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May 2017 chemo starters

Rosie65
Member

Re: May 2017 chemo starters

Treehouse - I think the platelet dance may be your best bet. Onc said yesterday " it's not your fault you know, it's nothing you have/haven't eaten , it's the Carboplatin" Oh thanks for telling me now after I've been eating industrial size quantities of papaya, pomegranate and kale (not all on the same plate,I hasten to add).

 

On the plus side she said if the chemo's doing this to your rbc's and platelets hopefully it's killing all those nasty cancer cells. She stressed again that it's not shrinking the tumour that's important but that when they remove it it's just dead tissue and then they know the chemo worked. It will be compared with the tissue taken at biopsy.

 

WolfEE - you are making me really hungry! I can't wait to eat all those forbidden foods

 

Mai - I thought my treatment was taking a long time but I started on May 11 so you definitely win the prize, not that you particularly wanted that prize!

 

Being triple negative the oncologist said yesterday they need to throw everything at it up front as there's no hormone treatment available for afterwards although they are coming up with some tablets suitable for those with BRCA genes, but think it's still at the trial stage.

tatyana
Member

Re: May 2017 chemo starters

No steroids with surgery or radio.  At least, definitely not 15 years ago, the last time I was in this place! So you can kiss goodbye to steroid sleeplessness!

WolfEE
Member

Re: May 2017 chemo starters

Do we have 2 take steroids with surgery or radiotherapy?
I've just swallowed what I'm hoping will be my last two steroid tablets πŸ˜€
WolfEE
Member

Re: May 2017 chemo starters

At chemo yesterday I asked the nurse when can I eat and drink what I want (I'm dreaming of KFC) with out worry because of the chemo and she said about 3 weeks as soon as blood levels are all back up. So I would assume that alcohol would be same time. I. Fact I do believe that the T of FEC-T has alcohol in it so unknown I've been having a shot every three weeks!!!
I plan in 3 weeks time a KFC bucket some soft cheese and a couple of bottles of beer as my end of chemo pre surgery treat. (Oh and a kebab, mcds breakfast) lol the list is fairly long actually then after surgery I'll start my healthy low dairy, sugar diet etc!!
Raitchr
Member

Re: May 2017 chemo starters

I am not a big drinker so can't say when you can have a drink. But I have said to DH that when we are in Spain 8weeks after last chemo I am looking forward to cheap plonk that we get over there!

 

I am not trying to get rid of chemo quickly but assume it must be doing its job. My digestive system feels a bit sluggish which I am putting down to chemo and all the other drugs over the last 8 months. Just being kind to my liver.

 

H

treehouse
Member

Re: May 2017 chemo starters

Question for the bell ringers. Wanting something to look forward to, how long after last treatment before I can go out for a drink?
πŸ˜‚πŸΈπŸ·
treehouse
Member

Re: May 2017 chemo starters

Ok so I am at the 'try anything ' stage.
Anymore tips to boost bloods. I have had enough papaya for the rest of my life, protein in diet and shakes, water, and Dance πŸ’ƒ.
??????
Mai7
Member

Re: May 2017 chemo starters

Hope all goes well today MisyAngel, just 2 to go after this one. You're getting there. 

 

WolfEE, the steroid buzz will not be missed by anyone. Take it easy, you'll catch up the sleep once they wear off. 

 

Rosie, you'll be close to me for finish. If all goes to plan, I should be having my last treatment on 5th October (should originally have been 21st Sept but with 2week delay its now going on longer). My first treatment was 27th April which feels like a loooong time ago! 

 

Treehouse, my veins are also now accompanied by a talking navigator. I have to tell the stories and point them to the best route!

katie11
Member

Re: May 2017 chemo starters

Good luck today missy x

Hope you get some sleep today wolfEE?

Think I read it can take 6-12 months to recover from chemo so I just want to help my body along to get there.

Off to radiotherapy planning this morning. Time for my tattoos! After all this you would think I am getting use to needles but I am getting worse! X
treehouse
Member

Re: May 2017 chemo starters

Steroids and a busy brain, you are bound to be buzzing wolfee but everyday is a step further into the daylight away from that tunnel . Keep looking back and encouraging us to catch up please.

I have found I am best if I drink lots of water all through treatment not just before.
What do you mean by detoxing? Don't we want the chemo in and doing its job for as long as possible? Or am I being a bit thick here?

I kept the heat pack last time when they were really struggling with my veins.
The main problem I had was the nurse ( I think she was new) went straight for the juicy ones half way up my arm. They both burst which meant she couldn't then go below and use my hands as it would leak. That only left my elbow!!
I will be giving strict instructions of where not to stab on Friday.

Good luck today missy
Who else has treatment this week?
Jay68
Member

Re: May 2017 chemo starters

Wolfee - they are horrid but just think, after today - no more steriods!!! x
WolfEE
Member

Re: May 2017 chemo starters

Awful nights sleep (steroids) the night felt like a million hours. Today is my last day of steroids though.
WolfEE
Member

Re: May 2017 chemo starters

Good luck today misyangel x
Rosie65
Member

Re: May 2017 chemo starters

Misyangel - good luck today, I usually have the heat pack, works for me

 

The lemon in water first thing is also a good calorie burner. My daughter drinks it every morning before her run and then comes back for breakfast. Keeps her body fat percentage down.

 

Mai - all being well I finish chemo 28 Sept, when do you hope to finish?

Jay68
Member

Re: May 2017 chemo starters

Misyangel - Good luck with treatment today - hope all goes smoothly.

 

Pleased to hear the heat pack worked - another tip is drinking 2 pints of water before going to give blood - definately works for me - but don't do it too early!

 

 

Raitchr
Member

Re: May 2017 chemo starters

Re detox. I have started drinking warm water with a slice on lemon first thing in the morning before I eat or drink anything else. Supposed to help your liver so I am detoxing gently. Trying to drink more water too. I am wondering how long chemo stays in your system, but thought liver was a good place to start with.

 

H

misyangel
Member

Re: May 2017 chemo starters

Wolfee big congratualtions on your last one it must feel amazing.

 

I'm all booked in for 9:15am today, went for bloods yesterday and someone mentioned on another forum keeping a heat pack on your arm and it went so much more smoother than the last two as they have really been struggling to get blood out of me.

 

Katie I am exactly the same as you and want to detox all the chemo out of me when I am done. if you have any hints and tips please share

 

 

 

Raitchr
Member

Re: May 2017 chemo starters

Well done WolfEE! Despite the expected side effects it feels lovely to be done. Take it easy and remember at least it is the last time you get the horrible mouth.

 

H

busybeeS
Member

Re: May 2017 chemo starters

Well done WolfEE. I always thought the bell was a virtual one, didn't realise the bell was on the chemo ward!!
Another one over the line, we'll all be there before you know it.
WolfEE
Member

Re: May 2017 chemo starters

Katie, I fear the worst foe the wig and yoga. If you can feel comfortable enough I'd wear a cap or scarf. I'm thinking the wig could come off darling and you'd be worrying about it slipping. Xx
Mai7
Member

Re: May 2017 chemo starters

Congratulations WolfEE on your last chemo and glad you gave that bell a good ring and had a good cry too. Sometimes the pressure valve needs to be released when you've been strong for too long. πŸ”” πŸ’ͺ🏼

 

Rosie, glad your blood is good to go for next treatment. Is it your last one?

 

Katie, I understand your need to purge the chemo products out. I'm sick of seeing a small pharmacy beside my bed!  I'd be worrying about the wig falling off at yoga if I were you so can't advise you on that one!  Could you wear a bandana over the wig like a ninja? 

treehouse
Member

Re: May 2017 chemo starters

I went to yoga a breast haven so it was for bc ladies. I had a scarf on and just took it off half way through as I was warm.
Depends on your type of yoga. Don't think I or my wig would cope with downward facing dog right now πŸ˜‚
Rosie65
Member

Re: May 2017 chemo starters

Nooo treehouse my chemo just goes on and on ha ha

 

Actually if platelets were still low the onc said they might go straight to surgery but she is keen to do one more carboplatin but that's the one that knocks my blood cells as I have a large dose. I have just got paclitaxel this week and then back to onc next Monday. Depending on my bloods they may reduce the carboplatin for next week and that will be my last one or carry on with the whole cycle and my last chemo will be 28th Sept.

 

So annoyingly I still don't know when I'll finish. She said my body has had so much chemo the bloods are just not recovering in time.

 

 

 

 

Jay68
Member

Re: May 2017 chemo starters

Katie - my wig has fallen off only once unexpectedly - whilst laying down having the ultrasound scan!!! It was only when this happened, mind you, that the assistant believed it wasn't my own hair and I'd been to hairdressers!!! So funny x
Jay68
Member

Re: May 2017 chemo starters

Well done Rosie with your bloods - fingers crossed for you for Thursday xx
katie11
Member

Re: May 2017 chemo starters

Well done wolfee! Glad your bloods have picked up again rosie!

It does feel odd not going back! Although I am starting to feel like I need to do a spring clean and get rid of all chemo stuff! Bit like when you have been sick and Bleach and Dettol everything lol !

Had nice day with boys before they go back to school on Wednesday. Been to new ninja warrior park that has opened , they loved it. Does look fun want tit go back and try it once I have hair and it won't fall off lol! Just on the subject i want to start a yoga class but am worried my wig will fall off am I being paranoid or will this happen??? X
treehouse
Member

Re: May 2017 chemo starters

Is that your last one Rosie?
Rosie65
Member

Re: May 2017 chemo starters

Congratulations WolfEE, must be a great feeling to get to the last one, no wonder you were emotional.

 

Well I had my bloods done today and no phone call so I guess I'm good to go for Thursday.

Jay68
Member

Re: May 2017 chemo starters

***  CONGRATULATIONS to WolfEE - well done - you're over the chemo finishing line! ***

 

It really does feel strange doesn't it?!  it's a feeling I can't put into words - just a complete mixture of emotions - day 12 for me today and I still can't get my head around the fact I won't be going back for more!  Got my Herceptin injection instead (which I feel nervous about) and then 5 days later my op!!! eeeks!  Getting nervous!

WolfEE
Member

Re: May 2017 chemo starters

πŸ˜‚ I was howling in there today! 🐺
It does feel strange not 2 be going back it almost feels a bit scary that I won't be heading off there in 3 weeks time. But I will be off 2 the surgery theatre so I guess in a week or so that will take over my thoughts!! Packing my overnight bag and caravan pjs
treehouse
Member

Re: May 2017 chemo starters

Whoop whoop. Well done wolfee 🐺
I feel a little sad that a crazy woman won't be in howling on a chemo ward somewhere trying to locate her May pack πŸ˜‚πŸ˜‚

Awesome news! how is Missy doing?
Slowly we are getting there.
No idea if we have a bell πŸ”” either. I will definitely be looking for it.

X hugs
tatyana
Member

Re: May 2017 chemo starters

Congrats wolfee, and hey, you're allowed to feel emotional! Those tears are good ones. You made it, and now you can move on to the next stage!
MJK
Member

Re: May 2017 chemo starters

Congratulations WolfEE πŸ•­. I'm not surprised you felt emotional. It's been a roller coaster. I'm sure I'll need tissues on Thursday too. I hope you're feeling ok. Big hugs. X
WolfEE
Member

Re: May 2017 chemo starters

Rang the bell today funny I hadn't even noticed the bell in all my visits I hadn't even heard anyone ring it.
I rang it and everyone started clapping. I went back 2 my seat as I was waiting on the doctor brining me a letter for my GP about my blood thinning injections. I got 2 my seat and after the bell I was so emotional it come from nowhere I couldn't stop crying and that was weird because throughout this I've had many feelings. Fear, anger etc but I've not actually shed may tears I've managed 2 hold back but tidsy they were flowing nothjngi could do.
treehouse
Member

Re: May 2017 chemo starters

I asked friends to lend me their favourite books to keep me going. That has been so nice to share.
I have quite a pile πŸ˜€
Jay68
Member

Re: May 2017 chemo starters

Reading other ladies experiences makes me feel truly humble.

 

I am extremely fortunate, I have a great family and close army of friends - (and of course ALL you ladies on here) - without whom this journey would have been a very different one.  

 

I really do count my blessing each night as I close my eyes - thank you all for the strength and positiviness that helps me to battle on.

 

and as Treehouse has said - it has made me reevaluate how I deal with others - I heard news this morning from a very dear friend who has MS - she suffered a fall in the night last Thursday night (top to bottom of stairs no less) - she tried to deal with the situation at home - just taking it steady and confined herself to bed rest - however, she's now in hospital they've discovered she's actually broken her back.  I've sent texts from day 1 - she's not leaving my mind and I just hope she'll mend and be back soon.  Good friends are hard to come by x

tatyana
Member

Re: May 2017 chemo starters

Having been a bit offhand about my brother, who I love dearly even though he's not the easiest person -- I think it's only fair to say that his lovely partner has been very supportive, even from faraway Vancouver. She emails often, and randomly sends little thoughtful gifts -- soon after I started chemo, a parcel arrived containing a set of individual soap "petals" and a little handwoven quick-dry linen hand towel (weaving and handcrafting is her trade), because a friend of hers who'd been through chemo had told her how sick you get of the smell of hospital soaps and horrid harsh paper handtowels. The perfect gift -- I'm bearing it in mind next time I want to find a present for a chemo victim. Another friend -- not an especially close friend but a good mate -- dropped in from her way home from work (and no, it's not really on the way!) to bring me a natural scent diffuser for the house, which is perfect, not too overpowering but just enough to make the house smell like flowers. Some people just get it, don't they!

Mai7
Member

Re: May 2017 chemo starters

Go Treehouses Mum and Tatyana!  πŸ€˜πŸΌ We need friends like this!  I've had one great friend who is always positive, visits me with a nice home made salad and put me in contact with a friend of hers who had BC and chemo three years ago and has gone on to have a baby and move to Copenhagen.  These are the friends we need.

misyangel
Member

Re: May 2017 chemo starters

Treehouse your mum is amazing and must be fantatic to have such a great support when she has been there herself.

 

Tayana I have to agree exactly with what you say you certainly find out what people matter in your life when you go through this, like you say just a little text to say thinking of you means so much but people don't realise.

 

The funniest comments i have had is when people so oh my friend when through it 5 years ago and she is fine, and its like oh thats ok then I won't matter about the 24 weeks of chemo and surgery, radiation and people just brush it off like you are getting over a cold Woman LOL

 

tatyana
Member

Re: May 2017 chemo starters

By coincidence, minutes after my previous post, the phone rang and it was my big brother calling from Vancouver (I think it's 2 am there, but he keeps odd hours!). He's usually terrible at keeping in touch and hardly ever rings except birthdays & Christmas, and even then he finds it hard to maintain a conversation -- he's just not the chatty type. But today we had a really good normal conversation -- about my health, the ageing parents' health and state of mind, his retirement, what he's up to nowadays, etc. A rare treat! I can often get a bit sarky about him because he's pretty unhelpful in family situations, but it really was nice to hear from him today. Just exactly the kind of thing we were talking about! Made my day.

treehouse
Member

Re: May 2017 chemo starters

Tatyana you make me laugh πŸ˜‚
Thanks for sharing.
I agree just a little note or text to know people care really does mean so much not just to us but our family too.
I was absolutely blown away by the amount of people who did that and I am going to make bloody sure I do the same when I learn of others having a tough time.
A text, an email. A card anything.
Even weeks or months later. Sometimes those are the best because you know you have not been forgotten.
Reach out people!!!
tatyana
Member

Re: May 2017 chemo starters

Treehouse, your mum is an inspiration! Four times, and still fighting? Way to go! This is my second time, and I have to say it's harder than the first, because it's more advanced so the treatment is rougher. But I do so enjoy it when I meet people with an early- stage cancer like I had first time, that I can say "Well, I had that 15 years ago, it's not easy at the time but you'll come through it and I've really enjoyed my life since then." If it's someone who hasn't known me forever, I do NOT add "but then I got another one 15 years later"!! Or if I can't avoid mentioning it (eg because I met them on the chemo ward), then I make sure to tell them that this one is completely unrelated and just bad luck, it won't happen to them unless they are very unlucky.  Nobody wants to hear the bad stories, surely everyone should have enough common sense to just not mention that stuff to someone who's going through it?

 

But what I find even worse than people telling you horror stories, is when old friends and family members just don't get in touch at all, because they don't know what to say. Please, guys, just say something. A quick call or email, "how are you," "I was thinking about you," "how's your hubby coping" -- anything, just to know they care means so much. First time around, I cut people a lot of slack, thinking their heart is probably in the right place but they just feel bad and don't know what to say. Second time around, I'm not so forgiving. If you don't know what to say, try saying "Hey, I just don't know what to say." That and a hug, or a few kisses on an email, is plenty! If you can't make that much of an effort, then don't expect me to call and ask how your new puppy is settling in or whether you had a good time in Spain.

 

The easiest people to talk to, of course, are the ones who've been through it themselves, or in their families, in some shape or form. I love my little "survivors' club" of people who've been there, done that, and I can relax and share jokes about how every little headache these days is a brain tumour!

 

Best of luck to everyone with bloods and treatment this week. I'm doing the blood dance! It's like a scene from "Shaun of the Dead" around here.

 

 

treehouse
Member

Re: May 2017 chemo starters

And she always has a packet of those biscuits ( we call them granny biscuits in this house)
I don't see her story as negative or scary.
At 74 she is a success story and had tamoxifen 30 years ago.
Life goes on and she is showing me how to do it with style.
WolfEE
Member

Re: May 2017 chemo starters

Treehouse I'm loving your mum, her attitude and her language xxxx (4 times gosh now if anyone has the right 2 comment than it's her) xxx
WolfEE
Member

Re: May 2017 chemo starters

Lotas biscoff ❀️A dam good biscuit a personal fav of mine also.
katie11
Member

Re: May 2017 chemo starters

Go treehouse mum! Well said x
treehouse
Member

Re: May 2017 chemo starters

So I had a little rant on Facebook after hearing people's ' experience with thoughtless comment and this was my mothers response πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚(remember she is cancer warrior extraudinair)
"I know it's difficult for people, who have not known anyone close battling cancer, to say something sensible. Whether it's ignorance or embarrassment I don't know, but most kind people say something positive. But there are those who do not think before they speak they just open their mouth and let the **bleep** fly. To those I repeat my beautiful daughters words "shut the f..k up" 😑
Sorry about our language but I love ❀️ my mum . She is the positive story I hang on to every day. She has battled and won 4 times. I asked if she is still worried and she said sometimes but I can do it again!!!!
What a woman!!!
So proud of her.


Raitchr
Member

Re: May 2017 chemo starters

Some people are really insensitive and a bit naive about cancer. We didn't ask to have it, we just got it. What we have to remember is that everybody's cancer is different. There isn't "one shoe fits all" type of tumour and treatment. We have all learned so much about breast cancer since we were diagnosed and we are making changes to our life styles. Everyone seems to want to tell us about someone who had it and how bad it was. They never remember the people who had it, survived and lived a long life. It is always doom and gloom and it shouldn't be that way! 

 

Good luck everyone on treatment this week and gentle hugs to those with side effects or just feeling a little low!

 

Heather

 

 

katie11
Member

Re: May 2017 chemo starters

Good luck wolfee, go and ring that bell!!!!

Good luck everyone else this week. Hope all bloods are back up and ready to go for everyone else.

Xx
Mai7
Member

Re: May 2017 chemo starters

MisyAngel, hope all goes well for you tomorrow. I'll check out the thread you pasted, thanks for sharing.

 

WolfEE, that's terrible. I just can't believe how insensitive some people can be. It's like they open their mouths and stuff comes out unfiltered!  Don't they realise you just don't really need to hear it.