Done my first 3 FEC, next is 3 Docetaxal/Herceptin. Half way thru 🙂
Trying not to think beyond that, my lump is 38mm. (Or was) Dont know if be lumpectomy or mastectomy, hard to think about. Coped well with the hair loss, the mouth ulcers horrid on no 2, so far on no 3 not too bad. The constipation horrid too.
Very muggy here in Devon and appt to clean PICC line at 9am. Have a good day!
Hi Lindyloo. If you read through our treads from the start you will see all the various side effects and how we have dealt with them. After my first FEC I had bad side effects but then learnt how to deal with them ready for 2nd. I did take time out from all forums as I had difficulty in coping mentally with what I was going through but now I am half way through chemo I am in a better place in my mind. I just felt it was a big mountain to climb but now getting there. The main s/e I had was constipation, furry mouth and fighting sleep on steroids, all manageable now. I swear by Manuka honey, grade 15 or higher for mouth, expensive I know but as I am not paying to get my hair done every 6 weeks I see it as a treat. Also Idonthave a wig, I have chemo caps for when I go out and don't bother at home. Family and neighbours have got used to it.
Best wishes everyone, blood test for me today before chemo 4 and 1st T on Thursday.
Hi Lindyloo, welcome to the club. 💋 The only thing you can be certain of with se of chemo is that everyone is very very different . You may sail through - or not! The medical team will help you along and give you any necessary drugs. Yes, plenty of water to keep the veins plump and hydrated to take the chemo and flush the system . I got my wig on first visit to Onco so was well prepared for hair falling out. Still a horrible experience , but my wig is very smart and natural looking. I listen to my body and do lots of 'nesting' when I have chemo fuzziness. Gone pescatarian due to Oestrogen +ve nature of my tumour. Swapped foods - almond milk and yoghurts, organic vegetables. I have felt very good on the healthier diet and shall continue with it. Seems to help re mood swings as I haven't really had any. The July group has started and you may want to join it? X
i had wide excision lumpectomy and bilateral therapeutic mammoplasty 6 weeks ago. I am due to start chemo with FEC-T on the 19th July. They have told me I will lose my hair within the first 2 weeks of starting treatment and that I should get a wig straight away. To say I am apprehensive about the chemo is an understatement but I know it's something I have to do. I think I'm finding it difficult to come to terms with as before surgery I was told that the tumour measured 9mm and it was in the very early stages, but when I went back for my results I was told that it measured 62mm and was found in 2 lymph nodes and that I would now need chemo as well as radiotherapy. It would be great to hear how others manage the symptoms of any side effects.
WolfEE, yes, Dozytaxhell next Thursday! I'm ER+ but no mention of hormone receptor inhibitors or ovaries yet. I don't ask too many questions yet as I have 4 round of Docetaxol to go.
WolfEE, glad your low is less low than yesterday, I think acknowledging and accepting that you are low is a good thing as it means you have perspective on it so well done for remaining self aware. 🤘🏼 Apparently the Docetaxol can cause depression, so forewarned is forarmed. No wonder Treehouse keeps feeling marshmallowy!
Wandestrong, I had a similar situation after my CT scan. They found an abnormal cluster of blood vessels on my liver and decided (after a few days of nail-biting anxiety on my part) it was a hemangeoma. However, part of me fears they made a mistake and it's really a new blood supply being set up for a new tumour. It's hard to not think like this, I mean if your body has let you down once and you had no control, then why not again? I've just decided to trust what they say and reman hopeful that it is exactly what they confirm, a hemangeoma. Try and stay positive and focus on looking after you and your babies. Happy thoughts are healthy thoughts.
Hope everyone is doing well (or better should I say). I had a follow up with my oncologist after a CT scan last month. I really don't know what to make of it. He mentioned the scan showed a small lesion in my liver, however he didn't seemed concerned at all. They discussed in their MDT and said it looked like a cyst and not related to cancer. I'm trying to not worry about it, but the mind does drift to the worst case scenario. He said we'll re-scan in 6 months time to see if its still there or has changed in any way. The rational part of me knows I need to trust that the judgement of the medical team, however it's hard not to worry.
I'm trying to remain positive through the rest of Chemo. I have the 3rd FEC on Friday (officially halfway through).
Bristol must be very proud to be associated with the full poop spectrum. 💩#Bristol🌈
im feeling good today except for sore bum and mouth. My tongue has white lumps down both sides like ulcers. My temerature is normal. I've reached a point where I don't know whether to worry or not because sore mouth and bum can be a sign of neutropenia but also might not be.
hope everyone is coping alright
Hi ladies, what a weekend for everyone, hope things are starting to improve today - onwards and upwards hopefully.
Good luck with blood test today treehouse, have got mine today as well so hoping and praying that RBC has increased. Had a lovely day at the Olympic Stadium yesterday watching the athletics, it was so nice to do something different, but hoping I haven't overdone it.
Mai - glad to hear your home, Bristol stool chart ha ha the things you learn on this journey!
WolfEE - hope things are looking a bit brighter today xx
Hi Mai, I know what u mean about feeling safer in hospital 😞
I start Docetaxal and Herceptin 28th July. Busy week that week. On the Tuesday the 'Make over' 🙂
Thursday have to have heart scan 830am (Will have to leave home by 7am) then Oncolgist at 2pm (Will be more like 3pm) Will try get my free massage inbetween and maybe have a crappy Burger from McDonalds in Exeter and window shop! No point drivng home, that would be 120 mile round trip.
Then no 4 on the Friday at 10am. They have said will be there 6-8 hours so can monitor any side effects. Am feeling quite scared and exhausted already at the prospect of 2 long days.
However on my FEC no 3 I took headphones and my tablet and fell asleep, so fingers crossed. Let me know how u get on x
Hi Raitchr, good to hear from you and glad you are doing as well as any of us! I think we are all getting a bit tired of the chemo and all the crapitudiness that goes with it and pushing past the half way hump psychologically. I've had my worst week yet - in hospital with neutropenia and whilst it's really nice to be home, you start to feel safer in hospital. I think you're the first for Docetaxol although Katie has started on another taxol recently. My first Docetaxol is due a week on Thursday.
Haven't managed to read through all the posts yet, just wondered who had started T and any advice on side effects?
Still have 21 day course of antibiotics each cycle which is keeping bugs at bay so far.
Hair is buzz cut .5 grade and I love it being short as so cool in this hot weather. I cried when I 1st went to school to pick up as everyone stared at me but ok now. I have a few strands of longer hair which seems to be growing but nothing major.Leg hair is growing slowly, gets a shave once a week but none else where.
Constipation in my 1st chemo was horrible and made me feel so poorly. Drink lots of water and take more Movicol if needed, I was told to take 2 in the morning and 2 at night to get things going but ended up with bad tummy pains through the night and having to sit on the toilet in the night for ages. Hope you are better soon and things get moving.
Hi Angela, I have coped ok on FEC, learnt how to prepare for side effects after first one. Struggled with nausea on 2nd one, but changed routine at home got rid of anything in fridge that smelled and pre cooked food and froze 3 days of meals so no food prep of raw meat.
Can recommend the following, manuka honey 1 teaspoon twice a day, Coke or fizzy water for mouth day 4 and 5, Movicolo sachet once a day plus dioctyl tablets twice a day for constipation from day 1 to 5. Sleeping is rubbish on steroids so I nap in the day too. Was evermore tired on 3rd fec but had sore throat and low neutrophils prior to chemo. Ice cream and ice lollies help mouth day 4&5.
Oncologist said side effects will be different on T but apart from saying nausea would be less or not at all he didn't say much. Bone pain manage with paracetamol or co-codimol but I still have tramadol and liquid morphine so will ask if I can use them.
Oncologist said I can book holiday for Oct half term as finish T 25 Aug and should be ok to travel, not needs rads so I will be done on this journey.
Movicol or Laxido is better if diluted in squash in a small glass, I just drink it really fast in one go. I got other tablets from oncologist to take as well.
Hi everyone. I haven't been on here for awhile, needed timeout to get my head around chemo and all that it gives to you. It just became too much for me. Anyway 3rd FEC done and onto T on Thursday. Slightly nervous but bring it on and get it done. Hope you are all doing ok, I will read through the earlier posts and catch up. I am still on 21 days antibiotics each cycle and apart from neutrophils being low on last chemo I am staying well.
I'm home again and it feels good! 🏠 🎉 It's so nice to be away from the hospital environment although the solitary confinement was a good opportunity for a readathon!
Trisha, do you have Movicol? (it's a prescription med) It's a stool softener so makes it less painful to go. You can get dulcoease stool softener from Boots which does pretty much the same thing. If you need more fibre then Fibogel is good. Also dried apricots if you don't like prunes. I just got some germaloids on the way home and it's really good for numbing the area to ease the pain.
Good to hear you be home soon!!
Im home alone, had a sleep and woke up in a foul mood, ripped partners head off! Think the heat,t iredness and all the rubbish he watches on my TV tipped me over the edge. That and the constipation!
On 3 Docusate twice a day and 2 Senna tabs (Herbal that hopsotal gave me) twice a day. Not working 😞 Any tips? Dont like prunes etc
Good news - my neutrophils are back to just over 1 and I'm a 5 on the Bristol stool chart so they want me to stay for one more antibiotic drip feed and then I can be discharged as long as I am very sensible and come straight back if I deteriorate at all. I should be slowly on the up now as its day 10. I am free to select my own underwear and am no longer destined for paper pants! Hooray! 👙
Wolfee, the bad days are tough but they don't last so just allow yourself to have a poop day and rest and focus on a brighter tomorrow. You could try shouting "silly sausage" at the top of your voice. No one can stay angry after shouting "silly sausage" 🌭
Misyangel, hope you enjoy your look good feel good session
Treehouse, what the poo! 💩😷
Wolfee sending big hugs to you and I am sure its the chemo and all the medication which can make you feel like that as I have days after chemo where I feel very negative and down. I have a good cry to get it all out my system. Just look how far you have come you have now finished the FEC no more nasty red stuff.
Hope you hand gets better
I am booked on the Look Good Feel Good workshop on Tuesday and me mum is taking me to a place called Oatcakes and Milkshakes after, the milkshakes are amazing, then providing bloods are ok have my final FEC on friday.
Morning ladies, I told the nurses I have to be let out today as I've now run out of clean knickers! They told me they have more if I need to stay another night 🙉 I've finished reading the "beat cancer" book which I think is probably the best anti-cancer book I've read yet in terms of being informative and well organised for quick reference. I'm moving on to read a creative book now to give my mind a rest from cancer. It called "the creative habit" by Twyla Therp.
Glad you have tried the guided imagery meditation treehouse and Trisha, I find it works really well as I'm not very good at switching off the mind and it gives your mind something to think about.
MJK, thanks for the dance: you look silly if you dance, you look silly if you don't dance, so you might as well dance!
AnnieA, well done to your daughter, you must be very proud that she has been so thoughtful and proactive.
Must dash, my weetabix needs me
Hi Treehouse, use a pop sock or an odd sock. Everyone has odd socks dont they? I have a bag full!! Live with a Sock monster 😉 x
treehouse - no I haven't had surgery yet, went straight to chemo. My sister, niece and daughter are all being tested first and are linked to a family file. They also suggest any males being tested too as elevated risk of bc and prostate cancer but their risk is nowhere near as high as females so not the same urgency
Annie A - well done to your daughter, you must be very proud