Brilliant news daffodil. The best you could hope for. Have a lovely relaxing weekend with a clear mind. 🎗💗
Trisha, lovely to hear from you again and sorry your goalpost is being moved. I really don't know which is worse, knowing from diagnosis you have to have the most radical treatment or having the treatment changing and increasing over time. I think it must cause more anxiety when this happens. Can you have a nipple conserving mastectomy and recon otherwise you may be left feeling like they just keep wanting to take a bit more tissue?
Treehouse, I have my fingers and toes crossed tight for your for your results. It must be a very anxious time, just like waiting for scan results all over again.
Jay, I can't believe you thought you saw a sloth up a tree in the UK, it was probably more likely a koala bear! 😂😂🐨
Hello ladies. I had my follow up today. Great news. All clear of cancer! Radiotherapy next. Then should be done by Christmas!!
Hope everyone is feeling as well and positive as can be expected.
Have a good weekend. Xxx
Treehouse, I'll be thinking about you next Tues. Waiting for results is pants. The worst. Times ten.
It's good that you've let us all know what's been eating away at you, you know we understand better than anyone. It's so hard sometimes trying not to worry your family any more than they are already worried. But that's what we're here for. We can't actually make your lymph nodes behave themselves, but we can have a jolly good try -- anyone for a node dance?
Trisha, no wonder you're so confused, it's a lot to take in. You need to give it time and talk to as many people as you can.
As for lymphoedema, please don't let that worry you too much. I know they talk about it a lot for people who've had treatment (rads or surgery) for the axillary lymph nodes, and it sounds worrying, but the reason they go on about it is because you need to take sensible measures to protect yourself (such as taking proper care of any minor cuts to prevent infection, not having injections on that side, etc). Only a minority of people ever develop lymphoedema -- and even for those who do, it's usually manageable. I had axillary clearance and rads 15 years ago, and I did develop mild lymphoedema a couple of years later, but now it is completely under control, to look at me you'd never even know, there is no discomfort or inconvenience, I wear a compression sleeve only when doing seriously heavy gardening and when flying, but that's just as a precaution. There is nothing that I can't do! If you do end up having treatment which might increase your lymphoedema risk, be sure to do all the exercises and take the advice seriously, but please don't worry about something that will probably never even happen, especially if you're a generally fit and active type of person!
Meanwhile, do talk to the experts and give yourself time to absorb all the information.
My original lump went from 33mm to 0mm after Chemo and was/am just still very confused with it all. I dont want Lymphodema which has been mentioned if I opt for the Lymph node (Axillary, but does that mean ALL of them, will it come back???) So many questions and no partner or family here to talk to. So I apologise if I repeat myself xx
Hi Wolfee and ladies
Been a hermit all week! Been upset and worried.
Dont know if I put on here my news coz head all over the place.
Will try explain briefly the outcome of my meeting last Monday with Surgeon following lumpectomy and small lymph node involvement.
The have found that I have a Gene called DCIS and they want take some more out of my breast and then 'I' have 2 options. Radiotherapy on lymph nodes as well as breast or. Axillary surgery. (Drains were mentioned) I didnt take much more than that in.
Have my Radiotherapy 1st meeting discuss what happens next Thursday and was told Oncolgist would be there too but today on a call with a BC NUrse she couldnt confirm if he would be there!!!!
Surgery has been booked for 8th November so I bloody hope I get some good advice next week!!
Pre last MOndays appt I was just waiting for radiot on my boob and the usual 3 weekly Herceptin jabs.
No Tatyana definitely not making that up - it's official.
Lucky you seeing them on holiday - that must have been amazing. I'd love to see them in the wild, they really impress me. I caused great hilarity amongst my family whilst on holiday in Suffolk a few years ago - I swore I saw one in a tree as we were driving along a country road - made my husband stop, turn around and go pass the field again - just to discover it was my imagination.....!!!!
and that was in the days before chemo etc to blame!
The one in the photo was born in a local zoo in 2016.
Wolfee, yes it can be so annoying to be told not to worry. Of course you're worried! Maybe I can set your mind at rest a little bit as far as lymphoedema is concerned, any swelling within a few weeks of surgery is much more likely to be not lymphoedema but common-or-garden "edema" which just means swelling and is a natural consequence of any kind of injury. Try to keep your hand and wrist moving gently, nothing strenuous but little finger exercises as if playing an imaginary piano, this will help the excess fluid to circulate and eventually disappear. I hope it gets less painful soon.
I think at this stage we are all prone to worry at absolutely anything, the bcn is right to say it's "natural," but that doesn't make it any easier to bear!
Katie what a wonderful husband and good for you signing up for tough mudder, it does look a lot of fun though
mai I am not feeling to bad still at minute, it's a bit weird the doctaxel because side effect have been so inconsistent. Not even had the trots yet but that would change lol
Wolfee it's really annoying when people tell you not to worry and that it's normal when it doesn't feel normal sending hugs xx
Katie, what a lovely husband you have. Enjoy your appointment free time and your lovely holiday. I recommend going to see the lava fields and guisers if you haven't been already, they are very interesting, apparently some of Star Wars was filmed there.
Happy Sloth Day ladies and I hope you manage to get some quality sloth time today. I'm working at home again and have had runny eyes again this morning.
Tatyana, ouchy, ouchy, hope your hands get better soon. That sounds most unpleasant. My hand problem is with the nail beds being painful from neuropathy. I can't open ring pull tins or tetra packs without a knife to lever them up.
Treehouse, glad you are finally getting some sleep again. That will help to keep the grumpy at bay so you can be all chilled and sloth like. How many weeks/days are you now post-op just so I know what to expect sleep comfort wise?
Rosie, have a fab weekend in Stratford. Lovely part of the country and I would like to go there again for the meal and river cruise.
MisyAngel, you must be on your day 4 post-steroid crash now. Hope the SEs are kinder to you than last time. Just get lots of slothy rest.
Shi, here's a link to amazon for the 10% urea version of Udderly Smooth cream, it's called "extra care," this is the tube but you can also get it in a bigger tub which works out cheaper. Make sure you get the one with urea. https://www.amazon.co.uk/Udderly-Smooth-Extra-Cream-118ml/dp/B008XI9C1E/ref=sr_1_8_a_it?ie=UTF8&qid=...
Oh Jay, you've really cheered me up, I had no idea it was International Sloth Day (I trust that you're not just making it up. You wouldn't would you?). I love sloths, we had a wonderful holiday in Costa Rica a couple of years ago and saw lots of them. They are a very positive role model. They do as little as possible, just stretch out an arm to grab a leaf when they feel like a snack, and come down off the tree once a week to do their business. Other than that, it seems their only aim in life is to look cute!