Hi all I think I finish the same time as you Mai - 21 Sept
Had the roughest week so far on the weekly treatment ,stomach cramps and diarrhoea since Thurs and very sore tongue/ throat, finally feeling better today. I've never really experienced a good week as had 4 cycles of EC every two weeks and now 12 weekly treatments. I think it is starting to get me down a bit although I feel guilty saying that as many of you have had much worse side effects/hospital admissions. It's just that I never have a day when I feel completely well.
Have still got surgery to come so will definitely be here for a while so glad you're all thinking of staying. I can't imagine what it would be like to log in and find everyone's gone!
treehouse - I wear contact lenses every day and haven't had a problem. I do sometimes have trouble focusing and worry that my eyesight has deteriorated a bit while on chemo but it might just be my age!
Hi ladies - I'm staying put too - my last chemo is 24th August - but still have surgery to go. Have a ultrasound scan this Wednesday and first appointment back with breast surgeon on Thursday since chemo started - things are moving fast! So much valuable information on here - it really has been a blessing to know others are going through the same thing! x
Me too, I'd feel lost if you all disappear! We've all been here for each other through the toughest times when no one else understands what it's like. I'm happy to stay on this thread to the end of all treatment. We can always nip and ask questions on other threads and report back here with findings! I think an annual catch up would be good too. Xx
I finish chemo 24 Aug but I will still be here for you, to keep you going and seeing you through surgery seeing as I have had mine already. No one is going anywhere until we are all done!
Wolfee, yes, I'm finding my eyes a bit sore at times. Not too bad but aware of it on and off. My eyelashes are a bit thin and when I shower and was my face I feel like closing my eyes isn't quite enough to keep the water out - just feels weird.
Steady on Treehouse, don't overdo it: fun AND coffee in one day! Whoa! 😜
Raitchr, glad you are slowly crawling out of the black hole of doom, just think you only have to crawl in there one more time!
Katie, glad you had a normal and enjoyable weekend.
I constantly have the munchies for starchy food as its processing through too fast! Arghhh!
is anyone else still on chemo until the end of Sept with side effects into October. I'm feeling like I might be the last one here posting questions, answers and support to myself! 😂
Hi Ladies...I am day 8 from 1st doxetaxol, after being delayed for 5 days as liver enzyme level was raised, I am just starting to feel a bit better, like many of you the pain is definitely the worst this time, I haven't sickness, but no taste, furrry mouth, indigestion..ended up in hospital on Friday with raised temperature and I couldn't get on top of the pain in my back, I was lucky no infection home with stronger painkillers...I have felt more down this time and needing help getting in and out of bath is just so depressing...had district nurse to flush Picc line today she was nice and I think she will do bloods also as local surgery won't touch Picc line more training required...I do get a stinging feeling from it now and again but so far ok...Trisha hope you feel better soon you are having a hard time..Treehouse enjoy your bonus days with your family when you feel good...good luck to anyone on treatment this week may your side effects be manageable..x
Re hair, my face is a little fluffy this morning, I notice a few top lip hairs are back and I have stray hairs on my chin! Legs need a shave and maybe even armpits. Just hope it doesn't get out of control and I look like a gorilla....
WolfEE, today I am day 5, with chemo day being day 1 for me. Day 2 I was ok as on steroids so buzzing. Day 3 and 4, off steroids are my worst on T but with FEC it was a few days later. Day 3 and 4 I have felt jet lagged, flu like symptoms, sore mouth but no ulcers, no constipation. I feel a bit down as I am missing so much of the boys holiday but I know that I have to do this to get through chemo and on with our lives. I am lucky that husband works from home so he can take care of boys, not that they need much care they are 9 and 14 and I can take a step back from being in control. Having said that, I have just got up for a cuppa and both front door and back door were unlocked last night...usually my job to check it before bed but I headed to bed after tea!
Morning all! So having spent 2 days in bed I slepted all night, right through to 6.30am not even waking for a wee. Felling better, less breathless just a few aches and pains. Not much energy and tongue a bit sensitive but on the whole I have made it thorough to the other side.
Hope you are all ok, best wishes for those with treatment this week.
Treehouse, I've just finished eating some breadsticks dipped in houmous (seriously, not joking!). Glad I finished them before reading about your toe though! 😂 Do you think it may be worth checking if you should have antibiotics for it? Feet can be dodgy for healing as they're stuffed in socks and shoes all the time and rarely get a rest from use. My next treatment is on Thursday btw. ☠
Hi Raitchr - I am exactly the same this time - tired and just wanting to snooze! My Husband has taken our Son out for the afternoon and I'm resting on the sofa now rather than bed and enjoying the peace and quiet - I guess it's just a case of letting our bodies deal with all the chemicals! I started using the cherry flavour Nystin - just once a day - as soon as I started the steriods this time and so far - good news - no nasty mouth - so maybe the onc was right in that it's the steriods and not so much the chemo! J x
Feeling better, went back to bed and got a good hour sleep. Husband has taken boys out for a long walk and lunch so house is quiet and I can relax. May manage another snooze before they get home...
Morning ladies and hope you had a good nights sleep. We had a lovely day out yesterday at Renishaw Hall - just went around the lovely gardens and lakes. It was so nice to be out doing normal things. I've been doing well the last few days although my tongue is still weird, I'm craving starchy food and junk food and my bowel is still moving faster than usual, like 4 times a day. I expect the cravings are my body craving calories to compensate for processing speed!
Raitchr, sorry to hear you're finding the tiredness more difficult and I agree the Docetaxol is harder than the FEC. You will feel better soon so just give into it and rest for now. 🛌
Trisha, hope they soon sort you out in hospital and don't release you again too soon. It must be quite upsetting for you going home and then back again the same night.
Treehouse, glad your son enjoyed his trip and good luck with scouring the tide mark off the bath!
MJK, I bought some false eyelashes at the beginning of treatment but haven't tried using them. I'm afraid I'll get glue in my eyes! I use a liquid liner which is really effective. It's more like a felt tip pen. It's Boots No. 7 Stay Precise. If you use brown rather than black it isn't so harsh and gives a softer line (if you don't get it perfect then it doesn't show as much as with black)
Kala, I wake up in the night thirsty and always keep a pint glass of water beside me. I had to get up at 3am for a drink and to poop. Its not the dream! Why don't my bowels stay asleep when I do?? I sometimes feel like I can my heart pulsing hard and feel slightly short of breath. When I go walking I have to slow down on the hills as I get out of breath. I assume this is temporary side effects.
Oh Heather sorry to hear you are not having a good time, I agree I think the tiredness does get worse as I was a lot more tired on 4th fec so in a way I am glad I have a bonus week to recover a bit more then start the dreaded tax provding my other lump is not cancerous the week after. I have been using epson salts in every bath now.
Wolfee I am just eating loads of crap although have been better this last time, I was speaking to lady who had bc 5 years ago and she said don't worry about eating healthy just eat what your body craves, mine is cheese and onion pasties lol.
Kala I went through a stag of craving milk and honey whilst i was on the 5 day injections I made my huband do me hot milk and honey as a comfort drink lol. But I agree rest as I think sometimes if you do to much it can set you back and wear you out.
Forgot to say I am awake ⏰ 3am without fail, it changes to 5am once steroids have worn off. I usually just need to get up and go for a wee then lie awake for 1 hr and then drift off.
Hi all. Just about survived the last 24 hrs sleeping. This T has knocked me off my feet, think the tiredness is increasing with each cycle. Thank goodness only 1 to go.
Kala, I feel a little breathless, depends how I lie in bed or get propped up. I am blaming the yew tree 🌳 part of the T and my hay fever, have taken extra anti histamine yesterday. Mouth is a bit yuk but using Difflam and started on the cherry flavour (yummy I can taste it) oral thrush wash.
I have a few aches and pains in lower back and hips but have spent 24 hrs in bed, I am ok when I am up for a wee or go downstairs for meals. Re pain I was told paracetamol should be all I need but I have a store of liquid morphine and tramadol from my op to fall back on. Maybe you can use a laxative along side the codeine to help bowels. Warm baths and a hot water bottle may help.
So far fingers are better, not hurting like last time yet but have used Epsom salts pre this chemo so maybe that helps. Famous last words, will report back later in week!
The thing that is keeping me going is that tomorrow I should feel a lot better and then I have just one more T poisoning to go.
Hope everyone is feeling better, you all sound as if you have been through it recently.
Take care, Heather
Morning all. Hope everyone is well and my thoughts are with you Trisha xxx hope today you are feeling a bit better and managing to eat and drink a little more.
Im still feeling drained and it kinda feels like my heart is heavy, can't explain the feeling but it's like I'm possible a little breathless, has anyone else felt this ? Like my heart has slowed down. Possibly the herceptin messing about.
Im still not feeling like I can go out at all and I'm hoping this will pass as my mind says I can but my body says rest and take it easy as I don't want a return trip to hospital .
Is anyone waking up at silly hours wanting drinks etc as I can't seem to get past three without being wide awake wanting milk n honey haha.
I have codeine for pain but this causes constipation, any suggestions what else I could ask for xxx
Other than that I'm alive and pushing forward. Best wishes to everyone for a calming positive happy week ahead xxxxxxxx