Jay and I met for real this morning! It was so lovely to meet you Jay and felt quite surreal.
Im day 4 so my tongue is slimy and I don't know what to eat. I've just had a snooze and am gearing up to put some food in my mouth. My partner has gone out in search of Bombay Potatoes!
Hi Soworrid, never had a cold, thank goodness. Told, very firmly , by chemo nurse to report any such as would likely not do chemo. Any slight infection gets hold very quickly and escalates rapidly - apparently. Are you checking temp twice daily? Chemo nurse will ask for last reading when you phone alert line number. If you are feeling grim I would phone and ask for advice. Best wishes. X
PS. If you have taken paracetamol your reading will be compromised as it lowers your temperature. Need to be a medication free reading, I'm afraid!
Yeah Trisha on finshing injections and sounds lovely going off to carnival.
Treehouse you lucky thing, how amazing to have a night in a manor house.
Mai7 I am pre-menopausal, hoping they will check my levels the same as you.
How is everyones hair growing, I have a good covering on my head now, my eye lashes have started to fall out on the tax. I have bought some revitalash to start using once chemo is finished.
MJK, you've totally messed up your variables by trying to measure two at once on your own clinical trial! Glad it's working for you though. I guess, just keep wearing the bracelet and drinking the tea! 😀
WolfEE and Treehouse, it looks like behind muscle is standard then but may vary from one hospital to another depending on surgeons experience? Treehouse, what were the advantages of method 2?
Just delivered my Son to Uni and left him surrounded by boxes, beans and pasta etc!
i just counted up my injections and by the time I'm done I'll have had 50 injections! I did my first one for the cycle this morning and I'm sure it hurt more than usual maybe losing weight means there's less fat to stick it in or I'm getting a bit tired and sensitive with it now.
wolfEE, I woke up the mornng thinking about the surgery again. So you have the insert in no.1 boob and it sits behind the muscle and stretches it slowly as they fill it. When it's time for reconstruction does the implant for boob no.2 go behind or in front of the muscle as I'm thinking it's going to be a bit painful on boob no.2 if the muscle hasn't been stretched?
Trisha, glad you've dodged the aches the time. I had an Epsom salt batch last night but to be fair I over did it a bit on the domestics yesterday whilst I had the energy!
Treehouse, hope you have a fun day with your family.
MsyAngel, the Tamoxifen blocks the oestrogen receptors to prevent new tumours forming. It's prescribed for pre-menopausal women. Post menopausal women have aromatase inhibitors instead. My Oncologist said they will check my oestrogen levels before any drugs are decided to check where I am on the menopause journey!
WolfEE, do you think they would consider bilateral all in one go or do they prefer to phase it? I have mastectomy and full lymph node removal on left side so they may think that's enough surgery to cope with for now?
MJK, 42 injections! Is that the total number for the full duration of your treatment? 💉 I just got a sharps bin delivered today as the chemo nurse forgot to give it to me yesterday and I forgot to remind her - I was pleased to have remembered to ask at all with chemo brain! 😂
Kala sorry to hear your news sending you a big hug
treehouse that is amazing from your work colleagues it really is lovely when people still are there through the long hall.
Jay thanks for info ref herceptin that makes me feel a lot better
i am going to ask my oncologist weather I will be on tamoxifen as I am a little nervous about that myself I know they said I had to take something for 10 years but can't remember what it was
Kala sorry to hear your news, but there is a lot of interest and research into the BRCA genes at the moment. I am BRCA 1 and am taking part in a research project which Cancer Research are funding. I was quite pleased to find out as I've had more targeted treatment as a result.
Fortunately I havent passed the gene on to my daughter but my sister has passed it to her daughter. She is 27 and having preventative treatment. She has seen what I have been through with chemo and is pleased she can avoid that herself.
Im having bilateral mastectomies and oncologist advised delayed reconstruction in case I need rads as although no lymph node involvement shows on ultrasound they won't be sure until after op. I am keen to get both breasts removed as you don't need mammograms any more so gets rid of that "scanxiety"
My sister got a second primary lump within 6 months of chemo finishing and then another in the other breast 6 months after that, she is obvs BRCA 1 as well.
I'm hoping I have enough tissue for a tummy tuck to create my new boobs but am meeting surgeon next week so will find out more then.
Thanks ladies for the fit note advice. I think I'll phone my boss first to discuss and then phone GP. My original letter from oncologist was for my original plan 4xEC and 4x paclitaxol due to finish 13 August. OMG if only!!!
But after genetic test came back positive it all changed. I'm not seeing the oncologist again until after surgery so guess it will have to be the GP.
Ive been fine working from home clearing my backlog but don't now have enough work for full time. My job involves visiting companies across London every week; an hours commute plus tubes etc and only a couple of days in the office. Mentally and physically there's no way I could it at the moment. I didn't enjoy it before all this so I'm kind of hoping I can talk my way into a more desk based job when I go back.
Treehouse, aw, that's so sweet and lovely to know you are being thought of. X
WolfEE, that sounds like plan, I'm thinking of double mastectomy because my non-cancerous boob is full of fibroadenoma lumps which had an area of radial scar tissue removed 15 years ago by vacuum assisted mammotome so I feel like it's a time bomb. Radial scar tissue is considered high risk of turning cancerous.
Raitchr, I'll look into booking onto a course at Nottm City when all of my treatment is finished.
Treehouse - Sorry to hear about the lower back pains - I got them on my first and my final chemo - I'm sure its related to the injections - how many you got left to do? Paracetamol will work as pain relief.
Kala, sorry to hear your gene results. I do believe it is positive as you get better aftercare with followup checks and annual Mri, so I hear from others on another forum I am on.
There is a lovely Maggie's at Nottm City hospital, that's where I go. I am booked on to the Moving forward sessions starting 1st Nov.
Kala, sorry to hear about your Braca2 diagnosis but thank goodness you are now empowered to make decisions - both you and your family. Big hugs to you all. Xx
WolfEE, it definitely sounds like there a genetic pattern in your family and not coincidence. There must be more genetic types and sub-types yet to be discovered/decoded. Xx
Do you know if the stretcher implant can be inserted before radiotherapy? So you can have it at the time of your surgery but don't get it pumped up until radiotherapy has finished?
Treehouse, Sorry to hear you are getting all achy. I get lower backache on the Docetaxol and have it now. It's just the gift that keeps on giving with new surprises all the time. I'll probably have an Epsom salt bath tonight. Xx
Hi 👋Ladies. Day nine from last chemo and finally I'm eating a meal ( pasta nom nom).
Yesterday was a sad day as the genetic team phoned me with my results, braca 2 so my future operation has now been totally changed to bilateral mastectomy and overies removed 😭
On the plus side it's all free and now my daughters will take the tests as they are at 50% risk of having the gene also as are my sisters.
Still trying to come to terms with it all as you know guys , it's been tough enough dealing and coping with the chemo ! Thank goodness that part is now over 🌈
How amazing are we all to cope with all the side effects imaginable. Going to get out there tomorrow and stuff my face with barbecue spare ribs and down one pint of strawberry milkshake 🌟⭐️💫
I am seeing the surgeon next week but there are so many options I will listen to them first and decide which way is the best way forward for me as I'm supposed to have radiotherapy after my op which means reconstruction may have to wait. Anyone else in this wonderful group know how this all works with the ops and the radiation?
hope you all have a fab weekend and do absolutely everything you can possibly manage to do without too much pain. Massive hugs 😻😻