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MAY 2021 CHEMOTHERAPY STARTERS

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Carmen Verandah Your message was exactly what I needed to hear today. There is an after. Thank you😘

I just come out of an emotional two day post steroids. As with the first round, it really took me down in  dark places. 

Yesterday I found so hard to cope with my youngest energy level (she is pretty intense, so am I usually) and it broke me to feel upset with her with her questions, demands and wishes for attention and play. I am so ashamed as it is not her fault. 

All the uncertainties about the future left me empty and raw. I have never felt so vulnerable and broken in my life and it scares me. 

Carmen Verandah
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Dear May Chemo Starters

I eavesdropped on your forum which I saw when looking for the latest posts on ‘my’ October forum and it made me think about how I was feeling before I started. I wanted to wish you all good luck in the coming months. I am now out the other end after 4 x EC, 12 weeks of paclitaxol, 15 days of radiotherapy, and just starting on letrozole and biphosphonates. It’s a long road with ups and downs but you will get there, one foot in front of the other. I found the forum a lifeline as you can say how you really feel without having to protect your nearest and dearest.

I found the hair loss really tough but found a great online shop Simply Wigs. They have photos of customers wearing some of the wigs so you get a better idea. Mono filament, lace cap is the way to go as they look like you have a parting and hairline. I finally chose a short white asymmetrical style with darker roots and no one knows its a wig. The good news is my hair started to grow back about 7 weeks after chemo and now I can almost see it growing, plus eyelashes and eyebrows. There also serums you can buy to strengthen these, not sure if they work but my friend bought me some. My nails took a beating but are slowly growing back.

I felt okay for the first four months but did then get very tired, so looking back I should have rested a bit more, so that would be my advice.

Wishing you all the best and reassuring you that there is light at the end of the tunnel.

Carmen 🌞🌸🌼

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Happy Saturday! 

I had my pic line put in on Friday, chest x-ray, bloods and ECG at the cancer unit.  The nurses were v reassuring and  I'm now good to go for my first chemo on Monday.  A relief to get started.  @noodledoodle that workshop sounds wonderful!  I'll definitely sign up I could really do with some help in the makeup department anyway! 😂 I had wondered about getting my eyebrows microbladed but left it too late.  

I hope you all have restful weekends ❤️ it's great to be part of your group x

simplyeve
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@noodledoodle  sounds like you are really rocking it with your shaved head and dark nails!  Thanks for confirming no gel, I will go and buy some myself and take it to the salon before I start my treatment.

So glad that you enjoyed the workshop too, I did have a look at the site and as there are plenty of times to choose from thought I would wait until all my appointments were sorted before signing up for one.

Wishing everyone in this group wherever you are  a relaxing and uneventful weekend.  

Lots of hugs ladies. xxx

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi all,

I have just done a makeup workshop with look good feel better and would highly recommend:

https://lookgoodfeelbetter.co.uk/?gclid=EAIaIQobChMI7pWGkYfb8AIV0LvVCh1R0AZXEAAYASAAEgK3kfD_BwE

It is free with loads of good tips and advice on applying makeup when your eyebrows and eyelashes have gone and looking after your skin during chemotherapy.

Its not worth buying any extra makeup products to join in. just use what you have as they will send you a bag with a lot in after the workshop.

Didn`t recognise myself when I had finished!

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@simplyeve 

Lovely to hear from you. So glad you have a plan of action. I too am having radiotherapy And biophosphonates after chemotherapy. As I understood it, the biophosphonates are given as an infusion every 6 months. My mum also has these as she has osteoporosis and hers are given this way. 
I read about the dark nail varnish and have black nails at the moment! it did say NOT gel though  

I paint a good vision at the moment with my black nails and bristley head😂😂 although my shaved hair has started to deplete slowly as from yesterday!  lt felt good to shave it off though. One less thing to stress about, and was used to the new look before it started depleting, although everybody’s different. 
Doing an online makeup course today for chemo patients, which should help to draw my eyebrows on properly when they disappear. Think I will come out of all this high maintenance!
I am on Day 12 of my first EC and feel fine  just get intermittent fatigue which is relieved by some form of exercise, usually a walk. Have another week of reprieve, so going to make the most of it, before my second round. 
So good to see @Love running and@Poacher65 doing so well with round 2. Gives me hope 🤞

Best wishes to those just started, and about to start chemotherapy . I am sure it won’t be as bad as you think.

keep up the good work all you guys. 💪 

 

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok sorry I meant to say that I do plan to do the cold cap just in case I'm one of the lucky ones it seems to work for! X

simplyeve
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

 

Hello Ladies.

I know I haven't been commenting much, but I have been reading all your posts and think you are all doing amazingly well. It's great to read that those of you on your second treatments are coping better and that by telling your team your problems they have managed to adjust your medication accordingly. It's also quite nice that a lot of you seem to be having similar medication so symptoms can be shared also it seems you are all managing to get over your treatment before starting the next cycle great positive for those of us waiting to start.

Well yesterday I went for my Oncology appointment, I knew I would be having TCHP but wasn't sure how many cyles, anyway I need 6 cycles (3 weekly) then will continue to have another 12 cycles of HP (3 weekly) once recovered from chemo follow on with 5 days of Radiotherapy for three consecutive weeks, at some point he will add in the Hormone therapy probably with the radiotherapy, but these are long term for 10 years. I will also have Zoledronic Acid every 6 months for 3 years not quite sure when it will start of how it's given, think I was losing the plot by then.

My oncologist was lovely and has explained the Chemo in detail and will go over the other treatments at each stage as he said there was far to much info to take in fully, I have to say by the time I came out my mind was totally blown, I had also asked permission to take my husband along so it was lovely to have the second pair of ears, I have my first treatment over 2 days, have already got my prescription for the dexamethasone and lansoprozole which I have to start in the morning of my first treatments which will be Pertuzumab on its own, then the following day I have the TCH, I continue with the dexamethasone up to day 3, the lansoprozole I take daily and will get a 3 weekly prescription. Then on day four I start some injections in my tummy which are done daily for 7 days, not quite sure what this is but think its to boost white blood cells? Does that sound right? I need a heart scan before I start and also need a dental check up as have broken tooth so my first treatment is not scheduled until June 15th, so I'm sorry to say I will now look at joing the June Chemo group, that's not to say I won't keep following your stories Ladies I most certainly will as I think this group are so supportive of one another and you are all so positive and have a great sense of fun.

In the meantime I have got a dental appointment for next Wednesday, made my blood test appointment locally for the 14th and have got a lymphodoema clinic appointment on 11th June. Oh and went for a haircut today too, so have got a short style which I haven't sported in years, so far the overall impression has been good, but not sure that my 2 year old grandson could quite get his head around my new look, but at least he recognised my voice lol.

A couple of things I picked up from my meeting that might be useful was that the steroid tablets are better if taken at breakfast and lunch to try and avoid the sleepless nights and I was told that painting my nails 💅 a darker colour was often a good thing, so mentioned it at the salon today, they only do gel polish so need to check up what is best to use, but if I need to I can buy my own and take it in they will do my nails for me so I will have a nice professional finish.

So that's me nearly ready for treatment and as I have a few bits and pieces going on I am hoping the time will pass fairly quickly.

Sending everyone big hugs, stay strong Ladies and you will be over and done sooner than you think

@noodledoodle may have to steal your photo of the big pants, just loved it.  

xxx

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Coastal sorry realised you are not having the cold cap ! My head is all over the place ..... I have the chance to try so I will give it a go x

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Coastal Thats just what I thought 8 😳..... I will be checking how you get on and also with the cold cap .... good luck x

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok many thanks!  I wonder how they decide whether to do chemo first or afterwards.  8 sessions seems a huge amount can't really get my head round it.   At least I guess they are throwing it all at us! I'll be pleased to start ticking the sessions off! ❤️

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Poacher65 thanks! That's great to know take care tomorrow ❤️ xxx

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Thanks @Love running it's so great to talk about it to others who are going through it.  My family are all lovely but I don't like burdening then with it all the time.  

The medical team have all been very good so I feel like I'm in good hands.  I've decided to just put myself in their hands and hope for the best really. I'm a real worrier naturally so have been on high alert since the diagnosis - not a good state of affairs!  So difficult to stop my mind working overtime catastrophising.  I ended up seeing the gp who gave me some antidepressants which has helped.  I think exercising more would help, I'm going to try to keep active during chemo at least a walk every day. Thanks for all your wise words ❤️

Poacher65
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Coastal I have everything crossed that it works for you.....if not you'll rock that blonde look 😍

I'm a redhead so getting wigs that colour is a challenge but now I know my hair is going I'm going to look for a real hair one in my colour. 

Take care and hope you realise your certainly not alone....you have us too xxx

Poacher65
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Thanks @Love running for the anniversary wishes ❤

Hair loss beyond salvage now so my lovely kind husband going to shave it off on Saturday....there will be tears but less stress once its gone. 

9am start for my 2nd chemo tomorrow...so will check in with you all soon.

All of you take care xxx

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Thanks @Poacher65 that's really reassuring.  I've got a v supportive partner and sister but still feel v alone in it all.  Good luck tomorrow with your Ec, the hair issue is so hard, I've had my hair cut short to psychologically prepare me for losing it but know I'll find that difficult. The hairdresser was at the cancer centre and had also had BC so was v supportive.  She said that the cold cap worked on some of her clients.  I'm going to try it just in case it works but have also spent lots on a wig, silk scarfs and variety of hats as back up.  I have rather dry curly brown hair but decided to go for a long straight blonde hair wig! It looks rather fab although totally not me! Makes me laugh when I put it on which is good!   I hope all goes well for you tomorrow ❤️

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Coastal that sounds very similar to mine also in the nodes but I am having chemo first then the op also having 8 sessions 😒......hope all goes well on Monday x

love running that’s true enough we take paracetamol but if we read the info you would think twice before taking it 👍x

take care everyone x

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Poacher65 Just wanted to wish you good luck for tomorrow and happy anniversary. 

Sorry to hear cold capping did not work out for you. It was worth a try.  I have no words of wisdom, except that when I imagine myself bald, I hope to look as good and fierce as the black panther warriors in the Marvel movie. We ladies will be a little army of bald strong warriors that will be this beast. I will join a course to learn to use make up to own this new look. 

Mine are starting to fall too (pillow case and shower😩). Not so obvious yet as I cut them very short 4 weeks ago, so I will enjoy the few coming days. I thought I was ready for the bald look but It is more emotional than I anticipated. I have still not been able to try my wig at home. Not ready yet. I will probably go for a shave in the week-end trying to make it fun with the kids. I bought colored hair spray and told them they can have fun with my hairdo. 

take care

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Poacher65 @Just wanted to wish you good luck for tomorrow and happy anniversary. 

Sorry to hear cold capping did not work out for you. It was worth a try.  I have no words of wisdom, except that when I imagine myself bald, I hope to look as good and fierce as the black panther warriors in the Marvel movie. We ladies will be a little army of bald strong warriors that will be this beast. I will join a course to learn to use make up to own this new look. 

Mine are starting to fall too (pillow case and shower😩). Not so obvious yet as I cut them very short 4 weeks ago, so I will enjoy the few coming days. I thought I was ready for the bald look but It is more emotional than I anticipated. I have still not been able to try my wig at home. Not ready yet. I will probably go for a shave in the week-end trying to make it fun with the kids. I bought colored hair spray and told them they can have fun with my hairdo. 

take care

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok I know, my nurse did the same before I started chemo, after one hour with her telling me all the possible side effects I was wiped out.

My hubby who works in the pharmaceutical industry reminded me that all possible side effects (from the most common to the rarest) are also mentioned on the medication leaflet as a precaution but seldom, you get them all and especially not all at once. It is for safety. Still it is scary at first. If you can, try to not think about it.


We are supported by competent medical team that will help us to reduce the side effects. So far I was lucky I think as they helped me between round 1 and 2 and I coped much better with round 2. Now I am at Day 4 of round 2 and I am feeling ‘normal’ again except my hair are falling.

keep strong. 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

welcome @Coastal @to our group.

I know the whole journey is scary (been diagnosed in February, got two surgeries, got my second round EC on Monday). You will have good days and bad days but you will be surrounded by very competent medical team that can help you go through it. For example, they reduced the dose for me and gave me another type of anti sickness meds to better cope and it worked well with my second round. I also find that physical exercises hep me to fight against the fatigue and give me more energy (which is great as I have two energetic kids).
Also, this group is always very supportive and together we will help each other to go through this journey. 

Waiting is the worst. Believe me patience is not one of my quality... and I am counting down the days to hopefully the end of it. 

I have not tried cold cap (not offered here where I am). Few in the group have tried and can give you advice. I went for the short hair cut 4 weeks ago to get use it it and now  they are starting to fall off. I am probably going to shave my head this week-end. I have bought a wig, beanies, caps and scarfs and I will use them depending on my mood.

Stay strong, we are here to support you

Poacher65
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi Everyone 

Hope you are all doing OK.

@Coastal welcome to our little group. You will find strength to get through this with good and bad days but we are all in this together so are here for support and encouragement ❤

My 2nd EC tomorrow at 9am...hopefully i will cope as I I with the first dose. 

My hair situation is getting worse...now have lots of bald patches and it's very very thin to the point where I can't hide the bald areas so wearing a bandana most of the time as hair also falling out onto everything!

Spoke with my nurse yesterday who suggested I have cold cap again tomorrow and see what next week brings. 

I am more or less at the point of admitting cold cap not working for me and taking control of my hair loss and shaving it off. I'm strangely resigned to that but upset too. I absolutely do not regret trying cold cap and would encourage everyone who wishes to try to keep their hair to try it....it was easy to tolerate for me....just not worked unfortunately. 

Any words of wisdom for me on the hair front? 

Have a good day all...take care xx

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi I'm starting chemo on Monday and would love to join your group, I hope it's not too late in the month?  I was diagnosed in march with grade 2 BC hormone positive, her neg, had the op and found out that it was actually grade 3 with 4 lymph nodes involved ☹️ I've been v anxious since the diagnosis and found the whole waiting experience v hard.  I'm having a pic line put in this week then start on Monday 8 sessions every 2 weeks EC and paxitaxol.  I'm going to try the cold cap.  V scared but know it's something I've got to do.

Best wishes Nicki

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Morning all it’s nice to here you are all improving a little ... my nurse rang yesterday, talked me through the horror story of what can and cannot happen 😳but hearing that you are all doing ok helps . I have my first session next Thursday and have chosen to give the cold cap a go as I would only have to have it 4 times as my next 4 with a different mix don’t make the hair come out .  Love to all x

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Karden

Good luck today with your 2nd round. Good to hear that your mouth ulcers are almost gone and they have adjusted your dose too. 

Lots of strengths sent your way💪🏼

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running I'm so pleased to hear that you're having a much easier time. It sounds as though the lower dose is better for you.

My mouth ulcers are almost gone and no longer painful and my oncologist will reduce all 3 FEC drugs which should prevent a recurrence. My 2nd Chemo is tomorrow.

Hope everyone else is coping well. Sending hugs and best wishes. 🤗

 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Good morning,

How is everyone today? Just want to wish you all strong ladies a very good day.

Day 3 following my second round EC and I start to get my head out of the clouds. This second round has been much gentler on me than the first (lower dose and new anti sickness meds). I hope it will continue uphill from now until next round. 
I hope you are coping with your treatment and getting better, lots of rest and well deserved peace. 

Keep on fighting! We are strong. We can beat this. 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@coffeeandcake 

I have also taken Pelgraz and been told that bone pain can occur especially leg and lower back or even the rib cage.

To shorten the neutropenia, Pelgraz boosts the bone marrow to produce more blood cells. 

I have got some pain last week after my first round but it was more like training aches. This was in turn bad as my blood count was very low after the first round. 
I have found that gentle Pilates exercises helped me (I think) with them. 

I got my second round yesterday and it went smoother last night as I got a lower dose and new meds. But I need to take my Pelgraz shot today, I will let you know how it goes. 
 I hope your bone pain is manageable and will ease soon. Our body and mind are strong. We are strong! 
take care

coffeeandcake
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Has anyone experienced bone pain setting in after the chemo? I’m on day 7 now and my thigh bones are starting to hurt a little. I took the Pelgraz injection 24 hours after my first EC last week and have heard it’s that injection which causes the pain as the bones are hard at work making new bone marrow x

coffeeandcake
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running  I hope today went ok for you x

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi Karden thanks for that I will ask the question , I have a heart scan next mon but still not heard from chemo yet , I am really trying to enjoy our holiday for my husbands sake BUT it just doesn’t go away 😞x

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running I hope you continue to feel reasonably well and that the nausea stays under control. Keep taking the meds and don't let it beat you. 

It's surprising how much weight you actually lose when you can't eat properly! 🥺🥺

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok  I will also have a total of 8 cycles. The first 4 were Dec to Feb (Docetaxel), then a lumpectomy and sentinel node removal. I then started again on 29th April for 4 more cycles (FEC).

I am on the ROSCO trial though and this is what happens, is anyone else on a research trial?

I know that everyone has personalised treatment depending on their own situation but maybe ask your oncologist why you are on 8 cycles?

Sending best wishes. x

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Karden Thank you for your encouragements 💜. I am ok for now, light head but nausea has not kicked in yet. Crossing the fingers. 

I really hope your mouth ulcers will heal and you can get some peace and food. I hope they can adjust your next round on Thursday to be gentler to you. They did it for me this round. The weight loss is an issue - same here. 

take care - let’s keep on fighting. Have a lovely evening.

ClaireS1978
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Purpledaze 

Thank you for the welcome.

Extra hugs on emotional days sounds like a good way to help 🙂 I hope everything goes ok for you on Wednesday x

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Morning Good luck for today hope all goes well ..... I have got to have 8 sessions 🤷‍♂️Is that unusual..... I want it to start but I am dreading it ....... take care everyone xx

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Loved the photo @noodledoodle , thanks for making me smile.

I still have mouth ulcers but I think I'm over the worst as the pain seems less and I'm managing to eat a bit more. I have lost 3 pounds in weight but I wouldn't recommend this weight loss plan to anyone! 😟

I'm going to the hospital this morning for bloods and Covid swab and then 2nd chemo on Thursday. I must admit that I am anxious knowing that I still have the mouth ulcers but hoping that it can be improved by having a reduced dose. My telephone appointment with my oncologist is tomorrow morning so I will ask what can be done. I have read that all 3 FEC drugs can cause them.

@Love running  I hope your 2nd chemo goes well.

To everyone who is struggling with side-effects, hang on in there, it will get better and we have to remind ourselves that the tumour is under attack!

Welcome to new members, you will find this forum an amazing source of support. 💜

To those who are feeling quite normal again, enjoy it and find nice things to do.

Xx ❤️❤️

 

coffeeandcake
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

I hope you’ve all had a good weekend. Good luck to those having treatment this week and positive vibes for those feeling a bit rough x

worriednow
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hello lovelies

yes the first chemo is done . Not doing good today . Since it’s bone mets I have achy bones. But I have to go through this chemo for my tumour to shrink so will carry on hopefully . Lots of virtual hugs for all of you 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@noodledoodle thank you for putting a smile on my face. Love the picture.

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Good night everyone,

I hope you had all a nice/nicer/nicest week-end. I wish that the coming week will bring you peace, rest and normality in your lives. 

Tonight, I will gather the strength, fight the anxiety and let the fear tears running down. 

Tomorrow, I will go for round 2 of 4 - this means 50% of the first part of journey will be soon behind me and I will get closer to the end. 

Sweet dreams to all of us 🌺

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Poacher65 I wish I could give you a bear hug - so here comes a virtual hug. 

We got this and we will go through it - and yes we will cry a lot and we will be angry. But we got this!!!! 

We will keep on fighting and we will be stronger at the end of this journey.

'This is only temporary, love yourself through it' - Lalah Delia (another good quote I liked)

 

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Poacher65 

Tomorrow is another day! I think we are all emotionally unstable at the moment and no wonder! We will all come out the other end stronger and more appreciative of the simple things in life. Until then:

noodledoodle_0-1621188297631.png

 

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running 

You are so right about the positives of this horrible experience, it certainly makes you appreciate the wonderful little things in life that passed us by before. It is definitely a positive!

@Purpledaze well done on the hair!  I certainly don’t regret it, although will be glad when the bristles have gone😂😂 getting quite used to my wardrobe of scarves and wigs. 
I am on day 7 of chemo one and have felt quite normal today. Enjoyed lunch out in the sunshine, a nice walk and an online exercise class ( took it gently!). Exercise definitely boosts the spirits. 
Highlight of my day tomorrow is a Picc line flush and dressing change😂😂😂

Just glad not to be taking those shed load of anti sickness meds and steroids for a while. 
Take Care everybody and hope all of you are okay xx

Poacher65
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi Everyone 

@Purpledaze @Love running 

Had a rubbish day today emotionally. Feel so sad and angry this is all happening. Cried on and off all day which has just made me cross with myself. Big girl pants required😊

Anyway, tomorrow is another day!

Hair situation not looking hopeful...had cold cap but lots coming out today, going to keep going with cold cap and see what round 2 brings this next week. I have very thick hair so no one would know any had come out but its awful everytime I touch my hair some comes out. It's the weekly wash which my gorgeous husband does for me and I'm dreading it ...seeing it all come out in the bath. Maybe I'm being over dramatic and need to be more positive as they did say it would thin a lot even if I kept my hair. 

Anyway, enough moaning....I hope this next week goes well for all of us....Will post later I'm week as working so may not get on the Forum much. 

Stay strong....'we've got this' xxxxx

Purpledaze
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hello everyone, I hope your Sunday is the best it can be for you!

@Selma59 sorry to hear you had such a difficult time on your first chemo! That sounds really tough.  I hope you will soon start to feel less sick and a bit stronger.  Your son sounds like he is a great support.

Like you I had a lot of sickness (but no heartburn) that started on the same day as my chemo; I had also been given some antisickness (ondansetron) & steroids before the chemo but was then told to start with these at home from the following day, so I didn't take any more on the same day.  I don't think that worked for me and I will talk to my doctor/nurses about my antisickness meds ready for my next chemo this week.  At the time I called my rapid response line and they were really helpful.  I've called them any time I've felt unsure or worried about my symptoms, and they really help me.  I really hope that you can discuss your side effects with your medical team/doctor and get the right meds for you.

@coffeeandcake I'm also having EC every 3 weeks. Didn't know it could be given more frequently, that's interesting. I will ask my doctor just out of curiosity to see what he says about this.  However, I'm happy and confident with my clinical team and the treatment they have proposed for me up to now.  I've also just had my portacath fitted (Friday) and am due bloods on Monday and then chemo #2 on Wednesday. It's still sore today, so I hope it will be ok by Wednesday at least, or I think my veins will go on strike! 😂

Welcome to the forum @ClaireS1978 , sounds like we are in sync: I had my port fitted the same day as you and will also be having chemo on Wednesday. I'll be sending lots of positive thoughts your way!

I've also had some emotional moments, some come out of the blue, and others I understand more why I feel that way.  Like others have commented, I think the steroids made me more tearful, but to be honest I think the pain, uncertainty and anxiety that we are facing is enough to give us reason to cry!  I've told my husband not to worry if I cry, but just to give me an extra hug.  I know it's a cliche, but I do feel better after bawling my eyes out - like a kind of release.  As long as my crying can stop (and it does), then I figure it is therapeutic for me and "better out than in"!

I hadn't heard of Jennifer Young products - you make them sound good, so I will check them out as my skin does feel drier and itchier since starting chemo.

@worriednow how are you feeling now since your chemo?  Hopefully things are going ok for you 🤞 Sending a big hug

@noodledoodle your comment about 'bristles' re- shaved head made me laugh - I can't get over the bristly feeling and it's such a weird feeling when my head is on the pillow 😂 

@Poacher65 I can imagine your disappointment about having to have chemo on your anniversary!  I wish you a symptom-free rest of that day (at least!) so you that you can spend time with your husband doing something nice to celebrate. And if side effects mean you just don't feel up to celebrating on the day, perhaps you can be distracted from how you are feeling, thinking and planning what you will do to celebrate later when you feel better.

@Karden have been thinking of you and hoping, hoping, hoping that your mouth ulcers are on the way out and causing you less pain!

Take care everyone and may next week go smoothly for us all 🌼 xx

 

Purpledaze
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running your balcony sounds like an oasis!  There are signs of life from the radishes I planted, so there's hope yet! I'll let you know when I eat the first 'harvest' - hoping it coincides with a good day when my appetite is up 🤞

I ended up shaving my hair off last Thursday - I think I could have lasted a few more days without the hair loss being very noticeable, but it was annoying me to have hair coming out in my hands / brush every time I touched my hair.  My husband helped me shave it all off - we really laughed and laughed!  It feels good now but much colder!  

I'm so glad to hear you've been able to keep up with your running! It sounds like it has been a big help for you physically and emotionally.  I hope my next cycle of chemo is similar to this one, and I feel well enough again in the second half to go for long walks with my dogs.  I've had to stop this weekend as I'm too sore from the Port insertion - nothing serious, but feels better to keep still rather than moving about too much. 

Hope your Sunday has been good x

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Purpledaze I would love a large garden (and a house actually) and my kids are begging for a dog every day. We live in a flat, so no garden and no dog (for now). 

It seems that we are the same type of gardener you and I. I have put some many seeds in the same pot (there were so tiny) that now I have a mesh of salads growing together. 😂😂. This afternoon I am going to try to separate them to replant them. Been a bit more successful with the strawberries which are blooming. The hopes are high to have some to eat by mid-June or end of June (I am in Sweden). The kids are so excited. My coriander and mint are growing like wild grass, and my basil and chives are getting there. 

Like you say, it takes you mind off chemo and it forced to look up recipes to use all these herbs in the future.

I wish we could exchange and share our production😀. Keep you posted of the progress.

Otherwise, how are you doing? you were saying that your hair had started falling off and you would go for a shave. Have you? I had cut my hair short before and now at Day 14, there are still there. They have not fallen yet (few here and there) but expected it soon (no cold cap either). 

Have a lovely Sunday and see soon

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Selma59 I am so sorry to hear about your first chemo session. Sounds dreadful. I hope you will feel better soon. I am glad you get help from your son.

I know that we all have different schemes and protocols to follow but I am a bit surprised that you have not received anti sickness meds before the infusion. I have to take anti sickness meds 1-2 hours before I take the infusion (27 pills in total including betametason, Ondensetron and Emend), then fewer pills for another 3 days. I am changing a little the meds for my second round, my oncologist is trying to reduce the nausea from the first night. Hopefully it will work out.

Thank you for your explanation on the every second week versus the every third week. I am doing every second week and like @Kitkat23 was saying, I am under 60 (mid 40 going closer to late 40 actually😅). I trust my medical team to know what they do and hope my heart will not get affected. I met my oncologist on Friday and she said that they will adjust my second round as I lost weight and my blood count went too low down after the first one. 

I am quite the sporty type and I am very much into running. I hope that when all this is over, I can get back fully to trail running. I have read a lot about physical activities and chemo and it seems that it does help against the side effects and also it might prevent relapse. My oncologist also encouraged me to continue to exercise. As she said, you know you body best, so listen to it and adjust the intensity. This is positive! I will try to continue to run through chemo, even if it is only short and slow stretches. I will enjoy and cherish them all. I have focused all my strength the last 2 weeks into getting some kind of physical activity every day: minimum 30 min to raise my pulse (walking, biking, Pilates and running). I can say it did not make me feel worse, instead it gave me more energy. I also believe that it helped me a lot with the muscle/bone pain following the injection of GMCSF, as it was not bad (more like training aches). I hope it will stay that way for the rest of the rounds.

This week, I felt 'normal' and yesterday morning I managed a long slow run which I really enjoyed and I am so proud of. It was early in the morning in the woods, I encountered few deers and listened to the song of the birds (even heard a woodpecker). Pure joy! I almost forgot that I had BC and I cried of joy at the end. 

You are asking about the steroids - I agree that I felt more vulnerable for one or two days after stoping them and on the edge of crying few times. I cried watching the news on TV. I allow myself to cry any time to get rid of it inside. I cried at the end of my run too...

Keep on fighting, better days will come. 

 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Poacher65 ❤️ I hope you can do something special with your husband on your special day. Whatever it is.

You are right, we are lucky to have them. I also have a very supportive husband. He actually reduced his working time to 80% so he can get the Friday off to help out more home and with the kids but also to be able to spend time with me when I need it the most. The first Friday he was off (one week post treatment), we went biking in the forest and had a lovely coffee by the water. In our busy lives, we never took the time. Something good with the situation. Feel blessed.