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June 2020 chemo starters

Anna45Anna
Member

Re: June 2020 chemo starters

Belated happy birthday, Tara. I hope it was a good day! 

Anna

ttyler
Community Champion

Re: June 2020 chemo starters

Good luck for tomorrow Horseylass and to all the other ladies having chemo tomorrow!

sleep well

lots of love 💓 

Tara xxx

Horseylass
Member

Re: June 2020 chemo starters

So pleased you’ve had a good day Tara. 

Good Luck to everyone else having treatment tomorrow. We’re going to beat this horrid disease, one treatment at a time. Tomorrow after round 2 I’ll be a third of the way through. Yay. 

lots of love and sleep well. xxx

ttyler
Community Champion

Re: June 2020 chemo starters

Hi ladies,

Thank you so much for wishing me a happy birthday you are so kind. I have met some lovely ladies on this site that I hope will be friends for years to come. I’m having such a lovely day and are glad you my virtual friends are part of it xxxx

 


💓love to you all xxxx

Shi
Community Champion
Community Champion

Re: June 2020 chemo starters

🎂🎉🎉happy birthday Tara 💕💕Shi xx

Claudia3609
Member

Re: June 2020 chemo starters

Sorry to gate crash I'm a July starter but wanted to wish Tara a happy birthday xx

ann has cancer
Member

Re: June 2020 chemo starters

Hi Cecelia, we are all getting different drugs at different rates and in different orders so could it be a side efffect particular to your sort of chemo? No doubt your team will give you an answer, here;s hoping for you.  Love aNN

ann has cancer
Member

Re: June 2020 chemo starters

Happy birthday Tara, hope you have a lovely day with lots of bril pressies.  Love aNN

ttyler
Community Champion

Re: June 2020 chemo starters

Hi Everyone,

Thank you all for the birthday wishes, it’s kind of you x

Cecilia, don’t sit there in pain, make sure you ring your unit, like the other ladies have said they will be able to help you.

 Now my mum orders are over, hope everyone has a nice day, weather not too brill here but never is on my birthday so will make the most of the day anyway. Have a lovely day!

Tara 😘 

cecilia
Member

Re: June 2020 chemo starters

Morning all

It’s been like this since my second round of chemo 

I'm due to fifth of nine on Tuesday xx

 

I’ll get in touch with them later thank 

happy birthday 

 

ttyler
Community Champion

Re: June 2020 chemo starters

Hi Cecilia,

I am so sorry for the late reply, my phone did not alert me to your message for some reason.

I too get tummy cramps and also pulsating in my bottom and lower back the day after my injections stop for a couple of days. I don’t know if you have children, but it reminds me of the early part of labour.

 I take paracetamol and sit with a hot water bottle l, not too hot just tap water and this eases it. If it’s too bad might be worth ringing the unit to ask if you can use a gel like ibroprofen gel.

 Hope this helps

Oh check your temp before having pain relief in case of infection!

 Love 💕 Tara xxx

CactusQueen
Member

Re: June 2020 chemo starters

Dear Cecilia

I’m sorry to hear that you’re not so good. My advice would be to get in touch with your chemo nurse team. I presume yours is like mine where they are available 24 hours a day, no problem too small. I have phoned a number of times and they are always friendly and welcoming. Where are you in your chemo cycle? If chemo wasn’t recent you may have a tummy bug. But I’m not a doctor so definitely get advice.

Take care.

Love CactusQueen 

Tabs
Member

Re: June 2020 chemo starters

Happy Birthday Tara, I hope you have a lovely day.

Hi Cecilia, I haven't had stomach cramps, I'd call your chemo nurse for advice. They may ask what you ate before they started so see if you remember having eaten anything unusual. Good luck, Tabs

cecilia
Member

Re: June 2020 chemo starters

good morning ladies I'm really sorry to disturb from your sleep

How is everyone hope you're all well 

Can somebody tell me please if they are also getting stomach cramps

if so is there anything I can to stop it 

thank you 

Horseylass
Member

Re: June 2020 chemo starters

Happy birthday for tomorrow Tara. I hope you can have a good day. My husband really made my isolation birthday special. Fingers crossed that the weather stays nice for you. 

It must be nice to be able to see people. I’ve not seen anyone really since March apart from on FaceTime. We are staying totally shielded as that is what I’ve been told to do. Apart from medical appointments I’ve not been anywhere. 
I am lucky though living on a farm which means I have plenty of space to be able to get out and walk for miles without seeing anyone. I just keep thinking that once this year is over I’ll be able to get back to a more normal existence! At least with the Cancer coinciding with Covid I only miss one summer! 
Sleep well everyone. xx

Anna45Anna
Member

Re: June 2020 chemo starters

Hi everyone, 

I'm another one for bloods tomorrow and round 2 on Tuesday, all being well. It’s a bank holiday here tomorrow (N.Ireland). The D.Nurse is coming as normal for the weekly Picc line check and normally will do my bloods then but tomorrow I have to take them in to the lab myself because of the holiday. I’m also due to get bloods taken for the genetics tests (BRCA1/2) as we now have two aunties and 3 first cousins in the family with breast cancer. The results of this won’t be back for about 10 weeks, hopefully near the end of my chemo. 

My hair is surprisingly hanging on. I expected it would be mostly gone by now (day 20) and it’s thinning but I guess round 2 will finish it off. I’m glad I didn’t shave before round 1 as I had originally convinced myself would be best. Mentally it’s been good to adjust gradually - it’s cut shorter than I’ve ever had it. Also not very keen on my wig, even though it’s been thinned it still feels like too much bulk. We’ll see. The AnnaBandana beanies are great. 

Good luck to all this week. x

ttyler
Community Champion

Re: June 2020 chemo starters

Hi ladies,

Butler, thanks for the birthday wishes. Sorry to hear you have not felt so well this time. I worry about that myself as some people say it gets harder the more you go through. I have detaxtol right at the end for 2 rounds, which I am a little worried about. 

Cactus queen, My husband told me I would be a third if the way through when I had my last treatment and when I have my next one I will be half the way through. He keeps me positive and focused that way. I am quite young to have breast cancer but unfortunately it does not discriminate and there are men and women a lot younger than me that get it. I just tell it that I am not going anywhere. I have made it my mission to see my boys grow up and to look after my grandchildren. I will be happy with that! I w as talking with my mum about things the other day and I said that although I had cancer I would rather have it than my children have it and she agreed with what I said. Although I am young I have still had 36 years of life, some children don’t get that.

My wig felt too hairy at first and most of the time I wear my bald head with pride but when I go out I do put it on and then as soon as I’m home take it off again. Maybe if it does not feel quite right your hair dresser could cut it for you?

 Hope everyone has had a nice evening 

Sleep well

love Tara 😘 

 

 

 

 

CactusQueen
Member

Re: June 2020 chemo starters

Dear Horseylass, Tara and everyone 

I’m also having my bloods done tomorrow, I really hope they are fine. I’ll also have a Covid test because all the cancer treatment around here is being done at a private hospital, as our local hospital is a Covid hotspot. They won’t do any treatments or operations with a clear test. So this will be test number five!
I know what you mean about dreading the chemo, Tara. I woke up with a really bad headache this morning and then started to feel sick. I even had to have one of my anti sickness tablets which I haven’t needed for well over a week. But as my sister says once I’ve had this second treatment I’ll be a third of the way through. 
Yesterday I tried the wigs on and hated them! They just looked too hairy 😂😂, I’m going to send for a couple more. If they are no good I’ll just wear hats.

Tara I thought you looked young in the photos you’ve posted. I now realise I’m old enough to be your mum! You are very young to get breast cancer. Sorry to hear about your friend. Have a happy birthday tomorrow.

Love CactusQueen 

Butler10
Member

Re: June 2020 chemo starters

happy birthday for tomorrow tara. I had my 3rd chemo on Thursday and felt quite sick this time round but wasn't actually sick as took the tablets but they seemed to take longer to kick in this time.  Iv also been sat in garden as feeling really tired so nodded of a few times  lol.  Got to go for scan to tomorrow. I presume that to see if it shrinking ok  so fingers crossed  I can tell it not as big now but that might be just wish full thinking.  X

Love julie

ttyler
Community Champion

Re: June 2020 chemo starters

Hi Horseylass and other ladies,

 hope everyone is feeling okay today!

Well done you on the 3 mile walk, wish I could do that. I get breathless just walking around my garden. Not sure what to suggest about your itchy head. Now that mine is almost all out I find coconut oil soothes it. Maybe you could use this now, but check first with your team.

 Your tight it has been quiet in here for a few days hasn’t it? I have not been in because I had a really good day on Thursday, even managed to go out in the car and choose some new bathroom tiles. With a mask on of course and then Friday I was so tired, it was like it had knocked the stuffing out of me.

 It’s my birthday tomorrow and had a few members of my family over yesterday for a little cream tea in the garden. Also for a couple of days I had forgot about the cancer. Being distracted was lovely. Sounds weird but ever time I think about having chemo again I get nauseous. It’s not that I am finding it bad just the thought of how I feel for the first couple of days after. Sometimes I think feeling sick is actually worse than being sick.

 I found out last night that a friend of mine found a limo around the time I was diagnosed that was not cancerous but they were concerned from her ultrasound that there is tissue in her breast that could change to an aggressive cancer. I’m she had a mammogram Friday and is waiting for results. She is 39 a few years older than me but how common is this bloody disease?

 On a brighter side the weather is beautiful here today so I have been in the garden, which makes me feel happy. Hope everyone else is enjoying the beautiful weather!

 Lots of 💕 

Tara xxx

 

 

 

Horseylass
Member

Re: June 2020 chemo starters

Hey ladies,

How is everyone? It’s been quiet on here this week. I hope you are all doing well?

I’m getting ready for bloods on Monday and all being well round 2 on Tuesday. My hair is getting noticeably thinner. My scalp feels really itchy but I’m trying desperately not to scratch it. 
I’ve been feeling good this week and have managed 3-4 miles walking everyday. 

 

Horseylass
Member

Re: June 2020 chemo starters

Oh Ann that must be so frustrating for you. I have been warned the same but you just hope it won’t happen, don’t you? Hugs.

i was thinking about the smell thing and sniffing some of my clothes. I can’t smell anything on my clothes but since my surgery I have thought that I have a kind of clinical smell! When I got home after my first chemo my dogs were very interested in smelling me so they could obviously smell something different. 

I’ve a week to go til my next chemo and I’m feeling pretty well. I’ve walked over 3 miles today with the dogs.

Hope everyone else is ok? 
Hugs all round. xx

 

ttyler
Community Champion

Re: June 2020 chemo starters

Hi Ann,

Sorry to heat about your treatment. I know how you feel just want to get through it as quickly as possible. Suppose it has to be sage to do so though. I myself feel really tired today. It’s hard gong but we will get there!

Think a couple of other ladies had a delay which was gutting for them too.

Hope everyone else is okay?

 Lots of love 

💕 Tara xxx

ann has cancer
Member

Re: June 2020 chemo starters

Feeling a bit gutted, my chemo has been delayed for a week as my bloods are a bit low, I had been warned that this could happen so not really a big surprise but any delay is not welcome.

ttyler
Community Champion

Re: June 2020 chemo starters

Hi ladies,

 sorry have not been on much over last couple of days. Step son is driving me 😠  

 About the smell. I can smell it too. I put bio oil on my scar after a shower or bath and coconut oil in my head, but it’s not like sweat but a funny smell. My family say they can’t smell it either. Perhaps we are just sensitive to smells.

 Hope everyone is okay today. Weather is nice.

 Lots of love

 Tara xxx

Butler10
Member

Re: June 2020 chemo starters

Lol hi cactus queen.  I'm glad you said this. As I been saying to  my husband do i smell as csn smell a funny smell he was saying no.  Even after i showered and put clean clothes on i say it again.  So maybe it just a chemo smell we getting 🙈🙈 xx

CactusQueen
Member

Re: June 2020 chemo starters

Dear Anna, Horseylass, anyone else who had their first treatment on 23rd June, and everyone 

I haven’t had any hair loss yet but it’s just a waiting game really. Maybe the cold cap just delays the inevitable. I’ve got a couple of wigs to try but so far haven’t been able to put them on. I’m terrible with the new things, I cried so much I first time I put a softie in my post surgery bra and tried that on! Later on this week my sister is going to come round while I try the wigs on.

Has anyone else noticed that their clean clothes smell funny?! 🤣 This morning I got a clean top out of my wardrobe, it was one I have worn since chemo. It had a really strong smell, a bit like olbas oil. I sniffed a couple of other tops, one them smelt. Other clothes I haven’t worn since chemo don’t smell. Now I’m wondering if I smell!! My husband and son say I don’t but  good job I’m not going anywhere.

Finally a sunny day here. Take care everyone 

Love CactusQueen 

Jo77
Member

Re: June 2020 chemo starters

Hi Smclaire, 

Glad to hear you managed to cope with the hair loss and didn’t loose it all ! Maybe il keep some of mine too fingers crossed 🤞 although it’s very fine normally and even thinner now but trying not to shave it off until I know there’s no more hope . I hope you’re making tv good progress x

smclaire
Member

Re: June 2020 chemo starters

Hey Ladies I also used the cold cap, my chemo ended in January, I had 4 EC. 
I just wanted you to know that although I lost about 70% of my hair, it was mainly from the top of my head , I still had enough to disguise the baldness and only wore my wig when I went somewhere nice. The worst hair shedding was around the time of my second EC and it just continued to fall out but by bit from there.

The good news is that it’s now 6 months on and my hair is really thick and curly!! In fact I can’t do anything with it , it’s growing so fast , so don’t give up on the cold cap, I think it protected my hair follicles and allowed my hair to recover quickly !!

Good luck with the rest of your treatments and hang in there xx

Jo77
Member

Re: June 2020 chemo starters

Hi Tabs , I’ve had 2 cycles of Fec using the cold cap . Mine stated coming out last week a few days before cycle 2 , not clumps but lots of it ! Hoping it might stop before it becomes too noticeable. Have got a wig ready but not looking forward to the fact that I might be needing it . Pretty gutting  when we’ve pushed through that awful cold cap x

Tabs
Member

Re: June 2020 chemo starters

Dear Anna and Horseylass, 

I had been foolish enough to suddenly get my hopes up that I may not lose my hair when it was all there on day 18 and 19 (of EC with cold cap). I thought maybe that's the difference the cold cap makes or maybe I'm just lucky. Previously, I'd been expecting it to go by day 15, but getting my hopes gave me an extra sad couple of days when it started coming out a pace on day 20. Am over it now but just warning you so that you can be more sensible xx

Horseylass
Member

Re: June 2020 chemo starters

Yes Anna, Day 13. It was a bit of a shock but it gave my husband his first and probably only opportunity to cut my hair. 🤣 He made a good job of it I think. 

 

Anna45Anna
Member

Re: June 2020 chemo starters

Gosh, horseylass, even if you’re expecting it, that’s got to be quite traumatic. I’m dreading it. Are you on day 13 same as I am? (23 June 1st treatment?) I’m expecting it any day now too. 

cecilia
Member

Re: June 2020 chemo starters

I know I'm having one every week for nine weeks and then I have nine herceptin every three week I have not been sick or unwell since my first section Just a bit tired sometimes

 So far so good I did had to stop for two weeks because of low blood count Took about three weeks for my hair to completely fall outJust a bit tired sometimes

Horseylass
Member

Re: June 2020 chemo starters

So I put my hand on my head this morning and came away with a handful of hair! 
The clippers have come out and I’ve gone loads shorter. I wonder how long until it all comes out. 

I also seem to have really sore toenails today. 

Gosh Cecilia your chemo sessions are really close together. Mine are 3 weeks apart. I can understand your concerns about having a line. I’m not sure I could cope with one.

cecilia
Member

Re: June 2020 chemo starters

Hi Tara

Hi Tara

I'm booked in for nine section of chemotherapy and booked in for nine section of chemo 

New and I've already had three so by the 15th of July I would've already had five altogether leaving me with For 

This is the reason why I'm thinking to decline the offer of a picc line

I live in Hertfordshire And the service you seem to be quite slow I should've been offered a picc line right at the beginning of my treatment

i've been told that my my veins are very difficult to find and probably by the end of treatment it was a possible chance of veins collapse

are we got along to the appointment on the 15th and see what they say

 You are all well thank you for the compliment on the haircut 

Butler10
Member

Re: June 2020 chemo starters

Hi jo77

My picc is in my right arm as my cancer is in my left breast. Thou it took a bit longer to get mine in due to my veins   I didnt feel a thing as they give you a numbing injection.  Takes a few days to get use to it. But now it no problem what's so ever. X

ttyler
Community Champion

Re: June 2020 chemo starters

Morning ladies,

Ceilia and lam I have to agree with the other ladies comments, you go look beautiful. Isn’t it funny how perfectly round our heads are? I never expected that! Also how much we think we look like other members of our family?

 Lam, I don’t know how you are working at the moment. Fair play and well done you!

 Jo, I am sorry that your veins collapsed that must not have been a nice experience. I think the PICC line is a good option. Hope you start to feel well soon.

Ann, you could be right about my step son as every time we have a dilemma in our house he can’t seem to cope and it’s like all attention has to be on him. It’s hard to try and ignore it but that is what I have to do. I have taken him to a councillor in the past who has told me that although he is really close to me he will do anything he can to try and get me to push him away like his mum did. He will get there in the end, but at this rate probably when he is 30!

 Cactus queen, glad you are feeling better now. The first week can be a bit iffy with sickness.

 Sun is shining here today Which is lovely to see. Hope everyone has a lovely day.

 Sorry if I have people names or replies to your posts incorrect I am trying to remember who has said what they have and reply to all but chemo brain does make it difficult 😝  

 Love to you all 💕  Tara xx

 

Jo77
Member

Re: June 2020 chemo starters

Hi Butler10, 

Is your picc line in your left or right arm? Did it hurt? I’d rather be knocked right out to have it done but it’s only local anaesthetic as Mine has go from my right arm vein across chest 🤢 to near heart, due to having Axillary node clearance and mastectomy on the left . 
The hospital said a district nurse may be able to come in and flush it weekly for me as, like you , would have a 20 mole  treck to hospital otherwise. Maybe you could find out if a nurse could come to you ? X

Butler10
Member

Re: June 2020 chemo starters

Hi jo 77

I had a picc line put in day before my treatment started.  It was fine bruised a bit but been ok. And you then dont hv to worry about needles or thinks as they just attache any think to the picc line.  I hv to go to picc clinic every week to get it flushed out  which is a bit of a pain as it takes 25 min to get there and then  I'm in and out .   I was given a waterproof covering  for showers and baths   but then I brought of Amazon some pretty picc covers to cover the bandage they give you.

ann has cancer
Member

Re: June 2020 chemo starters

Hi Iam477, I am astonished you are still working, well done you and I can only see a pretty lady in your pic so unlikely to scare anyone.  I am not as brave as you, I have just let it all fall out leaving me with about 10%, I sent my wig back and bought a bucket hat which covers all for hospital visits.  Love aNN

Jo77
Member

Re: June 2020 chemo starters

Good morning 🌅cactus queen and everyone else ! Hope your all feeling ok today ? 

I had my second cycle of Fec on Friday , my veins collapsed after the first tube of poison this week and now have to have a PICC line put in in a few weeks 😣 I’m absolutely dreading it , I can’t watch any of my treatment .., I hate needles. Wondering how anyone else is finding it ?

I’m am using the cold cap 🥶 but have had rather alot of hair coming out over the past 5 days and gone rather thin , but not too noticeable.... just praying it stops. Anyone else the same or is it working better ?

Ive had bad feeling of nausea after both treatments which have lasted 24/48 hours and generally off my favourite foods but not too bad . Have a pleasant day ladies x

ann has cancer
Member

Re: June 2020 chemo starters

Hi Tara, I know nothing about children but I did wonder whether your stepson after being rejected by his Mum was worried about loosing you to cancer.

ann has cancer
Member

Re: June 2020 chemo starters

It shows off your face beautifully, I thought you said you were going grey?  Lovely strong features, you don't need a wig.

CactusQueen
Member

Re: June 2020 chemo starters

Good morning everyone 

I’ve been awake since four o’clock listening to the crazy stormy weather. I’ve just read all the posts from yesterday, all so very thought provoking. I also have found myself thinking in a positive way about relatives who are now longer around. I thought I was going a bit crazy, now I know it’s normal. I’m definitely going to think about my grandma when I have my next chemo on the 15th.

Cecilia, I wonder why they want you to have a PICC line now so far into your treatment. I had mine at the beginning with very little information as to what it was. I was just told I was having it. When I went to have it fitted the doctor took time to explain it to me, and then asked if I wanted it. It felt good to be in control. It is useful to have for blood tests and to administer chemo. I bought a Limbo protector to wear in the shower as it can’t get wet.

I’ve lost track who is using a cold cap for their treatment. If you are how was your hair loss after the chemo session? 
Have a good day everyone.

 Love CactusQueen 

lam477
Member

Re: June 2020 chemo starters

Thank you horseylass but I think I look like an alien.  I’m slightly confused as well..... I’m naturally a ginger so no idea why the little bit of stubble is black 🤔🤔

im sure you will rock the bald look when it happens, others see something completely different to what we see ourselves xx

 

Horseylass
Member

Re: June 2020 chemo starters

I have to say ladies that I think you are both rocking the bald look. I think you both look beautiful. 👍🏻👍🏻👍🏻
I’m still convinced I’m going to look like an alien. 🤣🤣

Sleep well everyone. xx

lam477
Member

Re: June 2020 chemo starters

0728ECD6-E162-4748-B819-5926EC65419D.jpeg

Oh I don’t know how to turn the picture 🤔 it’s scary I now look like my brother lol 😂.
well my brother and his lot came over tonight and I didn’t scare them away 🤣. Let’s see what the office staff think on Monday 😬

xx 

cecilia
Member

Re: June 2020 chemo starters

Evening ladies good evening ladies

 Hope that you're all well I've been booked in for a picc line on the 15th of July 

 I'm thinking of declining it only because I'm a bit worried about it

And as from the 15th I only have three chemo section to go so I'm not sure if it's actually worth it 

it's so true about how cold your head gets without hair on it

I'm having to wear a hat to bed and my head is so prickly 

i'm slowly getting used to my alien hea

It is such a shame that we don't all live near each other and I'm sorry I don't get to write as often as most people it's only because I don't know what to say

I have been very lucky to be sick but from the very first chemo session I had-

And this is nowAnd this is nowFirst cutFirst cutbut stay positive everyone 

 

Horseylass
Member

Re: June 2020 chemo starters

No I didn’t go for the cold cap.i really didn’t want each session lasting longer than necessary and I just didn’t really fancy it. I think it’s just hanging on in there for now. 
For those with cold heads in bed, I have got some of the sleep caps as I was warned my head would get cold. Hats4heads had them. 

It is really nice to have this space to talk to people who understand what we each are going through, I agree. I like the point about us all being on different treatments as they know so much about our respective cancers. That does make you feel like we are getting the best that is available to us. 

Keep smiling ladies, we’re beating this awful thing one horrid chemo at a time!

 

xxxx