@JessicaB do you go to Lincoln for treatment? I was there yesterday and they were saying something about no treatment Friday due to the drugs but didn't say what.
Glad you have the go ahead for tomorrow just take deep breathes going in earlier means be over by afternoon.
Enjoy your time in Pickering I will think of you when I drive through last weekend in November as my daughter lives in village called Wilton just outside and we going there to drop dogs on way to Bridlington for our first break since I started chemo. I'm like a child can't wait to see the sea lol.
I started my Xmas shopping today luckily don't have to much to get. I'm also having a real tree this year first time in 20+ years. Going to get some new baubles too just couple colours as all my decorations have so many memories and it's our first without my mum so need a change this year.
Hope everyone well.
Love Louise x
@JessicaB Hi Jessica ,lovely hear from you . Well you made it and tomorrow last one congratulations 🎉. It certainly has been hard on everyone. I’m sure once chemo done you will be able to focus on next step of reconstruction. So do you not have to have radiotherapy? or hormonal tablets .
I am the same with Christmas all done wrapped and Christmas cards wrote this week . I so don’t like change as more prepared and confident when I have plans and routine that doesn’t change .
Darker nights coming in and clocks to change I do like this as then close curtains and keep everyone inside .
Just trying so hard not to get Covid so not been going out or having anyone in . My daughter is still attending UNI and working weekend at garden centre but is being so careful when home bless her . I so don’t want to miss operation date 2 weeks Friday .
Hope everyone else good / managing chemo or just the wait for next stage !
Take care lovely ladies
Hi lovely ladies/wonderful warriors
Sorry for no replies of late, I have been busy juggling work and feeling very tired. I do read all your posts though.
Here is my latest update.
I was due to have my last chemo (my third Docetaxel) last Thursday but it was cancelled. 😥 A broken machine in the pharmacy meant only emergency chemo was proceeding.
So here I am today, with both trepidation and keeness to have my final session which is tomorrow at 11.30. They have just phoned to confirm the bloods are OK and the covid swab is negative and the 'see you at 11.30' floored me a bit as they had booked me in for 3pm so now I need to rethink all my plans. Is anyone else stressed by changes in plans or is it just me?
For lots of reasons I haven't been on holiday for a few years now. So I am looking forward to a few days away in Pickering in late November and seeing my sister who has also been through BC (lumpectomy/radiotherapy) in December. Also looking forward to having my parents stay at Christmas - 90% of present shopping done as I felt I wanted it done early just in case.
I have to have reconstruction next but it seems I need to contact the breast team to get all that started and I know I need to do some reading up on whats needed but my brain isnt quite in the right place for that at the moment.
The clock change is always a struggle for me but working at home has taken that pressure away this year. I stopped setting the alarm months and months ago and wake when the dog decides its time to get up! Varying between 5.15 and 6.40...
Hope this finds you all well or if not, improving from where you were.
Lots of love
Hi ladies hope your all as well.as can be.
The lgfb hair session sounds good, I did look to book on but next one isn't until December 21st its the one we probably need more but they don't seem to have many sadly.
I haven't watched the film nativity for long time will put it on my watch list. I'm currently going through Silent Witness as the whole lot is on. My partner thinks something wrong with me as I usually watch this sort of thing, Sci fi and horror lol.
Wishing those who have treatment this week all the best. I'm in tomorrow for my last PC then I have 2 C's I'm ticking off the days. Then I've got to try and lose some weight somehow.
Love to all
Im booked on the LGFB Hair course but not till november. When I booked in September the October one was full so i have to wait till November. I cold capped and unless i have a massive post chemo shed thenso far ive managed to keep most of my hair, but ive heard the course covers this situation as well. I have been told by the Paxman people to keep up the hair care regeime for the next 2 months (minimal hair washing/brushing etc) but i want to see what the LGFB people say about scalp care and general hair care as I may have kept hair but it isnt in the best condition.
I recommend all the LGFB courses they are so fab. I even did the Meditation and breathing one last week and it was good as i really need to learn to chill a bit and relax.
Cant believe what a whirlwind this has been and that this time in 3 weeks I will be at the top of the mountain so to speak and be over the chemo and surgery.
Hope everyone is feeling ok and sending good vibes to those who arent.
@Flower123 I love the film Nativity too! So good and I find it so therapeutic to get some laughter in. I hope the hair loss course is useful. Mine has been growing back white too and I’m debating what to do about it. It looks like it may be frizzy too, so maybe I should also sign up as I won’t know what to do with it! xxx
So sorry to hear it has been postponed for a week . Plenty of Tv and rest need for the weekend .I so love Christmas films and watched nativity the other day always makes me laugh .
I have booked myself on the hair loss and regrow course on the 26 Oct . My hair is starting to move now and very white. Be nice to get tips and information.
Hope you have a lovely weekend and hello to everyone else out there
big hugs 🤗
This is fantastic news all moving very quickly . Be lovely also to have your mum there for you and family .It is quite scary that only just finished chemo and now going into op. I am also going to have next week as a nothing week try build up strength and mental well-being. Last 6 days have been so hard on body regarding bone injections worst I have ever had the pain BUT on infection to go tonight then that’s it !!!
I to had call yesterday to say all pre operation bloods , ect.. booked for 4/11 ready for operation on 12/11.
I am scared about going in hot with the Covid rise but it has to be done and I’m taking all relevant precautions I can .
Have a good weekend
@GonnaGetThruThis Wow - that is quick! My op was 7 weeks after my last chemo (back in April). I’m glad it is all moving ahead quickly for you.
My final chemo was meant to happen tomorrow but my neutrophils were once again too low so it has been moved to next Friday. Not unexpected but annoying as I was so psyched up for it. Never mind, at least I get to enjoy half-term with my family. xxx
Last chemo on Monday was fine. Today we went to the hospital for the Surgery consultation and the news was pretty much as good as you could want it. The MRI showed as close to a complete response from chemo as they can tell on the screen.
Most important piece of information - my surgery date is Nov 9. Can’t quite believe it as I was expecting to have my last chemo on Nov 8 so it seems quite soon. So that's less than 3 weeks away. Exciting and scary. I actually think he would have made it the week before if I had have agreed to it but I said let’s wait as I want to make sure I’m all ok (and also cause I wanted my mum to be here and as it is she is only just coming in the nick of time).
There is nothing 'planned' for next week (apart from rest and recuperation) but the week after I have a pre-op health check and blood tests and also on 4/11 I will be meeting with the surgeon for surgery overview and consent. Then Sunday 7/11 my mum will arrive first thing in the morning, on 8/11 I will have an ultrasound to put in a guide wire and some liquid to a node (something to do with being able to see where they are going) and then on 9/11 the actual surgery. I'll be in and out in the 1 day and then home to ‘recover’. Cant beleive it all seems to be happening so fast but im glad to have something to focus on.
I’m not really thinking of after that yet, but I know there will be radiotherapy (hopefully to start and finish before Christmas) and based on the pathology results of what they take out there may or may not be more treatment (but I’m really hope there isn’t).
Sending love to everyone else xxx
Its totally understand not wanting to ring the bell everyone reacts differently. Couple weeks ago a lady got to ring it whilst i was sat waiting to go in. Most people clapped but the lady next to me was quite rude and loud about not believing in it and it was stupid. She has bc too and said who knows if it will return in time so thought ringing the bell was a gimmick. I said i will be ringing the bell as had surgery, been to hell and back and although still have radiotherapy know that is just 2 weeks. Hope you feeling ok and get through this time better.
@GonnaGetThruThis Hope yesterday went well, love the pics. I had my session yesterday too luckily my bloods had picked up enough for it to go head. I had a snooze after being given my pre-meds it does help pass the time although it impacts my sleep later on. Start my injections tonight so have my oromorph ready to get me through the night time pain.
Hoping everyone else doing ok.
Love and support
Now I have finished chemo it certainly does feel strange ,I got asked if I would like to ring the bell for final chemo on Friday but it didn’t feel right for me. ( Hope that doesn’t sound ungrateful to finish chemo) Not feeling brilliant last few days very tired and bad chemo belly . Just feel I can’t let down my guard down as worried if need to go back in again with side effects like previous times. I think for me it will be celebrating when had operation and have clear margins so then can move to final stage of radiotherapy. Everyone is different how they react and feel through their own journey.
I hope everyone had a good weekend and it is a very wet day here today .
Well done, @GonnaGetThruThis ! I have think it will feel surreal for me too on Friday. It probably takes a while to sink in, but definitely cause for celebration! xxx
I am about to have my very last chemo treatment. I thought that I would be so excited but it is quite surreal like how I was feeling at the start
Anywhere here is a picture of me 'before ' looking all normal and then the actual bloody reality of it
that's all for now as the meds are making me drowsy so I need to close my eyes.
@Louise65 My final chemo is actually next Friday, so in countdown mode now. I’m feeling pretty good now and go from being able to do a run (Couch to 5K) to flopping on the sofa but that’s all good! I know my energy will return eventually. I do hope your session will go ahead. I’m not good with uncertainty but have had to learn how to tolerate it during the last few months! We haven’t planned anything yet for this weekend but hoping for a couple of nice walks and watching films in front of the fire. I’m not risking going out much at the moment as I want to stay germ-free for the next week. One thing is for sure - we’ll definitely be watching Strictly! I hope you have a lovely weekend. xxx
@hopeful1974 hope your session today went well, was it your last? I've noticed I have a bit more hair, plus my whiskers have gone into over drive lol.
Hope everyone is doing OK, anyone got anything nice planned for the weekend?
I'm back isolating for my session Monday which now may or may not happen I will know 10am Monday. Oncology have told me I need another blood test first thing Monday as my fbc had dropped even though I've not had treatment for 2 weeks. As you can imagine I'm feeling really fed up now can't go anywhere, partner has gig tomorrow night and Monday could be postponed again.
Love to all
@hopeful1974 you look great!!! That's quite a bit of hair growth...mine is just covering my bald patch now 🙂
@Heels to walking boots Not the best photo of me but to give you an idea just how much it has grown…
@hopeful1974 Sian, that is really interesting to hear that you too had hair growth on your treatment pathway. It wasn't something that i had been told or had heard before. So good to know that i should not worry.
I should instead focus on that fact that it is growing back 🙂
Thank you xx xx
@Flower123 I was given the option of lumpectomy or mastectomy and I chose mastectomy as I too just wanted it all gone. Perhaps your tumour is smaller than mine was? I had a 2.5cm invasive carcinoma and a 7.7cm ductal carcinoma in situ.
@Heels to walking boots Lovely to hear from you. I do hope the rest of your chemo goes according to schedule. My hair has grown a lot during Docetaxel and Carboplatin and the nurses said that that is not uncommon.
@Fairie I feel like I retain water on Herceptin but I am still having it along with chemo at the moment. My face is puffy and I do feel like it is water rather than fat!
@Louise65 hope you are feel better and i know how frustrating it is to be put back and to miss a session.
@Flower123 fingers crossed that you go straight to radio rather than surgery but like you say it is good to focus one the last chemo session.
It is so encouragable to hear how many are now close to finishing and ringing the bell....not sure there is a bell to ring at my hospital but i too will wish them all well and hope i never see them again when my time comes lol. But a huge congratulations to those that have finished and well done you did it! @Fairie great news about your tumor and all the best with surgery. So uplifting!
I had another chemo session delayed which led to be a bit of a spiral of anxiety as i noticed my hair growing back which lead me to worry that paclitaxel was affective but after some research this can happen. Also after speaking with the oncologist my thresholds have been amended for my white blood count and i was able to have chemo this week which was a relief but still 5 weeks go which is not long in the grand scheme of things. However, there has been no discussion regarding surgery --so i am hoping that will happen soon to get an idea of when that will happen.
I hope everyone having chemo tomorrow that it goes well! @hopeful1974 i believe it is your last one...hope you are able to celebrate after.
Lots of love to you all! Thinking of you all.
Sorry to hear this Louise . All the best for Monday now . So many virus and cold going around everywhere !! And the weather has certainly changed here got much colder .
I have just got back from breast consultant and have been booked in for Friday 12 November 4 weeks from last chemo , to have more margins taken away from breast . She did mention that we’re I am it’s taking 4/6 weeks to get results backs . It will be the waiting the worse if clear then will start radiotherapy if not she said another operation and maybe if not clear then removal of breast .I did ask if I could have it removed on the 12th Nov but said no it is not needed at the moment !! You come as way just wanting to know if all gone or not but that’s not going to happen till after operation .
I must just focus on last chemo Friday and getting through that .
Hope all you lovely ladies are doing well and , if not let us know we are here to support
hugs to all
Oh that’s annoying Louise! I’m sorry you had so much time wasted 🥴 xx
can I ask if anyone has experienced water retention on Herceptin or at all?
Love to all xxx Fairie 🧚🏻♀️
@Fairie that is fantastic news about your tumour, wishing you all the very best for your surgery on 27th.
Hope everyone is doing ok and big cheer for those of you who are due your final session.
I sat on the ward 3 hours last Friday waiting only to be told my consultant did not want it to go ahead due to my cold and my inflammatory markers being low. I was not happy as i had told the nurse who called the day before i had a cold. They have now booked me in Monday as couldn't fit me in this Friday then as long as nothing else I will have sessions the following 3 Tuesdays so no break. So looks like i won't be doing much for those 4 weeks.
All the best ladies.
Love Louise xx
@hopeful1974my last session will be Monday and from what i understand they will just take out the picc line as well so that is going to be a good feeling. I was also avoiding my daughter last week, but not as much as you, because all of Y7 were sent home as they had too many cases in her year so i was a little worried she may have been a close contact. We took PCR's even though we didnt have symproms to be sure. I have my 2nd surgery consult on Thursday so it will be an 'exciting week'. I asked last week about ringing the bell but they said they relocated it to their office rather than in the chemo ward out of respect to pallative and really ill patients. I'll be happy jsut to say to them 'goodbye and hope to never see you all again' lol
@GonnaGetThruThis Well done! You have got through this and I do think that chemo is the hardest part of the treatment. I too have my final chemo next week and I cannot wait to just get it over with. I am doing my best to avoid my daughter as she has a heavy cold and I really don’t want to catch that right now! I am taking food to her room but that’s it!
Which day is your final chemo? Mine is on Friday and I will be ringing that bell! Siân xxx
@Fairie such amazing news and I had the same news last week so I know exactly how you feel. My initial exam and ct scan estimated the tumor to be about 2.5cm then when I had my first Oncology consult it was 5cm and the mri 2 weeks ago showed it has all gone.
I'm just back from my penultimate chemo session and I'm still a little shocked that I can say the words together 'next week final chemo ' and let's hope it is the last time ever! The nurse also told me that they will be able to take out my picc line after treatment next week so that will be exciting. Still have surgery and radiotherapy to come but that's just the next step.
To Flower and everyone else struggling, sending you some strength aand best wishes.
Yes, Yes, Yes! What great news. I’m so pleased for you. It’s so encouraging to hear about results like yours when we are struggling through treatment. Glad you don’t have to wait long for your surgery xx
Bless you! I’m so sorry you’ve been so poorly.
I hope sincerely that you feel stronger and better soonest.
sending healing wishes and lots of love xxx Fairie 🧚🏻♀️
@Fairie @That is such great news to hear . It is a real boost for me hearing such positive news !
I will have my last chemo on Friday if bloods all good fingers crossed . Just had another 6 days in hospital picked up an infection in pic line( had out ) and then in blood . District nurse came to change pic line and I collapsed due to infection she got ambulance and stayed in on lots of antibiotics iv also was neutropenia. Feel much better now just tired and lots of feet hand tingling. and get a little out of breath if do to much .
I have appointment with breast consultant about next step which should be second op to remove margins that weren’t clear from first operation before chemo . Hopefully all be good news Wednesday afternoon.
Thinking of everyone and sending love . Take care
@Fairie That is such wonderful news! I am delighted to hear it. It is reassuring to hear that the treatment has worked as I am having the same treatment but as an adjuvant treatment so I won’t be able to see how well it has worked (I had my mastectomy in April). I was the same re mastectomy. I was offered a lumpectomy but just wanted it all out and was very glad I did in the end as my margins were clear but close for my DCIS which I had alongside the carcinoma.
I think it sounds very sensible to have a weekend of gentled normality. I am trying to do the same and going shopping with my 14-year old daughter. That always brings me back to reality! We are also watching Strictly. Enjoy and once you have got over being in shock, hopefully elation will kick in for you too! xxx
Hi @hopeful1974 and everyone
thank you for response and wishes for me yesterday.
I am still in shock as the surgeon told me my 5cm tumour was undetectable!
this just goes to show that for all the harshness of chemo and side effects we suffer and Herceptin can work.
I will still have a mastectomy, although surgeon said I didn’t need one and possibly just a lumpectomy, I don’t want to keep my breast. This is my second BC and I had mastectomy 15 years ago. So we all agreed ( hubby too) that for me it was the best option.
I will remain on Herceptin until next summer. Radio therapy will be decided after mastectomy but she said I may not need it. Lymph nodes remain looking okay but these will be tested whilst I’m asleep and if anything detected she will do a lymph clearance. She thinks they should be okay.
I am in shock! I can’t quite take this news in! I’ve been tearful and for me I think it’s about coming back from that edge of waiting to hear bad news again.
a gentle weekend ahead of doing house chores, shopping and gardening and walking will I think help me by doing normal things and of course Strictly tonight.
so my friends… keep positive!
my surgery will be on the 27th Oct and I’m told I will go home the same day! Wow how things have changed from 15 years ago👏
my love to each and everyone of you xxx Fairie xxx
@Fairie I hope today went well and that you got some good information following your scan.
I too question myself all the time about what I should do differently, but I am probably the healthiest of all my friends. I hardly drank, have never been overweight, always eaten organic, very little sugar, never smoked, always exercised, never taken the pill, breastfed both babies…..the list goes on. There is very little I could change other than actually eat less healthily and start drinking!! I don’t think we will ever know what caused our cancers so am currently thinking that I will just continue to lead a balanced, pretty healthy lifestyle with the odd treat when I fancy it. xxx
@GonnaGetThruThis I am so glad to hear this. I can understand why you are delighted. It is great that your mum will arrive just in time too. My last chemo is on 22/10, so not long after you. Will you be ringing the bell? I am going to! xxx
Totally agree about not blaming ourselves, no-one is perfect and we have no control over why this happens.
So I've just had some VERY good news. Had the Oncology Dr consultation over the phone. Firstly that I have only 2 sessions left and not 5 as I thought. Originally she had scheduled in 9xP plus 3xC at the end but said that the 3xC would only be if the response wasn’t great and/or I had the dodgy gene. So seeing as I have had an excellent response (her words) and I was negative for the gene she said there isn’t a need to do more. She then said the MRI showed it was completely gone or virtually completely gone as they can’t truly tell until they get in there in surgery. I have my LAST chemo treatment on Monday Oct 18 then the surgery consult on Thursday Oct 21, so i am expecting the actual surgery to be mid November rather than mid December now. so exciting (and a bit scary).
My mum is only due to come on Nov 7 as we expected 12 weeks of chemo but she will be here just in time which is good.
So this has certainly brightened up my day. sorry if anyone isnt feeling great at the moment and i hope that some good news can help cheer you up as well.
I’m exactly the same on blaming myself! Too heavy, wrong food, not enough exercise etc. Although I know those things on their own don’t cause BC directly I still have to keep reminding myself it’s not my fault. Results days are so nerve-wracking that I think the anxiety comes out like that. It’s good to remember how much we have done to take care of ourselves and get well. Herceptin gives me horrible acne. Drives me mad. I finish in June 22 so that’s a lot of concealer! Good luck for Friday. I’ll be thinking of you xx
Hello all friends
this is Fairie (Sharon)
im sorry I’ve been elsewhere lately, busy with settling my mum back at home and sorting out all kinds around that.
I see my surgeon for MRI results on Friday and to discuss surgery likely due 27th October.
I’m continuing on Herceptin for another 12 treatments.
I think of you ALL often and I hope once things settle more with parents I’ll be on our page more 🙏🏻🤞🏼
im a bit nervous about Friday and what my MRI will reveal but can feel the lump I presented with is much smaller so I will go hopeful that she’s pleased with progress so far.
I heard from the genetics team and an told I don’t carry a faulty gene and this second time of primary Bc is just bad luck.
im trying not to blame myself and I’m told it’s nothing I’ve done, but then I find myself questioning myself! Did I not exercise enough, did I drink too much vino, I’ve gained weight since my first journey of bc 15 years ago, I could have eaten more healthily 🤦🏻♀️ And I have to stop myself as it doesn’t help!
what I did do right was trusted my intuition 15 years ago that something wasn’t right and despite being told I was 99.9 fine I pressured to be checked further thank goodness!!
and again this time I just knew something wasn’t right and I was right.
Anyway.. I must go to sleep as didn’t sleep a wink hardly at all last night, Side effect of Herceptin, so hope to catch up with sleep tonight 🤞🏼
Love to all xxx Fairie
Louise ,,sorry to hear this , it is horrible when you feel so unwell . Mouth and bone pains I can understand from own experience and going through. I do find the morphine help me for the bone pain they also gave me to go along side , slow realising morphine table ( tiny) that helped keep pain at bay all through night . I would do bone injection 6. 30 paracetamol then morphine table 8.30 then morphine liquid 10.30 ish . It works for me but every different. Great news on scan they say scar tissue hates the chemo drug and you can get a lot of pain , lumps and discomfort. You must also be glad work all sorted one less added worry on the brain .
@Louise65 This is such a very tough journey, isn’t it? I am so sorry you’re feeling so rough. I’m feeling really rough too as had chemo on Friday. It’s my penultimate one and I cannot wait for my last one on 22/10. I guess we just have to think that the more treatment we can tolerate now, the greater the chance of the cancer being gone forever. Your weekend away sounds wonderful. I’m going to plan something for after my last chemo too. Anyway, big hugs and together we can do this. 😘 🤗
Hope you are all keeping as well as can be. I havent been on for a while been feeling pretty low.
Finally have work sorted now and wont be returning until chemo finishes next month. I saw the breast consultant last week after a month of worry, they did an ultrasound as well and all ok the pain ive been experiencing is scarring and the new drug. I have 4 sessions left and am so ready for the end. I currently have a cold and mouth full of ulcers. After speaking with my oncologist and being given 3 lots of meds for oral thrush and also oral morphine for the bone pain i go down with a cold!!! He has agreed for me to have my radiotherapy beginning January so i can get back into work and build strength up ready. We have a weekend booked at seaside once chemo finished and i cant wait it will be first time away this year.
Wishing you all well.
I am on week 2 of my 3rd (& final) Docetaxel. My 2nd cycle was my worst. This last cycle has been much better. Almost like my body has learnt to put up with it. I had the usual attack on my bowel for days 1-4 and I have had some jaw/tooth pain this time but mild.
My onc did reduce both my 2nd and 3rd doses by 20% as the first wiped out my cells and put me in hospital.
I hope your 3rd session is much better. It’s difficult to tell as we are all different but just wanted to share my positive experience with you in the hope that helps in some way. Wishing you lots of good luck with your treatment.
On week 3 of my second docetaxel and have managed to do some work, but mostly in bed. So I’m pretty fed up about that and it’s giving me back ache. But I just don’t seem to have enough energy to stand or walk around much. Still, only 2 more rounds to go-ha ra! We’re nearly there! Did anyone have a better round 3 or 4 on docetaxel or is that a daft question lol ? Xxx
@GonnaGetThruThis How lovely that you were able to attend your friend’s wedding. Treats every so often really help to boost your morale, don’t they? As does having a sense of normality.
Well, I had my penultimate chemo today so this time in three weeks I will be able to ring that bell! I am so glad to have the end within touching distance and it is really helping me psychologically when I have uncomfortable side effects.
How is everyone else? Did anyone else have treatment this week? Sending love and hugs as always. xxx
I was so happy that i was able to go into London yesterday to attend my friends wedding. When she booked it a couple of months ago we literally had no idea how I would be so it was amazing to be able to go and pretty much feel normal. I even had 2 small glasses of bubbles. First drink that ive had since end of May before treatment started.
Had my weekly bloods and assessment today and we spoke about my lack of sleeping. I have now been prescribed an antihistamine from the GP as traditional sleeping tablets dont seem to work so she wants me to try them the next 3 nights and report back on Monday. Ive come to the conclusion that sleep will jsut not be great until this is 'over' and you know what, as crappy as that is, I still feel i am getting off really lightly with regards to other side effects so I'll try not to complain too much!
I've noticed that food is starting to taste differently and even the water has an odd taste to it. When the nurse asked if this was impacting my eating and drinking, i laughed and said no chance of that!
Hope everyone has a good weekend and remember we are all another step closer to the end of this tough time.