Snap, Trisha. Been in since Thursday when my temp shot up to 38.6 and I went into full blown rigor. Three chemos and three hospital admissions, what's all that about? Looks like the line will have to come out. My experience is that once the first 48 hrs are over re meds you will feel much better. Just got to get the neutrophils up. Are they injecting you to get platelets going? X
Wolfee my bum has been the same I use Anesol but when I went to see my oncolgist she recommend having the movecall drink as this wil soften the stool as I felt like it was the stools cutting my bum and I had lots of blood in the toilet. Not very pleasant is it this chemo business
WolfEE, that's definitely sounds like piles or a fissure or both. I've used sudocreme and have found it helps, as does anusol. You may want to try dulcoease stool softener (available from Boots) if senokot and fybogel aren't helping but only use when proper constipated or it can make you go the other way! I had an endoscopy just before Christmas to investigate bleeding, turned out it was piles.
I haven't noticed my smell being affected whilst on FEC, but that may change when I switch to Docetaxol (which I will rename dozy-tax-hell as it seems to make everyone sleepy!)
My daughter just came home for the weekend so it will be nice to have some family time together.
I posted a few inspirational quotes in the coffee lounge>hope and inspiration. You can shortcut to them by clicking on my profile though as they are all in pictures which get saved to your profile.
I just received another book today which I'm hoping will help me navigate through all of the post-treatment complimentary therapies. It's called "alternative cancer cures what's the alternative" by Chris Woollams.
Kate11 - Yes It was picked up via blood test. Think we will all be experts on all these things by the end of treatment. PS Hope we can have tonic water as it is the only drink I enjoy. I got this tip of the breast surgeoun with breastcancer blog that someone posted. Really interesting reading.
Trish69 - It is Clovelly we are going, it is right on the lakes as my husband and his dad love to fish as well.
MJK & MAI7, ROISE65,Treehouse thanks for hugs send cyber hug right back at your
ROSIE65 thanks for the tips will take a look at the site, I have been reading up on food to eat to help with it. Last time I had my chemo because I had sorness down below I was given a 21 day course of antibiotics which I was told it was a fungus infection, I didn't think it was fungus as my skin had blistered on the outside. I still got the blisters and at my review she said it can't be fungus as it would have stopped that. So this time I am ot taking the antibiotics. You don't know what effect all the medication and chemo you take has on things like that, so will be interesting when I go back next time.. Laughing at your cravings I was craving hummous and cheese and onion pasties, its really tough as you just have to eat what you fancy. Another one of mine is vanilla slices lol.
Treehouse It is really horrible when you are in the rough week as at the time you don't see no end in site. I get very weepy and down by the Sunday/Monday. I think the lack of energy for me is really tough as I am like a whirlwind normally. My worst day to go from last two is day 3.
Big hug treehouse - sorry to hear you're still not feeling too good.
Yes chemo sucks, but if it sucks the cancer right out of you then Yay chemo!
Think Mai posted that in inspirational quotes
My niece has bought me a foam head named Polly for my wig. Just in time too as returning from chemo on Thurs I whipped the wig off straight away as I was hot and flung it on a corner table. Daughter walks in, sees my wig and thinks I've collapsed, face down on the table. Fortunately she quickly saw I was fine and we haven't stopped laughing about it since.
Have only seen Whatsapped pictures of Polly so far wearing sunglasses and scarves!
Hugs to Trisha and misyangel - there always seems to be something new to deal with, as if we don't already have enough!
No one has mentioned liver function levels to me but I'm not on FEC. I have had kidney function test prior to having carboplatin and researched this on Macmillan site. There's some comments on their forum re liver function levels and FEC so you might find some help on there.
Also had lovely holidays in Lyme Regis when the kids were younger
My son is home for a few days which is lovely as Im on a staying in managing side effects weekend, and having a few family members over for picnic lunch - although as Katie said where's the sun gone?
Am craving healthy hummus and crudités and unhealthy sausage rolls
MisyAngel and Trisha, hugs to you both as you deal with other life stresses on top of an already demanding regime for BC. Have a fab time in Devon MisyAngel.
Lyme Regis is an awesome place, happy memories of taking my kids there when they were younger.
Hi all been for 3rd fec today and just as he put the canula in he went to get the drugs and came back and said your liver function is to high i need to get hold of your oncologist to check it can go ahead I was thinking grrr why would you put canula in, thankfully she said yes, apparently it supposed to be 49 and it was 149. Really hoping it is going to be ok for next treatment as we are booked in a log cabin in Devon with my inlaws after next treatment, as unfortunately my father in law was diagnosed terminal the day before me so it's a last holiday together as a family. Has anyone else had problems with liver function?
So FED up!
Throat no better was given gelclair sachets yesterday.
Had the ambulance out at 4am because I was choking and couldnt catch my breath or swallow. They managed to calm me. Then the Doc rang at 9am and said its Oral Thrush. Picked the prescription up at midday. Had a sleep, same again couldnt swallow or breath properly, back to the Docs and now got a throat spray Benzydamine.
The boyfriend ...... didnt see him for 2 1/2 weeks then needed lifts, loving all week until I start feeling poorly then he turns nasty. Im a demanding lazy Biatch. (Says he, that does nothing but sit and drink all day)
Turns everything around, said he would sleep in spare room because its been so hot but no I wont allow him in the bedroom! He is a psycho. Sent him away again, cant be doing with the stress. Says he has no one to talk to..... The offers are everywhere he is just lazy.
Rant over, peaceful albeit painful evening ahead xx
Katie, I forgot to mention that I tried the coop alcohol-free G&T drinks and liked them. It somehow feels nice to say "I'm going to have a G&T" even if you're not quite having one! Last night I made a tonic water and put in some juniper berries, fresh ginger and coriander leaves and a splash of angustora bitters. It was good. I usually only have a fizzy drink treat on week 3!
Treehouse, I have tried the Yannoh "coffee" and I like it, I bought it on Amazon. It's a bit like an Ethiopian coffee, mild, smooth and nutty/woody.
i also keep my nails short. My toe nails don't seem to be suffering the same side effects as my finger nails. I wonder if that's because the chemo goes in close to the fingers? Might ask nurse to put it in my feet veins next week! I'm sure they will laugh at me!
Katie, we don't have any specific plans this weekend but if the weather is good we'll be entering leafy green places! I live in the Midlands so plenty of green but no sea ☹️ so we try and go to reservoirs, lakes and canals instead, as much as possible. I'm on my good week now so got to make the most of it before obsessive side effect management kicks in again!
Hope you have a good weekend everyone!
I'm lymph node positive but wasn't offered a bone scan, just CT scan to check for mets which was clear. I get paranoid about mets as I'm sure everyone does, it's kind of weird to feel scared of your own body at times! It's like living in a house with woodworm infestation! I think sometimes cell death can cause some discomfort and you think this must be the cancer spreading rather than cell death pain. Like you are aware the cell death is occurring right through your digestive system, hair follicles and lining of the lungs as well as on the cancerous cells, but you still get moments of paranoia.
MJK, my CND solar oil arrived yesterday so I've applied it for 2days now, not all day, just a couple of times lol! The condition of my nail looks better already, I'll keep you posted on progress... Glad you got to see the Queen. Did you practice your wave in advance?
Treehouse, glad you're feeling better, how many more treatments do you have?
ive been really busy yesterday and today and ready for a restful weekend with my man. Hey, I've discovered a nice coffee alternative called Yannoh if anyone's interested, it was recommended by Jane Plant in her book "your life in your hands"
Hi treehouse glad to hear you're feeling a bit better today. I'm taking it easy too, have felt pretty good so far but early days
I didn't have an mri only ultrasound - there doesn't seem to be a consistent approach across the country
Yes I was told initially by bcn that there was no reason based on my diagnosis to suggest any spread but oncologist said if I promised not to stress over waiting for results then he would do scans
WolfEE - no, I've had both a CT (to check blood)and a bone scan to check for distant metastasis. Thankfully both were completely clear. I don't think they do the bone scan as routine these days. The new scans are very good but I think expensive.
I asked because I knew my sister had several bone scans throughout her treatment and because of her success I'm keen to have everything that she had!!