69103members
362986posts
cancel
Showing results forย 
Search instead forย 
Did you mean:ย 

May 2017 chemo starters

Highlighted
Member

Re: May 2017 chemo starters

I have heard of DCIS . And although it is non invasive and not considered life threatening it still needs the same treatment ( my insurance covered IDC but not DCIS).
I didnโ€™t realise it was genetic.
Glad they found it and can get you sorted. ( shame they didnโ€™t the first time tho)
Will you have some boob left?
You donโ€™t need this extra stress. X x x ๐Ÿค—
Highlighted
Member

Re: May 2017 chemo starters

They have found a gene called DCIS and need to take more breast tissue. Its a pre cancerous gene that may or may not turn into.more cancer x
Highlighted
Member

Re: May 2017 chemo starters

Morning all.

 

Good to hear you are ok Trish.

 

After my course on Weds I thought that I am not doing myself or my arm any good sleeping on it. The talk about Lymphoedema set me thinking that if I sleep on my bad side most of the night then could it be stopping proper drainage of the lumps on that side. Just a thought ....

 

H

 

 

Highlighted
Member

Re: May 2017 chemo starters

Morning Trish.
I am really glad they can do something about neuropathy as it sounds miserable.
How are you feeling about second surgery? Please remind me what / why you are having as my brain is useless. Iโ€™m glad you are doing ok. Hugs ๐Ÿค—

A short walk in fresh air ( small handful of Epsom salt in bath) and painkillers helped me sleep better last night. Makes such a difference to my emotional state.

I love your sneaky posts Mai. I imagine a wise tortoise poking itโ€™s head out to eat when no one is looking the going back in again before it gets spotted.
We miss you and know that you have a lot on your mind.
๐Ÿ™ˆ๐Ÿ™‰๐Ÿ™Š
Highlighted
Member

Re: May 2017 chemo starters

Hi Tree house. Am ok thanks. felt rough after Herceptin week last Thursday and apart from tiredness feel good. Got some Gabapentin from Doc for the neuropathy and can feel a difference after only 5 days. Rang BC office yesterday to ask if I need a blood test before next wedneadays op. Receptionist said no but then asked if I had had my pre op assessment. NO and I said I wont be coming in bedore wednesday so please have someone call me. No one did grrr. It costs me ยฃ20 each time I go and its a 60 mile round trip. xx
Highlighted
Community Champion

Re: May 2017 chemo starters

Hi Mai - lovely to hear from you.

Your lasagne sounds delicious - I'm looking for more vegetarian ideas and this sounds fab.

Sagging lower eye lids - I have those too! Must be something to do with our age!

I've had a little too much fresh air today - just had to resort to a lovely soak in epsom salt bath as my knees were very painful! Has worked though and I won't be long before bed tonight - feel very tired!
Highlighted
Community Champion

Re: May 2017 chemo starters

Treehouse - hopefully the pea size lump you've discovered is nothing more than some scar tissue. My MX area is full of lumps and bumps which change daily - it's all the scar tissue sorting itself out!  x

 

Highlighted
Community Champion

Re: May 2017 chemo starters

Evening ladies.  I've been working again all day.  Yesterday I made a really nice spinach, shiitake mushroom and garlic lasagne, with whole grain lasagne.  Tonight I made black bean enchiladas. I'm getting quite into soaking the dried lentils and beans - turning into a proper hippy! ๐Ÿ„ โ˜ฎ

Shi, you seem to have dodged the hospital this time, day 8.  Yay! Hope this continues for you. (I had to correct that as the autocorrect changed "this continues" to "the font used" quite bizarre!) Love and sparkles to you. ๐Ÿ’—โœจโœจ

Treehouse, I hope you getter a better nights sleep tonight, that sounds really pants - you'll probably sleep better from exhaustion from last night. I hope the lump turns out to be nothing bad, try and switch off from it until Wednesday my lovely.  I've been enjoying spooning on my left side whilst i can. I always spoon on my left and that's the bad side! ๐Ÿ˜ 

Rosie, it all makes sense now!  If you're getting a nip on the tummy, do you think my surgeon will fix my sagging lower eye lids during boob surgery? ๐Ÿ˜‚ I just need to think of a story to create some sort of connection! 

Katie, hope the Xmas shopping goes well. I did all mine in Sept and Oct on Amazon so I wouldn't have to try and shop after surgery and during rads period. I just have to wrap it all now! ๐ŸŽ 

Jay, your oneness with your dog and nature sounded almost poetic. ๐Ÿƒ Glad you are enjoying the simple things and getting out for some fresh air.

 

Highlighted
Member

Re: May 2017 chemo starters

Jay I can't wait to take my Izzy out just me and her it's not the same either tagging along or other people taking her I love walking her it's part of my routine, I'm rads after this have meeting on Monday so should be long after I think it will probably be what would be week 4
Treehouse I hope the lump turns out to be nothing, I just hope you get a scan quickly to ease your mind ๐Ÿ’–๐Ÿ’– I will be thinking of you and like Shi said you have not long had surgery I remember not long after mine I found a lump which turned out to be a seroma x
Trusham hope your doing OK and Mai looking forward to some recipes when you have time Rosie I'm waiting for chemo crash! Normally happens to me day 3/4 that's when the pains start and achey legs and neuropathy
But it's the last time so I am manning up and getting on with it!
Night ladies ๐ŸŒŸ๐ŸŒ›
Highlighted
Member

Re: May 2017 chemo starters

Oh treehouse! Must have been a shock but remember it could just be scar tissue. Don't panic. ! X
Highlighted
Member

Re: May 2017 chemo starters

Thanks Trish. How you doing lovely?
Highlighted
Member

Re: May 2017 chemo starters

Hello lovely ladies. I finally have internet in our new house so can get back to chatting. Everyone seems to be progressing well which is great. I now have a date for my radiotherapy planning. 16th November. Then hopefully starting treatments before month end so I am finished in time to fly to Italy for Christmas with my daughter and family. As we had to cancel two family holidays this year due to my treatments,, I am determined to have this trip! 

3 weeks post op and I finally seem to have no more fluid build up. About deodorant, my bcn says I will eventually be able to use normal deodorant, no need for anything special, which is what I thought. 

Take care.

 

Highlighted
Member

Re: May 2017 chemo starters

Big hugs Tree house x
Highlighted
Community Champion
Community Champion

Re: May 2017 chemo starters

Hi treehouse, there will still be a lot of settling down going on in boobs, please try not to panic, I too had a dream convince after surgery theyโ€™d missed a bit and then convinced myself I could still feel it there which had me on phone to my bc nurse with 2 weeks of op, trying to be calm but as you all know what a flap mind queen I am you can imagine what a frenzy I was working myself up into. Sending you ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜and hugs, just remind yourself youโ€™ve had a major op and things are still settling and it could still be a stitch thatโ€™s yet to dissolve too. Love you ๐Ÿ’•๐Ÿ’•โœจโœจshi xx
Highlighted
Member

Re: May 2017 chemo starters

Ok so after last nights dream I have actually found a tiny (pea size) lump in right boob.
Refusing to panic. Will wait for appointment on Wednesday โ˜น๏ธ.
Highlighted
Community Champion

Re: May 2017 chemo starters

I'm pleased to make you smile Treehouse and I hope you are feeling a little better now.

I know exactly how you feel re missing life's little luxuries - it takes time and time seems to take forever. However, the time will come and you will enjoy the moments even more - especially cuddling up to hubby now it's getting chillier at bedtime. Bedtime and first thing in the morning - when I'm happy and so glad to be alive - my Son detests his Mummy cuddles - he's growing up far too quick!

Deodorant - I use it under my non-operated arm and I'm sure I'm using more of it! I also just lightly spray body spray all over my torso!

Also, anyone else suffering with a tingly scalp/pulling hair feeling? Mine is almost an inch long in places and during the night I've been suffering with these feelings. So last night I wore my night time chemo cap - so much better - I almost slept the whole night through!
Highlighted
Member

Re: May 2017 chemo starters

Thanks for sharing your positive and inspiring post Jay. Made me smile ๐Ÿ˜Š.
I am missing a few of lifeโ€™s little luxuries at the moment:
1 cuddles I really miss cuddling my kids and my husband. ( still too scared and sore)
2. Sleeping on my side ( and cuddling up to hubby)
3. Deodorant!!! ๐Ÿ˜ท
Highlighted
Community Champion

Re: May 2017 chemo starters

So today being over the 6 week post-surgery date - I've pushed myself a little and used my arm a little more -  I ENJOYED doing a little ironing and I ENJOYED doing a little hoovering!  I won't be repeating those words ever again - I promise....! and certainly won't be repeating them to my Husband and Son later!!

 

What I really enjoyed this morning too was taking the dog for a lovely walk to a nearby country park - it felt like just her and me - kicking up the leaves in the eerie misty yet slightly romantic fog!  On the lake were a family of swans - mum, dad and 3 youngsters - I really wished they could speak and let me know what they were actually doing - they seemed to have purpose in the way they were graciously gliding on the water - beautiful.

 

I've also just eaten half a tub of hoummous with cream crackers - why? 1 Because I love it and 2. it's best before tomorrow - so my thinking half today and half tomorrow!!  I also had trifle!  

 

Highlighted
Member

Re: May 2017 chemo starters

Treehouse - I think my older sister thought that as 2 of us had it she would be ok๐Ÿ˜‚But as the consultant said to her, sorry but it doesn't work like that! I agree it's much worse for my niece at 27 to make these sort of decisions. And my older sister has a daughter who'll need testing now too.

 

Mai - lovely to hear from you. Think the surgeon was interested in my ability to cope with abdominal surgery so he can make me some lovely B cups๐Ÿคฃ. At least, I hope so and it wasn't just some perverse power thing to get me to do random exercises.

 

He noticed while I did it that some other muscle had been pushed up when I was pregnant and makes you look fatter and he said "I'll sort that out while you're under"!!!! Hah. 

 

Just been looking to see what other body parts  I'm unhappy with that he could "sort out" while I'm there.

Highlighted
Member

Re: May 2017 chemo starters

Morning ladies, lovely to hear from you mai.

Hope you have had better sleep now treehouse and have woken to a new better day.

Oh rosie, must be difficult for your family but as you say at least they can get help / treatment earlier.

Decided to have a clean this morning and write a christmas list. Lists and cleaning always make me feel less stressed. Feel like I have loads to do! Lol x

Enjoy the lovely autumn morning all x
Highlighted
Community Champion

Re: May 2017 chemo starters

Good to hear from you Mai - you'll have to share your healthy recipes with us when you're feeling up to it.  

 

Treehouse - hope you wake up feeling better, 2nd time around.

 

Rosie - sorry to hear of your sister's results - at least you have each other for the emotional support. x

 

Mishy - hope the se's are over and done with quickly - what's the next step of the journey for you? 

 

 

Highlighted
Member

Re: May 2017 chemo starters

Hi everyone Treehouse sorry you had a rough night I had a restless one but not rough, what a horrible dream it doesn't matter how far on you are I suppose it's there lurking about in the subconscious so I suppose it's only natural to get those dreams hope you feel a little better later today waiting for the SE to kick in! Will listen to my body not my head as I want to take good care of myself this time minimise the risk!!!
Hoping all of you are well today it's a lovely morning out cold but lovely and sunny a crisp Autumn morning ๐ŸŒž๐Ÿ๐Ÿ‚ might wrap up and have a little time in the garden see what's going on!!!
Highlighted
Member

Re: May 2017 chemo starters

Thanks for the update Mai hope you managed some sleep ๐Ÿ’ค.
I am in a bit of a state this morning.
Really struggled to sleep last night, my whole body felt wrong. Legs were not my own and boobs were really sore. I ended up reaching for the codein which I have not needed for 2 weeks. Then had horrible dreams ( finding another lump) and have woken up with a sore throat and feeling emotional.

I will see if I can go back to sleep and try to start today all over again ๐Ÿ˜ฅ.
( sorry for being pathetic, just feeling sorry for myself) 3 weeks post op today!
Highlighted
Community Champion

Re: May 2017 chemo starters

Just a little late night posting whilst there's no one around to talk about the inevitable! Treehouse, Jay, I've been keeping busy with work and nice recipes for healthy meals.

 

Rosie, hugs to you and family as you all face the BRACA1 gene together. It must be very hard but you are all better equipped to make tough decisions now. ๐Ÿ’—   Im still trying to work out what lifting your legs for the surgeon has to do with breast surgery - am I missing something here? ๐Ÿ˜‚

 

Mishy, Congratulations and well done and take care for the next 3 weeks til the end of SEs. ๐ŸŽ‰๐Ÿ””

 

Heather, thanks for the article which I've found (33 page PDF) and will have a read.

 

WolfEE, is your hand getting better? It's so annoying that your car should let you down when you need it the most to be reliable.  Hope your your sister is doing well. 

Highlighted
Community Champion
Community Champion

Re: May 2017 chemo starters

Hugs rosie๐Ÿ˜˜๐Ÿ˜˜ I get my results in Dec, our family too with the gene, I just hope for future generations they are given the test in their 20โ€™s and given the option of preventative surgery. Love shi xx
Highlighted
Member

Re: May 2017 chemo starters

Hugs Rosie.
Itโ€™s a lot to come to terms with especially with siblings. Wolfee and your twin that must be tough for you both esp being so young.
My older sister is still waiting for results. She says she hopes I got heads and she got tails. I know what she means but still!!!!
Never one for subtlety or tact my sis ๐Ÿ˜‚
Highlighted
Member

Re: May 2017 chemo starters

Well done Mishy on last chemo, just one last lot of SE's and that part of this journey is done.

 

WolfEE - op is actually 15th but will be in theatre most of the day!

 

I am starting to feel nervous about s*****y but mainly because I'm anaemic and GP is useless ha ha. Tomorrow I am going to just keep ringing everyone until I get an answer

 

My older sister came round to say she too has inherited the BRCA1 gene. So my mum passed the gene on to all three of her daughters and so far one granddaughter also has it..

 

I'm pleased that my test has enabled everyone to get tested but feel a bit cheated that I was unable to avoid getting bc. I consulted genetics in 1998 and 2011 but my middle sister didn't feel able to have the test at that time so I couldn't find out that I had the gene and have risk reducing surgery.

 

At least I'm having it now and I'm sure I'll feel better about it all in the morning 

Highlighted
Member

Re: May 2017 chemo starters

Thanks ladies it was really busy today on ward so was there for ages! I will definitely take advice really SE on this one and take it easy!!
Hope you all have had a good day today xx
Highlighted
Member

Re: May 2017 chemo starters

Congrats mishy ๐Ÿ‘๐ŸŒŸ
Take it easy with those side effects they seem to save a little surprise when we let our guard down at the end. Relax one last time. It will all be behind you in a week or so. X x
Sending hugs x x x x
Highlighted
Member

Re: May 2017 chemo starters

๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””well done mishy on completing chemo ๐Ÿ””๐Ÿ””๐Ÿ””๐Ÿ””

 

katie thanks for info 

 

wolfee sorry to hear about you hand it's never straight forward 

 

I am all booked for surgery on 14th I thought today was preop but that is next week lol today was about seeing if chemo worked, they were pleased with chemo and said it has shrunk from 3.5 to 1,5 although when they diagnosed me they said it was 1.7 so was a bit confused.  But ready to jump in for next stage 

Highlighted
Member

Re: May 2017 chemo starters

Type Breast Cancer Care Moving Forward in Google and it will take you to a page which shows upcoming events. You need to register and book well in advance as it is oversubscribed but if you don't get on the list ask to go on the cancellation list.

 

H

Highlighted
Community Champion

Re: May 2017 chemo starters

I'm sitting here - waiting dinner to cook and wondering how Trisha is doing - any news that I have missed?

Highlighted
Member

Re: May 2017 chemo starters

Oh forgot. The lymphedema nurse mentions dragon boat racing. A study spilt a group of ladies recovering from BC and and node clearance. Half did no exercise and half learnt dragon boat racing. The ones that did the Dragon boat faired better with less lymphedema compared to the ones who did no exercise.

 

They suggest swimming and racket sports is best as it opens the lymphatic system in chest to help drain fluid even if you have no signs of lymphedema. 

 

Interesting lymphedema can occur in up to 3 years after surgery but can occur much later e.g. 20 years after op. We are liable to get it but you can help prevent it through exercise and skin movement.

 

H

Highlighted
Member

Re: May 2017 chemo starters

Moving forward course was quite interesting but could have really done it in 1.5 hrs today. 29 women means a lot of chit chat in between.

 

So today we had introduction to what Breast Cancer Care organisation does. Then a Radiographer talked about extreme fatigue and how to explain it to people, using the 12 spoon theory. This was followed by 1 hr talk on Lymphoedema by a specialist nurse. Then a lovely man from Notts County football fitness who works in the community talked about physical activity and why it is so important to do something active everyday, nothing major but just to move from the sofa. He was very interesting! Also given a copy of an article called "After the treatment finishes - then what?" By Dr Peter Harvey. It is a good read to try and explain to people how you feel. It was suggested that you show this to work so they can understand how you feel.

 

If you can get on a course then it is worth going. They offered 12 months of exercise classes for free in Nottingham but it is too far for me to go, any benefit would be outweighed by the exhausting drive there and back. Will see if GP will refer me to a local gym.

 

Hope you are all ok, 

 

โค Heather

Highlighted
Member

Re: May 2017 chemo starters

Wolfee, sorry to hear you have to wait so long for a lymphoedema appointment, it sucks. Unfortunately I think it's quite common, it's a Cinderella service and they never have enough resources. Don't worry too much, it's true that it's better to treat it sooner rather than later, but the time scale is quite slow if that makes sense, so your waiting time shouldn't make too much difference.
My armpit hair never really grew back after rads, just a few wispy bits. But it's the same on the side that didn't get rads. No idea why, unless it was the hormone treatment?
Highlighted
Member

Re: May 2017 chemo starters

Hi everyone finally back home from chemo last one done and dusted yey no bell to ring on my chemo ward but I don't care done it!! Just got the SE to get through ๐Ÿ’–
Highlighted
Community Champion
Community Champion

Re: May 2017 chemo starters

Thanks wolfee, I know I am far off from rads at the minute so as always so very grateful to everyone on May thread for guidance๐Ÿ˜˜๐Ÿ˜˜๐Ÿ’•๐Ÿ’•โœจโœจshi xx
Highlighted
Member

Re: May 2017 chemo starters

Rosie very confusing when the medical profession donโ€™t agree.
How are you feeling about s*****y? Or is it far enough away at the moment. Love the leg test. Not sure I would pass that right now ๐Ÿ˜€
Highlighted
Member

Re: May 2017 chemo starters

Rosie your surgery is 16th. Omg ๐Ÿ˜ฎ
Iโ€™m hoping Iโ€™ll get to have diep next year when I have my reconstruction and mastectomy of other side so youโ€™ll have to keep me updated how it is. How many drains did you just mention. Arghhhhhhhhh

Shi. Me Iโ€™m having radiation on chest wall. (I had mastectomy so have no Breast tissue) so I think mine is chest wall and neck. Iโ€™ll have a look through paperwork and see exactly how itโ€™s describes it??
Highlighted
Member

Re: May 2017 chemo starters

Can you welly wang after an SNB? Sounds more exciting than half an hour with Kelly!. Not sure I'll lose any weight doing it treehouse nothing has shifted my tummy fat since having my kids which is why I jumped at the chance of getting rid of it at last!!!

 

I had to demonstrate to the surgeon while lying down that I could lift both legs up together and hold them a few inches off the ground. Not easy after 6 months of chemo and little exercise  but obviously convinced him๐Ÿ˜‚

 

My my sister had rads to both arms and also doesn't sweat at all so no need for deodorant, she sweats out of the top of her head.

 

Sorry to to hear about your hand Wolfee, hope it gets sorted soon. So when you start rads I'll be in a hospital bed with six drains and administering my own morphine via the patient controlled analgesia!! That's if my GP and the hospital ever decide what to do about my anaemia. I seem to be constantly waiting for someone to call me back

Highlighted
Community Champion
Community Champion

Re: May 2017 chemo starters

Is/has anyone had rads to chest wall please? I am a way off yet I know but my onc said at time of telling me fec-t followed by rads to chest wall? Thank you ๐Ÿ’•๐Ÿ’•๐Ÿ˜˜๐Ÿ˜˜โœจโœจshi
Highlighted
Member

Re: May 2017 chemo starters

Now that would be good I hadnโ€™t realised we could loose our under arm with rads?

Iโ€™ll be having 15 sessions my last one 6th December. Iโ€™m not sure exactly where Iโ€™m having it but Iโ€™d does include my neck. The dots I had tattooed are in the middle of my cleavage (hahaha if itโ€™s still called that) and the a dot on left and right side of Brest area. Iโ€™m not having radiation on my left side though only right cancer side.
Apparently some people get a week on the end of boosters but because I had a mastectomy I wonโ€™t be needing them.
Highlighted
Member

Re: May 2017 chemo starters

My mum had rads and the hair never grew back!!!
Silver lining
Highlighted
Member

Re: May 2017 chemo starters

Iโ€™ve shaved my legs and arm that didnโ€™t have surgery but my surgery side has been left and will be left for a while yet so today I had to lay and have all my radiotherapy stuff done with hairy arm I felt terrible but canโ€™t feel anything under my arm so shaving would be weird plus donโ€™t wamt to risk cutting myself. Also radiotherapy Care leaflet book thing said donโ€™t agrivate area with shaving. So Iโ€™ll be hairy until January I think
Highlighted
Member

Re: May 2017 chemo starters

I am more than happy to talk about anything other than the s word.
Armpit hair ! In fact all Hair.
Spring has sprung in the last garden ๐ŸŒฑ
Too scared to shave my pits yet with wounds just heeled.
Turning into yeti x
Highlighted
Community Champion

Re: May 2017 chemo starters

Treehouse - I think Mai has her headphones on, her head buried and she's keeping busy doing all of those things you mention...let's just hope her wig has stayed put! I don't think we can tempt her yet to join in our fun!!! can we Mai??? x
Highlighted
Member

Re: May 2017 chemo starters

Wolfee glad planning went well. Sorry to hear about your hand fingers crossed you donโ€™t have a long wait. Have they suggested anything you can do to help while you are waiting?
Hi Mai HELLOOOO! Have you been doing anything fun to keep yourself distracted?
Dancing? ๐Ÿ’ƒ cooking ๐Ÿฅ˜ or mushroom ๐Ÿ„ picking or leaf ๐Ÿ kicking?
Canโ€™t keep that good woman down x
Highlighted
Community Champion

Re: May 2017 chemo starters

Wolfee I think there's a lot of us welly wangers feeling the same way!!! lol...

Pleased to hear you've entered the radiotherapy world and so far it sounds good. 16 Nov is good - are you having the usual 15 sessions? What areas are they doing?

I'm sorry to hear about your swollen hand and the fact you weren't taken seriously when you first mentioned it, hopefully you don't have to wait 8 weeks - my goodness that's an awful long time
Highlighted
Community Champion

Re: May 2017 chemo starters

Jay, lalalala ๐Ÿ™‰ 

 

Treehouse, welly wanging rocked! ๐Ÿ‘ข

 

Mishy, ring that bell loud and proud! Xx

Highlighted
Community Champion

Re: May 2017 chemo starters

Thank you so much for the reassurance tatyana - I'm so happy to hear I'll be able to eventually use my arm to the extent I always have - especially as it's might right one and I'd be lost without it!  Definitely a right handed person me - can't adapt my left hand in the same way at all!  I am using it more but because the medical staff really emphasise the need to be careful, I'm taking them literally!

 

However, I am slightly disappointed that I will no longer be able to participate in welly wanging!!!  I love to throw a welly.....!!!

 

I have been into work today and managed to cut up lots of childrens roast dinners using both arms!  They were all so pleased to see me back today - lots of questions and statements from 5/67 year olds, like.... "Have you been on holiday?" and "You've had your hair cut" - oh yes and the best one, "I haven't seen you for years....!" - bless them x