66469members
350419posts
cancel
Showing results for 
Search instead for 
Did you mean: 

March 2020 Chemo Starters

Highlighted
Member

Re: March 2020 Chemo Starters

Jill

welcome lovely 💐💜x

Highlighted
Member

Re: March 2020 Chemo Starters

Hi ladies re head wear after we have decided to let our locks ' go !!   not an easy decision 😔😔    So i got all my beanies n scarves etc off ebay.  Just entered chemo head wear and up they popped.. didnt cost a fortune and were good enough for me 👍

different styles, materials and colours.

im 7 months post chemo now and hair has returned thicker than before.  See if i can load some photos....   BIG hug to all you lovely ladies out there fighting this CANCER battle.

stay safe and stay well xxxx  mini mad xx 💖💖BCB0D080-621E-4DFD-ACAE-D7B8A35CB505.jpeg

Highlighted
Member

Re: March 2020 Chemo Starters

Benj - just seen your post. At Chemo Headwear i think headwear start at £40 upwards and go upwards depending on style and fabric

Highlighted
Member

Re: March 2020 Chemo Starters

Hi all

So lovely to read your messages and despite the hideous things we are dealing with to just know how we are all in this together. I am really a Feb chemo starter but joined the Jan one in chemo fog brain and have now looked here and wanting to share here too!

Chuck - mouth ulcers - I had them the first time but oddly not the 2nd but I found a gel called Iglu really helped as it seals them.

Ju72 - I got very anxious last week about what was happening with my treatment so called my chemo ward who arranged for the consultant to call me before my planned appt the day before my next treatment. For a couple of days last week I felt like the breast cancer had been eclipsed by covid-19 which was so upsetting but then I somehow became pro-active with reaching out and also called my breast care nurse and came on here, to thankfully find the reassurance I needed. My telephone appt is tomorrow so am rather apprehensive whatever the outcome.

I have also been self isolating Hannah as I live alone, and even though the support from family and friends has been incredible, it's just not the same as being with people. Last week was literally the toughest of my life as i was dealing with the chemo side effects of raw skin down below, rash from antibiotics, lost voice etc etc. I was crying constantly and had to write a daily list to remind myself of the things I needed to do to look after myself. The last 2 days I have turned a corner and what has helped massively is knowing that my 25 year old son will come to stay with me in a couple of weeks after he and his dad will self isolate together first. I wonder how long before I annoy him! Also my partner has built a seating area in the front of the garden for visitors so they can keep the required distance! I'm lucky to have a front garden to make it possible to clap eyes on friends. 

Finally, just to say about hair loss - I decided I couldn't handle the cold cap so once my hair started coming out, my head was shaved as I found the strands of hair all over the place quite distressing. Luckily I got some headwear specifically for people with hair loss, the week before. Claire, of Chemo Headwear, Lodsworth, West Sussex was fabulous when I visited her and has a vast array of styles and fabrics. I'm sure you would be able to speak with her and look at styles online. I am pleased with mine and they keep the back of my head warm, which seems to be constantly chilly.

Anyway I seem to have rabitted on a bit but sending warmth and love to you all.

Jill x  

Highlighted
Member

Re: March 2020 Chemo Starters

morning 

thankyou for my advice everyone I have just phoned our advice line re my rash , which has now gone thankfully. I have a telephone consultation with consultant on 8th they said i must mention it then.

Also yesterday afternoon the pain in my hips and legs got really painful, paracetamol didnt touch it. I asked if i was ok taking ibuprofen as it had been in the news , they said it would be fine for joint pain , as long as not for symptoms of cov19.I  did take codeine i was given after my surgery which did help. this has also gone now thankfully so lets hope things settle until cycle 2. and the heat pack certainly helped

Hope every one with children manages through the Easter hols. lets hope it warms up abit

Ju72 hope you get an appointment through. i think the hospitals policies are changing daily,.Fingers crossed things continue for now

on a lighter note i did google Beanies yesterday, clicked on designer to see how they differed.... clearly by cost only. Selfridges have loads over £350-for a hat! 

Take care x

 

Highlighted
Member

Re: March 2020 Chemo Starters

Hi witch hazel and ju72 and welcome to our lovely group 💓x

Highlighted
Member

Re: March 2020 Chemo Starters

Evening everyone 

Had my first chemo on the 13th , had a few side effects but I've managed them ok. Had the filgastim injections too , must admit wasnt looking forward to having to inject myself but I put my big girl pants on and managed it ok. Had more side effects with these than with the chemo. The weirdest one was a warm feeling around the chest area however this didnt last long and happened on day 1 and 2. 

Currently on day 17 and so far no hair loss. Although I'm sure it's coming.

Pretty anxious over the virus looming over us and what this means for future treatments. I've heard some have been cancelled,  and those thay arent the cold cap option as been removed,  is this right ? Or does it vary depending on area. Also heard no plus one whilst having chemo.  All speculation for me at the minute . I'm hoping I hear from my team early this week, seems I've got bloods on weds and supposed onco app on Thursday. Not had any correspondence to say it will be a phone consultation yet. But I really dont want to attend a general hospital at this time. 

Oh and I've never been so hungry , I'm going to be the size pf a house by the time I've finished treatment. 

The Joy's... 

Hope you're all well and keeping safe . X

Highlighted
Member

Re: March 2020 Chemo Starters

Hi all, I started chemo 17 March, 6 cycle FEC-T, so like many of you wondering if it will be continued or cancelled (and where I should turn to for a blood test, as my GP's surgery may not be the best idea!). Am somewhat concerned I haven't had a letter re the dread corona yet, as it may be the only way of ever getting access to an online shopping slot!

 

I had filgrastim for 5 days after the FEC, wasn't sure I could manage injecting myself but advantage of big boobs was I couldn't really see the the needle! Did bruise myself a couple of times.

 

Today's the first day I haven't felt constantly nauseous, which has been a relief. One thing I hadn't planned for was having ginger biscuits and mint tea make up such a large part of my diet.

Stay well all x

Highlighted
Community Champion
Community Champion

Re: March 2020 Chemo Starters

Benji1812 please just ring your rapid response number in the morning and tell them about itching and rash 👍 always best to ring and get everything checked out while on chemo, it’s not like usual so always ring and check, your unit will be pleased you are being vigilant. If your wee burns but no temp, it’ll need antibiotics not just a bit of cranberry juice, if you get thrush mouth or down below again it’ll need antibiotics and get fluconzole tablets don’t get fobbed off with drops ❤️ Cry, dance, laugh, do what ever you want to ❤️ You are still you and still fabulous don’t forget that ❤️💕💕Shi xx

Highlighted
Member

Re: March 2020 Chemo Starters

Wildspur 

sorry to hear you been rough
i feel like I have had a rough few weeks.

i know what you mean about home schooling I’m floored!

i also have the chemo fog so you aren’t alone there

sending hugs ♥️

 

Highlighted
Member

Re: March 2020 Chemo Starters

Hi Benj

and welcome to our lovely group. 
just to say filgrastim is on one hand amazing and the other painful.I had a few bad days with them.Epsom salt baths,hot water bottles and paracetamol is what got me through.Hope it settles for you soon.

no two days the same and I have regular wobbles and crying.

all here for each other 

hugs 💝💐

Highlighted
Member

Re: March 2020 Chemo Starters

chuck and Shi  HI

thankyou for the welcome.

i think while we are isolating this will be more helpful than ever.

it made me fill up just getting a reply. i have found this week iv just cried randomly, particularly if someone is kind, even just an encouraging text, or for nothing. My hubby keeps says Whats up? and i just say dont know. hey ho

and itching at night -so far iv just used cream or a cold flannel, wasnt sure if piriton was allowed?iv got a mild rash to my thighs and forearms, but only seam to notice it at night

every day is a learning curve.

thanks again

Highlighted
Community Champion
Community Champion

Re: March 2020 Chemo Starters

Benj1812 ❤️ You can get wigs from amazon 👍 I found the steroids sent me into wig buying frenzy back in 2017, coloured bobs, tinsel wigs the lot 👍 hang on tight ❤️The March 2020 gang are amazing and you will all get through together 💪💪💪 use the number at the top of you want to speak to anyone, there is the someone like me and ask the nurse and lots of 👭everywhere on here. 💕💕Shi xx

Highlighted
Member

Re: March 2020 Chemo Starters

Hi from the February 19 ladies xx

 

I noticed the question on filgrastim. I was only due to have it for docetaxel, I didn’t have it for my first two FEC as I was told the docetaxel was much harsher and so the immune system needed a boost on those cycles. But then I had an infection on second FEC and because my neutrophils and white blood count had gone down I was given them for the last FEC too. I had 10 each time so 40 in total! Hopefully you guys won’t need so many, I seemed to have more than almost anyone else I spoke to online! I think it’s just different at each hospital. Some people are lucky and have one super duper one only but it’s really expensive!

 

Hope you are all ok it’s such a worrying time at the moment, but you’ll all do great xx

Highlighted
Member

Re: March 2020 Chemo Starters

Hi Benj, 

When I started my treatment last Wednesday it was so hard for my husband to just drop me off, I felt so awful for him as we had made the pact to get through this together and now I’m on my own. However when I was there and having my treatment, I was able to properly talk to the sister that administered each syringe of liquid. We shared stories and I learnt so much. He is now my getaway driver lol as soon as I’m done, we’re off 🏎!! The funny thing was after he dropped me off, I totally lost my bearings and ended up in totally the wrong place lol! 

I’m on injection number 4 💉today so I will await the joy of pain tomorrow 🤣 I do remember my nurse warning me to not take ibruprophen more so due to the effect on your stomach but check with your nurses. Hot water bottles all the way mate ❤️🧡

My hair is just thinning at the minute and breaking off, I’ve got a wig but just going to stick with a beanie or scarf.
Wow, another NHS angel on here 💙 you amazing person, totally get the missing of colleagues, mine are like my family. We have FaceTimed more than ever on good days, I just text on bad ones, but the coffee will brew again hun ️ Stay strong mate 🌈

Highlighted
Member

Re: March 2020 Chemo Starters

Hey Wildspur, 

I’m feeling your worries mate, as if we’ve all been landed with one of the biggest battles to contend with, they pile the end of the world on top 🤯 Blooming good job we’re strong enough to deal with it! 

Don’t push yourself too hard with the homeschooling of your 6 year old my lovely, the best thing ever sit and read a story or when you’re on a good day, bake. Play shops and have fun! Paint, draw on sunny days a bucket of water and a paintbrush to paint on the walls, just sit and watch. Cosmic kids is a great YouTube video she does yoga to stories, my class used to love them. 
The brain fog, man I’m with you! Planned so much for this afternoon but ended up curling on the sofa with my eldest watching Walle! It was great lol! Feel huge amounts of pressure in my head at the minute but paracetamol seems to ease it. 
I am on the injections for 8 days they said they were immune boosters against sepsis. My drugs were administered via cannula so maybe that’s a difference? Don’t like them I have to admit, I’ve got stomach ache and back ache but would you believe it’s because I’m also having a bloody monthly lol, I mean really you couldn’t write it 🤣😂

 

Stay strong hun, and give yourself and your body time to heal, tbh this is the perfect timing to do it.😂 Stay positive, we can do this 🌈

Highlighted
Member

Re: March 2020 Chemo Starters

hi

Iv been following this thread this week and has taken me til now to register and be in touch. MY IT skills are poor.

My name is Helen and also started my chemo (EC) last Friday 20th. it is all still surreal going through this and the challenge of Covid19

it is reasurring that I can relate to every one on here.

I had a lumpectomy 4 lymph nodes removed 4th feb,18th march was told I needed chemo, PICC line fitted 19th ,1st chemo 20th.  I was told they wont use a cold cap due to covid19,and then i had to be treated on my own as no visitors allowed . Its scary going through it isnt it and then having to do it alone! I understood why , but still struggled with it.

I have done 5 injections of Filgrastim, last one yesterday. ,well my fabulous daughter has(16 yrs, and my rock). my friend warned me she had bad pain with it , and up until today iv coped well , but walking is painful today. have managed on paracetamol and dyhydrocodiene so far but will ring the hosptital if it doesnt improve. Does it get better after afew days???? Id avoided ibuprofen with it being highlighted in the news

On Friday my husband flushed my PICC line which was another challenge, they said it was the safest way to do it. lets hope that gets easier over the next weeks.

So all wig shops are shut, id ordered one quickly Friday before my chemo but now its closed. I know every one is in the same boat but Im on day 9 just waiting for my hair to fall out. my nurse said from day 10 it can happen , what have people found? i have ordered a couple of beanies

My son is at Uni too, like afew, he'd rather isolate with 6 mates than with us but when i have a weepy moment I really miss him here.

I hope i get to know you all over the next weeks/months.

i miss my running and coffee with friends. I also work for the NHS at a hospital and miss my lovely colleagues.  I can only hope having a warped sense of humour will get us through this. Iv never had a day off work in 25 years, certainly banking it all now.

Hope youve alll had a lovely weekend. thanks in advance

Highlighted
Member

Re: March 2020 Chemo Starters

Just saying hello all. And to Hannah and Chuck!

 

It has been a strange few days. Just reading through all your threads! Wow you have been busy! Looks like we are all very much in it together at the moment! I still feel extremely overwhelmed by all of this, the chemo, the Covid, the homeschooling of a 6 year old. I am sure I will find a new normal but at the moment I want to just hide!

 

I had my second chemo on Tuesday - I am having EC (epirubicin and cyclophosphamide). The third of this treatment will be in three weeks and then I will go on to weekly Paclitaxel (taxol) for nine weeks. Still have to go on a Tuesday for PICC flush etc. Quite strange going to a nearly empty hospital - at least I can get a parking space! Is anyone wearing a mask to hospital?

 

The chemo hit me hard on Tuesday. I was fine with just a headache then felt very nauseous on Tuesday evening, then ok'ish on Wednesday. Thursday and Friday was a complete write off and I was in bed for both days - no food, just liquids. On Saturday I felt a bit better and managed to eat (beige food). But I have a massive chemo fog which is stressing me out. I wonder if it gets worse as the treatment goes on?? I can't concentrate on anything and it is so hard when my son (rightly so) is demanding attention! Hopefully tomorrow will be better and I can try and get organised with a bit of home schooling.

 

Is anyone else on Paclitaxel - I wonder if this has less impact as it is not as intense - smaller infusions every week instead of a massive hit of poison every three??

 

My hair is coming out massively now. Hair bloody everywhere. I decided not to continue with the cold cap as I don't see the benefit - also if I am at home for 12 weeks, who cares! I have bought a couple of beanies. I will shave it off eventually but need to be in the right frame of mind.

 

Also. I asked about the injection Filgrastim as a few of you ladies seem to be having it. I am not? I wonder why? Have you been told that your white blood cell count is down? I wonder if is a NHS Trust thing and it is just pot luck.

 

Sorry I haven't replied to all your comments, but like I say we are all in it together and seem to be going through the same sort of cycles/symptoms etc which is reassuring! I hope you are all as well as can be in the **bleep**e situation!!

 

Helen xx

Highlighted
Member

Re: March 2020 Chemo Starters

Hi Hannah and chuck and everyone 

I managed my yoga 🧘‍♀️ whoop.It will be a while before I can perfect it I suspect but practice and all that!

so good to hear we are able to do something nice on our good days.

i have cooked for us today too,now I’m shattered ha!

This week I’m hoping to go in for bloods and chemo so trying to eat what I can to build myself up 🤞

have a good rest of the day lovelies 💐💓

Highlighted
Member

Re: March 2020 Chemo Starters

Good Afternoon lovely ladies 🌺🌿🐝


So today I got up, showered, put some make up on and did breakfast for everyone, FaceTimed friends and family whilst I felt decent and now that’s me done lol! Plug pulled no energy so back on the sofa with my book 🛋 lol! 

 

Loving the jigsaw 🧩idea, can’t remember the last time I did one. I’m teaching myself to knit too, aiming to knit squares to form a blanket, by the time all this is over I’ll be like bloody rapunzel but instead of hair it will be a blanket falling down the front of my house! Wool and the gang do some amazing, easy to follow videos on YouTube. 
 
Sending hugs and love ladies 🌼🌸🌺

Highlighted
Member

Re: March 2020 Chemo Starters

Hi,

 

glad you are feeling up to a bit more today Jowels! You are right, no two days are ever the same. How did you find your yoga?

 

i am spending a chilled out day today doing a jigsaw and trying to relax. 

I hope you manage a good amazing of food today as well!

 

hoping everyone else is ok today. 

sending lots of love

Hannah 💕💕

Highlighted
Member

Re: March 2020 Chemo Starters

Morning lovelies 

hope you are all doing ok?💐

I am hoping to enjoy my yoga again today as not felt up to it the last couple of days.No two days are ever the same are they.

hoping to manage some decent foods today 🤞

hope we all managing what we can ♥️
lots of hugs 💝💐

Highlighted
Member

Re: March 2020 Chemo Starters

Chuck, that was such a lovely message 😊 - thank you!!! 
I haven’t had mouth ulcers (yet) but was told to gurgle warm water with salt - they did say they could give me something if the ulcers developed - so perhaps worth a call to your nurse? 😘 

Highlighted
Member

Re: March 2020 Chemo Starters

Hi lovelies 

Chuck thank you for your lovely positive message.Think lansaprozole the key defo working for me.

ive managed to eat again today thank goodness and am trying to build upy nutrients before next weeks bloods and hopefully chemo.

for mouth I use biotane mouthwash ;expensive but worth it)and brush teeth quite a bit during the day.

im also having quite a few ice lollies to numb the mouth.Not nice I know but if hurts less as time goes on,well until next cycle!

hope everyone is ok and doing what they can to get through the horrors this is throwing at us.

i sat outside in pjs,dressing gown,hat and sun glasses was lovely despite me looking deranged ha ha !

lots of hugs 💝💓💐❤️X

Highlighted
Member

Re: March 2020 Chemo Starters

Me again, 

just a quick one, anyone got any magic solutions to mouth ulcers? They are starting to appear and annoy me already lol! X

Highlighted
Member

Re: March 2020 Chemo Starters

Hey Julianna,

So good to hear good days are happening for you and the garden has been the saving grace at the minute for many people 🌺🌸🌼. Good luck for your bloods and next round. 
Teammorris, don’t think anything prepares us for losing our hair and the timing of yours 😢 Just look forward to next years. Our hair clippers are arriving soon so I’m practising with whichever of my boys hasn’t finished their homework first lol! Then my husbands hair and then they are shaving mine off! I may selfie our haircuts lol! Stay strong hun 🌻🌈


Hey Jowels, hope you’re ok🌺 I phoned oncology yesterday and they said lanzaprozole too. I have made do with rennies so far as I can’t wait in the queue online of 202,945 people at boots lol, seriously! 🤣

 

Stay strong ladies, one day at a time and even though times are crazy just try to think of it in a different way, the world has gone on hold so we amazing people can heal with the love and support from all around us. The sun shines to give us hope and the birds sing over the sound of us throwing up, peeling, crying, aching but getting there! Here’s to the good days 🌸🌈🐝❤️ Love you all and sending hugs 🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰🥰

 

Highlighted
Member

Re: March 2020 Chemo Starters

Juliana 

so pleased you feeling better.Yes home schooling hard going for sure.Lush at the same time.

good luck for bloods and next chemo xx

Highlighted
Member

Re: March 2020 Chemo Starters

Hi lovelies

and welcome Hannah and Sheryl

since my last post I’ve been feeling much better, had friends calling and making me a feel a bit more cheerful. I’ve also decided to not watch the news or go on Facebook anymore- to live in oblivion to this nightmare will protect my mental health! I have been busy keeping my 7 year old boy busy with homeschooling (even though I’m not putting him (or me!) under  pressure, while trying to cook healthy meals for the family. Fatigue hit me badly Wednesday and Thursday when standing up was enough to make me feel I had just done high impact exercise (very odd feeling) in combination with back and leg pain because of the injections- but today was a much better day, hurray ! 🥳 and even enjoyed a bit of sun in the garden 😊

I Hope I’m fully recovered by next Friday so that I can come in for bloods and then second chemo treatment on Monday 🤞

sending positive vibes to you all 😘 

 

Highlighted
Member

Re: March 2020 Chemo Starters

Thanks Shi ❤️ hope you ok
in my area we only have access to Oncolgy nurses Monday -Friday and on call reg over the weekend.We rang one time and he said he knew very little about cancer and chemo!
my nurses Monday -Friday are amazing so that’s postive.

xx

Highlighted
Community Champion
Community Champion

Re: March 2020 Chemo Starters

❤️Remember to check things with your rapid response numbers ❤️I know trusts have a lot on but they are there for you too and keep safe ❤️💕💕Shi xx

Highlighted
Member

Re: March 2020 Chemo Starters

Shefgirl 

sorry to hear about the pains,hideous for sure.I spent a lot of time in Epsom baths last week as it’s the only relief I got.

hope it disappears soon 

hugs x

Highlighted
Member

Re: March 2020 Chemo Starters

Tmmorris 

so sorry about the hair and the timing of it too.Its the pits.

im with you emotionally wise lots of crying and generally fed up.

Hopefully tomo a better day for us all 💕

Highlighted
Member

Re: March 2020 Chemo Starters

Salsa

so sorry to hear this about your husband.I hope they can him in soon and everything crossed for him 💕

the fatigue is a total bitch isn’t it.

i feel shocking today due to heartburn which then caused me to vomit 3 times -not ideal at all given the sodden sickness I had at the beginning of the cycle.My lovely dad takes lansaprozole and I know that is what I’ll get so I’m starting that tonight.Gaviscon not touching it.An advantage of being a nurse I guess.

feel emotionally I’ve hit a wall-so tired of it all,new symptoms all the time and my bloomin head is killing. Like it’s not bad enough you lose your hair you are sore.

So sorry about the moaning lovelies.

Im doing the same re news I can’t face it anymore.Just praying we still get our chemos.

sending you all hugs ❤️

 

Highlighted
Member

Re: March 2020 Chemo Starters

Hi Tracy. 
Sorry you are feeling so rough. It’s a bit of a battle. Really sad to hear you lost most of your hair on Mother’s Day. That day is emotional enough as it is without that added stress. 
I think we are all struggling with anxiety over C-19. I know I am. And we are stuck with it. We have to self isolate but equally we have to go to hospital fir treatment. Aaaaagh. 
🤯🤯🤯

So sending love 💕 and hugs 🤗 

Take care and hope you feel better soon. 😘 

Highlighted
Member

Re: March 2020 Chemo Starters

Hi Salsa140.

Sorry to hear your hubby has had his biopsy changed to a telephone consultation. Hoping the biopsy goes ahead to put your minds at rest. 
All the best with the next round of chemo. 
It was great standing on the doorstep and applauding the NHS along with other neighbours. 
Take care

Tracy

Highlighted
Member

Re: March 2020 Chemo Starters

Hi everyone,

sorry I haven’t posted for a little while. I had my PICC line fitted 18th March and it’s taking a little getting used to but much easier for bloods and chemo. 

 

Had my 2nd cycle of FEC-t on Tuesday this week and straight to bed when I got home feeling tired and queasy. Seems to have hit me faster this time. Luckily hubby is home to look after home schooling for our five year old daughter as I haven’t felt up to much this week. “Hope you feel better soon Mummy”. 

My hair started falling out of my head on Mother’s Day so not the best timing in the world. I’m wearing a beanie all the time now as I’m shedding hair all over the place. 

Feeling quite emotional with covid 19 - scary time to be going through chemotherapy. Staying indoors apart from hospital appointments and weekly visits to docs to get PICC line flushed. Hoping everything stays on track treatment wise. 

Hugs to all

Tracy

Highlighted
Member

Re: March 2020 Chemo Starters

Hello everyone and welcome to Sheryl and Hannah

So sorry for those of you struggling with the side effects. So far fatigue has been my biggest issue and I really did feel better until about an hour ago when I retreated to me bed. But overall it is better. 
Sorry too about the hair falling. I think it’s a hard thing to face along with everything else. 
I too have stopped watching the news. I do a quick catch up online and then ignore it all. It’s just too anxiety provoking. 
Mixed emotions today. Relieved that hubby and I don’t have to isolate from each other yet but I know it’s soon. He has to go for a biopsy on his prostrate. We were expecting it on Monday when I go in for my next round. But he’s called the hospital and they want to do an appointment over the phone. So definitely no biopsy yet. We want it soon so we can rule out cancer for him. Be a right bugger if we both have it. I’ll be too fecking tired to look after him like he’s looked after me. 😭🤣😭🤣
Hopefully he’ll be fine. Another thing to worry about. 
Really heartening to see the applause for the nhs. 👏👏👏👏👏👏

I like some of the practical things. Like free parking. Should get that all the time. 
thank you so much for your lovely messages. This forum keeps me sane. Sending masses of love to all you lovelies. 😘 🤗 😘 

Highlighted
Member

Re: March 2020 Chemo Starters

Hey Shefgirl 🌸

So nice to hear from you! I have 3 days worth of steriods so will be glad when they’re done. The indigestion they said I could use gavisgon or rennies to calm it and it’s working so far, if not then they will prescribe an anti acid tablet. 

I’ve just installed a drinking app on my phone to make sure I’m doing the fluids. Thanks for the heads up on the injections, I’ve got another 6 to go! 

As for the Disney+ I’m loving the outfits lol!! Go Shefgirl 🤸🏼‍♀️ (Sorry closest emoji to a cheerleader lol) 

 

Happy sunshine day 🌝🌻🌼🌸🌺

Highlighted
Member

Re: March 2020 Chemo Starters

Hi Sheryl and welcome to the group

I too have had the hot face flushes after taking the steroids. How many days have they given you?

Really recommend drinking lots of fluids...helps with the headaches and overall wellness.

I finished the injections yesterday and woke up at 4.30 am with back and leg pain.  Experienced this the last time I finished the injections so paracetamol and a hot water bottle got be back to sleep for a couple of hours.  I know it means that they are doing their job but it is pretty painful.

Also subscribed to the Disney channel so my girls (now 19 and 17) can watch the new High School Musical series as they grow up with the original.  Still have their cheer leading outfits and pom poms some where! 

Enjoy the sunshine today everyone and stay safe xx

Highlighted
Member

Re: March 2020 Chemo Starters

Good morning Jowels, Jill and all other members of this thread, how are we all this morning? Thank you so much for replying to my post, it makes such a massive difference and offers so much comfort to know someone is there. 

What amazing people you are in the nhs and even though you can’t be there, rest assured your certainly helping here. I’m a teacher and wishing I was able to offer more help to my colleagues right now caring for the children they are looking after. 

I will phone oncology today about the steroids, just feel bad about disturbing them at such a manic time. Today’s side effect is peeling skin! Interesting lol! 

Take care everyone, today I’m learning to knit to stay sane inbetween home schooling my two boys lol! Joe Wicks workout is done, next french followed by expanding algebraic expressions omg!! Before listening to the David Walliams story session on his website at 11am. 
Thank you again for listening and caring, love chuck ♥️

Highlighted
Member

Re: March 2020 Chemo Starters

Hi Cheryl and welcome to our lovely group.Sorry to hear about the flushing,I haven’t experienced this,but what about asking your oncology unit?The heartburn is something that I suffer with and it is awful on top of nausea and generally feeling rubbish.

in terms of emotions,I know what you mean.Particularly anxious around whether chemo will still continue in light of the significant pressure from covid 19.

we also did the applause for nhs and all of colleagues and friends.I also am a senior nurse so my team doing an amazing team like so many others on the frontline.I am so proud of them and can’t wait to be back with them.

Good luck with your injections and sure it will get easier.They really do help our body after chemo so it is worth it.

Hope you are managing best way you can and sending hugs 💕

 

 

Highlighted
Community Champion

Re: March 2020 Chemo Starters

Welcome to the forum Chuck - I'm sure you will get lots of support from the ladies on this thread .Good luck with your treatment x 

 

Highlighted
Member

Re: March 2020 Chemo Starters

Hello everyone, my name is Sheryl,

This is my first post so I apologise if i have done anything wrong as in posting it to the wrong place 😕.

I have had my first round of FEC-T chemo yesterday, which apart from feeling like your stepping outside in to a virus battle zone, wasn't that bad. The nurses were incredible and because there were so few people having their treatment it was almost like I imagine private treatment to be. I've just stepped outside to do the sign of appreciation for all the nhs staff at 8pm tonight which was incredible and so emotional.🚑

 

Today, I have been experiencing headaches and flushed face/ indigestion from my what I think is my steroid tablets DEXAMETHASONE, has anyone else experienced this? It doesn't happen until an hour after I've taken them but it feels like prickly heat. I wanted to take paracetamol for my headache but was worried to as it would mask any temperature issues. The 8 days of injections are interesting to do for someone with a needle phobia, I felt so embarrassed that I had to phone the nurse to tell me how to get the cap off the needle before I stabbed myself in the hand! Luckily, there was a calypo ice lolly left at the back of the freezer to provide some numbness to my skin before I did it lol! Only one problem, my son has now found it and eaten it in the garden, so reckon I may need to use a frozen fish finger tomorrow!

 

I actually feel like i'm in the Inside out movie with emotions at the minute, thank god for the Disney+ launch today, is anyone else feeling this way?

Chuck_5-1585255299387.jpeg

To all of you who are going through this experience I just want to thank you for posting, as it has really helped to read about other peoples experiences before I even began my treatment. Take care and stay safe

Chuck_4-1585255037978.png

 

Highlighted
Member

Re: March 2020 Chemo Starters

Hi Ange 

sorry to hear about your hair,not sure if this happened to you but my scalp is so sore.I suspect more hair be gone in next couple of days,I have some beanie scarfs and my wig ready.

oh I forgot about the Gareth Malone thing I’ll try tomorrow thanks.

home schooling is knackering but I’m journaling and doing yoga every day now -20 mins which I’m really loving.I used to do it and then I guess never seemed to have the time.Now I can’t run I can put all my energy into yoga and perfecting the poses.I have a lot of work to do ha!

ive been baking with my son which has been lovely ♥️
doing a family zoom call to my parents and my sis and niece -we do it after our sons school work done at 4pm.Been enjoying that hearing and seeing them 💕

we have been thinking of all the lovely things we will do once I’m well and able to leave the house 🏠.

one day at a time lovelies 💕xxxx

Member

Re: March 2020 Chemo Starters

Hi Hannah and welcome 

Look forward to chatting with you over the coming weeks.  I too am on the fecking FEC and Taxol regime of 6 treatments.  Had round 2 of FEC last week.

How is everyone doing today?  Hope you are feeling a little less fatigued Salsa?

Thankfully my energy levels have risen again and I am eating a more normal diet and enjoying food again.  My main preoccupation at the minute is feeding my family of 4!!  I have a Tesco delivery next Tuesday (which I had to book 3 weeks ago) and today managed to order some veg via a local farm shop.  I am just not used to having all at home eating 3 meals a day and the food supplies are rapidly diminishing. I have no family locally so relying on delivery or the kindness of friends if we get really stuck!

Thank goodness for the sunshine and being able to sit outside as this confinement to barracks would be very hard otherwise.

One positive -  there is no one to see my ever encroaching baldness.  Wearing a scarf around the house full time now and have been actively cutting what remains as the shedding is incessant and I really don't want clumps of hair in my dinner.  I need to watch some Youtube tutorials to see how to do some pretty headwear with scarves etc

For those of you who enjoy singing fully recommend the Gareth Malone Great British Choir which is live on YouTube at 5.30 every day.  Just half an hour and good fun! 

What is everyone else doing to pass time?

Love to all - keep safe and well

Ange xx

And I will be applauding all NHS staff and key workers tonight at 8pm xx

 

Highlighted
Member

Re: March 2020 Chemo Starters

Hannah totally know what you mean.I just don’t watch the news much now as I can just feel the anxiety rising.Im kept pretty busy as we have a beautiful 5 year old son and want to keep positive for him ❤️

I am having 6 cycles of Fecking FEC as we call it, however I’m being told for cycle 2 it’s going to be just EC no clue why so I’ll be quizzing Oncolgist on phone next week before my chemo.

The side effects for me have been horrific so far.On my good week now so eating a lot better but still completely wiped out.

im really hoping we all get to still have all our chemo to time as much as possible.Its so hard for our medical teams making such hard choices but this nightmare is bad enough without extending it.

Hope you can enjoy making your cakes when you are up to it and you able to video call your friends to keep in touch.My girls have been such a great support through all this.

We certainly all  help keep each other positive on here and it really helps to know we in it together 💕

Some days we talk more,some less depends on how things are going.

xx

 

Highlighted
Member

Re: March 2020 Chemo Starters

Hi Jowels - nice to meet you too!

 

I must start sending my team regular messages! What a lovely idea! It is so nice to know that someone else understands the predicament I feel about not being able to help my ward team. I am usually the one that takes a home baked cake in every week so I am hoping to exchange cakes for my food drop offs by friends soon and that will hopefully give me some more routine. 

 

i am currently having Docetaxel, I have three more cycles of that before I change to a different chemo.

I was fine until Sunday and that’s when the side effects first started showing themselves. The bowel urgency is my most distressing symptom so far. Feeling clammy and stomach cramps haven’t been great. 

my main anxiety hasn’t been about the chemo so far, but the Covid-19 situation. Like I am sure it is for many people.  I was watching the news three times a day and that was making it worse so I didn’t watch any news yesterday and that helped!

 

will be so nice to support each other on this forum 💕

Highlighted
Member

Re: March 2020 Chemo Starters

Welcome Hannah 

nice to meet you 💐

I completely understand how you feel about this horrendous situation we are in.I also work for the NHS and the team I manage are working so hard helping as many patients as they can. I also would love to be well enough to be helping in this unpredictable and unprecedented time.But right now I’m not so sure I’d be much use ha ha!

i send my team regular messages to let them know I’m behind them and thinking of them.

How have you found your chemo so far?

Can I ask what you are having?

the fatigue is something else isn’t it.We all suffer with different things at each time it appears.All of it is rotten though let’s face it!

we are all here for each other ♥️

 

Highlighted
Member

Re: March 2020 Chemo Starters

Hello everyone,

 

I have joined this forum to have a chat to everyone here! I started my chemotherapy journey one week ago today on 19th March. I am 30 years old and normally work for the NHS but currently in isolation, living on my own, which is a really struggle.  my side effects so far have been fatigue and bowel urgency!  I was not expecting the bowel urgency at all so thankful I am near a toilet for most of the day - sorry if that is TMI. 

 

I am currently having to deal with my internal guilt that I cannot help my NHS colleagues at these challenging times. I had a few tears this morning about my journey, people who are currently living with cancer’s journey and what the world is going through. 

i am so pleased there are forums likes this where we can support one another. 

H x

Highlighted
Member

Re: March 2020 Chemo Starters

Hi ladies

salsa thank you ❤️Definitely challenging times.But also lots of laughs and I’m making most of what I can do before next cycle.When are you back to get bloods done again?
so with you on the fatigue,it’s really quite overwhelming isn’t it.

i guess it doesn’t help we have the added anxiety of covid on top of it all.So no wonder we are shattered!

my head is much more sore today and seeing more hairs around the house,so guess it won’t be long before more coming out.My lovely husband has ordered clippers to buzz it off when the time comes bless him.

Anyway hope we are all managing best we can 

lots of love ❤️