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Hello Everyone, I hope today is being kind to you all .
@GonnaGetThruThis I have bloods on Monday then oncology telephone review Tuesday. I am same as you in the way I’m going to treat it as day one again and take each day .I’m so excited to be going out tomorrow to bird land all outside to see my 1 yr old granddaughter not seen her for 6 weeks .
I had a melt down this morning as hair was coming out in chunks . Have decided to shave of to grade 2. Lots of tears but now feel ok as hair not falling out. Hubby been so brilliant he is my rock , he had been going around with the hoover getting the hair over last few days.
Been 15 days since chemo so hair has done me proud for so long .
Enjoy the weekend
Jennifer x
Afternoon ladies!
My session went well mainly thanks to all the kind advice here. Here are a couple of pictures, one of me with the cold cap. Fingers crossed it works a little. Hope you are all finding little wins each day xxx
@simplyeve You don’t look scary, you look lovely and it is lovely to put a face to your name.
I am going to attach a photo of me with my grade 1 and one of me with my wig on and after the Look Good Feel Better workshop:
Not quite sure why my phone keeps turning photos sideways!!
Good afternoon Ladies,
@Trowster so sorry to hear you have been unwell, but glad that you got some treatment and am keeping my fingers crossed that you are still hoping to be home tomorrow. What a shame you had to be admitted for your birthday, but at least you have some pressies to look forward to when you come home aren't our husbands amazing. I would never have thought mine would have be so capable and thoughtful as he has been, as I said to the Oncologist when I saw him, hubbie has been my rock and don't honestly think I would have coped with the treatment at all if I hadn't had his love, care and support.
@JessicaB good luck 🍀 with your first treatment tomorrow, hopefully I'll be having my second one, I have been for my blood test today, so am assuming they will notify if there is a problem, though my bloods were ok last week when I saw the Oncologist. I agree that a positive attitude is very important in all of this, but if you do have any side effects, my own personal advice would be to contact your team sooner rather than later.
@GonnaGetThruThis I do hope you have found the mouthwash has helped I was given an antiseptic mouthwas called Chlorhexidine Gluconate, I use it morning and night at the moment as my mouth has improved tremendously, though it recommends 4 times a day and after my treatment if I find my mouth in deteriorating again I will up the dose again. I hope your genetic testing results come back to soon and you get good news. Interesting that they wouldn't take bloods from your picc line, I had something similar when I had a canula for my drip, where they wouldn't take blood from it, so the phlebotamist had to take it from my “nodeless” arm, which meant I couldn't have a tourniquet she did it quite well though and I only had a small amount of bruising. Yes I have bloods taken the day before my chemo treatment, the chemo ward issue me with the BT request, I make an appointment with my local surgery and then just go there. I was told I would have an assessment after my first treatment, which I did and now I already have a telephone appointment for assessment after my second one, but I think that is because I was so unwell after my first one.
@hopeful1974 thanks a million for the link to the diet, it was really useful to read through it and get some info👍, though I must admit I had tried most of the foods recommended in my first week and think it was the really dry cotton mouth that caused my the real problem. I hope your treatment on Friday goes well for you too. You must be feeling so much better as you had such a terrible time with your first set of Chemo, you give me hope that the reduced dose will work as well for me thank you🤗.
@Impatience so glad to hear that you feel you are tolerating the treatment and your energy levels are rising, I totally understand the apprehension as I have my next treatment tomorrow. Although I feel a lot stronger that I did this time last week I too feel that my admittance took a lot out of me.
@Heels to walking boots thank you so much for the good wishes, we went to a local carvery for lunch to celebrate🎉. I'm so glad to hear that you have coped reasonably well with your treatment, I too have not had many problems with bone pain, though I have a torn meniscus in my knee which has been playing up a little, but I think this is down to lack of exercise. I also hope that your coldcap keeps working for you. I didn't try it so now have short spiky hair which is still coming out but is not such big clumps and is managable, if I can work out how to add a pic of me I will! Though be warned I'm no sinead o'connor🙈
@Flower123 It's lovely to hear that you are feeling well enough to take your lovely doggies🐕 for walks and I adore sausage dogs, we don't have any pets anymore and I would really enjoy having a dog or a cat, but think this is not quite the right time. I too think I will sign up for the look good, feel good, course. I don't tend to use a lot of make up either really, but think it can't help to try and improve myself, I also think it will be easier to do it online than in an actual face to face group. Several ladies on this forum have said how good it is so I hope you enjoy it. I also think this forum is a wonderful place to come and be able to say exactly how you feel and not be judged but have the support of all the lovely ladies on here.
@Louise65 I hope you are doing well after your second treatment. I like you am thrilled to have lost all my “whiskers” I finally have a lovely top lip and chin, however my arm and leg hair is still there, but my leg hair is very fine now anyway but it would be lovely if the underarm hair would also disappear then I wouldn't have to worry about the numbness 😉.
@Fairie I have left my comment to you til last my lovely, because I wanted to wish you good luck🍀 with your second treatment tomorrow, I hope you find it easier than the first one. The way I do the posts to include everyone is to open my open office writer (it's equivalent to microsoft word/office but it's free) then I also open the June 2021 page and go through the posts, then I reply by just typing @Fairie etc once I have finished, I just copy and paste in to the reply to message section. I usually just click reply to the last post, as it always appears at the top, mind you I do use my laptop as would find it very difficult on phone or tablet,
I too apologise for the long posts ladies, but can I just say how much I appreciate each and every one of you, your replies and advice are always helpful and supportive and I do think that together we are stronger.
Good luck to us all, here's to health, happiness and a bright future ahead. After tomorrow I will be a third of the way through my chemo treatment doesn't that sound good! Sorry about the photo's think the chemo hat makes me look more scary than the bald head 🤣
Love to all
Yvonne xxx
