Yes Anna, Day 13. It was a bit of a shock but it gave my husband his first and probably only opportunity to cut my hair. 🤣 He made a good job of it I think.
Gosh, horseylass, even if you’re expecting it, that’s got to be quite traumatic. I’m dreading it. Are you on day 13 same as I am? (23 June 1st treatment?) I’m expecting it any day now too.
I know I'm having one every week for nine weeks and then I have nine herceptin every three week I have not been sick or unwell since my first section Just a bit tired sometimes
So far so good I did had to stop for two weeks because of low blood count Took about three weeks for my hair to completely fall outJust a bit tired sometimes
So I put my hand on my head this morning and came away with a handful of hair!
The clippers have come out and I’ve gone loads shorter. I wonder how long until it all comes out.
I also seem to have really sore toenails today.
Gosh Cecilia your chemo sessions are really close together. Mine are 3 weeks apart. I can understand your concerns about having a line. I’m not sure I could cope with one.
I'm booked in for nine section of chemotherapy and booked in for nine section of chemo
New and I've already had three so by the 15th of July I would've already had five altogether leaving me with For
This is the reason why I'm thinking to decline the offer of a picc line
I live in Hertfordshire And the service you seem to be quite slow I should've been offered a picc line right at the beginning of my treatment
i've been told that my my veins are very difficult to find and probably by the end of treatment it was a possible chance of veins collapse
are we got along to the appointment on the 15th and see what they say
You are all well thank you for the compliment on the haircut
My picc is in my right arm as my cancer is in my left breast. Thou it took a bit longer to get mine in due to my veins I didnt feel a thing as they give you a numbing injection. Takes a few days to get use to it. But now it no problem what's so ever. X
Ceilia and lam I have to agree with the other ladies comments, you go look beautiful. Isn’t it funny how perfectly round our heads are? I never expected that! Also how much we think we look like other members of our family?
Lam, I don’t know how you are working at the moment. Fair play and well done you!
Jo, I am sorry that your veins collapsed that must not have been a nice experience. I think the PICC line is a good option. Hope you start to feel well soon.
Ann, you could be right about my step son as every time we have a dilemma in our house he can’t seem to cope and it’s like all attention has to be on him. It’s hard to try and ignore it but that is what I have to do. I have taken him to a councillor in the past who has told me that although he is really close to me he will do anything he can to try and get me to push him away like his mum did. He will get there in the end, but at this rate probably when he is 30!
Cactus queen, glad you are feeling better now. The first week can be a bit iffy with sickness.
Sun is shining here today Which is lovely to see. Hope everyone has a lovely day.
Sorry if I have people names or replies to your posts incorrect I am trying to remember who has said what they have and reply to all but chemo brain does make it difficult 😝
Love to you all 💕 Tara xx
Is your picc line in your left or right arm? Did it hurt? I’d rather be knocked right out to have it done but it’s only local anaesthetic as Mine has go from my right arm vein across chest 🤢 to near heart, due to having Axillary node clearance and mastectomy on the left .
The hospital said a district nurse may be able to come in and flush it weekly for me as, like you , would have a 20 mole treck to hospital otherwise. Maybe you could find out if a nurse could come to you ? X
Hi jo 77
I had a picc line put in day before my treatment started. It was fine bruised a bit but been ok. And you then dont hv to worry about needles or thinks as they just attache any think to the picc line. I hv to go to picc clinic every week to get it flushed out which is a bit of a pain as it takes 25 min to get there and then I'm in and out . I was given a waterproof covering for showers and baths but then I brought of Amazon some pretty picc covers to cover the bandage they give you.
Hi Iam477, I am astonished you are still working, well done you and I can only see a pretty lady in your pic so unlikely to scare anyone. I am not as brave as you, I have just let it all fall out leaving me with about 10%, I sent my wig back and bought a bucket hat which covers all for hospital visits. Love aNN
Good morning 🌅cactus queen and everyone else ! Hope your all feeling ok today ?
I had my second cycle of Fec on Friday , my veins collapsed after the first tube of poison this week and now have to have a PICC line put in in a few weeks 😣 I’m absolutely dreading it , I can’t watch any of my treatment .., I hate needles. Wondering how anyone else is finding it ?
I’m am using the cold cap 🥶 but have had rather alot of hair coming out over the past 5 days and gone rather thin , but not too noticeable.... just praying it stops. Anyone else the same or is it working better ?
Ive had bad feeling of nausea after both treatments which have lasted 24/48 hours and generally off my favourite foods but not too bad . Have a pleasant day ladies x
Hi Tara, I know nothing about children but I did wonder whether your stepson after being rejected by his Mum was worried about loosing you to cancer.
It shows off your face beautifully, I thought you said you were going grey? Lovely strong features, you don't need a wig.
Good morning everyone
I’ve been awake since four o’clock listening to the crazy stormy weather. I’ve just read all the posts from yesterday, all so very thought provoking. I also have found myself thinking in a positive way about relatives who are now longer around. I thought I was going a bit crazy, now I know it’s normal. I’m definitely going to think about my grandma when I have my next chemo on the 15th.
Cecilia, I wonder why they want you to have a PICC line now so far into your treatment. I had mine at the beginning with very little information as to what it was. I was just told I was having it. When I went to have it fitted the doctor took time to explain it to me, and then asked if I wanted it. It felt good to be in control. It is useful to have for blood tests and to administer chemo. I bought a Limbo protector to wear in the shower as it can’t get wet.
I’ve lost track who is using a cold cap for their treatment. If you are how was your hair loss after the chemo session?
Have a good day everyone.
Thank you horseylass but I think I look like an alien. I’m slightly confused as well..... I’m naturally a ginger so no idea why the little bit of stubble is black 🤔🤔
im sure you will rock the bald look when it happens, others see something completely different to what we see ourselves xx
I have to say ladies that I think you are both rocking the bald look. I think you both look beautiful. 👍🏻👍🏻👍🏻
I’m still convinced I’m going to look like an alien. 🤣🤣
Sleep well everyone. xx
Oh I don’t know how to turn the picture 🤔 it’s scary I now look like my brother lol 😂.
well my brother and his lot came over tonight and I didn’t scare them away 🤣. Let’s see what the office staff think on Monday 😬
Evening ladies good evening ladies
Hope that you're all well I've been booked in for a picc line on the 15th of July
I'm thinking of declining it only because I'm a bit worried about it
And as from the 15th I only have three chemo section to go so I'm not sure if it's actually worth it
it's so true about how cold your head gets without hair on it
I'm having to wear a hat to bed and my head is so prickly
i'm slowly getting used to my alien hea
It is such a shame that we don't all live near each other and I'm sorry I don't get to write as often as most people it's only because I don't know what to say
I have been very lucky to be sick but from the very first chemo session I had-
but stay positive everyone
No I didn’t go for the cold cap.i really didn’t want each session lasting longer than necessary and I just didn’t really fancy it. I think it’s just hanging on in there for now.
For those with cold heads in bed, I have got some of the sleep caps as I was warned my head would get cold. Hats4heads had them.
It is really nice to have this space to talk to people who understand what we each are going through, I agree. I like the point about us all being on different treatments as they know so much about our respective cancers. That does make you feel like we are getting the best that is available to us.
Keep smiling ladies, we’re beating this awful thing one horrid chemo at a time!
I am also sorry to hear that you were sick. I have emend to take for the two days after chemo and steroids 3 times a day. I also have domperidone not sure that is spelt correctly. I take these 3 times a day if I feel sick.
It can be hard with the children. My hubby is here but he too works so you are doing a fab job! My two are oblivious to how I feel and still have their arguments etc. Just shows we are doing a good job at keeping things as normal as possible. My 18 year old step son is the worse. Very mouthy and he has just got himself a 24 year old girlfriend which has been a challenge. He disappears off and is not back when he says he will be so I worry he might have had an accident on his moped. My husband has told me to lock him out now, but I won’t do that. He also speaks to his girlfriend til 2 in the morning and it keeps me awake. Although we had to have a heart to heart on Thursday because he was sacked from work due to being tired in the job. He had a lot of issues from his mum abandoning him at 9. She did not want him only his sister. He does not have much respect for women. Feel like I do all I can for him and he could be a bit more courteous. But hey ho. Like I said things can’t seem too much different to them or they would behave more should we say?
I am so glad we have each other and can share our problems and experiences whenever we like. I have made some lovely friends on here.
thank you all
Hi Lam, I did speak to the chemo helpline about the nausea although it was about 5am one morning when I couldn’t stop being sick - so it was a team covering overnights. They changed the anti nausea meds and it got better, but I think next time they will probably give me more up front.
It will be fine 😛
Well done for keeping going Anna, that sounds like a really hard week with the picc line and the kids but it sounds like you're on the other side. I'm on day 6 of cycle 2, a bit tired, woozy and sore but just trying to keep my head down and hope that this will be the worst of it for this cycle. I'm looking forward to being half way through my EC. It's a big comfort to know we've got each other for support on this journey.
Anna45anna sorry that you have been feeling so unwell. Did you speak to your oncology team about the sickness? Glad to hear that you are feeling better though. I know what you mean about the exhaustion of parenting and I’ve got my hubby to help. He’s at work during the day so it’s all down to me, they have been good but my daughter who’s 14 had the attitude and it’s exhausting.
haha Tara it’s just like brain freeze isn’t it 😂. Maybe we will get used to the cold or I hope so anyway.
ive got my brother and sister in law and their kids coming over tonight for an hour and it will be the first time they have seen me bold, let’s hope I don’t scare the kids 😂 xx
Hello Lam, Tara and others,
I’m checking back in on day 12 here. Feeling heaps better after a rotten first week. After 5 days of nausea and vomiting, I got a clot in my Picc line so was in and out to hospital last Monday and Tuesday and now taking Clexane injections each night for 6 months. But since then I’m feeling well and it’s amazing how some days of feeling well helps even mentally to get you strong for round 2. There were days early in round 1 when I just felt so lost and miserable - and it’s nice that it lifts and life can feel normal again.
I’m a single Mum to 3 children (10-14 years) so they went to my in-laws for the first week till we saw how I got on with first round. They’ve been home with me since Wednesday and although they care about me I have to say the parenting can be hard going - I lost my temper over screen time on Thursday and almost collapsed with the instant physical effect of stress on the body. So I’m taking help from anyone who offers and sometimes just get into bed and forget about it all. Today I have just one child at home and that’s quite manageable 😀
I've marked the calendar with the 5 further chemo dates and will be a bit gutted if any dates have to slip - but apparently it can be common enough to have to wait a week or two for example because bloods don’t come back to normal in time?
At day 12 my hair is hanging on strong. I kept giving it a tug at the back but so far all there. I had long hair so got 12” cut and donated it, so now I have a short style for another few days. I’ve been practicing with beanies from AnnaBandana, in my favourite colours and that feels good. Not comfortable with my wig yet - felt really ill on the day I chose it and hope I didn’t make a mistake!
Long message 😖 Take Care, all.
You are not being morbid at all it’s just nice to feel close to people when we are feeling poorly ourselves. I totally get it!
I too gave my hat on at the moment as my head goes cold. It’s like you have brain freeze when you get out of the shower 😝 I sometimes wear it to bed but have to be careful my head dies not get too hot. Sometimes when I lie my head on the pillow it is like stinging nettles. Mind you I think silk pillow cases are supposed to help.
I had a chemo pack off a local charity called ‘balls to cancer’. In that there is a gel pillow in there as well as other goodies such as a disabled toilet key, not that we can use it at the moment and am travel sick hands. I might try the pillow later!
I’m the same my hair started coming out about day 10/11 but day 15 I had a couple of patches so took the plunge in shaving it off.
i totally understand what you said Tara about getting support from people who are no longer with us. We lost my father in law at Christmas through pancreatic cancer, when we had him cremated I had some of the ashes made into a pandora charm (sorry if that’s morbid) but I wore my bracelet when I went for the chemo and took comfort in knowing he was there with me and looking after me. We were really close when he was alive.
I can’t wait to feel back like myself after all the chemo then radiotherapy but as hard as it is at the moment we are all having this treatment for the right reasons so we can actually still be here.
im feeling the cold with this shaved head and sat in my living room with a woolly hat on lol 😂 kids find it amusing 😂
Horseylass, did you cold cap? Because if you did you may not have any hair loss. Mine started to come out bad at day 14. Like other said I suppose at least we know the chemo is working.
Lam, it would be nice if we could all live around the corner from each other wouldn’t it? It would be lovely to meet up for a cuppa and even something stronger when we are over this 😝
I totally understand what you mean about people not really knowing how you feel. People care so they have nice things to say to encourage us, but until your body feels it you realise that all you have ever been to people that have had cancer is a person of kind, positive words. I said to my mum the other day I don’t think I have had it too bad, especially not as bad as my Nan 26 years ago but I wonder how long it will take after the treatment for me to feel like me again.
I tend to work myself up before treatment which doesn’t help. On Thursday when I had my 2nd round it was 12 months to the day that my mums partner had a brain bleed and died at the age of 57. I was really dreading going to chemo Thursday but asked my mums partner to hold my hand in my mind and this really helped. It was not too bad. I know everyone has their own beliefs and I do not go to church and do not think that I am highly religious but I feel comfort in knowing I have the support of people dead and alive.
Sorry to be morbid but what I am trying to say is that if we grab strength from wherever we can get it we will get through this. You ladies are give me so much positivity and I truly thank you for this!
Ann you are so right about the support this group gives. I don’t know about anyone else but I try not always very well but I try to put on a brave face for everyone and stay strong but in here you can be completely honest as like you say we are all in the same boat.
Don’t get me wrong my husband, kids and brother and sister in law have all been amazing and I couldn’t of got though it without them but like they have said they can only try and understand.
thank you to all of you lovely ladies for your support and encouragement through all of this. Shame we don’t all live down the road from one another we could of all had a socially distanced cup of tea 😊
The family situation makes you realise the support that this group offers. Here we can be completely honest and we all understand, anyone who has not been through this cannot understand. What is also facinating is that we all have breast cancer but we are all getting different regimes for treatment, shows how much they know about our cancers.
Keep strong girls and no matter how trivial, keep posting when you can please.
Sorry, I’ve been quiet too.
Tara, so sorry that you’ve had nausea again.
I haven’t yet got to the hair loss stage but I’m only on day 12 of my first cycle. I am thinking about getting my husband to shave it off before it starts falling out just to make it easier. As someone said earlier on this thread, I think, at least you know your chemo is working.
I don’t really know how I feel about it, I’ll let you know!
Gosh Ann, 2 days in a row. I suppose at least it gets you through it quicker. I am finding that the time is dragging until my next cycle.
Much cooler weather here too which does make life easier on the whole but a little warmer would be nice. It is July after all!
Enjoy your weekend ladies. xxx
Hi Ann and Lam,
Sorry I have not posted until today my head goes a little fuzzy after chemo and I find it hard to look at screen on phone. Hope you are okay Ann? It has been quiet in here hasn’t it?
Lam, it is hard when you have to shave off your hair. For me it was a relief because it just kept falling out and it was so hot on the day I did it I couldn’t stand it anymore. My husband was reluctant to do it as he thought I might cry. We have a funny relationship though and always tease each other so he laughed at me like he does and that mad me feel better. He said I look like my grandad Barry and calls me big, bad Baz now 😝, however I can appreciate how it may have upset you. But remember it will grow back. It’s just hair! In the grand scheme of things it’s small with how strong you are being with your fight! You go girl x
My dad just came over to drop off my birthday cards and he said he would not be able to go through the treatment that I am. I told him I want to live so this is what I do. I sent my auntie a picture of my shaved head and it upset her my dad said. She has not spoken to me since the text but that is her problem not mine. I just wanted to let people see I’m good and feeling quite alright. I can do this! It is nice that you have your sister for support and I’m glad you feel you can chat to her.
Hope everyone else is feeling okay.
Hello everyone. Tara hope the sickness passes for you. I’m due my second round on Thursday and I’m dreading it with how sick I felt before.
i had to take them plunge and shave my hair last night, more and more was coming out everyday and I kept letting upset, then I found two bold patches and typically they were right at the front so couldn’t hide them. I sobbed like a baby when hubby was doing it. (Think he had a little tear as well behind my back). Still a bit emotional today especially when my sister told me she’d been crying for me as she felt hopeless and there was nothing that she could do (she doesn’t realise how much she is helping just having a cuppa and chat)
hope everyone is ok xx
Gosh I thought I had left the group by mistake, nice to hear from you Tara. I finished my 3 x EC last week and start a new chemo next Thursday, 2 days in a row that should be fun!!!!!
Hope everyone is feeling okay today.
I had my second round of fec Thursday. Side effects not too bad just feel a little nauseous, but sick meds seem to be keeping it at bay.
Think my eyebrows are coming out now as my mum said they looked like they are thinner this morning. Not too worried though as I h Ac be big bushy ones normally 😝
I have got a slight rah on both arms, little round brownish dots that look dry. I have a similar rash in my belly and have had this before when I have been away on holiday. It looks like a sweat rash. I have no temp but will ring the unit to find out what it might be to see if I need some cream.
The weather here is much cooler but it seems to help when it is cooler especially with sleep.
Have a good day all
You really are welcome.
I have my 2nd chemo tomorrow. I chose not to wear the cold cap so knew it would come out. Sorry it has not worked for you.
Good luck for Friday.
Hello lovely ladies
I'm totally on the 'balding is beautiful' bandwagon too - I only put a scarf on to leave the house. Though recently with the rainy weather I've had to put a beanie on to keep my head warm, I know it sounds stupid but hadn't realised how warm hair keeps you until now 🤣 My best friend sent me six amazing lipsticks so I've been wearing a different one each day for a small glam/silliness boost (today's is 'crushed rubies' and it's INTENSE! 💄). Obviously only works at home because lipstick + mask = mess...
I'm day 6 after second cycle of FEC and although I was much pukier on the day of chemo this time the side effects seem to have passed quicker. Not sure whether it's a physical thing or the emotional aspect of knowing what to expect that makes it better. But anyone who's worried about their second round of chemo I can honestly say this time has been much better for me, I didn't need to nap and the nausea/achiness has been less - hopefully will be better for you too 😊
I know this is a chemo thread but for anyone who's thinking about not having a reconstruction/waiting for a delayed reconstruction I was told about this charity https://www.knittedknockersuk.com/ who knit you your own fake boob for free! They're not currently taking orders due to COVID but I've emailed to ask when they think they might start. I also found this new company who I don't think have entered production yet but their stuff looks cool too: https://www.wewearboost.com/ I never thought I'd get so excited about different colour fake boobs but...here we are 😂
Tara, hope your chemo goes well tomorrow (and ❤️💙💛 the styling on your wig!) and hope everyone else is doing OK and feeling as well as you can. xxx
Thankyou Tara !
My hairs started to come out .... only had 1 chemo .... and used the cold cap .... 2nd session Friday . I have got a wigready “ in case “, but looks like il need it !
I got it from Trendco, But through the hospital but I’m not entirely happy with it. It’s shorter than my hair , darker and just doesn’t look right but I saw the photo of yours and it looks just like my hair , so il look into getting one of those ... thanks for the info and all the best through your journey x
You may not lose all your hair I did not I kept about 50 percent didn’t even notice it thinning was v gradual - it just didn’t replenish after 12 sessions however there was still enough to cover up so do not lose hope.Eyelashes and eyebrows is a downer though make sure to get drops from pharmacy - your hair will recover ! Mine thicker than it was year down line x ps never had to wear my wig returned it to hospital
I live in the Midlands so typed into the internet wig suppliers In Birmingham as this is my closest city. Trendco is where I had it from. If you type in Trendco wigs Birmingham the website will come up. A lovely lady called Julie did a WhatsApp call with me to see if real hair would suit me and also to recommend wigs that best match your hair. You will have to measure your head yourself but she will tell you how to do it, that is if they are not open now and you could visit if you live nearby. I had the diamond wig, in ash blonde. It was much longer when it came I’ll send pics to show you and after 2 cuts from my hair dresser I have it how I want it. They are happy to cut it for you if you want it like your hair but my best friend does mine so I wanted her to do it. Also my friend found it easier to cut it whilst on my head.
Ladies the synthetic hair wigs don’t always look like Barbie hair, infact I have one of these on order from the hospital supplier. My friend that I met at chemo has a synthetic one and it looks real, honestly. I have a thing about my hair and panicked when I knew I was going to loose it so my husband got me one. To be honest I am sat here now with my bald head and only wear the wig when I go to shops or appointments. I do my daily exercise with just my cap on.
Let me know if you need any more info
Hi , Could you tell me where you got this wig, name of style and colour ?
I got a wig a few weeks ago but I’m not happy with it and this one looks good x
A very belated Happy Birthday to Horseylass and welcome to anyone new.
Ive been reading all the posts since my first round on the 23rd, thanks for keeping me going.
I survived the cold cap, the first 10 minutes was the worst. I kept my eyes closed for half an hour and concentrated on breathing. I had EC injected through a PICC which took about half an hour. Then another 90 minutes of cold cap. Next time I will take pain killers when I get home as I had a headache and was a bit sick. The nurse told me that anti sickness tablet she gave should last for three days so I suffered through the first day feeling awful before I rang the helpline who said take them three times a day. The weather has been crazy this week, first it was absolutely boiling which I can’t cope with, then we had torrential rain. I haven’t had much fresh air so need a walk. The highlight of the week was the district nurse visit who came yesterday to check the PICC line! Lol. I was so looking forward to seeing someone different. She brought a student with her so I got to talk to two people-yay!
I ordered a wig yesterday as I know I will loose my hair even with the cold cap. I thought it would take up to 14 days but it’s coming today! I know it’s going to look like cheap shiny dolls hair. Tara your wig is beautiful.
My gosh I have been so tired today only just getting up. Every time I have tried to get up I drop off and wake myself up 10 minutes later snoring. I think I’ll get up in a minute but drop off again lol. I’m exhausted and have round 2 tomorrow lol 😆
Lam, my wig was from the diamond collection. They are the longer real hair ones I think amber is shorter.
Claire, I had spits in my hairline like teenage spots I put sudocream on them. I also got instead bites on my bum and without being too crude one on the lip of my lady parts. They were really itchy. Rang the unit and they told me to keep an eye on temp and if they filled with puss to go in. I was also told to take piriton. As it was they went down after a couple of days no puss or high temp. Nurse said they must have been gnat bites or spots. I also put sudocrram on these.
Hope everyone manages to feel well throughout the day today.
take care, love 💕 Tara xxx
Tara it shows you get what you pay for with the wigs, mine were cheap ones and you can tell. I will have a look at the company you got yours from.
claire I’ve got spots as well but at the minute only on my face, I’ve never suffered with spots so feel like a teenager now. I’ve got one just on my lip line and now my lip is really swollen 😢 at least I think it’s a spot.
horseylass I hope you enjoyed your walk, it’s raining here at the moment so my doggy will just have to wait for now.
love to everyone x
Tara the wig looks great.
Claire, mine are just on my face for now and seem to be normal spots. If I were you I’d ring your team just for advice. I was told that there was nothing too small to ring them about and that it would never be wrong to call.
Just had another lovely walk with my dogs.
Have a good day ladies. xx
Thank you all for your lovely responses and guidance.
Tara the wig looks amazing. I have an appointment next Tuesday to go and find one. I'm hoping my hair holds out until then !!
About spots !! I've never suffered from spots but I have now got loads . Around my hairline , on my face , shoulders and this morning on my back. Should I ring the team ? It sèems such a minor thing to call for . I keep putting sudocreme on them but some of them are quite sore .
Still feeling ok and legs seem to be getting better . Hoping it lasts !!
I brought the wig from Trendco online. The lady Julie did a video call on WhatsApp to help with the fitting. It was £408 as it is real hair but well worth it. When I got It, it was really long so my hairdresser cut it without it on my head the best she could during lockdown, but it annoyed me today when I wore it to my blood test. I thought it was too heavy and I could not get it to fall right so I went to my hairdressers house. She is my best friend and I got her to cut it whilst on my head. She put the plait in the front to hold the hair off my face. It is so much better and feels better on my head. I made sure I used sanitiser and got changed as soon as I got home.
I have a free wig coming from the hospital, but this is not real hair although I have to say the ladies on the unit that have had wigs from the same place look great and you can’t tell it’s not real hair. I just panic brought the one I have because I can’t collect the one from the hospital until the 22nd July. When I was first diagnosed everywhere was shut and I did not think I would cope without one, although I quite like being bald and just wearing my cap. This is a nice style too.
Tara the wig looks amazing you can’t tell it’s a wig. Where did you get it from? As I said mine were awful the kids and husband nearly wet themselves laughing at me 😂 xx