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June 2020 chemo starters

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Re: June 2020 chemo starters

Hi Leanne 

I had my 3rd session of chemo on the 9th  and I also hv felt worse this time  but not sick just queasy  and light headed. I also hv had the funny nose feeling  I only normally get that on day of chemo, but this time every think seems to be taking longer to dissapear.  On the 30th July I start a new chemo cycle of Carboplatin and paxitacil  just hopeing they dont make me sick. X  happy Sunday every one

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Re: June 2020 chemo starters

Evening everyone 

so sorry it’s been ages since I’ve been on, I’ve just tried to have a good catch up on everything.  Happy belated birthday Tara.

everyone sounds so positive.  Glad everyone is ok.

i had my second round on 9th and I’ve felt dreadful since then.  Thankfully they altered my anti sickness meds so I wasn’t sick again but felt nausea since then, not a lot of appetite so picking as and when, hopefully it will help the diet that I started before all of this happened but doubt I will be that lucky.  
I’ve had a very weird sensation since the chemo the bridge of my nose and above feels errm fizzy, not sure how to explain it.  I know I should call the number and ask them but I don’t like to bother them it’s probably just me being a wuss 😂

some one asked about work, I had all intentions of carrying on working through the chemo but since I started chemo on 18th June I’ve only managed about 5 days going in.  Work have been amazing and aren’t expecting me back until next year and they are still paying me as normal.  I work for a small mental health company as the manager so I am planning on going back in January.  Like I said they have been amazing I’ve had cards flowers, chocolates and a cancer care package.  I couldn’t ask for a better place to work.

anyway enough of me going on 

love to you all 

Leanne xx 

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Re: June 2020 chemo starters

That’s sound advice, thanks Shi.

Ann, I will let you know just before I go for T so that you can share your advice and experiences with me.

 Thanks so much for your support ladies.

 Night, night xxx

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Re: June 2020 chemo starters

Hi Tara, I also used a heat pad at home and ibuprofen gel on arm at home too, but do check everything with your unit 👍 everyones different Tara, I’ve know people work through chemo and rads, others can take longer, you go at your own pace when it comes to work and listen to your body ❤️ And do what makes you happy ❤️💕💕Shi xx

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Re: June 2020 chemo starters

Hi ladies,

Thank you so much for your advice it has put my mind at ease.

 Shi, I had a heat pack in my arm last cycle as it felt sore and bruised. I will definitely ask for it again. I find after chemo my stem is tender to touch like when you go to the gym and pull a muscle.

 I one hundred percent want all treatment on offer and will see it through to the end. I am such a positive person and like to support others but can sometimes be a wink when it comes to myself.

 Wanted to ask you ladies. Did anyone go back to work after treatment or is anyone going to go back? I work in a school and are worried I won’t have the strength/ energy to do what I used to. Was thinking about going to uni actually. I appreciate all the support I have been having whilst going through bc and want to give something back. I also want to keep my mind focused in future and like to spend time writing assignments. I know it sounds silly but it is something I can do for me. Another achievement. As if getting through this won’t be an achievement enough 😝  

 tell me if I’m being nosy, just wandered what others have done and what everyone’s thoughts that are going through this now are for the future.

 Lots of love  💓  Tara xx

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Re: June 2020 chemo starters

Hi Tara, I had my T yesterday after a day of p & H, I had not reaction to any of them, I had been like you, concerned, the T they started at a very low rate and increased it after 40 mins and kept increasing it to make sure I didn;t react, I was also given some steroids the day before on a 3 day course, if I had reacted they would stop the infusion and treat me with piriton into the canula.  24 hours later I am feeling as normal as one can on chemo.  The infusion took 3.5 hours and I watched tele the whole time to keep my mind off it.  My next infusion is in 3 weeks and they will give me all the drugs on the same day.  It turned out to be no worse than the first infusion, it's just because it's new, please remind me nearer the time when you are going and I will be with you in spirit cheering you on.  Love aNN

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Re: June 2020 chemo starters

Hi Tara 👭❤️ It’s ok to be 😳 most of us have been when changing from fec to t, it’s the unknown again. It is gentler on the veins but do get them to put heat pad on your arm during infusion, found that helped when veins collapsed, but do speak to your unit to see what they recommend. Lots of people have reaction to t, your team has seen it all before and know what to do, I was about 20 mins into 2nd t infusion When my face suddenly felt red hot and I felt my chest go tight, I just shouted my chest is going tight, they were there in seconds stopping infusion and putting antihistamine bag through me, then the infusion was restarted but more slowly, I won’t lie I wanted to say no ta and leg it, but my determination to throw kitchen sink at it kept me sat in the chair. I did go back to fec for my 6th chemo but others who reacted to t went onto abraxane and were fine with that. Treatments have progressed a lot and there might be more alternatives for you if you have reaction, your team will know what to do if it happens. Remember lots have 💃🏻💃🏻🕺🕺💃🏻💃🏻 Through the and found it easier than fec 👍 we are all different. Hang onto the rollercoaster that’s chemo, you are doing amazing 👍👍 don’t forget to use the number on here to speak to a nurse who can talk in more detail about t with you so you can ask questions you might want to ask ❤️ 💕💕Shi xx

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Re: June 2020 chemo starters

Look at the blinking spelling mistakes again. I am having problems again. Hope you can understand what I am trying to say!

 Tara xx

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Re: June 2020 chemo starters

Hi Shi, thanks for the information.

 I am a little worried about the t to be honest.

i am also worried about my veins collapsing too. I get anxious like this each time before chemo. If by any chance I do get the right chest if hot flushes she having the t what do they do will it be stopped or. Do they lower the dose? I’m so sacred 😝.

 Not been to bad so far apart from the swelling/weight gain and itchy eyes which I have drops for. Can’t wait for this to be over!

 Tara xxx

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Re: June 2020 chemo starters

Good morning ladies

hope you're all doing okay thank you Anna for  your concern

My stomach cramp across by constipation so have been given some medicine to help me go

Since the last time I spoke to you  I have opted to take the picc line which was incepted on Wednesday 

Only four more section of chemo to go  and seven more Herceptin 

take care everyone

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Re: June 2020 chemo starters

Hi Tara, the t can made you have a very runny bum, Imodium at the ready, it can also cause you nails to lift, again this does not happen to everyone. Epsom salt baths were handy for the bone pain, it can make you feel like body is in a vice again not everyone has same se’s and some sail through t like a stroll in the park 👍 be aware you might have a reaction during the t infusion if you get hot and your chest starts to get tight shout your nurses immediately, they know what to do because they have seen it all before ❤️ Just wanted to let you know so you can be vigilant when starting and going forward during the t 👍 you are all doing fantastic 💃🏻💃🏻🕺🕺💃🏻💃🏻 Keep dancing in the kitchen you are dancing through great 💃🏻💃🏻🕺🕺💃🏻💃🏻💕💕Shi xx

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Re: June 2020 chemo starters

Hi everyone,

not been in for a few days, been so busy! My mum had my boys sleep over at hers last night and me and the hubby watched a film. Was so hungry at 10pm I sent him for a Big Mac. It was lovely!

 Horseylass, well done and fair play to you for walking straight after chemo!

Ann, I spoke to my oncologist on Wednesday who told me that I will have T from round 4. He told me that I might feel like I have been hit by a bus for 3 to 4 days after. He also said sickness should not be bad. How was it having the Docetaxel, was it manageable? Any taste changes, headaches whilst having it?

 You are right about my bloody spelling mistakes it’s because my fingers are too fat for the phone and it predicts my words incorrectly. It makes me original though, you will always remember me for this and also for the random stuff I talk about!

 I’m off to be now, but I hope everyone is okay and have a nice nights sleep.

 

 Lots of love to you all 

 Tara xxx

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Re: June 2020 chemo starters

Hi Girls, just completed my 4th infusion, so just past half way, 3 more to go, this one was a day and a half for P & H and Docetaxel, apparently main side effect is aches and pains. I will soon find out.  How are you all especially Cecelia who I think was having stomach cramps, what did your team say, did they help you?  Would love to hear everyones news as and when you are feeling up to it, especially from Tara and her presumptive text!!!!!!!!!

 

Hope you have a good week-end, Love to all  aNN

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Re: June 2020 chemo starters

Hi All, 

Thank you for your thoughts. You were all with me today.
My bloods were good and my treatment went well, thank you. I’ve got the injections this time so I asked about them. They are to help boost your white blood cells and neutrophils, my Oncologist is prescribing them as a matter of course to try and keep peoples immunity up because of Covid. 

I even managed a small walk this evening and just sat on one of our field walls looking at the view, it felt really nice. 

Tara, I think you do sometimes just need to let things go and have a cry. You do feel better for it, no point in bottling it up. I agree it does also make you consider what is important in life too. 

Hope everyone else’s treatment went well today. xx

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Re: June 2020 chemo starters

Hope treatment went as well as it could for you today Horseylass. Been thinking about you xxx

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Re: June 2020 chemo starters

Hi Anna,

I totally agree with what you have to say. I also think we will be stronger people after all this. Not so sure I will let people put on me so much anymore, especially at work.

Before my diagnosis I worked in a school but had far too much put on my shoulders. I am a ta but was doing more than the teacher, but without the pay. I have decided I am not going to be going back to that stress again I just can’t and won’t. It is really making me rethink my career!

 Hope everyone is having a good night

 Tara xx

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Re: June 2020 chemo starters

Hi Tara,

The little cry is sometimes just what’s needed. I can understand your feeling when you were diagnosed - I also had the feeling of ‘it’s okay, I can do this’ and while I’m glad that’s been the prevailing thought, we need to let out the big feelings (the negative ones) too once in a while. Take care, 

 

Anna

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Re: June 2020 chemo starters

Hi ladies,

Thanks for the birthday wishes I had a lovely day. Even had a little cry lol. Not because I am sad but just felt so exhausted. My husband brought me some lovely clothes, but because I am such a funny shape due to the steroids and my breasts are two different sizes, which is not bothering me because I am alive emotionally I am exhausted. I just sat on the bed looking into my wardrobe thinking what on earth am I going to wear? I feel so much better now. Don’t know about anyone else but when I was diagnosed I did not cry, I had this amazing serge of energy come over me and I knew I could not let this beat me. Felt good to let it all out yesterday.

 I hope everyone having chemo today is okay and it goes as well as it can.

 Hope everyone else is feeling okay. At least it’s dry today, might get done washing done 😝  have a nice day!

 Lots of love 💕 Tara xxx

 

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Re: June 2020 chemo starters

Happy belated birthday Tara!

Hope all ladies are coping well this week x

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Re: June 2020 chemo starters

Belated happy birthday, Tara. I hope it was a good day! 

Anna

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Re: June 2020 chemo starters

Good luck for tomorrow Horseylass and to all the other ladies having chemo tomorrow!

sleep well

lots of love 💓 

Tara xxx

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Re: June 2020 chemo starters

So pleased you’ve had a good day Tara. 

Good Luck to everyone else having treatment tomorrow. We’re going to beat this horrid disease, one treatment at a time. Tomorrow after round 2 I’ll be a third of the way through. Yay. 

lots of love and sleep well. xxx

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Re: June 2020 chemo starters

Hi ladies,

Thank you so much for wishing me a happy birthday you are so kind. I have met some lovely ladies on this site that I hope will be friends for years to come. I’m having such a lovely day and are glad you my virtual friends are part of it xxxx

 


💓love to you all xxxx

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Re: June 2020 chemo starters

🎂🎉🎉happy birthday Tara 💕💕Shi xx

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Re: June 2020 chemo starters

Sorry to gate crash I'm a July starter but wanted to wish Tara a happy birthday xx

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Re: June 2020 chemo starters

Hi Cecelia, we are all getting different drugs at different rates and in different orders so could it be a side efffect particular to your sort of chemo? No doubt your team will give you an answer, here;s hoping for you.  Love aNN

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Re: June 2020 chemo starters

Happy birthday Tara, hope you have a lovely day with lots of bril pressies.  Love aNN

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Re: June 2020 chemo starters

Hi Everyone,

Thank you all for the birthday wishes, it’s kind of you x

Cecilia, don’t sit there in pain, make sure you ring your unit, like the other ladies have said they will be able to help you.

 Now my mum orders are over, hope everyone has a nice day, weather not too brill here but never is on my birthday so will make the most of the day anyway. Have a lovely day!

Tara 😘 

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Re: June 2020 chemo starters

Morning all

It’s been like this since my second round of chemo 

I'm due to fifth of nine on Tuesday xx

 

I’ll get in touch with them later thank 

happy birthday 

 

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Re: June 2020 chemo starters

Hi Cecilia,

I am so sorry for the late reply, my phone did not alert me to your message for some reason.

I too get tummy cramps and also pulsating in my bottom and lower back the day after my injections stop for a couple of days. I don’t know if you have children, but it reminds me of the early part of labour.

 I take paracetamol and sit with a hot water bottle l, not too hot just tap water and this eases it. If it’s too bad might be worth ringing the unit to ask if you can use a gel like ibroprofen gel.

 Hope this helps

Oh check your temp before having pain relief in case of infection!

 Love 💕 Tara xxx

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Re: June 2020 chemo starters

Dear Cecilia

I’m sorry to hear that you’re not so good. My advice would be to get in touch with your chemo nurse team. I presume yours is like mine where they are available 24 hours a day, no problem too small. I have phoned a number of times and they are always friendly and welcoming. Where are you in your chemo cycle? If chemo wasn’t recent you may have a tummy bug. But I’m not a doctor so definitely get advice.

Take care.

Love CactusQueen 

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Re: June 2020 chemo starters

Happy Birthday Tara, I hope you have a lovely day.

Hi Cecilia, I haven't had stomach cramps, I'd call your chemo nurse for advice. They may ask what you ate before they started so see if you remember having eaten anything unusual. Good luck, Tabs

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Re: June 2020 chemo starters

good morning ladies I'm really sorry to disturb from your sleep

How is everyone hope you're all well 

Can somebody tell me please if they are also getting stomach cramps

if so is there anything I can to stop it 

thank you 

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Re: June 2020 chemo starters

Happy birthday for tomorrow Tara. I hope you can have a good day. My husband really made my isolation birthday special. Fingers crossed that the weather stays nice for you. 

It must be nice to be able to see people. I’ve not seen anyone really since March apart from on FaceTime. We are staying totally shielded as that is what I’ve been told to do. Apart from medical appointments I’ve not been anywhere. 
I am lucky though living on a farm which means I have plenty of space to be able to get out and walk for miles without seeing anyone. I just keep thinking that once this year is over I’ll be able to get back to a more normal existence! At least with the Cancer coinciding with Covid I only miss one summer! 
Sleep well everyone. xx

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Re: June 2020 chemo starters

Hi everyone, 

I'm another one for bloods tomorrow and round 2 on Tuesday, all being well. It’s a bank holiday here tomorrow (N.Ireland). The D.Nurse is coming as normal for the weekly Picc line check and normally will do my bloods then but tomorrow I have to take them in to the lab myself because of the holiday. I’m also due to get bloods taken for the genetics tests (BRCA1/2) as we now have two aunties and 3 first cousins in the family with breast cancer. The results of this won’t be back for about 10 weeks, hopefully near the end of my chemo. 

My hair is surprisingly hanging on. I expected it would be mostly gone by now (day 20) and it’s thinning but I guess round 2 will finish it off. I’m glad I didn’t shave before round 1 as I had originally convinced myself would be best. Mentally it’s been good to adjust gradually - it’s cut shorter than I’ve ever had it. Also not very keen on my wig, even though it’s been thinned it still feels like too much bulk. We’ll see. The AnnaBandana beanies are great. 

Good luck to all this week. x

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Re: June 2020 chemo starters

Hi ladies,

Butler, thanks for the birthday wishes. Sorry to hear you have not felt so well this time. I worry about that myself as some people say it gets harder the more you go through. I have detaxtol right at the end for 2 rounds, which I am a little worried about. 

Cactus queen, My husband told me I would be a third if the way through when I had my last treatment and when I have my next one I will be half the way through. He keeps me positive and focused that way. I am quite young to have breast cancer but unfortunately it does not discriminate and there are men and women a lot younger than me that get it. I just tell it that I am not going anywhere. I have made it my mission to see my boys grow up and to look after my grandchildren. I will be happy with that! I w as talking with my mum about things the other day and I said that although I had cancer I would rather have it than my children have it and she agreed with what I said. Although I am young I have still had 36 years of life, some children don’t get that.

My wig felt too hairy at first and most of the time I wear my bald head with pride but when I go out I do put it on and then as soon as I’m home take it off again. Maybe if it does not feel quite right your hair dresser could cut it for you?

 Hope everyone has had a nice evening 

Sleep well

love Tara 😘 

 

 

 

 

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Re: June 2020 chemo starters

Dear Horseylass, Tara and everyone 

I’m also having my bloods done tomorrow, I really hope they are fine. I’ll also have a Covid test because all the cancer treatment around here is being done at a private hospital, as our local hospital is a Covid hotspot. They won’t do any treatments or operations with a clear test. So this will be test number five!
I know what you mean about dreading the chemo, Tara. I woke up with a really bad headache this morning and then started to feel sick. I even had to have one of my anti sickness tablets which I haven’t needed for well over a week. But as my sister says once I’ve had this second treatment I’ll be a third of the way through. 
Yesterday I tried the wigs on and hated them! They just looked too hairy 😂😂, I’m going to send for a couple more. If they are no good I’ll just wear hats.

Tara I thought you looked young in the photos you’ve posted. I now realise I’m old enough to be your mum! You are very young to get breast cancer. Sorry to hear about your friend. Have a happy birthday tomorrow.

Love CactusQueen 

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Re: June 2020 chemo starters

happy birthday for tomorrow tara. I had my 3rd chemo on Thursday and felt quite sick this time round but wasn't actually sick as took the tablets but they seemed to take longer to kick in this time.  Iv also been sat in garden as feeling really tired so nodded of a few times  lol.  Got to go for scan to tomorrow. I presume that to see if it shrinking ok  so fingers crossed  I can tell it not as big now but that might be just wish full thinking.  X

Love julie

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Re: June 2020 chemo starters

Hi Horseylass and other ladies,

 hope everyone is feeling okay today!

Well done you on the 3 mile walk, wish I could do that. I get breathless just walking around my garden. Not sure what to suggest about your itchy head. Now that mine is almost all out I find coconut oil soothes it. Maybe you could use this now, but check first with your team.

 Your tight it has been quiet in here for a few days hasn’t it? I have not been in because I had a really good day on Thursday, even managed to go out in the car and choose some new bathroom tiles. With a mask on of course and then Friday I was so tired, it was like it had knocked the stuffing out of me.

 It’s my birthday tomorrow and had a few members of my family over yesterday for a little cream tea in the garden. Also for a couple of days I had forgot about the cancer. Being distracted was lovely. Sounds weird but ever time I think about having chemo again I get nauseous. It’s not that I am finding it bad just the thought of how I feel for the first couple of days after. Sometimes I think feeling sick is actually worse than being sick.

 I found out last night that a friend of mine found a limo around the time I was diagnosed that was not cancerous but they were concerned from her ultrasound that there is tissue in her breast that could change to an aggressive cancer. I’m she had a mammogram Friday and is waiting for results. She is 39 a few years older than me but how common is this bloody disease?

 On a brighter side the weather is beautiful here today so I have been in the garden, which makes me feel happy. Hope everyone else is enjoying the beautiful weather!

 Lots of 💕 

Tara xxx

 

 

 

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Re: June 2020 chemo starters

Hey ladies,

How is everyone? It’s been quiet on here this week. I hope you are all doing well?

I’m getting ready for bloods on Monday and all being well round 2 on Tuesday. My hair is getting noticeably thinner. My scalp feels really itchy but I’m trying desperately not to scratch it. 
I’ve been feeling good this week and have managed 3-4 miles walking everyday. 

 

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Re: June 2020 chemo starters

Oh Ann that must be so frustrating for you. I have been warned the same but you just hope it won’t happen, don’t you? Hugs.

i was thinking about the smell thing and sniffing some of my clothes. I can’t smell anything on my clothes but since my surgery I have thought that I have a kind of clinical smell! When I got home after my first chemo my dogs were very interested in smelling me so they could obviously smell something different. 

I’ve a week to go til my next chemo and I’m feeling pretty well. I’ve walked over 3 miles today with the dogs.

Hope everyone else is ok? 
Hugs all round. xx

 

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Re: June 2020 chemo starters

Hi Ann,

Sorry to heat about your treatment. I know how you feel just want to get through it as quickly as possible. Suppose it has to be sage to do so though. I myself feel really tired today. It’s hard gong but we will get there!

Think a couple of other ladies had a delay which was gutting for them too.

Hope everyone else is okay?

 Lots of love 

💕 Tara xxx

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Re: June 2020 chemo starters

Feeling a bit gutted, my chemo has been delayed for a week as my bloods are a bit low, I had been warned that this could happen so not really a big surprise but any delay is not welcome.

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Re: June 2020 chemo starters

Hi ladies,

 sorry have not been on much over last couple of days. Step son is driving me 😠  

 About the smell. I can smell it too. I put bio oil on my scar after a shower or bath and coconut oil in my head, but it’s not like sweat but a funny smell. My family say they can’t smell it either. Perhaps we are just sensitive to smells.

 Hope everyone is okay today. Weather is nice.

 Lots of love

 Tara xxx

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Re: June 2020 chemo starters

Lol hi cactus queen.  I'm glad you said this. As I been saying to  my husband do i smell as csn smell a funny smell he was saying no.  Even after i showered and put clean clothes on i say it again.  So maybe it just a chemo smell we getting 🙈🙈 xx

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Re: June 2020 chemo starters

Dear Anna, Horseylass, anyone else who had their first treatment on 23rd June, and everyone 

I haven’t had any hair loss yet but it’s just a waiting game really. Maybe the cold cap just delays the inevitable. I’ve got a couple of wigs to try but so far haven’t been able to put them on. I’m terrible with the new things, I cried so much I first time I put a softie in my post surgery bra and tried that on! Later on this week my sister is going to come round while I try the wigs on.

Has anyone else noticed that their clean clothes smell funny?! 🤣 This morning I got a clean top out of my wardrobe, it was one I have worn since chemo. It had a really strong smell, a bit like olbas oil. I sniffed a couple of other tops, one them smelt. Other clothes I haven’t worn since chemo don’t smell. Now I’m wondering if I smell!! My husband and son say I don’t but  good job I’m not going anywhere.

Finally a sunny day here. Take care everyone 

Love CactusQueen 

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Re: June 2020 chemo starters

Hi Smclaire, 

Glad to hear you managed to cope with the hair loss and didn’t loose it all ! Maybe il keep some of mine too fingers crossed 🤞 although it’s very fine normally and even thinner now but trying not to shave it off until I know there’s no more hope . I hope you’re making tv good progress x

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Re: June 2020 chemo starters

Hey Ladies I also used the cold cap, my chemo ended in January, I had 4 EC. 
I just wanted you to know that although I lost about 70% of my hair, it was mainly from the top of my head , I still had enough to disguise the baldness and only wore my wig when I went somewhere nice. The worst hair shedding was around the time of my second EC and it just continued to fall out but by bit from there.

The good news is that it’s now 6 months on and my hair is really thick and curly!! In fact I can’t do anything with it , it’s growing so fast , so don’t give up on the cold cap, I think it protected my hair follicles and allowed my hair to recover quickly !!

Good luck with the rest of your treatments and hang in there xx

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Re: June 2020 chemo starters

Hi Tabs , I’ve had 2 cycles of Fec using the cold cap . Mine stated coming out last week a few days before cycle 2 , not clumps but lots of it ! Hoping it might stop before it becomes too noticeable. Have got a wig ready but not looking forward to the fact that I might be needing it . Pretty gutting  when we’ve pushed through that awful cold cap x

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Re: June 2020 chemo starters

Dear Anna and Horseylass, 

I had been foolish enough to suddenly get my hopes up that I may not lose my hair when it was all there on day 18 and 19 (of EC with cold cap). I thought maybe that's the difference the cold cap makes or maybe I'm just lucky. Previously, I'd been expecting it to go by day 15, but getting my hopes gave me an extra sad couple of days when it started coming out a pace on day 20. Am over it now but just warning you so that you can be more sensible xx