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June 2021 Chemo Starters

hopeful1974
Member

Re: June 2021 Chemo Starters

@GonnaGetThruThis enjoy your massage. I have one booked for Tuesday - it is at the Fountain Centre, a place in our hospital which offers complimentary therapies, counselling etc. to those going through treatment. I can’t wait. xxx

GonnaGetThruThis
Member

Re: June 2021 Chemo Starters

Morning all

Hope everyone starts to feel better soon. 

Had the first experience of proper side effects last night and I can only describe it as 'tripping'. It was seriously like the come down after clubbing 🤣
It wasn't totally unpleasant just really weird and lasted for a number of hours. my nurse friend said to prepare for coming off the steroids so that must have been it.

I also find that whilst I'm tried in the arvo/evening, I can't sleep but I just rest eyes and im OK but had to admit defeat and got my 10 year old to help me into bed about half 9 whilst hubby was watching the football.

Today I have a massage booked so will make sure she stays clear of the picc line the head and also doesn't go too hard. But I'm really looking forward to it.

hopeful1974
Member

Re: June 2021 Chemo Starters

@Impatience Thinking of you. I hope they get to the bottom of it. I’m sure they will. I hope you’re not getting too bored in hospital! xxx

Impatience
Member

Re: June 2021 Chemo Starters

Hi everyone

Just a quick update  Although I feel well my neutrophils have gone down again today so I’ve had an injection to help  Thankfully all my other vitals are reading normal  Medics still can’t find any source of infection so awaiting blood cultures as by all accounts we all carry 7 bugs in our own bodies  The thought makes me cringe as I’m a bit OCD with cleanliness/health germs 🙈

I had headache first 3 days of chemo I upped fluids and took paracetamol and it did shift by day four. Hope that works for those of you suffering. I’m unsure who has what steroids but I was told to take mine after breakfast so not to interfere with sleep and my friend who took two lots made sure second dose taken by 2pm. 

Wishing everyone a lovely evening. 

Imp xx

Trowster
Member

Re: June 2021 Chemo Starters

Sian, I have found drinking lots of water and no hot drinks seem to be keeping the headaches away, I have had another really good day today, done some housework n a couple of wash loads n pegged it out, if I feel this good tomorrow I’m going to attempt a smallish Ride at 8am  with a couple of friends for support then I can relax the rest of the day, I’m beginning to think if they just gave me water, this is so different than last time, I did hear of some ladies being given anyltriptiline to help with sleep, might be worth asking the docs, 

Imp, I hope you get home really soon and that things are improving for you, 

hopeful1974
Member

Re: June 2021 Chemo Starters

@Heels to walking boots sorry to hear you didn’t have a great night. I hope today has been better. I found that cycle 1 last time was like an experiment in working out which anti-nausea meds worked best. It was much better by cycle 2 as I had it worked out.

@Trowster glad to hear you had a decent night’s sleep and I hope today has been ok. 
@Impatience I hope you will be allowed home soon and were well looked after in hospital. In most respects, having a high pain threshold sounds appealing but I guess you have to be extra vigilant with taking your temperature. 
I have been ok but had headaches over the last few days. I’m not sure what is causing them. I have been using Nytol for sleep for the last few nights but was fine when I have used it in the past, so not really sure. Hoping they will pass soon. Has anyone else had headaches at all?

I hope everyone else is as comfortable as possible. Siân xxx

Heels to walking boots
Member

Re: June 2021 Chemo Starters

@Trowster glad you had a good night and continue to feel good!

@Impatience hope you are feeling better and will be able to go soon.

@simplyeve hope you have now recovered from your stint in.

day 1 after chemo I am feeling ok didn’t have a good night as was very nauseous so ended up taking an extra anti nausea tablet so hope today will be better. Going to go for a walk to clear my head.

will take the advice and pack a hospital bag as that is one thing I do not have  

and for those that I have not mentioned directly I hope you are all doing well 💕

have a wonderful day ladies 

anabel xx

Trowster
Member

Re: June 2021 Chemo Starters

Imp, so sorry you’ve to be admitted I hope you won’t be in for too long and they can sort out the problem, 

i,m a planner and like things to be ready, so my go bag was packed before I started chemo yesterday, short sleeved Pj’s, slippers, toilet bag n towel, spare phone charger n book reader, hoping being prepared will mean I won’t need it, lol, 

you lucky ladies living in Lincolnshire, I did a work detachment at RAF Coningsby for 2 years in 2018/2019 I stayed in various hotels in Woodhall Spa, I’ve been back the past 2 years for a cycling holiday it’s so much flatter than Wales, and due to back again end of Sept staying at Woodhall Country Park it’s such a peaceful site, be lovely if we could meet for coffee, 

i had a great night with at least 5 hrs sleep, the meds are doing there stuff and so far I’m feeling really good, I hope everyone has the best weekend they can, 

Louise65
Member

Re: June 2021 Chemo Starters

@JessicaB I live 2 miles out of Grantham. Xx

 

JessicaB
Member

Re: June 2021 Chemo Starters

@Louise65 I am in Lincolnshire, so far been to Boston for mammogram, 2 x results appointments, pre surgery appointment, day surgery, drain removal, 2 xCT scans, picc line insertion/dressing, ECG/echo. Lincoln 3 times for mammogram/ultrasound and two lots of biopsies/markers and results oncology . Louth for MRI and now Grantham for heart MRI. Nothing left to examine scan I reckon!

@Impatience Hope you have had a good night x

Impatience
Member

Re: June 2021 Chemo Starters

Hi. 

Now I’m here I think it would be a good idea to pack PJs with short or no sleeves, any ongoing meds, toiletries, phone and charger, book/puzzles/pen, wet wipes, hand gel, bottled water, underwear, slippers. 

I will certainly have one packed from now on. Didn’t do it as didn’t want to tempt fate but look where that got me! 

Hopefully nobody will need to use their bag 🤞. They think I’ve a high tolerance level that doesn’t recognise when my body is ill. I knew that as I would never ever thought I had breast cancer. I am very fit and rarely get poorly. Hey ho I guess. I’ll just keep on with onwards and upwards!

Thanks to everyone for your kind messages. Much appreciated. 

Imp xx

Louise65
Member

Re: June 2021 Chemo Starters

@Impatience sorry to hear your in hospital but as others have said your in the right place hopefully be home soon. Sending virtual hugs.

@GonnaGetThruThis I have a small just in case  bag packed in it I have

Phone charger 

Toiletries

Nightie

Towel

Old pair slippers 

@JessicaB do you live in Lincolnshire or is it they just sending you to a variety of hospitals? I'm under Lincoln hospital.

Have to say glad I bought thin cotton sleep hat sitting watching TV heads quite chilly. Virtual hugs to everyone. Xxx

 

GonnaGetThruThis
Member

Re: June 2021 Chemo Starters

@ImpatienceOh no im so sorry to hear that you are in hospital but thankfully you are in the right place.  Fingers crossed the antibiotics work quickly and you get better soon.

Makes me realise that it is a very good idea to have a bag packed and ready or at least a list of items that need to be quickly grabbed - any ideas what should be in it? 

So far in the bag I have from treatment is the PICC line passport and the hospital/appointment book.

We would need to add current meds and ????

JessicaB
Member

Re: June 2021 Chemo Starters

@Impatience Sorry to hear you are in hospital. Sending you a massive hug xxx

Heels to walking boots
Member

Re: June 2021 Chemo Starters

Hi Imp,

Sorry to hear that your in hospital and I hope that the antibiotics kick in and your back home soon!

sending you lots of love

xx

Impatience
Member

Re: June 2021 Chemo Starters

Hi everyone

sorry to say I’m writing this from a hospital bed. After lunch I felt shivery so took my temperature. It was 37.9 so admitted to oncology unit. Loads of tests and result was my neutrophils are in my boots. They can’t believe I managed a 2 mile walk yesterday and did my cleaning this morning.  However I don’t feel poorly. I’m gutted I’ve got to day 15 with hardly any SEs and then this. 

I’m now on a clinical ward awaiting more antibiotics. I didn’t have a hospital bag packed so had to rely on hubby. I forgot to ask him for my dry eye ointment and my anti sick pills 🙈hey ho a night of discomfort I feel. 

Jessica you look fabulous! 

Wishing everyone an uneventful weekend. 

Imp xx

Heels to walking boots
Member

Re: June 2021 Chemo Starters

Hi everyone ,

I have been home now a few hours and feel ok just a little tired. However I am a bit of an emotional wreck as can’t stop crying think it has all bought it home today ..so struggling slightly but hoping it will pass as I am now a day closer to the end!

Cold cap was ok ..wasn’t too bad that I wonder if I had it on correctly although I did get a headache but to honest it was the chin strap that caused me more of an issue as it was rather uncomfortable. We shall see how I get on with the hair loss. 

Louise you look great! Also love the statement glasses like gonnagetthruthis I too might have to purchase some bolder glasses as not sure how much longer I can do with contact lenses. 

@Trowster glad you are doing well and long may it continue! I also could not fault the care I had today, Gwen my nurse was lovely.  BTW love those pins!! Great shout from your husband.

Jessica will keep everything crossed for quick results! 
@Impatience hope the bath and painkillers help with the pain and it becomes manageable.

I hope everyone else is well and looking forward to the weekend. 
Sending lots of love and support 
Anabel 💕💕

 

 

 

JessicaB
Member

Re: June 2021 Chemo Starters

I loved the Crown, it got me through the post Mastectomy recovery... that and doing The Big Knit for Help the Aged (and I am still making mini hats for Innocent Smoothies!).  Distraction definitely needed. xxx

JessicaB
Member

Re: June 2021 Chemo Starters

Small steps of progress but still on the waiting game!  Heart MRI is on Sunday at 17.40 at yet another hospital over an hour away this time.  I think I have had every kind of scan/biopsey known to man and am covering Lincolnshire county quite well (four hospitals visited now).  However I take comfort in them being so thorough.  As I was delayed with my chemo, I have a picc line flush on Monday.  Fingers crossed for a quick MRI result as otherwise I may need yet another one the following week and yet more bloods (oh and the COVID swab every time I need a flush!!).  I'm keeping up with all your journeys through this yukky thing and sending positive vibes and hugs to you all x  

Trowster
Member

Re: June 2021 Chemo Starters

Yvonne, so sorry to hear about your daughter it must be so hard not being able to go n see her and give her a big hug, I got my wig voucher today so I’m making an appointment so she can see how my hair is now, but I’m not going to buy the wig just yet until I know I will need one, 

Sian, thanks for the good wishes today, my nurse Pravi was lovely and explained everything so well, so far so good but I’ve only been home for an hour.

Imp, sorry to hear about your downside to the treatment, I really hope the Epsom bath helps to ease the pain.

Anabel, I think it must be different treatments for different chemos with regards to the steroids, I have been given the 7 day course of injections to start on Sunday, I’m more scared of doing them than having treatment, lol I need to put my big girl pants on and stop being a wuss, hope the cold cap was bearable for you and that it helps, I was there for 3.5 hrs today and got served a nice lunch of veg soup with an egg sandwich, also the offer of crisps fruit and cake, 

Louise, I love the red glasses they draw the attention straight to your eyes, but to be fair you wear the shave well,

my hubby bought me some great badge pins to add to my cycling bag, 

Trowster_0-1624629493177.pngTrowster_1-1624629564266.png

 

Hi 

JessicaB
Member

Re: June 2021 Chemo Starters

@Louise65 

looking amazing!  xxx

GonnaGetThruThis
Member

Re: June 2021 Chemo Starters

@JessicaBany update on your heart MRI and what's happening next for you?  Good news on the CT scan and hopefully you can start soon x

GonnaGetThruThis
Member

Re: June 2021 Chemo Starters

@Louise65well done on the shave, it looks fab! 

Funnily enough i was thinking of 'statement type glasses as well' to take away the focus from the head if/when the time comes for me to do the same.

Hope you're feeling better today and the next week you work up the strength for your next session.

Louise65
Member

Re: June 2021 Chemo Starters

Hi all

Hope everyone is doing OK especially today's starters on this evil but necessary journey.

Well I did it hair all cropped will add pic then went straight to see work colleagues and they were fantastic. I even saw one of the partners I work in GP surgery and he told me everyone is in awe of me and how I'm dealing with this I was so touched. 

Had lovely time with dad and brother yesterday few tears all round and then seeing everyone today has given me a massive boost. 

IMG_20210625_134617_495.jpg

IMG_20210625_134617_452.jpg

 bottom pic I took last night.

The red glasses I treated myself as wanted a statement once bald lol. 

Anyway love and support to all. 

Louise xx

GonnaGetThruThis
Member

Re: June 2021 Chemo Starters

@Heels to walking bootsoooh good luck for today. Hope the cold cap doesnt give too much discomfort and will work for you.  Remember if it starts to hurt or bother you then you can ask to put some gauze on the forehead.   That helped for sure but it was still a long hard slog.

I was only given steroids (soluble) and an anti-nausea tab just before the 1st treatment started (day 1). 

Then afterwards they gave me 3 days of the steroids to take morning and night for day 2,3,4, then 7 injections to take the evening of days 3-10.  They gave me anti nausea and mouth wash in case I needed but so far I haven't had to take them.

Fingers crossed for your treatment and let us know how you get on later x

 

Heels to walking boots
Member

Re: June 2021 Chemo Starters

Thank you all for the good wishes! @Impatience @Hope the bath helped! 

@Trowster hope all is going well ..am some what relieved to be starting with a touch of anxiousness . I did not have steroids given to me to take before ..they gave them to me at the hospital . I wonder why that is? I have been told I will have to take injections following treatment..Will you also have them?
well I have just had the cold cap attached so here we go!

sending you all much love and hope you all have a great day .

Anabel xxx

Impatience
Member

Re: June 2021 Chemo Starters

Morning everyone

I hope those of you having your first treatment today have a good day and all goes well. 

The chemo has decided a two prong attack on me today, top and bottom, literally!

Day 15 and my hair is shedding but worst of all I have piles despite not being constipated. I’ve only suffered twice before, pregnancy and a stomach bug years ago. It’s really debilitating as it hurts to move. I’ve taken painkillers and used the cream and I’m going to try an Epsom salt bath. 

I guess I’m lucky to have got to say 15 with no adverse effects so I’ll take it on the chin. Onwards and upwards!

Wishing everyone a good day. 

Imp xx

Trowster
Member

Re: June 2021 Chemo Starters

Thanks Yvonne, 

well I don’t know how Heels got on last night, but after taking the 8 steroids yesterday I had some heartburn last night and a heavy headache I was wide awake by 2 am, finally got up at 3am n found out that the telly is crap at that hour, this morning Hubby has got me Netflix, so I might actually watch the crown, 

were all aboard the train now for June aren’t we, so let’s hope we have more good days than bad, xx

simplyeve
Member

Re: June 2021 Chemo Starters

@Louise65 

I think it is totally understandable that you feel so emotional and whilst we are all aware that this treatment will mean we loose our hair the very fact that we trying to overcome the treatment itself at the time means our emotions are heightened so much more.

I had delayed purchasing any headwear but when I read your post I realised that to an extent I had been burying my head in the sand😣 and so have ordered a couple of items off Amazon to arrive over the weekend and will hopefully get an appointment with my hairdresser on Monday or Tuesday to do the shave as I discussed it with her when I cut my hair shorter.

love

Yvonne xx

 

hopeful1974
Member

Re: June 2021 Chemo Starters

Thanks, @simplyeve I do hope you are feeling a bit better today. My energy comes and goes at the moment. Some days I seem capable of a lot and others I just flop on the sofa. I don’t think the rainy weather is helping! 

Wishing all those having chemo today a comfortable day and sending virtual hugs to everyone else. Siân xxx

simplyeve
Member

Re: June 2021 Chemo Starters

@hopeful1974  

Hope your son is feeling better today and that you are managing to cope. 

I do understand the need to hug, I haven't seen my daughter since September last year, they are desperately trying for a second child unfortunately she had a miscarriage in October,  yesterday after I pressed her she told me she has had two positives that failed within days and I just so want to be there for her and give her a big hug and cuddle and tell her it will be alright. Unfortunately they live in France so it's not possible.

Love

Yvonne xxx

 

simplyeve
Member

Re: June 2021 Chemo Starters

@Trowster  @Heels to walking boots 

Just wanted to wish you both well today be 💪 you've got this ladies. 

much love to all.

Yvonne xxx

 

hopeful1974
Member

Re: June 2021 Chemo Starters

@Louise65 I remember that mine started to fall out after 14 days. I was traumatised too in spite of the fact that I had tried to prepare myself for it. I now have a cm of hair which I know will all fall out again but at least I know it does grow back eventually! 

I’m having a bit of a stressful day as my son has a very sore throat. I am having to go in to his room with a mask on as I am on a low immunity day and don’t want to take any chances. It’s tough but I suppose we are used to this a bit more now after the Covid situation. My son is 15 so ok to be left alone a lot of the time but it is very hard not to hug him! Siân xxx

GonnaGetThruThis
Member

Re: June 2021 Chemo Starters

@Louise65oh it is so cruel how it happens so fast to the hair isnt it?  I did read it was the case and whilst ive also told myself to suck it up as it is only tempoary etc, it still will be bloody hard when it happens.  You are totally allowed to be upset over this.  Enjoy your family day and take care x

Louise65
Member

Re: June 2021 Chemo Starters

Hi All

Just a quick update day 14 my hair is now shedding when I washed it this morning I had a handful, the plug was full and then it rubbed out with towel. I did shed a few tears then pulled myself together as it will make having it cut off tomorrow easier. 

Currently sat waiting for my dad and brother to arrive so there will be more tears but so good to see him. 

Love to all xxx

GonnaGetThruThis
Member

Re: June 2021 Chemo Starters

@simplyeveI am also so sorry to hear that you had a bad few days but also happy to see that you got the help you needed and are on the mend.  i simply cannot fault the service i am receiving and now i just keep saying it is up to my body to start playing ball and accept the treatment in order for it to work.

Glad to hear that most others seem to be over the worst of it.  i am still waiting for this to happen.  Today is 'only' day 4 and so far so good.  Apart from some tiredness (which tbh is totally normal for me) I am fine and carrying on as usual.  Im putting this down to a combination of the steriods keeping me strong (today is day 3 and the final day I take them) and also that i was extremely active before this and im still trying to keep up with as much as possible.    I am well aware that from tomorrow i may start to feel the come down from the steroids so making the most of today by having a PT session with my trainer and cooking for the family (my sister in law has been sorting food so far which has been great).

I did my first injection last night (1/7) and woke in the night with a slight pain in my back but that was to be expected as the bone marrow is trying to do its thing.  i am felt my tummy gurgling a bit and thought 'uh oh' but I went as normal about 7 (sorry for the tmi but im pretty sure soon we will all be used to this type of talk and hey if we cant do it here where else can we?). 

Keep strong ladies and keep in touch whether it is the good the bad or the ugly.

We are all here for each other x

Trowster
Member

Re: June 2021 Chemo Starters

Yvonne, so sorry to hear what you’ve been through but it’s great that you had such good care and attention, I hope things get much better going forward, 

Imp, I hope you get some physio sorted for the pain you have and it can be eased, it’s good to know that Day 13 is a good day for you and you’ve got out with the hubby, Day 8 will be my birthday and friends had planned a ride with lunch, I doubt I will be riding but I was hoping I might turn up for cake, but maybe it’s just wishful thinking, it’s greats that you have a plan for getting your head shaved, I remember my hubby doing mine last time and he said that was the hardest part for him, so I’ll need a different plan this time, I was given some good advice for sleeping, I was told to put a silk cover over my pillow and I found it did help ease the Velcro feeling against the pillow, 

Heels, today is the day we start on the steroids, I’ve taken my morning 4 just before 8am with my weetabix, good luck for tomorrow, how crazy is it that we’re happy for this day to arrive, but like someone has already said the start gets us nearer to the finish, hope things work out better than we are expecting, 😠🤢🤮

love to all 💗💗

Impatience
Member

Re: June 2021 Chemo Starters

Hi @Heels to walking boots 

Wishing you all the best for Friday. I felt better for having started my treatment as I hate waiting. Plus a beginning means an end is on the horizon  

Like Louise65 I’m on day 13 and I’m fine. Went for a drive with hubby today (I’m not mixing so to avoid infection - I’m calling it my personal lockdown) but it was nice to get out into the countryside. My sore gums are no more. To be honest my mastectomy scar tissue is causing me more issues than the chemo SEs. I’ve asked for a re referral to physio for some help with it. 

My energy levels are not what they were but then I usually do everything at 100 miles an hour so that might not be a bad thing. 

This week seems to be going much quicker than the first week which is a bonus. 

My hair is still intact but I’ve collected my wig and I love it. I’ve also been told the ladies at the wig unit will shave my hair for me when it starts to thin/fall out. I’m really pleased with that as I didn’t fancy doing it myself nor sitting in the hairdressers surrounded by glamour. 

Good luck to everyone starting treatment this week and wishing a good week for those already on the chemo journey. 

Imp xx

Louise65
Member

Re: June 2021 Chemo Starters

@Heels to walking boots 

I'm now day 13 and have been out to the shops today only a couple as didn't want to overdo it, felt so good after last Thur/Fri. I think part of my problem was I didn't get imodium quick enough then couldn't drink much so Friday my body said enough. 

I have likened this to climbing Everest Thur/Fri i was almost at the top. Fri pm I reached the summit and now I'm back in base camp recuperating. Bit daft but was easiest way of explaining to people how I felt.

My sore bits are bit better as I've been using hydromol and not wearing any underwear at all. 😁 Sadly I can't get in and out of bath so showers it is. 

I have also found I'm losing my pubic hair. Head is still very sore in places so Friday I'm getting it cropped in readiness. 

@simplyeve so sorry to read you've been really poorly but glad you received prompt care and attention. Here's hoping tomorrow your better still. 

I found last Thur when I struggled with fluids chocolate milk was my saving grace but not cold. 

To everyone else hope your all doing OK, it's another day ticked off.

Those who start tomorrow sending love and support to you, and those waiting stay strong we're all with you.

Love Louise xx

 

hopeful1974
Member

Re: June 2021 Chemo Starters

@simplyeve so sorry to hear what you have gone through. I had a couple of visits to A&E when I did chemo last time round and it is better to be safe than sorry. I do hope you rebuild your strength quickly. Sending you love and hugs. I found Ondansetron very helpful last time when I was feeling very sick. I also found it helpful to eat little and often, even when I wasn’t hungry. Hopefully it will just be a matter of them finding the right anti-sickness drugs for you to have a better experience next time. Siân xxx

simplyeve
Member

Re: June 2021 Chemo Starters

 

Evening Ladies

Hope those of you who had treatment this week are all doing well.  Those whose treatment is about to start Good Luck and  
@JessicaB  I do hope that you manage to get your appointments over quickly to you can move forward. 

To my triplet sisters, you have done amazingly well ladies, unfortunately I have not fared quite so well. I was doing very well up to Saturday when I started getting serious gastric bloating issues, so started taking the metoclopromide, by Sunday I started vomiting and wasn't able to keep up my fluids which I know I needed but had such a disgusting taste in my mouth found even water difficult to tolerate. So on Monday morning having vomited again overnight and as soon as I tried to drink something that morning I decided I wasn't coping and rang through to my team. They were really good and rang back very quickly discussed my symptoms and advised that they thought I should go in, so the nurse actually called an Ambulance for me🙈 Normally I would have been horrified to have an Ambulance come to the house but felt so awful I really didn't care.

Anyway long story short I was taken to A & E where I had an incredible team who were so kind and the nurse I had looking after me was 2 year post BC and gave me some great advice on lolly ices and how to add fluids in any way I could, she also called my unit told them I was there and before I was released in the afternoon, they came over and went through things, I had been constipated for 3 days before I took laxido, but have now been told not to leave it, if no movement after 24 hours I can take it and they will give me a repeat prescription as and when, in terms of the mouth furriness I was advised to rinse with salt mouthwash up to 4 times a day. I also had gastritis which was causing me a lot of pain so they will look at changing the metoclopromide as it may not be working for me.

My blood count was below 300 but had chest x ray which was clear and urine test was clear, but still have antibiotics to take and now have appointment to see Oncologist next Wednesday. Today is the first day I feel a bit more like my old self, but the important lesson for me was to take action if I had left it another day I think I would have been hospitalised rather than being allowed home.

I hope this doesn't cause any of you extra concern and anxiety that is not what the post is about, it's really meant as a positive thing, that every member of the NHS from Ambulance guys to A & E to your Onc team are all there for you all the time and providing you ask for help you will get it in Spades.

@Fairie  (Sharon) I too have some itching in the lower regions, but found a warm bath with Sanex sensitive bath foam helped @hopeful1974  (Sian) luckily I don't have spots ….. and hopefully I won't, think I've had enough to deal with to be honest, but I'm assuming you have contacted your team and they have been able to give you something if not I would highly recommend it.

All the best to you ladies and stay strong, we can definitely do this. Love to you all. Yvonne xx

hopeful1974
Member

Re: June 2021 Chemo Starters

Hi @Heels to walking boots I’m feeling pretty good, thanks. I have good energy levels, my appetite is good and I have managed a walk and a few household tasks. I feel like I am beginning to feel more normal again and my foggy head has gone. My main side effect is rather unsightly spots on my face and neck. They resemble teenage acne. If that’s the worst thing I experience though, I will be very happy! I’m looking forward to another couple of weeks of feeling better before the next cycle but to be honest have not had many bad days this time round. 

All the best for Friday and wishing you minimal side effects! Siân xxx

Heels to walking boots
Member

Re: June 2021 Chemo Starters

@GonnaGetThruThis  this Glad to hear you are doing well on day 3 and managing to do so much it's very encouraging and great to hear! Thanks for the tip on bringing a headband, will add that to the list of things to bring with me on Friday.

@hopeful1974 @Fairie @Louise65 @Impatience  how are you all doing?

@JessicaB  glad CT was clear and hopefully you won't have long to wait before you start..the wait is definitely not fun!

@GillyF great to hear that you are doing well and not shedding @ day 13 so i hope this may continue..will let you know how i get on. I do have a back up as my sister purchased a wig for me..which i hope will remain in the box but it was kind of her to get it, works like a comfort blanket for me.

@Trowster  will definitely let you know what they do on Friday (can't believe only two more sleeps!) as they have not mentioned to me anything with regards to what they will do. I also feel anxious but hoping that will subside and hoping that fitness will play a part in getting through the next couple of weeks. Although my partner has purchased an electric conversion kit for one of my bikes so that i will hopefully be able to still make it out if i am not feeling quite up to it to do it on the analogue.

@simplyeve  thank you for the reassurance regarding the care at the Maelor . Maybe our paths will cross, if not at a caravan site as we too are hoping to still use it during treatment as a way of getting a change of scenery.

@CoffeeFiend  thank you for you note..limbo will hopefully end on Friday. Also it's been great to read that everyone has great support.

Apologies for the long post wanted to see how everyone was doing and answer all the posts. Sorry I missed anyone!

Sending love to everyone ...and here's to Friday and getting started.  xxx

CoffeeFiend
Member

Re: June 2021 Chemo Starters

@GonnaGetThruThis I had a lumpectomy then started trastuzumab injections the day before paclitaxel. Trastuzumab will continue for a year 3 weekly. I’ll have RT after paclitaxel. Hope you are feeling ok xx

GonnaGetThruThis
Member

Re: June 2021 Chemo Starters

Thanks for the messages.  Yesterday (morning of day 2) I woke at 4:30am so was tired most of the day (which isnt too disimilar from a normal day as i usually sleep badly and just float through the days) but i felt fine so go on with my day.  took my daughter to school at 8 then popped to Asda, came hoe and did some admin work with my husband who had decided to take the day off to keep an eye on me, bless him, and take me to the picc line dressing change app.  then i had an hour in the gym with my friend (i have one at home so this is a god send) and i just walked for 45 mins then did 15 mins leg weights.  Being careful with my arm as they say i cant really do any arm weights.  Then i did sit down for an hour to chill before going back to school.  We managed to watch the football but by about 9:30 i was pooped and went striaght to sleep. 

Morning of day 3 and so far so good.  i am making use of having morning energy so catching up on some work emails, FB, here of course, and multi tasking by getting ready for the school run.  i am going to a Pilates class at 10:30 and the teacher knows all about me as for the last 15 months has been teaching us online so we have become good friends, so she knows ill take it easy and can keep an eye on me.  No other plans for the day till i have to go back to school at 3:30, but will definitely make the most of feeling ok for now.  I start the white blood cell booster injections tonight so that may bring on a whole new set of side effects to look out for.

Hopefully those that are having some untoward side effects get them sorted and they pass soon.  I'm on side effect watch all day every day but try not to let it consume me.

Have a great day everyone and im thinking of you all.

Kim xxx

hopeful1974
Member

Re: June 2021 Chemo Starters

Thanks @Fairie , I will do that. Xxx

Fairie
Member

Re: June 2021 Chemo Starters

Hi Sian 

I have sore itchy spots in intimate areas.. 

spoke to my team and they advised to call GP for a prescription which I now have and have put in bath gently with super clean hands around tender areas.

I suggest you speak to your team too?

love Sharon xxx Fairie 

hopeful1974
Member

Re: June 2021 Chemo Starters

Hi @Fairie and @simplyeve I’m hoping you’re feeling ok. I have been pretty happy with how I have been feeling. I have had a fair bit of fatigue and some headaches but have managed them with rest and painkillers. A new side effect I have had for the last couple of days has been breakouts on my scalp and face. There are lots of little white spots which are quite itchy and unsightly. I’m just wondering if either of you are experiencing the same. I am trying to just leave them for now but will mention them when I speak to the oncologist. Siân xxx

JessicaB
Member

Re: June 2021 Chemo Starters

Hi Fairie, hope you are feeling better soon.  At least you are getting help and advice so hopefully things will be better soon.  My first chemo (due Friday) has been put off as I need to have a heart MRI because my echo pictures arent good enough, so I have the waiting game to play again.  My CT scan came back clear again so thats good news and thats what I am focusing on.   To all of you lovely other folks at different stages, I am reading through your posts and sending positive vibes.  xx

Fairie
Member

Re: June 2021 Chemo Starters

Dear Trowster

I cannot believe the difference from 14 years ago. You / I and many others cannot forget how awful it was back and we were expecting the same ! But No! Things have advanced my lovely! 
If you feel even the slightest urrrrg feeling , which I have just once or twice especially if I’ve not eaten a little regularly just take a tablet and it’s all forgotten.

I have learned to eat little and often 

naughtily prawn cocktail crisps for flavour and muffin with marmite - weird but does the trick xxx