Hello Ladies
I'm sorry it's been a while since I have joined in, I had my last Chemo session on the 30th September, after having to have a further 2 days of infusions of magnesium beforehand, then on the day of my treatment they decided my bloods were low and whilst they went ahead with the treatment on the Thursday on the Saturday I had to go and get two units of blood unfortunately my last treatment was not kind to me and I struggled with oral thrush, nausea, extreme tiredness and of course the usual numb fingers and feet, I really think I had overdone it when my family were here and my body was just too run down. I didn't do any blood tests until the day before I was due to have my targeted therapy 3 weeks later(21st), I had been doing them weekly in my other treatments because of my low magnesium, and although I had said I would go in and get checked if I felt it was low, my husband celebrated his 65th birthday on the 18th and I didn't want to spoil it by leaving him on his own whilst I was having to get an infusion, the result was my magnesium was so low it meant my treatment was delayed and I spent that Thursday, Friday and Monday getting magnesium infusions, I also received a phone call on the Monday to go for my radiotherapy assessment the following afternoon but before that on Tuesday morning I redid my blood test, so my targeted therapy was re-scheduled for Wednesday morning last week, the same afternoon we had to attend the inquest for my mother in law, she died as a direct result of falling and breaking her hip whilst in hospital in May and the orthopaedic surgeon had reported it to the coronor, the outcome was a verdict of accidental death and whilst it was not easy having to go through the events again at least we can move forward from that now too.
So after getting my radiotherapy assessment (and my tattoo's!) last Tuesday, I have a date to start my Radiotherapy this Thursday (4th) and have had a PCR test today so all being well I will have treatments 1 & 2 this week then get the weekend off and start again next week, if everything goes to plan my last radiotherapy treatment will be the 24th November, I have also been given my prescription for my hormone treatment which my GP has now prescribed, I'm going onto Anastrazole, though have yet to pick it up from the chemist so hopefully can get that done tomorrow. I will also get a Zometa treatment at some point but not sure when that will be.
It's so great to hear that we have all nearly had our last Chemotherapy treatments, I can't believe how well we have all done. It's amazing how we have all got through our ups and downs and I really hope that the next treatments whatever you may be going on to have are gentler and kinder to us all, having already had my lumpectomy and lymph node removal surgeries, for those of you about to go in I promise you it is nowhere near as hard as Chemo.
I for one have found the last few weeks extremely emotional, I swing from being glad I got through Chemo to being worried as to whether it has worked, especially as I have had more joint pain in my shoulder recently (I broke it in 2013) and am getting shooting pain in my breast which I haven't had before, so I have started checking myself again, trying to get used to change in size and shape and the scar tissue. I know these are common things and I don't need to be concerned but I suppose I feel a bit like I'm in limbo, I am still getting some nausea and regularly need a nap in the afternoon, my taste is still off and I have still got numbness and tingling, but I keep telling myself I need to give myself more time that it's early days yet and things will improve if I just give it time. How does everyone else feel?
I haven't been as supportive as I would have liked but I have found the group invaluable these last few months, even when I haven't fell well enough to respond it has been a help knowing that others were suffering similar symptoms and I fully intend to keep following up to see how everyone is doing.
I hope everyone is staying strong and doing well and I will update you on how the radiotherapy goes asap, incidentally for those of you going onto targeted therapy I was given the treatment by subcut injection aka Phesgo, the injection itself wasn't too bad and only took about 10 mins, though I had to sit for 30 mins afterwards, in future I will only be about 20 mins I think. Currently I am having some issues with itchy skin and appear to have to spots on my face and arms, though cannot say if this is directly related to the Phesgo as it's too early to tell really. But if anyone else has had it and has similar it would be interesting to know.
Sorry the post is so long, but I wanted to let you know what had been happening.
Stay safe and well lovely ladies. Hugs to all.
Yvonne xxx
