Good to hear you are ok Trish.
After my course on Weds I thought that I am not doing myself or my arm any good sleeping on it. The talk about Lymphoedema set me thinking that if I sleep on my bad side most of the night then could it be stopping proper drainage of the lumps on that side. Just a thought ....
Treehouse - hopefully the pea size lump you've discovered is nothing more than some scar tissue. My MX area is full of lumps and bumps which change daily - it's all the scar tissue sorting itself out! x
Evening ladies. I've been working again all day. Yesterday I made a really nice spinach, shiitake mushroom and garlic lasagne, with whole grain lasagne. Tonight I made black bean enchiladas. I'm getting quite into soaking the dried lentils and beans - turning into a proper hippy! 🍄 ☮
Shi, you seem to have dodged the hospital this time, day 8. Yay! Hope this continues for you. (I had to correct that as the autocorrect changed "this continues" to "the font used" quite bizarre!) Love and sparkles to you. 💗✨✨
Treehouse, I hope you getter a better nights sleep tonight, that sounds really pants - you'll probably sleep better from exhaustion from last night. I hope the lump turns out to be nothing bad, try and switch off from it until Wednesday my lovely. I've been enjoying spooning on my left side whilst i can. I always spoon on my left and that's the bad side! 😏
Rosie, it all makes sense now! If you're getting a nip on the tummy, do you think my surgeon will fix my sagging lower eye lids during boob surgery? 😂 I just need to think of a story to create some sort of connection!
Katie, hope the Xmas shopping goes well. I did all mine in Sept and Oct on Amazon so I wouldn't have to try and shop after surgery and during rads period. I just have to wrap it all now! 🎁
Jay, your oneness with your dog and nature sounded almost poetic. 🍃 Glad you are enjoying the simple things and getting out for some fresh air.
Hello lovely ladies. I finally have internet in our new house so can get back to chatting. Everyone seems to be progressing well which is great. I now have a date for my radiotherapy planning. 16th November. Then hopefully starting treatments before month end so I am finished in time to fly to Italy for Christmas with my daughter and family. As we had to cancel two family holidays this year due to my treatments,, I am determined to have this trip!
3 weeks post op and I finally seem to have no more fluid build up. About deodorant, my bcn says I will eventually be able to use normal deodorant, no need for anything special, which is what I thought.
So today being over the 6 week post-surgery date - I've pushed myself a little and used my arm a little more - I ENJOYED doing a little ironing and I ENJOYED doing a little hoovering! I won't be repeating those words ever again - I promise....! and certainly won't be repeating them to my Husband and Son later!!
What I really enjoyed this morning too was taking the dog for a lovely walk to a nearby country park - it felt like just her and me - kicking up the leaves in the eerie misty yet slightly romantic fog! On the lake were a family of swans - mum, dad and 3 youngsters - I really wished they could speak and let me know what they were actually doing - they seemed to have purpose in the way they were graciously gliding on the water - beautiful.
I've also just eaten half a tub of hoummous with cream crackers - why? 1 Because I love it and 2. it's best before tomorrow - so my thinking half today and half tomorrow!! I also had trifle!
Treehouse - I think my older sister thought that as 2 of us had it she would be ok😂But as the consultant said to her, sorry but it doesn't work like that! I agree it's much worse for my niece at 27 to make these sort of decisions. And my older sister has a daughter who'll need testing now too.
Mai - lovely to hear from you. Think the surgeon was interested in my ability to cope with abdominal surgery so he can make me some lovely B cups🤣. At least, I hope so and it wasn't just some perverse power thing to get me to do random exercises.
He noticed while I did it that some other muscle had been pushed up when I was pregnant and makes you look fatter and he said "I'll sort that out while you're under"!!!! Hah.
Just been looking to see what other body parts I'm unhappy with that he could "sort out" while I'm there.
Good to hear from you Mai - you'll have to share your healthy recipes with us when you're feeling up to it.
Treehouse - hope you wake up feeling better, 2nd time around.
Rosie - sorry to hear of your sister's results - at least you have each other for the emotional support. x
Mishy - hope the se's are over and done with quickly - what's the next step of the journey for you?
Just a little late night posting whilst there's no one around to talk about the inevitable! Treehouse, Jay, I've been keeping busy with work and nice recipes for healthy meals.
Rosie, hugs to you and family as you all face the BRACA1 gene together. It must be very hard but you are all better equipped to make tough decisions now. 💗 Im still trying to work out what lifting your legs for the surgeon has to do with breast surgery - am I missing something here? 😂
Mishy, Congratulations and well done and take care for the next 3 weeks til the end of SEs. 🎉🔔
Heather, thanks for the article which I've found (33 page PDF) and will have a read.
WolfEE, is your hand getting better? It's so annoying that your car should let you down when you need it the most to be reliable. Hope your your sister is doing well.
Well done Mishy on last chemo, just one last lot of SE's and that part of this journey is done.
WolfEE - op is actually 15th but will be in theatre most of the day!
I am starting to feel nervous about s*****y but mainly because I'm anaemic and GP is useless ha ha. Tomorrow I am going to just keep ringing everyone until I get an answer
My older sister came round to say she too has inherited the BRCA1 gene. So my mum passed the gene on to all three of her daughters and so far one granddaughter also has it..
I'm pleased that my test has enabled everyone to get tested but feel a bit cheated that I was unable to avoid getting bc. I consulted genetics in 1998 and 2011 but my middle sister didn't feel able to have the test at that time so I couldn't find out that I had the gene and have risk reducing surgery.
At least I'm having it now and I'm sure I'll feel better about it all in the morning
🔔🔔🔔🔔well done mishy on completing chemo 🔔🔔🔔🔔
katie thanks for info
wolfee sorry to hear about you hand it's never straight forward
I am all booked for surgery on 14th I thought today was preop but that is next week lol today was about seeing if chemo worked, they were pleased with chemo and said it has shrunk from 3.5 to 1,5 although when they diagnosed me they said it was 1.7 so was a bit confused. But ready to jump in for next stage
Type Breast Cancer Care Moving Forward in Google and it will take you to a page which shows upcoming events. You need to register and book well in advance as it is oversubscribed but if you don't get on the list ask to go on the cancellation list.
I'm sitting here - waiting dinner to cook and wondering how Trisha is doing - any news that I have missed?
Oh forgot. The lymphedema nurse mentions dragon boat racing. A study spilt a group of ladies recovering from BC and and node clearance. Half did no exercise and half learnt dragon boat racing. The ones that did the Dragon boat faired better with less lymphedema compared to the ones who did no exercise.
They suggest swimming and racket sports is best as it opens the lymphatic system in chest to help drain fluid even if you have no signs of lymphedema.
Interesting lymphedema can occur in up to 3 years after surgery but can occur much later e.g. 20 years after op. We are liable to get it but you can help prevent it through exercise and skin movement.
Moving forward course was quite interesting but could have really done it in 1.5 hrs today. 29 women means a lot of chit chat in between.
So today we had introduction to what Breast Cancer Care organisation does. Then a Radiographer talked about extreme fatigue and how to explain it to people, using the 12 spoon theory. This was followed by 1 hr talk on Lymphoedema by a specialist nurse. Then a lovely man from Notts County football fitness who works in the community talked about physical activity and why it is so important to do something active everyday, nothing major but just to move from the sofa. He was very interesting! Also given a copy of an article called "After the treatment finishes - then what?" By Dr Peter Harvey. It is a good read to try and explain to people how you feel. It was suggested that you show this to work so they can understand how you feel.
If you can get on a course then it is worth going. They offered 12 months of exercise classes for free in Nottingham but it is too far for me to go, any benefit would be outweighed by the exhausting drive there and back. Will see if GP will refer me to a local gym.
Hope you are all ok,
Can you welly wang after an SNB? Sounds more exciting than half an hour with Kelly!. Not sure I'll lose any weight doing it treehouse nothing has shifted my tummy fat since having my kids which is why I jumped at the chance of getting rid of it at last!!!
I had to demonstrate to the surgeon while lying down that I could lift both legs up together and hold them a few inches off the ground. Not easy after 6 months of chemo and little exercise but obviously convinced him😂
My my sister had rads to both arms and also doesn't sweat at all so no need for deodorant, she sweats out of the top of her head.
Sorry to to hear about your hand Wolfee, hope it gets sorted soon. So when you start rads I'll be in a hospital bed with six drains and administering my own morphine via the patient controlled analgesia!! That's if my GP and the hospital ever decide what to do about my anaemia. I seem to be constantly waiting for someone to call me back
Thank you so much for the reassurance tatyana - I'm so happy to hear I'll be able to eventually use my arm to the extent I always have - especially as it's might right one and I'd be lost without it! Definitely a right handed person me - can't adapt my left hand in the same way at all! I am using it more but because the medical staff really emphasise the need to be careful, I'm taking them literally!
However, I am slightly disappointed that I will no longer be able to participate in welly wanging!!! I love to throw a welly.....!!!
I have been into work today and managed to cut up lots of childrens roast dinners using both arms! They were all so pleased to see me back today - lots of questions and statements from 5/67 year olds, like.... "Have you been on holiday?" and "You've had your hair cut" - oh yes and the best one, "I haven't seen you for years....!" - bless them x