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MAY 2021 CHEMOTHERAPY STARTERS

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 hoping today goes well for you and your family.  Your mum would be very proud of you, take care ❤️ xxx

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 

All my thoughts are for you today.

Sending you lot of hugs and love.

Sammy73
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 I do hope today is a celebration of your mum's life and you can pray she will be happy with the service, then sadly life goes on but you have done your very best for her.

 

Covid is everywhere!!!! The kids have it more and more I know people now taking their kids out of school for this last week as the dont want to ruin their planned holidays!!!  Mask up ladies everywhere!!! So many people won't now but all we can do is protect ourselves. 

Have a good week all xxx

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Michelle21 ..thinking of you today and sending lots of love and best wishes xx

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 I will be thinking of you tomorrow Michelle and wishing you strength to get through the day.

It will be very sad and emotional but I'm sure you will give your Mum a fitting farewell.

Best wishes

Karen x

gardengirl200
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Thank you for your message @Michelle21 and I do hope all goes as well as it can tomorrow. Xx

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi @gardengirl200  I’m on a different treatment plan to you but my last one is on 26/08 so similar timing. I get achey from the injections but this morning had a different ache and realised it was from weeding yesterday! I also enjoy a bit of gardening but it all seems to be out of control at the moment. 

I have to say I am getting more concerned about COVID. The cases seem to be getting higher and higher and I worry the hospital admissions will delay my surgery not to mention how would it affect me if I got it? It must be a worry having two teens in the house, my girls are both in their 20’s and both double vax’d but there are more and more cases in people who have been double vax’d. I guess all we can do is take precautions and hope for the best. 

@noodledoodle one thing at a time sounds like a good plan. Good luck with the next carboplatin, I have number 3/4 on Thursday.

@Karden  it’s so good to hear you are feeling good just 2 weeks after your last chemo. It must be the relief of it being done especially with the large gap you had in between.  I’m pleased for you that your hair is starting to return and that life is looking a little more like normal for you. Stay in touch its so good to know a timescale of what to expect. 

It is my mum’s funeral tomorrow, thanks to all of you for your supportive and kind words and advice. It still feels unreal, I want tomorrow to be the beautiful farewell my Mum deserves but also will be glad when tomorrow is over. Xxx

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hello ladies, I have been following your posts and I'm sorry I haven't posted anything for a while. Although I've been able to continue working from home throughout my treatment I am now going into the office now and then and I have also restarted running an older people's exercise group once a week (I work for Age UK).

I feel really good since my final chemo just over 2 weeks ago and I will have my first Herceptin injection on Friday so we'll see how that goes. The Herceptin itself should be ok as I have been having it every 3 weeks through the PICC line up to chemo ending and had no problems but I know that the injections can cause pain in the leg. There's a 2 hour observation time built into the first appointment.

My hair is now fluffy and just starting to grow again but my eyebrows and lashes are almost non existent. My finger nails are still fragile and prone to breaking off and that's due to the effects of Docetaxel.

Overall, it's all looking good and all you lovely ladies will soon be finished with chemo and moving on to the next stage. It sometimes seems a long way off but like me, you will get there. This hot and humid weather doesn't help much does it? I too have stocked up on ice lollies and Cornettos.

Sending best wishes to all of you. You're amazing! 😊👍🌟

 

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi @Michelle21   Yes I have already had surgery. I have a wide local excision, with sentinel node biopsy, so I do need radiotherapy too when I have finished my chemo. Don’t finish until at least beginning September ( if none are held up for any reason)
just taking one chunk at a time, so trying not to think about the radiotherapy yet!

gardengirl200
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hello everyone, Hi @Coastal I hope you are coping ok with your daughter away and not finding the house too quiet. I’ve coped with that aspect by immersing myself in the box set of Outlander. It’s a bit trashy but perhaps that is why I like it! I do find it very tough going through this without a partner. But perhaps it makes you reach out to friends more and maybe that is a good thing.  Re your comment on gardening, I am hugely into my garden, although in a laid back way. It’s a bit of a shambles, especially this year! . But also very happy to watch Monty Don on a Friday night. Glad you’ve enjoyed being back at work. Yes, I’m looking forward to that normality too. 
@Michelle21 I’ve got 2 more docitaxel to go after this. I had 3 cycles ( which I got every 3 weeks) of EC and now 3 cycles of docitaxel. ( Is anyone else on here on this structure?)  This is for ER  pos HER neg lobular cancer. I think we seem to all have slightly different types. My last docitaxel is scheduled for 25/8 and then I have radio and tamoxifen for 10 years. I felt very achey today on the docitaxel, having been great for the first 3 days. Think probably the steroids wearing off. I’ve just taken a couple of paracetamol, which I assume is ok to do. I also went on a cycle ride yesterday ( first time in 10 years!) and maybe I over did it! I got a bit carried away but it was so good to do something different. 
This breast cancer thing is such a tough journey but I keep thinking i will be so strong once I am through this and will really appreciate all the important things. Yes, it is so so common and I just feel I have to grit my teeth and get through it, and it should be all be behind me in a few months. 
I do worry about Covid though. Does anyone else?  Obviously I am double jabbed but still trying to be as careful as I can, not always easy given I have two teenagers in the house who need to lead their lives too. 
hope you are all coping in the heat. A  magnum does make most things feel better right enough! 

 

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi @noodledoodle  I found the weeks with just paclitaxel easier, especially the 2nd one, probably because the carboplatin is wearing off then too. I did have a blood transfusion just after my 2nd carboplatin as I was anaemic but they did explain beforehand that was always a possibility. I don’t know if I’ll have to have another. My feet are starting to get tingly now too but not painful. Thursday will be my 3rd carboplatin so then will only have one more to go. 
Am I right in thinking you’ve already had surgery noodledoodle? If so what surgery did you have? I have a double mastectomy next, with lymph clearance on my left side, already had my right lymph’s removed. I’m not looking forward to surgery but it will be good to be done with chemo! 
Glad the first one has gone okay for you, I hope the rest run smoothly. Xx

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi all

Well, we are all rattling through these chemos at a fast rate! Won’t be long before we are on the other side and a bit of normality, instead of this surreal cancer world we are living at the moment. 
@Michelle21 Had my first Carboplatin and Paclitaxel and haven’t been too bad at all. Lower back and pelvic twinges and achy legs, ever so slight nausea once. Much better than the EC so far. Just Paclitaxel next week, so I am presuming that will be easier too? How did you find it? 
My brows have finally gone too, although I didn’t have many to begin with. My lashes are not too bad. I have been using a lash serum for past 6 weeks. Don’t know whether it has made any difference as I may not have lost them anyway, or they may disappear soon. Who knows?🤷‍♀️
@Sammy73 @you are so right about being thankful we are on the radar and there will be Poor people living normal lives, not knowing they have breast cancer. I was just thinking about this the other day! So scarey. 
We all hit walls at various points, we just have to remember they do lift and good days are ahead. 
@TicTok nothing like a break to get you back on track, especially enjoying your Grandson. 
Be assured Boris will be cowering in a corner, dreading his next pasting, so bring it on!
Keep up the good work everybody. The finishing line is in sight!😁😁

 

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Sammy73 so sorry to here you hit a wall 😳stay focused we are all doing ok and look forward to that holiday 👍…. It was Norfolk where we went ….. have fun in the pool with the 🐕😁xx

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi @Sammy73  sounds like your last EC went  out with a bang! I hope you still managed to enjoy your birthday. I can’t believe you had 7 injections now wonder you were in spasms but at least there shouldn’t be any problem with your blood count on 27th. I know the injections are doing me good but they always make me feel bad. 
Enjoy the rest of the weekend in the paddling pool with the dog! 

Sammy73
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Welcome @gardengirl200

Hi everyone, well what an odd week it's been, as it was my last EC I was killing it!!! I thought, birthday vibes took over and then I hit a massive brick wall!!! Not felt this bad throughout sofar!! I also had extra injections to make sure my blood count was up but after 7!! I rang the chemo team my bones all over, rib cage back hips legs just kept going into spasms!! Truly hideous. Once I had spoken with the line manager and was told to stop doing the injections I actually realised how awful I felt and I had been a right miserable bitch for the last 5 days!! My poor man!!! Anyway moving on swiftly I start my first T which is deceased on the 27th then we go to Norfolk on the 2nd of August and I'm buzzing for that so hope it gets me through!!

@Love running a friends daughter was diagnosed about a week after I had my mastectomy and I really felt for her, shes had a double mastectomy now and lymph removed and they had to go back and operate again!!! I felt lucky weirdly that I hadn't had any complications. Also I look around and think how many people don't know!!!! There's so many people in this world and 1 in 2 people get cancer now they say, at least we are on the radar and being treated. 

Hope you all have a lovely weekend, we've blown the paddling pool up, for the dog!! Obvs!! Im getting in later I'm sure. 🤪

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Coastal  I hope the house isn’t too quiet for you this weekend without your daughter home. Hopefully you can make the most of having the house to yourself. Well done for going back to work even a few days a week must be a great break from being in ‘cancer world’ also it must make the time go a bit quicker. 
@noodledoodle how are you finding the carboplatin/paclitaxel? Hope all is well.

How is everyone doing with their lashes and brows? My brows, which have never been thick, have almost disappeared completely and I have a few lashes left but not a lot. I find putting liner on the upper inside lid gives the impression of lashes, if you don’t look to closely 😂 and am drawing on brows which I never normally do! 
I have 6 more weeks of chemo, it feels like I am on the home straight but I wish I knew if it was working or not. My halfway scan after 3 FEC showed not a lot of change so I’m hoping the carboplatins have knocked it out of the park. It is horrible not knowing. 

Ive been pulling up weeds this morning in out very neglected garden, I’d like to say it looks lovely but it’s still quite a mess! I hope everyone else is enjoying the weekend. It’s so hot today had to stock up on Magnums! X

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok  Glad you had a lovely time with your grandson. I hope the halfway scan shows the chemo is shrinking your Boris! 🤞 for you.

@gardengirl200  good news the Docetaxol is ok for you. How many more do you have? 
 @Love running  I was on for tamoxifen for 3 years before this cancer came. It used to give me a lot of flushes so I sympathise with you. It can be so embarrassing when you are trying to hold a serious conversation and have sweat dripping down your face. Hopefully they will ease off for you soon. 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hello everybody and welcome @gardengirl200

@gardengirl200 I did not welcome you yet, my apologies. I am sure you will find this forum as helpful, caring and supportive as I do. This forum gives me the strengths when I feel low, the reinsurance that I understood and not alone. It also makes me laugh because there is also some humour in our experience sharing.

Today, I just found out that a colleague of mine was told she has BC. Although, we are not that close, it really made me sad. She is younger than me and just returned from her one year maternity (Swedish maternity leave are about one and half year to share between the mum and the dad). It feels unfair but noting is fair with this disease. 

Otherwise I have been lucky enough to go through my second paclitaxel rather smooth (only 10 to go). I have only been suffering from sleepless nights (hate the steroids snd the heat) and massive hot flushes (it is also very very warm over Sweden right now). When I say massive, it is an understatement: I basically sweat from every pore of my body. It is so embarrassing when you are in public and you are literally like a water fountain and your clothes start sticking to your body. You feel the sweat running down your back and other less pleasant part of your body 😂.  I wish I am the invisible woman at those moments. There is nothing I can do to prevent them. I almost wish for winter but I know it will be the same as I will need to take Tamoxifen for 10 years. 
BC keeps on giving…

Anyway, I hope you have all a pleasant weekend building the strength for the next rounds of treatment. Monday is round 3 for me and I like to think about it that 1/4 has be achieved then.

Hugs to all of your brave ladies❤️

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Morning ladies , back from our break with our lovely grandson , to see him so happy and having fun was a tonic for me 💙had a lovely time although I was very tired and feeling the cold at times .

Glad to here things are going smoothly for everyone at the moment gardengirl200 glad the docitaxel is going ok 👍

I have had an appointment come through at the hospital the day before my 4th chemo so I am hoping they will be checking nasty Boris out 👹and hopefully my treatment will be working 🤞.

enjoy the weekend ladies and take care xxx

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Good news docitaxel went ok @gardengirl200 hope you are coping with any side effects ❤️ I love your user name, I've really got into gardening since lockdown and now make my teenage daughter watch gardeners world! She's not amused! 😨  I know what you mean by it being quiet without the kids, my partner is taking my daughter camping next weekend and I know it'll feel strange without them.  My son's at uni and staying there until August, I do miss him.  Really good that your oncologist is nice, We don't have an allocated oncologist here, but might see any of the team, some are lovely, others don't give you much time.

I've just gone back to work for a couple of days which has been tiring but feels so good to be doing something normal.  I'm only going to be doing a couple of days every other week to try and have a phased return.  I've missed seeing my colleagues so that felt good catching up with them.  

Hope everyone's ok, lots of love to all x

 

gardengirl200
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Thanks for your message @Coastal . I completely agree about trusting my consultant. I had only second face to face meeting with her yesterday and I came out feeling reassured that I was being looked after by a clever, considered and experienced woman. Put me in a really good mood for the rest of the day. Coincidentally, I shared a flat at Uni with 3 medics who were in her class at Uni and they all remember her and say she was good then. Good to hear. 

I loved Wimbledon too - really got me through the last fortnight and the days when you feel you can only take it a day at a time. Last week my 2 teenage kids were on holiday with my ex husband snd the house felt very quiet. Thank god for the tennis and even the England football matches. I’m in Scotland but was definitely supporting England. So sad about the harsh result. 

First docitaxel received today, and so far so good. Lovely staff as ever. 

Hope everyone having a good week. 

Coastal
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi all

It's been a while since I posted, I've been up and down again (emotionally and physically drained again) but feeling a bit better now it's the second week again.     

@Michelle21 I'm so sorry to hear your news about your mum, my thoughts are with you this week and on the 19th.  Do take care of yourself at this time, sending you all my love and gentle thoughts for you xxx

Hello @gardengirl200 lovely to have you here - I do find it very positive to have others to talk to also going through it all and everyone is so lovely here.  I am also half way through my 8 treatments (4 EC, 4 paciltaxel).  I have ductal invasive bc but also ER positive, HER negative with 4 nodes involved.  The oncologist was very clear that for me it was important to have chemo so I didn't have a choice.  I do feel comforted having chemo knowing that I'm doing all I can to try and avoid reoccurrence even if it's only a small % of protection, it's worth it, I tell myself that anyway!  I do also trust in the oncologists to know the right path for us, at least there is so much research done on breast cancer that they have treatment pathways mapped out for them so hope that we are given the most effective one for us.  I do hope that your first docetaxel goes well!     

@Love running really glad to hear that your first paciltaxel gone ok!  I'm doing this every two weeks for 4 sessions rather than weekly, hoping it's not too bad.  Glad your friend feels it's been easier for her!  that's encouraging.    I would totally welcome having reverse constipation!  

Hope you had a lovely birthday last week @Sammy73 - and the steriods weren't too bad on your special day!  I hate them too.  I have a really bad three days when I don't do anything apart from watch telly 😂 and try to keep my brain distracted from negative thoughts.  It's such a relief when I come out of it again.  

@Karden I hope your radiotherapy set up appointment went well/goes well!  How wonderful that your hair is growing again! - you must be delighted to have got to this point again.  I feel very embarrassed to say that I still find my bald patches very depressing to look at, so even at home wear a cap or scarf.  I have also had a stye in my eye so not looking my best!        

I have been enjoying watching the sport - Wimbledon and the cycling (even tried the footy which I'm not so keen on generally).  I'll be having my first paciltaxel next Monday and will then have the Olympics to entertain me!  Hurray!    

Hallo to all the other lovely people on the group.  I hope that chemo and life is treating you well.  

Lots of love to all xxx

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Thanks everyone for all of your kind words of support and @Sammy73  for your advice, sorry that you lost your husband that must have been terribly hard. 
@gardengirl200  welcome to the thread, I’m sure you will find everyone here very supportive and inspiring. 
@TicTok glad you have switched up arms. I bruise from bloods too so finding the picc a godsend. 
@noodledoodle I can’t believe I’ve had two carboplatins already either. After my next chemo on Thursday I will be halfway through this part of chemo. Good luck with yours. 
@Karden how are you finding life post chemo? How is the hair, brows, taste buds etc? 

I am at the festival of speed at Goodwood today. We booked it last year and it is one of those trial events with everyone tested or double vax’d. It’s outdoors so feels pretty safe and quite normal. Generally people aren’t wearing masks but I’ve kept mine on. My eldest daughter loves F1 so she is loving it. It’s nice to go out as a family what with covid, Cancer and my youngest in Uni it’s been ages since we all went out together.  I must confess I got a bit cold and tired so having a break in the car! 
I hope everyone has a SE free week and any treatment planned runs smoothly. 
michelle xx

gardengirl200
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Thank you everyone for your replies. Yes, you never realise until you have breast cancer that there are so many different types! Who would have thought we would get a grip on all the lingo!  I'm glad to hear that generally you are all coping well. And thank you @noodledoodle re that info on your sister. Reassuring. Hopefully the chemo is making some difference. But gosh, you and your sister are going through this at the same time. I can't imagine whether that makes it better or worse. 

 

Good luck everyone with the treatments this week. 

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

 Not sure what happened with the end of the post😂😂 Glad to see everybody coping well and galloping to the finish line 🏁 keep up the good work and take care xx

noodledoodle
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi all

sorry not posted for a while as been away for a break after finishing EC and before starting weekly chemo. 
So sorry to hear about your mum @Michelle21 You are going through such a rough time, but you will be okay. One step at a time and our thoughts are with you. You are doing amazingly well. 
I start my paclitaxel and Carboplatin on Tuesday. It is so reassuring to hear how well you are handling it and I can’t believe you have had 2 Carboplatin already. How fast has that gone!

@gardengirl200 My sister has lobular BC and has had the test done for chemotherapy and she was offered it. She is currently in the middle of chemo too and doing well. She too had nodal involvement and has had mastectomy first. everybody is different and I am sure your team would not have offered you chemo if they didn’t think it would be of benefit to you. Good luck with the rest of it, I am sure topee PPP

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Gardengirl200 Hi and welcome to our lovely group I have stage 2 cancer with 2-3 nodes 14 ml with 30 ml calcification around which will have to be also removed , I have just had my 3 rd Docetaxel and I have had no problems with it is only the steroids that cause sleep issues …. I have a scan before my next and final doxetaxel then I an changing to a new mix for my next 4 . 
good luck for Wednesday x

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@gardengirl200 Welcome to this group, I think you will find it really helpful and supportive as I have done.

I had 4 cycles of Docetaxel with cyclophosphamide, pertuzamab and Herceptin between December and Feb. My main side-effects were diarrhoea, mouth ulcers and fatigue and a change of taste. I went off my favourite cup of tea for the duration but my taste returned as soon as it finished. There was also hair loss and weakened finger nails which developed white ridges and when these grew to the top of the nail would break off. They have now recovered too.

I then had a lumpectomy and 7 lymph nodes removed. My tumour was 2.5 cm and HER positive and the Docetaxel reduced it to 0.5cm.

My FEC phase of chemo started at the end of April and ended last week.

Everyone gets some of the side-effects but not all and my oncologist said that I had tolerated it well. I am 61 and in good health before all this.

You will get through it and remember to ask for and use any meds to manage the effects, it really makes a difference as well as having a good old moan on to this group. We are here for you. xx

 

 

 

gardengirl200
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hello all, 

I’m new to this forum; I so wish I had discovered it back in May when I started my chemo. I am now half way through, having had 3 rounds of EC and I start 3 rounds of docitaxel on Wednesday. I was diagnosed with lobular BC in March ( ER positive, HER negative) with a 5cm lump and 1 positive lymph node. I had a single mastectomy in April. 

I have been reading the threads on another board and I see some have had bad reaction to docitaxel. Have any of you had it yet and how have you found it? 
Also, on another thread on another board there was a discussion about lobular cancer and it seemed a few people diagnosed with lobular were offered a test which for them determined that chemo would not be of benefit. I wasn’t offered that test ( just the option of a clinical trial which after a lot of thought I decided not to do) and I am now half way through chemo. Is there anyone else on this board who is having chemo who has had lobular cancer?  Because inevitably I am now wondering if the chemo is actually making any difference. 
sorry if I’m covering ground already covered earlier on this board. 

Sammy73
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 

So sorry about the loss of your mum, such alot to cope with, sometimes small chunks at a time is the easiest way. Try not to let things become overwhelming. Easy to say I know, when I lost my husband, 5 years ago, I wrote everything down, pages and pages but I could tick things off slowly rather than get flustered at it all.

I think people attending the funeral will understand you wanting to keep covid measures in place, it's your family's decision not theirs. Big love and hugs. Xx

Poacher65
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 I am sending you much love at this sad time. I am so sorry for the loss of your Mum. Xx

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Michelle 21 so very sorry to here about your mum😢you have a lot to deal with xx

 I Did change arms as I also have a massive bruise where my bloods were took on Monday all went ok though .

love to you all xx

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Love running thank you

for your kind words, it is so helpful to have the support of such wonderful women xx 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 

I am so sorry about your mum. I send you all my love in these difficult moments and wish I could take some of the pain away from you. If you want to restrict the numbers of attendees and ask for face masks and social distancing at the funeral, people should understand and respect your choice. It is a wise choice, considering the current situation with the Delta variant and also that going under chemo makes us more susceptible to infections in general. 

You don’t need the blood transfusion to make you a superwoman, you are a superwoman. With all the things you are dealing with and still finding time for nice words to all of us, you are definitely a superhero in my eyes. Thank you.

sending lots of love and hugs.💕

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Karden  thank you and I am sorry you have also lost your mum recently. You too must feel like you are travelling a strange path, losing your mum and then being diagnosed. There is never an easy time for either. 

I seem to be going along okay and then remember my mum has died and it washed over me like a big wave. 

Thanks again for your kind words xx

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Karden if you ever come back to Sweden for work or for fun and pass by Stockholm, I would love to show you around. It is a beautiful city, quite close to nature. Next summer, I have planned to walk part of the St Olavleden pilgrimtrail, it is the northernmost pilgrim trail in the world. It goes from coast to coast, from Sweden to Norway.  if any of you is interested😀

I hope the rest you took last week build up your strengths and that you can enjoy your two weeks of respite - it is so precious. 

I am longing for my hair to grow again and dropping the cap. I am mostly wearing caps and embracing the hipster look 😂 because I cannot tight a scarf without looking like a pineapple. I have not worn my wig either, it is too hot at the moment.

I am curious how my hair will look like when it grows back. I am a brunette with very straight hair but I had grey hairs coming through before they fell. In my wildest dream, they will be curly and blond. It will be interesting, but it will be a while (I guess not before November)

Have a good day

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 

@Michelle21 I'm sorry to hear about your Mum Michelle, you must be heartbroken. It will be a difficult time for you on top of your treatment. I lost my Mum almost a year ago on 22nd July and I have some idea of how surreal it must feel.

Don't push yourself to do too much and take care of your own needs. Let people help you when they offer. Re social distancing and mask wearing - it's your choice to continue with this if you wish. I'm sure people will understand when they know that you're having treatment. 

Sending much love and a virtual hug. xx 🤗❤️

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Michelle21 I'm sorry to hear about your Mum Michelle, you must be heartbroken. It will be a difficult time for you on top of your treatment. I lost my Mum almost a year ago on 22nd July and I have some idea of how surreal it must feel.

Don't push yourself to do too much and take care of your own needs. Let people help you when they offer. Re social distancing and mask wearing - it's your choice to continue with this if you wish. I'm sure people will understand when they know that you're having treatment. 

Sending much love and a virtual hug. xx 🤗❤️

 

Michelle21
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Hi everyone 

I haven’t been feeling very chatty lately. My beautiful mum died last week. As you know I knew it wasn’t far away but that doesn’t take away the pain of losing her. My life feels surreal, my diagnosis, mum getting ill and dying, it’s difficult to believe it is all happening. Anyway we have her funeral planned for 19th which I’m a little nervous about as all restrictions end then so no face masks or social distancing 😷😱

Its good to hear everyone is getting to the halfway mark. That is a real milestone for us and feels like the home stretch. I hope that everyone who has a change in treatment tolerates it well. Today I am having number 5 of paclitaxel which I seem to cope well with, very few SE’s. Every third week I have carboplatin which caused me to be anaemic after the first one so on Monday I had a blood transfusion. Hopefully that will make me like Superwoman! I think it takes a week to fully kick in but I already feel a bit better. 
@Love running Your holiday sounds and looks fabulous. I’m sure your children will have a lovely time with their grandparents.

@Sammy73 Happy Birthday! I hope you are able enjoy your day even without much sleep. I hadn’t heard of Rick Stein at home, it looks delicious. I did a cookery class at his place once, it was really goood. 
@Karden Yoy must be so relieved to be putting chemo behind you. It has been quite a drawn out process for you with surgery in the middle but now your hair can grow and grow! 
@TicTok how are your veins feeling now? Did you swap arms? 
@noodledoodle have you started carboplatin/paclitaxel now? If so how are you finding it? On the whole I’m not finding it too bad, I have done 2 carboplatins now. 

Best wishes to all xx

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Sammy73 I hate the steroids… they mess you up physically and mentally. 

I wish I could wipe your tears and cheer you up on your special day. I send you lots of love and hugs. 

Karden
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

I have been reading all your posts but apologise for not replying individually. It seems that everyone is coping well and dealing with whatever comes along.

I must say though that @Love running you have had an amazing holiday and the photo is stunning. I have visited Sweden in the past - Gothenburg and Marstrand, and I loved it. It was for work though so I didn't have too much time to see everything.

I had my final FEC a week ago and I slept on and off all day on days 3-5, it took much longer to get over it, maybe the build up effect? I'm ok now and enjoying the respite before starting on the Letrozole and Ibandronate in 2 weeks. I have got my radiotherapy set up appointment on Monday.

My hair has started changing from spiky stubble to soft fluff so I know it's starting to grow again. White and grey at the moment but I will see how it goes.

Best wishes to everyone. ❤️

Sammy73
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Re: MAY 2021 CHEMOTHERAPY STARTERS

Thank you x

Sammy73
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Thank you @Love running 

I'm red puffy faced and cried most of the night cos I couldn't sleep!! Joys of steriods!! Doesnt normally bother me. Anyway will try and make the rest of the say passable xx

TicTok
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Re: MAY 2021 CHEMOTHERAPY STARTERS

Sammy 73 …. Happy Birthday 💐have a lovely day xx

Love running
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Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok Good luck today. 

Love running
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Re: MAY 2021 CHEMOTHERAPY STARTERS

@Sammy73 Happy birthday 🎉💐🎂🍰. Have a wonderful day.

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Coastal 

Day 3 after paclitaxel, and it has been going well so far. No nausea at all. I got so tired right after the infusion, probably due to the anti-histamine to prevent any allergic reaction. So I took a nap but then of course the steroids kicked in later in the evening and I could not sleep. Binge watch TV series.

So apart from a bad night and my face looking like a cocktail tomato or full red moon (from the steroids too), I have not experienced anything bad yet. Oh, I am not in need of Movicol 😂 - I have been warned that it might have the opposite effect and it does. Hopefully, it can regulate itself to a normal flow in the coming days...

My friend Lin which I met at the clinic and who is two weeks ahead of me (so on her 3rd paclitaxel) feels that paclitaxel is much gentler than EC. For her, it has been day and night. 

I have not heard about the iced gloves and socks but my oncologist told me the same than you, that if I experience any of the numbing in the fingers or feet, she will adapt the dose and even reduce the number of it (to a minimum of 9 instead of the full 12). Although it is reinsuring, it is still scary. I cross my fingers that you and I are going to go through these 12 weeks without loosing our touch and feel. Let's hope we can get through this smoothly.

Hugs, 

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@TicTok Give Boris good kick in the b... from me too😉

Love running
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

@Sammy73 good to hear that it went fine today and that you can fully enjoy your birthday celebration and 3 course meal tomorrow. 

 

TicTok
Member

Re: MAY 2021 CHEMOTHERAPY STARTERS

Bloods all ok 👍….. so here we go again ….. going to give Boris another pasting 👹

love to all xxx