Mai7 thanks for the info, I am glad they are doing ultrasound as hopefully they can look at the original lump as she was saying yesterday that it hadn't shrunk and I thought maybe it should have done after 4 fec.
Wolfee I was hoping to have lumpectmy but if this other lump is cancer I think it may be mastecomy as the other lump is further down from first one. I am feeling ok about it all again today I think as glad it is being looked at by ultrasound. Plus I have extra bonsu week of feeling better I am ever going to have a couple of beers today. Sun is shining what more can you ask for got to make the most of it.
Trisha, glad you're home and have your daughter with you. Puking not nice for you. Big hugs. Xx
MisyAngel, sorry to hear you've been going through a lot of new anxiety again after discovering another lump and I hope they can investigate that soon for you. I had my ultrasound scan after my 5th chemo. XX
Thanks Treehouse I found the lump myself and it is In the same breast. When you had your new lump was it in same breast and did you find out what it was
Well just got back from Oncologist review and when I arrived they said someone made a mistake and she doens't run a clinic on Friday afternoons, I really was not happy as last time I went I had found another lump and the professor who examined told me to mention it at my next appointment if it was still there. Since last chemo this new lump has been really painful and swollen up, they managed to get the onocolgist understudy to see me who was really good and she has now delayed my treatment next week and said I need to have a ultrasound to see what this other lump is which means my treatment plan could change. What really disappointed me was the Professor I saw had made no notes in the system about this new lump.
Mai how many treatments have you had before they sent you for scan?
Heather so glad you are near the finish line.
Trisha sorry to hear you are back in hospital again sending big hugs
Oh dear Kala, sorry to hear you wound up in hospital and hope they get you sorted out soon. We're all starting to get a bit wobbly these days. I've reached a point where I just assume each new dose is going to hospitalise me as it has the last two times. Xx
Trisha, I know how you feel about feeling safe in hospital but missing home at the same time. It took me a couple of days to adjust to being home again after 5 days in hospital. I think you just get anxiety about being left unmonitored with your own body which you no longer trust to be reliable. Hope you're soon feeling well enough to feel more positive about going home.xx
Raitchr, and you're up and seeing noises in the night! 👀
Hi Treehouse - I've just one more chemo to go - 24 August - HOORAY!!
Yes I'm having surgery after chemo too - when I got home from chemo yesterday, I was delighted to discover a letter for an appointment with the breast surgeon next Thursday - although I've still got one more chemo to go, I'm delighted things are on track and I'll be free from this monster very soon!!
Don't panic - 9 days seems a long time but the drugs will still be in your system and chomping away! It's best to be full strength before next session.
So yours is in the left breast - mines in the right and being right handed I'm already worrying about my limitations - in lots of respects!! J x
Hi H - me too - I slept a grand total of 2/3 hours and in that time my dreams were absolutely ridiculous! Roll on proper sleep - I'll no doubt catch up Monday/Tuesday by sleeping during the day!! J
Kala sorry to hear you've been in hospital, how worrying but glad to hear you're on the mend. There seems to be so much to watch out for all the time
trish - glad you might be getting home but understand you're anxiety about being at home and away from the "safety blanket" of hospital. Sounds like it might be a bit quieter at home though!!!
treehouse- I'm sure 9 days won't make any difference at this stage, but the paranoia we feel is always there. I check my lump every day and decide it has grown! I have a benign cyst on the lump so there's no way of checking properly without ultrasound but that doesn't stop me!!
I'm having 8 cycles of Carbo/Taxol and am on my 6th cycle, finish mid Sept. Haven't seen surgeon yet but oncologist has referred me to her to discuss options and said they will do it 4 weeks after last chemo.
Mastectomies were agreed at the outset and I wanted them pre chemo, I had been thinking of having them anyway due to family history (my gt grandma bc, my mum and two sisters ovarian, mum's cousin and aunt bc and my sister, but bc got me first. My surgeon argued at MDT meeting for surgery first on my behalf but the team decided that neo adjuvant chemo was the better option to see how the lump responded to treatment.
I got the impression from onc that reconstruction will take place later, I'm not in a rush and just want the breasts removed asap. We have a leading plastic surgery hospital near where I live where they specialise in reconstruction but I think there's a wait for surgery. I'm favouring the "tummy tuck option which my sister had. I'm not overweight and a petite build but have horrible tummy fat since pregnancies!! So would be a bonus
My sister doesn't have to have annual mammograms as she has no breast tissue so doesn't have to deal with that anxiety every year.
Treehouse, I had an ultrasound scan. Glad you had a good day out and try not to worry about the delay. It must be hard, I'd be worrying just the same. X
Thanks Rosie, yes finding out the chemo is working is sanity after all the side effects!
Thanks WolfEE, I initially had 4 nodes identified as positive from a biopsy and I'm hoping that if the nodes are now negative (still an if as they didn't biopsy) they can at least remove less nodes (rather than full clearance) so I still keep some immune system down my left arm. I'm just relieved that things are improving as I was scared of being stuck with this tumour if it couldn't be shrunk for surgery. The mass is still there but it's changed form and size. Who knows, maybe some of it is scar tissue by now. They may call me back for an MRI if they need to see more granular detail before surgery options can be discussed. I feel I'm coming onto the surgeons radar soon though! ✂️
That's brilliant news Mai, so much easier to accept the side effects when you know the chemo is working.
I've been referred back to the breast surgeon too now to discuss my bilateral mastectomies, I can't wait to get them done. Now that the lump has shrunk so much I just want it gone.
Hi Ladies, hope you are all doing well.
Trisha, glad you are being well looked after and you have shrinkage - it makes the side effects worthwhile. Like Rosie said, we are beyond embarrassment now. Re. Explosive gas, I always like the phrase "better an empty house than an angry tenant"
Raitchr, hope you get some sleep and hooray for getting your penultimate chemo ticked off!
Rosie, sorry to hear about your Neice. That must be quite a blow for her but best she knows now. I got my daughter a leaflet in fibroadenomas today as she needs to keep them monitored. I don't want her to end up like me.
Im generally feeling good - tongue still a bit weird taste-wise. I was prescribed Buscopan to stop stomach/bowel cramping so have been taking that to try and regain control of my bowel. I went for a scan this morning and was pleased to hear confirmation that the lump is shrinking and the orange peel appearance has all vanished and the enlarged lymph nodes could not be seen on the scan which hopefully means I could now be lymph negative. All good signs that the chemo has been effective enough for surgery to go ahead at the end. I will sleep with a little less weight on my mind tonight. 🛌
Hi Heather - I'm the same as you - my last chemo cocktail (D+H+P) is 24 August. I had a 1 and half hour delay today due to the Pertuzumab arriving late!
I too am feeling OK but tired - as again don't sleep well on huge steriod dose.
Ha ha Trisha - we are all beyond embarrassment these days as we just have no control over our bowels. Excellent news re the lump
Heather - good to get another one out of the way. Had 5/12 today, managed to find a vein so think they will continue with this method rather than fitting a PICC line.
News on gene not so good today, my niece has inherited it. She is 27 so has lots to think about. At least me getting bc has enabled everyone to find out and take preventative action rather than going through all this s**t
Chemo 5 done and dusted, next and last T on 24 Aug.
Feeling ok but tired as don't sleep well thanks to mega dose of steroids, off for a nap.
Hope everyone is feeling better.