Thanks treehouse, it sounds as if you were worse than I am although a few times I have felt like I could faint and have had to grab hold of something to stop myself. I'm looking forward to feeling a bit better.
After Thursday I still have 8 more although being weekly they can be ticked off quickly. The lump has shrunk to almost nothing so I keep thinking why can't they just go to surgery now, but you just have to trust that they know what they're doing.
I'm sure my Epsom salt bath and big girl pants will help me get through it!!
Treehouse - when I went on Monday oncologist said she would refer me back to surgeon to discuss surgery. She asked what I was thinking of doing and when I said bilateral mastectomies she said that's exactly what I'd do in your situation (brca1) I think the reconstruction will come later. My sister had reconstruction from her tummy fat and it looks really good.
My hb level has dropped again so having blood transfusion tomorrow. Really feel achy and very lightheaded so hoping I will feel better. Have to go to the hospital every day this week, went for cross match of blood today, transfusion tomorrow, chemo Thurs and heart scan on Friday. Am really fed up with it all, with two weekly EC and now weekly I feel there's been no let up. I just want a normal life again. Am definitely in marshmallow territory at the moment.
Thanks curly for reminding me of the Epsom salts, I bought some and forgot about them so think I will have a bath tonight.
Mai - at least you have the advantage of the Bristol chart to check, lol - is it available on the internet?
Katie, pleased to hear your genetic results were negative.
Treehouse, don't worry about gaining a few pounds - at least you'll be able to build up your flap reconstruction sites ready for surgery. I'm worried that if I lose much more weight, I won't have a flap anywhere! I think my best hope is my inner thigh, definitely boob potential there! Do you know whether you'll needs rads yet as I think that can influence your options?
Treehouse, re surgery I had single Mx no recon in March and it was straight forward, quick recovery as did exercises from physio. What kind of info do you need so I can help?
Treehouse, the slap-cheek seems to have calmed down now thanks. I don't have diarrhoea but am going about 4 times in the early morning and my intestine feels very heavy during this time. I'm a Bristol no.4 (sorry TMI folks). Do you think it's a problem going too regular even though it's not like Bristol no.7? I have some Imodium so could enforce a slowdown if need be! Try and get a good nights sleep tonight - no one should be left awake thinking about their surgery. Just thrash out all the options with the consultant. Write down everything going on in your head now so you can brain-dump before bed-time. That will help you sleep. Xx
MJK, hope your blood test went ok today. Xx
Hi..WolfEE got my daughter to do injection...she was quite pleased she is training to be a children's nurse ATM..so is very helpful but can be quite straight to the point sometimes when in nurse mode!! Just back from hospital getting my Picc line fitted...it went well the lovely man doing it said the swelling I have is superficial and definitely not dvt so fine to go ahead...arm achy but fine so hopefully first doxetaxol will be straightforward tomorrow..bloods fine, must get the Epsom salts you have all mentioned...Kala I know what you mean, my friends have generally been great especially at my operation time but during the chemo I think people find it difficult, and sometimes it is difficult for us to put on a happy face and be interested in all the fab things other people are able to do while we can't...hope your bloods are fine MJK for your treatment thurs....and hope everyone's se manageable 😀
Kala, cancer and chemo is definitely a time to see who is a good friend. Mostly mine were there to start with at diagnosis and surgery time but they gradually got on with their lives. I get it, I did the same to another work colleague who went through BC 4 years before me. They feel guilty getting on with their lives whilst we are stuck in neutral just coasting until the end of treatment. I do have a lovely bunch of friends closer to home than at work and they have been there through it all, the hair loss, the red wee after FEC, laughing at the thought of going swimming with me and my softie boob, constipation, and all my tears in the playground.
Part way through chemo it all got too much and I took timeout from this group and another forum I was on. I just didn't want to always think about chemo. I came back once my head was sorted, got control over chemo side effects and actually missed the funny comments on here as we share everything.
Just share on here when you need to off load or loiter in the distance when you need to, just know that we are all here for each other.
Best wishes for your treatment, you can do it.
Hi Mai - I must say, day 13 today - and for me the explosive diarrhea has become even more real! It really is the speed at which the bowel seems to work! I've learnt from my first session of Dox (etc) where I spent a morning in A&E getting checked over - that it is quite a common side effect for this chemo and basically the best thing to do is let it take its course and drink plenty - I was prescribed some meds by the Oncologist if really bad but to be honest it's bearable - if you can get to a toilet quick!!! Today, I see that I've got some peeling of the skin on the palms of my hands - that happened last time but on the fingers only - you definately need your Udderly creams to the ready! Oh yes the joys of chemo! J x
Hope you have a good day Kala and best wishes for tomorrow. Just post in here if you need to offload anything or ask for advice, we can handle it. Sometimes friends just don't know what to say. I certainly had well wishers at the time of diagnosis but most people don't keep it touch as they're probably scared of the big C and how to deal with it so burying those thoughts is their coping mechanism. I think most friends are still there for you but are waiting patiently for you to get through this as only you have the strength to do that, only you can get yourself through this. It really is a mental and physical journey. We have marshmallow days here where we feel weak and soft and help each other to get the big girl pants back on, and that's ok. I hope you have people around you to help out with chores etc.
Jay, i hope your mention of day 8 onwards explosive diarrhoea isn't true for me. I'm day 6 and this mornng I was up at 3am, 6am and 8.30am for bowel movements. Not diarrhoea but my bowel seems to be processing food too fast that I'm worried I'm going to lose weight. I had some diaralyte this mornng to rebalance electrolytes and will carbo-load today to try and slow things down a bit. The joy of chemo!
Morning ladies. I wanted to tell you guys something because I feel that I have joined a really good group here who actually understand what I'm feeling. I don't have many friends as I have been let down so much n the past and so since my diagnosis I have tried to deal with things within my family. They are great but they don't have cancer and sometimes it's difficult to say to them what I'm actually dealing with. The one good friend I have has so many of her own issues that I'm more like her councillor helping her which I love to do but she can't deal with my problems. I put a few comments on here before but again I felt that I was being too pushy so I kind of left for a while. I looked two days ago and saw that you all write down almost everything and the responses you receive are so uplifting and make me feel like I'm not alone ,even though I can't see you at all.
There was a time when I thought I'm done here, I'm not able to do chemo no more.
Since then I am ashamed I thought like that and realise I can do this. I'm not afraid of pain of being sick . I'm afraid of not having no one to talk to when I'm feeling it but now I have you lovely folk to talk to.
Mai, Wolfe, Jay, Raitchr and everyone else on this may thread I'm thankful for your kindness.
Now going to take my steroids and go get my bloods done and pray they are okay for tomorrow. I hope you all have a very peaceful day. The weather is not good and when I was in Sainsbury's yesterday I heard someone say we are getting terrible weather tomorrow so I'm gonna drag out my wellies and long coat as the dogs won't walk themselves xxxx
Enjoy the feel good makeover tomorrow trisha69, I'm having 4 herceptin with the dox chemo and then 12 months of injections once chemo is over - every 3 weeks and yes they're done in the top of the leg! x
Gosh you guys are amazing. I posted only this a.m and I come home to such reassurance. Thank you so much for your replies and helpful information. I know I will be very scared but I will take the advice on board and stay calm as the drugs are given. It's a case of face the fear and do it anyway.
Im having the doxytaxol first then the herceptin and perjeta
the next day which is an all day stay.
Will they have drugs on site if you do have an allergic reaction as I really want to carry on with the treatment if I do have one.
Can you take an iPad in to play games to take your mind of what's going on as reading a book I think will be hard. My lovely daughter, Anneliese is coming with me both days which I'm so pleased about.
Tonight im drinking ginger and lemon tea with ginger nut biccys. Tomorrow I start my steroids lol 4 in the morning and 4 at night then 4 the following morning before chemo. Jeesh I'm going to be flying 😊
Thank you all again as you really have given me reassurance for the next week. Xxxxx
You are all such amazing strong ladies and so so positive, it's a joy to read all your comments xx
Glad today went well for you WolfEE. 👍🏼
I've been pretty low on energy and don't know what to eat as everything is bland and my taste buds don't know what my tummy wants! I came up with a good solution. I steamed some butternut squash, broccoli, spinach, cauliflower and onion, then mashed them together with spices and a can of chickpeas and fried it up like bubble and squeak. It was supposed to be more like a veggie burger but bubble and squeak was good enough! 🍔