Thanks Mai7, I will have a read later, had a quick look and there is so much useful information.
Going out for lunch with Mum and family to celebrate last chemo, our 16th Wedding anniversary and Mum's 80th birthday! Wow this has been on the calendar since start of chemo and thought it would take ages to get to this day!
Heather
Raitchr, this link explains the I3C and Dim:
https://www.canceractive.com/cancer-active-page-link.aspx?n=1417
Jay, my Onco has ok'd me taking Immunace , which is a vita biotics and antioxidants. The tablets contain vit C, zinc and selenium. As we all know, cancer just doesn't like selenium. As I am now on Letrozole, an aromatise inhibitor with achy joint side effects, she's also suggested I take glucosamine. I've found one that includes chondroitin. Hoping this helps combat my radiotherapy SE's.
Good luck all you ladies battling on to the finishing line. X
Re seroma, I was told by my BCnurse to put hands in armpits and flap elbows like I was a chicken with wings to help seroma fluid drain. It only collects there as the lymphatic system has been disturbed during surgery so it needs gentle encouragement to drain it away.
H
I only had sentinel node biopsy which tested first 4, all were clear. Can also recommend do all exercises given, I did mine after each meal so I had a routine and didn't forget them. The physio signed me off after first checkup with them as had full range of movement.
Think about what you wear to and from the hospital. I had to dress myself to come home. I didn't have drains or a dressing on scar. I wore a strappy vest top with loose shirt over the top and trousers. You need to think about drains and what is comfortable.
Take a note pad so you can write down instructions for meds or anything else they may tell you on discharge from hospital. I was a bit groggy the next day. Keep up with meds every 4 hours for a few days even if you don't feel much pain as like the nausea on chemo it is hard to control it once it kicks in. I found taking paracetamol in the day every 4 -6 hours then morphine or tramadol at night to help me sleep. Take meds to bed with you in case you need more in the night. Also write down what time you took meds each day so you know when the next ones are due.
You may get seroma fluid on Mx side after a week or so. Don't worry it is natural, it feels like a waterbed on your chest. Gentle pressure hugging the heart pillow helps and nurse can drain it but they don't like to as it can cause infection. I had 150ml drained on my 6 week check up, it never came back after that.
Also I choose to sleep in the spare room for a few nights just so I was comfortable and to make sure DH didn't knock my scar as no dressing it felt vulnerable!
Will try and think of other tips, it seems ages ago as had Mx on 17 March.
H
Jay, also get a triangular pillow (Amazon or Dunelm) to prop you up in bed, I found I could wedge the pillow under my op side to make me comfortable and not roll on to my side.
I also got a heart shaped pillow from a cancer charity on facebook. It has adjustable ribbons over your shoulder and you put it under your arm and it protects your op scar, great for in car on way home from hospital. I used it lots when sat on sofa to prevent my scar being knocked by my boys or anyone hugging me.
H
What is I3C and Dim???
Jay68, I had my op in the afternoon, the surgeon only opereated each day in the afternoon. I didn't go to theatre until 4pm as lady before me had complications so mine was delayed. I stayed in overnight as I had a bad reaction to the radioactive isotope and the blue dye used for sentinel node biopsy. I was prepared and had packed an overnight bag anyway as we live so far away from hospital it made sense to take it. I was quite pleased to stay in for one night as being told it was a day case I was a bit worried that I would be sent home in pain. I had my own room and was monitored well with enough pain killers to be comfortable. I was sick a few times from the anaesthetic and didn't sleep well as it was so noisey (take ear plugs and eye mask!).
Can't wait for Thursday to be here to get last chemo, it seemed like such a long way away when I started on 9th May!!
Heather
Hi Mai - I'm going to speak with the onc about supplements for after treatment. I am considering a multivitamin and definitely going back on my cod liver oil capsules! I've read it takes up to 6 months for our immune systems to fully recover from chemo - that's a long time when winter is just around the corner!
MJK - thank you for your mastectomy advice - I've got to be at the hospital at 1pm on the day of the op but I won't know where I am on the schedule until I arrive and although the surgeon says - "you go home the same day" - my breast nurse advised me to consider opting to stay in - but I have to tell them of my intention otherwise it could end up, if there arn't any staff to cover overnight, that I will be transferred to our larger hospital which is further from home - which I obviously don't want! I'm in two minds what to do at the moment and just getting as much advice from those who have been through it. Did you have any lymph nodes removed?
I too have a secret stash of pots! I'll be needing them next weekend!
I'm doing well thanks and have been getting out and about a bit. Yesterday I had to go and get some wig shampoo/revitaliser as I had completely run out. We've been doing a few local walks which has been really interesting, discovering new footpaths we didn't know existed quite close to home. I did my last of 3 filgrastim injections today so I hope that works and I don't get a third week delay. I just feel like I'm treading water at the moment - still doing all the right moves but not getting anywhere! My Son came home from his camping holiday yesterday so it's been nice to spend some time with him.
MJK, glad you didn't get stuck in the blackberry bushes! We just finished the last of the second apple and blackberry crumble I made tonight.
Treehouse, glad you have a nice coastal trip to look forward to before the end of Summer.
Has anyone thought about supplements after treatment finishes. I'm looking to take general multivitamin and D3 & K2, B complex, CoQ10, and have been reading up on I3C & Dim. I'll probably also take some collagen and glucosamine temporarily whilst everything is recovering and growing back. I'm also going to drink matcha tea regularly, add turmeric and black pepper regularly, flaxseed, eat mushrooms (for the beta-glucans), cruciferous veg, berries anti-cancer/anti-inflammatory/immune-support foods. There are so many supplement suggestions out there you can't obsess over them all! Just pick a few and go for it even if it just helps to cure your anxiety!
Just okay xxx Hiding away under the sheets. Number five done and on day four xx Hope your doing ok Mai . I can't keep up with everyone lol. Pain relief on tap and hoping I get to taste food in the next couple of weeks instead of cardboard and slimy yuk π»π»π»xx Will catch up once I have re-read the last two weeks of threads xxxx Keep going girlies your all amazing and super brave πͺπ»
Heather - I've got my bloods and onc on Monday and I'm exactly like you - with just one more chemo to go I don't want to fall a the final hurdle! I don't want Thursday's treatment put back ..... pleeasseee!
and another question Heather if you don't mind!?! - when you had your mx - what time was your operation and did you stay in hospital overnight?
J x
Treehouse - glad you found something to eat which you can put with "custard and cream" - if you like it, try rice pudding - and another that works for me is ice cream with chocolate custard!
Thank you all for the advice. I am doing most of that so will hang on and trust that next week will improve. I may try Paracetamol today.
I just have to remember that I am over the half way mark.
Have a good weekend everyone.
I was using paracetamol and a codeine based tablet for the aches, then resulted to Oramorph. Have found the Epsom salt baths helpful and a heatpad/hot water bottle.
Re the mouth... Difllam, Nystatin and Antacid and Oxetacaine Oral suspension helps as do the Gelclair oral rince sachets. Also a mouthful of sorbet between mouthfuls of food.
Ive just had second Docetaxel/Herceptin yesterday, was miffed it took 5 hours! Mindu the 1st one took 8! Good luck sweetie xx
Daffodil54, Try taking Clarityn hay fever tablets or similar brand which contains Loratadine, was recommended to me on another forum I am on. T is made from Yew tree sap so there is something in the hay fever tablets which helps.
I also use muscle soak bubble bath which helps to ease the pain or a hot water bottle can help.
I was told by chemo nurse I don't need anything stronger than paracetamol but I do have tramadol and morphine left from my op.Maybe call the helpline if it is really bad as they can get a prescription for something stronger or if you can wait until Monday see GP, you shouldn't have suffer.
Heather
Hi. I have just jumped on this thread from the June starters. I am finding my side effects from my first T hard to deal with. Terrible throat and muscle and joint pain. Any suggestions. I am using the mouthwash, taking Ibuprofen, but still finding it hard.
Have seen 4th different Oncology registrar in 5 months today, nothing like having to go through it all again each time. All good to go for 6th and final chemo next week, subject to bloods on Tuesday. Has given me different meds for oral thrush, tablets this time as told him drops were rubbish. Have appmt to see " an oncologist" in 6 weeks, whoever that may be! This is to discuss the process for the next few months. When I asked what that was he didn't know as I am not having rads. Assume it is 3 or 6 month review, he said we would talk about in at end of Sept.
He suggested Add Asprin trial but when nurse phone the research nurse they said no and gave me no reason. Anyone else heard of this trial or are doing it?
Have a good weekend everyone, hope you are all ok having had treatment this week.
I am doing the blood dance for me for Tuesday as can't fall at the last hurdle!
Heather
Catching up with all the posts...hope all went well today Trisha....glad treatment no5 done for MJK & Rosie...I had bloods done today for no5 on Monday..hopefully all will be ok and liver levels behaving...Treehouse glad you are having a better day though the lack of taste is so annoying and quite depressing at times but it does get slightly better though probably not back to normal till we have finished...I so agree with all your posts about the thought of going back to work and what our new normal will be I do get a bit down trying to think past this treatment and how to move on hopefully there will be one of those courses in my area...hope everyone's se not too bad in the coming days π
Brilliant news Treehouse - enjoy the good times x
Trish - good luck today - hope treatment goes well x
I'm off for lunch with work colleagues today and this evening me, husband and our son are going away for the night to the seaside - only 30 minutes from home but just can't wait for a change of scenery!! It's the small things in life now that make such a difference!
Trish - yes maybe your stomach is complaining about the amount of food if you haven't eaten much lately. Hopefully the loperamide will do the trick. I've been prescribed that as had diarrhoea last cycle, got told off for not contacting the hot line but it just cleared up by itself.
treehouse - I have another 5!! .....and weekly so no recovery time. The nurse said she may have to write next to it " do not use, this vein has had enough" to stop the nurses being tempted. I tried to show them my other hand but they just don't want to know!
Treehouse - big sympathies to you on your lack of taste buds - it really is the worse part for me - I too love food and when it has no taste and hurts to eat it's just awful. But as you know - it does and it will improve but when you're going through it - it feels like its endless. Try something like a fruit pastille lollypop! x