Was trying send a smiley face and couldnt delete it. Am good watching a silly film on Netflix called Nine Lives, bit of light humour before bedx
Trisha, you have a "warning emotional content" but it doesn't open up. Is that buggy software or are you feeling emotional?
WolfEE, glad your PICC line fitting went well - you must be relieved it's done now. I'm having goodie bag envy again, I was supposed to get Movicol last time after Oncologist agreed to prescription then when I got home with my goodie bag, all excited about easy pooping medicine I found there was none in there, must have been overlooked. I'll ask again tomorrow. Or as its a laxative, maybe it slipped through the bottom of the bag! ☹️ 💩 😂
Treehouse, yes, I have to admit I felt a slight spring in my step as I left the hospital as I was beginning to wonder if the chemo was doing enough. I think you just have to have a bit of patience! The programme I'm on is pretty standard FEC-T which is prescribed as either 3+3 or 4+4. I suspect (I may be wrong) the FEC is given as a systemic treatment as I have lymph node involvement and FEC is used to treat multiple cancer types. The Docetaxol, I think (again I may be wrong) is given as a very effective breast cancer treatment. Also, they don't know why some tumours respond better to one than the other and there is a clinical trial called ROSCO underway to conclude just that (I found it too late to join but met the criteria). They may also use two different cycles to avoid the tumour becoming resistant to the same drug. As I'm HER2- they don't give Herceptin as that's for HER2+ and I think Tamoxifen for the Oestrogen positive (ER+) is given afterwards as the side effects clash (probably clotting risk). presumably the chemo puts the ovaries into hibernate mode anyway. I wasn't given a Progestogen receptor status so can only assume neutral/negative. If you was in a clinical trial they would presumably have to ask for permission, so your cocktail should have been tried and tested for your Bc type. So no worrying, and remember your lump disappeared so they must be doing something right! Sorry, that was a long answer, I bet you wish you hadn't asked now! Hello...... Hello.....Wake up....... 😂
AnnieA, you are doing well, just rest all you need and you will bounce back again. X
Treehouse, the steroids on the day before chemo are for all of the taxane/taxol treatments but the FEC just has steroids for two days after treatment and none the day before. My Oncologist said sickness is less common on the Docetaxol so may not need anti-nausea pills and so don't get the sickness pill to take an hour before like with FEC. He said with the Docetaxol you have to keep an eye on hand and foot numbness and the dose has to be reduced if this gets bad as it can leave permanent damage. **Gasp**
.......oh, another thing, I forgot to mention. My eyebrows have thinned slightly on the outer ends and the best product I have found for patching/repairing with discretion is Rimmel "brow this way" I've used dark brown and bought it on Amazon. 👁
Glad to hear everyone is slowly back on the up again. Keep on keeping on ladies. 💗
I had had my Oncology appointment this morning and all good to go for FEC no.4 tomorrow. Good news, my lump has shrunk by about a half centimetre (from 4.9 to 4.3) and is slowly getting softer. It started out like volcanic rock, then softened to bone and now like thick rubber! My Oncologist told me my goodie bag would have steroids in ready for chemo no.5 which is the Docetaxol. Yikes!
Anniej, I bought some Aveeno, as recommended by your good self. It's the one with almond oil and smells amazing - I just wanted to eat it! It feels really nice on the skin and no parabens! Yay!
AnnieA, hope today went well.
WolfEE, hope you are feeling a bit better in la derrière! I still have a bit of soreness and have to keep it managed constantly. Ugh!
Thanks Trish, throat is a lot better today. Hope yours is too. Will definitely ask for something stronger from onc next time. Although throwing everything at it does seem to have shortened the agony.
WolfEE - hope all has gone well today. Six months seems a long time for genetic results. Where was it done? I got mine in 7 weeks. I'm the same with insurance, have contacted genetics before but for personal reasons at that time my sister did not want to be tested and surgeon would not remove healthy breasts without knowing I had gene. Maybe could have paid privately, but all too late now!!! Sort of thing I dwell on when I wake at 4am
Hope onc appt ok Mai - will be thinking of you tomorrow
Have got some Manuka honey but don't really like it - think I'm starting to associate it with chemo
My neutros were 0.5 on Saturday, 1 on Monday and 1.3 on Tuesday. Think 1 is the magic number. Thinking of you x
Hi everyone, still nesting and trying to get the neutrophils above 1. Dreading Thursday when I need a line flush after what happened last week. We do seem to be a poorly lot this week , don't we? Thank goodness for the access to prescribed medicines, by the sound of it. Has anyone tried the high level Manuka honey for their mouth ulcers ? I started using it before chemo, and so far so good. A nice big dollop on a teaspoon and rolled around the mouth. It tastes like caramel sauce. Good luck with Onco visit and treatment plan, Mai. Sending positive thoughts for those off to chemo. Stay strong, ladies, this is just a bit of a blip. I think for most of us we are half way there. Got to be good, right? 🍀💋
Morning ladies, slept from 8 to 3.30 🙂 then 5 to 6, being a slug and have gone back to bed..
You will be fine Wolfee, its true the longest bit is getting it ready and sterile then waiting for x ray result. Thinking of you. I am glad I had it because now am going thru treatment I bruise easily so at least that doesnt happen with PICC XX
Good luck Mai7 and Anna. How u doing Annie? Treehouse?
Big hugs girls xoxo
So home at last. They were wondeful in the hospital and the food once I could swallow it was top notch!
Have a little Pharmacy going on in the spare room and now have Oral antibiotics for the next 6 days and drink supplements (MIlkshakes high in calories)
My blood results are still low so need to rest. Not seeing my old lady this week and need to stay away from people, keep contact to a minimum. Still have ulcers on my tongue so still difficult to eat anything other than soft food.
Its good to be home,
Spoke with my Breast Care nurse this morning and she explained my course of treatment in better detail , so here goes............
3 cycles of FEC Each cycle is every 3 weeks. Have had 2 so far and next one is 7th July
3 cycles of Taxamine and Pertuzumab and Herceptin.
Then scans to look at lump and meetings with Surgical team to discuss if a Lumpectomy or Mastectomy. The BC Nurse thinks Mastectomy the likely option so they get to it all! 😞
Then 15 more cycles of Herceptin given as an injection, so PICC line can come out. Whilst all this is going on will need Radiotherapy 5 days a week for 3 to 4 weeks depending on the surgery I have.
Scans at regular intervals of my heart and blood tests.
Quite a schedule! BEING POSITIVE!
Mine was very straight forward. They said would take half an hour, Took 10 mins. A local, inserted the wire,a monitor to see what was happening then an x ray to check in the right place and that was it all done! Ask them for a waterproof cover for when u shower or bath, not all Trusts provide them but worth asking and better than cling film and a plastic bag, Good luck x
I've feel like I've used everything on mouth/throat problems. Started a few days ago with the bicarbonate, Gengigel gel and mouthwash and cleaning teeth after every meal which has helped the ulcers. Now with sore throat have stepped up to Gelclair, Difflam and paracetamol! It is a bit better than last time no white patches but still sore.
Also have stomach tenderness so just had bath which was nice. Not logging many work hours.
Must be nice to have your son home Mai and to make the most of the good days. My son is here until Friday which is lovely (when he gets paid!!!). He has been through uni and is out the other side.
Trisha, glad to hear you'll be home soon and getting a visit from your daughter will be good for you too. You get woken up by seagulls whereas I get woken by wood pigeons cooing and bouncing on the TV antenna!
Rosie, hope you manage to get the sore throat under control. What are you taking for it?
Treehouse, hope your tummy upset doesn't last too long, is there a pattern? Does it appear at the same time each cycle and last a few days?
Ive been for blood test this morning, then it's Oncologist tomorrow then FEC 4 on Thursday. The end of my good days is drawing closer! My Son arrived home late yesterday and is still in bed! I've tried to wake him (which consisted of a conversation with two feet sticking out of the duvet) but I think he is still catching up on sleep after all those exams! Students! 🎓
Trish - will be lovely to have your daughter around, I bet you can't wait.
Katie - they're planning 12 weekly for me although may only be 9 if blood count falls too much. Onc seems to think it is less harsh than EC but don't want to get my hopes up.
Fourth EC hasn't been too bad, typical, just as you get used to it, it all changes. Am working from home today (on my tea break at the moment ha ha)
Katie - I'm starting Paclitaxol next Thurs, have to go to a different hospital to receive it. Are you having it weekly?
Was also awake at 4am, sore throat kicked in right on cue. Have been trying to pre-empt it but guess you can't beat these chemicals completely. However, thanks to all your advice I have an a armoury of meds to hopefully keep it under control.