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MAY 2021 CHEMOTHERAPY STARTERS

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok good luck for a Friday, I hope they can’t see anything on the scan! I hate weeks like that where you seem to spend more time in hospitals than home, and most of it waiting around. Hope all appointments go well. X

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Love running … that sounds perfect if and when I get hooked up today I am going to message and book a pedicure for end of November as she gets booked up fast , give me something to look forward to ….. glad you are sorted now 👍what a day 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok 

I am hooked now… just another 1h30 to go. 


You said pedicure, omg yes, I would too love that.  My feet and toe nail look hideous. 


After radiotherapy, I will spent all the money I saved on hairdresser and hair products, and on drinks and spent it on a super duper dos weekend. There is this Japanese spa in Stockholm with outdoors hot sources and dry and wet sauna. I will get all the possible massages from head to toe.  I am so going to treat myself. 

for now I will nap dreaming of it but not before I went yet again to the loo

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 

You are right, the French protests for everything and nothing. Too warm, not warm enough, too mild, too cold…

This is the latest type of protests by the same people from March 2020 to now 

- We want face masks 😷 - out with the gouvernement 

- We don’t want to get covid, close the schools, the borders, the restaurants…and let us work from home - out with the gouvernement 

- We don’t want to stay home, we want to go out, open the restaurants -out with the gouvernement

- We want to meet our colleagues - open the office again- out with the gouvernement 

- We want to travel, open the borders - out with the gouvernement 

- We are no teachers, open the schools - out with the gouvernement 

- We don’t want to wear face masks anymore- out with the gouvernement 

- We don’t want to get vaccinated, the vaccine is a hoax for pharmaceutical to make money - out with the gouvernement 

- We want to go to the restaurant without face masks and without vaccination - out with the gouvernement 

Liberté liberté - out with the gouvernement 


It is insane!!!! My countrymen are sometimes a bit over of top (I weight my words🙄)

 

 

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Thanks Michelle no sign of mine yet either 🤷‍♂️…Unlike love running my egg and Mayo sandwich was rank couldn’t taste anything …. Earliest I will be out is 5 😱….hey oh if it’s target blasting for Boris I hope my MRI I have on fri shows it getting the hell out !! Heart scan tomorrow ,3 different hospitals in Leicester this is such a fun week 😂

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Love running you hang on there 😁 …. I am the same with the bathroom visits drinking water ! I Am hoping I have a nap and dream of a spa massage and getting my feet done 😂

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 

I know, I thought the same. Is there some smuggling out of the country going on? So crazy! It is almost 13 o’clock here and I am still waiting.

Update: They found the driver and the pac, he left them at another hospital across town. Now they need to fix a new delivery 🚚 and that can take few hours. I almost offered to go and fetch it myself by tube (would take me 40 min back and forth). If I had my training gears, I would have gone for a jog to fetch it. Faster and safer I am sure. I am almost dreading that the new delivery will pick one of two other hospitals in town, that would be hilarious if not happening to me😂

The positive side, I went out to get some food and I had a super nice Indian take away:vegetarian sweet potato stew. I ate on a bench in the sun. 

@tiktok, I hope you got yours by now. 

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

I can’t believe you are both having to wait for your treatments, is there a conspiracy? Or a black market for chemo drugs?!  Definiste ly world the a protest @Love running I’m sure the French have protested over much less! 
You have to laugh or else you’d cry but jokes aside I really hope you both get your taxel’s soon. I’ve had to wait around before for it and it’s no fun, you really don’t want to be there any longer than you have to. I am keeping my fingers crossed for you both xx

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok 

No way, what are the odds? This is crazy!  🤪

Still here and still no driver (4h35 min, 200 ml saline, 5 bathroom visits later). I am not leaving until I get my treatment (I am French, I will protest😂)

If only I was at the spa… waiting for a full body massage. 

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Love running ….I am having the same problem my meds weren’t made on time got to go back at 11 ! The nurse told me last time I would only be here an hour , now they are saying till 4 wasn’t expecting that at all ….. I hope they manage to track yours down also 🙄

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok 

I know the feeling of being awake due to the steroids. I am like the Duracell rabbit on them… 🐇 🐇 going around and around in the flat.

Today is my first day without steroids (was looking forward to it) but might be also without paclitaxel (if they can’t localise the driver that goes around the city or the country with my drug). 🤷🏻‍♀️

I hope you are getting your treatment on time and that you will tolerate it. Good luck 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Good morning,

I need to share this.

I came to the hospital at 7:30 to have my blood test before my scheduled treatment at 9. Thankfully my blood values, despite being still on the lower side, allow me to get my 7th paclitaxel.

But the pharmacy has not delivered it yet… so I wait and meanwhile I get saline through the PICC line. 

Finally the pharmacy calls to say it is on its way.

But the driver delivered it elsewhere… What are the odds?

It is now 10:31 and I am still on saline…

And they can’t localise the driver…

Anyway, I hope the driver has not left the country with my drug 😬😬😬😬

I will get so much fluid in me today that I probably will run to the bathroom every 10 min.

Happy Monday to you all 

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

You amazing ladies …..I am sorry I seem to have lost the thread lately and you all appear to be having different things to me which I don’t know anything about 😕…..poacher65 congratulations for getting through your last chemo and send you very best wishes for your future x

sammy73 it’s good to rant I hope you are feeling better and you are strong…Michelle 21 yes that bugs me 2 when they say I hope it goes well ! They certainly have no idea and you do get to know who your true friends are also . … love running you should be a writer to could write an amazing book about your journey . , glad you are feeling much better I hope you got your 7th . …for anyone I have missed I am sorry it’s my first day of 8 steroids 🤨hence it being 3.30 am heading for my first docetaxel at 9 .15 ! Can’t wait for that 😱.

take care everyone xxx

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Good evening,

I wanted to write every day last week but just got caught up with school start for the girls. Both have now started and after 10 weeks holidays we had forgotten the routines (which is good as it means we had a good break). They are happy to be back at school. My oldest one (who turned 13 the day of school start - bad luck😥) has changed school and was nervous. She has to travel by metro on her own to the city centre. She also does not know anyone yet at school. I know she will be fine, she is strong. Her school is organising a outdoors event for students and parents to meet. I asked her if she wanted me to wear my wig (not done it yet) for this event, to not making it awkward for her in front of her new school mates.  She answered that she prefers me to go with my cap and my 'bald' head because she thinks I am cool that way. She does not care what others think. This brought me to tears. She is an amazing open minded teen.

I am a bit nervous about COVID-19, as all ages from 5 to 19 years old are fully back at school. No more distance learning and vaccination is only offered to teens from 16 year of age. There is a surge of cases in the younger population in the Stockholm region😨

Last week I finally got my 6th paclitaxel (although still below the threshold for my white blood cell count) if I combined it with 2 injections of filgrastim. Thankfully, I tolerated the injections well and very little bone pain. I have however started to have the tingling in the hands and feet (neuropathy). At the moment, it comes and goes, mostly during the night. It does wake me up. I also get very cold fingers, due to a quite low blood pressure. My nurse said that as long as it is not permanent, I am fine. 

I mentally felt so much better to be back on track and I was a nicer wife and mum this week 😎. I am hoping that my white blood cell count has been boosted with the injections and I can get my 7th paclitaxel tomorrow morning. Fingers crossed! 

Today I have officially reached my half way milestone. Only 6 more... To celebrate this, I start again dreaming about going to France in October and about a get away week-end with a friend at the end of September.

I see that you are nearly all doing to same, planning break aways. Nice to feel like a 'normal' person.

Good night - lots of hugs.

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

I have had my penultimate chemo, hooray! Just the final one next Thursday so I am keeping my fingers crossed it will go ahead as planned. 

@Poacher65 Although Chemo is almost done for us we both have a little way to go with our treatments but we will get there. Like you I want to put this behind me, again, move on with life and be around for years to come. 
@Sammy73 I am glad you have been able to rant here and get it all off your chest. I can’t think that many of us haven’t felt exactly the same at some point in the last few months. It’s good you are feeling stronger. We are also thinking of a break away in October by which time I will hopefully have had surgery. After my previous chemo & op we went to San Sebastián, it was so amazing to be away after all I had been through. 
@Love running your posts are so poignant. You are very good at phrasing how you feel and how lots of us feel. Each knock does make us more vulnerable but what choice do we have to be ‘strong’ this thing is growing in us and it is our life that will stay or go. This may affect others around us but ultimately it is our life and we have to do all we can to keep our selves fit and strong to give us the best chance of a good outcome. May your second half of chemo run smoothly for you. 

I hope everyone is doing ok and that any final hurdles aren’t too high xx

 

Sammy73
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running its amazing really, unless you have been there and done it, no one really understands. 

I was delayed twice, once for low blood cells and once for isolation and my whole world changed!!

Anyway I'm feeling stronger this week not looking forward to the next round next Thursday but I only have 1 more after that and then radiotherapy for 3 weeks, but planned a break,we have moved about 6 times,for October so will ask if we can have our break then start the radiotherapy. 

We are all nearly getting there ladies and yes it's been a long trip so far for some, my op was 13th april!! But also we all have a long journey ahead. Let's try and look at the nice things if we can. We've all come this far 💕

 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Sammy73 

We all need a good rant. I had a shitty week last week and I was plainly horrible to all around me (my husband, my kids and my friends). 

I got delayed one week in my paclitaxel cycle due to low blood count and got from everyone, it is just one week. One week is nothing! Look at you, you are strong, you can do it. You have made it so far and you continue to train... 

Yes one week is nothing when you have ordered a package and the post office is late, not when you have been in this S.... for 108 days since the first surgery and you know that you still have 7 weeks (in no more delays) of chemo, 5 weeks of radiotherapy, 10 years of tamoxifen...

Yes I am strong, because do I have the choice? No. I am strong because I am the only one that battle this thing inside me.

I was furious and angry with all of them... 

 

This week is better but I am more vulnerable than I was two weeks ago. 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Poacher65 Congratulations for going through your final chemo and good luck for the rest of the journey. I cross my fingers for your MRI and wish that the chemo has blasted the tumour to its smallest size.

This week, I also celebrated my friend Lin who I met at the oncology department, she also got her last paclitaxel. It is nice to see your fellow warriors and sisters making it to the next step or to the finish line. 

I have myself reached the 50% milestone and can almost see the light of the end of the tunnel...

Thank you for being part of my journey too.

Take care

Poacher65
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 @Coastal 

Thanks for the good wishes, they do mean a lot and I would love to stay in touch.

My original plan is that I'm having a therapeutic mamomplasty, so no mastectomy and I  know I am having some nodes removed just not how many. Have no clue what to expect post op wise, pain levels, recovery time, will I have drains? ....so many questions! I know I'm having 15 sessions of radiotherapy over 3 weeks after my op then tamoxifen for 10 years.....haven't had much info on those elements yet though and trying not to read too much as it's not worth the additional worry....ill wait for the team looking after me to explain the facts not the horror stories. 

Chemo hopefully being over is a huge relief...its not easy, I want to enjoy my food again, not be so tired, go in our hot tub with my husband and kids and I can't wait to get my PIC line out on Wednesdayand just enjoy a simple bath!!......but I still have other hurdles to jump so I plan to celebrate when I'm at the finish line with my precious husband,  kids and family and friends who have stuck by me throughout this.

I know none of us can never say never, and getting into remission is not a lifetime guarantee but I want to beat this and be around for years to come and I'll bloody well fight so hard to make it. 

Take care amazing ladies.....xxx

Sammy73
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Wow @Poacher65 

Congratulations for this bit and full support ahead for the next bit!! 

Any questions about surgery I have had a mastectomy and lymph removal so ask away, if you wish. 

Love of love xx

Sammy73
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Thank you @Coastal and everyone really. I needed a rant this morning!!

Feeling very emotional too!!

My poor man!! Hes great but looks to the good future to make things easier and better!

I'm in the now today can't shake out of it. 

Does this mean your last!! Wow. Well done you. Im sure it feels weird as it's still a hefty road ahead. Sending love xx

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Poacher65 even though you didn’t ring any bells I’m sure the thought of  no more chemo was a relief. Positive thoughts for your MRI, I hope you get good results.  
I think my surgery might be about a week after you but I don’t have a date yet so it would be nice to stay in touch for the next step. 
I totally agree, don’t sweat the small stuff, appreciate our loved ones and live in the moment. Xx

Poacher65
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hello all you lovely ladies.

@Michelle21 @noodledoodle @Coastal @Sammy73 @love running

I am Day 4 after my final planned dose of chemo...so in theory now completed this section of the book. I feel rotten as I have after all my Doecetaxal but I know it will pass so just plodding on.

It feels very strange..I didn't want to celebrate or ring the bell as it still feels like I have such a long way to go before I can start to think that I have beaten anything..

I have my MRI booked for next Tuesday 23rd August and have yet to see the oncologist and surgeon again to finalise my surgery which is planned for 16th September. 

I'm praying the last 3 chemo's have also done the job and shrunk the tumor even more as the first 3 did ...and done a good enough job on the lymph nodes so I don't have to have a total clearance...but I accept whatever I need and trust the team to make the right decisions for me.

I really want to thank all of you for allowing me the privilege of being part of your journey as well as helping me through this part of mine....and I wish you all the love, success, happiness and good health for your futures....we are all going to be on this journey for the rest of our lives and I have learnt more than anything to not sweat the small stuff, love those who are precious to you just a little bit more and live for today. 

I will continue to follow you all..

Lots of love xx

 

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Is that your final chemo @Coastal or do you have one more? Xx

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Sammy73 💐💐💐 yes it's a real bastard isn't it!  I'm so sorry that it's been harsh for you.  I couldn't believe how awful the first one was, but second one was definitely not so bad for me.  I'm at the chemo centre now waiting for the third one.  I also find it draining having to be positive to everyone, they all want good news rather than how terrible it can be.  I just seem to cope by ticking the sessions and appointments off my list.

Thank you everyone for your support and lovely comments, I'm sorry I don't respond as much, I do read everything though.  I don't seem to have to good days and then spend these working or with the kids.

Love to everyone XXX ❤️😘

 

 

 

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

I know exactly what you mean about wanting to shout about whatbwe are going through @Sammy73, It bugs me when I get sent a ‘hope it all goes well today’ for chemo when actually the treatment day itself usually runs smoothly it’s the SE’s over the next week that you have to deal with and just when you are feeling a bit more yourself it starts all over again! I guess no one has any idea what it is like to be going through this unless they have experienced it themselves, I don’t want my friends or family to have to do but it’s hard when no one really understands what we are dealing with.  
I hope your SE’s are less for the next 2 but you are right you just need to focus on the here and now and get through each cycle.

I’ve just had my final carboplatin and it has decided to give me a real pasting, the worst I’ve felt so far, just keeping my fingers crossed my white bloods are okay for the final two paclitaxel. Although even that is physically harder as the neuropathy has started on my fingers now as well as my feet! 

@Poacher65  how are things with you? Good luck with you final chemo. 
@noodledoodle Hope carboplatins are still going okay for you. 
@Love running hope you had an enjoyable and relaxing weekend. 
@TicTok glad you enjoyed at least some of your break away, worry about the extra lbs later! 
@Coastal im sure like me you are counting down the days! 

Happy Monday ladies xx

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 I'm so pleased for you getting your results!  You are a very brave person coping with having blood transfusions!  It is indeed like climbing a mountain!  Lots of love xxx

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running I'm so sorry you weren't able to have your last treatment 💐 I know what a disappointment that will have been.   A big virtual hug from me ❤️. I really hope that you can have this soon XXX  

Sammy73
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

We all seem to be struggling with something!!! Other than the big C!! 

Sometimes do you want to just shout at someone!! Do you really know how shit this really is!! They all think we are doing wonderfully!! Amazing. (It sort of doesn't do us justice!)

My 1st dose of T doxe whatever!! OMG yuk yuk yuk!! I felt like I had been run over by a tractor carrying a 2000 wheeled trailer!!! My face was itching I was having spasms in my legs arm back, headaches 😫 hideous!! Lasted 4-5 days. Worst I have felt so far, consultant said oh yes thats quite normal, part of the treatment then proceeded to tell my all about radiotherapy and side affects!! 

My brain just parked it all!! Too damn much thank you, got 2 more of these shitters 1st!!

Sorry had a really rubbish week. Very frustrating. 

Onwards and upwards!!

I have managed some lovely shady walks on codine with our dog which has helped the brain.

Oh and yes eating much more and have a self life belt when I can swim again!! 

Much love and calmness to all. X

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi to everyone just catching up after our break seams like there is a few hiccups going off between us , but you are all strong ladies it may take a little longer but we will get there ….stay strong and positive.

we had a nice break I actually felt normal for a couple of days , got dressed up nice meal a glass of red wine all good then the next day was back in cancer world as chemo nurse rang as I now have a new consultant so they have changed Thursdays chemo to the following Monday , so had to spend an hour on the phone to the docs to get my bloods day changed ! it was nice while it lasted though . talking of the lovely food is anyone else getting an expanding stomach ? I have put another couple of pounds on 😟even walking about 18000 steps a day .

let’s see what this week can through at us ……love to you all xx

 

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running  It must be so frustrating and eating your way through sounds like a good idea. After reading @gardengirl200   last message I went to the kitchen and made some pancakes! 😋
I think your bloods are probably a combination of everything and the fact you have received a whole lot of chemo through your veins. Nothing makes the disappointment easier and like you say no one can take your burden which is one of the things I find hardest to accept. That this is happening to me and ultimately it is my life, my future. I know my family experience different levels of pain from what I am going through and our aim is always to protect our children. This is a difficult point to trudge up the mountain and I am glad you have reached out here so we can give you a little helping hand.  My advice would be eat well by which I mean what you fancy and what makes you feel better (mentally and physically), take it easy but maybe try and go for a few gentle walks over the weekend. I’m sure getting out will also help mentally. Finally let your family spoil you, we are always trying to prove we haven’t dropped any of our usual roles  whilst going through this brutal treatment but sometimes we have to give in to it and reap the rewards after. 

Thank you for congratulating me on my news I am so pleased. I can’t say relieved, hopefully that will come post surgery. 
My latest worry is COVID. It seems to be everywhere. Someone in my daughters office has tested +ve, my daughter seems ok and others there have tested -ve. My husband met (outside) with a colleague who has been pinged and had an inconclusive PCR. It is not uncommon for my husband to have various mystery symptoms. When I was pregnant he felt sick, he has felt very tired and sick whilst I have had chemo! He calls them empathy pains, I try to be kind! 😂 Yesterday and today he has had a headache and when he got into bed he said he had the sniffles! He was sent to the spare room and is now banished to the office until he gets his PCR result. 
I saw my neighbour in this morning and she has tested +ve. Luckily she was far away and told me not to come closer. She was out feeding her sheep. 
having come this far I don’t want COVID to delay me now! 

Look after yourself @Love running  I am keeping my fingers crossed for Monday for you xx

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@gardengirl200

I wish I could have been your partner in crime, sitting in your kitchen and trying all your food. I am a stress eater 🙄 (which I try to control with exercising) and I would have enjoyed everything from the garlicky guacamole to the Pancakes and the crisps. Then I would have just rolled over on your coach and happily binged watch tv with you the whole day. I probably would have felt guilty about it, like you did. But you know what, we can’t be productive and up beat everyday, not with what we are going through. We are allowed to feel sorry for ourselves and just hang around not doing anything for anyone. Guys probably would get wasted on beers (may be generalizing a little).

You totally deserved this day off, especially with the wedding of your ex coming up. Don’t beat yourself up. 

I did not get my treatment yesterday (even lower WBC count) and basically I just sat the rest of the day saying no to all and everything (no to playing with the kids, no to give ideas for dinner, no to speak with friends no no and no). I just sat on my lounge chair and felt sorry for myself the whole afternoon. This might make you feel better, I even ate in secret some Ben & Jerry ice cream, because I did not want to share with the kids (bad mum😲). 

Totally asocial and egoistic. I felt guilty at first and then I just thought no one can carry my burden and this is what I need today to pick myself up from the floor and keep on going. Today I am better and back up again. 

Don’t be too hard on yourself and enjoy episode 5 and all the others to make  this Saturday go faster. Lots of hugs 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 

After fighting for so long and always being so positive and supportive to us, I am glad that you got good news. I hope your blood transfusion and your final carboplatin went well. I cross my fingers that your 3 last chemo sessions go smooth. 

I did not get my 6th paclitaxel yesterday, as my WBC were even lower than Monday. Strangely enough, I physically don’t feel bad, only slightly more tired. But I can’t pin this to anything, is it the treatment, the kids being back, the stress of the flat in France or school start or a combination of all. 

Anyway we are aiming now for Monday and meanwhile I try to take it easy. Nothing more to do. C’est la vie mais pas en rose pour le moment.

Have a nice weekend. 

Purpledaze
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@gardengirl200 I can see you skiing down the mountain, wind at your back, slicing thru the snow! And yes, absolutely with you on the needing to feel like I've made the most of my day, to the point that I have discovered new delights and sense of achievement in sweeping the floor! 😂😂

I have warned my husband not to expect any more such eagerness for cleaning once I've completed my treatment!

Sending you strength and peace of mind as you wait for your CT result. Xx

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running I feel your pain regarding your postponed chemo, it must be so frustrating. In the bigger picture it’s nothing but in the here and now it feels like everything. I hope it goes ahead on Thursday and you are able to continue your plans to see your mum. 
Your apartment in the French Riviera sounds great as @gardengirl200 says Don’t let the old dinosaur spoil your dreams. I’m sure you aren’t the only neighbour to dislike his manner. Keep exercising and keep strong. 
@TicTok I hope you are able to enjoy a relaxing few days in Suffolk and return refreshed ready for the second half. I hope your midway scan shows good results for you. 
@Purpledaze @Good news you were able to enjoy your birthday, it’s these little treats and specks of ‘normality’ that get us through. I hope your aches and pains are more tolerable this time around without having more pills to pop. 
@Coastal I hope you aren’t suffering from Olympic withdrawal! I must confess I didn’t watch one event, but listened to a few on the radio. I think I living the life of a hermit to get you through your last two paclitaxel makes sense. I am doing the same other than my morning walks we do very little, the end is so near.  
Your comment about your son made me laugh! I have 2 daughters but can’t say they are all that observant when it comes to me but I am expected to comment on every new shade of lipstick, eyeshadow, hairstyle etc!! 
I hope your oncology appointment was informative. 
@gardengirl200 what a ridiculous thing for your oncologist to say. It makes you wonder if they have any understanding of what it is like to be going through all of this. I rehash so many things that the professionals say to me it’s torturous but I can’t seem to help myself. 
Im glad I’m not the only one who eats to try and find something they do find tasty! I’ve always done it even when I had pregnancy sickness! I think I’m this instance it’s good as we need to keep our strength up. I’m thinking I will shed the few lbs I’ve put on once chemo is finished. I wouldn’t give yourself a hard time about anything at the moment although it is good that you have arranged to meet up with friends. I imagine your husbands wedding this weekend has bought up a lot of difficult emotions for you and on top of all of this it’s a lot to deal with. Have fun with your friends and enjoy watching the Missing. 

I have had a busy week. On Monday I had the USS but not was with a different radiologist who I found less informative. 
This morning I saw my Oncologist and she said she was pleased with the response to the chemo. They couldnt detect cancer in the nodes, of course that doesn’t mean they are completely clear I will only know that after surgery and also the tumour had shrunk considerably. I felt such relief. I know this awful journey isn’t over and there will be times I am terrified that it has spread elsewhere but I feel like that is the first good news I’ve had this year. 
This afternoon I had a blood transfusion ready for my final carboplatin tomorrow. 
So I have 3 more chemo sessions left I can’t believe I am at this point it feels like I have been in this forever. I just hope the next 3 run smoothly. 
It seems lots of mountain climbing has been done by us all and it has been great to reach out here for a hand up when needed. I too hope that one day we could all climb a real mountain together to celebrate. Xx

gardengirl200
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running I'm so sorry there has been a delay to your chemo due to bloods. How frustrating. I think there is so much unknown with what we are going through, the one bit of certainty we feel we can plan around is the treatment timetable. I know there is always a risk but I guess the slight problem with being postive like I think we all are, is that we always we always expect things to go to plan!  Fingers crossed it is just a small blip and you will be cracking on soon. I had my 5th out of 6th last week and I do remember the half way stage being tough. But (to continue @Purpledaze mountain theme!), I now like to see that half way stage as THE peak of the mountain and I'm now coming down the other side and that aspect seems easier. I'm still waiting for my CT scan result though so this is probably the hardest week all in. Had nightmares about it and I've just about convinced myself that it will be bad news. Anyway,enough about that. 

@Love running The French flat sounds like the perfect project once BC is out the way so dont let the dinosaur neighbour get you down. He is probably just jealous of your project or even threatened by the fact you are an articulate younger female. Don't let him sap your energy. 

@TicTok Hope you had a lovely time in Suffolk and that your parents are feeling much better!

@Purpledaze I'm going to investigate the NationalTheatre online. I think at the start of lockdown last year they put on some great plays that I watched back then. So thanks for the reminder. 

I've not felt very proud of myself today. Its been pouring with rain all day and I've not been out. I have lost my sense of taste and a bit of my appetite but rather than just not eating, like any normal person, I have tried to find something that I DO want to eat. So I made very garlicky guacamole for lunch with home made flat breads. The flat breads tasted inedible. Then I thought something sweet might be the answer, so I made pancakes and had them with maple syrup. I couldn't taste them. Then I thougt something savoury might be the answer so I had some crisps. Really nothing has hit the spot and I'm left with a messy kitchen!

Other than that I've done nothing other than watch a box set. My kids left last night for their dad's to prepare for his wedding on Saturday ( he left very suddenly nearly 3 years ago, turned out he had been having an affair; it was all a complete and utter shock to me). I'm still not feeling great after last week's chemo, and I am trying to dial down the scanxiety so I have watched 4 episodes of The Missing. I dont think I've EVER watched so much TV during the day but I'm trying not to feel too guilty about it. Surely it is allowed once in a while?  I feel I am just marking off the days just now but i also hate not making something of the day. Does anyone else ever have that dilemma? Anyway, I have filled my diary with meet up with friends for the next 3 days so rest of week will be better.  I'm off to watch Episode 5. xx 

 

 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Good morning,

Yesterday, I got a big backlash… I did my blood test before getting treatment and my white blood cell (Leucocytes granulocytes) values were too low), so I did not get it. It is postponed to Thursday only if my values are good enough.@Michele21, you have the red, I took the white. I was devastated yesterday as @Purpledaze said it ‘the middle chemos’ are tough, like going nowhere. Yesterday I was going to celebrate my half way through milestone (6 out of 12 milestone). In addition, my window of travelling to France to tell my mum in person before radiotherapy has shrunk and I am not sure I will be able to go. On the top of it, I had taken my steroids before treatment so I knew that my night would not be a nice peaceful dream.

Last week, I might have overcompensated with the kids being back, trying to be the normal mum that can lift mountains. They were so happy to be back with us. I have also had a couple of bad nights due to massive stress from a situation in France with a neighbour. We bought last year in the middle of the pandemic the flat of our dream on the French riviera (a renovation project in an apartment building where we have spent our vacation the last 15 years), which stayed empty since, as now it is COVID+BC. Cutting the story short, I engaged in the house board for this vacation flat and one other member is spreading lies about us to all the tenants of the house. The reason being that I had the misfortune to tell him that the tone of his emails was intimidating, too aggressive and sometimes lacked neutrality. As board member and tenants too, I think we should stay neutral and respectful at all time (being in Sweden too long?). Of course, he did not like being challenged by a younger female (not to generalise but my countrymen, i.e., older males in their 70 ies, are often misogynistic and patriarchal – of course I did not tell him that😇). Thank god, some of the tenants know us and respect us, as we have always been open and polite to everyone.  My husband does not speak French, so he can’t handle it himself. But the whole situation brought me to my knees and broke me in pieces.

Last week I felt that it might have been the worse decision ever to buy this flat… but I won’t let him ruin our dream for our future holidays and for our retirement plan (if the climate changes e.g., rising temperature and sea level have not done it before, my legal retirement age is in 2039 and the IPPCC report is not reinsuring).

This morning I am resigned and more positive again. I will take a pilates class online, as exercising is my way to calm down, like some kind of meditation.

@Michele21, I hope your 'scanxiety' (did you come up with the word, I like it, I sums up very well what it is) has been switched off with good news. I understand you, ‘enough bad news for a while’ I feel the same. At least I hope you enjoyed your Fish and Chips and Jay’s quiz. Since starting paclitaxel, my taste came back and I have regained my appetite and the kilos that goes with. Food is so important in my life (not only because I am French, a French that does not enjoying cooking (yes it exists) but loves to eat). I dream about oysters, which I don't dare eating because of the low immune system and the risk of getting food poisoning. 

@Coastal  – I am sorry to hear that you will not camp with your family. It is difficult to keep from people right now, because it is summer and people believe that COVID is over now with the warmer temperatures and the vaccination. But it is not over yet. And it is definitely not over for us, which are still highly susceptible to infections. I am fearing the school start in one and half week. None of my girls are vaccinated (too young) and I know many that are returning from Greece and Spain this week-end and they won’t quarantine 10 days with their kids. I will have to live with the fear that the girls will bring it home. So far we have been lucky, they have been to school since the beginning of the pandemic (schools never closed here) and stayed COVID free. With the Delta variant, I am not so sure that it will stay that way.  And I am not talking about realising that few of my very good friends and family members in France are against getting vaccinated. If I go home end of September, I probably have heated discussions (don’t want to think about it as it makes tired and sad).

The good news is that you have only 2 paclitaxel left – that’s great. Stay strong and positive ! It will be good to have a plan. A silly quote from Col. John "Hannibal" Smith from the A-team: I love it when a plan comes together. I am a compulsive planner and this is why I got so sad yesterday. 

@gardengirl200  I love the Winnie the Pooh quote, ‘when I want to get somewhere else I just keep walking away from where I am’. I will keep walking away from Breast cancer, there will be hinders and stops but I will keep walking away from where I am now to get there. Thank you 💕. This is the reminder I needed today. Keep going.

The waiting is almost worse that the treatment itself. For the side effects of the treatment, there are medication in most cases. But the waiting, there is only our inner strength that can help. So keep strong. I cross my fingers that you get good news in the report. As we said with Michel, enough bad news for a while. We could do with some good news.

@Purpledaze  I love the poem and I copied it in my journal to keep reading it when I am feeling down. It is so true we are learning to climb mountains. It feels like going through the death zone to reach the mount Everest. It is slow and painful but we keep climbing. We have our families and friends as sherpas to help us climb and to give us the necessary oxygen to make it to the top. We will make it to the top. This forum definitely helps to keep going. My fellow mountaineers, thank you for being there. Who knows may be one day in the future, we can climb a real top together somewhere in the UK or in Sweden (bear-free).

@TicTok Enjoy your time in Suffolk. These days away are previous and helps you to keep going. Being away might also distract you from the excruciating ‘scanxiety’(I like this word, not sure who came up with but it summarises it so well). I hope your parents are better. I understand you so well for being sick with taking pills. I was getting down in the cortisone course (to 4 then 0) but now with my delay in treatment I might have to take double dose this week ( 😎 and I know it will get me back on the emotional rollercoaster. And it won’t be a fun ride 😩

I wish you all a good day and week. Keep climbing these mountains, we will meet at the top. 

Lots of love and strengths to all of you.

Purpledaze
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok I hope your time away in Suffolk helps to ease some of your "scanxiety" - waiting for results is so hard! But you are down to the last 4, and that's something to grab hold of for sure. I found the 'middle' chemos really tough, like I was going nowhere fast, but since hitting the last 4 mark like you, it has felt more manageable. I hope it does for you, too.

Take care xx

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Morning all you ladies what an inspiration you all are , I have had my head up my backside for the last couple of weeks 😱 with parents being ill etc etc I have been reading all your posts this morning and am ready to give myself a good talking to …. Like you all I am sick of taking tablets to the point of choking and starting my next treatment with 8 steroids has been worrying me plus waiting for my half way scan and another heart scan all got me down …. But we have come to Suffolk for a few days to get away so I hope to be ready to start my last 4 on the 19th …..I hope you all have the best week you can in this emotional cancer world we are having to deal with ….. lots of love and thanks for your inspiration xx

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Morning all you ladies what an inspiration you all are , I have had my head up my backside for the last couple of weeks 😱 with parents being ill etc etc I have been reading all your posts this morning and am ready to give myself a good talking to …. Like you all I am sick of taking tablets to the point of choking and starting my next treatment with 8 steroids has been worrying me plus waiting for my half way scan and another heart scan all got me down …. But we have come to Suffolk for a few days to get away so I hope to be ready to start my last 4 on the 19th …..I hope you all have the best week you can in this emotional cancer world we are having to deal with ….. lots of love and thanks for your inspiration xx

Purpledaze
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hello everyone,

Lots going on for us all. @gardengirl200 sorry to hear you've had to wait to hear about your scan with another oncologist giving you half news. I agree - either tell me all or nothing!  Sounds like you've got some good distraction ideas and I hope they work for you.  I love podcasts, books, TV, walking my dogs, pottering in the garden, and more recently I was given a 3-month subscription to National Theatre online, which has been amazing!

I had a lovely birthday last week. I was lucky it coincided with my "up" weekend in between treatments, so I actually felt well enough to enjoy food and company with my family.  It was just perfect!

I had my 2nd paclitaxol earlier this week and the usual aches and pains have descended on me.  But somehow just knowing that I was going to get these pains has helped me deal with them better this time, I think. I feel very tired, but like @Coastal I've got Co-codamol in hand in case I need a break.  I'm a bit reluctant to take them, though, as I know they can cause constipation and then I'd have to take laxatives; and to be honest I'm fed up with always having to take "something".  I find gentle walks, warm showers and rest have helped with the pain, so here's hoping.

@Love running your camping trip sounded great and the bear poop story made me chuckle.  I've never been much of a camper, but last summer when it was so hot (not like this summer!), my husband and I slept out in the garden one night and it was just lovely, so who knows, maybe we will go in search of a bear-free camping spot next year when all this is behind me! I hope your immune system holds out and you run on through the halfway milestone in your inspirational manner!

A friend of mine sent me a card with this poem, that I thought I'd share as I found it really resonated with me:

"So wear your strongest posture now,

and see your hardest times

as more than just the times you fell

but a range of mountains

you learned to climb!

By Morgan H Nicols

I certainly feel that I have been over a mountain range and this forum and the messages you all write have helped me to pick myself up when I feel I am falling.

Thank you!

Hope you all have the best weekend possible 💐

gardengirl200
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi @Michelle21. I was sure I had replied to your message of 10 days ago or so when you set out a bit more info on your treatment, but I have scrolled down and can’t find my reply so I think it must have got lost with the dodgy WiFi we had in our holiday cottage. So I am replying again! It must be very tough having to go through this again with a different pathology. A school friend of mine had 2 different breast cancers. One ductal, then lobular. 7 years on she’s fine. At least you know your strength now.  still it’s unfair. But as you say lucky that you were in the system and got the second occurrence picked up early. As you said in your latest report you just have to ‘keep on keeping on’,  and we will get there. Someone sent me a Winnie the Pooh (!) card which I don’t have any more but it said something like, ‘when I want to get somewhere else I just keep walking away from where I am’. Even small steps, keeping busy, listening to pod casts, watching the Olympics, are helping me get through each day. 
I do hope your ultra sound goes well next week and it gives you reassurance. I had a CT scan on Monday but am waiting for the results and the waiting is the worst. I have had a small cough since my mastectomy ( or maybe before, I can’t remember) and it has taken me 3 months to persuade my oncologist to refer me for a CT scan because she said it was such low risk that breast cancer had spread to lungs. So I wasn’t too worried about it. But then on Tuesday ( day after scan) I had a my regular pre chemo oncologist meeting with the other oncologist ( because my oncologist was on holiday) and he said he had the photos back but not the report. He said my lymph nodes were enlarged but he couldn’t comment on why until he got the report. So now I am freaking out that the report will be bad. I just wish he hadn’t mentioned the photos at all until I could get the complete info. Frustrating. It takes me a while to process these things but last night all the worry seemed to hit me at once and I didn’t sleep a wink. Two weeks to wait for the report! Agh! As you say, this is a mental battle as well as physical but I am just trying today to take but some control and remind myself that on this cancer road there is absolutely no point worrying about something you haven’t yet been told. So I am just trying to live in the present. We are absolutely not going to sweat the small stuff when we are through this. With hardship, such wisdom😂🥵
I hope you enjoyed your fish and chips. 


someone was asking about docitaxel. Sorry, I can’t find the post. I had my first session nearly 4 weeks ago and was fine the first couple of days but then very achey and tired  for about 5 days but then fine for the remaining 2 weeks of the 3 week cycle. I had my second session on Wednesday and so far no aches yet! But I did get strong painkillers from the consultant. I havnt needed them yet but glad I have them  just in case cos paracetamol/ ibrupofen didn’t help. 

@Love running I love your posts on the camping and the bears! Yes, there is more to life than cancer. It must be tricky not sharing your position with your mother/ sister but it will be good to update them once it is all over. Meantime, your husband must be being a big support, which is good. 

There are so many lovely posts I would love to comment on but I am a bit sporadic on here and so I am just posting this now before I delete by accident or do something else technically incompetent. Also I am trying my bi focal glasses for the first time so apologies if this is full of spelling mistakes. I’m not used to them yet! 

best wishes to all xx 😘 

 

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hiya everyone

I hope that the weekend is going well for you all 😍.  I've been out of action for a bit after my 2nd pacitaxel joint pain but no shooting pains like the first one and I've been able to walk properly which has been a real relief.  I've been very tired though - so have spent days sitting on the sofa watching the olympics and sleeping lots!  After my throat infection and rash I've become a bit wary of getting too close to anyone with a cold or anything as it took hold so quickly, so am becoming even more of a hermit!  I'm not sure about going on the camping trip I'd planned as it's going to be really full of people and children, so my partner might just go with the kids.  However I only have 2 more pacitaxels to go so the end is in sight - I can't believe it, it feels like I've been doing this routine for ever.  I'm seeing the Oncologist on Monday to see how I'm going and discuss next steps - this always makes me feel very anxious as it makes it more real for me, and the oncologist is quite serious.  I had the surgery first so it will be radiology next then hormone treatment.  I'm going to try not to worry.  

@Michelle21 Thanks so much😍, I have four weeks left too, so end date is 31st August (cross fingers that doesn't change) so just after your end date.   I know what you mean about feeling guilty about putting your kids through this - I feel very bad about my daughter (14) as I'm living a very hermit like life at the moment (as I just feel so tired so not doing much and also I'm trying to avoid infections after my last one).    My son (20) is coming back from Uni this weekend, it's the first time he'll have seen me without eyelashes and hair - however he's not very observant so probably won't notice anyway 😂

@Sammy73 the aches and pains for me started on day 3 to day 8/9, with the worse days being day 4 and 5, but that's just for me - I know other people on taxol regimes haven't had this pain and so hopefully you won't.  Also, my 2nd pacitaxel has not been as painful as the first (maybe my body getting used to it) and also the co-codamol definitely did get rid of the pain, so even if you do have pain you will be able to get rid of it.  Sorry, I hope that's reassuring, I didn't want you to worry about it.   Really good luck with your first one 😍

@Poacher65 so sorry to hear about your side effects - really good luck for your last one on the 13th!  😍

@noodledoodle  I'll be finishing around the same time as you and then onto radiotherapy, as you say another chapter in this surreal experience❤️

@Karden Wonderful to hear that all is okay and radiotherapy went well - cross fingers no late side effects for you and that the hormone medication works out well.  It's wonderful to hear that your hair is growing too, that makes me feel really positive, take care 😍

@Love running Your holiday sounds amazing! I bet it's beautiful in Sweden.  I've haven't really done much at all this summer apart from going in the garden and no camping yet but hope to make up for that next summer.  I love the idea of picking wild fruit too!  I also like your and @Michelle21 mantras for trying not to worry - it's a constant battle for me as I'm a worrier and tend to plan long term rather than living for the moment.  I'm looking into the moving forward course locally and also there's a local keep fit course I can join (for people with cancer) which I'm going to do.  I think I'll need things to do to keep myself busy. 

Much love to everyone - you are all doing amazingly!  I can't believe how much life has changed since March - it just shows how adaptable we are having to deal with something like this.  Anyway, take care all you lovely inspirational women! Have a lovely Saturday night!  xxx  

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running Your posts are always a good reminder that there is life to be had other than going for chemo each week! 
Glad you used your tent and didn’t get eaten by bears! I’m not a camper but I do love the outdoors. We went to Scotland last year and I loved it and will probably go back. Also we climbed the three highest peaks in Eng, Scot & Wales which was great and felt like a wonderful achievement. I think post cancer you really appreciate nature and all it has to offer. I’m sure you will face up to your feelings and it will be frightening at first but as time goes on you will feel more confident about the future. 

@Karden Thanks for keeping in touch and letting us know your progress. I hope you skin stays strong for you. No amount of moisturiser is too much! 😂 

@Sammy73  I’m doing ok thanks for asking. As it is for most of us it all feels surreal, I just keep on and sure enough am getting closer to the next stage of treatment. 

I had paclitaxel number 9 of 12 so getting closer to the finish line.  Unfortunately my red bloods have dropped low again so I am thinking I may end up with another transfusion but will wait and see. Also I have an ultra sound scan booked for Monday which I am definitely getting scanxiety about. I think befacuse not a lot happened after 3 FEC I am thinking the worst of this one. I am trying to follow a similar Mantra to @Love running but it’s hard your brain messes with you. I really hope the scan reassures me as I’m so fed up with bad news this year! 
Well as a treat tonight we are having fish and chips from the chippy, not very healthy I know but a rare treat and I can’t be bothered to cook.  Also every Thursday we do Jay’s quiz on tube with my daughters. We’re not quizzer’s but we really enjoy doing this probably because it’s quite easy and there are q’s for everyone. I like it because we do it as a family. 
Wishing everyone a fun and side effect free weekend. Another step closer….  xx

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Good morning,

I am finally back after a nice week in the north of Sweden. We managed to inaugurate my new tent by camping one night on an island by the beach. It was marvellous, the kids were so happy. My husband has been amazing and planned the whole camping although he really hates it. He is afraid of bears and this is why we camped on an island (although bears can swim😉). Speaking of bears, we think we stumbled on bear poop when we were walking around in the forest. It might very well not be from bears but it is a good story though. We also removed this part of the woods from our list of walking areas.

I have also been picking blueberries, wild red currant, raspberries and strawberries. Absolutely delicious. I made jam and froze some to make smoothies and muffins. I love been in the outdoors and I promised myself that next year, I will hike more and discover more the great outdoors of Sweden. For a moment there, I just felt like I was not sick.

We picked up the kids at their grandparents and I can say that since they are back home, I nearly don’t have a minute for myself. It is nice to have them back but also more tiring. We are enjoying the last days of holidays as they are going back to school in 2 weeks.

@Sammy73 so sorry to hear that you had to cancel your holiday. These moments of freedom far from the treatments are precious. I hope you will be able to reschedule soon.

@Coastal  and @Purpledaze sorry to hear about the aches and pains from paclitaxel. I have just received my 5th one on Monday and this time, I got terrible stomach cramps. Thankfully, it went away after few hours resting. My immune system is not recovering as fast as it should. It has been two weeks in a row when I have had my neutrophil granulocytes on the lower level at the limit on receiving treatment. I really want to stick to the schedule, postponing freaks me out. Next week, I am half way. The 50% milestone!

I feel more and more tired and my oncologist told me that it would happen, as the body does not have the time to fully recover with the weekly cycles. I am still trying to train and run some, as this is the only thing that keeps me positive and happy. Each time I train, my brain switches off, I don’t think about anything else.

The good news though is that I have got my schedule for radiotherapy also for the fall. So if everything works according to the plan, I am done early December.

@Michelle21  Your positive attitude is an inspiration. I too like you and Coastal spend my days distracting myself rather than facing my feelings and my fears. I am not sure how I will face these feelings when it is over.

I saw a diagram that I am trying to follow as a mantra

It was as such:

Do you have a problem in your life:

YES-> can you do something about it

     NO -> then why worry?

     YES-> then why worry?

Do you have a problem in your life:

NO -> then why worry?

I keep repeating this as a mantra. 

@Poacher65 sorry that you felt miserable with your treatment and the steroids and with being away from work. The steroids have been the worst for me too. They take me from super high to very low emotionally (I felt like crashing into a wall after driving 200 km/h for days). I am on a reduced course for each paclitaxel cycle now to finally take none in 2 weeks. Hopefully I feel myself again.

I have been out from work for 3 months now. I miss work and my colleagues and as you say it brings normality to our lives. I keep contact with my colleagues and my boss on a regular basis to keep informed and included in new projects. But on the other hand, I am glad that I am off and I can focus on taking care of myself and on getting through this.

It seems that you are almost there for the first part of your journey… 13th of August, this is soon. I too dream of taking off the PICC line (mine should come off on 20th of September) to be able to a bath but also to bath in the lakes/sea surrounding Stockholm. The summer has been gorgeous here (in contrast to south of Europe) and I was so sad that I could not enjoy bathing with the kids. So I am hoping for few nice days end of September to get a dip and/or use my stand up paddle (sadly packed away since last summer).

gardengirl200 I hope you have a good time with your teenagers in the Peak District. A glass of wine in the sun sounds like a dream. I have had only 2 glasses of champagne since the beginning of this journey, during my 3 weeks break to celebrate I had gone through my 4 EC. I will enjoy wine (and champagne, mon petit péché mignon as we say in French) again when I am done end of September.

I have not told my mum and sister, as they are in France and I am in Sweden. I did not want them to worry unnecessarily and could not tell them on the phone. The travel restrictions, lockdowns and COVID stress had been tough on them and I wanted to avoid them more stress. I am hoping to travel to France when my chemo is over end of September (although with the 4th wave, this seems compromised). By then, I will have more good news than bad news to tell them as I will only have radiotherapy left (and 3 years of zoledronic acid injection and 10 years of tamoxifen). None of them use facetime or videocalls, so no worries about discovering my new hair style. Funnily enough it seems that under paclitaxel, my hair is growing a bit. I thought that paclitaxel also leads to hair loss but mine seems to grow a small duvet. I look like a chick🐣. I don’t get my hopes up because on the other side, I am losing my eyelashes and my eyebrows now. They were quite bushy and until now the was not so obvious.

@Karden  So happy for you and thanks for your reinsuring message about radiotherapy. I hope that you will escape the side effects from Letrozole and Ibandronate. I wish you all the best for the new life ahead of you, you have been so strong through the journey and also so helpful and positive to us on our journey. Please keep tell us that there is an end to this nightmare… and that we will get over it.

 

Have a lovely day and talk to you soon. Lots of love to you all

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi karden glad to here you have completed your treatment I can’t imagine what that must feel like yet 😏I wish you all the very best as you move forward and get your life back  ….. I am half way but dreading the 4 remaining docetaxel xx

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi everyone,

I thought I'd check in and let you know that I have completed 5 days of radiotherapy. It was all very straightforward and no side-effects to the skin yet but I'm told this can happen 2-3 weeks following treatment. It can become pink and/or itchy/ or discoloured but I am moisturising as advised and hoping for the best. I have some fatigue which hits me in the afternoon but it's not too bad.

It feels so good to have got to this stage at last. I will start my meds, Letrozole and Ibandronate at the weekend so we'll see what side-effects come along with them.

I can see that many of you are nearing the end of chemo and that will be a huge milestone to tick off. You can look forward to your hair growing again. Mine is starting now but still fluffy although I can see progress week on week.

Some of you will have surgery to come and I wish you well with that. You are all amazing and will soon be able to move forward again. I continue reading your posts and look forward to hearing how you all will reach the end of this life-changing experience.

Sending love and hugs. ❤️❤️🤗🤗xx

Sammy73
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 

Thank you, just annoying when you sort of get used to something but yes I've heard less tummy problems too. It's just the unknown again.  Hope your feeling OK Xx? Xx

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi @Sammy73  I have had T/Docetaxol before and didn’t get the aches and pains. As with all of this I guess it’s a good idea to plan for what could happen but hopefully you will be ok. In some ways I preferred it to FEC as I didn’t get any sickness with it, every cloud… 😂

I hope it goes well for you xx

Sammy73
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Coastal I am starting T they call it but in my book it's docetaxel so god knows if it's the same as you or not, I've just been warned as I said before I will have aches and pain, really not looking Forwarded to it, it feels like my half was a long time ago with all that's been happening here!! Bloody Covid!! 

Anyway can I ask was it automatic aches and pains from the treatment?? And also was it just over the first week or longer?? Thank you!!

Gotta get my big pants on!!! 

 

Love to all of you xx