MJK, I know how you feel, it can start to get overwhelming as you struggle to keep up with the thread. Enjoy quietening your mind with the social media break and take time to process everything you've been through. Xx
Mishy, that's interesting that's now three of us on this thread who had trauma to the BC breast 2 months prior to symptoms/diagnosis. Correlation or causation is the difficult one because we didn't get tested for BC immediately before the trauma so there is nothing to compare against. Btw, the anxiety is normal. I think it's because you feel that you are not being treated and monitored after such intense treatment and monitoring. Even though I will move onto tamoxifen I think they only reduce your recurrence risk by about 30% but they also carry about a 1% increased risk of cervical and endometrial cancer. I've downloaded the bcc BECCA app on my phone so if I get anxious I can read stuff, other people's stories etc!
Tatyana, here's a link to info about anti inflammatory diet: (lots of leafy greens which are also part of the alkaline diet are also good - so you can search for both anti-inflammatory and alkaline diets. If you go on Pinterest there are lots of recipes under these search strings)
Heather, that's interesting. I was in a car accident 3 months before diagnosis but 2 months before symptoms started to emerge. I wonder if the seat belt trauma spread it and made it worse but also highlighted it when it was previously going unnoticed. So it may not have caused cancer and despite the risk of it being made worse it brought it to our attention.
Tatyana, I found this interesting article which goes thoroughly through the IBC protocol and is exactly the protocol I appear to be getting treated with. This was a 2012 article so presumably medical research continues to agree with this protocol.
Mai, re boob trauma. My BC was IDC but in the same boob as I had an injury to about 2 months before I felt a lump. I got elbowed by one of my boys in exacting place where lump was before I knew it was there, as we lay in bed watching tv, it was more of an elbow and then full weight to hoist themselves up. I just think that if this hadn't happened I wouldn't have noticed the lingering pain weeks later and may not have felt more for the lump. I know my cancer was a different type to you but was still a trauma.
Heather yep agree with using energy wisely post op, It is easy to go back at 100% as soon as you feel ok but wear yourself out very quickly - OH had to use the dyson for 8 weeks after mine, there was just no way of luggin that round the house at all. Jay have a lovely meal. Yep 2 fec in now, so 1 more fec then 3 t then onto rads. Heather im tn too, so nothing after the chemo and rads for me to be on either, but do have my braca results in Dec, so might have to make more decisions later in the year again. I am needle phobic no more, did my 1st injection myself this morning, 6 days casa nhs got me over the needle fear good and propper. Hope everyones se's ease off and everyone who's over the finish line enjoy getting stronger day by day and everyone who has up coming surgery wishing you all the love and sparkles for a speedy recovery love Shi xx
Treehouse, I too am finding it hard to keep up with everything but I think Jay got it right for those included. There is also MisyAngel on last T side effects and awaiting surgery. There are many others who were previously on this thread no longer active.
Tatyana, yes, I think IBC is quite rare but two of us on the same thread! *gasp*. I read somewhere that years ago it would have been a death sentence but now treatment has improved to be more effective. I'm going to stick to an anti-inflammatory diet prior to surgery to avoid any flare up. Out of interest, did you suffer any trauma to your breast prior to diagnosis? Just curious as to whether the IBC has cause and effect? Apparently little is known about it as it doesnt attract much research due to its rareness, Did you previously have mx and recon or lumpectomy?
Im at work today. Everyone have a great day and take it easy!
I agree with the "have energy, use wisely" advice. Its great to be over treatment but do little jobs not major ones!
After my surgery my Mum lent me her light Morphy Richards wand Hoover, great idea as it takes no energy to use and picks up those bits that are not worth getting the big Dyson out for or no one is around you to hoover for you!
Boys go back to school tomorrow so its sorting out uniform and finishing homework day. Plus one car has MOT booked but DH has his name against that job.
Christmas and Florida planning are on my list for this week. Plus I start the Moving Forward course at Nottm City hospital on Weds am.
Still waiting to hear from work re phased return plans. Should have known it would take ages to sort out, I work for the Council so it must have gone to some kind of Committee for approval!
Note to myself and other ladies post-op!
Being almost 6 weeks post-op and feeling pretty good, I thought yesterday, as the sun was shining I would make the most of it and clean 2 cars! I started off by vacuuming the largest one, once finished I proceeded to wash and polish it - which I did - was a little difficult as although I have full use of my right arm - it doesn't like being stretched too far!! Moving on to the smaller second car - I decided my energy levels had significantly dropped so that had a quick wash with no inside clean!
The overall result was one lovely sparkly clean car - one clean car and one very exhausted and aching me and one Husband who, upon returning from a quick trip with Son to town, was astonished I'd managed to do what I'd done but not impressed I'd worn myself out doing it!!!! I then had to lay down for half hour before being in a fit state to cook dinner!!!
So lesson 1, when you have the energy - use it - but wisely!!!!! Next plan a little ironing Thursday and a little indoor hoovering on Friday!
This afternoon, my Sister and I are taking our Dad out to a posh hotel for slap-up Afternoon Tea - a rather belated birthday treat for Dad (it was his 75th birthday in May - say no more!).
Wishing all ladies a lovely day and hope the sun is shininng as beautifully for you all as it is here again today!
Hopefully the medical team can come to a mutual agreement and get your anaemia under control quickly and hopefully it doesn't delay your surgery. When is your surgery date?
My hair is just under an inch in length - very dark brown apart from at the very front where it is grey/white! I don't mind too much just glad it's returned!! I have plucked a couple of eyebrows this morning - my new ones seem to be returning very orange?(!) - bit strange.
I do suffer a litle neuropathy in fingers and feet - but thankfully not enough to affect me too much. Like you I do suffer with my feet after doing more walking.
Have a great day - sunny (but chilly) today in our area!
Tatyana I am triple neg so not on any hormone tablets so can't blame the aches and pains on that.
My hair started growing like a fuzzy peach after I finished 3 x FEC and just as I started my 1st T. Quite thick now and loving it short. Will grow it into a pixie cut but intend to keep it short, had so many compliments on how it suits me short as had shoulder length bob before.
My nails are doing ok. I have used nail varnish on toes from day 1 of chemo. Didn't stick with black but had glittery blue polish which lasted well. Just had clear polish on finger nails and despite ridges and white bands they seem not to be too damaged.
Sorry to have been absent but still waiting for internet to be connected at our new house. It is good to read how you are all getting on.
I also have peripheral neuropathy in my feet and 7 weeks post chemo they are still rather numb.
I had a busy day on Friday trying to get my seroma drained as after my move I am 2 hours from my breast team, and eventually had to go via a&e to get to see a local breast unit to have 250 mph of fluid drained. Felt much better afterwards though.
On Tuesday I have my appointment with the onc to arrange my radiotherapy. I am still hoping to be free of any more treatment by Christmas.
I need to get back to part time work in 2018.
Well done to those back in work and coping.
Hair slowly starting to grow but still a bit fluffy.
My thumb nails are lifting and will fall off soon. Another gift from T! It makes using my hands to do buttons, bras and jewellery difficult and opening anything nigh impossible.
Well, have a great week everyone. Hoping to have internet connected by Thursday.
Morning all, I had peripheral neuropathy in fingertips for the last few weeks of chemo, but think it's starting to improve, I'm 4 weeks past last chemo. Have it in feet too and after I've been walking too long the soles of my feet are red and sore. Hoping it will all eventually go away.
I don't have much hair on head yet, its blonde( or possibly white eeek!!!) so the tiny bit that's starting to grow doesn't really show. Eyebrows and under arm hair is returning.
I've had some bad night sweats but went through surgical menopause in 2014 after oomph so not sure if it's a chemo effect. How long do menopausal symptoms last? I've had hot flushes for the last 3 years!!!
Am still anaemic, I think, although currently getting conflicting advice from GP and hospital doing the recon. GP won't put me on iron supplements as said stores are back to normal and we should wait but hospital say they're too low for such a big op and want me to start on iron. So I'm stuck in the middle and only 3 weeks to go. Got GP to agree to another blood test on Friday so we'll see what that is. I don't want anything to stop mastectomies going ahead after waiting this long
Morning Ladies! What a lovely day. Hoping to get out for a walk soon.
Im still taking Loratadine, one a day, but have pain in my knees - when I kneel down, the joints feel swollen and I need to lean on something to push myself up. I still have very watery eyes too.
Shi, hope your SEs are being kind and your neutrophils behave better this time. 💗✨
wolfEE, glad you are ok after your car ordeal. I won't be getting an expander. They want to keep an eye on the area for a year before they will consider any interference due to it being inflammatory BC.
Treehouse, glad your fishing wire has gone. 🎣
Hope you you all enjoy this lovely day. ☀️
Hi Treehouse great news your fishing wire has gone on its own, phew that must be a relieve and no having to watch out for your husband coming at you with the nail scissors anymore, it was nice of him to offer though wasnt it.... bit like when mine offered to buzz cut my hair off, eeerrr no thanks honey, I love you very much but I remember when I had something in my eye years ago, he nearly poked my eye out about as subtle as a brick. I do love him very much and couldnt have coped at all without him. Hope everyone is enjoying the blue sky and sunshine again today, not too bad for end Oct at all is it ladies. Mai sending you hug and love you amazing wonderful lady. and sending love and sparkles to everyone else too. Heather have a nice time in York. Love Shi xx
My night hot flushes have gone away but I do occasionally get the odd one in the day. I go red then it comes on and goes away. I am a lot hotter atbnight and have to have the window slightly open at night, this was unheard of before chemo as I always had the bedroom window closed all night.
From what I have read pain in joints can last 6 months or more from the T part of chemo. It is something to do with bone marrow reviewing as it can get destroyed by chemo. Every ache and pain sets me off worrying but we have to just get on with our lives and manage pain with over the counter drugs rather than get addicted to prescribed drugs.
When I go back to work I am planning on not sitting for more than 30 mins without a stroll around the office if I am still in pain.
Just about to leave to go to York to visit my Mum, haven't seen her since mid Sept as she went on hols then we went.
Anyone else suffering with joint pain after chemo finished? I have struggled a bit in the last month. Sometimes if I sit for too long when I get up I walk like a 90 year old, my feet and hips hurt. Then I seem to warm up after walking for a bit. I am trying to research more about it but I have started taking Loratadine hay fever tablets twice a day and it seems to help.
Have a good day everyone