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June 2020 chemo starters

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Re: June 2020 chemo starters

Funny you should say that Tara, I'm on chemo first and op second, I had a problem feeling so well knowing  that chemo would make me feel sick.  I think you are on EC with me and I didn't feel worse after the second course, will let you know how the third course goes.  Keep smiling, this website gives me so much support, please all share if you feel you can.

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Re: June 2020 chemo starters

Hi everyone,

sorry not replied much, been busy today with home schooling lol.

 I am sorry to hear that your second infusion was not nice. Hope you start to feel better soon.

 I am on 3 weekly infusions, but it looks like some people are on weekly ones is that right?

 I said to my husband just. I know I have had cancer and they have taken it out which is good but having chemo makes you feel ill and you realise you have cancer if you get what I mean? I have not felt ill until now.

 I heard the further along you go the worse it gets and I am dreading that to be honest. Oh sorry on a proper downer at the moment fed up already and only had the one infusion.

 Hope everyone else has had a good day and do not feel too unwell.

Tara xxx

 

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Re: June 2020 chemo starters

  Cecilia Sorry to hear you was poorly   iv got my second chemo on Thursday   so fingers crossed I dont get stomache cramps that's the one think I hate.  Hope your feeling better now thou.

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Re: June 2020 chemo starters

My hair started falling out a few days ago 

so got the hubby to shave all it

im going to hop out hats instead of wigs 

😘it’s not just hair your head that comes off that was the biggest shock😳

I was in bad way last week after my second infusion 

terrible cramps and plenty of visits to the loo

hope everyone is well 

take care 

for anyone that is talking about holiday 

my doctor told right at the beginning not to book any Foreign holiday this year 

 

 

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Re: June 2020 chemo starters

Hi Tabs, I had me second cycle of EC last Friday and my hair started going yesterday, not good news but better to be prepared.  Not sure if I will be brave enough to put a photo up, will let you know how I get on.

 

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Re: June 2020 chemo starters

My hair started going last night but hoping my wig will be here on Wednesday and will be getting a zoom on-line fitting.  I have also watched the looks good feeling better video's which show how to draw in eye brows etc and cancer hair loss are sending me some false eyelashes and a hat that I can wear in bed to keep my head warm.  Whilst I hope this does not happen to all of you hopefully you can get prepared, I asked my chemo nurses to check how likely mine was to go and the answer pretty definite, they were right.

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Re: June 2020 chemo starters

(got cut off again) was long to say with my boyfriend in the dappled sunshine and it was lovely. We did a codeword and had coffee (I had some small squares of very dark chocolate too just to keep me going). Anyway, it was lovely. I've been told I'm meant to stay inside and completely shield but I think I'd go mad. I wore a mask and avoided people so will hopefully be OK. I hope you have all had nice mornings as well xx

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Re: June 2020 chemo starters

  • Am being inept, is there a maximum number of characters I can post in one go? It wouldn't let me type any more after a certain point. Also, am being thick, I can't work out how to start a new thread under the June starters, only a reply so apologies in advance if you get a seemingly unconnected response. Am on day 8 of my first EC cycle and for those of you not there yet, I just wanted to let you know that days 7 and 8 have been much nicer to me than days 4-6. I'm a bit wary as this is my low white count week but I went for a gentle walk this morning and sat down under a breezy tree with
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Re: June 2020 chemo starters

Hi Lam, 

I think it's the E of EC or FEC that isn't great for hair. We may get lucky but I've tried to manage my expectations by assuming I'll lose all of it. Having had long blonde hair since I started secondary school, I'm just trying to enjoy the novelty of short hair and then wigs/scarves/drawn on eyebrows. I'm sure there'll will be days where I feel rubbish (the weight gain hasn't been great). I think I'm lucky though my boys are 15 and just turned 18 so know what's going on. I can't imagine what it must be like to go through with younger children. 

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Re: June 2020 chemo starters

apologies now Ann as I can babble on, at least you can all ignore me unlike my family who have to listen to me non stop haha.  
Tara all of this certainly does put things into perspective for us doesn’t it, definitely start living life and enjoying it.

Im dreading when I start to lose my hair, sorry if this is a daft question, does everyone lose their hair? I don’t know if it depends on the combination of drugs you are given.  You’ve probably all said what you’re having but I’m useless at keeping up, I’m having FEC and what I’ve read it’s almost certain you will lose it.  Does anyone know any different? 

xx

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Re: June 2020 chemo starters

I love the Disney characters too, however have not been to Disney land yet. Will definitely save to go. Time to start living a bit now I think. You just don’t realise what is important sometimes do you?

 Morning Ann hope you are and feeling okay? 
 I love to chat but please do let me know if I start to bore you, I really don’t mean too. It’s lovely to hear from you too, we can all get through this together I know we can.

 I’m just trying to do something with my hair. It has gone a bit like Barbie doll hair. Have washed it and are letting it dry in it’s own, it’s refreshing actually. Keep brushing it gently too as someone else mentioned to keep it’s untangled. I tend to forget who has mentioned what sorry about that.

 Hope you all have a nice day.

 Tara xx

 

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Re: June 2020 chemo starters

Hi Tara 

sugar is lovely 😊.  I’d happily let Enzo sleep on the bed but he comes up for a cuddle then back into the floor for the night.  Sounds like we have a good pair of husbands doing these jobs and we obviously make good supervisors 😂. Hopefully the weather picks back up so we can enjoy the gardens.

ive heard that about the Santa’s and I think I will be more excited than the kids, I was the one who got excited and cried at the parades when we went to Disney Florida. 

hope everyone else is well xx 

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Re: June 2020 chemo starters

Love reading it all please keep it coming

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Re: June 2020 chemo starters

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Hi lam,

 funnily enough my husband had a mad job to get the garden done before my chemo started too. Last year was a bit mad, we were supposed to be buying our first home as we have always rented. It was a new build and the completion kept being delayed. Often wander if the stress of this caused the the C. Anyhow my mum brought a house near me as her partner died last year and she has very kindly had it renovated for us to live in, however my husband had the grande job of sorting the garden because it was like an o we grown secret garden. He started on the day of my surgery and was finished about 2 weeks ago. It is lovely. Good these mento is aren’t they? 

 I have always wanted to go to New York in December apparently there is a Santa Claus on every corner. I bet your children will love it. Hope you get to go.

 Love the picture of Enzo, he is gorgeous. My boxer dog Sugar always sleeps in bed with us much to my husbands horror. I waited a long time for her so she is like my baby. Like I said yesterday she had been sleeping with the boys but is all me now.

 Hope everyone else is okay today, the sun is shining here and it looks like it will be a beautiful day. Enjoy! 

 Tara xxx

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Re: June 2020 chemo starters

F69195BF-BDE4-473F-BC4E-E7BF32138A1E.jpeg

 hopefully the picture loads ok but this is my little Enzo x

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Re: June 2020 chemo starters

hello everyone sorry for the silence ive been busy supervising my husband on redoing the garden, I think he thought I would give him a rest now but I want everything sorted before I start my chemo (poor husband).  Glad you are all feeling ok.  Its nice to know youre not the only person going through this, as supportive as family and friends are they don't really understand, and if one more person tells me everything will be ok I'm going to scream haha.  I know everything  will be ok but they aren't the one going through it.  I was supposed to have my chemo nurse talk appointment yesterday - telephone call but no one called, I know I don't start until Thursday but my nerves are all over the place as Im sure many of yours are as well.  

Umm I think I will stick to water vomit juice doesn't sound appealing 😂😂

Yes it was me that's got a little puppy, well hes 10 months old, I got him a week ago his name is Enzo and hes a cross between a pug and a Pomeranian.  Hes lovely and my little shadow.  He is crate trained but the last two nights to my husbands horror Ive let him sleep where he likes and hes chosen my bedroom floor and theres been no little accidents during the night.

Im going to see how I feel about holidays, so far Ive cancelled July's and I think Im going to do the same for the September one.  As I said December is the one Im looking forward to as its took me years to convince the husband to go to New York and I know the kids are looking forward to it.

Sorry as you can see I can go on so I will give you all a rest for now haha.

Take care my lovely ladies and I hope you are all ok.  xxx

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Re: June 2020 chemo starters

Keep chatting, lovely to hear.

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Re: June 2020 chemo starters

Hi,

My dog surprisingly has not left me alone. From Christmas time she started not coming up to bed with my husband and I and preferred to sleep with the lads. It was as though she could smell the cancer. I thought after chemo she would be no where near me but seems to have had the opposite effect. On the day I was diagnosed the 20th March my youngest brought some chicks home from school they have them every Easter and go back to the farm when hatched if no knew will adopt them. We have 3 hens so are looking forward to them laying eggs now. They went outside about 4 weeks ago much to my 18 year old step sons delight as he was having to tend to them a few times a day when they were babies.

 I do feel cheery thanks Ann. Even managed to do my challenge and dance through Momma Mia with my boys for the first time today. I work in year 3 at my children’s school my oldest is in year 4 we do this using in music across the stage. The children in my class and I made up a dance to the song before lockdown and I have promised my colleagues that I will try and dance my way through the song to keep me going through chemo. My youngest moves into year 3 in September so not sure where I will be when I go back but I have taught him the dance too 😝. Mind you having bc has seriously made me consider my career and made me think I may want to do something else. A challenge to get my kind going. Plenty of time for that though. Sorry for rambling on I like to talk a lot as I’m sure you ladies can tell!

 Sorry to hear about the physio appointment they did not seem very helpful. Mind you I have found some people like that in my journey so far. Some people you click with some I am wary of and not sure I trust their opinion or it seems like that are not bothered. The virus seems to help them not bother too much either.

 Glad people are generally feeling okay and good luck to those ladies having chemo next week.

much love 

Tara 😘 

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Re: June 2020 chemo starters

Hi Tara 

Glad you’re feeling more yourself. Interesting about your taste buds too.

i think it’s lam477 who has a new puppy. I’d love one but with 2 dogs, one who was a nightmare puppy, I think we have enough. Especially with all our other animals! 

Cubot my physio appointment was ok, she did give me a few pointers regarding the breast exercises but it did feel a bit like she was ticking a box to say I’d been dealt with! She asked very little and talked at me quite a lot! I’m glad I didn’t have to do an hour and a half drive just for that anyway! 

Hope all goes well for you on 18th Butler10. I have an appointment with the oncologist then and start my chemo on 23rd. 

I hope everyone else is ok. xx

 

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Re: June 2020 chemo starters

Hi Tara nice to hear you sounding cheery, yes I'm sure someone said they had be given a dog but not me, we already have 2.

 

Keep smiling

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Re: June 2020 chemo starters

Hi Iam477  I have a picc line had it put in day before chemo started  took about a week to get used to it but it fine now  I have to go to picc clinic every week to get it flushed out and to change the dressing   I have my second round of chemo on the 18th .  Hope every think go's ok for you.x

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Re: June 2020 chemo starters

Hi everyone,

 Hope you are all okay?, I am feeling a lot more like myself today, which is good.

 I’m sure someone said that their OH has brought them a puppy, although I could if imagined it with my chemo brain. If anyone did get a dog, how lovely and what type did you get?

 I don’t know about anyone else but chemo has reaped havoc with my taste buds. I am usually a sweet person but seem to have turned savoury 😝  

 I only like to drink plain water. Seem to have gone off my squash. Never mind!

 I hope everyone has a lovely day and ya feeling okay.

 Tara xx

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Re: June 2020 chemo starters

Tara vomit squash 😂😂😂 autocorrect gremlins out and about on the threads again 😂😂💕💕Shi xx

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Re: June 2020 chemo starters

Hello everyone, catching up after a few days!

Tara - was thinking of you yesterday so glad it went well. That's nice you were able to chat, at mine we were too spaced out to do that without yelling! I also got really hot at night the first few nights but it passed, hopefully it will for you quickly too. 

Tabs - I had the same advice about brushing hair with the cold cap. Mine's recently started coming out (day 15 for me) and I can see why as if it got all tangled up it would be a nightmare to untangle! So far no bald spots and it doesn't look any thinner, so cross fingers it won't shed too much more. Other bits of me started shedding a few days ago too but I'll draw a discreet veil over where 🤣

Ann - fab news about tumour shrinkage! So pleased for you 🤗

lam477 - was thinking about a holiday in October in the UK but thought it was just too risky to book ahead given that COVID might still be around, as I'll only just have finished chemo. Having said that I'm quite cautious and, like Horseylass, looking forward to 2021! I would go with what your hospital team say. Also I have my second chemo on 18th so will be thinking of you when you start yours the same day.

Horseylass - how did the physio phone appt go? I had a prosthesis consultation over the phone which was a disaster (external company, not NHS), so I'm now going to go in for an in person appointment at with the specialist nurse at some point in the next month or so.

Have a good weekend ladies! xx

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Re: June 2020 chemo starters

Hi again,

sorry just catching up with posts.

 We are due to go to Blackpool to stay in my fiends BandB the end of August. We go every year so if we are able to will still go there as it should fall in my good week if all goes to plan. The whole family rent out the whole hotel.

 In regards to the holiday I had booked to Egypt for April next year I cancelled this purely because we needed to money as my sick pay is only for 4 months and did not want the kids to go without nice birthday pressies etc and we renewed our wedding vows in Dominican Republic last year that took most of our savings, however  I have got a large plastic cola bottle that I have been saving change in and have about £250 in there already. Also at the hospital I go to a lady rents out holiday homes In summerset and Worcestershire. I think you just donate an amount that goes towards cancer research. I have her number as campsites are due to open on the 1st July again so I am told.

 I would speak to your team and see what they say but as long as it is safe to do so I would probably go. We only live once!

i am sorry your husband has to sit in the car that must be a nightmare. Tell him to take something to read or watch (Netflix) in his phone if it were my OH and some snacks as he may be there a while for your first time. 

 Hope I have not missed anyone out. I find it hard typing on the phone as it makes me feel a little sickly.

Much love 

Tara 💕 

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Re: June 2020 chemo starters

Oh no, I didn’t have vomit squash I had vimto squash! Xx

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Re: June 2020 chemo starters

Hi ladies,

I’m back 😝 

The chemo yesterday was not too bad in the end after my wobble at my husband on the way to the hospital. I was so scared about what was going to happen I nastily told him that I would not be having the chemo if it wasn’t for the kids. He asked me what I meant as this will help prolong my life. He told me to put a smile on and get in with it and left me at the hospital entrance. My husband is really supportive and I love him to bits but he can tell you as it is too which it turns out is just what I needed.

 Whilst having the chemo I found the one beginning with F the hardest as my sinuses began to hurt and I felt like I had been crying for a week I also have a strange salty taste in my mouth, but all doable.

 Last night I felt as though I was going to be sick. I decided to use the loo downstairs to prevent the others from coming into contact with the chemo. I ran downstairs bowl in hand but I was thankfully not sick.

 I found the smell of food made me feel nauseous and could not lie in bed with my husband as I kept going hot. I slept in the recliner downstairs with the windows open that was better.

 In terms of anti sickness I had a tablet and an infusion before the chemo started and then have emend to take for the next 2 days and domperidon I think that’s what it is called to take as and when I feel sick. I also have steroids to take for 3 day’s and injections for blood cells for the next 8 day’s. My mum lives on her own so has come over today to do this for me as my husband just got called out to work. He is a key worker under ground electric.

 I took a litre bottle of tap water with me and a litre of vomit squash. I drank these whilst there and drank about a litre and a half before I went.  I also keep drinking water throughout the day at home. The nurse said we need to get the chemo flushed out. Had a heat pad out on my hand and the cannula went in quite well. There were other ladies and men having chemo who all seemed really nice. I made friends with a lady and we are going to keep in touch.

 Sorry to babble on just wanted to let you all know it is scary but okay too. Although I had to do this on my own I had a really good afternoon and met some lovely people.

 Hope everyone is feeling okay 

 Tara xxx

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Re: June 2020 chemo starters

Good morning everyone, 

Tara, good luck for today. I hope it all goes as well as it can. Let us know when you feel up to it.
I don’t think I’m going to go for the cold cap either. Mainly as I don’t really want to spend extra time in the hospital. My poor husband is going to have to sit outside in the car park and wait for me anyway, as we live an hour and a half away he can’t easily go home. I would drive myself but I’m not sure I’ll be able to manage 3 hrs driving and the chemo. 
I can’t decide if I want a wig or not. The way I see it I’m not going to be going anywhere apart from the hospital so there’s not much point. 

With regard to holidays lam477 I’m not expecting to be going out in public much until my chemo is finished, due to the risk of infection and Covid, so I’ve nothing planned. I shall save all that sort of thing until 2021. Fingers crossed that you are able to go away for yours.

Ann, I’m so thrilled for you that your tumour has shrunk. Long may that continue.

I have a post op. telephone physio appointment today so that should be interesting, I’m not quite sure how that will work but we shall see.

xxx

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Re: June 2020 chemo starters

Good morning everyone, sorry I've not replied to everyone already I'm still getting my head around everything including using this forum 😆.  Thank you for all the advice on what questions to ask, they have been very helpful.  My treatment isn't due to start until 18th but I'm nervous already, I've already ordered a wig but don't know if I will actually wear it.  I'm the same Tara I hate being cold and having a headache so I am going to give the cold cap a miss.  It would just be my luck I would use it, suffer the cold and headaches and it not make a difference.  I've got a supportive husband and he brought me a lovely doggy to keep me company whilst I'm not at work, especially as work have said they don't want me to go back this year as I work in mental health managing a company and seeing lots of different people.  I've only been off since Monday and I'm bored already, I'm not one to just sit around so its driving the kids mad already haha.  What are peoples thoughts on holidays, I've got three booked this year and not sure what to do.  July I think will be cancelled due to covid-19 so not too worried about that one.  I've got one in September which is to Poland and falls in-between my chemo dates and the main one I'm concerned about is beginning of December when I'm due to start my radiotherapy as this is a holiday I've been planning for a while, its only a long weekend but to New York, what would you all do.  I know there are lots of concerns about holidays abroad at the moment but I thought they would be something to look forward to.

Anyway enough of me going on I've probably board you all to sleep now.  Hope you are all keeping well and safe.  xx

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Re: June 2020 chemo starters

Hi Tabs,

Thank you for your reply and the information given. Sorry I did not reply last night I was trying to get a good nights sleep before today, but that all went out the window due to nerves and my 7 year olds brain working overtime. He has Aspergers and he becomes very vocal at night. His thoughts come streaming out. 

 I am sat here trying to get as much water down me as I can as advised to do so by the nurse. I am very nervous about how I will feel as they administer the chemo and also when I get home later. Praying the anti sickness work.

 You seem really upbeat about the process and although I know it is horrible from reading what the ladies in here have to say I know it’s doable.

 I am not using the cold cap as I want to spend as little time as possible at the hospital. I also hate having headache and being cold. Moaning again you see lol!

 Hope everyone is feeling as well as they can be today.

 Lots of hugs and kisses

 Tara x

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Re: June 2020 chemo starters

Meant to say that I had a callback from haircare specialist this evening. I wore a cold cap for my first treatment (apparently you're meant to bring conditioner to put on your hair but I didn't know so had to use just water). Also the lady this evening said it's really important to brush hair well every day after chemo (hopefully that's to stimulate the follicles not just to collect the clumps). 

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Re: June 2020 chemo starters

Hi Tara, 

I'm late to this group, I wasn't due to be starting til 15th but actually had my first EC treatment 2 days ago. I had to have it through a cannula as there was no time to fit a picc line or port. If all goes well, I'll have a port fitted in my chest (non-mastectomy side) before my next round of chemo. At my hospital, due to covid, the ports aren't being fitted with any sedative, just a local anaesthetic. I think I'll wear an eye mask and headphones so that I'm not aware of what's going on in my chest at the time. I think it's a 3 hour appointment but I'm hoping that's very generous. 

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Re: June 2020 chemo starters

Meant to say brilliant news about the tumor shrinkage Ann. Well done xxx

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Re: June 2020 chemo starters

Hi everyone,

just got back from my cancer chat on the chemo unit. The nurses checked my veins in my hand/wrist and said they are going to try and use these the first couple of times then may need a port as my veins are thin. I have been told to try and drink 2 litres of water before I go in on Thursday and keep warm. They will use a heat pad if needed.

 They went through the side effects and I was given a rapid response card. They said if any thing does not feel right afterwards call straight away. I will get anti sickness intravenously whilst there and tablets to take home, emend or something.

 Was told to look out for diarrhoea and given a sheet of pictures explaining how it might look when I need to call. They said eyes might become runny or dry and if I get a red mark up my arm called tracking keep and eye and if it gets worse call in. I don’t need injections for the fec part just for the detoxal. 

 I was advised to take some food in with me as they have sandwiches but I may not like them, something to read or to entertain me and a water bottle. Apparently tap water is best. They have ice and water and tea and coffee to drink. 

 I was shown the room where the chemo happens and although everyone was a little older than me they were all calm and relaxed and have me a wave.

 I will have a nurse with me at all tones for my first treatment and then I think a machine dies it after that.

 She did not tell me the side effects of detoxal as she said lets get the fec out of the way first.

 Hope this helps and hope everyone is feeling okay today.

 Tara xx

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Re: June 2020 chemo starters

I had my first EC chemo 10 days ago and have just seen the oncologist, my lump has shrunk by 20%, this is apparently normal and very encouraging so keep positive.

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Re: June 2020 chemo starters

Mine was all about side effects, a lot to take in so I didn't ask any questions but it all starts to fall into place as time goes by.  You will probably be getting calls from the nurses who are a mine of information and what they don't know they will find out for you so don't worry if you can't remember it all.  As it is a phone call you could perhaps ask someone else to listen into the call so you have a second pair of ears, just a thought.  Hope all goes well Love aNN

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Re: June 2020 chemo starters

You should be given a rapid response card if you have not been given it yet. It is extra precaution for you to have this. You could also ask how long it will take if you don’t already know so you can take things of download music or tv show or take portable DVD player or book to keep you occupied. Ask about any vitamins or supplements you are taking too and if you should stop prior to chemo in case they interact with your chemo, it can differ from oncologist to oncologist what they want you to do if you are. Hope this gives you a few ideas of questions you might want to ask your team 😘💕💕Shi xx

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Re: June 2020 chemo starters

evening lovely ladies

well I’ve had my first chemo date through for 18th June, I’ve got a telephone consultation on the 11th to go though everything (apparently this is normally done in clinic but due to Covid-19 they are limiting gave to face appointments).  My head is all over the place at the moment can anyone suggest important questions I need to ask on the telephone consultation as I’m sure I will forget something important. 

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Re: June 2020 chemo starters

Welcome Ann and lam477 😊 I am also not usually a forum user but having lurked on the other chemo threads took the plunge and am finding it really helpful to be able to learn from and share with others going through this at the same time.

Here's the Cancer Hair Care link again: https://www.cancerhaircare.co.uk/ you can email them and then someone calls you and you can chat through any questions you have, they are lovely and very knowledgeable (and yes, they send you a free pack of goodies tailored to your circumstances!).

I am giving the cold cap a go despite its mixed reviews. For anyone who is offered that my experience is that the coldness is nowhere near as bad as I expected, but because it fit so tightly at the front I got a headache from that. The nurses have suggested I try an older model next time to see if it fits better. I will find out how successfully it's worked (or not!) imminently as I'm now day 10 after chemo... 

A few people have mentioned the injections. I was able to do it myself as I'm OK with needles and I can promise you that you barely feel it! No need for a plaster afterwards either. 

In terms of telling people it's such a hard decision. I decided that I'd tell pretty much everyone and those who I couldn't see in person I mostly did via email so they had a chance to absorb and I didn't have to deal with their immediate reactions. Also so that I could set the tone which was "this sucks, but I will get through it, please continue to treat me like a normal person as that will help me the most". But it's different for everyone so whatever you do will be the right thing for you. It is also incredibly tiring telling people; I did it in batches. 

When I was trying to decide whether to have a particular type of treatment, my oncologist said to me "only you can decide, but once you've made the decision be at peace with it and don't agonise further over it". That doesn't necessarily come naturally to me (like Tara, I like to be in control!) but it's been good advice for all aspects of this so far. 

Hope everyone's having a lovely weekend 😊 xxx

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Re: June 2020 chemo starters

Hello lam477,

I was like you and used to read the threads and have only got involved with this one. I think it is because I just want to get this roller coaster of a ride to be over as quickly as possible and never ever get on again.

 The look good feel better website has tutorials on how to apply eyebrows and eyelashes so I am told. Also I’m sure Cubot recommended Cancer hair care in an earlier post. She said they send out goodies when you register such as eyelashes.

 Sometimes I think it is easier not telling anyone about your diagnosis as all you ever find yourself talking about is cancer. Plus you can scare people. My mum told my brother the statistics of me having chemo and he misunderstood. Thought I had a 80 percent chance of recurrence rather than a 20 percent. We have never been that close but he drove to my house to talk to me on my doorstep.

 I have to be strong because I want my boys to know that should they have a medical condition in future or their partners and children they can get through it just as I intend to now. Don’t want them to be scared to go to hospital for treatment. Although at the back of my mind the fear of the worst is always there. I’m sure it is for all of us.

We are all here to support each other and I am thankful for that.

Hope everyone is feeling okay and has a good day.

 Tara xx

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Re: June 2020 chemo starters

Morning Ann, wow it must be so difficult dealing with everything on your own and not telling everyone.  Saying great though I’ve told work and close friends and family and now feel as though I’m wrapped in cotton wool, work have made me finish this week until after all treatment is finished.  I’ve just got myself a little dog to keep me company on the journey as my husband will be working and kids are typical kids stay in their rooms lol.  I’ve been looking at wigs but not got one yet.  Oh I didn’t think about eyebrows!! I don’t wear makeup so not got a clue where to start and I don’t want to look like they have been put on with a sharpie pen or have a surprised look all the time 😳.  I’m sure my husband will help with the injections as I’m scared of needles.  I don’t really know a lot about the PICC lines so will discuss this when I go in, someone said it would be easier as they always struggle to find my veins. 
I hope your journey is an easy one and little side effects x

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Re: June 2020 chemo starters

Morning, I don't have a picc line and don't want to as I feel it increases the risk of infection.  Yes I did have jabs to take home which my husband gave me for 7 days but nothing to be frightened about, very small needle, easy to use.  I have ordered a wig, cost about £300, it has not come yet so it's a bit of a race, since I don't go anywhere but the hospital, I am hoping that no one will notice, I am looking for advice on how to draw eyebrows as that is a dead giveaway.  I have not told a sole, none of my family know, everyone is under so much pressure at the mo and I can't see them anyway.

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Re: June 2020 chemo starters

Hello everyone, I don’t know if I’m doing this correctly but giving it a try, I’m not normally one for forums but thought I’d give it a go and reading through your posts you all sound so lovely.

Im due to start chemo in June I’m just waiting for my start date now.  Like all of you I’ve got the same worries, what’s going to happen, how will it affect me and the big one for me will I lose my hair?  On the phone the consultant said having FEC almost guarantees that you will lose your hair 😢. I’ve saw that some of you mentioned a pic line does everyone have this? And also injections at home? You’ve all given so much advice already but anything you can give would be amazing.  
We will all get through this (somehow) 

love to you all xx 

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Re: June 2020 chemo starters

Hi Ann,

My oncologist did mention diarrhoea actually. He said I would most likely get that than constipation. I just love how he knows exactly how I will react before I have it!

 The other ladies have advised not to eat a large meal as you often see the effects later. I have started to real Surviving Triple Negative Breast Cancer by Patricia Prijatel and she says the same lol.

 I need to try and eat a little more healthy as I have to admit since finding out I have cancer I have almost put a stone on. Don’t normally comfort eat but have this time. My husband has told me not to worry about it as I may find I struggle to eat when in chemo.

 I really appreciate all the advice all the ladies on the forum have given me. I am a bit of a control freak you see and hate that I do not have control of the situation, however I feel comfort in knowing what may happen. 

 Lots of love

Tara

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Re: June 2020 chemo starters

Hi Tara, yes some of the drugs are red, bit of sickness at first, feeling fine now but getting some diarrhoea, I am now trying to eat little bits often and have found some foods really help so now I eat chicken and rice, white bread, salmon and rice, bananas, just trying green beans, avoiding dairy and all other fruit and vedge, bit boring but much more comfy tummy.  I also take the odd probiotic.

They give you anti sickness pills to take home and steroids, the steroids also help with the sickness, and jabs for your blood so you should be well armed.

Hope that helps, my next treatment is Friday, I am having 3-4EC and then they are changing to 4-5 of another drug whose name I cannot remember.

I think it all gets a bit less scary after the first treatment as you know what to expect next time, it was also nice that the nurse giving me the drugs had to stay with me the whole time so I had company.  

I did make the mistake of coming home and having a good lunch, will not do that again!!!!!

Stay safe.  Love Ann

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Re: June 2020 chemo starters

Hi Ann,

Thank you got the advice on the pink wee! Is that because the chemo is red? Must be the Red Devil.

 Hope you are feeling okay after your chemo

 Tara x

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Re: June 2020 chemo starters

I started EC last Friday, your pee goes pink afterwards, hope all goes well for you, I'm in for 3/4 sessions and then cannot remember the other chemo name.  Keep smiling.  Ann

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Re: June 2020 chemo starters

Hi Cubot,

Thanks for the advice. I was going to put some eyebrows on my boxer dog but she won’t stay still 😝.

 I will listen to my body and try to eat little and often. These days up to my fist cycle are making me really anxious, I suppose it is because you don’t know what to expect.

 I might ask about the PICC line if that is what it is called. I am sure my husband won’t mind looking after it for me. He is going to have to inject me as I am too scared to do it myself.

 Thank you for your support 

Tara xx

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Re: June 2020 chemo starters

Sorry, got so carried away trying to find ridiculous dog photo I forgot to answer Tara's nausea question!

I got given anti-nausea pills before the chemo, but no anti-nausea drugs intravenously. They worked really well, in fact so well I ate a hearty lunch on return home. This was mistake #1! My top anti-nausea tips are:

1) Listen/read very carefully to the instructions you get on taking your meds. I got confused and didn't take a pill soon enough once I'd got home. This was mistake #2...

2) Eat little and often, do NOT let your tummy feel hungry as for me that's when I started to feel/was sick, and equally do not over-fill yourself.

3) Eat what you want, don't worry about being super-healthy if you feel sick. I tried to drink a fresh fruit'n'veg smoothie on day 2 after chemo because I was worried about fibre intake and diarrhoea (which I didn't get) and that didn't stay down. Next round I am sticking to marmite toast and fried potatoes until I'm ready to eat more adventurously!

4) I got super sensitive to some smells for a couple of days so if anyone's bought you lovely flowers you may want to move them out of smelling range!

In a nutshell - listen to your body and don't worry about a couple of days of 'unhealthy' eating. 

You can do this 😊 xxx

 

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Re: June 2020 chemo starters

If this isn't the place for a good moan where is?! 

Re PICC line - definitely ask about whether this is an option for you. You will need it fitted before you go in for chemo (mine was two days before). I found the fitting absolutely fine and didn't get any bruising or pain after. You will need to then go in weekly for what they call 'line care' unless someone at home is willing to be taught how to do it or you're comfortable going to your GP practice nurse (again, ask about these options as it sounds like every hospital is different).

Eyebrow wise yeah, going to have a play with make up but as I only leave the house to go to the hospital not sure I will be bothered to make a habit of it. My friends 'helpfully' sent me suggestions (see below for my favourite) of different eyebrow looks I could model but not entirely sure I'll be using their inspiration...

xxx

hmm...hmm...