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MAY 2021 CHEMOTHERAPY STARTERS

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi all May starters,

I hope it is OK that I join this forum as I am not in the UK. I live abroad and get treated there.

I am starting chemo on 3 May: 4 cycles of EC every two weeks followed by 12 weekly paclitaxel. Not really what I had in mind for summer holiday plan;-)

So far so good, I have managed and recovered quite well from two conservative surgeries removing three tumours and two lymph nodes.

I have even been able to train again. I love trail running and I have just came back from an ACL surgery in October 2020 (2020 and 2021 are not really my years on the health front but it is the same for the rest of world with COVID-19). Running in the forest kept me sane the last two months since I got to know that I had BC. 

I am hoping that I will somehow be able to run through chemo and I am looking forward to starting chemo, despite being scared. Each passing day will take me closer to the end of it but I am scared because it does not matter how trained and healthy I was before the BC, I don't know how my mind and body will cope with chemo. The list of side effects seemed never ending when I got through it with my nurse. But I try to stay positive and enjoy all the positive moments for now, like spending more time with my kids, cutting my hair short, my first wig fitting ever on Wednesday.

On Thursday, I will get my PICC-line and things will start to be real.

Take care and stay safe

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@noodledoodle I hope you have made a good recovery from your surgery. I have some cording but it's improving with daily exercises.

My lymph nodes were clear and I'm told that there is no evidence of them ever having any disease which is positive news. I will finish with radiotherapy too but hopefully just over 5 days. I am on the ROSCO trial which is why I started with 4 cycles of Docetaxel. My tumour was HER2 positive and in addition to chemo I have Herceptin every 3 weeks x 18 cycles which takes me up to early December. I will then have other meds to follow.

I found the members of the December thread really supportive and it's been a huge help in getting through my earlier chemo. I'm looking forward to getting to know you and others as we add our posts. 👍

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

I have had a WLE and sentinel node was clear but my tumour is triple negative, grade 3, so will need chemotherapy, unfortunately, followed by radiotherapy. Seeing Oncologist on May 5th

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

That’s great! All tips and help welcomed. Much better timing on the May group, for end of April start. Good luck and I will be joining you soon!

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi there,

I hope you don't mind me joining this thread as I am starting 4 cycles of FEC chemo on 29th April so May is a better timescale.

I must tell you that I am also on the December 2020 thread as I started 4 cycles of Docetaxel chemo which finished in February. I then had a lumpectomy and sentinel node removal on 25th March.

Unfortunately for me, it has been decided that I need further chemo as the tumour that was removed still had 4mm of residual disease.

I tolerated the first lot of chemo quite well but don't know how FEC will be. I'm hoping it will be no worse than I have already experienced.

Maybe I can contribute some useful tips in exchange for mutual support.

I look forward to hearing from others. x🙂

Poacher65
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Have my wig appointment next Thursday as I do like a plan B 🙂

Waiting is hideous ...now feel a little more in control. 

Speak soon xxx 

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Poacher65

Glad your appointment went well. You will do fine I posted on here as I am sure others will be joining before long and Mai17 has posted some really useful advice and links.
The Becca app is great, with some good links to various sites, nutrition, recipes, make up etc 
I am not having the cold cap but have some nice headscarves at the ready. Also my daughter persuaded me to go and try wigs and made me an appointment. I thought I would never be confident enough to wear one as you would be able to tell. How wrong I was! It’s fab. It liked so like my own hair, but with lovely subtle tones in, that I left it on and went out for lunch in it! You could give that a go , just in case. You would be pleasantly surprised. Once I had chosen, she cut it in exactly the style of my own. Even I couldn’t tell 😂😂

I bet you feel a bit better now the treatment plan is underway. I think all the waiting at the beginning is the worst. I have a window of 10 days now, so will try and get as many things done as I can!

speak soon xx

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Mai7 

Thankyou. This all will be so useful. Xx

Mai7
Community Champion

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi and welcome to the May chemo starters.

Im sure others will be along soon.

You can also ask the nurses on this forum if you have any concerns.  In the meantime, the top tip is always to stay well hydrated throughout chemo, aiming for 2 litres of water per day and get a thermometer and check your temperature every day.

 

Here is the BCN guide on chemo:

https://breastcancernow.org/information-support/facing-breast-cancer/going-through-treatment-breast-...

 

Here are some apps which can help to keep you on track: 

 

https://breastcancernow.org/information-support/support-you/becca

 

https://www.nhs.uk/apps-library/owise-breast-cancer/

 

https://www.careology.health/

 

I finished my chemo in October 2017 and doing very well again now.  Here is my story which has some chemo tips on how I coped which were collectively shared from others who had gone through the same from this forum:

http://lifeafterlola.com/


If you decide to set up a private group its good to stay on here also during treatment as I know from experience there are some people who watch but don't immediately pluck up the courage to join in.  Your conversations can be a real comfort to others.

If you’re new to the forum, here’s the “Getting Started” advice:

 https://forum.breastcancernow.org/t5/How-to-get-started/bd-p/welcomegetstarted

 

noodledoodle
Member

MAY 2021 CHEMOTHERAPY STARTERS

 

Hi, just thought I would start a thread to support each other through chemotherapy, whoever is due to start in May. 

I have an initial oncology appointment on5th May, so should be starting shortly after. I have been told I will definitely lose my hair, so my daughter persuaded me to look at wigs! I went open minded but didn’t think they were for me and thought I would never be confident enough to go out in one. Wow, was I wrong. It looked so good and so like my own hair, I asked them to leave it on for my day out and lunch. My Hubby didn’t even notice it was not my own hair!! So glad I went. 
Hopefully there will be a few May Chemo starters out there to join this thread.