Thanks for your support ladies. 💞 I was very surprised by this as I felt really well. It just shows how little we can judge neutrophil health based on general health. I read an article which suggested the most important assessments are temperature, sore mouth and sore bum hole! They don't plan to do anything this week, other than watchful waiting on temperature and signs of infection. I asked what the options are next week if my neutrophils haven't picked up and it was suggested this could be injections and/or reduced dose of chemo. I'm guessing they don't want introduce injections this week as they want to assess a baseline of what the body's natural recovery is?? My regular Oncologist is away this week so Im feeling there may be a passing of decision making until his return. The Oncologist said extended neutropenia is quite common at this stage in the chemo and there are several patients in the same position, on extended delay. They don't seem too concerned at this stage. The chemo has had a positive impact so far. I wish they could just cancel the rest of the chemo and bring forward the surgery if the signs of cancer remission are positive but I don't know how they measure the risk for surgery at this stage without a biopsy or MRI. I'm thinking has the cancer shrunk or died? So many unanswered questions!
Oh no Mai7 that is really frustrating, no wonder you're fed up. It seems the closer we get to the finish line, someone keeps moving it
Mai7, I am on Co-trimoxazole 480mg 1 tablet daily for 21 days. Sorry to hear you have had a delay.
WolfEE, I was about 3 weeks after mx before I had a bath and it was shallow, not laying down and soaking. Had to wait until I could hoist myself out without pulling any stiches. After 6 week check up and already being discharged from physio I started having a proper soak.
Big hugs to you WolfEE and Rosie as you remember and miss your dear Mum today. I'm sure your Mum would be very proud of how strong you have been. Keep soldiering on buddies. 💗
Rosie, your treatment plan sound as annoying as mine at the moment. So frustrating isn't it? 💗
I just got got back from Oncology appointment. I'm delayed a second week as my neutrophils have dropped again from 0.96 last week to 0.87 this week! So fed up with it all.
Raitchr, what dose and type of antibiotics are you on?
Misyangel, I use roughly 2 tablespoons in the bath daily in 1st week of chemo them every other day if I remember. I try to soak for 20 mins but depends if I have time. Your body will absorb what you need. If you are on T then bowels are more loose than on FEC and Epsom salts cure constipulation so have to get the balance right!
I am also on 21 days low dose antibiotics each cycle, which seems to keep bugs at bay and help bloods. This is the choice my NHS trust follows to prevent admission to ward and using a bed. So far so good, only 1 cycle to go so has worked for me.
Heather how much epsom salts do you put in the bath.? Also noted that you don't have injections very strange you white blood cells must be good lol
Rosie65 I would feel a bit anxious is they reduced your chemo by one as at least if you have the full amount know you have done everything but I supposed these people are the ones in the know so we trust what they say. That is really good that they got you an ultrasound so quickly
Wolfee sending big hugs ref your mum
Busybee good luck today and I agree it isn't over till the 3 weeks after chemon once over all side effects lol
Jay68. I am getting on ok with a softie. I am going for a prosthesis fitting in Sept sometime when I make the appointment. It does get annoying sometimes as it feels like I have a pair of socks in my bra. To be honest I would be happier if I got rid of the other boob too and be totally flat. It can be difficult to match boob and softie for shape so you have to think about what you wear and I tend to wear more patterned tops now so to hide any shape difference. I used to wear strappy dresses in the summer with some cleavage but avoid that now as softie doesn't give to the same look. I am happy that I had Mx, it has healed well and I have just got on with it.
Thinking of you today WolfEE. It doesn't get any easier does it? My mum passed away 25 years ago, I was quite a bit older than you though. Must have been very tough.
Good luck to all on treatment today esp if it's your last one.
Had a busy couple of days. Saw onc on Monday - 4th different one in the last 12 weeks. She wasn't going to examine me but I had noticed swelling, discomfort in the breast and armpit so she agreed to look. She said she thought lump was 2cm but it had been 1cm since June so she arranged an ultrasound. Luckily they had a cancellation so had ultrasound yesterday, lump hasn't grown or shrunk and is the same size as when I had previous ultrasound in June. So they may just do 3 cycles of Carbo/Taxol instead of 4 and bring surgery forward as I'm having mx anyway. But ultrasound dr will have to give onc the report so not sure when I'll know.
She couldn't see anything in the lymph nodes thankfully.
Also red blood count has dropped again so need 2 units of blood, but it seems most hospital staff are on holiday so haven't got a date, I'll just turn up for chemo tomorrow and see what happens.
Have caught up on all your posts and agree that it is really dragging now, not sure if I'll be happy with 3 more weeks and surgery or if it's better to have the six weeks as originally planned, will always be worried that I was under treated.
Hope you're feeling better today treehouse. I find it quite annoying when everyone's in the house but when I'm on my own I get quite lonely, so basically they can't win ha ha. Am working from home today to take my mind off things.
Thinking of you WolfEE, big hugs. ❤
Good luck everybody on treatment today. I have Onco on Friday afternoon so quiet week for me
Jay68, I had sentinel node biopsy, they tested the first 4 main nodes during surgery and they were clear. Haven't had reconstruction, didn't want it at the time, just wanted the cancer out.
Busybees - Good luck for your last chemo - I guess you've already had your op? I've got my final chemo next Thurs (24 Aug) and mx with node clearance booked in for 19 Sept - getting very close - but days are dragging!
Yes my steriods are same as Mai, Treehouse and Raitchr plus I have 5 days of injections which start 2 days after chemo.
Raitchr - I note you've already had your mx - mine is on 19 Sept - did you have node clearance too? Did you or are you having any reconstruction?
I don't have any injections by the way.
My steroids are the same as Treehouse and Raitchr. 16mg per day.
Mine is 8mg breakfast and 8mg lunch time so 16mg daily for 3 days.
I got a few really comfortable bras from Adsa about 8 pounds each. You can step into them and pull them up as they are elasticated, non wired or padded. I had MX so softie fits in the pocket on the bra, pockets on both sides. I am 34 b/C so I find them comfortable. They come in white, back and neutral, with a variety of styles and straps to choose from.
Just had curry for tea and its lovely to taste something spicy.
Can't wait until next Thursday to get last chemo done, the days dragging on....
Treehouse, you are forgiven for being human (and let's not forget, human on chemo). Don't be too hard on yourself. X
I found this company on Amazon which do a nice selection in bras: Intimate Portal. This is the brand I ordered the zip front bra from. Another company called New Chic have some nice feminine bras which have mesh over the cleavage area. The sizing is a bit weird though - you have to order a size bigger than your normal size. I'm not being very practical here though. I think I'm picking bras suitable for 3weeks post surgery. Maybe I'm not facing up to the idea of surgery very well!
WolfEE, I just checked my steroids (as I've put them out ready to take in the morning) they are 4x2mg for each dose so you are taking the same as everyone else. We count in pills, whereas the pharmacist counts in mg - I'm thinking, it's a good thing we're not pharmacists! 😂
Katie, not only did I google Pepper pig but watched the whole episode and so did my partner! 🐽 I love chips and gravy. Only one thing better than that is chips, mushy peas and gravy!
Wolfee I had everyone saying to me at the end of my 4th chemo wow you are half way through and I was like yes and got to go through it all again what I have already been through, I think we can only relate exactly how we feel through each treatment, our families try and sympathise but they have no idea how one bad day can feel like a whole week and you are right they do all still carry on and have normality we can only dream of our normality days. You are right as well after this we have the worry of surgury which we push to the back of our minds as we just want to get through chemo. Vent away that is what we are all here for and we all know exactly how each of us feels as at one point we have all been there.
Treehouse I get emotinal when I have no sleep lol. I don't think your family will be getting bored of it I think our families feel helpless sometime as really they can't take our pain away. I watched an interview with Kylie Minouge and she said she normally does everything herself but cancer taught her to let people take care of you and it is so true. When people look after and care for us it really means alot to them as they really feel like they are helping us which they are and we will be forever greatful. I read that article you were on about and it made really interesting reading.
Jay68, I have had problems with my eyes but mine have been really dry, I now have a bottle of eye drops but in every post chemo.
Mai7 thanks for the wishes. I had some bras off amazon as my bust was really painful around new lump after last chemo, I am big buster and I got some off amazon and they are so comfy
Just checked my steroids and they are 4 x 2mg twice each day.