AnnieA, the mri scanner is basically a long white noisy tube which makes darlek noises. It didn't bother me at all, I just pretended I was on the Dr Who film set with Darleks shouting at me.
Katie, I have chemo no.4 on Thursday which takes me to half way! Hooray! Then chemo no.5 will be a drug change.
Trisha, that's fab news, hope you get a good nights sleep. 🌝 That little icon is the man in the moon wishing you a good nights sleep too.
Anniej, Thinking about you and hope you're doing well. 🌹
Treehouse, hope the 3rd dozy tax hell soon wears off and you can enjoy your good days again. ☀️
My eyes have been a bit sore, not sure if it could be a few eye lashes vanishing and associated irritation to the follicles. However, I didn't help myself much yesterday as I'd chopped up a chilli at lunch, then forgot later and rubbed my chilli-finger in my eye! 👁🌶 note to self: don't rub your eyes after chopping chillies!
Trisha, Anniej, hope you both had a good night and continue to improve. Trisha, hope they don't keep you in too much longer but it sounds like you are being very well cared for and in the right place for now.
Treehouse, if the Omeprozole isn't working you could try removing any acidic foods from your diet. I usually use gaviscon tablets or liquid for mild indigestion or bicarbonate of soda but they are usually a quick fix remedy. As you are already on the Omeprozole it may be worth seeking advice from the Onc team.
I had a lovely weekend with my daughter but it was over all too soon. I felt a bit emotional yesterday afternoon when she left. The empty nest feeling totally sucks!
Mishy, do you have a date yet for your treatment to start?
Thank you all for the support to us both. Made me pull on those big girl knickers and look forward. Onco just been in to say that she is letting me go home. Yay! Finished all anti biotics. Results back from recent bloods show no infection, and neutrophils have reached the magic number =1. Probable op next week to remove line but wait and see. Sunday roast great, Trisha, and like you I nearly licked the plate clean. Can't remember when I had such a good appetite. Just a waiting game now for pharmacist, cannula removal and discharge papers. So...sevon o'clock then? Love to all. X
No, they are talking line sepsis. The thought is that the body is objecting to foreign material being inserted . I feel very much that my body has let me down, but the on call registrar has been so kind and supportive, telling me that they do have problems with the line, and there are 2 others here waiting to have them removed. So I am not alone. But growing cultures from the line to make sure as only half way through the regime. Onco is being very firm that if it is unsafe it is coming out! An antibacterial block was put in twice to try and kill off the germs. No rest as penicillin into cannula, plus intravenous an hour later. Good news, just had obs and all looking good. Not so good , into chemo slump now, so laying in the lazy - boy chair near hospital window sucking in some fresh air . Onwards and upwards. X
Trisha & AnnieJ so sorry that you are to go throught his, thanks for sharing and keeping us all updated. It makes you realise how quick you have to act on these things.
Treehouse how lovely to have that note, its amazing how much they give you a lift.
Day 3 for me today or is is 2 not sure how to count from Firday and this is be the best I have felt out of all treatments, but they did put nearly a litre of saline in this time and I really do think that has made a difference, he used 1 small bag then 2 big bags and my sister said the first chemo I had they only used one bag of saline, crash usually comes on a Monday so will see what tomorrow brings.
Oh dear Trisha and Anniej, what a shock to wake up and find you have both had a very bad night. So sorry to hear this and sending hugs to you both. You are strong, brave ladies and coping really well. Keep up the fight ladies. 💪🏼 ❤️❤️
Thanks for all the kind thoughts. Really helps at this low point. It looks as though the line is the problem . Twice Ive had the chemo, which goes OK, then when I go a week later for the flush, bacteria is pushed into my body resulting in a temperature spike and all the stuff that goes with it. It was particularly frightening this time with the rigor happening so quickly. Apparently there's only 1 hour from that happening to getting a dose of penicillin before body functions shut down. Thought my poor hubby was going to pass out when the nurse was congratulating him on getting me in so quickly and explaining it! Because it's bacterial I have to be in isolation with barrier nursing, so boring. Looks like the line will have to come out, but waiting on the microbiologists who are busy growing cultures . Sorry if it's TMI, ladies, but don't be shy phoning that emergency number if you feel even a little unwell. It's taken four days to get the temp and other vital signs 'normal' because of chemo and low platelets. Stay strong, ladies, especially my neutropenia buddy. 💋X