 Hope everyone is feeling okay and looking forward to Christmas, even with the new lockdown rules. I know I am and can’t wait to spend it with our little household bubble.

 

 Lots of love to you all ❤️ Tara xxx

Member

Re: June 2020 chemo starters

Hi girls, missing your posts, was it something I said? Butler 10 hope you had good results, Tara hope radiotherepy went well, how is everyone else doing? hopefully most of you should have finished chemo by now?  Love aNN

Member

Re: June 2020 chemo starters

Hi Butler10 thanks for your message, yes feeling fine but wiped out, doing my exercises but they knacker me, waiting to hear about radiology the Macmillan nurses say I am down for it and my jabs start next week.  Had really good result from my op, complete pathological response, silly really but it's a bit hard to take in as all I concentrate on is the treatment, I know it is hard girls but keep biting the bullet, it is going to be worth it.  Really sorry you are having such a bad time Tara but pleased it will not delay your treatment, I have not heard much about radiology re side effects etc so do fill us in if you can, hope it does not affect hair as I am getting some back.   I was sent a brochure on lymphoedema which I am going to have to be really careful of because like horseylass I am a smallholder/farmer so I spend most of my time getting dirty on the veggie patch or mucking out, I get very rough hands so I am now washing my hands with Acqueous cream as it is also a soap and am buying gloves that I can work in which should help protect me.  

Anyway enough of me, hoping you all have a good week.  love aNN

 

 

Member

Re: June 2020 chemo starters

Oh Tara, you poor thing. Thank goodness you rang the hot line. I’m pleased that it won’t affect your treatment though. Good luck with your radiotherapy this week, fingers crossed that it all goes smoothly for you. 

Enjoy your day with your boys. Cold and windy here too.

Take care. xx

Community Champion

Re: June 2020 chemo starters

Hi ladies,

Glad  your op’s went okay, hope you are all feeling well. I found my op a walk in the park compared to chemo.

 

 Horseylass, I am due to start radiotherapy next week. Just waiting for the call. Have been given a machine number and had my lympadema chat yesterday.

 

 I have had a nightmare of a week this week though and was unsure if I would be able to have radiotherapy. After a trip to A and E Monday with swelling to my hands, fingers, ankles and feet and what I thought was severe heart burn and breathlessness I was given 3 scans and a covid test over 2 days. Turns out I have a high, irregular heart rate for which I have been put on beta blockers and a blood clot on my lung. Just when I thought I would be getting better lol. I will have treatment for 6 months to prevent further clots and wait for this one to dissolve. The good news is it won’t halt my cancer treatment!

I am happy to hear everyone else seem to be coming along fine. Just if you feel different or unwell, please get checked out, don’t assume it’s just the side effects of treatment like I did. I had no temperature and it was only because the heartburn burn pain was getting worse and chemo had finished that I called the hot line. Apparently pulmonary embolisms and blood clots are common in cancer patients.

 Hope you are all having a good day, weather not too good here, but making the most of relaxing with my boys with the heating blasting.

 Lots of love 💕 Tara xxx

 

 

Member

Re: June 2020 chemo starters

  • Hi ann 
  • Hope you are going good after your OP the other week.  
  • Xxxx
Member

Re: June 2020 chemo starters

Glad your surgery went well. I too thought I had a fab sleep when I had my surgery. I was astonished how quickly I was knocked out and then what seemed like the next minute I was in recovery. 

I have my radiotherapy planning scans on Monday and my tattoos! It’s a 2 hour drive each way which is the worst part. It makes for a long day. But hopefully I’ll get my dates soon for treatment. I’m having 5 days in a row and then I’ll get to ring my second bell! After that it’s surgery on my right breast to even things up. Whether I’ll get that this year or not, who knows. As it’s only cosmetic, I wonder if it will be postponed because of Covid.

I hope you are all doing well and have a good weekend

Member

Re: June 2020 chemo starters

 Hi Anne    Yes home by 4pm.  Morning was busy thou had to go and hv 2 wire markers put in,  then  walk the length  of hospital physic dept to have a injection of radio active which was for the blue dye to go in before they started op  went out like a light when I got to theatre  had best sleep ever.lol. my Consultant phoned my hubby while I was in recovery and told him all gone well  And that she phone me next Monday 27th.  So hopefully radiotherapy next then 🤞 all done.   Are you doing well.xx

Member

Re: June 2020 chemo starters

Hi Butler10, hope you are home safe and sound and that the day went well.  love aNN

Member

Re: June 2020 chemo starters

Hi Anne  

Glad it went well.  Iv been up for my covid test this morning  so hope it comes bk ok as my OP is on Monday. Got to be in by 7.30  then at 9.30 I got to have another marker put in plus the blue dye.  Then I persume I go down to theatre or back up to ward to wait my turn. Hopefully it will still be just a day job.   Then hv few weeks then start the radiotherapy   fingers crossed every think finished before xmas.xxx

Member

Re: June 2020 chemo starters

Hello Ann, Tara and everyone,

Well done on getting through the final treatment on Wednesday. Do you expect to have some tough days now? Were  you still on FEC or on Docetaxel? I’ve found Docetaxel easier to handle, round 4 was a bit grim back and forth to hospital with side effects, but round 5 was the most manageable yet, no triage trips needed. 

Did you get to ring a bell? We don’t at our hospital but we do after radiotherapy in November. I’m having 2 weeks. I asked the Consultant were they still doing the condensed one week treatment at a higher dose and he says that is how radiotherapy is evolving - they used to do 5 weeks, then three, but trials in the last few years have showed that fewer sessions at a stronger dose are effective. I believe mine will be a week on the right breast and a further week more closely targeting the tumour area. It’s really only a precautionary clear up of any last cells lingering (could there be any after 6 x chemo?) and the consultant said it only offers about an extra 1% chance of cancer not recurring but I’m glad to have all the layers of treatment (tamoxifen is something like 7%). 

Tara, I had my tattoos done on Monday. Felt very cool telling my 15, 13, 10 year olds their boring old Mum has tattoos but they weren’t terribly impressed 😄 It’s horrible that you had bleeding, I didn’t have more than a pin prick. 

Throughout chemo I found I limited my reading on the forums and generally online, has done quite a bit to learn things early on but hadn’t the mental strength to cope with it after the treatment started. Recently I came across a sort of virtual conference bus Penny Brohn, about integrating other types of help around traditional treatments and I attended some of these sessions. They were very well run. I feel this will help me for the onward Journey to plan some of the things I know I need to improve (stress and exercise and sugar intake). Maybe some of you might like a look, I believe you can still get tickets for the recordings: https://yestolife.org.uk/event/your-life-and-cancer-2020-1/

 

All the best,

Anna

Member

Re: June 2020 chemo starters

Hi Butler 10, thank you so much and well done for remembering, I find it hard knowing which day of the week it is let alone remembering when someone else has surgery, all went well thanks but still have a bag attached, I met a woman Lisa, just starting her journey, she had only known about her cancer for 2-3 weeks and had her masectomy that day, I recommended her to this site as I am so grateful for all of you, your stories, comments and support help so much, I hope we all keep posting here.  I have radiotherapy next and then the jabs,  hopefully more of you have now finished your chemo by now and are starting to feel better.  Please post when you can.  Love to you all  aNN

Community Champion

Re: June 2020 chemo starters

Sorry for the spelling mistakes. My fingers are still swollen from the steroids and too big fir the buttons on my phone! X

Community Champion

Re: June 2020 chemo starters

Hi everyone,

 sorry I have not been on fir a while, I have been well in myself, have just been trying to sort out an EHCP fir my youngest. He also has a lot of hospital appointments at the moment.

Thank you for discussing your treatment with me. It seems like most of us have more treatment to move onto after chemo, whether it be radiation or surgery. I was told if the virus was not around I would have had chemo first rather than surgery. It’s interesting to see that those ladies diagnosed slightly later have had chemo first. I wander if things will change again with the virus getting stronger again?

 My radiotherapy planning went well. I had a CT scan without the cannula, which was a bonus and the tattoos were not too bad, however I did bleed quite a bit in my good side. Never felt a thing on my right side where the tumour was. Funny really because I have sensation in my nipple but could not feel the ratio being done at the side of my breast. The one in the middle of my chest was not too bad either. I should start radiotherapy on the 28th of this month. All moving quite quickly.

 

 I have found that since finishing chemo, I am really tired. Think this may be because I tried to carry on as normal, home schooling the boys, washing, housework etc and now it is all catching up on me.

 

 Anna, I hope your last chemo goes well tomorrow and anyone else that is due chemo too.

 

 It will be nice to stay in touch on here even as we move on to different treatments or finish completely.

 Thinking of you all ladies!

 Lots of 💕  Tara xx

Member

Re: June 2020 chemo starters

Hi Anne

Will be thinking of you tomorrow. Hope all goes well for you. Xx

Member

Re: June 2020 chemo starters

Hi all

 

I had my last chemo 30th Sep !  Im still not back to normal, but getting there slowly :-).

Im booked in to see the surgeon on the 15th Oct, but still not received an appointment for MRI yet or surgery. Covid has slowed things down again at my hospital. Ive to have target therapy again on the 21 Oct to cover me until my Mastectomy and axillary node clearance.

 

Hope everyone is doing the best they can, and keeping safe 

 

Michelle x

Member

Re: June 2020 chemo starters

Hi everyone 

Its so good to hear that we have finally finished or nearly finished our chemo treatments. Way back in June it felt like we’d never get here. I had my last dose yesterday. I’m waiting for the side effects to start tomorrow when I start the injections. Thanks Tabs for mentioning the moles. I seem to have a few mainly round my middle and also more skin tags than I’ve ever had.

I think I also need a dentist appointment as my jaw aches and front teeth at the bottom.

Tara, how was the radiotherapy planning? What happened exactly? Was it scary, I’m such a wimp, is it like a CAT scan which I’ve only seen on TV. They look a bit claustrophobic. I’m having radiotherapy but haven’t had the appointments sent out yet. Hopefully I’ll be able to have the five sessions of treatment.

This awful Covid virus shows no sign of going away. I live in a area where there has been lockdown rules, so no visits from family and friends which is very lonely. I haven’t even been in a shop since before Easter! Only hospital visits and dog walks for me!

Take care everyone 

Love CactusQueen 💐💕

Member

Re: June 2020 chemo starters

Hi Everyone,

It's really nice to hear that you're all coming to the end of chemo. Am very jealous, mine isn't due to finish until the end of November. It was meant to be mid November but I tested positive for covid in a routine test before a chemo treatment. It was a week when test results were delayed so I didn't find out for 6 days. On the plus side, I didn't have any of the usual symptoms, the achey neck I thought was chemo, and the prickly heat on the tops of my hands and feet the doctors thought was chemo too. I think that one of my teenage boys must have given it to me but it's not their fault. I've also been referred to have a mole removed as it's changed colour during chemo, which apparently is a thing so check your moles for changes and check with your GP if you find any. I'm waiting to find out if it can happen during chemo, or if I'll have to have it removed between chemo and radio. I'm meant to have the 5 days of radio and then Letrozole for 5-10 years. I was hoping to have the radio this side of Christmas as there were reports that the isotopes or whatever they use in radiotherapy may be affected by Brexit. I guess everything will take as long as it takes. I'm looking forward to having my other breast removed in Spring so that I can be symmetrical as I'd already lost my right nipple in the original mastectomy. I'm also awaiting the results of the genetic tests, but was told it can take 3 months, hopefully it will be negative so that my boys won't have to worry if they're carrying it. Anyway, I hope you're all well. It's great that we're nearly through it. Good luck everyone, Tabs

Member

Re: June 2020 chemo starters

Hi Tara and everyone,

I have my final chemo next Wed, all being well. I had a couple of postponements along the way because I took a dose of the cold twice. Fingers crossed all will go ahead. The Covid rates around here are really rising, and with my 3 children at school I’ve been expecting it will come close to home at some stage. 

Tara, I’m also going on to radiotherapy after chemo. Initially it was to be an intensive dose for 5 days but I believe they may have moved back to the standard 3 week programme now. I have my planning appointment on Monday. Expect to be done radio by end of November and then tamoxifen for 5+ years. I’m also waiting on results of the BRCA1/2 gene test, has anyone else had this? I have 2 first cousins and 2 aunties who have had breast cancer so this pushed me across the threshold for testing. There’s only a smallish chance of it being positive, but a positive result would mean removal of ovaries for definite and a discussion about bilateral mastectomy. We’ll cross that bridge if we come to it 😊

 

Take Care, everyone. 

Anna

 

Community Champion

Re: June 2020 chemo starters

Hi Horseylass,

well done on your final chemo, you did it, I hope you rang that bell hard! I have not done it yet as I want my boys to be with me as they have had to get through this with me too. I will take them after radiotherapy to do it.

 Had my planning appointment and tattoos done yesterday ready to start on the 28th of this month. Everything is moving quickly. This year seems to have gone do fast.

 

 Is anyone else doing radiotherapy after chemo?, if not are you having any other type of treatment?, I would love to hear about it.

 To those of you still doing chemo, not long now! Stay strong ladies, we will beat this!

 Lots of love 💕 Tara xxx

Member

Re: June 2020 chemo starters

Hi All,

I had my 6th and final chemo this morning. Yay. I got to ring the bell! 🔔  

That’s done with. Now I just have to wait until November to start my radiotherapy. 

I hope you are all ok? Everyone seems to have been a bit quiet for while. 

Stay strong. We can beat this. xxx

Member

Re: June 2020 chemo starters

Oh Tara & Jo. I’m so sorry to hear of your problems. I hope you both manage to get your last chemo sessions done as soon as possible. It does seem the more of the treatment we have the more our bodies take a hit. I suppose it’s inevitable but not nice. 
I had full dental X-rays taken yesterday as I need work done before they can hive me the bone strengthening drugs. It’s one thing after another isnt it. 

Stay strong girls. Fingers crossed that you get your last chemo soon. 
xxxxx

Member

Re: June 2020 chemo starters

Tara , sorry to hear of your trouble and having your lady chemo postponed 😖

ive got my last chemo tomorrow, but got to also have a scan on my arm with picc line as It’s very swollen and they think I’ve got thrombosis in it 😩

hope everyone’s doing ok x

Community Champion

Re: June 2020 chemo starters

Hi ladies,

hope everyone is doing okay. Well done to those of you that have finished chemo and good luck with your surgery/ radiotherapy.

 I have my radiotherapy appointment for 30th September so will let you all know how this goes. I also should have my last chemo tomorrow all being well, however have had some little abscesses appear on my nipple scar. I called last Thursday and was told I was fine because I did not have a temperature and they are only small, however when number 2 appeared on Monday I decided to take myself up to the unit. Had swabs and had to have heart rate monitored for 2 hours as it was high. Told I can’t have treatment tomorrow if an infection. Will have to let you all know!

 Hope everyone has enjoyed the sunshine over the past week. Horrible here today. I’m enjoying relaxing inside.

 Love to all Tara xxx