Rosie, I'm round three today at 1.30! Today we can be chemo twins! Hope it goes well for you. I like to call it what the FEC! 🙊 X
I spoke to my Mum earlier (She lives in south of France) she had HER2Positvie in 2000 but they say it isnt heridatary??? She said the same thing about the 'PILL' I am 48 and not taken the pill since I was 23. .
Feel very unsure about my grade 2 haircut, my ears and neck r blooming cold. Am ok and ladies I coudnt cope without this site, big hugs xoxoxox
and talk to your sis. If she thinks you are kiding things from her, life will be much harder for her to deal with than facing difficult news together x (and that's enough grannying from me for one day)
W : I hope you dont mind me shoving in here, I just so felt for you ... i think it is difficult moving from our comfort zones into this medical zone, which is so strange and alien and everyone chatters away as if you know what things mean. It is difficult at this time, but if you have a question - ask them. You can look at Google all you like, but a straightforward chat is the most effective way and I hope they will be able to reassure you a bit - clearly the lack of definitive information leaves too much room for doubt, and that for us in this situation is really deadly.
On the other hand, quite often we dont get information because either they cant be sure, as everyone is different, or possibly it is something - usually about side effects - that we dont want to know and, understandably enough, they do shrink from our reactions! All this resolute cheeriness can be wearing. I think we ought all to be as straightforward as possible - in my first round I took an absolutely psychotic steroid reaction resulting in a change of chemo treatment, but much harder on me (though not merrily belting round aldi spending a fortune on rubbish).. but at least I know why. You dont, and you ought to. And I feel sure, you are the kind of gal to go and find out - meanwhile all hugs and best wishes, I feel so much for you younger women (I am older and tougher, though fragile as hell of course): wish I could take on some of your worries.
Wow, I have some catching up to do on conversations!
treehouse, I think I'll avoid TV until the campaign is over, but of course heartstrings have to be twanged to get people to do fund raising - just not us right now!
WolfEE, try not to worry, if they were concerned they would have been honest and sent you for a scan. I just had my oncologist appointment today and my tumour is still 5cm (no change) but they're happy that the FEC is working as the breast has reduced to normal size, the orange peel effect has gone and one "tentacle" of tumour has gone.
AnnieA, happy Birthday to you...... 🎂🎉
Katie, yes, very windy today so I put my hood up walking across hospital carpark to keep wig in tact!
MJK - Happy tribbling!
Trisha, well done on braving the shave and your boss simultaneously!
WolfEE - big hug, please don' t worry too much. I hope my news the other day hasn't contributed to feelings of anxiety if lumps aren't noticeably shrinking immediately. I think my experience was quite unusual and they seemed very surprised.
I was also told they would need to do a scan to see what exactly is going on in the breast/armpit and tweak the chemo if necessary and it sounds like they are going to do that for you which is really positive.
When they told me originally mine was fast growing I imagined it getting bigger by the hour and got quite upset. We all read too much into what's said (or not said) and our minds work overtime.
Day13 and hair was falling out in clumps.. Queued for 2 hours at the local barbers, I am now a Grade 2 all over and feel **bleep** 😞 On the plus side I got a round of applause when I left the Barbers and then bumped ito my Boss, Was wearing a turban, scarf and Super star sunglasses, and she still recognised me and said WOW u look amazing 🙂 xx
Happy Birthday Annie A all the best for today.
Totally understand Heather, it's difficult to retain a sense of perspective of times. It's such a surreal bubble we inhabit these days.
I didn't actually shave my hair but had it cut into very short bob. I still some have the hair at the roots perhaps because of the cold cap. However, although it's ok indoors I don't have the confidence to go out like that as it's very thin so I wear the wig outside. It's such a personal thing and I think only you'll know when it's time to brave the shave.
I understand Raitchr, of course we're here if you need to come back at any point. This is the only forum I'm on. I keep it all contained in here! Best wishes.
Hi ladies. I think I am going to have a break from cancer forums and facebook groups for a time. I love the support and encouragement that we all give each other but at the moment I feel like cancer and chemo consumes my life from waking to sleeping. It isn't anything anyone has said or done but just want a little bit of the old me back for awhile. I hope you understand.
I will check back in from time to time and didn't want to leave and not say anything and you wonder where I was.
Best wishes everyone, see you soon.
WolfEE, Treehouse, I had difficulty at first wearing reading or sunglasses with the wig. I worked out that you have to sort of thread them through the layers but not under or it lifts the wig out too much. For the first few days of wearing the wig I had it pulled down over my ears and it starting hurting them so I now pull my ears out! Works well now. One of those questions I never thought to ask in the salon! 😀