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May 2017 chemo starters

WolfEE
Member

Re: May 2017 chemo starters

Tatyana, lol I did notice the deliberate mix up and also realised the congrats were for me and took it appreciated so thank you xxxx 😘

Jay your day out sounds wonderful glad you’ve had a lovely weekend.

Andi, nice to hear from you.

Mishy18, hope you found something to relive your boredom nothing worse than feeling bored and the day dragging. Gives you to much time to think.
treehouse
Member

Re: May 2017 chemo starters

Post shower inspection reveals fishing 🎣 wire has disappeared.
Phew
treehouse
Member

Re: May 2017 chemo starters

Morning all. Hope you all remembered the clocks. I got up then went back to bed. Der!
Maybe a walk today.
Have a good one x
Mai7
Community Champion

Re: May 2017 chemo starters

That's good to hear Heather, mine are very sparse but you have now given me hope! 

 

Jay, sounds like you had a lovely time out. It's so nice when the kids can start being independent and give you time together again. 

 

Treehouse, bulbs planted upside down made me chuckle! 🌷

Raitchr
Member

Re: May 2017 chemo starters

I just realised I never told you all that my eye brows have grown back whilst on holiday! They never completely all fell out, right side had 6 left and left side had quite a few more. My brows looked very red on holiday then one morning I realised I had loads, quite bushy now. So that was 8 weeks after last T.

 

H

Jay68
Community Champion

Re: May 2017 chemo starters

Mai be interesting to hear how you get on about the zoledronic acid. I haven't been offered it but my chemo buddy has - it's administered by IV and its a total of six treatments every 6 months.
Jay68
Community Champion

Re: May 2017 chemo starters

Thanks Tatyana - I'll accept the congrats for today!!

 

We left the house at 9.30 returning at 5.30 - my Hubby and I accompanied our son and 5 of his fab friends to our county town today by train.  They were totally independent of us - but we were there if needed!  So we spent time as a couple - window shopping, having coffee, having lunch, then a delicious cold drink with cake in the cathedral cafe and lots of time sitting in the beautiful sunshine watching people - just perfect - but all the walking we did phew - towards the end of the afternoon my legs were like lead - ouch!!

 

Interesting to hear of the foot problem Trisha - what are the symptoms?

treehouse
Member

Re: May 2017 chemo starters

Yay, Mai is out to play.
Enjoy a bonus week as I am still bloody useless although stepson is learning how to cook and the kids planted my bulbs. I said I would pay them, half now and half if they actually flower πŸ’ in the spring πŸ˜‚. Will see if they planted them upside down.
Currently watching Wonder Woman with 3 kids. Trying to explain to step daughter that no real woman looks like that. I worry about kids and body image. She does kick ass tho!!!
Mai7
Community Champion

Re: May 2017 chemo starters

Treehouse, I can't believe you are using your fishing wire to hook me out of my shell! 🐌 βœ‚οΈ I hope you get that sorted out soon, now you have husband chasing you around with nail scissors! 😱 I'm feeling a bit better about everything but still have my head in the sand and don't want to talk about it.  

 

My daughter came over last night and we went for a lovely Thai meal and then today have been busy ferrying her around before she goes back! The things we do for our kids, but I wouldn't have it any other way.  I'm not liking this colder weather and darkness.  Did everyone see the very orange Halloween sky tonight? It was quite spectacular.  

 

Shi, I've unpacked my πŸ’© and my caravan PJs for now and will enjoy having my bad boob for another week.

 

Jay, I haven't been referred for zoledronic acid. I just looked it up and it's used for osteoperosis. I may enquire though now you've mentioned it!

 

Trisha, I really feel for you with the painful feet.  I have some neuropathy in my fingertips and nail beds but am hoping it will just go away by itself eventually. The pain is slowly decreasing but I still cant use my nails for ring pull tins or tetra packs. Have to get a knife out to lever things as I can't put any pressure against the nails or I'm worried they will pull off!

treehouse
Member

Re: May 2017 chemo starters

Is it from the herceptin?
Trisha69
Member

Re: May 2017 chemo starters

will ask the Doc .Monday ive got them every 3 weeks til May x
Mishy18
Member

Re: May 2017 chemo starters

Neuropathy is horrible I have it it comes and goes I told my onc but as I only have one to go he said just to wait tll I'm finished chemo they can prescribe gabapentin xxx
Trisha69
Member

Re: May 2017 chemo starters

Hi Tree house. yes had a soak un Epsom Salts earlier. Did quite a long walk so hip agony too. just taken paracetamol. Naproxen and 2 sleeping tablets and heat pad at the ready xx
treehouse
Member

Re: May 2017 chemo starters

Ohh Trish when did that start?
I take it you have tried Epsom soak?
Have you told onc?
Big hug sounds nasty x x x
Trisha69
Member

Re: May 2017 chemo starters

Any tips on what to ease the neuropathy? my feet are killing. x
Mishy18
Member

Re: May 2017 chemo starters

Hi everyone how you all feeling today it's awful outside so cold and windy, been busy last couple of days visiting family etc so today I'm feeling bored 😝 home alone literally just dig and cat for company and they are both asleep what a cushy life they have!!!!
Days and nights like this just drag I am so not used to having so much time on my hands
Lovely news AnnieA it's great to hear positive news like that x
G
Treehouse I hope you get sorted out with your fishing wire I too have some hair kind of fluffy but yeah looking like it going great to be grey!! But who gives a bleep at least we know it's coming back, I'm one of those who got paranoid thinking I would be the one whose hair didn't return!!!!
And I is the taxol weekly and you said it's not bad compared to other stuff I feel the same about the Abraxane same as you described but with a bit of neuropathy thrown in the mix and a little nausea but I where nearest as bad as what the fec and poxeydaxhell 😨😨😨☹️☹️☹️ as strong wiles as I am that stuff is not for the faint Hearted really don't want to have to do it again if I can help it!!!!!
Shi hoping your well Mai hope you feeling a bit better if I have missed anyone I do apologise πŸŒ πŸŒ πŸŒ πŸŒ πŸ’–πŸ’–πŸ’–
treehouse
Member

Re: May 2017 chemo starters

Thanks Shi. I will see how I get on. Hospital is a 20 mile round trip and I can’t drive at the mo. Maybe the gp nurse could do it?
Hope wolfee is recovering from her tough week. What you planning for next week?
Mai are you back in your shell? Can we tempt you out for a rant or some support or just silliness?
X
Shi
Community Champion
Community Champion

Re: May 2017 chemo starters

Hi treehouse, you bc nurse should be able to have a quick look at your fishing wire prior to the 2 week wait. Try calling Monday so you don’t gave to wait 2weeks. Luckily my bc nurse is an angel and if she’s in when I’ve phoned she has just told me to pop down. πŸ˜˜πŸ’•πŸ’•βœ¨βœ¨shi xx
tatyana
Member

Re: May 2017 chemo starters

Wolfee, Jay: Sorry I sent the congrats to the wrong person! Can I blame chemo brain? Wolfee, very well done for surviving a week at work. Jay, I'm sure you deserve congrats too, for whatever reason!

 

Annie, wonderful news!!!

 

Mai, such a shame that your op's been postponed, of course it's necessary, but I totally understand it must have been a blow when you've been working so hard to psych yourself up to it.

 

Treehouse, a proper shower, what joy!!

 

Have a good weekend everyone.

treehouse
Member

Re: May 2017 chemo starters

Hi Shi.
Surgeon said next appointment in 2 weeks but waiting for letter.
I just had my first shower 🚿 in over a fortnight. The boiler man came this morning so radiators, hot towel and hot water bliss.
My hair is definitely growing but is definitely gray!!!!!!! Eek 😬
Kids are currently pumpkin carving πŸŽƒ
I am watching hopefully no casualties.
Hope everyone is ok x x x
Shi
Community Champion
Community Champion

Re: May 2017 chemo starters

Morning treehouse when is your next appointment? Hope it stays out till then, be careful when washing. Mai you’ll have to unpack you πŸ’© for a week, and like treehouse said at least it not πŸŽƒ when you have it now. Pain to have to wait another week, but you’ll be in top condition going into op now which is good πŸ˜˜πŸ’•πŸ’•βœ¨βœ¨shi xx
treehouse
Member

Re: May 2017 chemo starters

Good to hear from you Andi. Glad the weekly is working well. Don’t be a stranger x x x

Mai im glad Mon is definite. Helps you to plan. And you won’t have Halloween πŸŽƒ boob .
Wolfee I too have a stray bit of fishing 🎣 wire poking out from under my boob. Hubby has volunteered to trim it but I ran away pulling nausea faces. 🀒.
Will see if I can make it to next appointment. Don’t fancy him having a go with his nail scissors βœ‚οΈ 😜
Mai7
Community Champion

Re: May 2017 chemo starters

AnnieA, that's great news, I'm so pleased for you. X

Mai7
Community Champion

Re: May 2017 chemo starters

I don't have any further blood tests. The surgeon will be operating a week on Monday for certain and didn't need to repeat any tests so at least I know it's definite (unless I get a rotten cold or something). I was asked about mad cow disease and I was tested for mrsa. 

Andi71
Member

Re: May 2017 chemo starters

WolfEE - lovey I’m not surprised you’ve been feeling down this week. Do you think you’ve gone back to work to soon and your trying to do too much?  I only say that because I’ve been told it can take a few months to get over chemo, in some cases 6 months plus, so you must be extremely kind to yourself and not try and do everything so soon after everything.  Maybe have Wednesdays off to re barge or cut your day short by 2 hours and see how it goes?! I’m going to be going into work between ending chemo and my operation.  I’m going in for3 hours a day and then building up those hours as I feel fitter, that way Work can see when I choose to increase its because I can.  Your place of work will understand I’m sure if you said your doing too much too soon.  They’d be concerned if they knew you were shattered and good for nothing once at home.  If you worked for me, I’d like to know if you were struggling :-). 

 

Im happy to hear your sister has a drains out - more freedom! πŸ‘πŸ»

 

Nice to hear you don’t need to worry about your rogue stitch πŸ‘πŸ»

 

Big hugs xx

Andi71
Member

Re: May 2017 chemo starters

Hi Jay,  nice to see you managed to get away to Norfolk! So nice to get away and have a change of scenery!  Sorry to hear about the night sweats and bruised sore torso tho 😞 

xx

Andi71
Member

Re: May 2017 chemo starters

Hello ladies,

 

ive not been on here for a bit so I’m playing catch up, bear with me!!! πŸ˜ƒ and hope your all good!

 

xx

Andi71
Member

Re: May 2017 chemo starters

Hi Rosie - I’ve been off grid for a bit and just seen your post.  I haven’t got a fixed date yet for my op yet, just waiting on letter from hospital. I’m not having at the same hospital that I ha e chemo at. It’ll be in and around Christmas/New year I’ve been told.  Yours is coming up.  How are you feeling?  I have mixed emotions.  I met a friend who’s had the DIEP done and she made me feel confident about choosing it.  She said she only cried twice and niether were related to pre-op nerves or seeing her new breast afterwards.  What made her cry was not being able to reach a box of Weetabix under her counter and ended up phoning her husband in tears because she couldn’t reach them, So she has said that if that’s all that made her cry then it just goes to show it wasn’t that bad πŸ™‚ 

 

Had Taxol today so I’ll be ok tomorrow and then I’ll be useless for 3-4 days through tiredness and heavy legs.  I’ll take that any day after what I’ve had so far πŸ™‚

 

im looking at ordering that β€˜al-in-one’ number need for post op this weekend, joy 😬

 

anyway lovey I hope your doing ok and the good news is that you are inching along closer to the finish line which is great news!!!

 

lots of hugs xx

Andi71
Member

Re: May 2017 chemo starters

Hi Treehouse, I’ve not been on here for a while, but I’ve seen your post about being cancer free!!! πŸŽ‰πŸŽ‰πŸŽ‰What a huge sense of relief and a very emotional time I’m sure.  Sending you hugs for getting through it all. Although I  think there will still be times where we all may cry and get emotional just due to recognising how strong we’ve had to be to get through it.  

 

Sometimes I feel like I’m on a conveyor belt and I’m not in control due to my cancer being there, and I’m at its beck and call 24\7. I think I’ll cry more once I’ve been through the other side for a few months purely because my guard is up over contracting it again. A fear we all may have.  But I’m looking forward to getting through the end of treatment now.  

 

I’ve just had (2/6) Taxol today.  I’m having it weekly and it’s been a lot more bearable!!! For anyone switching to it, it’s a breeze compared to anything else I’ve had.  

 

I decided I wanted to have something to cheer me up and look forward to with some ladies Talking of Holidays, so I’ve booked a week in St. Ives for the family in an apartment 3 mins walk from the beach, not till July tho! We had such. Lovely time there this summer. We are booking up with my best friend and her family who are just so bloody amazing!!  Then I thought I need something sooner than that .... so I’ve booked a treat in London, we are going to watch Cirque du Soleil in the Royal Albert Hall on 3rd March.  I can’t book anything sooner as I’m still on chemo then straight into op/recon surgery 6 weeks later.

 

ive just realised I’ve totally rambled on!!!! 😬 ... apologies!  Anyway lovey,  don’t be overdoing anything, and still be very kind to yourself! I’m sure coming out the other side isn’t as easy as flicking a switch πŸ™‚

 

all the the very best!!

xx

 

Jay68
Community Champion

Re: May 2017 chemo starters

Treehouse, pleased to hear that - it's not nice having to have them in a way but to experience discomfort too is just wrong! I worked mine out and it's middle of June my last one - week later our Son is off to Berlin with the school - think Husband and I are going to treat ourselves to a couple of nights somewhere nice to celebrate the occasion!

I am exactly the same - I love ripping off my wig when I'm so hot - lord above knows what I'll do if they still continue once I have my own hair!! Maybe I'll resort to wearing a hat!
treehouse
Member

Re: May 2017 chemo starters

Hi Jay. Much better that the first one. Can’t believe we have another 6+ months of them!
My thermostat is totally broken one minute I want to rip off my wig and open all the windows. πŸ”₯The next I am crawling under the duvet.❄️
Jay68
Community Champion

Re: May 2017 chemo starters

Ladies

 

Quick question for those who have had surgery&chemo or chemo&surgery  - have any of you been referred for zoledronic acid? 

 

Also, remember to keep a careful check on your eyes - my chemo buddy went for eyetest after chemo - they thought she had cataract - she's now been to eye specialist who say it's a hole in the eye caused by chemo - at present it's not big enough to operate on - she's just got to keep a check on it.

Jay68
Community Champion

Re: May 2017 chemo starters

How did the herceptin injection go Treehouse?
Jay68
Community Champion

Re: May 2017 chemo starters

Tatyana - I certainly haven't been brave enough to return to work - let alone for a whole week....! That award goes to the young and sprightly WolfEE.... who has done exceedingly well and deserves a big medal! x
Jay68
Community Champion

Re: May 2017 chemo starters

Mai, I'm so sorry to hear you've been in your shell for so long and I'm pleased you've put your head out to rant - we've missed you x

How frustrating being delayed by a week, but you need to be as fully fit as you can possibly be - it's major surgery. A week goes so fast that before you know it, it'll be here - have you got to have any further bloods done before the op?

Big hug to you Mai xxx

Jay68
Community Champion

Re: May 2017 chemo starters

Treehouse - I didn't! I did have the test for MRSA and that's one thing I didn't have!
Jay68
Community Champion

Re: May 2017 chemo starters

Fantastic news AnnieA - I know the feeling!  You feel your smile is broader than your face - but enjoy the moment xxx

AnnieA
Member

Re: May 2017 chemo starters

I’ll have 15 sessions of radiotherapy once my wound has healed. Hopefully will be complete before Christmas
treehouse
Member

Re: May 2017 chemo starters

Great news Annie. So pleased for you. Is treatment finished or do you have further rads, surgery or injections?
AnnieA
Member

Re: May 2017 chemo starters

Hi ladies, 26/10/17 I was given the all clear. No sign of cancer from the lymph node taken and clear margins πŸ™‚ what a feeling x
treehouse
Member

Re: May 2017 chemo starters

Did anyone else get asked about being a mad cow πŸ„ at pre op?
treehouse
Member

Re: May 2017 chemo starters

I don’t think this is something you look forward to. I think just knowing it has gone and has less chance of coming back allows you to accept it. I have moments, days that I feel scared ( and scarred) but I really hope as the pains get less and I get more active they become fewer and I just see me in the mirror. I am not there yet.
I hope to wear my scars with pride, one day.
Mai7
Community Champion

Re: May 2017 chemo starters

Treehouse, I'm not sure I have come to terms with it when is why I've been in my shell just like when you had your head in the sand. I felt a bit upset Mon-Wed then Thursday at hospital for pre op tests took my mind off it a bit and now delay has taken my mind off it again. I've realised that no matter how I feel about it, it still has to happen so I better just toughen up and get used to the idea. πŸ’ͺ🏼

misyangel
Member

Re: May 2017 chemo starters

Thanks ladies I have been out for a cheeky glass of prosessco to celebrate 🍾

Wolfee Well done on completing first week that is amazing I don't think I could do what you have done so soon

happy birthday heather glad you enjoyed your holiday 

mai so sorry you have been delayed by a week it really sucks when you prepare yourself grrrr

treehouse
Member

Re: May 2017 chemo starters

Eeek Mai.
I understand the delay must be frustrating but you really really really want to be able to fight any infection during/ after surgery.
I know its πŸ’©but for the best.
How have you managed with coming to terms with boobs?
Big hug x
Mai7
Community Champion

Re: May 2017 chemo starters

Thanks for all of your hugs and good wishes ladies. 😘 After retreating into my shell for a few days with the booby blues I'm coming out again for a rant! I had my pre op assessment yesterday and the hospital have just phoned to say they are postponing my surgery by a week as my neutrophils are still a bit low. So feeling pretty fed up about the extra wait after getting mentally prepared.  Oh well, I guess it's for the best.  MisyAngel, glad you won the breast lump lottery there, excellent news. πŸŽ‰ Treehouse, congrats on booking the Florida holiday. β˜€οΈ Jay, hope the night sweats calm down soon. 😰 WolfEE, well done on surviving your first week at work, a bit pat on the back there. πŸ’ͺ🏼 Heather, happy birthday and hope you enjoyed Spain. 

 

Hugs to everyone

tatyana
Member

Re: May 2017 chemo starters

Jay, well done for surviving your week at work! It will get easier from now on, surely. You've done amazingly well!

Jay68
Community Champion

Re: May 2017 chemo starters

Good news Misyangel - we all like some of that! x
treehouse
Member

Re: May 2017 chemo starters

Happy birthday heather hope you have a lovely evening.
Well done wolfee you did it! Now enjoy the weekend.
Herceptin injection 2 done. 10 to go.
X x x
WolfEE
Member

Re: May 2017 chemo starters

Happy Birthday 2 u, happy birthday 2 u. Happy birthday dear lovely Heather πŸŽ‚