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May 2017 chemo starters

Member

Re: May 2017 chemo starters

So just wondering πŸ€”
I’ve done the chemo and had the mastectomy and lymph nodes removed. Am I now classed as cancer free? At what point are we classed as having β€˜had cancer’ rather then has cancer. Is it after radiotherapy or now the surgery is done? When I went for my surgery results the doctor never said??
I’m assuming I’m now cancer free?? I won’t feel it until all treatment has finished but the radiotherapy and tamoxafen are preventing it coming back not 2 get rid???
Community Champion
Community Champion

Re: May 2017 chemo starters

Thanks mishy, next one should be next Thursday and I was thinking 5 more and I’ve had neutropenic sepsis in 1st one😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱😱my admiration for you all is beyond words. I hope he lowers the dose, I would actually like to still be alive at the end of chemo to do the rads and have a mjk βœ”οΈβœ”οΈβœ”οΈβœ”οΈβœ”οΈβœ”οΈDay πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨shi xx
Member

Re: May 2017 chemo starters

I only found out I had it shi when I was discharged they just said I was neutropenic too it was my breast cancer nurse who told me when she rang to see how I was!! Probs don't like to scare you! Like I said should I was not well on my first 2 fec buy the Doxetaxal that I was neutropenic I don't think it makes a difference which one you are on, they will probably lower your dose for next time that's what they tend to do when you have a ruff time on your first dose 😊
Community Champion
Community Champion

Re: May 2017 chemo starters

Woolfee well done for outing to shop πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘it is a great achievement 😘😘😘😘love shi xx
Community Champion
Community Champion

Re: May 2017 chemo starters

πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ‘£πŸ‘£πŸ‘£πŸ‘£πŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ•Ίdance for you mishy, I just read the paperwork from hospital and diagnosis was neutropenic sepsis!!!! They just told me while I was in there I was neutropenic.... and that was only fec 1!!!!!πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ•ΊπŸ•ΊπŸ‘£πŸ‘£πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ•ΊπŸ•ΊπŸ•Ίso double dance for you mishy βœ¨βœ¨βœ¨βœ¨πŸ’•πŸ’•πŸ’•πŸ’•shi xx
Member

Re: May 2017 chemo starters

Any news from misyangel, Trish and Daffodil?????
Member

Re: May 2017 chemo starters

Mishy I’m doing the dance now for you.
Granddaughter sounds adorable. My nephew was prem 30 weeks he was so tiny. He is now huge they grow and catch up so fast. Cherish every tiny little millimetre of her while you can. And so sweet that she keeps the spirit of Dad going xxxxxxx

Shi - are u home in your comfier already, this is turning out 2 be a good day for a lot of us. Well done getting over this past week now recover and have a decent week or so b4 u tackle and face head in another one and be another one down. Xxxxxx πŸ’ͺ
Member

Re: May 2017 chemo starters

Omg Rosie I’m soooooooo happy for you. Lymph nodes clear and surgery confirmed. Very good news and no auxiliary clearance that is the best best news. Xxxxx
Member

Re: May 2017 chemo starters

Tatyana - chemo happened 😀 the shop at the bottom of my road now feels like it may as well be on the other side of town. Before I’d fancy a bar of chocolate and I’d literally have the thought and be back eating it inside 5 minuted (3 of which spent actually choosing and checking the offers)
Now a visit 2 the same shop and I feel like I’ve achieved a big outing. Feels hard takes ages and I’m worn out!!
Member

Re: May 2017 chemo starters

Heather - have a lovely soak in the hot bath and an even lovelier time in hot Spain.

MKJ. - πŸ‘πŸ’ͺπŸ””πŸŽ‰πŸ’ƒπŸ₯‡

Treehouse - rollercoaster 🎒 is brilliant it describes eveything so well.
Member

Re: May 2017 chemo starters

Thanks for armpit advice Jay
Heather sending best wishes love and lovely weather for you and your family.
Enjoy 😘😘😘😘😘
Community Champion

Re: May 2017 chemo starters

Fantastic news Rosie - so pleased for you and now your surgery can go ahead as planned on 15th November - that'll soon be here! Stay fit and healthy in the meantime x
Community Champion

Re: May 2017 chemo starters

Heather - Wishing you and the family an absolutely wonderful holiday - enjoy the time together and look forward to hearing from you when you return xxx

Member

Re: May 2017 chemo starters

Thanks for the dance https://media.giphy.com/media/3ornkdtVzQfIRpwfug/giphy.gif
Doing my own aswell!!! I need all the help I can get!!!!
Community Champion

Re: May 2017 chemo starters

Mishy, glad you have been enjoying time with your granddaughter and yes life works in mysterious ways.  Here's a little dance to scare away those evil cold germs from the taxi driver. πŸš•πŸ½πŸ’ƒπŸ»πŸ‘ΉπŸ’ƒπŸ»

Community Champion

Re: May 2017 chemo starters

Hooray Shi, 🏑 enjoy your little laundry adventure! So nice for you to be doing normal things again. πŸŽ‰βœ¨

Member

Re: May 2017 chemo starters

Well done on getting home Shi.
Rosie it's great to hear there's no naughty lymph nodes so surgery can go ahead as planned.
Mishy, enjoy your lovely granddaughter. This one's for you. πŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒ
Community Champion

Re: May 2017 chemo starters

That's fantastic news Rosie. Glad everything is going according to plan and great that you are now cancer free. πŸŽ‰

 

Member

Re: May 2017 chemo starters

Had a lovely day with my granddaughter gave her a bath a had lots of cuddles she is now 7llb 10oz for only just over 2 weeks old she has put on quite a bit of weight only 6lb 8 born a little early so she was really small, she's absolutely gorgeous we chatted for hours about all the lovely things we can do now she is here, I so wish my dad had met her he would love her, but I do think she is just what we have needed a little ray of sunshine who has emerged from a dark cloud, I never rsetrhought about it till now when people used to say a family member passes to make way for a new one, but she looks alot like my dad in certain ways I'm sure,
A quick question regarding colds and things, I'm a little paranoid this time have been neutropenic sepsis on Doxetaxal, with this new drug I've had no injections and have been very careful stating out of packed places I'm now day 8 but taxi driver was full of cold this morning I didn't realise till we were already on our way and he coughed and said he was loaded! As soon as I got to my daughters I washed my hands and face!! Was only in cab a few mins but so want no hiccups this time after the πŸ’© I've had during my treatment 😨 please do your blood dances ladies I need all the help I can get!
Tatanya I should have been like you and walked but it was pouring down and didn't want to get a soaking!!!!!!
Heather enjoy your hols and MJK well done for finishing you have done it!!!!
Rosie pleased you got that result really happy for you and Shi yeah your home 🌟🌟🌟🌟
Community Champion
Community Champion

Re: May 2017 chemo starters

Just got home ❀️❀️❀️❀️❀️Thank you so very much everyone, tatyana well donecforvgojng for a walk, h gave a wonderful holiday, I know the drive home felt like I was looking at a new world and it was a bit strange after 6 days in casa nhs, love you all and your πŸ’ƒπŸ» πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»Worked a treat. I’ll catch up in the morning, pile of washing to get on and I am so happy to be putting the washing on.... happy to put a pile of washing on!!!! It certainly make you appreciate every little thing πŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜πŸ˜˜πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨shi xx
Member

Re: May 2017 chemo starters

How exciting. Make sure you have plenty of help. I have struggled with double mastectomy with implants. sitting up is a challenge.
Sleep is tricky too.
Be prepared and it will be all worth it
πŸ‘πŸ˜€πŸ‘πŸ˜€πŸ‘πŸ˜˜
That is such great news Rosie x
Member

Re: May 2017 chemo starters

Both boobs and a tummy tuck!!

 

It's a long op but at least it will be done in one go and no rads. Will have physio while under anaesthetic as such a long time in one position!!

 

The surgeons have had to cancel things to fit me in as no other dates before December.

Member

Re: May 2017 chemo starters

Ooh Rosie great news.
What type of reconstruction? How many boobs?
Member

Re: May 2017 chemo starters

πŸ₯‚ here is to holidays, and finish lines, to coming home, to behaving boobs. To advice and support and fixed boilers. And doing exercises and cutting back on sugar and facing every new hill in our local area we never noticed existed.
Cheers πŸ₯‚
Member

Re: May 2017 chemo starters

Woo hoo MJK ,  congratulations on finishing the triathlon, you must be feeling fantasticπŸŽ‰πŸŽ‰

 

Have a great holiday Heather, relax and enjoy the sunshine

 

Great news Shi, so glad you are finally home and able to watch the Apprentice 

 

treehouse , loving the chemo/ rollercoaster analogy. perfectly sums it up

 

Had some good news today, my sentinel lymph node was completely clear of any cancer so reconstruction is going ahead on 15 November, the only day both surgeons can do.

 

So I can get shopping now for the things I need to take in to hospital, was too scared before as didn't want to jinx it

 

 

Community Champion

Re: May 2017 chemo starters

Have a fab holiday Heather. It looks beautiful. 🏞

Member

Re: May 2017 chemo starters

Heather, have a wonderful holiday and enjoy the sunshine knowing you're returning to a warm house.

Get to hear you're going home Shi πŸ’ƒπŸ’ƒπŸ’ƒ here's a bonus boogie.

Katie it's the πŸ”š for you too tomorrow. 😊

Treehouse, my lunch buddy and I had a great chuckle over the roller coaster.

Tatyana, good that you got out for a walk. Bracknell has got more hilly too to say nothing of my stairs 😣.

My first reaction to finishing today was woohoo.
The second was to point to my surviving boob and say 'behave!' As I said to the lovely radiographers, you're lovely people but I hope I don't have to see you again. The feeling was mutual.
Member

Re: May 2017 chemo starters

Well I got fed up of feeling sorry for myself and went out for a walk despite the gloomy weather. Was only out for half an hour, just round the village, but feel better for it. Misty autumn, squidgy leaves and scents from late flowers.
Just one thing. Last time I looked, our village had a little hill at one end, but most of the houses are on the flat land. But all of a sudden I felt I was walking uphill and getting quite puffed. Turns out the village is quite hilly after all. What happened? Was there an earthquake? Or subsidence?
Or is it me?!😜
Member

Re: May 2017 chemo starters

Heather it looks beautiful, especially if the sky is that colour! Have a wonderful time and send us back some sunshine.
Member

Re: May 2017 chemo starters

So before I get overloaded with packing for tomorrow, I wanted to wish you all a healthy, happy bloods, and easy side effects week whilst I am away. Doing a dance that should cover everything  πŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒ πŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒπŸ’ƒ

 

This pic is of Montgo, the sleeping elephant which is right behind our villa!

 

pano_montgo.jpg

 

Will be thinking of you all and will miss all the funny entries but will catch up when I get back. Onwards and upwards lovely ladies.

 

❀ Heather

 

Member

Re: May 2017 chemo starters

Going home at last well done Shi that dancing paid off πŸ’ƒπŸ’ƒπŸ’ƒtreehouse love the chemo roller-coaster yeah your right!!! It's so spot on it's the right we never want to queue for again mind I'm only on the second last tunnel so don't know how bad the next few bends and drops are going to be haha!
Yeah I heard about the sugar my onc was pleased when I told him I don't use it any more but never went into detail about it!!
Community Champion
Community Champion

Re: May 2017 chemo starters

Thank h😘😘😘have a lovely holiday, relax and enjoy 😘😘😘😘you amazing lady πŸ’•πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨shi xx
Member

Re: May 2017 chemo starters

Shi, yes it is tomorrow we go to Spain! Well done for getting home today, nothing like being surrounded by home comforts to help you feel better. 

 

H

Community Champion
Community Champion

Re: May 2017 chemo starters

Thanks everyone for everything. Heather so glad your boilers fixed😁😁😁😁that’s a relief for you. Isn’t tomorrow holiday day for you? Or I am I mixing it up like I did the other day giving the 14year old son a daughter πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚so sorry β€οΈβ€οΈβ€οΈβœ¨βœ¨βœ¨βœ¨πŸ’•πŸ’•πŸ’•πŸ’•shi xx
Member

Re: May 2017 chemo starters

Shi, you're going home-- so pleased for you! It's been a while, you won't recognise the place. Now let's all keep sending you the blood-boosting vibes so you stay out of the hospital. They look after you well, but it's no place to be for more than a couple of days.
Community Champion

Re: May 2017 chemo starters

Glad to hear the boiler is fixed Heather and a lovely long soak in the bath x
Community Champion

Re: May 2017 chemo starters

Not sure about cording Shi - I've done a bit of reading about it and it could be - but I'm going to continue exercises and speak to bcn if not better by end of week.

Well done on reaching the point required to be able to go back home - take it easy and get plenty of rest in the comfort of your own home xx
Community Champion
Community Champion

Re: May 2017 chemo starters

No I am fine mai7 my gaga day was yesterday and all your πŸ’ƒπŸ» πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»πŸ’ƒπŸ»Has done the trick thank you ladies, now Home big pile of washing, and just in time for the apprentice 😁😁😁😁😁 much love and sparkles β€οΈβ€οΈβ€οΈβ€οΈπŸ’•πŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨βœ¨shi xx
Community Champion

Re: May 2017 chemo starters

I'm so pleased for you Shi. Do you have a bit of going home anxiety? Thank goodness you can get back to your creature comforts and move about again. Woo hoo! Sparkly goodness. ✨✨✨Our extra dancing worked a treat! X

Community Champion

Re: May 2017 chemo starters

Treehouse, I love your roller coaster analogy. This sketch sums up how it feels for the ladies whilst being lead by the cool, calm oncologist! πŸ˜‚πŸ˜‚πŸ˜‚https://youtu.be/1k6fbLzMBKc

 

Heather, glad you have the boiler fixed and don't have that to face when you come home from a warmer climate! β˜€οΈ 

Community Champion
Community Champion

Re: May 2017 chemo starters

Jay is it a bit of cording starting? They warned me to look out for that starting up after I’d had my op. MJK congratulations what a brilliant post to be able to type in πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘and I am off home too from casa nhs, thanks everyone for everything β€οΈβ€οΈβ€οΈπŸ’•πŸ’•πŸ’•βœ¨βœ¨βœ¨βœ¨βœ¨βœ¨πŸ¦‹πŸŒˆlove shi xx
Member

Re: May 2017 chemo starters

The boiler is fixed and I will be having a long overdue soak in the bath tonight!  🏊πŸ”₯

Member

Re: May 2017 chemo starters

Thanks Mai! Think I eat too many sweet things so will definitely be cutting back! I have very sweet tooth! X
Community Champion

Re: May 2017 chemo starters

Katie, I know but sometimes sweet thing taste very yummy! 🍯  I'm trying to avoid things with added sugar and if I use sweetners at home I'm using stevia or maple syrup or add fruit like apple or banana.  Best wishes for tomorrow as you approach the end of the BC triathlon. Give that bell a good old tingalingling! πŸ˜œπŸ””πŸ””πŸ””

Member

Re: May 2017 chemo starters

MJK whoop whoop!!!!!
That’s it !
Finished
Done .
Wow what does that feel like?
Please tell us what happens next?
What is life like now?
Member

Re: May 2017 chemo starters

MJK, well done! Katie -- you next!!

Member

Re: May 2017 chemo starters

Speaking of predictive txt it's just changed my brad pitt to Bradley pitta lol x
Community Champion

Re: May 2017 chemo starters

I love your definition of chemo Treehouse - this really should be published somewhere - any ideas where, as it's so true! x
Member

Re: May 2017 chemo starters

Bloody stupid predictive txt sorry! Although I do like the bra and Brad pitt x
Community Champion

Re: May 2017 chemo starters

Woo hoo MJK! Fantabulous! Zipperdeedoodaday!  πŸ””πŸ””πŸ””βœ¨Here's one for you: https://youtu.be/b9434BoGkNQ