Good evening ladies and I'd just like to say a great big thank you for all your good wishes and thoughts.
How am I feeling?? - nervous and excited along with many other emotions!! - In all honesty, I can't wait for it to be behind me and I can move on to whatever is next in this horrid journey!
For those who have had the op - do you have to remove all jewellery (ie wedding ring/eternity and engagement rings) in particular and what about earings? I'd rather not wear any than have to remove and put in a hospital safe. Any information greatly appreciated.
I didn't cold cap at all, lost hair on 1st of 3x Fec but after 1st T any remaining hair (I had .5 buzz cut) fell out as new hair started to grow.
Always welcome to ask questions, think we can answer most things now between us.
Hello Soworrid - I never used the cold cap, however, I do understand the FEC or EC is harsher on the hair follicles than the docetaxol - especially head hair. From personal experience the docetaxol does seem to affect the nose hairs, eyebrows and eyelashes but it seems to differ from one person to another.
Ok panic over, our flights are not on the Ryanair cancellation list!!
Have got swollen feet/ankles again, have had this for a few nights now. Any remedies??
How annoying MJK. I took my full sharps bin into the chemo unit last time and they happily took it off me. The nurse forgot to give me a new one so I had to get an emergency delivery for it but this one isn't as good. It has a guard on where you post them in (presumably kid proof) but my finger gets stuck in it when I post the injection in and it's quite painful!
Treehouse, I don't know anything about chemo, cancer and essential oils other than cancer doesn't like Frankinsense, I think it kills it in vitro tests.
Rosie, big hugs and not long to go now for you. The tiredness has been getting to me day 4 and 5 so hoping for a bit more energy tomorrow.
Jay, wishing the very best for your surgery tomorrow. I'll be thinking of you. Xxx
anyone else in surgery this week?
MisyAngel, if Botox got through (which is a toxin) Chemo could be a matter of time at the right dilution! Scary thought....... That's so cool that you have been sitting there on Treehouse's coffee table!
Treehouse yes it is me on the front cover as well, can't believe i am on your coffee table
Thanks for all the compliments ladies. I did read an article that chemo helps with anti ageing but they won't make it common knowledge as they don't want people to have chemo to look younger lol.
Hi all fatigue finally caught up with me this weekend, I've been ok most of the way through but think the cumulative effect of treatment is kicking in.
Off to hospital to get bloods done - the usual Monday anxiety, I won't miss it. Yes only two more, finish hopefully on 28th. Hadn't thought of a tattoo on the super vein, but if it gets me through I think it deserves it. There is on only one nurse I trust with it - hope she's there the next two weeks
treehouse - I'm not surprised you've been emotional now chemo's finished. It must be such a relief, I haven't been very emotional so far but feel now that it's building but I'm just trying to get through to the end when I fear the floodgates will open.
Mai and Jay - how amazing you got to meet. Jay - at least you'll recognise two of us at the meet up next May.
I've also got the horrible metallic taste again so struggling to find half tolerable food. Oh well not for much longer.
Misy - you look amazing , what lovely photos
katie - good luck with the radiotherapy. I used to go with my sister to radiotherapy to look after her pre- school kids while she was in there. It didn't take long and then we'd go out for the day! She was only 29 so must have had more energy even with cancer treatment!
Katie, they're all crazy in Hollywood, it's bound to catch on there! You can have the flu vaccine as long as your neutrophils are recovered. It isn't a live vaccine.
MJK 😂😂😂😂😂😂 🍉🍳
How lovely MisyAngel, you look gorgeous and so fresh faced and healthy - what's your secret? ...... Oh wait.....chemo! 😂 So nice that you've jumped at the opportunity and inspired others. 💗
Misy, you look just fabulous in those pics, what a fun thing to do, and how inspiring for us all!
It's great to know that round 2 of T wasn't so bad for you, I had an okay-to-miserable time with round 1, and I'd been assuming the next one would be worse, so it's great to know that it ain't necessarily so!
Heather, I think the Ryanair thing is a short-term problem, from what I can gather they messed up their pilots' holidays (pilots get holidays? what do they do? take a train somewhere?), but it should all be sorted well before your trip in October.
Had a great boost to morale yesterday in the shape of a half-day with the 5-year-old grandson, who was totally charming (which is not always his default mode!), and when grandad invited him to choose a present from the shop, discovered that the thing he wanted most out of the whole shop was a book of Mr Men stickers costing a whole pound! He then spent the rest of the afternoon excitedly pointing out all the different Mr Men in the pictures. He can always cheer me up!
Heather good luck with your meeting re phased return
Katie how exciting starting radiotherapy this week.
Soworridl - I have found docetaxal far earier than the fec, first round I had lots of aches and was unable to take paracemaol as temp was spiking but second round has been a lot better. I also took clarityn on my second round, didn't take on first round as liver function was pretty high. The runs were horrendous on first round but again they don't seem to have been as bad on second one.
MJK fabulous that you are off to york, I have never been there but really want to go and this is on my to do list.
Mai7 I have 7th one next tuesday so off to oncoloist Friday and hoping they give me a date for surgury then. I have also got to call BCN once 7th treatment gone ahead as they want to book me in for MRI scan. I can finally see the light
Treehouse glad you are feeling better today, these moment can just creep up on us but I think you always feel better to get it out your system. Oh not good about losing some more hair grrrr, hope mine doesn't come out,
Ladies I did some hat modelling for the live better with cancer website back in July and I was in their magazine at the weekend, here is a pic of the aritcle. Back in May they were asking for volunteers of people that were going through chemo so I did a podcasy with them and they then used the article in a blog and asked me to send a pic then they asked me to go to London for the photoshoot which was amazing, never done anything like that before, I even got to keep some of the hats
Jay, Glad your journey home went well, but wow, 5 hours is a lot! I had the Bombay potato which was a good food for texture and spice.
Katie, hope your rads go well and tell us all about it.
Treehouse, you don't have to be a perfect parent, just a loving one. I'm not sure if I've found the T easier or not, just different.
Rosie, you must be due your last chemo, was it the 28th is my memory serves me well?
MisyAngel, you must have chem no.7 coming up soon too. Is it this week?
Raitchr, return to work meeting........ ☹️
I have about 40% of my head hair, it went thinner back and sides recently but started growing on top.
About 20% of my eyebrows and lashes remain
Morning all, hope you are well.
I have had a busy weekend, my youngest son was 10 yesterday so out and about, playing mini golf, people visiting and out for a meal. So strange to be out in the world doing normal things. Have been so desperate for his birthday as I knew I would be 3 weeks after last chemo so it was a milestone, quite emotional.
Going into work tomorrow to chat about phased return in Dec/Jan so a bit nervous 😓 and have 2 school meeting Wed & Thur pm so life is getting back to normal.
Legs still feel heavy towards the end of the day, I need to get used to a slower pace of life.
I had a panic on Sat when I heard Ryanair are cancelling 50 flights a day to catch up on staff annual leave. We are going with them 19 Oct to Spain for our very much needed week in the sun. They had better not cancellation ours as will be fuming, fingers crossed we are ok. Don't mind being stranded in Spain but have to get there!
Treehouse, I had an emotional time after I finished chemo, it was just the relief that it was over. It is expected and a necessary part of our recovery.
Hugs to all
Hugs to you Treehouse, it's understandable that you should feel emotional. You've had to be very brave through chemo and probably feel a sense of relief now it's over as well as some anxiety about impending surgery. We have to put ourselves through more than we realise and we just find a way to cope. Sometimes you just need to let it all out. Xxx
MJK, I had Bombay potato and it was ok. I've had an Epsom salt bath for aches and pains and straight after my temperature went up to 37.6 but now it's the gack to 37.3 so hopefully it was just a temporary glitch! I'm glad it's official PJ day - sometimes you just need your PJs and a hug. X
WolfEE, yes, it was lovely and Jay and I had mutual admiration for our wigs and had a real life hug. You are right about the half-tolerable! Nothing feels or tastes good. The flavour, the texture and the temperature are all weird. I'm also feeling achy so I've put my caravan PJs on and will regress to toddler status for the remainder of the day! 👶🏻 I don't want to wear the big girl pants! 🛌