Glad to hear it went well Katie. All ready for my first one tomorrow - they've booked me in for 8am so early start.
Oh no Mai7 that escalated quickly, good job you were on the ball with the temperature
and got to hospital. I' m really bad at remembering to take mine. Fingers crossed you can go home soon xx
I'm on six sessions of EC. That's it, pretty straightforward really. I had my WLE and SNB in April. It wasn't conclusive that I needed chemo but I was given the recommendation that it would help prevent recurrence so here I am. X
Thanks for the responses. I got some manuka 24+ online for about £16. Pricey but worth it. I've been having that but the doctor also told me Junior Bonjela works well and has little alcohol in it so I've tried that too and it seems to have calmed the tingling down.
Managed a a full day out of bed yesterday and a 20 minute walk. Feel like I'm pulling out of round 1 misery, thank god!
Sipping tea now and about to delve into a detective novel.
Hugs to to you all x
Good luck Katie 🙂
Anywhere sell Manuka cheap?
Off for coffee with a new and an old friend, then a stroll on the seafront. Beautiful morning 🙂 x
Katie - Good luck today, will be thinking of you xx
Anniej - I must remember to use the Manuka honey this time on my ulcers, hopefully it will help
Ali, the only things I have used through treatment is Manuka honey, and Aloe Vera toothpaste, plus the mouthwash from hospital. I started with a couple of ulcers yesterday, but have upped the Manuka to twice daily. Thoroughly coating the area. My hubby has fallen off the settee laughing at what he calls my gurning face - but hey, it's helped . I think I'm very lucky, reading other posts. Gentle hugs. X
Katie, wishing you all the best for your new treatment tomorrow. I know I'll feel the same when I start Docetaxol but just think, we got through chemo so far and can cope with whatever it brings. 💪🏼
Treehouse, my hair seems to have stopped falling out too. I have about 45% of my hair left (more bald on top) but doesn't seem to be falling out any more (Hope I didn't speak too soon! Gulp!)
Hope everyone else is doing well.
AliOG - I also clean my teeth after I eat with Biotene toothpaste, floss and use Gengigel mouthwash and gel alternately to keep the mouth as clean as possible and only when it escalates resort to Difflam and Gelclair. It did mean my symptoms were less severe this time.
Went into work today and survived the train journey! I'm shattered now though. I really enjoyed seeing everyone and actually felt completely normal for the first time in months. I realised how isolating all this is and seeing my house again when I got back, it felt like returning to a prison. I've spent so many hours in it!
The genetic article is is interesting MJK, would be great if the testing became standard for cancer eventually. The detection of the BRCA 1 gene in my case has led to my treatment being more targeted. Even within the gene there are different variants and I have details of my particular sequence. My oncologist went to great lengths to explain how the treatment works - something to do with chairs with four legs and my chair only having three legs, and restoring the fourth leg but I'm afraid my poor little chemo brain was unable to take it all in. I am also going to take part in a study by Cambridge Uni who have some funding from Cancer Research to look into the BRCA genes. Hopefully it will help the future generations of my family
Hi I have had 3 weeks of mouth ulcers and difficulty swallowing. All of the next to follow I got on in...
Gelease (Sachets mixed with water 4 x a day as a mouth rince)
Diiflam (MOuth wash as required, gargle and spit0
Nystan ( 4 x a day, swill around mouth and swallow)
Xylocaine (A lignocaine based spray theat numbs the sore area)
When I see Oncologist on Thursday am going to ask about a prescription called Miss Tracey. One of the ladies on here told me about it. Avaibale only on private prescription. (Chemist would make it up for £150!!)
Good luck, as I have been thru hell this nonth and its still sore xx
I know you've discussed this before but for ease, what do you recommend for mouth ulcers? My tongue has started tingling badly today and it's making me not want to eat/drink. Want to head it off at the pass if I can.
Treehouse I do yoga eveyday at home by following a dvd on weeks two and three and find this helps me a lot.
For all of you suffering with side effects ask them to put more saline in, on my third fec I had the most saline and I cant believe the difference in how i have felt.
Mai7 I have been reading about Q10 but scared to take any supplements whilst having chemo but defo going to have that after.
Wandestrong you are amazing going through this with two litte children.
Trisha69 I used the Clairtyn for the bone pain and this seemed to stop it, I had one tablet in a morning prior to injection and took everyday until injections finished.
Morning ladies! Yesterday I was discharged from the hand unit after check up, thank goodness so that's one less hospital visit to make time for. I've felt a bit yucky this morning, 🤒 I woke up in the night and all under my tongue was sore and my butt is sore too and I have heartburn. Just had a coconut,pineapple and banana smoothie which is really soothing in the mouth. Heaven!
Thanks for sharing MJK, that's an interesting article and I'm wondering where the government will find £700 per cancer patient to fund it in the short term! Long term process efficiency should bring down cost per person but unlikely to happen overnight.
Ive just bought some coenzyme Q10 supplements which have positive research for many diseases including cancer, I read there is also some evidence to suggest they may help protect the heart from chemo side effects. The vitamin B and Folic Acid discussion is also interesting because, similarly, people with cancer are found to have low levels of CoQ10. I think what is somewhat unknown is whether these low mineral markers are caused by the cancer rather than being a deficiency due to poor intake. It certainly looks like certain deficiencies are a precursor to cancer being discovered, whether cause or effect. I'm thinking everyone should be able to get home blood testing kits for general health checks which could be linked into a smart watch for risk assessment. The possibilities are endless! We could become paranoid hyperchondriacs too!
Wanderstrong, you definitely deserve the star awards coping with a baby and all of this at the same time ⭐️⭐️⭐️
Hi Wolfee its this Friday.
Re the Folic Acid, same here was picked up seperately from Breast diagnosis. On the day Oncologist prescribed b12 etc I had a call from my GP to say needed folic acid, blood test was taken pre finding out about BC 😞 strange.
Hi WOlfee. have done very little. Sleep pattern is rotten but napping a lot. Temperature is within the boundaries, higher than my norm but still ok.
District Nurse due this morn clean PICC line and take bloods ready for Oncologist on Thursday.
Before I started chemo my levels were low and was put on Vitamin B 12, Folic Acid and Thiamine. ANyone else on these and do I carry on taking them?
One mouth ulcer left. Thats been the worst side effect thus far.
Hugs to all x
Wandestrong! Toatally agree you need a star. I hope you have lots of support?
My 3rd FEC is this Friday, beeen feeling very run down since my hospital episode with the sepsis. My daughters have been to visit and we have done nothing bar pop to Tesco and am sooo tired. My bones in my legs ache. Feels like Flu is this yet another side effect?