Katie11, yes scary indeed but at least your dog would have barked to get attention instead of being a quiet sympathiser!
Hi Sodastream, thanks for dropping by, it's lovely to hear from you. We really have been a lovely group here and keep each other going, I think you become like a bunch of meer-cats looking out for one another! It's good to hear that you have stayed in contact with your group and still meet, I hope we can do something like that when we're finished with treatments and surgery as its a very special kind of friendship like no other - like a bunch of friends who meet in a titanic lifeboat! I've made a note of the pharmacy items you mentioned......and wow, the risk taking and saying yes to everything ...... sign me up, I'm already adventurous so goodness knows what else I might try then Lol - still haven't done a bungee jump or eaten oysters yet! I agree about the attitude change - I feel more alive and positive than ever before. I think you realise how trivial your daily whinges were and who needs an adult colouring book for mindfulness when you have BC to keep you bang in the moment! X
I'm from the May 2014 chemo group. Today we went up to London for our annual meet up to celebrate 3 years since we all met on this forum. Just a little ray of hope for you is that all of us are doing really well are healthy and loving our lives since our diagnosis. We all agreed we have a new attitude to life, say yes a lot more and take risks we would never have done previously. This forum was our lifeline and we laughed our way through chemo as you are beginning to do. We started a Facebook group so we could share photo's of our hair.
Good luck to you all and my only advice to you is don't suffer as there is a medication out there to help with most symptoms, emend for sickness (you may need to ask as it is so expensive it's not offered routinely), diafflam for mouth ulcers, senokot and lots of prune juice for constipation. X
Raitchr, just take care when you do go, I had the same problem around day 4/5 and went in the night which caused me to get very fainty and clammy - in fact when I went to dry my hands on the towel, I somehow found myself waking up kneeling on the floor with my head leaning against the towel dryer so I must have blacked out for a few seconds. So good idea to not be alone. My cat was crying and scratching at the bathroom door at the time, as if he knew there was something wrong (partner was fast asleep in bed though Lol!)
Morning all, 5am start for me too! Caught up on Masterchef final before anyone told me the result, so bonus for being up early!
Drinking black coffee to see if that helps the bowels, may have to go and bounce on the trampoline in the garden to see if that works.
No sickness feeling this morning!
Have a lovely weekend, stay well.
Katie11, I see you are awake early! I've been awake since about 5am, ugh. I'm good this morning thanks and blood coughing didn't come back, thankfully, so the lung metastases fear has gone away again. This BC and chemo certainly keeps you on the edge and causes way too much paranoia! The funniest thing last night is that we were watching the film "Black Swan" at the time and the lead character suffers from stress induced psychosis and imagines she is bleeding when she isn't! That was way too creepy. Hope the rain stops so you can enjoy the bbq.
Enjoy the weekend everyone and get lots of fresh air! ☀️ 🍃
Anniej, I'm doing really well thanks. Had a small scare this evening - I blew my nose and it bled a little then not long after I coughed up a few bits of blood but then it stopped so it must have been the blood from my nose which ran down my throat!
Raitchr, I've been taking a senokot every evening as ALL sensitive tissue areas need to be kept in good condition! Yes, maybe too much info but I think it's allowed here. This is the place for tmi!
I am doing well thank you. Very tired today but finished steroids too. Constipated if you really what to know but hoping senokot will do the trick tonight, too much info?? I don't usually take much medication except vitamins and hay fever so struggling a bit!
Hope everyone else is ok.
It is, Katie. Apparently the goody bag is worth about £200! Can't wait. People are very generous, aren't they? There's mac makeup in it. I'll tell you all about it on Monday. I was going to have my eyebrows done, but when it was explained how it was done I chickened out. Just couldn't stand the thought of another sharp implement on my skin. How did I not guess when it's called eye brow blading?????
Last injection today, and unfortunately back, spine and neck pain hit big time shortly after. Copious amounts of maximum strength paracetamol and ibroprufin got me through the afternoon. I possibly swore it into submission! All good now, but quite a nasty surprise. Wonder what tomorrow will bring?
Hope everyone else managing ok, this the down time now for some of us, so let's be extra careful. Mai, Raitchr, how you doing? X
Are you on the Facebook private group, Triple Negative Warriors UK? Lovely group of ladies sharing lots of help and advice, you should join if not. Just contact them via Facebook, they ask about you and your treatment just to protect members then let you join. Maybe see you on there...
I smoother my legs with hair conditioner to shave as I have loads left and won't have much need for it for a while! I use a new razor each time as have a drawer full and again will be a while before I need them again. Only do them about every 4 days, depends if sun is shinning and I wear summer clothes or slum it it leggings!! It is going to be so much quicker to get out of the house, wash n go shower in about 5 mins instead of having to dry hair and straighten...
Anniej, if you want the surprised look, like me, have a look on Amazon at the Sodial(R) eyebrow stencil, only 83p!
Gee whizz Raitchr, now I'm feeling like a primate with the leg hair, you still shaving n'all. I'm going to keep the leg hair though, purely as an experiment! The shaving might dry the skin out and also risk of cutting skin (these are valid excuses). Hey, those steroids really mess up your sleep patterns - I'm still waking up at 3am most mornings!
Hi you could try the +10 manuka from supermarket, it is worth a try. I think the H&B penny sale has just finished. The +10 is good for sore throats so could help.
You could also try warm water mouth wash with 1 cup warm water, 1/4 teaspoon bicarbonate of soda and 1/8 salt.
My mouth isn't sore right now, I keep havjng manuka honey in the day but I am also using Aloe Vera gel toothpaste from Boyes. Plus twice a day after cleaning teeth I use Anbesol liquid from Boots, it is antiseptic and anaesthetic, have always got a bottle in the house as I suffer from mouth ulcers and cankers when run down.
Have also heard frozen pineapple chunks and ice lollies work a treat too.
Katie11, the thing which worked best for my sore mouth phase was Gengigel (you can get it in Boots). I also have Biotene gel, mouthwash and toothpaste which is designed to alleviate dry mouth during treatments (I ordered this online from a pharmacy but it's probably available in some high street pharmacies). I also had some ulcer pastels to suck - I'm not sure if they did anything or just gave my mouth a distraction! Also, eat soft, not too spicy or citrus foods whilst your mouth is sore.
Hi I am wondering about leg hair, I keep shaving them to keep it under control. Think it is head hair that goes first. I keep checking my pillow each morning, my head did feel itchy when I was having my chemo.
Re eye brows, I have taken a selfie (very rare for me) so I can see what my brows currently look like for when they go. To be honest I am not that bothered.
Wide awake this morning at 5am so may have to reduce daytime snooze today. Last day of steroids today. Nausea seems under control too.
Thanks Mai. I am also going to learn how to align my eyebrows . The counsellor convinced me to keep my appointment at a pamper session on Monday . Otherwise known as - get your eyebrows in the right place - session. If we don't there will be a lot of be scarfed and surprised looking people wandering about. Top tip apparently is to get a wig with a fringe that almost covers your eye brows. Now why, oh why didn't someone tell me that BEFORE I bought mine? Drat!😥
Speaking of eyelashes reminded me to tell you that I had purchased a plastic eyebrow stencil in case my eyebrows came out and I didn't know where to draw them in. It arrived yesterday and let me tell you, when I held it in position it was a very surprised look! it will work for centering them above the nose for the inside arc but the outer arc will need pure art. Note to self: Brush up on life drawing skills!
Anniej, glad you have realigned your chakras once again!
Sorry, Katie, didn't see post re watery eyes. Counsellor thought mine could be eyelashes coming out, also drippy nose, same thing, hair coming out. But what I should have asked is......where oh where does it all go??
Hi Katie, managed to get some counselling at Maggies today re germ phobia . She drew a little diagram showing low point days 7-14 after chemo.
For all you lovely supportive ladies, thank you, you have helped . Big girl knickers on, got rid of that thong. It was making my eyes water! 😱 X
Glad the bird was released, you are brave, I would have not enjoyed having to hold it!
Tea was a result tonight, can recommend jacket potatoes for an icky tummy, yogurt and raspberries & blueberries for dessert, washed down with ginger ale! No nausea, no sore mouth and the chemo nurse even phoned to see how I was doing tonight too!
Hoping everyone else is doing ok.
One happy wood pigeon released to freedom leaving two very disappointed cats baffled by the event! Whilst my partner tilted the fire open just enough I managed to lift the little fellow out, armed with full outdoor coat and leather gloves. Managed to hold its wings tightly against its body and then set it down in the garden - it flew away unharmed pretty quickly. Sigh.
Yes day 3 for me. The metoclopramide is just a back up, they told me to use Ondansetron one tab twice a day so I take one first thing then at 4pm. Took metoclopramide at lunch just to see me through to 4pm.
As if life isn't eventful enough - I can hear a bird trapped and scratching around behind the gas fire in the lounge so waiting for partner to come home and free the poor little thing. (But what about germs I'm thinking! Arghhhh)
So Raitchr, you are now day 3? So hopefully sickness phase should be over after today... I think the good old gingernuts are the winning chemo "must have" so far! Your TCP OJ made me chuckle! I'm on the Metroclopramide for sickness day 1-3 but my dose is one four times a day. I did read in the side effects that prolonged use can cause irreversible involuntary muscle spasms in the face so I got off them as quick as possible, otherwise these spams could have to be botoxed away indefinitely!
WolfEE, there seems to be some variation with the injections but you'll find out on chemo day when you are handed your little home pack. I have five days of them from day 5.
Hi all I am much better today, so far. Have worked out a better order of taking tablets today so even managed 1.5 hr snooze this afternoon. Had a cuppa, anti sickness tablet and a few gingernuts.
Husband is in charge of cooking tea again but menu is jacket potatoes, salad and cottage cheese for me so looking forward to it.
I don't have any daily injections, just 3 days steroids (2 x 2 per day 8am and 12pm), 21 days antibiotics, antisickness which are 10 Ondansetron (2 per day) and 28 Metoclopramide (up to 3 per day).
Mouth is feeling fine so far, OJ this morning tastes of TCP. Flat ginger ale is lovely to drink and have Lucazade for later if needed.
When I had chemo I had a fizzy nose with the F bit, they did the red E first, then the C then F. They will push the F more slowly via the pump next time to avoid it.
Hope everyone else is ok today.
hope your all doing ok today. Quick question I have noticed a few comments on daily injections!! can i ask what are they and does everyone have them? xx
Katie11, I spoke to my oncologist recently and asked about the immune-risk period I.e. Low white blood count. He suggested day 7-14 being the period he considers you should be on full alert for problems (I was originally told day 10-14 but I think the scale kind of slides down slowly from day 2 and everyone is slightly different. So I suspect they suggest day 7-14 to cover the average. My mouth got sore from day 7 to 13 so that could be a good indicator.
Williams500, glad to hear you are feeling better. I didn't get any bone pain from the injections but did develop a small eczema rash on my inner elbow the day after completing the course of injections. Could be correlation rather than causation though?