Bwaaahhh! We've gone all silly again: chemojies and getting rid of unhealthy lumps! 😜 Well done Trisha, don't bother asking for a reconstruction on that one!
WOW! Thank you, you are absolutlety spot on I got my keys earlier with no drama. (his Mother was nearby) I let out a mahusive whoop whoop scream as I left 🙂 Feeling very positive and so much better without him xx
MJK - Tribble lol! I sure hope it doesn't start multiplying on your head. Maybe avoid getting it wet!? 🙊 You've got me thinking about alpacas now!
on the work front, I've only needed one sick day so far as I've been really well. I still have most of my years holidays to use up so I should be well covered for the Docetaxol cycles which I'm anticipating may be tougher to get through.
I still have 2 more cycles of FEC to go (No.3 on Thursday) so those of you on FEC-T 3+3 will overtake me on the Docetaxel start. So I was the May FEC Guinea pig but who will be the New Guinea pig amongst us for Docetaxel? Will be you Raitchr? I'm ready to hand over the crown! 👑
Just spent 5 mins replying and pc crashed!! GRRR
I was scared and really didint need to be. The only pain was the ouch of the local anaesthetic. Took 10 mns and helped that the person doing it was a George Clooney look a like 🙂
I wear a fabric sock thingy over it and get it cleaned and flushed weekly. Doesnt feel uncomfortable, I even almost got in the shower without my waterproof cover forgetting to keep it dry! Muppet! Be strong, you will be fine, sending a big hug. x
I am on day 12 since my first FEC and feel guilty that I actually feel well??? Scared its gonna crash down on me. Boyfriend left and I am glad! Got thru the very sore throat and constipation. (That was horrid) Dont sleep well, hence awake at silly oclock, but did have a solid 4 hours. How amazing was the MCR concert!! Iam a Mancurian and if the boyfriend had been here would have had to watch Motorbikes, so silver ligning in every cloud! I do like bikes but it meant alot to me to watch the concert. My sick note runs out this week and am struggling on SSP have loads of holiday due that have to take by end of July, so need ask work if can take that or do they have to honour it?? Any advice be welcome.
Sending big hugs to all of you xx
Treehouse sorry only just seen your message, no I haven't had surgery as yet at the end of chemo they are hoping to do lumpectomy
I just cried with laughing at your boobarella stories! Have to see the funny side in these situations!
ive no idea what I'm going to do on the boob front. I'd like reconstruction but then not sure if this will get in the way of scanning equipment, or if I need radiotherapy etc so tough decision, probably have to wait until end of chemo before they can assess how much tissue has to be removed and whether they need to do radiotherapy etc. I also have benign fibroids in my other breast so do I ask fir a lumpectomy on that side? Too many questions......
i already had the end of my cervix removed about 2 years ago after an abnormal smear result so part of me is thinking - shall I just suggest hysterectomy and ovary removal and just get rid of all of the hormonal equipment? Seems radical but the hormone factory doesn't seem to be doing me any favours lately.
Treehouse well done on wearing your wig...I hope it is comfortable for you..I don't get mine till 21st which is after 2nd treatment so will probably have to use some hats I have bought by then. Was smiling at the name for your wig...I had my appointment with prosthesis nurse on Friday to get my fake boob which my family are trying to name!!!...must say it was the best appointment at hospital I have had yet. Lovely nurse who checked my wound and was very impressed with how it has healed which is good to hear...as someone else said another surreal situation we find ourselves in during all this...I came away with my fake boob and a lovely bra for free and heaps of brochures for ordering more...I don't think reconstruction is something I will go for ...just need to get through this treatment. I also was someone who took no medication or have ever been ill so I do find the hospital appointments and drugs all quite surreal. Enjoy your Sunday everyone x
Not sure why my post said emotional content!! Didn't realise I'd done that. It's the imminent hair shave that's getting to me ha ha
Oh WolfEE I really feel for you. There was a lady next to me at chemo who was 37 and had been having ivf and now diagnosed with cancer and said the same thing about now the chance of having children being taken away from her now
I know my niece is worried that if she has the gene she will have to make the decision re children/ ovaries out as she is 27 and her mum had bc at 29
Re hair It is so difficult. I still have quite a bit but it looks so awful that I'm hoping the shave will be worth it as trying my wig on made me look more like my old self. But I'm very very nervous. As Mai7 says it's all coming out as some point so we're just delaying the inevitable but it stills feels like the hardest thing to actually do
Well done treehouse on braving the shave. I am going to get it done in about an hour's time. Feeling really nervous now. You made me laugh re the sellotape. Just been doing my clothes but it's pointless as shedding so fast now.
Re ovaries If you can get drs to remove them and Fallopian tubes then I'd say go for it. Had mine done as keyhole surgery, went in the morning and home by lunchtime. About a week's recovery period, think I took two weeks off work but that's because I commute on the train. My mum sailed through menopause but then got ovarian cancer . It was found quite late and she passed away very quickly. However, we didn't know anything about genes then
Now we've had BRCA 1 gene confirmed my daughter, sister and niece will be tested and if they have the gene they want risk reducing surgery. For my daughter/ niece that will have to be later on once they've had families but at least they will be checked.
For triple neg cancer like mine the ovary removal protects you against getting ovarian cancer (up to 80% lifetime chance) although as the bc is not hormone receptive it doesn't make any difference to the bc. With BRCA 1 the lifetime chance is 90 -95%
My sister who had trip neg bc 25yrs ago had bilateral mastectomies and ovaries out and is now 56. She had the " boob job" and "tummy tuck" combo and looks great!! So that's what I've asked for!
Just got to get through the chemo first.
WolfEE, you could always keep your hair for another day and wear a hat to your wig fitting. You may feel more upset if you shave your head and can't make an immediate grab for the wig? I don't think you would regret shaving it early either as you are so aware of the way this journey is going anyway. I think either way could work fine but just have confidence in your decision once it's made.
I really feel feel for you on not being able to have a choice about having kids, whether you would have wanted them or not. Since my kids went to Uni, I felt quite empty but didn't want any more kids either so decided to sponsor a child through Plan International which has turned out to be a wonderful feeling. What I'm trying to say is that there are many options to fill a void. X
I hung on to my hair until day 18 of first FEC then it just annoyed me and hurt. You will feel better once it has gone especially if you have a wig to use. I am not having a wig and just using scarves and hats. Around the house I don't bother but keep one near the front door in case anyone comes unannounced!
I just felt that the sooner my hair went then sooner it would grow back as now just had 2nd FEC and so hopefully in 6 weeks when I go on to T it will sprout again.
Treehouse i was on the pill, that's what I think deep down caused this Glad you braved the shave I think you feel so much better once it has gone. I will have to try massage once the aches start not started yet, just about to have second injection xx
Thanks Mai7 gald I am not the only one. We can get through this and apparantly people who have chemo looks years younger after the event lol hope its true xx
My grade 2 shave yesterday makes me look ill but I feel well. Tomorrow is my day 5 which was bad on chemo 1 but so far with the extra meds I am doing ok. Woke at 4am until 6am but went back to sleep into 8am. Have to say wash n go showers are so time saving!
Re ovaries. I am 46, my bc is triple neg so not hormone related. I have my children and no longer need ovaries or periods in my life!Hoping chemo puts me in to permanent menopause but I really want ovaries out as ovarian cancer is a silent killer. Also want other boob removed. I plan to discuss this with GP after chemo finished and I am back at work so sick pay kicks in again. Had gene testing 4 weeks ago just waiting on results.
Hope you are all ok today.
MisyAngel, I was just like that, apart from allergies which I could self medicate on, I very rarely went to the doctors and have been (an still am) really healthy. I think it makes this harder to accept as you don't really feel like there's anything wrong with you and it feels out of character for you to be in and out of hospital. I can totally relate to how you are feeling.
Well done Treehouse for braving the shave! Does it feel better now? I'm sure the outer edges of one of my eyebrows looks a bit thinner and leg hair is definitely thinner (hip hip hooray!) My head hair seems to have plateau'd for now. Imagine Helena Bonham-Carter with a shaved head - I look a bit like that - a bit like a Tim Burton movie! Has anyone else noticed any eyebrow changes?
My second chemo seems to be going so much better than the first as felt so exhausted on the sat/sun. really poorly on the monday/tuesday, but this time managed to go out for walk yesterday and hoping to do the same today and feel really normal. Just hate taking all the medication and injections. I was the sort of person who never got ill and never took tablets if I had headache so this is hard but its a means to an end.
Hi WolfEE, I don't know what's happening beyond my chemo and surgery yet. I was told 8 rounds of chemo then mastectomy and lymph removal but ovaries and hormone suppressants weren't discussed. I'd consider ovary removal if it improved my chances of survival/recurrence. The most commonly used oestrogen blocking drug seems to be tamoxifen, again this hasn't been discussed with me yet but after much reading I'm kind of expecting that conversation to come up at some point. Beyond chemo, I've gone into ostrich mode and I'm keeping my head in the sand with the occasional peep out as I want to maintain focus on chemo and managing side effects as main priority. 🐣
Katie, yes, everything is surreal, like living in a floaty bubble whilst others can only watch as you float around inside with your drugs, hairloss and wig! I think the surrealism acts as an emotional protection to some extent. Just hope the bubble doesn't pop and keeps me floating along nicely until the end of all the treatment!